Raiding the CRISPR
A couple of gene-editing news items from this week’s science literature: First, Nature reports that a group in my “back yard,” at the University of California San Diego, has tested gene editing using the CRISPR approach in mice.  Recall that CRISPR is an acronym for a particular molecular mechanism, first discovered in bacteria, that is … Continue reading "Raiding the CRISPR" (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 13, 2018 Category: Medical Ethics Authors: Jon Holmlund Tags: Genetics Health Care Stem Cells bioethics biotechnology enhancement syndicated Source Type: blogs

New Jewish Health Care Directive
Rabbi Jason Weiner, senior rabbi and director of the Spiritual Care Department at Cedars-Sinai Medical Center, has developed a new Jewish advance directive.  Instead of simply listing which medical interventions one does or does not want, the Cedars-Sinai Jewish Advance Directive aims to capture the totality of a person’s values and preferences to be applied in various unforeseen circumstances. It gives patients an opportunity to describe their values. It tells clinicians who their patients are, what is important to them, and what is not important to them. The Cedars-Sinai Jewish Advance Directive prov...
Source: blog.bioethics.net - July 12, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Secret Twin Experiments & Bioethics.net 15 seconds of fame
by Craig Klugman, Ph.D. On the advice of a family friend, I went to see the new documentary, Three Identical Strangers. All that I knew going into the story was that it was about a set of triplets, separated at birth who discover each other later in life. The first part of the film is about how they learned of each other. One ended up going to a small college where a second twin had been a student the previous year.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 11, 2018 Category: Medical Ethics Authors: Craig Klugman Tags: Clinical Trials & Studies Featured Posts Genetics Human Subjects Research & IRBs Informed Consent Justice Media Psychiatric Ethics Science Three Identitical Strangers Source Type: blogs

Risk and reproductive freedom
A recent article in The Atlantic titled “The Overlooked Emotions of Sperm Donation” discusses concerns about the emotional problems and conflicts that can occur in families that turn to sperm donation is a way of creating a child amid infertility. The article focuses mostly on heterosexual couples dealing with male infertility who have used sperm … Continue reading "Risk and reproductive freedom" (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 11, 2018 Category: Medical Ethics Authors: Steve Phillips Tags: Health Care reproduction syndicated Source Type: blogs

Nurse Accused of Fatally Poisoning Elderly Patient Says End-of-Life Care Was Tough
Japanese police are investigating 31-year-old nurse Ayumi Kuboki for murdering two patients. Sozo Nishikawa and Nobuo Yamaki died at the Yokohama Hajime Hospital in Yokohama in September 2016 after being administered a high concentration of the d... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 11, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Death Education in Schools
Physicians in Queensland, Australia are calling for death education to be taught in the classroom in a bid to demystify the processes of ageing and dying. Among other things, AMA Queensland Chair of General Practice Dr Richard Kidd says that people should be creating Advance Care Plans as early as adolescence. Young people will also need to know how to make a will. “Including these sorts of issues or death education in science, legal studies, health and other school subjects will help build this understanding.” (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 10, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Arguments Against Advance VSED for Severe Dementia
In this video from a recent Harvard Law conference Rebecca Dresser argues against advance directives for dementia.   "Beyond Disadvantage: Disability, Law, and Bioethics" Panel 2: Disability in the Beginning and the End of Life from Petrie-... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 9, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

End of Life and Autonomy: The Case for Relational Nudges in End-of-Life Decision-Making Law and Policy
Megan S. Wright, JD, PhD, has been a Postdoctoral Associate in Medical Ethics at Weill Cornell Medical College and a Research Fellow at the Solomon Center for Health Law and Policy at Yale Law School. She will be at Penn State in the fall. Her new article in the Maryland Law Review is "End of Life and Autonomy: The Case for Relational Nudges in End-of-Life Decision-Making Law and Policy." Autonomy is a central principle in many areas of health law. In the case of end-of-life decision-making law and policy, however, the principle of autonomy requires revision. On the whole, law concep...
Source: blog.bioethics.net - July 8, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Plateau of Human Mortality: Demography of Longevity Pioneers
A new study in Science shows that human death rates increase exponentially up to about age 80, then decelerate. After age 105, human death rates plateau, such that the 110-year-old is no more likely to die than the 105-year old. (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 7, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Certifying Clinical Ethics: Fracturing Bioethics
by Craig Klugman, Ph.D. After an effort of nearly a decade, bioethics is taking a big step toward professionalization. Under the American Society for Bioethics & Humanities, the Healthcare Ethics Consultant Certification Commission has launched a health care ethics consultant certification program (HEC-C). According to the Commission website, “the HEC-C credential endorses your knowledge of key concepts in healthcare ethics and affirms your expertise, competence, and skillset.” The process includes reviewing one’s skills in assessment, analysis, consulting process, evaluation and quality imp...
Source: blog.bioethics.net - July 6, 2018 Category: Medical Ethics Authors: Craig Klugman Tags: Clinical Ethics Featured Posts professional ethics Healthcare Ethics Consultant Certification Commission Source Type: blogs

Development and Certification of Decision Aids: Promoting Shared Decision-Making for Patients with Serious Illness
All the videos are available here from the April 2018 event "The Development and Certification of Decision Aids: Promoting Shared Decision-Making for Patients with Serious Illness." My talk was "Using Legislation and Policy to Promote Shared Decision ... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 6, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Labs are growing human embryos for longer than ever before
That’s only a slight paraphrase of a news feature article this week in Nature.  The clearly-written article is devoid of scientific jargon, with helpful illustrations, open-access online, and readily accessible to the non-specialist.  Check it out. Key points include: Scientists who do not find it ethically unacceptable to create and destroy human embryos solely for … Continue reading "Labs are growing human embryos for longer than ever before" (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 6, 2018 Category: Medical Ethics Authors: Jon Holmlund Tags: Genetics Health Care Stem Cells abortion bioethics biotechnology Health Care Practice human dignity reproduction syndicated Source Type: blogs

BioethicsTV (June 27-July 4): #CodeBlack
Code Black (Season 3; Episode 10): Patients Asking Doctors to Lie to Family Members; Code Black (Season 3; Episode 11): Law enforcement pressuring nurse for blood draw by Craig Klugman, Ph.D. Code Black (Season 3; Episode 10): Patients Asking Doctors to Lie to Family Members A mother arrives at the ED with her adult son. The mother has fallen down and hit her head. She has a history of brain cancer which went into remission 4 years ago. An MRI scan shows that the cancer has returned.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 5, 2018 Category: Medical Ethics Authors: Craig Klugman Tags: BioethicsTV Featured Posts Informed Consent Privacy professional ethics #CodeBlack Source Type: blogs

Medical Futility, Nonbeneficial Treatment, and Inappropriate Care at ASBH 2018
Medical futility remains a leading topic of relevance and interest in bioethics. Be sure to calendar these two sessions at ASBH 2018 in Los Angeles.   Clinical Ethics and Inappropriate CareOct. 21, 2018, 11:30 AM - 12:30 PM  Inappropriate ICU Admissions: One Step Closer to Addressing Inappropriate ICU Care for PatientsKatherine E. Kruse , Ruth Marks , Stephanie M. Harman , David Magnus . Children's Hospitals and Clinics of Minnesota, Minneapolis, MN; Children's Respiratory and Critical Care Specialists, Minneapolis, MN; Stanford University School of Medicine, Stanford, CA; Stanford University, Stanford,...
Source: blog.bioethics.net - July 5, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

The essence of humanity
Over the past few days I have been reflecting on this year’s CBHD conference which was titled Bioethics and Being Human. In reviewing all the thought-provoking presentations and discussions, I think the opening address by Dennis Hollinger impacted me the most. His talk was entitled Why Humanness Is the Key to Bioethics. He began by … Continue reading "The essence of humanity" (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 5, 2018 Category: Medical Ethics Authors: Steve Phillips Tags: Health Care bioethics Ethical Method / Grounding human dignity syndicated Source Type: blogs

Jahi McMath – Court Documents & Medical Records
I have collected, here, most of the publicly filed court documents in the six court cases concerning the "death" of Jahi McMath.  These contain some medical records and expert declarations. There is also good commentary in the academic journals a... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 4, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

More Americans Are Dying Out of Hospital
By some measures, end of life care in the United States is improving, according to a new robust JAMA study by Joan Teno and colleagues. Patients who died in an acute care hospital 2000  33% 2015  20% Deaths in a home or community setting 20... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 4, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

What “Do Everything” Really Means
This is one of the most compelling advance care planning videos available. ZDOGG MD describes what he wishes his patients knew about "heroic measures" at the end-of-life.  Watch this with your family and record your preferences with an advance c... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 3, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

A Supreme Court of One
Like Neil Skjoldal in yesterday’s blog entry, I, too, am a Supreme Court watcher and enjoy reading their decisions as some might enjoy watching a good sports match or listening to a beautiful symphony. Nerd that I am, I find a well-articulated argument a beautiful thing to behold, even when it runs counter to my … Continue reading "A Supreme Court of One" (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 3, 2018 Category: Medical Ethics Authors: Mark McQuain Tags: Health Care abortion bioethics Ethical Method / Grounding human dignity syndicated Source Type: blogs

Health Canada Consultation on Palliative Care
Through July 13, 2018, Health Canada is holding a public engagement asking that Canadians share their ideas, innovations and lived-experience related to palliative care.  Through this consultation, Health Canada intends to engage Canadians on the... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 3, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

One Human ’s Condition in the Post-Factual Age
by Craig Klugman, Ph.D. It may be hard to believe, but I have been having trouble writing this blog lately. I blame the Supreme Court. My writer’s block began with a series of USSC rulings that were anti-choice, anti-social justice, and anti-fairness. Then came the bombshell that Justice Kennedy was retiring. While he was a conservative on many issues, he was a social moderate on many others such as reproductive choice and civil rights. His work is part of the reason that today my marriage is legal in every state in the union.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 3, 2018 Category: Medical Ethics Authors: Craig Klugman Tags: Cultural Featured Posts Politics Source Type: blogs

Goodbye,  Korematsu
Supreme Court watchers always eagerly anticipate the last week of June because that is when the highest court in the land usually reaches decisions in its most controversial cases.  Last week did not disappoint — several of the decisions were reached by the slimmest of majorities (the infamous 5-4 vote). Then, to add to the … Continue reading "Goodbye, Korematsu" (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 2, 2018 Category: Medical Ethics Authors: Neil Skjoldal Tags: Health Care bioethics human dignity syndicated Source Type: blogs

" Simon ’ s Law " and Parental Rights
As I have discussed, while only Kansas enacted Simon's Law in 2017, a growing number of other states have considered Simon's Law bills. These laws prohibit clinicians from writing a DNR order or stopping life-sustaining treatment for a minor without pa... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 2, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

A Few Words on the Saga of Jahi McMath
by James Zisfein, MD A few words on the saga of Jahi McMath, the teenager who became brain dead from a surgical complication, whose family refused to accept that determination, and whose heart has stopped and is now dead by everyone’s definition: The fact of McMath’s death over 4 years ago should not be in question. The original determination of death at Oakland Children’s Hospital was in full compliance with published medical standards. Several physicians confirmed that determination. There have been no subsequent neurologic examinations of McMath demonstrating evidence of life.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 2, 2018 Category: Medical Ethics Authors: James Zisfein Tags: End of Life Care Featured Posts Neuroethics Pediatrics Brain Death Jahi McMath UDDA Source Type: blogs

Patient Modesty: Volume 89
I took the above photograph of a "dirty" pond this morning (Descanso Gardens, Southern California) because it struck me as analogous with what is currently being written on this thread about the medical system which we are all experiencing.  Each ... (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 1, 2018 Category: Medical Ethics Authors: Maurice Bernstein, M.D. Tags: Health Care syndicated Source Type: blogs

Voluntarily Stopping Eating and Drinking is Legal —And Ethical—For Terminally Ill Patients Looking to Hasten Death
he ASCO Post, in partnership with the American Society of Clinical Oncology (ASCO), communicates news of evidence-based multidisciplinary cancer care to a broad audience of 30,000 oncology professionals and ASCO members.  Professor Pope authors a monthly Law and Ethics in Oncology column that explores the legal and ethical issues oncologists must be aware of in this era of precision medicine and changing health-care policy, both to protect patients’ rights and to safeguard against potential legal jeopardy. In the June 25, 2018 issue, Professor Pope tackles VSED. Terminally ill patients with cancer will sometimes...
Source: blog.bioethics.net - July 1, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Confusion and Conscientious Objection in Arizona
  by Steven H. Miles, MD and Arthur Caplan, Ph.D. Nicole Mone Arteaga was trying to get pregnant. It had been difficult for her. She had a miscarriage. Then, unexpectedly, she got pregnant again. Because of her miscarriage history, she cooperated with weekly medical monitoring, On June 19th, she was told, according to news interviews, that the fetus no longer had a heartbeat. Her doctor offered her a choice between a medication to cause the uterus to expel the fetal remains or a surgical procedure.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 1, 2018 Category: Medical Ethics Authors: Steven Miles Tags: Featured Posts Health Regulation & Law Justice Pharmaceuticals Politics Public Health Reproductive Ethics Uncategorized abortion conscientious objection Mone Source Type: blogs

Legacy of Jahi McMath – More Brain Death Conflicts
While Jahi McMath is now definitively dead, the ongoing federal and state lawsuits brought by the McMath family may still clarify or alter traditional understandings of brain death. But even without any judgments or verdicts, the cases have already had... (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 30, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

International Conference on Communication in Healthcare
While most of my scholarship has been on end-of-life medicine, I have increasingly focused on informed consent and healthcare decision making. This year, I am excited to participate in the International Conference on Communication in Healthcare. (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 30, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Jahi McMath Has Died – for Real
For nearly five years, there has been an ongoing dispute over (1) whether Jahi McMath satisfies the neurological criteria for death and (2) whether the neurological criteria themselves satisfy the UDDA statute.  The first of those two questions i... (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 29, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

California End of Life Option Act – 2017 Data Report
For the year ending December 31, 2017, 577 individuals received prescriptions under the California End of Life Option Act.  374 of these individuals died following their ingestion of the prescribed aid-in-dying drug(s). Of the 374 individuals, 90... (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 29, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Physician-Assisted Death: Scanning the Landscape: Proceedings of a Workshop
I was delighted to participate in this National Academies of Sciences, Engineering and Medicine workshop earlier this year: "PHYSICIAN-ASSISTED DEATH Scanning the Landscape." The 145-page proceedings is now available. As a matter of public opinion and of public policy, a national dialogue is taking place around the question of whether, and under what circumstances, terminally ill patients can access life-ending medications with the aid of a physician.This publication summarizes the presentations and discussions from a workshop of the NASEM. The workshop explored what is known and not known empirically about the p...
Source: blog.bioethics.net - June 28, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Who gets to tell our stories?: Health narratives and privilege
by Keisha Ray, Ph.D. “Nothing about us without us.”– J.I. Charlton, adopted by disability rights advocates Recently I sat in a room of scholars who teach health humanities in medical schools and undergraduate institutions across the United States and Canada. At the top of the list of topics we discussed was the power of health narratives as pedagogical tools. Patients’ stories of illness, treatment, suffering, and healing were shared, read, dissected. Some participants even shared their own health narratives. But much like educators teaching health humanities across North America, the room of 35 or ...
Source: blog.bioethics.net - June 27, 2018 Category: Medical Ethics Authors: Keisha Ray Tags: Featured Posts Medical Humanities Privacy Social Justice narrative narrative medicine Source Type: blogs

Charlie Gard Symposium in Journal of Medical Ethics
The July 2018 issue 44(7) of the Journal of Medical Ethics focuses on the Charlie Gard case. I contributed a guest editorial: "Charlie Gard’s five months in court: better dispute resolution mechanisms for medical futility disputes." Other articles include: Hard lessons: learning from the Charlie Gard case - Dominic Wilkinson, Julian Savulescu Approaches to parental demand for non-established medical treatment: reflections on the Charlie Gard case - John J Paris, Brian M Cummings, Michael P Moreland, Jason N Batten Charlie Gard and the weight of parental rights to seek experimental treatment - ...
Source: blog.bioethics.net - June 27, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Sharing at the Free Clinic
By Megan Masten I recently had the opportunity to spend a month at a free health-care clinic in Flint, Michigan as part of my third year Internal Medicine clerkship. I am in an underserved medicine program and I have a deep interest in working with people who have characteristically been left out of healthcare.  I […] (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 26, 2018 Category: Medical Ethics Authors: reflectivemeded Tags: Health Care humanistic care medical education medical professionalism patient care syndicated Source Type: blogs

Welcome to the 2018 HIV and Drug Abuse Prevention Research Ethics Training Institute Fellows!
The Fordham University HIV and Drug Abuse Prevention Research Ethics Training Institute (RETI) is pleased to announce that the following individuals have been selected as 2018 Fellows: The Fordham University  HIV and Drug Abuse Prevention Research Ethics Training Institute (RETI), now in its 8th year, is a training grant sponsored by the National Institute on Drug Abuse (NIDA) (R25 DA031608-08), Principal Investigator, […] (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 26, 2018 Category: Medical Ethics Authors: Ethics and Society Tags: Ethics Health Care Public Health Research Ethics Argentina Servin Celia B. Fisher Celia Fisher Courtney Peasant Bonner drug abuse Drug use Fordham University Fordham University Center for Ethics Education Fordham University HIV and Source Type: blogs

Hearing on FEN Constitutional Challenge to Minnesota Assisted Suicide Staute
The U.S. District Court for Minnesota will hold a hearing on the State of Minnesota's motion to dismiss a complaint brought by Final Exit Network that challenges the constitutionality of the state assisted suicide statute. The Minnesota Attorney General moved to dismiss the action because: (1) she is not a proper party under the Eleventh Amendment, (2) FEN’s injuries are not traceable to the AG, (3) the lawsuit is barred by the Rooker-Feldman doctrine, and (4) it is barred by collateral estoppel. The AG also argues that FEN’s lawsuit fails on the merits. (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 26, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

The College of Physicians of Philadelphia Story Slam
[read more] (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 25, 2018 Category: Medical Ethics Authors: Lucy Bruell Tags: Health Care Literature Arts and Medicine Blog Short Takes syndicated Source Type: blogs

Brain Dead Patients Remain in ICU for Months Because of Stays Pending Litigation
A recent order from the U.S. District Court for the Eastern District of Pennsylvania recounts the litigation history in Banerjee v. Children's Hospital of Philadelphia. While the mother of a brain dead boy has not won on the merits in four differ... (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 25, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Norms vs Rules: How Japanese fans embodied normative good
As with every major global sporting event, some stuff went viral. The best one so far has been this: Japanese fans clean up stadium after their win vs Colombia…#Russia2018 #Inspiring #Japan #football #WorldCup #mademesmile #learnfromjapan #inspiration #JPNCOL #JPN #Fans pic.twitter.com/qil7RHmU5v — [...] (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 24, 2018 Category: Medical Ethics Authors: Kyle Munkittrick Tags: Health Care bioethics syndicated Source Type: blogs

Philadelphia Brain Death Conflict – Areen Chakrabarti May Be Transferred from CHOP
The two-month-long conflict between the family of 14-year-old Areen Chakrabarti and Children's Hospital of Philadelphia may be resolved without a ruling from the Supreme Court of Pennsylvania. Like Israel Stinson (whose case is still pending in the U.... (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 24, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

International Conference on Clinical Ethics Consultation 2019 in Vienna
If you are a member of a healthcare ethics committee or work as a clinical ethics consultant, then you should calendar ICCEC 2019. The 15th International Conference on Clinical Ethics Consultation will be in Vienna from May 22-25, 2019. (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 23, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Canada Releases Third Interim Report on Medical Assistance in Dying
In late June 2018, the Government of Canada released the Third Interim Report on Medical Assistance in Dying. Between July 1 and December 31, 2017, there were 1,525 medically assisted deaths in Canada, representing a 29.3% increase over the last six-month reporting period. Medically assisted deaths accounted for approximately 1.07% of all deaths in Canada during this time period which is consistent with other international assisted dying regimes. Of these deaths, cancer was the most frequently cited underlying medical condition, present in approximately 65% of all medically assisted deaths. Other highlights include: 1. The...
Source: blog.bioethics.net - June 23, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

A Tribute to Professor H. Tristram Engelhardt, Jr., PhD., MD (1941-2018)
by Ana S. Iltis, PhD and Mark J. Cherry, PhD Tristram Engelhardt, Jr., PhD, MD, one of the intellectual founders of the fields of bioethics and the philosophy of medicine, whose seminal work continues to frame debates about healthcare policy and medical practice, fell asleep in the Lord on June 21, 2018 in Houston, Texas. He was Professor of History and Philosophy of Medicine at Rice University and Professor Emeritus at Baylor College of Medicine. He died of complications due to cancer.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 22, 2018 Category: Medical Ethics Authors: Blog Editor Tags: Featured Posts In Memoriam Tristram Englehardt Source Type: blogs

U.S. Senate Special Committee on Aging Seeks Input on Guardianship
The U.S. Senate Special Committee on Aging examines issues that are particularly relevant to the needs of older Americans.  Each year, the Committee studies and releases a bipartisan report on a specific issue of importance.  This year, the Committee’s report will focus on guardianship arrangements.Attached, please find a letter from Chairman Collins and Ranking Member Casey seeking your input on several questions related to guardianship arrangements.  The letter presents four questions for your feedback, but you are welcome to provide comments on other aspects of guardianship arrangements as well.&nbs...
Source: blog.bioethics.net - June 22, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Senate Appropriations Committee Praised for Leaving D.C. Death with Dignity Act Intact
Compassion & Choices praised the Senate Appropriations Committee for approving a government funding bill on Thursday afternoon without a policy rider approved by the House Appropriations Committee last week that would repeal the D.C. Death with Dignity Act. However, the bill text was not posted online until this morning. The House policy rider is part of the House Financial Services and General Government Appropriations bill for fiscal year 2019 that starts on Oct. 1, 2018 (see bill summary at bit.ly/HseAppBillSumm). The Senate version of the same bill (S.3107) approved by Senate Appropriations Committee exclud...
Source: blog.bioethics.net - June 22, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Court of Public Opinion Impact on End of Life Decision Making
Neera Bhatia, Senior Lecturer in Law at Deakin University, delivered a compelling presentation at ICCEC in Oxford this week. Looking to the Charlie Gard and Alfie Evans cases, she demonstrated the high sophistication of their social media campaigns. M... (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 22, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

UNOS Organ Allocation Amid a Sea of Inequiry
Yesterday, I presented a summary of organ allocation in the United States at the Uehiro Center for Practical Ethics in Oxford. I focused on the priority formulas that UNOS uses to allocate decease donor organs.  While I tried to exclude the even ... (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 21, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

Charlie ’ s Law – UK Proposal for Resolving Family – Clinician Conflicts
The parents of Charlie Gard have been working with NHS medical professionals, ethicists, and legal experts to develop draft legislation that will prevent long and painful conflicts between hospitals and families with sick children (BBC News). The bill provides three key changes to improve existing legislation. Charlie’s Law will: 1. Prevent cases reaching courtNo one wants to see disagreements over the care of seriously ill children to be decided in the courts. The legislation helps prevent cases from reaching court by providing access to clinical ethics committees throughout NHS hospitals, access to medical mediatio...
Source: blog.bioethics.net - June 21, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs

When Is the Patient Dead? Growing Challenges to the Status of Brain Death and Strategies for Clinical Ethics Consultants
I used this poster at the IME Summer Research conference to summarize challenges to brain death. (Source: blog.bioethics.net)
Source: blog.bioethics.net - June 20, 2018 Category: Medical Ethics Authors: Thaddeus Mason Pope, JD, PhD Tags: Health Care syndicated Source Type: blogs