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The FDA Encourages New Treatments for Sickle Cell Disease
The U.S. Food and Drug Administration is collaborating with patients, academics, and the pharmaceutical industry to encourage the development of new treatments for sickle cell disease (SCD). (Source: FDA Consumer Health Information Updates)
Source: FDA Consumer Health Information Updates - September 20, 2017 Category: Consumer Health News Source Type: news

Acute Chest Syndrome in Pediatric Sickle-cell Disease: Antibiotic Guidelines Matter Acute Chest Syndrome in Pediatric Sickle-cell Disease: Antibiotic Guidelines Matter
Adhering to guidelines for antibiotic treatment of acute chest syndrome in children with sickle cell disease (SCD) is associated with reduced readmission rates, according to a retrospective cohort study.Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - September 14, 2017 Category: Consumer Health News Tags: Medscape Today News Source Type: news

Antibiotic Rx Adherence Varies Widely in Sickle Cell Care
Guideline - adherent therapy tied to fewer 30 - day readmissions (Source: The Doctors Lounge - Oncology)
Source: The Doctors Lounge - Oncology - September 12, 2017 Category: Cancer & Oncology Tags: Family Medicine, Internal Medicine, Critical Care, Emergency Medicine, Nursing, Oncology, Pediatrics, Pharmacy, Pulmonology, Anesthesiology & Pain, Journal, Source Type: news

PCORI Board approves $18 million for research on sickle cell disease
(Patient-Centered Outcomes Research Institute) The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved about $18 million to fund two studies comparing different ways to manage the transition of people with sickle cell disease from pediatric to adult care. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - September 12, 2017 Category: International Medicine & Public Health Source Type: news

Bioverativ and Bicycle Therapeutics to develop new haemophilia and sickle cell disease treatments
US biotechnology company Bioverativ has entered a new research collaboration with UK-based Bicycle Therapeutics to discover, develop and commercialise new therapies for haemophilia and sickle cell disease. (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - September 7, 2017 Category: Pharmaceuticals Source Type: news

Blood Disorders
Centers for Disease Control and Prevention. 07/19/2017 This Web page provides links to information, tips, sources, and treatment centers for several blood disorders: Thalassemia, Hemophilia, Sickle Cell Disease, and Thrombosis and Hemostasis. (Text) (Source: Disaster Lit: Resource Guide for Disaster Medicine and Public Health)
Source: Disaster Lit: Resource Guide for Disaster Medicine and Public Health - September 5, 2017 Category: International Medicine & Public Health Authors: The U.S. National Library of Medicine Source Type: news

Nigeria: Stakeholders Want National Assembly to Pass Sickle Cell Bill
[Guardian] Participants at a conference on Sickle Cell Disease (SCD) have called on the National Assembly to pass a bill on sickle cell control and management to better insure the life of the people living with the disease. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - August 31, 2017 Category: African Health Source Type: news

CSL Behring to Acquire Biotech Company Calimmune and its Proprietary Stem Cell Gene Therapy Platform
Builds on CSL Behring's promise to patients with rare and serious diseases Gene and stem cell-based therapies complements the Company's extensive expertise in protein-based therapies Sickle cell product candidate (CAL-H) - a strategic fit for CSL Beh... Biopharmaceuticals, Mergers & Acquisitions CSL Behring, Calimmune, Cytegrity, gene therapy (Source: HSMN NewsFeed)
Source: HSMN NewsFeed - August 28, 2017 Category: Pharmaceuticals Source Type: news

Gamida Cell launches severe aplastic anemia trial
Gamida Cell said today that the first patient has been transplanted in a study of its CordIn product for patients with severe aplastic anemia or hypoplastic myelodysplastic syndrome. The product is designed for patients with rare genetic diseases who have no fully-matched donors for a bone marrow transplantation. Gamida Cell said it is also evaluating its CordIn therapy for patients with sickle cell disease. Get the full story at our sister site, Drug Delivery Business News.   The post Gamida Cell launches severe aplastic anemia trial appeared first on MassDevice. (Source: Mass Device)
Source: Mass Device - August 21, 2017 Category: Medical Devices Authors: Sarah Faulkner Tags: Clinical Trials Research & Development Stem Cells Gamida Cell Source Type: news

Children's Healthcare of Atlanta's Aflac Cancer and Blood Disorders Center awarded $6 million grant
The Aflac Cancer and Blood Disorders Center at Children's cares for more than 450 newly diagnosed children a year and follows 3,200 patients with sickle cell disease, hemophilia and other blood disorders. (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - August 11, 2017 Category: American Health Authors: Ellie Hensley Source Type: news

Computer models provide new understanding of sickle cell disease
(Brown University) Simulations developed by Brown University mathematicians provide new details of how sickle cell disease manifests inside red blood cells, which could help in developing new treatments. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - July 28, 2017 Category: International Medicine & Public Health Source Type: news

Endari for the Treatment of Sickle Cell Disease
Endari ™ is an orally-administered powder form of amino acid L-glutamine indicated for the treatment of sickle cell disease. (Source: Drug Development Technology)
Source: Drug Development Technology - July 23, 2017 Category: Pharmaceuticals Source Type: news

Nigeria: Experts Harp On Effective Management of Sickle Cell Anaemia
[Guardian] Medical professionals have emphasized the need for effective management of sickle cell disease (SCD) in people to avoid severe health crisis, as well as to avert the disease in offspring. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - July 20, 2017 Category: African Health Source Type: news

New Treatment for Sickle Cell Disease
(Source: eMedicineHealth.com)
Source: eMedicineHealth.com - July 17, 2017 Category: General Medicine Source Type: news

Nigeria: Senate Wants Genotype As Compulsory Test for Couples Before Marriage
[Vanguard] Abuja -Moves by the Senate to nip in the bud increasing cases of Sickle Cell disease in the country, Tuesday got a boost as a Bill for an Act to provide for Compulsory Haemoglobin-Genotye Testing and for other connected matters scaled second reading. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - July 12, 2017 Category: African Health Source Type: news

FDA approves Emmaus' Endari to treat sickle cell disease
The US Food and Drug Administration (FDA) has granted approval for Emmaus Life Sciences' Endari (L-glutamine oral powder) to reduce the severe complications of rare, debilitating and lifelong hereditary blood disorder sickle cell disease (SCD) in adu … (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - July 10, 2017 Category: Pharmaceuticals Source Type: news

FDA Approves Endari for the Treatment of Sickle Cell Disease
First treatment approved for patients with sickle cell disease in almost 20 years (Source: The Doctors Lounge - Oncology)
Source: The Doctors Lounge - Oncology - July 10, 2017 Category: Cancer & Oncology Tags: Oncology, Pharmacy, Institutional, Source Type: news

FDA clears first new sickle cell treatment in 20 years
Emmaus Life Sciences said last week that the FDA approved its L-glutamine oral powder, Endari, as a therapy to lessen the complications of sickle cell disease in patients ages 5 and older. The drug’s approval was supported by data from a Phase III trial evaluating Endari compared to a placebo in 230 adults and children with sickle cell disease. The data showed that Endari cut the frequency of sickle cell crises by one-fourth and hospitalizations by 33%, according to Emmaus. Get the full story at our sister site, Drug Delivery Business News. The post FDA clears first new sickle cell treatment in 20 years appeared...
Source: Mass Device - July 10, 2017 Category: Medical Devices Authors: Sarah Faulkner Tags: Food & Drug Administration (FDA) Pharmaceuticals Regulatory/Compliance emmauslifesciences Source Type: news

Nigeria: Delta Assembly Adopts Report On Sickle Cell Bill
[Vanguard] Asaba -Delta State House of Assembly has adopted reports on the bill for the establishment of Delta State Sickle Cell Centre and scheduled the probosed Delta State Public Occupational Safety Bill, 2017 and Delta State Manufacturing and Use of Deep Canoes Regulatory Bill, 2017 for first reading. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - July 10, 2017 Category: African Health Source Type: news

FDA Approves New Drug for Sickle Cell Disease
Title: FDA Approves New Drug for Sickle Cell DiseaseCategory: Health NewsCreated: 7/7/2017 12:00:00 AMLast Editorial Review: 7/10/2017 12:00:00 AM (Source: MedicineNet Chronic Pain General)
Source: MedicineNet Chronic Pain General - July 10, 2017 Category: Anesthesiology Source Type: news

New Sickle Cell Treatment Approved (FREE)
By Amy Orciari Herman Edited by Susan Sadoughi, MD, and Andr é Sofair, MD, MPH The FDA has approved L-glutamine oral powder (Endari) to treat sickle disease in patients aged 5 years and older. It's the first sickle cell … (Source: Physician's First Watch current issue)
Source: Physician's First Watch current issue - July 10, 2017 Category: Primary Care Source Type: news

FDA Approves Endari (L-glutamine oral powder) for Sickle Cell Disease
July 7, 2017 -- The U.S. Food and Drug Administration today approved Endari (L-glutamine oral powder) for patients age five years and older with sickle cell disease to reduce severe complications associated with the blood disorder. " Endari is the... (Source: Drugs.com - New Drug Approvals)
Source: Drugs.com - New Drug Approvals - July 8, 2017 Category: Drugs & Pharmacology Source Type: news

FDA Approves New Drug for Sickle Cell Disease
Helps reduce painful, and sometimes life-threatening, complications of the inherited blood disorder (Source: WebMD Health)
Source: WebMD Health - July 7, 2017 Category: Consumer Health News Source Type: news

New drug for sickle cell disease approved by FDA
The U.S. Food and Drug Administration on Friday approved the first new drug for sickle cell disease in nearly two decades. (Source: Health News - UPI.com)
Source: Health News - UPI.com - July 7, 2017 Category: Consumer Health News Source Type: news

FDA OKs First New Treatment for Sickle Cell in Almost 20 Years FDA OKs First New Treatment for Sickle Cell in Almost 20 Years
The FDA has approved L-glutamine oral powder (Endari, Emmaus Medical Inc) for patients aged 5 years and older with sickle cell disease.FDA Approvals (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - July 7, 2017 Category: Consumer Health News Tags: Hematology-Oncology News Alert Source Type: news

FDA Approves New Drug for Sickle Cell Disease
Helps reduce painful, and sometimes life-threatening, complications of the inherited blood disorderSource: HealthDay Related MedlinePlus Pages: Blood Disorders, Medicines, Sickle Cell Anemia (Source: MedlinePlus Health News)
Source: MedlinePlus Health News - July 7, 2017 Category: Consumer Health News Source Type: news

First new drug approved for sickle cell in 20 years
In a new study, the drug cut the number of pain crises, dangerous chest complications, transfusions and hospitalizations (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - July 7, 2017 Category: Consumer Health News Source Type: news

New Sickle Cell Treatment OK'd
(MedPage Today) -- FDA approves L-glutamine oral powder for reducing complications (Source: MedPage Today Nephrology)
Source: MedPage Today Nephrology - July 7, 2017 Category: Urology & Nephrology Source Type: news

FDA approves first new drug in 20 years for sickle cell
The U.S. Food and Drug Administration has approved the first drug in nearly 20 years for sickle cell, an inherited disease in which abnormally shaped red blood cells can't properly carry oxygen throughout the body (Source: ABC News: Health)
Source: ABC News: Health - July 7, 2017 Category: Consumer Health News Tags: Health Source Type: news

FDA approves new treatment for sickle cell disease
The U.S. Food and Drug Administration today approved Endari (L-glutamine oral powder) for patients age five years and older with sickle cell disease to reduce severe complications associated with the blood disorder. (Source: Food and Drug Administration)
Source: Food and Drug Administration - July 7, 2017 Category: American Health Source Type: news

FDA Approves New Drug, Endari, for Sickle Cell Disease
FRIDAY, July 7, 2017 -- The U.S. Food and Drug Administration on Friday approved the first new drug for sickle cell disease in nearly two decades. Endari (L-glutamine oral powder) helps reduce severe complications associated with the blood... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - July 7, 2017 Category: General Medicine Source Type: news

Kid, 4, steals show during sickle cell Derbyshire chat
Gabriel, 4, gets distracted on set during a Victoria Derbyshire discussion on sickle cell disease. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - June 23, 2017 Category: Consumer Health News Source Type: news

UCLA Mattel Children ’s Hospital and Miller Children’s & Women ’s Hospital plan strategic affiliation
Two leading children ’s hospitals —UCLA Mattel Children ’s Hospital, part of UCLA Health, and  Miller Children ’s& Women ’s Hospital Long Beach, part of  MemorialCare Health System— announced today their intent to form a strategic affiliation that brings together their academic, clinical and research expertise, and resources to enhance children’s health care services in Southern California.The two organizations, which share similar missions and values, plan to establish a wider geographic pediatric collaboration that strengthens and broadens their ability to offer the...
Source: UCLA Newsroom: Health Sciences - June 22, 2017 Category: Universities & Medical Training Source Type: news

Real Stories Of Americans Who Will Be Affected By The Proposed Changes To The ACA — And What YOU Can Do To Fight
With the proposed changes to the Affordable Care Act (ACA), 20 million Americans are at risk of losing their health care coverage. A survey, conducted by Brunswick Partners, found that “75 percent of Americans agree that the proposed changes to Medicaid in the AHCA are a bad idea. And that we should not allow 14 million Americans to become uninsured even if there is a potential to reduce Medicaid spending. These results are significant because they find majorities of Americans identifying as conservatives (55 percent), moderates (82 percent) and liberals (90 percent) are opposed to the AHCA’s Medicaid pro...
Source: Healthy Living - The Huffington Post - June 21, 2017 Category: Consumer Health News Source Type: news

Uganda: Joint Efforts Needed On Mental Health of Sickle Cell Patients
[Observer] During the launch of a sickle cell clinic in Ngora district by Action Against Sickle Cell Disease early this year, a mother of two sons with the disease caught my attention. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - June 21, 2017 Category: African Health Source Type: news

Uganda: 42 Years With Sickle Cell Disease
[Monitor] In 1988, when Betty Namirimu was in Primary Seven at St Joseph Primary School in Nabbingo, a teacher asked her to sweep the classroom. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - June 20, 2017 Category: African Health Source Type: news

Grizzlies' Mike Conley partners with bone marrow registry
In a new video campaign, Memphis Grizzlies' point guard Mike Conley recalls two family members struggling with sickle cell anemia. "For thousands of black patients with blood diseases like sickle cell, a potential cure is out there," Conley says. "But not enough people like you and me are stepping up." To watch the video, see below. The video ends with a call to action to visit heritageholdsthecure.org. Bone marrow registr y Be the Match created the heritageholdsthecure.org campaign and website… (Source: bizjournals.com Health Care News Headlines)
Source: bizjournals.com Health Care News Headlines - June 19, 2017 Category: Health Management Authors: Elle Perry Source Type: news

Grizzlies' Mike Conley partners with bone marrow registry
In a new video campaign, Memphis Grizzlies' point guard Mike Conley recalls two family members struggling with sickle cell anemia. "For thousands of black patients with blood diseases like sickle cell, a potential cure is out there," Conley says. "But not enough people like you and me are stepping up." To watch the video, see below. The video ends with a call to action to visit heritageholdsthecure.org. Bone marrow registr y Be the Match created the heritageholdsthecure.org campaign and website… (Source: bizjournals.com Health Care:Biotechnology headlines)
Source: bizjournals.com Health Care:Biotechnology headlines - June 19, 2017 Category: Biotechnology Authors: Elle Perry Source Type: news

Tanzania: Tackling Sickle Cell Disease
[Citizen] Lack of sickle cell equipment for early detection of sickle cell disease (SCD) in children is citied to be one of the contributing factor that leads to high number of deaths of sickle cell children in Tanzania. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - June 19, 2017 Category: African Health Source Type: news

Tanzania: Tanzania Needs More Experts On Sickle Cell, Minister Says
[Citizen] Dar es Salaam -The government has been urged to employ more medical experts on Sickle cell disease, in efforts to reduce deaths caused by Non Communicable Diseases (NCDs). (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - June 19, 2017 Category: African Health Source Type: news

Nigeria: Govt to Mandate Genotype, HIV Tests for Intending Couples
[Daily Trust] Sokoto -As part of moves to check sickle cell disease, the Sokoto State Government is to promulgate a law to make it compulsory for would-be couples to undergo genotype testing before marriage. (Source: AllAfrica News: HIV-Aids and STDs)
Source: AllAfrica News: HIV-Aids and STDs - June 19, 2017 Category: Infectious Diseases Source Type: news

Nigeria: NGO to Organise Sickle Cell Awareness for FCT Students
[Daily Trust] A non-governmental organisation based in the Federal Capital Territory, Eyum Sickle Cell Anemia Foundation (ESCAF), is set to organise a campaign about sickle cell disorder for students in Abuja. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - June 16, 2017 Category: African Health Source Type: news

4 questions parents have about moyamoya disease
Last month, families from across the country gathered at Boston Children’s Hospital to celebrate World Moyamoya Day. The expert speakers at the Moyamoya Family Day Symposium shared the latest information about this rare but very serious condition with parents and patients alike. Moyamoya disease occurs when the walls of the internal carotid arteries — the vessels that supply blood to important areas of the brain — become thickened and narrowed. As a result, blood flow to the brain slows, making blood clots more likely. Kids with moyamoya disease are at significantly higher risk of having a stroke, as well...
Source: Thrive, Children's Hospital Boston - June 13, 2017 Category: Pediatrics Authors: Jessica Cerretani Tags: Ask the Expert Diseases & Conditions Dr. Edward Smith moyamoya Moyamoya Disease Program Source Type: news

Disease Awareness Months Work, Even If You Don't Wear The Ribbon
June ​is the month for more than 10 disease-related awareness campaigns, including Myasthenia Gravis Awareness Month, National Congenital Cytomegalovirus Awareness Month and National Scleroderma Awareness Month. It also hosts a handful of awareness weeks and days, ranging from Helen Keller Deaf-Blind Awareness Week to World Sickle Cell Day. June’s awareness list is shorter than most, but every month is full of diseases and disorders to take note of. You probably haven’t heard of half of them, and you’re not alone. So what’s the point of an awareness day, week or month? To understand the chall...
Source: Healthy Living - The Huffington Post - June 2, 2017 Category: Consumer Health News Source Type: news

Drug for Sickle-Cell Disease Wins Over FDA Committee
(MedPage Today) -- Consistency of data outweighed missing information (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - May 25, 2017 Category: American Health Source Type: news

Tanzania: Mnh Diagnose 'Kisonga' As Sickle Cell Patient
[Daily News] A sixteen-year old boy, Shukuru Kisonga, who has been surviving on 2 litres of milk, ¾ kilogrammes of sugar and a litre of cooking oil every day as his routine meals, has been finally diagnosed to be suffering from severe sickle cell. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - May 25, 2017 Category: African Health Source Type: news

Tanzania: Boy Living On Sugar, Cooking Oil 'Has Sickle Cell'
[Citizen] Dar es Salaam -Shukuru Kisonga,16, who is a boy from Ruvuma Region, who was living on sugar and drinking a litre of edible oil daily, is suffering from sickle cell disease (SCD), a doctor at Muhimbili National Hospital (MNH) have said. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - May 24, 2017 Category: African Health Source Type: news

FDA Advisory Committee Recommends Approval of Endari from Emmaus Life Sciences for the Treatment of Sickle Cell Disease
TORRANCE, Calif., May 24, 2017 - Emmaus Life Sciences Inc. announced today that the Oncologic Drugs Advisory Committee of the U.S. Food and Drug Administration (FDA) voted 10 to 3 that the overall Benefit-Risk profile of Endari for the treatment of... (Source: Drugs.com - New Drug Applications)
Source: Drugs.com - New Drug Applications - May 24, 2017 Category: Drugs & Pharmacology Source Type: news

Uganda: Three Dead As Critical Blood Shortage Hits Hospitals
[Observer] Two sickle cell patients and an expectant mother died last week after failing to get blood transfusions from Luweero health centre IV and Nakaseke hospital. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - May 23, 2017 Category: African Health Source Type: news