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Bioengineering and specialized therapies yield results for rare, challenging blood diseases
(American Society of Hematology) In four studies being presented today during the 59th American Society of Hematology (ASH) Annual Meeting and Exposition in Atlanta, researchers announce promising findings on innovative tools and therapies for hard-to-treat blood disorders including sickle cell disease (SCD), beta thalassemia, and X-linked severe combined immunodeficiency (X-SCID). The studies employ unique therapeutic approaches and advanced engineering technologies such as the gene-editing platform CRISPR/Cas9, reflecting the fruits of many years of research dedication and innovation. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - December 11, 2017 Category: International Medicine & Public Health Source Type: news

New Online Platform Aims to Empower and Unite Sickle Cell Disease...
Patients and others battling sickle cell disease (SCD) -- a devastating genetic disorder primarily affecting African-Americans, but also Latinos, Arabs, and Indians -- may now pre-register for no-cost...(PRWeb November 29, 2017)Read the full story at http://www.prweb.com/releases/2017/11/prweb14939636.htm (Source: PRWeb: Medical Pharmaceuticals)
Source: PRWeb: Medical Pharmaceuticals - November 29, 2017 Category: Pharmaceuticals Source Type: news

CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Disease
Article examines trends, challenges, and approaches to improving the lives of those with Sickle Cell Disease. (Source: PHPartners.org)
Source: PHPartners.org - November 28, 2017 Category: International Medicine & Public Health Source Type: news

'Negative emotions' linked to higher rates of opioid use in sickle cell disease
(Johns Hopkins Medicine) In a small study using data from daily electronic patient diaries, Johns Hopkins researchers say they have found a link between negative emotions, such as sadness and anxiety, and higher opioid use in people with sickle cell disease whose pain levels were self-reported as relatively low. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - November 27, 2017 Category: International Medicine & Public Health Source Type: news

CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Disease
(Source: CDC Morbidity and Mortality Weekly Report)
Source: CDC Morbidity and Mortality Weekly Report - November 22, 2017 Category: American Health Source Type: news

In a first, scientists edit genes inside a man ’ s body to try to cure a disease. What ’ s next?
Scientists have attempted to cure a patient with a rare genetic disorder by rewriting the DNA inside his body, in a first-of-its-kind therapy they hope could one day be applied to numerous other conditions including hemophilia and sickle cell disease. The procedure, which took place on Monday at the University of California at San Francisco's Benioff Children's Hospital in Oakland, Calif., involved sending what the […]Related:American Heart Association president has heart attackFDA warns of ‘deadly risks’ of the herb kratom, citing 36 deathsHow we got the...
Source: Washington Post: To Your Health - November 16, 2017 Category: Consumer Health News Source Type: news

Understanding the Berlin patient's unexpected cure
(Oregon Health& Science University) Researchers have a new way to understand the much-studied Berlin patient's unexpected cure from HIV and improve outcomes of stem cell transplants for patients with other blood-related diseases such as leukemia and sickle-cell disease. A team at Oregon Health& Science University has shown a species of monkey called Mauritian cynomolgus macaques can successfully receive stem cell transplants. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - November 10, 2017 Category: International Medicine & Public Health Source Type: news

Increasing hydroxyurea dose helps to keep young sickle cell patients out of the hospital
(St. Jude Children's Research Hospital) St. Jude Children's Research Hospital researchers report that maximizing the dose of hydroxyurea increased levels of fetal hemoglobin and reduced the odds of hospitalizations for young sickle cell anemia patients. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - November 9, 2017 Category: International Medicine & Public Health Source Type: news

Medical News Today: What causes dactylitis (sausage fingers)?
Dactylitis is swelling of the fingers that causes a sausage-like appearance. Learn about causes of dactylitis, including syphilis and sickle cell disease. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - October 29, 2017 Category: Consumer Health News Tags: Arthritis / Rheumatology Source Type: news

Nigeria:The World Oldest Lived 'Sickle Cell Human' to Turn 92 On Nov 1
[Vanguard] Sickle Cell Disorder (SCD) is one of the most common chronic yet treatable genetic disorders in Nigeria and several other parts of the world. Millions of those who encounter this disorder often have tales of woe and lamentation to tell. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - October 28, 2017 Category: African Health Source Type: news

Why aren't more kids with sickle cell disease getting this test?
(Medical University of South Carolina) Hematologist and researcher Julie Kanter says as few as 30 percent of children across the country with sickle cell disease are getting a simple test that could keep them from having a stroke. She wants to bring that more in line with the MUSC Health rate of around 85 percent. So Kanter and two other researchers at the Medical University of South Carolina are leading a national, 28-site study, looking at what keeps some children from getting transcranial Doppler exams. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - October 20, 2017 Category: International Medicine & Public Health Source Type: news

Study: Sickle cell anemia treatment does not increase malaria risk in Africa
(American Society of Hematology) The drug hydroxyurea does not appear to increase the risk of malaria infection in patients with sickle cell anemia who live in malaria-endemic regions, according to a study published online today in Blood, the Journal of the American Society of Hematology (ASH). (Source: EurekAlert! - Infectious and Emerging Diseases)
Source: EurekAlert! - Infectious and Emerging Diseases - October 19, 2017 Category: Infectious Diseases Source Type: news

Sickle cell trait and heat injury among U.S. Army soldiers - Nelson DA, Deuster PA, O'Connor FG, Kurina LM.
There is concern that sickle cell trait increases risk of exertional collapse, a primary cause of which is heat injury. However, no population-based studies among active individuals have addressed this, representing a critical evidence gap. We conducted a ... (Source: SafetyLit)
Source: SafetyLit - October 16, 2017 Category: International Medicine & Public Health Tags: Environmental Issues, Climate, Geophysics Source Type: news

What Are the Health Needs of Incarcerated Youth?
Discussion In the US during 2011, ~60,000 youth were incarcerated at some time in a correctional facility. Boys are detained more than girls (86% vs 14% respectively in the US, 95% male in the United Kingdom in 2014) but girls have more health issues. There are racial and ethnic differences with 38-40% of detainees being black, 23% being Hispanic/Latino and 32% being white, and 5% other. For detained youth, 5% are for violent crimes, 22% for non-violent property crimes and the majority of the rest are for non-violent offices such as substance use. The average length of detainment is 3-4 months and unfortunately the rates o...
Source: PediatricEducation.org - October 16, 2017 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

NHS praised after racist tweet about sickle cell disease sufferers
Blood donors come forward after the NHS condemns comments about sickle cell disease sufferers. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - October 14, 2017 Category: Consumer Health News Source Type: news

Children's National awarded Doris Duke Charitable Foundation grant for sickle cell disease
(Children's National Health System) Children's National Health System will receive more than $550,000 in funding to lead a three-year, multi-center trial that will study a low intensity, chemotherapy-free transplantation approach to cure patients with sickle cell disease using a matched related donor. The grant was awarded through the Doris Duke Charitable Foundation's inaugural Sickle Cell Disease/Advancing Cures Awards, which provides funding to advance curative approaches for sickle cell disease. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - October 10, 2017 Category: International Medicine & Public Health Source Type: news

Fighting sickle cell disease by looking back to infancy
(Medical University of South Carolina) Fast-track research focused on developing a new gene-modifying sickle cell disease treatment at the Medical University of South Carolina could lead to human clinical trials in as few as three years. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - October 10, 2017 Category: International Medicine & Public Health Source Type: news

Nigeria: The Genotype Test Bill - an Attempt to Curb Sickle Cell Disease in Nigeria?
[Nigeria Health Watch] Sickle Cell Disease is one of the most prevalent public health issues in Nigeria, which is known to have the greatest number of sickle cell disease patients per country in the world. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - September 29, 2017 Category: African Health Source Type: news

Consumer Health: Sickle cell anemia
What is sickle cell anemia?? September is National Sickle Cell Awareness Month, which makes it a good time learn more about the facts and signs of sickle cell anemia. For most people, there's no cure, but treatments can relieve pain and help prevent problems associated with the disease. What do you know about sickle cell [...] (Source: News from Mayo Clinic)
Source: News from Mayo Clinic - September 22, 2017 Category: Databases & Libraries Source Type: news

The FDA Encourages New Treatments for Sickle Cell Disease
The U.S. Food and Drug Administration is collaborating with patients, academics, and the pharmaceutical industry to encourage the development of new treatments for sickle cell disease (SCD). (Source: FDA Consumer Health Information Updates)
Source: FDA Consumer Health Information Updates - September 20, 2017 Category: Consumer Health News Source Type: news

Acute Chest Syndrome in Pediatric Sickle-cell Disease: Antibiotic Guidelines Matter Acute Chest Syndrome in Pediatric Sickle-cell Disease: Antibiotic Guidelines Matter
Adhering to guidelines for antibiotic treatment of acute chest syndrome in children with sickle cell disease (SCD) is associated with reduced readmission rates, according to a retrospective cohort study.Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - September 14, 2017 Category: Consumer Health News Tags: Medscape Today News Source Type: news

Antibiotic Rx Adherence Varies Widely in Sickle Cell Care
Guideline - adherent therapy tied to fewer 30 - day readmissions (Source: The Doctors Lounge - Oncology)
Source: The Doctors Lounge - Oncology - September 12, 2017 Category: Cancer & Oncology Tags: Family Medicine, Internal Medicine, Critical Care, Emergency Medicine, Nursing, Oncology, Pediatrics, Pharmacy, Pulmonology, Anesthesiology & Pain, Journal, Source Type: news

PCORI Board approves $18 million for research on sickle cell disease
(Patient-Centered Outcomes Research Institute) The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved about $18 million to fund two studies comparing different ways to manage the transition of people with sickle cell disease from pediatric to adult care. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - September 12, 2017 Category: International Medicine & Public Health Source Type: news

Bioverativ and Bicycle Therapeutics to develop new haemophilia and sickle cell disease treatments
US biotechnology company Bioverativ has entered a new research collaboration with UK-based Bicycle Therapeutics to discover, develop and commercialise new therapies for haemophilia and sickle cell disease. (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - September 7, 2017 Category: Pharmaceuticals Source Type: news

Blood Disorders
Centers for Disease Control and Prevention. 07/19/2017 This Web page provides links to information, tips, sources, and treatment centers for several blood disorders: Thalassemia, Hemophilia, Sickle Cell Disease, and Thrombosis and Hemostasis. (Text) (Source: Disaster Lit: Resource Guide for Disaster Medicine and Public Health)
Source: Disaster Lit: Resource Guide for Disaster Medicine and Public Health - September 5, 2017 Category: International Medicine & Public Health Authors: The U.S. National Library of Medicine Source Type: news

Nigeria: Stakeholders Want National Assembly to Pass Sickle Cell Bill
[Guardian] Participants at a conference on Sickle Cell Disease (SCD) have called on the National Assembly to pass a bill on sickle cell control and management to better insure the life of the people living with the disease. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - August 31, 2017 Category: African Health Source Type: news

CSL Behring to Acquire Biotech Company Calimmune and its Proprietary Stem Cell Gene Therapy Platform
Builds on CSL Behring's promise to patients with rare and serious diseases Gene and stem cell-based therapies complements the Company's extensive expertise in protein-based therapies Sickle cell product candidate (CAL-H) - a strategic fit for CSL Beh... Biopharmaceuticals, Mergers & Acquisitions CSL Behring, Calimmune, Cytegrity, gene therapy (Source: HSMN NewsFeed)
Source: HSMN NewsFeed - August 28, 2017 Category: Pharmaceuticals Source Type: news

Gamida Cell launches severe aplastic anemia trial
Gamida Cell said today that the first patient has been transplanted in a study of its CordIn product for patients with severe aplastic anemia or hypoplastic myelodysplastic syndrome. The product is designed for patients with rare genetic diseases who have no fully-matched donors for a bone marrow transplantation. Gamida Cell said it is also evaluating its CordIn therapy for patients with sickle cell disease. Get the full story at our sister site, Drug Delivery Business News.   The post Gamida Cell launches severe aplastic anemia trial appeared first on MassDevice. (Source: Mass Device)
Source: Mass Device - August 21, 2017 Category: Medical Devices Authors: Sarah Faulkner Tags: Clinical Trials Research & Development Stem Cells Gamida Cell Source Type: news

Children's Healthcare of Atlanta's Aflac Cancer and Blood Disorders Center awarded $6 million grant
The Aflac Cancer and Blood Disorders Center at Children's cares for more than 450 newly diagnosed children a year and follows 3,200 patients with sickle cell disease, hemophilia and other blood disorders. (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - August 11, 2017 Category: American Health Authors: Ellie Hensley Source Type: news

Computer models provide new understanding of sickle cell disease
(Brown University) Simulations developed by Brown University mathematicians provide new details of how sickle cell disease manifests inside red blood cells, which could help in developing new treatments. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - July 28, 2017 Category: International Medicine & Public Health Source Type: news

Endari for the Treatment of Sickle Cell Disease
Endari ™ is an orally-administered powder form of amino acid L-glutamine indicated for the treatment of sickle cell disease. (Source: Drug Development Technology)
Source: Drug Development Technology - July 23, 2017 Category: Pharmaceuticals Source Type: news

Nigeria: Experts Harp On Effective Management of Sickle Cell Anaemia
[Guardian] Medical professionals have emphasized the need for effective management of sickle cell disease (SCD) in people to avoid severe health crisis, as well as to avert the disease in offspring. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - July 20, 2017 Category: African Health Source Type: news

New Treatment for Sickle Cell Disease
(Source: eMedicineHealth.com)
Source: eMedicineHealth.com - July 17, 2017 Category: General Medicine Source Type: news

Nigeria: Senate Wants Genotype As Compulsory Test for Couples Before Marriage
[Vanguard] Abuja -Moves by the Senate to nip in the bud increasing cases of Sickle Cell disease in the country, Tuesday got a boost as a Bill for an Act to provide for Compulsory Haemoglobin-Genotye Testing and for other connected matters scaled second reading. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - July 12, 2017 Category: African Health Source Type: news

FDA approves Emmaus' Endari to treat sickle cell disease
The US Food and Drug Administration (FDA) has granted approval for Emmaus Life Sciences' Endari (L-glutamine oral powder) to reduce the severe complications of rare, debilitating and lifelong hereditary blood disorder sickle cell disease (SCD) in adu … (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - July 10, 2017 Category: Pharmaceuticals Source Type: news

FDA Approves Endari for the Treatment of Sickle Cell Disease
First treatment approved for patients with sickle cell disease in almost 20 years (Source: The Doctors Lounge - Oncology)
Source: The Doctors Lounge - Oncology - July 10, 2017 Category: Cancer & Oncology Tags: Oncology, Pharmacy, Institutional, Source Type: news

FDA clears first new sickle cell treatment in 20 years
Emmaus Life Sciences said last week that the FDA approved its L-glutamine oral powder, Endari, as a therapy to lessen the complications of sickle cell disease in patients ages 5 and older. The drug’s approval was supported by data from a Phase III trial evaluating Endari compared to a placebo in 230 adults and children with sickle cell disease. The data showed that Endari cut the frequency of sickle cell crises by one-fourth and hospitalizations by 33%, according to Emmaus. Get the full story at our sister site, Drug Delivery Business News. The post FDA clears first new sickle cell treatment in 20 years appeared...
Source: Mass Device - July 10, 2017 Category: Medical Devices Authors: Sarah Faulkner Tags: Food & Drug Administration (FDA) Pharmaceuticals Regulatory/Compliance emmauslifesciences Source Type: news

Nigeria: Delta Assembly Adopts Report On Sickle Cell Bill
[Vanguard] Asaba -Delta State House of Assembly has adopted reports on the bill for the establishment of Delta State Sickle Cell Centre and scheduled the probosed Delta State Public Occupational Safety Bill, 2017 and Delta State Manufacturing and Use of Deep Canoes Regulatory Bill, 2017 for first reading. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - July 10, 2017 Category: African Health Source Type: news

FDA Approves New Drug for Sickle Cell Disease
Title: FDA Approves New Drug for Sickle Cell DiseaseCategory: Health NewsCreated: 7/7/2017 12:00:00 AMLast Editorial Review: 7/10/2017 12:00:00 AM (Source: MedicineNet Chronic Pain General)
Source: MedicineNet Chronic Pain General - July 10, 2017 Category: Anesthesiology Source Type: news

New Sickle Cell Treatment Approved (FREE)
By Amy Orciari Herman Edited by Susan Sadoughi, MD, and Andr é Sofair, MD, MPH The FDA has approved L-glutamine oral powder (Endari) to treat sickle disease in patients aged 5 years and older. It's the first sickle cell … (Source: Physician's First Watch current issue)
Source: Physician's First Watch current issue - July 10, 2017 Category: Primary Care Source Type: news

FDA Approves Endari (L-glutamine oral powder) for Sickle Cell Disease
July 7, 2017 -- The U.S. Food and Drug Administration today approved Endari (L-glutamine oral powder) for patients age five years and older with sickle cell disease to reduce severe complications associated with the blood disorder. " Endari is the... (Source: Drugs.com - New Drug Approvals)
Source: Drugs.com - New Drug Approvals - July 8, 2017 Category: Drugs & Pharmacology Source Type: news

FDA Approves New Drug for Sickle Cell Disease
Helps reduce painful, and sometimes life-threatening, complications of the inherited blood disorder (Source: WebMD Health)
Source: WebMD Health - July 7, 2017 Category: Consumer Health News Source Type: news

New drug for sickle cell disease approved by FDA
The U.S. Food and Drug Administration on Friday approved the first new drug for sickle cell disease in nearly two decades. (Source: Health News - UPI.com)
Source: Health News - UPI.com - July 7, 2017 Category: Consumer Health News Source Type: news

FDA OKs First New Treatment for Sickle Cell in Almost 20 Years FDA OKs First New Treatment for Sickle Cell in Almost 20 Years
The FDA has approved L-glutamine oral powder (Endari, Emmaus Medical Inc) for patients aged 5 years and older with sickle cell disease.FDA Approvals (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - July 7, 2017 Category: Consumer Health News Tags: Hematology-Oncology News Alert Source Type: news

FDA Approves New Drug for Sickle Cell Disease
Helps reduce painful, and sometimes life-threatening, complications of the inherited blood disorderSource: HealthDay Related MedlinePlus Pages: Blood Disorders, Medicines, Sickle Cell Anemia (Source: MedlinePlus Health News)
Source: MedlinePlus Health News - July 7, 2017 Category: Consumer Health News Source Type: news

First new drug approved for sickle cell in 20 years
In a new study, the drug cut the number of pain crises, dangerous chest complications, transfusions and hospitalizations (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - July 7, 2017 Category: Consumer Health News Source Type: news

New Sickle Cell Treatment OK'd
(MedPage Today) -- FDA approves L-glutamine oral powder for reducing complications (Source: MedPage Today Nephrology)
Source: MedPage Today Nephrology - July 7, 2017 Category: Urology & Nephrology Source Type: news

FDA approves first new drug in 20 years for sickle cell
The U.S. Food and Drug Administration has approved the first drug in nearly 20 years for sickle cell, an inherited disease in which abnormally shaped red blood cells can't properly carry oxygen throughout the body (Source: ABC News: Health)
Source: ABC News: Health - July 7, 2017 Category: Consumer Health News Tags: Health Source Type: news

FDA approves new treatment for sickle cell disease
The U.S. Food and Drug Administration today approved Endari (L-glutamine oral powder) for patients age five years and older with sickle cell disease to reduce severe complications associated with the blood disorder. (Source: Food and Drug Administration)
Source: Food and Drug Administration - July 7, 2017 Category: American Health Source Type: news