Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure < em > Advance QoL < /em >
Curr Oncol. 2024 Apr 19;31(4):2289-2304. doi: 10.3390/curroncol31040170.ABSTRACTA recent measure was developed to assess the Quality of Life (QoL) of young people with advanced cancer and is available for parents and professionals (Advance QoL). The present study aimed to elaborate self-reported versions for children and adolescents with advanced cancer. We adopted a four-phase research plan: (1) to elaborate the Advance QoL questionnaire for youth (8-12 and 13-18 years old) with a team of young research partners; (2) to evaluate the understandability of these versions in a sample of 12 young patients from the target popul...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Lye-Ann Robichaud Julie Felipe Michel Duval Bruno Michon Marianne Olivier-D'Avignon S ébastien Perreault Mathias Tyo-Gomez Marc-Antoine Marquis Serge Sultan Source Type: research
An Evaluation of Racial and Ethnic Representation in Research Conducted with Young Adults Diagnosed with Cancer: Challenges and Considerations for Building More Equitable and Inclusive Research Practices
Curr Oncol. 2024 Apr 15;31(4):2244-2259. doi: 10.3390/curroncol31040166.ABSTRACTThe psychosocial outcomes of adolescents and young adults (AYAs) diagnosed with cancer are poorer compared to their peers without cancer. However, AYAs with cancer from diverse racial and ethnic groups have been under-represented in research, which contributes to an incomplete understanding of the psychosocial outcomes of all AYAs with cancer. This paper evaluated the racial and ethnic representation in research on AYAs diagnosed with cancer using observational, cross-sectional data from the large Young Adults with Cancer in Their Prime (YACPRI...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Sharon H J Hou Anika Petrella Joshua Tulk Amanda Wurz Catherine M Sabiston Jackie Bender Norma D'Agostino Karine Chalifour Geoff Eaton Sheila N Garland Fiona S M Schulte Source Type: research
Meaningful Patient Engagement in Adolescent and Young Adult (AYA) Cancer Research: A Framework for Qualitative Studies
Curr Oncol. 2024 Mar 22;31(4):1689-1700. doi: 10.3390/curroncol31040128.ABSTRACTOver the last two decades, patient engagement in cancer research has evolved significantly, especially in addressing the unique challenges faced by adolescent and young adult (AYA) cancer populations. This paper introduces a framework for meaningful engagement with AYA cancer patient research partners, drawing insights from the "FUTURE" Study, a qualitative study that utilizes focus groups to explore the impact of cancer diagnosis and treatment on the sexual and reproductive health of AYA cancer patients in Canada. The framework's development i...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Niki Oveisi Vicki Cheng Dani Taylor Haydn Bechthold Mikaela Barnes Norman Jansen Helen McTaggart-Cowan Lori A Brotto Stuart Peacock Gillian E Hanley Sharlene Gill Meera Rayar Amirrtha Srikanthan Mary A De Vera Source Type: research
Sex-specificity in Surgical Stages of Lung Cancer in Young Adults
CONCLUSION: Our study identified sex differences in the incidence and mortality rates for surgical lung cancers in young adults, but the biological and endocrine mechanisms implicated in these disparities have not yet been determined.PMID:38660429 | PMC:PMC11041390 | DOI:10.2174/18743064-v17-230818-2022-20 (Source: Open Respiratory Medicine Journal)
Source: Open Respiratory Medicine Journal - April 25, 2024 Category: Respiratory Medicine Authors: Mahdi Abdennadher Mariem Hadj Dahmane Sarra Zair Hazem Zribi Amina Abdelkbir Imen Bouassida Mouna Mlika Imen Sahnoun Amani Ben Mansour Adel Marghli Source Type: research
Toward identification and intervention to address financial toxicity and unmet health ‐related social needs among adolescents and emerging adults with cancer and their caregivers: A cross‐cultural perspective
ConclusionYounger AYAs and their caregivers experience significant financial challenges and unmet health-related social needs during cancer treatment and often rely on key supports to alleviate these unmet needs. When developing interventions to mitigate financial toxicity, clinicians and health systems should prioritize clear, consistent, and tailorable approaches to support younger AYA cancer survivors and their families. (Source: Cancer Medicine)
Source: Cancer Medicine - April 25, 2024 Category: Cancer & Oncology Authors: Melissa P. Beauchemin,
Samrawit Solomon,
Claudia L. Michaels,
Kathryn McHenry,
Eleanor Turi,
Rhea Khurana,
Gabriella Sanabria Tags: RESEARCH ARTICLE Source Type: research
Cancers, Vol. 16, Pages 1644: Diffuse Gliomas with FGFR3::TACC3 Fusion: Morphological and Molecular Features and Classification Challenges
In conclusion, diffuse gliomas with FGFR3::TACC3 fusion do not constitute a distinct nosological entity, owing to their genetic and epigenetic diversity. Further studies are warranted to clarify the biological aggressiveness of tumors with low-grade histology to refine the grading and determine the optimal treatment strategy. (Source: Cancers)
Source: Cancers - April 25, 2024 Category: Cancer & Oncology Authors: Elena Marastoni Davide Mulone Valeria Barresi Tags: Review Source Type: research
Pursuance of a Yoruba name for cervical cancer in Southwest Nigeria: a case study
CONCLUSIONS: There was no consensus Yoruba name for cervical cancer among the study participants. Efforts to educate the Yoruba speaking populace about cervical cancer, its prevention, management and participation in its research can be frustrated if a generally accepted Yoruba name is not provided for this cancer. Stakeholders' collaboration is required to get an appropriate Yoruba name for cervical cancer.PMID:38658005 | DOI:10.1136/bmjopen-2023-074020 (Source: Cancer Control)
Source: Cancer Control - April 24, 2024 Category: Cancer & Oncology Authors: Folusho Mubowale Balogun Olayemi Omotade Source Type: research
New | phs002431.v1.p1 | Childhood Cancer Data Initiative (CCDI): Enhancement of Data Sharing in Pediatric, Adolescent and Young Adult Cancers
Childhood Cancer Data Initiative (CCDI): Enhancement of Data Sharing in Pediatric, Adolescent and Young Adult Cancers (study page |release notes) (Source: dbGaP, the database of Genotypes and Phenotypes)
Source: dbGaP, the database of Genotypes and Phenotypes - April 23, 2024 Category: Genetics & Stem Cells Tags: StudyRelease Source Type: research
Characteristics of radiotherapy for adolescents and young adults
This article reviews the characteristics to be taken into account in adolescent and young adult patients radiotherapy and more particularly in some of the most common diseases.PMID:38652674 | DOI:10.1016/j.canrad.2023.08.002 (Source: Cancer Radiotherapie)
Source: Cancer Radiotherapie - April 23, 2024 Category: Cancer & Oncology Authors: L Ollivier A Laprie E Jouglar L Claude V Martin X Muracciole L Padovani S Supiot A Escande Source Type: research
Fulfilling the Role of a Parent While Undergoing Treatment for Cancer: A Review of the Literature and the Potential Impact of Childcare Support on Cancer Outcomes
Am J Clin Oncol. 2024 Apr 23. doi: 10.1097/COC.0000000000001102. Online ahead of print.ABSTRACTBreast cancer is the most prevalent malignancy among adolescents and young adults (AYAs). Despite the efficacy of chemotherapy, AYA patients contend with psychosocial challenges, including psychological distress and financial toxicity, exacerbated further by those with dependent children. Parenting responsibilities intersect with cancer care, impacting both family dynamics and treatment adherence. Despite recognized needs, however, the impact of parenting concerns or even parenting status and the presence of dependents has not be...
Source: Clinical Breast Cancer - April 23, 2024 Category: Cancer & Oncology Authors: Kang Woo Kim Mary Lopresti Stephanie L Graff Sabrina Witherby Don S Dizon Mary Anne Fenton Source Type: research
Fulfilling the Role of a Parent While Undergoing Treatment for Cancer: A Review of the Literature and the Potential Impact of Childcare Support on Cancer Outcomes
Am J Clin Oncol. 2024 Apr 23. doi: 10.1097/COC.0000000000001102. Online ahead of print.ABSTRACTBreast cancer is the most prevalent malignancy among adolescents and young adults (AYAs). Despite the efficacy of chemotherapy, AYA patients contend with psychosocial challenges, including psychological distress and financial toxicity, exacerbated further by those with dependent children. Parenting responsibilities intersect with cancer care, impacting both family dynamics and treatment adherence. Despite recognized needs, however, the impact of parenting concerns or even parenting status and the presence of dependents has not be...
Source: Clinical Genitourinary Cancer - April 23, 2024 Category: Cancer & Oncology Authors: Kang Woo Kim Mary Lopresti Stephanie L Graff Sabrina Witherby Don S Dizon Mary Anne Fenton Source Type: research
The Effect of Happiness Educational Program of Fordyce on the Sense of Coherence and Psychological Well-being of Adolescents with a Parent with Cancer: A Randomized Clinical Trial
CONCLUSION: Although the Happiness Educational Program of Fordyce could improve the sense of coherence and psychological well-being of adolescents who have a parent with cancer, more investigations are recommended to be conducted.Trial Registration Number: IRCT20210331050795N1.PMID:38650955 | PMC:PMC11032422 | DOI:10.30476/IJCBNM.2024.100406.2359 (Source: Cancer Control)
Source: Cancer Control - April 23, 2024 Category: Cancer & Oncology Authors: Razieh Forutannasab Zohreh Karimi Mohammad Zoladl Ardashir Afrasiabifar Source Type: research
Characteristics of radiotherapy for adolescents and young adults
This article reviews the characteristics to be taken into account in adolescent and young adult patients radiotherapy and more particularly in some of the most common diseases.PMID:38652674 | DOI:10.1016/j.canrad.2023.08.002 (Source: Cancer Radiotherapie)
Source: Cancer Radiotherapie - April 23, 2024 Category: Cancer & Oncology Authors: L Ollivier A Laprie E Jouglar L Claude V Martin X Muracciole L Padovani S Supiot A Escande Source Type: research
Fulfilling the Role of a Parent While Undergoing Treatment for Cancer: A Review of the Literature and the Potential Impact of Childcare Support on Cancer Outcomes
Am J Clin Oncol. 2024 Apr 23. doi: 10.1097/COC.0000000000001102. Online ahead of print.ABSTRACTBreast cancer is the most prevalent malignancy among adolescents and young adults (AYAs). Despite the efficacy of chemotherapy, AYA patients contend with psychosocial challenges, including psychological distress and financial toxicity, exacerbated further by those with dependent children. Parenting responsibilities intersect with cancer care, impacting both family dynamics and treatment adherence. Despite recognized needs, however, the impact of parenting concerns or even parenting status and the presence of dependents has not be...
Source: Clinical Breast Cancer - April 23, 2024 Category: Cancer & Oncology Authors: Kang Woo Kim Mary Lopresti Stephanie L Graff Sabrina Witherby Don S Dizon Mary Anne Fenton Source Type: research
Incidence and prevalence of musculoskeletal health conditions in survivors of childhood and adolescent cancers: A report from the Swiss childhood cancer survivor study
ConclusionMSHCs are prevalent in survivors, the risk is increasing in younger survivor cohorts, and MSHCs usually occur in multimorbid survivors. Strengthening of rehabilitation services and appropriate referrals are needed to mitigate the effects of the cancer and cancer treatment. (Source: Cancer Medicine)
Source: Cancer Medicine - April 23, 2024 Category: Cancer & Oncology Authors: Salome Christen,
Katharina Roser,
Luzius Mader,
Maria Otth,
Katrin Scheinemann,
Grit Sommer,
Claudia Kuehni,
Gisela Michel Tags: RESEARCH ARTICLE Source Type: research
