Daily Express delivers cystic fibrosis petition demanding prescription exemption to No 10
Daily Express reporter Chris Riches led a delegation to Downing Street to deliver a petition demanding cystic fibrosis sufferers are exempted from paying for prescriptions - currently £ 9.35 per item. (Source: Daily Express - Health)
Source: Daily Express - Health - March 7, 2023 Category: Consumer Health News Source Type: news
Vertex added 600 jobs in Massachusetts in 2022
The Boston drugmaker is expanding beyond its cystic fibrosis portfolio and into cell and gene therapy. (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - February 27, 2023 Category: American Health Authors: Rowan Walrath Source Type: news
Suicide attempts in adolescents with cystic fibrosis on Elexacaftor/Tezacaftor/Ivacaftor therapy - Arslan M, Chalmers S, Rentfrow K, Olson JM, Dean V, Wylam ME, Demirel N.
Elexacaftor/Tezacaftor/Ivacaftor (ETI) is a recently approved cystic fibrosis (CF) transmembrane conductance regulator modulator therapy that has shown promising clinical and laboratory improvements on multiple organ systems in people with CF (pwCF). While... (Source: SafetyLit)
Source: SafetyLit - February 14, 2023 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news
Meconium: It Can Cause a Sticky Mess
Discussion
During fetal life from approximately 12-13 weeks gestation, meconium accumulates in the small bowel and migrates to the large bowel and rectum by ~20 weeks gestation. Meconium is a combination of bile, mucous, desquamated intestinal cells, bowel secretions, dessicated swallowed amniotic fluid and lanugo. It is sterile before birth and once produced is odorless with a blackish green (sometimes brown or yellow) color, and tarry or sticky quality. Defecation does not occur during fetal life unless the fetus is significantly stressed. Normal meconium passage after birth occurs within 24-48 hours of life (more often ...
Source: PediatricEducation.org - February 13, 2023 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news
It's Time to Pay Clinical Trial Participants More
(MedPage Today) -- Clinical trials do not exist without us, so we need to demand more from them.
I am a strategist at a health tech company and also live with cystic fibrosis. While cystic fibrosis was historically known as a childhood disease... (Source: MedPage Today Public Health)
Source: MedPage Today Public Health - February 9, 2023 Category: American Health Source Type: news
This Cystic Fibrosis Drug Is a ‘Miracle’ but These Families Can’t Get It
Vertex Pharmaceuticals is not making its drug, Trikafta, available in poorer countries, where thousands of diagnosed patients stand to benefit. (Source: NYT Health)
Source: NYT Health - February 9, 2023 Category: Consumer Health News Authors: Stephanie Nolen and Rebecca Robbins Tags: Cystic Fibrosis Drugs (Pharmaceuticals) Vertex Pharmaceuticals Inc Third World and Developing Countries Inventions and Patents Generic Brands and Products India South Africa Ukraine Brazil Turkey Source Type: news
‘Miracle’ Cystic Fibrosis Drug Kept Out of Reach in Developing Countries
Vertex Pharmaceuticals is not making its drug, Trikafta, available in poorer countries, where thousands of diagnosed patients stand to benefit. (Source: NYT Health)
Source: NYT Health - February 7, 2023 Category: Consumer Health News Authors: Stephanie Nolen and Rebecca Robbins Tags: Cystic Fibrosis Drugs (Pharmaceuticals) Third World and Developing Countries Inventions and Patents Generic Brands and Products Vertex Pharmaceuticals Inc India South Africa Ukraine Brazil Turkey Source Type: news
In virtuous cycle, foundation uses drug royalty riches to back new cystic fibrosis drug research in Bay Area
The Cystic Fibrosis Foundation is spinning some of the half-billion dollars it received as part of a royalty deal in 2016 into Bay Area companies looking at ways to tackle persistent infections and perhaps even mutation-fixing cures. (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - February 6, 2023 Category: Pharmaceuticals Authors: Ron Leuty Source Type: news
New report shows living with cystic fibrosis comes with annual extra £ 6.5k price tag
At a time of financial strain, a new report out today shows the extra cost of having cystic fibrosis is more than £ 6,500 a year on average. (Source: University of Bristol news)
Source: University of Bristol news - January 24, 2023 Category: Universities & Medical Training Tags: Alumni, Health, Research, Publications; Faculty of Health Sciences, Faculty of Science, School of Geographical Sciences; Press Release Source Type: news
Wonder drug transforms lives of cystic fibroris sufferers after Express campaign
One year on from the Daily Express's historic victory in helping to secure a wonder drug for cystic fibrosis sufferers, some of the grateful recipients have shared their joy after enjoying a health transformation. (Source: Daily Express - Health)
Source: Daily Express - Health - January 13, 2023 Category: Consumer Health News Source Type: news
Md. biotech Adaptive Phage Therapeutics advances fight to wipe out superbugs in cystic fibrosis
The National Institutes of Health is funding its latest clinical trial. (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - January 13, 2023 Category: American Health Authors: Sara Gilgore Source Type: news
Md. biotech Adaptive Phage Therapeutics advances fight to wipe out superbugs in cystic fibrosis
The National Institutes of Health is funding its latest clinical trial. (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - January 12, 2023 Category: Pharmaceuticals Authors: Sara Gilgore Source Type: news
Health Secretary Steve Barclay gets confronted by mother of little girl with cystic fibrosis
The Health Secretary met with Sarah Pinnington-Auld at King's College Hospital in London today. her three-year-old daughter Lucy suffers with the genetic condition cystic fibrosis. (Source: the Mail online | Health)
Source: the Mail online | Health - December 19, 2022 Category: Consumer Health News Source Type: news
Driver of cystic fibrosis lung inflammation yields target for treatment
Yale researchers have uncovered a driver of the chronic inflammation that damages lungs in cystic fibrosis. It could be a target for treatment. (Source: Yale Science and Health News)
Source: Yale Science and Health News - December 13, 2022 Category: Universities & Medical Training Source Type: news
Genome sequencing trial to test benefits of identifying genetic diseases at birth
Study with 100,000 babies to look at faster diagnosis of rare conditions and how genetic data might be usedGenomics England is to test whether sequencing babies ’ genomes at birth could help speed up the diagnosis of about 200 rare genetic diseases, and ensure faster access to treatment.The study, which will sequence the genomes of 100,000 babies over the next two years, will explore the cost-effectiveness of the approach, as well as how willing new parents are to accept it.Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - December 13, 2022 Category: Science Authors: Linda Geddes Tags: Genetics Children's health Medical research UK news Science Biology Cystic fibrosis Sickle cell disease Source Type: news
