Racial, Ethnic-Minority Infants Older at First Cystic Fibrosis Evaluation
WEDNESDAY, Aug. 3, 2022 -- Infants with cystic fibrosis (CF) from racial and ethnic-minority groups have an older median age at first event (AFE: age at sweat test, encounter, and/or care episode), according to a study published online July 21 in... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - August 3, 2022 Category: Pharmaceuticals Source Type: news

Race Plays Role in How Soon Babies With Cystic Fibrosis Get Care
WEDNESDAY, Aug. 3, 2022 -- Babies who are white appear to get diagnostic appointments for cystic fibrosis earlier than babies of several other races and ethnicities, new research shows. This can cause gaps in care and outcomes. While it is... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - August 3, 2022 Category: General Medicine Source Type: news

What Are Causes of Childhood Interstital Lung Disease?
Discussion Interstitial lung disease in children (chILD) is less understood than adult interstitial lung disease (ILD) and is rare. Prevalence is ~ 0.13 to 16.2 per 100,000 children under age 17 years. chILD is an general term for respiratory disorders that are heterogeneous, chronic and impair lung function. While some define diffuse parenchymal lung disease (DPLD) separately, the term ILD usually encompases DPLD. chILD has variable definitions and is “usually diagnosed if three of the following features are present: 1) respiratory symptoms (cough, rapid and/or difficult breathing, and exercise intolerance), 2) res...
Source: PediatricEducation.org - August 1, 2022 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news

The Changing Face of CF: An Update for Anesthesiologists The Changing Face of CF: An Update for Anesthesiologists
This review article focuses on the changing epidemiology of cystic fibrosis, the latest innovations in CFTR modulator therapies, and perioperative considerations while caring for CF patients.Anesthesia & Analgesia (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - July 7, 2022 Category: Consumer Health News Tags: Anesthesiology Journal Article Source Type: news

Half in UK back genome editing to prevent severe diseases
Survey also finds younger generations far more in favour of designer babies than older people areMore than half the UK backs the idea of rewriting the DNA of human embryos to prevent severe or life-threatening diseases, according to a survey.Commissioned by theProgress Educational Trust (PET), a fertility and genomics charity, the Ipsos poll found that 53% of people support the use of human genome editing to prevent children from developing serious conditions such as cystic fibrosis.Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - June 22, 2022 Category: Science Authors: Ian Sample Science editor Tags: Gene editing Cystic fibrosis IVF Genetics Biology Science Society UK news Source Type: news

Are These Stools Acholic?
Discussion Color can be difficult to discern and communicate. Stooling is an important part of overall health and an important harbinger of potential illness. Stooling consistency and color changes with food, environment, medication, and health conditions. For neonates and young infants, some hepatobiliary problems may not be seen at birth but in the next few days to weeks. This includes Alagille syndrome, biliary atresia and cystic fibrosis. It is not uncommon for these patients to have prolonged jaundice and therefore the diagnosis may be delayed with some presenting with increased jaundice, acholic stool and poor feedin...
Source: PediatricEducation.org - May 23, 2022 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news

‘Phage therapy’ successes boost fight against drug-resistant infections
Two US patients recover from intractable infections, giving hope for treatments beyond antibioticsTwo US patients have recovered from intractable infections after being treated with a pioneering therapy involving genetically engineered bacteria-killing viruses.The cases raise hopes that so-called phage therapy could be used more widely to combat the global crisis of drug-resistant infections. One of the patients, Jarrod Johnson, a 26-year-old man with cystic fibrosis, was approaching death after suffering a chronic lung infection that resisted treatment by antibiotics for six years. After being given the phage therapy, his...
Source: Guardian Unlimited Science - May 13, 2022 Category: Science Authors: Hannah Devlin Science correspondent Tags: Medical research Antibiotics Society Science UK news US news World news Colorado Source Type: news

Gift Will Support the Development of New Therapies for Cystic Fibrosis
A $1 million gift from John Flatley and his wife, Kate, to a team of investigators at Dartmouth’s Geisel School of Medicine will provide essential funding to develop new and more effective therapies for people with Cystic Fibrosis. (Source: News at Dartmouth Medical School)
Source: News at Dartmouth Medical School - May 11, 2022 Category: Hospital Management Authors: Timothy Dean Tags: Donor Impact News Bruce Stanton cystic fibrosis Dean Madden Home-feature Source Type: news

Lung-on-a-Chip: The Future of Personalized Cystic Fibrosis Drug Development
Scientists engineered a lung-on-a-chip model with patient cells to better understand cystic fibrosis pathogenesis and develop more effective therapies. (Source: The Scientist)
Source: The Scientist - May 9, 2022 Category: Science Tags: Sponsored Article Source Type: news

A New Model of Lung Disease Paves the Way for Personalized Treatments
Scientists engineered a lung-on-a-chip model from patient cells that mimics cystic fibrosis. (Source: The Scientist)
Source: The Scientist - May 9, 2022 Category: Science Tags: Sponsored Article Source Type: news

Is the 'holy grail' cystic fibrosis medication worth the risk?  
Elaina Mowle, 22, from Eastbourne began having problems after being started on Symkevi and Kalydeco, aged 19. She said: ''After about a week I began to feel really spaced out.' (Source: the Mail online | Health)
Source: the Mail online | Health - May 7, 2022 Category: Consumer Health News Source Type: news

'My baby delight': Dying CF sufferer saved by our crusade for wonder drug
A CYSTIC fibrosis sufferer who was dying when the Daily Express secured her a miracle drug is expecting a surprise baby. (Source: Daily Express - Health)
Source: Daily Express - Health - May 7, 2022 Category: Consumer Health News Source Type: news

Elevated Eosinophils Linked to Respiratory Symptoms in Cystic Fibrosis Elevated Eosinophils Linked to Respiratory Symptoms in Cystic Fibrosis
Results suggest a stronger role for neutrophilic inflammation and a weaker role for eosinophilic inflammation in patients with CF.Medscape Medical News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - April 21, 2022 Category: Consumer Health News Tags: Pulmonary Medicine News Source Type: news

Woman tells of 'mind-blowing' cystic fibrosis drug
Gillian Docherty was living on borrowed time but a drug improved her health so much she had a baby. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - April 19, 2022 Category: Consumer Health News Source Type: news

Science born out of Genzyme underpins new cystic-fibrosis startup
Sionna Therapeutics, a cystic fibrosis –focused company advancing science that dates back to storied biotech Genzyme, has launched and revealed $150 million in funding. (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - April 19, 2022 Category: Pharmaceuticals Authors: Rowan Walrath Source Type: news