Meaningful Patient Engagement in Adolescent and Young Adult (AYA) Cancer Research: A Framework for Qualitative Studies
Curr Oncol. 2024 Mar 22;31(4):1689-1700. doi: 10.3390/curroncol31040128.ABSTRACTOver the last two decades, patient engagement in cancer research has evolved significantly, especially in addressing the unique challenges faced by adolescent and young adult (AYA) cancer populations. This paper introduces a framework for meaningful engagement with AYA cancer patient research partners, drawing insights from the "FUTURE" Study, a qualitative study that utilizes focus groups to explore the impact of cancer diagnosis and treatment on the sexual and reproductive health of AYA cancer patients in Canada. The framework's development i...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Niki Oveisi Vicki Cheng Dani Taylor Haydn Bechthold Mikaela Barnes Norman Jansen Helen McTaggart-Cowan Lori A Brotto Stuart Peacock Gillian E Hanley Sharlene Gill Meera Rayar Amirrtha Srikanthan Mary A De Vera Source Type: research
An Evaluation of Racial and Ethnic Representation in Research Conducted with Young Adults Diagnosed with Cancer: Challenges and Considerations for Building More Equitable and Inclusive Research Practices
Curr Oncol. 2024 Apr 15;31(4):2244-2259. doi: 10.3390/curroncol31040166.ABSTRACTThe psychosocial outcomes of adolescents and young adults (AYAs) diagnosed with cancer are poorer compared to their peers without cancer. However, AYAs with cancer from diverse racial and ethnic groups have been under-represented in research, which contributes to an incomplete understanding of the psychosocial outcomes of all AYAs with cancer. This paper evaluated the racial and ethnic representation in research on AYAs diagnosed with cancer using observational, cross-sectional data from the large Young Adults with Cancer in Their Prime (YACPRI...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Sharon H J Hou Anika Petrella Joshua Tulk Amanda Wurz Catherine M Sabiston Jackie Bender Norma D'Agostino Karine Chalifour Geoff Eaton Sheila N Garland Fiona S M Schulte Source Type: research
Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure < em > Advance QoL < /em >
Curr Oncol. 2024 Apr 19;31(4):2289-2304. doi: 10.3390/curroncol31040170.ABSTRACTA recent measure was developed to assess the Quality of Life (QoL) of young people with advanced cancer and is available for parents and professionals (Advance QoL). The present study aimed to elaborate self-reported versions for children and adolescents with advanced cancer. We adopted a four-phase research plan: (1) to elaborate the Advance QoL questionnaire for youth (8-12 and 13-18 years old) with a team of young research partners; (2) to evaluate the understandability of these versions in a sample of 12 young patients from the target popul...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Lye-Ann Robichaud Julie Felipe Michel Duval Bruno Michon Marianne Olivier-D'Avignon S ébastien Perreault Mathias Tyo-Gomez Marc-Antoine Marquis Serge Sultan Source Type: research
Human papillomavirus infection: Epidemiology, biology, host interactions, cancer development, prevention, and therapeutics
This study aimed to carry out a literature review considering several aspects involving HPV infection: Global distribution, prevalence, biology, host interactions, cancer development, prevention, therapeutics, coinfection with other viruses, coinfection with bacteria, association with head and neck squamous cell carcinomas, and association with anal cancer.PMID:38666757 | DOI:10.1002/rmv.2537 (Source: Cancer Control)
Source: Cancer Control - April 26, 2024 Category: Cancer & Oncology Authors: Jonas Wolf Lucas Felipe Kist Samanta Brangel Pereira Marilze Alves Quessada Helena Petek Arthur Pille Ju çara Gasparetto Maccari Mohamed Parrini Mutlaq Luiz Antonio Nasi Source Type: research
An Evaluation of Racial and Ethnic Representation in Research Conducted with Young Adults Diagnosed with Cancer: Challenges and Considerations for Building More Equitable and Inclusive Research Practices
Curr Oncol. 2024 Apr 15;31(4):2244-2259. doi: 10.3390/curroncol31040166.ABSTRACTThe psychosocial outcomes of adolescents and young adults (AYAs) diagnosed with cancer are poorer compared to their peers without cancer. However, AYAs with cancer from diverse racial and ethnic groups have been under-represented in research, which contributes to an incomplete understanding of the psychosocial outcomes of all AYAs with cancer. This paper evaluated the racial and ethnic representation in research on AYAs diagnosed with cancer using observational, cross-sectional data from the large Young Adults with Cancer in Their Prime (YACPRI...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Sharon H J Hou Anika Petrella Joshua Tulk Amanda Wurz Catherine M Sabiston Jackie Bender Norma D'Agostino Karine Chalifour Geoff Eaton Sheila N Garland Fiona S M Schulte Source Type: research
Meaningful Patient Engagement in Adolescent and Young Adult (AYA) Cancer Research: A Framework for Qualitative Studies
Curr Oncol. 2024 Mar 22;31(4):1689-1700. doi: 10.3390/curroncol31040128.ABSTRACTOver the last two decades, patient engagement in cancer research has evolved significantly, especially in addressing the unique challenges faced by adolescent and young adult (AYA) cancer populations. This paper introduces a framework for meaningful engagement with AYA cancer patient research partners, drawing insights from the "FUTURE" Study, a qualitative study that utilizes focus groups to explore the impact of cancer diagnosis and treatment on the sexual and reproductive health of AYA cancer patients in Canada. The framework's development i...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Niki Oveisi Vicki Cheng Dani Taylor Haydn Bechthold Mikaela Barnes Norman Jansen Helen McTaggart-Cowan Lori A Brotto Stuart Peacock Gillian E Hanley Sharlene Gill Meera Rayar Amirrtha Srikanthan Mary A De Vera Source Type: research
Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure < em > Advance QoL < /em >
Curr Oncol. 2024 Apr 19;31(4):2289-2304. doi: 10.3390/curroncol31040170.ABSTRACTA recent measure was developed to assess the Quality of Life (QoL) of young people with advanced cancer and is available for parents and professionals (Advance QoL). The present study aimed to elaborate self-reported versions for children and adolescents with advanced cancer. We adopted a four-phase research plan: (1) to elaborate the Advance QoL questionnaire for youth (8-12 and 13-18 years old) with a team of young research partners; (2) to evaluate the understandability of these versions in a sample of 12 young patients from the target popul...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Lye-Ann Robichaud Julie Felipe Michel Duval Bruno Michon Marianne Olivier-D'Avignon S ébastien Perreault Mathias Tyo-Gomez Marc-Antoine Marquis Serge Sultan Source Type: research
Chemotherapy-induced nausea and vomiting in pediatric oncology patients: 2023 recommendations from the Supportive Care Committee of the French Society of Cancer in Children and Adolescents
Bull Cancer. 2024 Apr 25:S0007-4551(24)00123-1. doi: 10.1016/j.bulcan.2024.02.017. Online ahead of print.ABSTRACTChemotherapy-induced nausea and vomiting (CINV) are frequent and dreaded side effects in cancer treatments. CINV has a major impact on patient's condition and quality of life. Prophylaxis is tailored to patient's profile and the emetogenic level of their chemotherapy. The aim of this study is to update the recommendations for CINV prevention and management in pediatric onco-hematology for use in France, by adapting the guidelines of the Pediatric Oncology Group of Ontario (POGO). Clinical practice guideline adap...
Source: Bulletin du Cancer - April 26, 2024 Category: Cancer & Oncology Authors: Marie Charlotte Renaux Torres S éverine Bouttefroy Ma ïna Letort-Bertrand V éronique Maurel Samia Mouffak Florian Scott é Florian Slimano Pauline Treguier L Lee Dupuis Marilyne Poir ée Sandrine Thouvenin-Doulet Source Type: research
Investigating the safety and feasibility of osteopathic manipulative medicine in hospitalized children and adolescent young adults with cancer
CONCLUSIONS: Hospitalized children and AYAs with cancer received OMT safely with decreased pain in their reported somatic dysfunction(s). These findings support further investigation into the safety, feasibility, and efficacy of implementing OMT in the pediatric oncology inpatient setting and to a broader inpatient pediatric oncology population.PMID:38669608 | DOI:10.1515/jom-2024-0013 (Source: Pain Physician)
Source: Pain Physician - April 26, 2024 Category: Anesthesiology Authors: Jennifer A Belsky Amber M Brown Source Type: research
Meaningful Patient Engagement in Adolescent and Young Adult (AYA) Cancer Research: A Framework for Qualitative Studies
Curr Oncol. 2024 Mar 22;31(4):1689-1700. doi: 10.3390/curroncol31040128.ABSTRACTOver the last two decades, patient engagement in cancer research has evolved significantly, especially in addressing the unique challenges faced by adolescent and young adult (AYA) cancer populations. This paper introduces a framework for meaningful engagement with AYA cancer patient research partners, drawing insights from the "FUTURE" Study, a qualitative study that utilizes focus groups to explore the impact of cancer diagnosis and treatment on the sexual and reproductive health of AYA cancer patients in Canada. The framework's development i...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Niki Oveisi Vicki Cheng Dani Taylor Haydn Bechthold Mikaela Barnes Norman Jansen Helen McTaggart-Cowan Lori A Brotto Stuart Peacock Gillian E Hanley Sharlene Gill Meera Rayar Amirrtha Srikanthan Mary A De Vera Source Type: research
An Evaluation of Racial and Ethnic Representation in Research Conducted with Young Adults Diagnosed with Cancer: Challenges and Considerations for Building More Equitable and Inclusive Research Practices
Curr Oncol. 2024 Apr 15;31(4):2244-2259. doi: 10.3390/curroncol31040166.ABSTRACTThe psychosocial outcomes of adolescents and young adults (AYAs) diagnosed with cancer are poorer compared to their peers without cancer. However, AYAs with cancer from diverse racial and ethnic groups have been under-represented in research, which contributes to an incomplete understanding of the psychosocial outcomes of all AYAs with cancer. This paper evaluated the racial and ethnic representation in research on AYAs diagnosed with cancer using observational, cross-sectional data from the large Young Adults with Cancer in Their Prime (YACPRI...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Sharon H J Hou Anika Petrella Joshua Tulk Amanda Wurz Catherine M Sabiston Jackie Bender Norma D'Agostino Karine Chalifour Geoff Eaton Sheila N Garland Fiona S M Schulte Source Type: research
Chemotherapy-induced nausea and vomiting in pediatric oncology patients: 2023 recommendations from the Supportive Care Committee of the French Society of Cancer in Children and Adolescents
Bull Cancer. 2024 Apr 25:S0007-4551(24)00123-1. doi: 10.1016/j.bulcan.2024.02.017. Online ahead of print.ABSTRACTChemotherapy-induced nausea and vomiting (CINV) are frequent and dreaded side effects in cancer treatments. CINV has a major impact on patient's condition and quality of life. Prophylaxis is tailored to patient's profile and the emetogenic level of their chemotherapy. The aim of this study is to update the recommendations for CINV prevention and management in pediatric onco-hematology for use in France, by adapting the guidelines of the Pediatric Oncology Group of Ontario (POGO). Clinical practice guideline adap...
Source: Bulletin du Cancer - April 26, 2024 Category: Cancer & Oncology Authors: Marie Charlotte Renaux Torres S éverine Bouttefroy Ma ïna Letort-Bertrand V éronique Maurel Samia Mouffak Florian Scott é Florian Slimano Pauline Treguier L Lee Dupuis Marilyne Poir ée Sandrine Thouvenin-Doulet Source Type: research
Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure < em > Advance QoL < /em >
Curr Oncol. 2024 Apr 19;31(4):2289-2304. doi: 10.3390/curroncol31040170.ABSTRACTA recent measure was developed to assess the Quality of Life (QoL) of young people with advanced cancer and is available for parents and professionals (Advance QoL). The present study aimed to elaborate self-reported versions for children and adolescents with advanced cancer. We adopted a four-phase research plan: (1) to elaborate the Advance QoL questionnaire for youth (8-12 and 13-18 years old) with a team of young research partners; (2) to evaluate the understandability of these versions in a sample of 12 young patients from the target popul...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Lye-Ann Robichaud Julie Felipe Michel Duval Bruno Michon Marianne Olivier-D'Avignon S ébastien Perreault Mathias Tyo-Gomez Marc-Antoine Marquis Serge Sultan Source Type: research
Meaningful Patient Engagement in Adolescent and Young Adult (AYA) Cancer Research: A Framework for Qualitative Studies
Curr Oncol. 2024 Mar 22;31(4):1689-1700. doi: 10.3390/curroncol31040128.ABSTRACTOver the last two decades, patient engagement in cancer research has evolved significantly, especially in addressing the unique challenges faced by adolescent and young adult (AYA) cancer populations. This paper introduces a framework for meaningful engagement with AYA cancer patient research partners, drawing insights from the "FUTURE" Study, a qualitative study that utilizes focus groups to explore the impact of cancer diagnosis and treatment on the sexual and reproductive health of AYA cancer patients in Canada. The framework's development i...
Source: Current Oncology - April 26, 2024 Category: Cancer & Oncology Authors: Niki Oveisi Vicki Cheng Dani Taylor Haydn Bechthold Mikaela Barnes Norman Jansen Helen McTaggart-Cowan Lori A Brotto Stuart Peacock Gillian E Hanley Sharlene Gill Meera Rayar Amirrtha Srikanthan Mary A De Vera Source Type: research
