Bluebird stock slides as company delays sickle-cell drug
Bluebird bio once planned to launch three drugs by the end of 2023. The first two are on track, but the third drug, a treatment for sickle-cell disease, is likely to be delayed. (Source: bizjournals.com Health Care:Biotechnology headlines)
Source: bizjournals.com Health Care:Biotechnology headlines - March 29, 2023 Category: Biotechnology Authors: Rowan Walrath Source Type: news
Hydroxyurea Underused in Youth With Sickle Cell
TUESDAY, March 28, 2023 -- Few youths with sickle cell anemia (SCA) receive hydroxyurea despite national guidelines recommending its use, according to a study published online March 24 in JAMA Network Open.
Sarah L. Reeves, Ph.D., from University... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - March 28, 2023 Category: Pharmaceuticals Source Type: news
Hydroxyurea Underused in Youth With Sickle Cell Anemia Hydroxyurea Underused in Youth With Sickle Cell Anemia
Sickle cell anemia can lead to pain crises, stroke, and early death. Hydroxyurea, an oral disease-modifying medication, can reduce the complications.MDedge News (Source: Medscape Hematology-Oncology Headlines)
Source: Medscape Hematology-Oncology Headlines - March 28, 2023 Category: Cancer & Oncology Tags: Pediatrics News Source Type: news
When it comes to identifying new gene therapies, she ’s in it for the long run
Like any experienced distance runner, Grace McAuley always keeps her focus on the finish line — even if it’s out of sight. That’s what makes her such a promising young scientist.In spring 2021, McAuley was a UCLA senior who was wrapping up four years on the Bruin track and cross-country teams. Not long after running her last race for UCLA, she joined the lab of Dr. Donald Kohn, a UCLA physician-scientist known for developing gene therapies for blood and immune disorders.“I kept telling Grace she was too busy to join the lab, but she wouldn’t take no for an answer,” says Kohn, a member of theEli and Edythe Broad...
Source: UCLA Newsroom: Health Sciences - March 23, 2023 Category: Universities & Medical Training Source Type: news
Sickle Cell Disease Patients Miss Out on Decades of Life
(MedPage Today) -- A cohort study of Medicare and Medicaid beneficiaries with sickle cell disease (SCD) showed a life expectancy of just 52.6 years, well below that of the general population.
And among SCD patients, survival varied by sex and... (Source: MedPage Today Pediatrics)
Source: MedPage Today Pediatrics - March 17, 2023 Category: Pediatrics Source Type: news
Sickle cell patient's success with gene editing raises hopes and questions
(Source: NPR Health and Science)
Source: NPR Health and Science - March 16, 2023 Category: Consumer Health News Authors: Rob Stein Source Type: news
How will gene editing change medicine and who will benefit?
Ian Sample speaks to Guardian science correspondent Hannah Devlin about the latest developments and debates about gene editing to emerge from a summit at the Francis Crick Institute in London. The summit heard from the first person with sickle cell disease to be treated with a technique known asCrispr. He also hears from Prof Claire Booth about ensuring these cutting edge treatments are made available to everyone who needs themClips: Francis Crick Institute, BBC NewsContinue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - March 16, 2023 Category: Science Authors: Presented by Ian Sample, with Hannah Devlin and Professor Claire Booth, sound designed by Tony Onuchukwu and executive produced by Ellie Bury Tags: Science Gene editing Sickle cell disease Health Genetics Society Source Type: news
Newly Approved Meds Rarely Used for Sickle Cell Disease
FRIDAY, March 10, 2023 -- Newly approved medications are rarely used for sickle cell disease (SCD), according to a study published online March 8 in Blood Advances.
Robert Cronin, M.D., from The Ohio State University in Columbus, and colleagues... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - March 10, 2023 Category: Pharmaceuticals Source Type: news
How human gene editing is moving on after the CRISPR baby scandal
CRISPR gene editing means a cure for sickle cell disease is on the horizon. However, the life-changing treatment is likely to remain out of reach for most of those who could benefit. (Source: CNN.com - Health)
Source: CNN.com - Health - March 9, 2023 Category: Consumer Health News Source Type: news
Few Sickle Cell Disease Patients Are Adequately Treated for Pain
(MedPage Today) -- Despite the availability of medications designed to prevent vaso-occlusive events in persons with sickle cell disease (SCD), few who experience these chronic pain episodes have prescriptions for these drugs, researchers found... (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - March 8, 2023 Category: American Health Source Type: news
Why genetic engineering experts are putting a spotlight on Victoria Gray's case
Victoria Gray's life has been transformed by her treatment for sickle cell disease with the gene-editing technique called CRISPR. She's in London telling her story at a scientific summit. (Source: NPR Health and Science)
Source: NPR Health and Science - March 7, 2023 Category: Consumer Health News Authors: Rob Stein Source Type: news
Nemours Children's Health gets $78M gift from du Pont heiress foundation
The donation to Nemours Children's Health will be used to fund research and create a new inpatient unit focused on treating children with sickle cell disease, cancer and blood disorders. (Source: bizjournals.com Health Care News Headlines)
Source: bizjournals.com Health Care News Headlines - March 2, 2023 Category: Health Management Authors: John George Source Type: news
The Unsung Stories of 3 Pioneering Black Female Doctors
Jasmine Brown is still in medical school at the University of Pennsylvania, but she has already published a book about medicine: Twice as Hard: The Stories of Black Women Who Fought to Become Physicians, from the Civil War to the 21st Century. It’s the culmination of research she started while a Rhodes Scholar at the University of Oxford. She noticed a lack of literature on Black female doctors, and was immediately struck by an oral history by Dr. May Chinn, one of Harlem’s first Black female doctors. Chinn’s story resonated with Brown, who, despite being the daughter of engineers, was often discouraged f...
Source: TIME: Health - March 1, 2023 Category: Consumer Health News Authors: Olivia B. Waxman Tags: Uncategorized Books News Team Source Type: news
Sickle-cell gene therapy developer stops program, cuts half of staff
Gene therapy offered hope for thousands of sickle cell disease patients. Now many are ending their programs. (Source: bizjournals.com Health Care News Headlines)
Source: bizjournals.com Health Care News Headlines - February 23, 2023 Category: Health Management Authors: Ron Leuty Source Type: news
Access to care: reducing health inequalities for people living with sickle cell disorder
Imagine you have a disease that leaves you in severe pain, and frequently means you need emergency strong opioid pain relief. But your condition is rare, and A&E staff often have very limited knowledge of your condition. And on top of that you ' re black, and staff assume you ' re drug seeking, and this happens over and over again. This is just one of the ways people with sickle cell disorder face discrimination when trying to access health care. Is it any wonder you ' d rather avoid the health and care service than have substandard care and/or face stigmatisation? (Source: Current Awareness Service for Health (CASH))
Source: Current Awareness Service for Health (CASH) - February 20, 2023 Category: Consumer Health News Source Type: news
