Many Children With Sickle Cell Anemia Do Not Meet Quality Indicators
MONDAY, March 18, 2024 -- A number of children with sickle cell anemia (SCA) have low rates of receipt of recommended antibiotic prophylaxis and annual transcranial Doppler (TCD) ultrasound, according to a study published online March 6 in... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - March 18, 2024 Category: Pharmaceuticals Source Type: news

Annual Indirect Economic Burden of Sickle Cell Disease Over $2 Million
WEDNESDAY, March 13, 2024 -- Adults with sickle cell disease (SCD) are more likely to report employment loss, and caregivers of children with SCD report more missed days of work, according to a study published online Feb. 29 in Blood... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - March 13, 2024 Category: Pharmaceuticals Source Type: news

Sickle Cell Pain Hospitalizations Rose After CDC's Opioid Recs
(MedPage Today) -- A downward trend in opioid prescribing practices for patients with sickle cell disease (SCD) followed the CDC's 2016 opioid guidelines for chronic pain, an analysis of claims data showed, but so did a steady increase in pain... (Source: MedPage Today Hematology/Oncology)
Source: MedPage Today Hematology/Oncology - March 11, 2024 Category: Hematology Source Type: news

IVF gave hope to patients trying to build their families. The turmoil in Alabama put that in doubt
Women over 35 and those facing serious diseases like cancer, lupus and sickle cell are among the most likely to turn to IVF to build the families they desperately want (Source: ABC News: Health)
Source: ABC News: Health - March 5, 2024 Category: Consumer Health News Tags: Health Source Type: news

New sickle cell gene therapies are a breakthrough, but solving how to pay their high prices is a struggle
The approval of two gene therapies to treat sickle cell disease has given hope to patients who suffer from the debilitating disease, which overwhelmingly affects Black people and people of color. Health officials now face a challenge in finding a way to provide equitable access to the costly…#michaelgoodwin #bluebirdbio #lyfgenia #juliekanter #adultsickleclinic #medicaid #katemcevoy #vertex #fda #merck (Source: Reuters: Health)
Source: Reuters: Health - February 24, 2024 Category: Consumer Health News Source Type: news

Progress, Not Cure, for Sickle Cell Disease, Says Ethicist Progress, Not Cure, for Sickle Cell Disease, Says Ethicist
Art Caplan discusses progress made for treating sickle cell disease and the importance of not labeling it as a cure.Medscape Business of Medicine (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - February 22, 2024 Category: Consumer Health News Tags: Family Medicine/Primary Care Commentary Source Type: news

Crispr Reports Its First Profit In 10 Quarters; Shares Zoom Higher
reported its first profit in 10 quarters on Wednesday, and CRSP stock surged out of a buy zone. This is the company's first earnings report following the historic approval of Casgevy, its gene-edited treatment for sickle cell disease and beta thalassemia. Crispr hasn't yet notched any sales of…#crsp #marketsmithcom #allisongatlin #ibdagatlin #medtronicstockyoyoes #trackandbuy #avoidbiglosses (Source: Reuters: Health)
Source: Reuters: Health - February 21, 2024 Category: Consumer Health News Source Type: news

UK's MHRA Revokes Authorisation for Novartis' Sickle Cell Drug UK's MHRA Revokes Authorisation for Novartis' Sickle Cell Drug
Britain ' s health regulator said on Wednesday it had revoked a conditional marketing authorisation for Novartis ' sickle cell disease drug, Adakveo.Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - February 21, 2024 Category: Consumer Health News Tags: Family Medicine/Primary Care Source Type: news

For Kids With Sickle Cell Disease Prescribed Opioids, No Patterns of Misuse Emerged
(MedPage Today) -- No patterns of long-term or increasing use of opioids were identified within 3 years among opioid-naive children with sickle cell disease (SCD) who were prescribed the drugs for an acute pain episode, according to a retrospective... (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - February 19, 2024 Category: American Health Source Type: news

New CRISPR Gene-Editing Treatment Approved In Europe For Inherited Blood Disorders
The decision comes after Vertex Pharmaceuticals and CRISPR Therapeutics ’ Casgevy was approved in the UK and US for sickle cell disease and beta thalassemia. (Source: Forbes.com Healthcare News)
Source: Forbes.com Healthcare News - February 13, 2024 Category: Pharmaceuticals Authors: Robert Hart, Forbes Staff Tags: Business /business Innovation /innovation Science /science Healthcare /healthcare Breaking breaking-news topline Source Type: news

Tanzania: Tanzania Allocates 4bn/ - for Treatment of Children With Sickle Cell
[Daily News] DODOMA: The Tanzanian government has allocated 4 billion shillings for the treatment of 20 children grappling with sickle cell disease through bone marrow transplant services. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - February 2, 2024 Category: African Health Tags: East Africa Health and Medicine Tanzania Source Type: news

Experimental Gene Therapy Allows Kids with Inherited Deafness to Hear
Gene therapy has allowed several children born with inherited deafness to hear. A small study published Wednesday documents significantly restored hearing in five of six kids treated in China. On Tuesday, the Children’s Hospital of Philadelphia announced similar improvements in an 11-year-old boy treated there. And earlier this month, Chinese researchers published a study showing much the same in two other children. [time-brightcove not-tgx=”true”] So far, the experimental therapies target only one rare condition. But scientists say similar treatments could someday help many mor...
Source: TIME: Health - January 25, 2024 Category: Consumer Health News Authors: LAURA UNGAR/AP Tags: Uncategorized wire Source Type: news

Gene Therapy for Sickle Cell Disease Likely Cost-Effective if Under $2 Million
(MedPage Today) -- Compared with common care, gene therapy for sickle cell disease (SCD) would likely be cost-effective if its price was below $2 million, according to a comparative modeling analysis. At an assumed $2 million price tag for gene... (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - January 22, 2024 Category: American Health Source Type: news

Gene Therapy for Sickle Cell Disease Likely Cost-Effective at
MONDAY, Jan. 22, 2024 -- Gene therapy for sickle cell disease (SCD) below $2 million is likely to be cost-effective, according to a study published online Jan. 23 in the Annals of Internal Medicine.Anirban Basu, Ph.D., from The Comparative Health... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - January 22, 2024 Category: Pharmaceuticals Source Type: news

COVID-19 Vaccine Uptake Lagging in Patients With Sickle Cell Disease
FRIDAY, Jan. 19, 2024 -- COVID-19 immunization completion is nearly half for people with versus without sickle cell disease (SCD), according to a research letter published online Jan. 8 in JAMA Network Open. Hannah K. Peng, from the University... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - January 19, 2024 Category: Pharmaceuticals Source Type: news