Walking speed of children and adolescents with cerebral palsy: laboratory versus daily life - Carcreff L, Gerber CN, Paraschiv-Ionescu A, De Coulon G, Aminian K, Newman CJ, Armand S.
The purpose of this pilot study was to compare walking speed, an important component of gait, in the laboratory and daily life, in young individuals with cerebral palsy (CP) and with typical development (TD), and to quantify to what extent gait observed in... (Source: SafetyLit)
Source: SafetyLit - August 13, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Blog: When you ’re the wrong sort of ‘vulnerable’
I’ve been a local government worker and a UNISON member for 15 years. I have cerebral palsy and arthritis, which means I sometimes struggle to walk and to communicate. I had a stroke five years ago and I’m more susceptible to infection. If I got COVID-19, I dread to think what might happen. But the government don’t seem to care about my individual circumstances. Instead, they have divided disabled people into two new groups – extremely vulnerable people and vulnerable people.  Only extremely vulnerable people were told to shield. Apparently, I’m just plain old vulnerable. I’m not ex...
Source: UNISON Health care news - August 10, 2020 Category: UK Health Authors: Martin Cullen Tags: Article Covid-19 disabled members Source Type: news

FDA Expands Dysport Use for Cerebral Palsy-Related Spasticity FDA Expands Dysport Use for Cerebral Palsy-Related Spasticity
Dysport (abobotulinumtoxinA) has been approved for expanded use to treat upper- and lower-limb spasticity, including that caused by cerebral palsy, for patients 2 and older.FDA Approvals (Source: Medscape Neurology and Neurosurgery Headlines)
Source: Medscape Neurology and Neurosurgery Headlines - July 14, 2020 Category: Neurology Tags: Neurology & Neurosurgery News Source Type: news

UMass Amherst team makes artificial energy source for muscle
(University of Massachusetts Amherst) Muscle physiologist Ned Debold and colleagues at UMass Amherst sought an alternative energy source to replace the body's usual one, adenosine triphosphate (ATP). Such a source could control muscle activity, and might lead to new muscle spasm-calming treatments in cerebral palsy, for example, or activate or enhance skeletal muscle function in MS, ALS and chronic heart failure. They report this month that they have made a series of synthetic compounds to serve as alternative energy sources for the muscle protein myosin. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - July 13, 2020 Category: International Medicine & Public Health Source Type: news

Changes in IVF May Have Spurred Drop in Cerebral Palsy, Study Says
FRIDAY, July 10, 2020 -- Rates of cerebral palsy among babies in Nordic countries born through in vitro fertilization (IVF) have fallen by more than half over the past two decades, due to fewer twin births from IVF, according to a new study. A... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - July 10, 2020 Category: General Medicine Source Type: news

The risk of cerebral palsy linked to IVF has more than halved in the past two decades
(European Society of Human Reproduction and Embryology) Fifteen years ago a large population study from Denmark found a significantly increased risk of cerebral palsy in infants born as a result of assisted reproduction. Although the absolute risk was small, such studies at this time made cerebral palsy the greatest developmental birth defect risk associated with IVF, and a concern in its overall safety profile. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - July 7, 2020 Category: International Medicine & Public Health Source Type: news

Talipes equinus deformity caused by fibrous gastrocnemius muscle contracture after direct contusion in football players: report of two cases - Kaneuchi Y, Otoshi KI, Hakozaki M, Watanabe K, Konno SI.
Two main causes of gastrocnemius contracture have been considered: 1) congenital deformities in pediatric patients, such as limb-length discrepancy, cerebral palsy, flatfoot, and clubfoot; and 2) secondary conditions such as immobilization for trauma or a ... (Source: SafetyLit)
Source: SafetyLit - July 5, 2020 Category: International Medicine & Public Health Tags: Ergonomics, Human Factors, Anthropometrics, Physiology Source Type: news

A child's right to family - Kaufman J.
"People who say it cannot be done, should not interrupt those who are doing it." This quote by George Bernard Shaw was used as the title of an article about a severely disabled boy in Rwanda with cerebral palsy who made remarkable developmental gains after... (Source: SafetyLit)
Source: SafetyLit - July 1, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

The grief in knowing you'll one day outlive your primary caregiver as a person with a physical disability
Rebecca Wilchynski is 48 years old and has been living with cerebral palsy her entire life. Now, as her mother, who has always served as her primary caregiver, faces medical issues of her own, she must decide if she will give up what independence she has and move to a long-term care facility. (Source: CBC | Health)
Source: CBC | Health - June 27, 2020 Category: Consumer Health News Tags: News/Canada/PEI Source Type: news

Risk for asthma doubled in children with developmental disabilities, study finds
Children with developmental disabilities like attention-deficit/hyperactivity disorder, autism spectrum disorder and cerebral palsy are more than twice as likely than others to have asthma, a study says. (Source: Health News - UPI.com)
Source: Health News - UPI.com - June 16, 2020 Category: Consumer Health News Source Type: news

Orthotics breakthrough helps children with Cerebral Palsy walk and play
(Staffordshire University) Children with Cerebral Palsy have more energy to play and be physically active for longer thanks to specially designed orthotics.Researchers have confirmed that adapting splints in combination with the footwear used by disabled children to help them walk can decrease the energy they use by as much as 33%. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - June 9, 2020 Category: International Medicine & Public Health Source Type: news

How a network of hospitals reduced average age at cerebral palsy diagnosis to 9.5 months
(Nationwide Children's Hospital) Five hospital systems in the United States have become the first in the world to successfully implement, in clinical practice, international CP diagnosis guidelines that were released in 2017. Their efforts, which resulted in an average decrease of 10 months in time-to-diagnosis, demonstrate the practicality and effectiveness of the guidelines for improving age at diagnosis. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - May 27, 2020 Category: International Medicine & Public Health Source Type: news

An unsupervised data-driven model to classify gait patterns in children with cerebral palsy - Choisne J, Fourrier N, Handsfield G, Signal N, Taylor D, Wilson N, Stott S, Besier TF.
Ankle and foot orthoses are commonly prescribed to children with cerebral palsy (CP). It is unclear whether 3D gait analysis (3DGA) provides sufficient and reliable information for clinicians to be consistent when prescribing orthoses. Data-driven modeling... (Source: SafetyLit)
Source: SafetyLit - May 19, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Prevalence of mental disorders in children and adolescents with cerebral palsy: Danish nationwide follow-up study - Rackauskaite G, Bilenberg N, Uldall P, Bech BH, Østergaard J.
AIM: To compare the prevalence of mental disorders (MDs) in a cohort of children and adolescents with and without cerebral palsy (CP) and to explore whether there is an association between MDs and the Gross Motor Function Classification System (GMFCS) leve... (Source: SafetyLit)
Source: SafetyLit - April 27, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

‘This Is Really Life or Death.’ For People With Disabilities, Coronavirus Is Making It Harder Than Ever to Receive Care
Jeiri Flores is normally a busy, upbeat 29-year-old. But amid the COVID-19 pandemic, her go-to thought has been dark. “If I get this,” she thinks, “I’m gonna die.” This is not an unfounded fear. Flores has cerebral palsy, uses a wheelchair and needs assistance with everyday tasks, including making food and getting dressed. Her disability means it’s tougher for her immune system to kick illnesses; she’s still recovering from a bout of pneumonia she had in January. So beating COVID-19 could easily mean a protracted battle and months in a hospital—a prospect that comes with a c...
Source: TIME: Health - April 24, 2020 Category: Consumer Health News Authors: Abigail Abrams Tags: Uncategorized COVID-19 Source Type: news

Grocery store clerk, 27, dies from coronavirus
Leilani Jordan, who had cerebral palsy, left her family a "goodbye" video on her phone. (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - April 9, 2020 Category: Consumer Health News Source Type: news

Guideline Implementation Lowers Age at Cerebral Palsy Diagnosis Guideline Implementation Lowers Age at Cerebral Palsy Diagnosis
A program to boost implementation of international guidelines for early diagnosis of cerebral palsy was successful across a network of five diverse U.S. institutions, researchers say.Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - April 9, 2020 Category: Consumer Health News Tags: Neurology & Neurosurgery News Source Type: news

A grocery clerk with cerebral palsy died of coronavirus. She had kept working to help seniors
As the coronavirus pandemic intensified, Leilani Jordan insisted on going to her job as a clerk at a Maryland grocery so she could help seniors, her mother said. (Source: CNN.com - Health)
Source: CNN.com - Health - April 8, 2020 Category: Consumer Health News Source Type: news

Walking through life with cerebral palsy: reflections on daily walking by adults with cerebral palsy - Gjesdal BE, Jahnsen R, Morgan P, Opheim A, M æland S.
Purpose: Walking is a major target in childhood physiotherapy for children with cerebral palsy (CP). Little information exists on the importance or value of walking when these children grow up. The aim of this study was to explore personal reflectio... (Source: SafetyLit)
Source: SafetyLit - April 6, 2020 Category: International Medicine & Public Health Tags: Age: Young Adults Source Type: news

Psychometric properties of clinical tests of balance and vestibular-related function in children with cerebral palsy - Almutairi AB, Christy JB, Vogtle L.
PURPOSE: The purpose of this study was to establish the psychometric properties of clinical tests of balance and vestibular-related function in children with cerebral palsy (CP), aged 7 to 12 years, Gross Motor Function Classification System levels I to II... (Source: SafetyLit)
Source: SafetyLit - April 1, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

A systematic review of vestibular stimulation in cerebral palsy - Topley D, McConnell K, Kerr C.
Purpose: Identify the types and dosage of vestibular stimulation interventions in persons with cerebral palsy (CP), and establish the efficacy of these interventions on balance and function.Materials and Methods: This systematic review follow... (Source: SafetyLit)
Source: SafetyLit - March 30, 2020 Category: International Medicine & Public Health Tags: Ergonomics, Human Factors, Anthropometrics, Physiology Source Type: news

As a disabled person, it's hard to watch accessibility only improve now that able-bodied are affected
Waking up with cerebral palsy is as unpredictable as it is unremarkable on a regular day. Add in a pandemic, a loss of income, and national reports that equate to government ministers with megaphones saying, "Disabled people, lock yourselves away," and things get a tad more complicated. (Source: CBC | Health)
Source: CBC | Health - March 27, 2020 Category: Consumer Health News Tags: News/Canada/Saskatchewan Source Type: news

Follow-up of walking quality after end of growth in 28 children with bilateral cerebral palsy - Bonnefoy-Mazure A, De Coulon G, Lascombes P, Armand S.
PURPOSE: Assessment of surgical treatments on gait in patients with bilateral cerebral palsy (CP) is often performed in short-term studies. The purpose of this study was to analyze the influence of single-event multilevel surgery (SEMLS) on long-term evolu... (Source: SafetyLit)
Source: SafetyLit - March 17, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

China ’s Draconian Lockdown Is Getting Credit for Slowing Coronavirus. Would It Work Anywhere Else?
As COVID-19 spread rapidly across China, authorities took an aggressive stance to fight the coronavirus. They were slow to respond to the outbreak—at first suppressing information and denying that it could spread between humans even as it did just that. But, as case numbers skyrocketed, Beijing went to extraordinary lengths to fight the virus, identified at COVID-19, in a campaign Chinese President Xi Jinping has described as a “people’s war.” The most dramatic, and controversial, of the measures was the lockdown of of tens of millions of people in what is believed to be the largest quasi-quarantin...
Source: TIME: Health - March 13, 2020 Category: Consumer Health News Authors: Amy Gunia Tags: Uncategorized COVID-19 overnight Source Type: news

What Are Some Risk Factors for Cerebral Palsy?
Discussion The term, cerebral palsy, or CP has gone through many iterations with the first description in 1861 by W.J. Little who described it as “The condition of spastic rigidity of the limbs of newborn children.” The most recent definition is from Rosenbaun et al. in 2007 which states it is “a group of permanent disorders of the development of movement and posture, causing activity limitation, that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, perception, cog...
Source: PediatricEducation.org - March 9, 2020 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news

Walking on uneven ground: how do patients with unilateral cerebral palsy adapt? - Romkes J, Freslier M, Rutz E, Bracht-Schweizer K.
BACKGROUND: Children with cerebral palsy experience movement disorders that influence gait stability. It is likely that gait stability further decreases when walking on uneven compared to even ground. Therefore, the aim of this study was to investigate gai... (Source: SafetyLit)
Source: SafetyLit - February 26, 2020 Category: International Medicine & Public Health Tags: Ergonomics, Human Factors, Anthropometrics, Physiology Source Type: news

NICE pushes for multidisciplinary teams in cerebral palsy care
NICE ’s latest quality standard highlights areas for improvement in care for adults with cerebral palsy, to enable them to live independently. (Source: NHS Networks)
Source: NHS Networks - February 17, 2020 Category: UK Health Source Type: news

5-year-old boy with cerebral palsy takes first steps without walker
Marick Williams Jr., a 5-year-old who has cerebral palsy, took his first steps without a walker two months after undergoing surgery. The boy's mother posted video of his accomplishment on Facebook, and he has become an internet sensation. (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - February 12, 2020 Category: Consumer Health News Source Type: news

Boy with cerebral palsy takes first steps
This is not the first time little MJ has inspired countless people by overcoming the odds — and it probably won't be his last. (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - February 12, 2020 Category: Consumer Health News Source Type: news

Philadelphia consortium awards $200,000 to developers of pediatric medical devices
The Philadelphia-based Pennsylvania Pediatric Medical Device Consortium awarded $200,000 in seed grants this week to four startup companies in its latest round of funding to support promising projects addressing the health needs of children. The four companies to receive $50,000 each are developing devices for children with heartbeat arrhythmias, congenital heart disease, cerebral palsy, and developmental dysplasia of the hip. The consortium is funded by the Food and Drug Administration and based… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - February 6, 2020 Category: Pharmaceuticals Authors: John George Source Type: news

Chinese Cerebral Palsy Victim Dies After Caretaker Quarantined for Virus Chinese Cerebral Palsy Victim Dies After Caretaker Quarantined for Virus
Chinese authorities removed two officials in Hubei province, the epicenter of the coronavirus outbreak, over the death of a cerebral palsy patient whose father and sole caretaker was taken into quarantine.Reuters Health Information (Source: Medscape Critical Care Headlines)
Source: Medscape Critical Care Headlines - February 5, 2020 Category: Intensive Care Tags: Family Medicine/Primary Care News Source Type: news

Laughter is the best medicine for IWK's newest therapeutic clown
John Lang has been staying at the IWK Health Centre for over a month and is usually in pain, but the boy with cerebral palsy is always good for a boisterous laugh when the hospital's newest staff member visits. After all, she’s a clown. (Source: CBC | Health)
Source: CBC | Health - February 3, 2020 Category: Consumer Health News Tags: News/Canada/Nova Scotia Source Type: news

Touching moment a little girl, 4, with cerebral palsy takes her first steps
A video has gone viral of Kinley Jones, four, of Fayetteville, North Carolina, who has the motor disability, learning how to walk as ditches the walker and begins walking towards her mother. (Source: the Mail online | Health)
Source: the Mail online | Health - January 16, 2020 Category: Consumer Health News Source Type: news

Understanding children with cerebral palsy and bullying: a mixed methods-approach - Stang K, Frainey B, Tann B, Ehrlich-Jones L, Deike D, Gaebler-Spira D.
AIM: To explore the views of children with cerebral palsy (CP) regarding their experiences being bullied and their perceptions of their primary bully. METHOD: Forty-three children aged 10-18 with CP were given the California Bullying Victimization ... (Source: SafetyLit)
Source: SafetyLit - January 14, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Efficacy and safety of core stability training on gait of children with cerebral palsy: a protocol for a systematic review and meta-analysis - Huang C, Chen Y, Chen G, Xie Y, Mo J, Li K, Huang R, Pan G, Cai Y, Zhou L.
BACKGROUND: Cerebral palsy (CP) is a common disability in children featured with pathological gait and limb function limitation due to muscle weakness. Improving limb function and quality of life is currently considered to be highlighted. Physiotherapy is ... (Source: SafetyLit)
Source: SafetyLit - January 10, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Effect of virtual reality therapy on functional development in children with cerebral palsy: a single-blind, prospective, randomized-controlled study - Metin Ökmen B, Doğan Aslan M, Nakipoğlu Yüzer GF, Özgirgin N.
OBJECTIVES: The aim of this study was to investigate the effect of virtual reality (VR) therapy on motor and functional development in children with cerebral palsy (CP). PATIENTS AND METHODS: In this single-blind, prospective, randomized-controlled... (Source: SafetyLit)
Source: SafetyLit - January 4, 2020 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Incidence of falls among adults with cerebral palsy: a cohort study using primary care data - Ryan JM, Cameron MH, Liverani S, Smith KJ, O'connell N, Peterson MD, Anokye N, Victor C, Boland F.
AIM: To compare the rate of falls between adults with and without cerebral palsy (CP). METHOD: We used primary care data on 1705 adults with CP and 5115 adults without CP matched for age, sex, and general practice attended. We compared odds of expe... (Source: SafetyLit)
Source: SafetyLit - December 31, 2019 Category: International Medicine & Public Health Tags: Ergonomics, Human Factors, Anthropometrics, Physiology Source Type: news

Innovative research seeks to improve walking for children with CP
(Louisiana State University Health Sciences Center) Noelle Moreau, Ph.D., PT, Associate Professor of Physical Therapy at LSU Health New Orleans School of Allied Health Professions, and Kristie Bjornson, PT, Ph.D., Associate Professor of Pediatrics at Seattle Children's Research Institute, are the co-principal investigators of a $2.7 million grant to study an innovative training method to improve walking in children with cerebral palsy (CP). (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - December 12, 2019 Category: International Medicine & Public Health Source Type: news

Four-year-old with severe cerebral palsy walks for the first time after private surgery
Bleu Greenwood, from Leicester, has the most severe form of cerebral palsy. Doctors said he'd need a wheelchair for the rest of his life. But he is now up and moving with a walking frame. (Source: the Mail online | Health)
Source: the Mail online | Health - November 27, 2019 Category: Consumer Health News Source Type: news

Zimbabwe: Horses Aid in Therapy for Children With Disabilities
[VOA] Once a week, a horse track in Harare invites children born with cerebral palsy, a neuromuscular disorder, to visit. But the children don't simply watch the horses. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - November 22, 2019 Category: African Health Source Type: news

Comedian with cerebral palsy reveals how she made her dream of starring on General Hospital reality
Maysoon Zayid, 45, says she was turned down at auditions immediately because of her cerebral palsy and is campaigning for more exposure of disabled people in Hollywood. (Source: the Mail online | Health)
Source: the Mail online | Health - November 20, 2019 Category: Consumer Health News Source Type: news

Trust sued over Huntington ’s disease non-disclosure
Case could result in shift in confidentiality rules Related items fromOnMedica Men ’s dementia risk higher after androgen deprivation therapy Patients with genetic disease history face discrimination GMC stresses duty to report poor care NICE calls for consistent clinical and social care in cerebral palsy Does evidence support doctors recommending acupuncture for pain? (Source: OnMedica Latest News)
Source: OnMedica Latest News - November 18, 2019 Category: UK Health Source Type: news

South Africa: 'Standing Boxes' Improve Life for Children With Cerebral Palsy
[SAnews.gov.za] Public Service and Administration Minister Senzo Mchunu has commended the physiotherapists who came up with the idea of inventing standing boxes for children born with cerebral palsy. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - November 15, 2019 Category: African Health Source Type: news

Gait deficits and dynamic stability in children and adolescents with cerebral palsy: a systematic review and meta-analysis - Chakraborty S, Nandy A, Kesar TM.
BACKGROUND: Studies have demonstrated that ambulatory children and adolescents with cerebral palsy demonstrate atypical gait patterns. Out of numerous gait variables, identification of the most deteriorated gait parameters is important for targeted and eff... (Source: SafetyLit)
Source: SafetyLit - November 9, 2019 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Construct validity of the early clinical assessment of balance in toddlers with cerebral palsy: brief report - Pierce SR, Kornafel T, Skorup J, Paremski AC, Prosser LA.
Purpose: The purpose of this research was to investigate differences in Early Clinical Assessment of Balance (ECAB) scores within children with cerebral palsy (CP) with different Gross Motor Function Classification System (GMFCS) levels and between ... (Source: SafetyLit)
Source: SafetyLit - October 31, 2019 Category: International Medicine & Public Health Tags: Age: Infants and Children Source Type: news

PSW shortage stranding patients in hospital
Maria Konopeskas, who has cerebral palsy, has an accessible apartment waiting for her. But nearly two years after undergoing relatively minor surgery, a severe shortage of personal support workers has left her languishing in a hospital bed. (Source: CBC | Health)
Source: CBC | Health - October 30, 2019 Category: Consumer Health News Tags: News/Canada/Ottawa Source Type: news

Girl with cerebral palsy walks for the first time
The mother of a seven-year-old with cerebral palsy had been "unsure" her daughter would ever walk. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - October 28, 2019 Category: Consumer Health News Source Type: news

Allergan's Botox gets pediatric approval
Allergan announced that the U.S. FDA has approved the company's supplemental BLA for Botox for the treatment of pediatric patients (2 to 17 years of age) with lower limb spasticity, excluding spasticity caused by cerebral palsy. (Source: PharmaManufacturing.com)
Source: PharmaManufacturing.com - October 25, 2019 Category: Pharmaceuticals Source Type: news

FDA Approves Botox (onabotulinumtoxinA) for Pediatric Patients with Lower Limb Spasticity, Excluding Spasticity Caused by Cerebral Palsy
DUBLIN, Oct. 24, 2019 /PRNewswire/ -- Allergan plc (NYSE: AGN) today announced that the U.S. Food and Drug Administration (FDA) approved the company's supplemental Biologics License Application (sBLA) for Botox for the treatment of pediatric... (Source: Drugs.com - New Drug Approvals)
Source: Drugs.com - New Drug Approvals - October 25, 2019 Category: Drugs & Pharmacology Source Type: news

FDA Approves Botox for Lower-Limb Spasticity in Children FDA Approves Botox for Lower-Limb Spasticity in Children
The FDA has approved Botox to ease lower-limb spasticity in children and adolescents aged 2 to 17 years, excluding spasticity caused by cerebral palsy.FDA Approvals (Source: Medscape Neurology and Neurosurgery Headlines)
Source: Medscape Neurology and Neurosurgery Headlines - October 24, 2019 Category: Neurology Tags: Neurology & Neurosurgery News Alert Source Type: news