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The many adventures of Wesley: Specialty care helps toddler with heart disease reach neurodevelopmental milestones

Will and Alicia Ethridge knew their unborn son would need complex open-heart surgery soon after birth, due to a serious congenital defect that was detected in utero. Wesley suffered from a genetic form of cardiomyopathy, which meant the walls of his heart muscles were thickened, and blood flow to the left side of his body was restricted. The knowledge about their son’s disease prepared them for many things about the impending medical journey (including arranging for cardiac surgery at the Boston Children’s Hospital Heart Center, just a few hours’ drive from their home in Maine) but there were many more things about the months to come that they did not expect. Immediately after birth in October 2013, baby Wesley was transferred to the (CICU) at Boston Children’s. His case quickly became more complicated than anyone had anticipated. After Wesley’s initial surgery, he had five more, all before his second birthday. In February 2015, he fell critically ill and was listed for heart transplant. He received a new heart that May. While supporting their son through his various medical trials, Alicia and Will were simultaneously concerned about his neurological development. “There were very obvious delays right away,” says Alicia. Wesley was intubated during his first few weeks of life in the hospital, so he struggled with feeding for a while. Due to tightened muscles called contractures, he couldn’t raise his arms above his head, and...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Our Patients’ Stories Cardiac Neurodevelopmental Program Dr. Caitlin Rollins Dr. Samantha Butler Heart Center Source Type: news

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Source: BMJ Comments - Category: General Medicine Source Type: forums
Clostridium difficile infection (CDI) represents one of the most common healthcare-associated infections. Due to increasing numbers of recurrences and therapy failures, CDI has become a major disease burden. Studies have shown that fecal microbiota transplantation (FMT) can both be a safe and highly efficacious therapy for patients with therapy-refractory CDI. However, patients undergoing solid organ transplantation are at high risk for CDI due to long-term immunosuppression, previous antibiotic therapy, and proton pump inhibitor use. Additionally, these patients may be especially prone to adverse events related to FMT. He...
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Source: the Mail online | Health - Category: Consumer Health News Source Type: news
Paragonix Technologies, based in Braintree, Massachusetts, won European approval to introduce its SherpaPak and SherpaPerfusion cardiac transport systems. The devices are intended for maintaining hearts while they’re being transported from...
Source: Medgadget - Category: Medical Devices Authors: Tags: Cardiac Surgery Source Type: blogs
Conclusions Primary ovarian NET is rare and likely underrepresented in the literature. It can no longer be simply dismissed as a generally benign entity and may present with both the carcinoid syndrome and carcinoid heart disease. It requires careful evaluation and long-term review.
Source: International Journal of Gynecological Cancer - Category: Cancer & Oncology Tags: Ovarian Cancer Source Type: research
DiscussionOur finding that traits of ADHD were slightly associated with anesthesia in a genetically sensitive design is in need of replication and warrants further investigation. Future studies should aim to elucidate mechanisms behind this possible association (e.g. anesthetics doses, age at exposure, exposure duration).
Source: Journal of Child Psychology and Psychiatry - Category: Psychiatry Authors: Tags: Original Article Source Type: research
Almost 30% of women who had a heart attack in a new study sought medical care for related symptoms before they ever went to the hospital — but more than half of their doctors didn’t think their ailments were heart-related. The reason why so many women are falling through the cracks may have to do with the variety of heart-attack symptoms that women experience, according to the paper published in the journal Circulation. Researchers from the Yale School of Public Health interviewed almost 3,000 heart attack patients younger than 55 — two-thirds of them female — about their symptoms, when they sought ...
Source: TIME: Health - Category: Consumer Health News Authors: Tags: Uncategorized healthytime heart attacks Heart Disease medicine onetime Research Source Type: news
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Source: Health News from Medical News Today - Category: Consumer Health News Tags: Heart Disease Source Type: news
Paragonix Technologies said today it won CE Mark approval in the European Union for its SherpaPak and SherpaPerfusion cardiac transport systems. The SherpaPak system consists of a single-use, disposable device designed for the hypothermic static preservation and transportation of the donor hearts, while the SherpaPerfusion system is a single-use, disposable device designed for hypothermic oxygenated perfusion preservation and transport of donor hearts. “Having followed the extensive research and product development activities at Paragonix Technologies over the past few years, I am impressed by the intuitive designs o...
Source: Mass Device - Category: Medical Devices Authors: Tags: Cardiovascular Regulatory/Compliance Surgical Transplants Paragonix Technologies Source Type: news
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Source: American Journal of Transplantation - Category: Transplant Surgery Authors: Tags: Original Article Source Type: research
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