Notice of Funding Opportunity: Bioethics and Disability

This report would examine developments at the state and federal-level, court cases, and current views from stakeholders. Policy Questions Which states have PAS laws and what do those laws provide? What protections against abuse of PAS?What have the Supreme Court and lower courts held regarding individuals’ rights under PAS laws? The laws themselves?Is there evidence that persons with disabilities are being denied treatment by insurance companies but offered PAS instead, as NCD predicted?How is PAS viewed by disability organizations? Has this evolved in the past 13 years? If so why? If not, why?Are persons with disabilities that seek PAS denied? On what grounds? Are these grounds widespread/common across laws?Have NCD’s previous recommendations on PAS been implemented? Which were implemented, which were not?Genetic Testing for Disability Genetic testing includes diagnostic and carrier testing. Diagnostic testing involves identifying current disease states. This includes prenatal and newborn screening—the most common forms of genetic testing. Carrier testing determines whether an individual carries a certain genetic trait. Examples of disorders for which genetic tests are available are Huntington's disease, cystic fibrosis, breast cancer, Down's syndrome, sickle cell anemia, and phenylketonuria. There are ethical implications of genetic testing for disability because of the potential for discrimination. Long before genetic testing existed, genetic discriminati...
Source: blog.bioethics.net - Category: Medical Ethics Authors: Tags: Health Care syndicated Source Type: blogs