Log in to search using one of your social media accounts:

 

Research, for Whom?
We presented this finding to the health minister, who praised our work and announced that the government would set up a tribal medical research centre in Gadchiroli. Eventually, though, the centre was set up in Pune (where there are no tribals) because researchers and doctors did not want to come to Gadchiroli.Disappointed, we approached the tribal leaders in the villages and requested them to put some pressure on the government to bring the centre to Gadchiroli. Their response took us unawares: “Doctor, this is your disease, not ours,” they said. “Did we ever tell you that we need help for this?” t...
Source: IPS Inter Press Service - Health - May 16, 2018 Category: International Medicine & Public Health Authors: Abhay Bang Tags: Asia-Pacific Development & Aid Headlines Health Poverty & SDGs Source Type: news

Uganda:Church to Subject Couples to Mandatory Sickle Cell Testing
[Monitor] Masaka -In a bid to end the sickle cell disease burden in families, West Buganda Diocese has made it a requirement for couples intending to marry in Church to be subjected to mandatory sickle cell tests. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - May 14, 2018 Category: African Health Source Type: news

St. Jude to combat ‘unacceptable’ sickle cell death rate
Because she is a physician, Dr. Glenda Newell-Harris, national president of The Links Foundation Inc. and The Links Inc. said the organization's $1 million award to St. Jude Children's Research Hospital for sickle cell research was even more special to her. "Health is my passion," the Oakland, California-based internist said. "So to be able to be a part of an organization that is willing to acknowledge and recognize the importance of us continuing to be at the forefront of helping to promote research,… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - May 4, 2018 Category: Pharmaceuticals Authors: Elle Perry Source Type: news

Debut novelist reveals how sickle cell disease inspired her book
Debut novelist Adebayo Ayobami reveals how sickle cell disease inspired her book. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - April 30, 2018 Category: Consumer Health News Source Type: news

Sickle Cell Trait Not Linked to Stroke in African - Americans
Meta - analysis of four cohorts shows sickle cell trait not linked to incidence of ischemic stroke (Source: The Doctors Lounge - Oncology)
Source: The Doctors Lounge - Oncology - April 27, 2018 Category: Cancer & Oncology Tags: Cardiology, Neurology, Oncology, Pathology, Journal, Source Type: news

Sickle Cell Trait Not Linked to Stroke in African-Americans
FRIDAY, April 27, 2018 -- For African-Americans, sickle cell trait (SCT) seems not to be associated with the incidence of ischemic stroke, according to a meta-analysis published online April 23 in JAMA Neurology. Hyacinth I. Hyacinth, M.D., Ph.D.,... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - April 27, 2018 Category: Pharmaceuticals Source Type: news

New Insights on Pain and Opioid Use in People With Sickle Cell Disease After Hematopoietic Stem Cell Transplant
NIH-funded study offers new information on pain in sickle cell disease, the use of opioids for this pain, and psychological and quality-of-life challenges faced by people with this disease. (Source: NCCAM Featured Content)
Source: NCCAM Featured Content - April 24, 2018 Category: Complementary Medicine Authors: NCCIH Source Type: news

'Incompatible' donor stem cells cure adult sickle cell patients
(University of Illinois at Chicago) Doctors at the University of Illinois Hospital have cured seven adult patients of sickle cell disease, an inherited blood disorder primarily affecting the black community, using stem cells from donors previously thought to be incompatible, thanks to a new transplant treatment protocol. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - April 24, 2018 Category: International Medicine & Public Health Source Type: news

Sickle Cell Trait May Not Contribute to Stroke Risk (CME/CE)
(MedPage Today) -- Genetic variant not an independent predictor among African Americans (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - April 23, 2018 Category: American Health Source Type: news

Novo Nordisk buys blood drug licence to boost anaemic biopharma business
COPENHAGEN (Reuters) - Danish drugmaker Novo Nordisk has secured the global licence for U.S. biotech company EpiDestiny's sickle cell disease (SCD) program in a bid to offset declining sales in its biopharmaceutical business. (Source: Reuters: Health)
Source: Reuters: Health - April 5, 2018 Category: Consumer Health News Tags: healthNews Source Type: news

Alberta woman 1st adult in Canada to be 'cured' of sickle cell anemia through stem cell transplant
An Alberta woman is the first adult in Canada to be cured of sickle cell anemia with the help of a sister's love — and a stem cell transplant. (Source: CBC | Health)
Source: CBC | Health - April 4, 2018 Category: Consumer Health News Tags: News/Canada/Calgary Source Type: news

Healthy red blood cells owe their shape to muscle-like structures
(Scripps Research Institute) The findings could shed light on sickle cell diseases and other disorders where red blood cells are deformed. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - April 4, 2018 Category: International Medicine & Public Health Source Type: news

Gene mutation finding may lead to treatment for sickle cell, other blood disorders
Researchers have found a way to introduce natural mutations into blood cells that could lead to new therapies for sickle cell anemia and other blood disorders. (Source: Health News - UPI.com)
Source: Health News - UPI.com - April 2, 2018 Category: Consumer Health News Source Type: news

EMedHome's Clinical Pearl: Three Things You Should Know about Sickle Cell Disease
No abstract available (Source: Emergency Medicine News)
Source: Emergency Medicine News - April 1, 2018 Category: Emergency Medicine Tags: EMedHome's Clinical Pearl Source Type: news

Nigeria:Edo Sickle Cell Centre Gets Medical Supply From Presco/Ubth Committee
[Guardian] Benin City -Management of PRESCO Plc and the University of Benin Teaching Hospital (UBTH) Sickle Cell Awareness Golf Tournament Fund Management Committee yesterday donated medical equipment worth millions of naira to the Edo State Sickle Cell Board as part of effort to alleviate the suffering of sickle cell-challenged persons in the state. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - March 23, 2018 Category: African Health Source Type: news

Nigeria:Medical Students Donate 500 Pints of Blood for Sickle Cell Children At Luth
[Guardian] Worried by the challenge of blood transfusion for children with cancer and sickle cell, the Association of Medical Student University of Lagos (AMSUL) has organised a blood drive exercise to generate pints of blood from the university students. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - March 19, 2018 Category: African Health Source Type: news

Weekly Postings
See something of interest? Please share our postings with colleagues in your institutions! Spotlight Funding Available Now! NNLM MAR Members can apply by 11:00 PM ET on April 13 for projects starting May 15, 2018. Need more information? Review our new Requests for Proposals Register for MAR Funding Office Hours to ask specific questions about your proposal Keep up with Weekly Funding Tips – this week: Funding Tip 5- check out previously funded projects Contact us to set up a consultation! Check out the Winter 2018 edition of The MAReport! This quarter, Elaina Vitale is highlighting “Citizen Science and the Na...
Source: NN/LM Middle Atlantic Region Blog - March 16, 2018 Category: Databases & Libraries Authors: Hannah Sinemus Tags: Weekly Postings Source Type: news

Potential New Treatment Option for Adults with Sickle Cell Disease
A new blood stem-cell transplant regimen that uses a low dose of radiation combined with two immunosuppressive drugs reversed sickle cell disease in adults. (Source: NIDDK News)
Source: NIDDK News - March 15, 2018 Category: Endocrinology Source Type: news

Specific dosage of sickle cell drug increases survival rate
(Source: NIDDK News)
Source: NIDDK News - March 15, 2018 Category: Endocrinology Source Type: news

Director & #39;s Update, Fall 2017
Content on advances in sickle cell disease research, congressional testimony on type 1 diabetes research, type 1 diabetes and aging, and Dr. Tracy Rankin. (Source: NIDDK Directors Update)
Source: NIDDK Directors Update - March 8, 2018 Category: Endocrinology Source Type: news

Director's Update, Fall 2017
Content on advances in sickle cell disease research, congressional testimony on type 1 diabetes research, type 1 diabetes and aging, and Dr. Tracy Rankin. (Source: NIDDK Directors Update)
Source: NIDDK Directors Update - March 8, 2018 Category: Endocrinology Source Type: news

Matter: How One Child ’ s Sickle Cell Mutation Helped Protect the World From Malaria
The genetic mutation arose 7,300 years ago in just one person in West Africa, scientists reported on Thursday. Its purpose: a shield against rampant malaria. (Source: NYT Health)
Source: NYT Health - March 8, 2018 Category: Consumer Health News Authors: CARL ZIMMER Tags: Genetics and Heredity Sickle Cell Anemia Malaria Blacks Hemoglobin DNA (Deoxyribonucleic Acid) American Journal of Human Genetics National Institutes of Health Rotimi, Charles N Africa Source Type: news

Researchers pinpoint origin of sickle cell mutation
NHGRI researchers used whole genome sequence data to pinpoint the single origin of the sickle cell mutation to the "wet" period of the Sahara 7,300 years ago. The mutation causes blood hemoglobin to be crescent shaped, reducing its ability to carry oxygen. Charles N. Rotimi, Ph.D., study co-author and NHGRI senior investigator, said the finding overturns previous theories that the mutation arose in multiple locations. This will help clinicians redefine sickle cell subgroups and treat patients more effectively, said lead author Daniel Shriner, Ph.D. Read more in the March 8American Journal of Human Genetics. (Sour...
Source: NHGRI Homepage Highlights - March 8, 2018 Category: Genetics & Stem Cells Source Type: news

NIH awards $4.6 million for chronic pain research
(University of Illinois at Chicago) The University of Illinois at Chicago has been awarded a $4.6 million grant from the National Heart, Lung, and Blood Institute to study the molecular neurobiology of chronic pain in patients with sickle cell disease and to develop potential new drug treatments. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - February 26, 2018 Category: International Medicine & Public Health Source Type: news

Morning Break: Sickle Cell Conundrum; Selfie Addiction; Porn a Health Risk
(MedPage Today) -- Health news and commentary from around the Web gathered by the MedPage Today staff (Source: MedPage Today Psychiatry)
Source: MedPage Today Psychiatry - February 22, 2018 Category: Psychiatry Source Type: news

Kids With Sickle Cell Are Missing Out On Meds
Bacterial infections are a major health threat for children with sickle cell anemia, but taking daily antibiotics can reduce that risk by 84 percent, according to the study. (Source: WebMD Health)
Source: WebMD Health - February 16, 2018 Category: Consumer Health News Source Type: news

Kids Who Need Sickle Cell Antibiotics Don't Always Get Them
FRIDAY, Feb. 16, 2018 -- Less than a fifth of U.S. children with sickle cell anemia are getting the antibiotics that could save their lives, a new study finds. " Longstanding recommendations say children with sickle cell anemia should take... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - February 16, 2018 Category: General Medicine Source Type: news

Most children with sickle cell anemia not receiving key medication to stay healthy
(Michigan Medicine - University of Michigan) One of the greatest health threats to children with sickle cell anemia is getting a dangerous bacterial infection -- but most are not receiving a key medication to reduce the risk, a new study suggests. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - February 13, 2018 Category: International Medicine & Public Health Source Type: news

Sickle Cell Disease: When to Transfuse Sickle Cell Disease: When to Transfuse
Know the appropriate indications for transfusion when transfusion is not indicated in patients with sickle cell disease.CDC Expert Commentary (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - February 12, 2018 Category: Consumer Health News Tags: Hematology-Oncology Commentary Source Type: news

Medical News Today: Sickle cell trait: What you need to know
Sickle cell trait is a blood disorder that affects the red blood cells. It usually does not cause symptoms, but can be passed on from parent to child. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - February 8, 2018 Category: Consumer Health News Tags: Blood / Hematology Source Type: news

Why You Don't Hear Much About Sickle Cell Anymore
It was cured … wasn't it? (Source: NPR Health and Science)
Source: NPR Health and Science - February 5, 2018 Category: Consumer Health News Source Type: news

Interpersonal violence exposure and chronic pain in adult sickle cell patients - Ford JD, Grasso DJ, Jones S, Works T, Andemariam B.
Almost half of sickle cell disease (SCD) patients develop chronic, debilitating physical pain with uncertain genesis for which they primarily receive opiate-based palliative treatment. Psychological trauma exposure, especially interpersonal victimization, ... (Source: SafetyLit)
Source: SafetyLit - January 23, 2018 Category: International Medicine & Public Health Tags: Economics of Injury and Safety, PTSD, Injury Outcomes Source Type: news

Joint UAB, Children's grant to develop patient navigator for children
UAB and Children ’s of Alabama are partnering to implement the Patent Care Connect Program, or PCCP, for children in the health systems. The PCCP is a program that has been successful in decreasing distress and improving the quality of life for adults with cancer, and leaders want to take that model and make it offer support services to children with cancer and sickle cell disease, along with their families. The local health team, led by the UAB pediatrics department, was awarded a grant of… (Source: bizjournals.com Health Care:Biotechnology headlines)
Source: bizjournals.com Health Care:Biotechnology headlines - January 22, 2018 Category: Biotechnology Authors: Tyler Patchen Source Type: news

Gene editing – and what it really means to rewrite the code of life
We now have a precise way to correct, replace or even delete faulty DNA.Ian Sample explains the science, the risks and what the future may holdSo what is gene editing?Scientists liken it to the find and replace feature used to correct misspellings in documents written on a computer. Instead of fixing words, gene editing rewrites DNA, the biological code that makes up the instruction manuals of living organisms. With gene editing, researchers can disable target genes,correct harmful mutations, and change the activity of specific genes in plants and animals, including humans.What ’s the point?Much of the excitement aro...
Source: Guardian Unlimited Science - January 15, 2018 Category: Science Authors: Ian Sample Science editor Tags: Genetics Medical research Science Health Biology Source Type: news

NHS supports development of health innovations
The NHS has selected 138 entrepreneurs to design and deliver new technological solutions and innovations in healthcare. This includes the appointment of five healthcare scientists, tackling conditions including sickle cell disease and allergic reactions. (Source: NHS Networks)
Source: NHS Networks - January 10, 2018 Category: UK Health Source Type: news

Nigeria:Keep Hope Alive, Experts Urge Parents of Children With Sickle Cell Disorder
[Vanguard] Experts in Sickle Cell Disorder,SCD, management have urged parents of children with the disorder to keep hope alive saying, "it is wrong to presume that a child with SCD cannot live up to 21 years. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - January 9, 2018 Category: African Health Source Type: news

Preventing and treating acute chest syndrome in children with sickle cell disease
(Mary Ann Liebert, Inc./Genetic Engineering News) Acute chest syndrome (ACS), a potentially severe lung complication of sickle cell disease, increases a child's risk of respiratory failure, chronic lung disease, and prolonged hospitalization if not recognized early and treated effectively. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - January 5, 2018 Category: International Medicine & Public Health Source Type: news

Sickle Cell Patients and Doctors Face a'Fight for Everything'Sickle Cell Patients and Doctors Face a'Fight for Everything '
To sickle cell patients and their families — most of whom are African-American — efforts to fight the disease appear slow, underfunded, ineffective or too limited in scope, perpetuating disparities that have existed for more than a century.Kaiser Health News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - January 3, 2018 Category: Consumer Health News Tags: Hematology-Oncology News Source Type: news

MOBO choir sings for sickle cell disease
Singers with sickle cell disease take over London St Pancras. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - December 23, 2017 Category: Consumer Health News Source Type: news

Nigeria:Lagos, Sickle Cell Foundation Partner On Bone Marrow Transplantation Programme
[Guardian] As part of efforts to improve the lives of sickle cell anaemia patients in Nigeria, the Sickle Cell Foundation Nigeria (SCFN) have received the support of the Lagos State Government towards establishment of Bone Marrow Transplantation (BMT) project. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - December 14, 2017 Category: African Health Source Type: news

Improving the Lives of Persons With Sickle Cell Disease Improving the Lives of Persons With Sickle Cell Disease
While advances in treating and preventing the complications of sickle-cell disease have extended life expectancy, challenges remain. Two new public health efforts are working to address this.Morbidity & Mortality Weekly Report (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - December 13, 2017 Category: Consumer Health News Tags: Pediatrics Journal Article Source Type: news

Novartis drug crizanlizumab shown to prolong time to patients' first sickle cell pain crisis in subgroup analysis of SUSTAIN study
Results from a post hoc subgroup analysis of the Phase II SUSTAIN study show that crizanlizumab, an investigational humanized anti-P-selectin monoclonal antibody, delayed the time to first sickle cell pain crisis (SCPC) in patients vs. placebo in key subgroups of adult patients with sickle cell disease[1]. Findings were featured during an oral session at the 59th American Society of Hematology (ASH) Annual Meeting (Source: World Pharma News)
Source: World Pharma News - December 12, 2017 Category: Pharmaceuticals Tags: Featured Novartis Business and Industry Source Type: news

Bioengineering and specialized therapies yield results for rare, challenging blood diseases
(American Society of Hematology) In four studies being presented today during the 59th American Society of Hematology (ASH) Annual Meeting and Exposition in Atlanta, researchers announce promising findings on innovative tools and therapies for hard-to-treat blood disorders including sickle cell disease (SCD), beta thalassemia, and X-linked severe combined immunodeficiency (X-SCID). The studies employ unique therapeutic approaches and advanced engineering technologies such as the gene-editing platform CRISPR/Cas9, reflecting the fruits of many years of research dedication and innovation. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - December 11, 2017 Category: International Medicine & Public Health Source Type: news

New Online Platform Aims to Empower and Unite Sickle Cell Disease...
Patients and others battling sickle cell disease (SCD) -- a devastating genetic disorder primarily affecting African-Americans, but also Latinos, Arabs, and Indians -- may now pre-register for no-cost...(PRWeb November 29, 2017)Read the full story at http://www.prweb.com/releases/2017/11/prweb14939636.htm (Source: PRWeb: Medical Pharmaceuticals)
Source: PRWeb: Medical Pharmaceuticals - November 29, 2017 Category: Pharmaceuticals Source Type: news

CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Disease
Article examines trends, challenges, and approaches to improving the lives of those with Sickle Cell Disease. (Source: PHPartners.org)
Source: PHPartners.org - November 28, 2017 Category: International Medicine & Public Health Source Type: news

'Negative emotions' linked to higher rates of opioid use in sickle cell disease
(Johns Hopkins Medicine) In a small study using data from daily electronic patient diaries, Johns Hopkins researchers say they have found a link between negative emotions, such as sadness and anxiety, and higher opioid use in people with sickle cell disease whose pain levels were self-reported as relatively low. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - November 27, 2017 Category: International Medicine & Public Health Source Type: news

CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Disease
(Source: CDC Morbidity and Mortality Weekly Report)
Source: CDC Morbidity and Mortality Weekly Report - November 22, 2017 Category: American Health Source Type: news

In a first, scientists edit genes inside a man ’ s body to try to cure a disease. What ’ s next?
Scientists have attempted to cure a patient with a rare genetic disorder by rewriting the DNA inside his body, in a first-of-its-kind therapy they hope could one day be applied to numerous other conditions including hemophilia and sickle cell disease. The procedure, which took place on Monday at the University of California at San Francisco's Benioff Children's Hospital in Oakland, Calif., involved sending what the […]Related:American Heart Association president has heart attackFDA warns of ‘deadly risks’ of the herb kratom, citing 36 deathsHow we got the...
Source: Washington Post: To Your Health - November 16, 2017 Category: Consumer Health News Source Type: news

Understanding the Berlin patient's unexpected cure
(Oregon Health& Science University) Researchers have a new way to understand the much-studied Berlin patient's unexpected cure from HIV and improve outcomes of stem cell transplants for patients with other blood-related diseases such as leukemia and sickle-cell disease. A team at Oregon Health& Science University has shown a species of monkey called Mauritian cynomolgus macaques can successfully receive stem cell transplants. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - November 10, 2017 Category: International Medicine & Public Health Source Type: news

Increasing hydroxyurea dose helps to keep young sickle cell patients out of the hospital
(St. Jude Children's Research Hospital) St. Jude Children's Research Hospital researchers report that maximizing the dose of hydroxyurea increased levels of fetal hemoglobin and reduced the odds of hospitalizations for young sickle cell anemia patients. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - November 9, 2017 Category: International Medicine & Public Health Source Type: news