The many adventures of Wesley: Specialty care helps toddler with heart disease reach neurodevelopmental milestones

Will and Alicia Ethridge knew their unborn son would need complex open-heart surgery soon after birth, due to a serious congenital defect that was detected in utero. Wesley suffered from a genetic form of cardiomyopathy, which meant the walls of his heart muscles were thickened, and blood flow to the left side of his body was restricted. The knowledge about their son’s disease prepared them for many things about the impending medical journey (including arranging for cardiac surgery at the Boston Children’s Hospital Heart Center, just a few hours’ drive from their home in Maine) but there were many more things about the months to come that they did not expect. Immediately after birth in October 2013, baby Wesley was transferred to the (CICU) at Boston Children’s. His case quickly became more complicated than anyone had anticipated. After Wesley’s initial surgery, he had five more, all before his second birthday. In February 2015, he fell critically ill and was listed for heart transplant. He received a new heart that May. While supporting their son through his various medical trials, Alicia and Will were simultaneously concerned about his neurological development. “There were very obvious delays right away,” says Alicia. Wesley was intubated during his first few weeks of life in the hospital, so he struggled with feeding for a while. Due to tightened muscles called contractures, he couldn’t raise his arms above his head, and...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Our Patients’ Stories Cardiac Neurodevelopmental Program Dr. Caitlin Rollins Dr. Samantha Butler Heart Center Source Type: news

Related Links:

A Houston hospital is replacing the surgical director of its renowned heart transplant programs with two veteran transplant surgeons and a veteran transplant program executive
Source: ABC News: Health - Category: Consumer Health News Tags: Health Source Type: news
A Houston hospital is replacing the surgical director of its renowned heart transplant programs with two veteran transplant surgeons and a veteran transplant program executive
Source: ABC News: Health - Category: Consumer Health News Tags: Health Source Type: news
In this study, the most fit individuals did the best,” said Metzl, who was not involved in the study. “Once cleared by their physicians, patients shouldn’t be afraid of exercise intensity.” The benefits of exercise were seen across all ages and in both men and women, “probably a little more pronounced in females,” Jaber said. “Whether you’re in your 40s or your 80s, you will benefit in the same way.” The risks, he said, became more shocking when comparing those who don’t exercise much. “We all know that a sedentary lifestyle or being unfit has some risk. But...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - Category: Consumer Health News Authors: Tags: Health News Exercise Local TV Source Type: news
(Reuters Health) - Playing golf is associated with better strength and balance, a sharper mind, a lower risk of heart disease and a longer life, according to public health experts who say more people should take up the sport.
Source: Reuters: Health - Category: Consumer Health News Tags: healthNews Source Type: news
Publication date: Available online 18 October 2018Source: IDCasesAuthor(s): Miriams Teresita Castro-Lainez, Miguel Sierra-Hoffman, Victoria Valladares, Tywaun Tillman, Oscar A. Iznaloa-Esquivel, Alan Howell, Robert Fader, Richard Winn, Chetan JinadathaAbstractTreatment of enterococcal endocarditis in patients with history of renal transplantation is complicated. Treatment failure and/or drug toxicities are not uncommon. Treatment with ampicillin and daptomycin in a renal transplant patient has been rarely reported. Here we report a patient who was successfully treated with this novel combination.
Source: IDCases - Category: Infectious Diseases Source Type: research
The U.S. Department of Education has named special educator Laurie VanderPloeg as the new director for the Office of Special Education Programs (OSEP). According to the announcement, VanderPloeg has nearly four decades of experience working in special education. She taught middle and high school for 15 years, then moved into administration. VanderPloeg leaves her most recent role as director of special education for the Kent Intermediate School District—an organization operating as an intermediary between local districts and the state—in western Michigan to become the new OSEP director. A school-based SLP cont...
Source: American Speech-Language-Hearing Association (ASHA) Press Releases - Category: Speech-Language Pathology Authors: Tags: Advocacy Audiology News Schools Slider Speech-Language Pathology Source Type: blogs
We report a case of a 50-year-old renal transplant female admitted with fever and malaise 3 months post-transplant and presenting anemia, fever, hypertriglyceridemia, high levels of serum ferritin, and positive CMV antigenemia. Urine was positive for decoy cells and BKV-DNA. Graft biopsy showed CMV nephritis. Both blood and urine cultures where positive for E. coli. Hemophagocytosis was confirmed by bone marrow aspiration. Immunosuppression was reduced, and the patient received high-dose intravenous immunoglobulin and dexamethasone, with complete response after 3 weeks. We highlight the importance of early diagnosis and pr...
Source: Jornal Brasileiro de Nefrologia - Category: Urology & Nephrology Tags: J Bras Nefrol Source Type: research
In this study, a feasible protocol for robust hematopoiesis has been elaborated. We achieved a significant increase of the teratoma-derived hematopoietic population when teratomas were generated in the NSGS mouse, which provides human cytokines, together with co-injection of human umbilical vein endothelial cells. Since little is known about hematopoiesis in teratomas, we addressed localization and clonality of the hematopoietic lineage. Our results indicate that early human hematopoiesis is closely reflected in teratoma formation, and thus highlight the value of this model.Graphical Abstract
Source: Stem Cell Reports - Category: Stem Cells Source Type: research
This study provides a therapeutic strategy for targeting asthma inflammation.Graphical Abstract
Source: Stem Cell Reports - Category: Stem Cells Source Type: research
(Reuters Health) - Hispanics in the U.S. have lower rates of death from heart disease overall than non-Hispanic whites, except in communities where Hispanics make up most of the population, a recent study finds.
Source: Reuters: Health - Category: Consumer Health News Tags: healthNews Source Type: news
More News: ADHD | Babies | Babies Heart Conditions | Blogging | Brain | Cardiology | Cardiomyopathy | Child Development | Children | Genetics | Heart | Heart Disease | Heart Transplant | Hospitals | Learning | Music Therapy | Neurology | Neurosurgery | Nutrition | Occupational Health | Occupational Therapy | Pediatrics | Physical Therapy | Psychology | Speech Therapy | Speech-Language Pathology | Transplant Surgery | Transplants | Universities & Medical Training