The $2m drug reveals medical research as a casino culture | Kenan Malik
Does Zolgensma, a revolutionary one-off treatment for spinal muscular atrophy, really need to cost so much?How much is a life worth? $2.15m? That ’s thestaggering price of a drug produced by the pharmaceutical giant Novartis that has just come on the market. Zolgensma is a one-off gene therapy treatment for spinal muscular atrophy (SMA), a rare degenerative disorder. Infants with the most severe form usually die within two years. For parents of babies born with SMA, any price is worth paying to save the child ’s life. Novartis argues that spread across a lifetime, $2.15m is “cost-effective”.It point...
Source: Guardian Unlimited Science - May 26, 2019 Category: Science Authors: Kenan Malik Tags: Novartis Pharmaceuticals industry NHS Medical research Science Health Society Business UK news Source Type: news

$2.1m Novartis gene therapy to become world's most expensive drug
US approves the one-time treatment for deadly spinal muscular atrophy in infantsSwiss drugmaker Novartis has received US approval for itsspinal muscular atrophy gene therapy Zolgensma – pricing the one-time treatment at a record $2.125m.The Food and Drug Administration on Friday approved Zolgensma for children under the age of two with SMA, including those not yet showing symptoms. The approval covers babies with the deadliest form of the inherited disease as well as those with types where debilitating symptoms may set in later.Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - May 25, 2019 Category: Science Authors: Reuters Tags: Drugs Health Science Pharmaceuticals industry Business Novartis Source Type: news

At $2M, priciest medicine ever treats fatal disease in babies
The newly approved treatment targets defective gene that weakens a child's muscles so quickly they're unable to move (Source: Health News: CBSNews.com)
Source: Health News: CBSNews.com - May 25, 2019 Category: Consumer Health News Source Type: news

This New Treatment Could Save the Lives of Babies. But It Costs $2.1 Million.
The price set by the Swiss drugmaker Novartis may be the world ’s highest for a single treatment — prompting renewed debate about how society will pay for gene-therapy breakthroughs. (Source: NYT Health)
Source: NYT Health - May 25, 2019 Category: Consumer Health News Authors: Katie Thomas Tags: Spinal Muscular Atrophy Novartis AG Drugs (Pharmaceuticals) Food and Drug Administration Health Insurance and Managed Care Genetic Engineering Gene Therapy Prices (Fares, Fees and Rates) Babies and Infants your-feed-healthcare Source Type: news

At $2M, priciest ever medicine treats fatal genetic disease
U.S. regulators have approved the most expensive medicine ever, a $2.125 million gene therapy meant to cure a disorder that rapidly destroys a baby's muscle control and kills most within a couple years (Source: ABC News: Health)
Source: ABC News: Health - May 24, 2019 Category: Consumer Health News Tags: Health Source Type: news

FDA approves $2.1M gene therapy for spinal muscular atrophy
The Food and Drug Administration on Friday approved a $2.125 million treatment for spinal muscular atrophy, a genetic illness known as muscle-wasting disease that kills many babies before they turn 2. (Source: Health News - UPI.com)
Source: Health News - UPI.com - May 24, 2019 Category: Consumer Health News Source Type: news

Novartis ’ Spinal Drug Gets FDA Approval, $2 Million Price Tag
(CNN) — The US Food and Drug Administration approved a treatment Friday for a genetic disease called spinal muscular atrophy that causes infants’ muscles to waste away, potentially killing them before age 2. And then came the price tag: $2.125 million for a one-time treatment. The gene therapy, called Zolgensma, will be marketed by AveXis, whose parent company is Novartis. “Today’s approval marks another milestone in the transformational power of gene and cell therapies to treat a wide range of diseases,” Dr. Ned Sharpless, the FDA’s acting commissioner, said in a statement Friday. &ldqu...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - May 24, 2019 Category: Consumer Health News Authors: Health – CBS Boston Tags: Health News CNN Novartis Source Type: news

Older People Are Contributing to Climate Change, and Suffering From It
Growing numbers of seniors are using more energy. They also are most likely to suffer in extreme weather, which has become more common as the planet warms. (Source: NYT Health)
Source: NYT Health - May 24, 2019 Category: Consumer Health News Authors: Paula Span Tags: Weather Global Warming Elderly Baby Boomers Polls and Public Opinion Energy Efficiency Volunteers and Community Service Air Conditioning Deaths (Fatalities) Harvard Medical School Pew Research Center Brown, Lisa (1972- ) New York C Source Type: news

Migraines in Pregnancy Tied to Worse Outcomes for Mother, Baby
FRIDAY, May 24, 2019 -- Migraines in pregnant women are associated with an increased risk for pregnancy-associated hypertension disorders as well as an increased risk for a variety of adverse outcomes in the newborn, according to a study published... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - May 24, 2019 Category: Pharmaceuticals Source Type: news

LGBT progressivism horrors: Parents to start physically maiming their own babies to slice off all "gender" organs in the name of progressivism and "equality"
(Natural News) If you wonder where “progressivism” is headed, look no further than the self-mutilation movement where LGBT followers physically maim their own bodies to become so-called “nullos” by cutting off their nipples and reproductive organs. The next escalation in this war on biology will, I predict, involve parents maiming their newborn infants by slicing... (Source: NaturalNews.com)
Source: NaturalNews.com - May 24, 2019 Category: Consumer Health News Source Type: news

Honest Co. video series targets pre-natal isolation
Jessica Alba ’s The Honest Co. was founded on the premise that new mothers would prefer natural product options for caring for their babies. Now the company is turning its focus towards the moms and their prenatal journey with a video series called “I Never Expected” created in partnership with Los Angel es media company ATTN. The 20-part series, hosted on The Honest Co. blog, follows the stories of five pregnant women, Gigi, Naomi, Kasey, Meghan and Jesyka. The expectant mothers are from… (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - May 24, 2019 Category: American Health Authors: Anne Stych Source Type: news

If you could learn every disease your child could possibly develop in life, would you?
(University of North Carolina Health Care) Adding genomic sequencing results to traditional newborn screening means a baby could potentially test positive for numerous conditions that might not develop within their lifetime. A UNC School of Medicine study proposed a method for how to responsibly determine which types of conditions to include in testing and potentially return to parents. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - May 24, 2019 Category: International Medicine & Public Health Source Type: news

Dr. Leonard Bailey, Who Gave a Baby a Baboon ’s Heart, Dies at 76
The case of Baby Fae, the recipient of Dr. Bailey ’s experimental transplant in 1984, generated worldwide headlines — along with criticism, demonstrations and threats. (Source: NYT Health)
Source: NYT Health - May 24, 2019 Category: Consumer Health News Authors: Denise Grady Tags: Bailey, Leonard L Surgery and Surgeons Transplants Heart Monkeys and Apes Loma Linda University Deaths (Obituaries) Source Type: news

New plea for MMR vaccination as cases rise
795 cases of mumps and 231 of measles in first quarter of 2019 Related items fromOnMedica Parental confidence in immunisation programme ‘very high’ Results from children ’s flu jab pilots ‘encouraging’ World ’s first malaria vaccine piloted in Malawi babies HPA warns of possible measles epidemic Vaccination of children could target flu best (Source: OnMedica Latest News)
Source: OnMedica Latest News - May 24, 2019 Category: UK Health Source Type: news

My Miscarriage Cured My Fear of Childbirth
It was a heartbreaking yet galvanizing preview of what the human body can endure — physically, emotionally and spiritually. (Source: NYT Health)
Source: NYT Health - May 23, 2019 Category: Consumer Health News Authors: Kristin Smith Sauchak Tags: your-feed-selfcare Pregnancy and Childbirth Miscarriages Families and Family Life Babies and Infants Source Type: news

Baby boys who are exposed to toxic air in the womb may have worse thinking skills
A study by the Barcelona Institute for Global Health analysed children's pollution exposure from the womb to age seven, finding that boys working memory was affected by high levels. (Source: the Mail online | Health)
Source: the Mail online | Health - May 23, 2019 Category: Consumer Health News Source Type: news

Murder of humans is MURDER – regardless of who the psychopaths use as the "scapegoat" – Blacks, Jews, or newborn babies
(Natural News) When slavery was prominent in America, some white people said that it wasn’t murder to kill a Black slave because they weren’t actually “people.” When Hitler and the Nazis started executing Jews during WWII, they claimed it wasn’t really murder because Jews “aren’t actually people,” instead they were regarded as less than human... (Source: NaturalNews.com)
Source: NaturalNews.com - May 23, 2019 Category: Consumer Health News Source Type: news

Thoughts on body image in pregnancy important indicator of emotional wellbeing
(University of York) Researchers have shown that a new way of assessing women's relationship with their bodies during pregnancy could help predict how well the mother might bond with her unborn baby and her longer-term emotional wellbeing. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - May 23, 2019 Category: International Medicine & Public Health Source Type: news

King Bio Issues Voluntary Nationwide Recall of Aquaflora Candida HP9, Lymph Detox, and Baby Teething Liquids Due to Microbial Contamination
King Bio is voluntarily recalling four lots of Aquaflora Candida HP9, Lymph Detox, and Baby Teething liquids to the consumer level. During a routine inspection by the U.S. Food and Drug Administration, the products were found to contain microbial contaminants Pseudomonas Brenneri, Pseudomonas Fluroescens and Burkholderia Multivorans. (Source: FDA Center for Drug Evaluation and Research - What's New)
Source: FDA Center for Drug Evaluation and Research - What's New - May 23, 2019 Category: Drugs & Pharmacology Authors: FDA Source Type: news

Dr. Leonard Bailey, Who Gave a Baby a Baboon ’ s Heart, Dies at 76
The case of Baby Fae, the recipient of Dr. Bailey ’ s experimental transplant in 1984, generated worldwide headlines — along with criticism, demonstrations and threats. (Source: NYT Health)
Source: NYT Health - May 23, 2019 Category: Consumer Health News Authors: DENISE GRADY Tags: Bailey, Dr. Leonard Deaths (Obituaries) Surgery and Surgeons Transplants Heart Baby Fae Loma Linda University Source Type: news

Car-seat naps outside the car put babies at risk
(Reuters Health) - Most infant deaths in car-safety seats happen when the seat is being used as a napping spot, rather than for transportation, a U.S. study shows. (Source: Reuters: Health)
Source: Reuters: Health - May 22, 2019 Category: Consumer Health News Tags: healthNews Source Type: news

Gambia: Brikama District Hospital Boosted
[The Point] Kerr Ode Foundation Monday donated baby wears, bleaches, feeding bottles, soaps, clothing and detergents to the Brikama District Health. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - May 22, 2019 Category: African Health Source Type: news

Charity accuses celebrity mothers of promoting unsafe baby sleep
British charity The Lullaby Trust has said influential mothers need to be careful what they post to their millions of followers because they may be promoting unsafe sleeping practices for babies. (Source: the Mail online | Health)
Source: the Mail online | Health - May 22, 2019 Category: Consumer Health News Source Type: news

Heartbreaking moment brain dead baby girl is taken on her final journey to donate her organs
Coralynn Sobolik, of Iowa, who was 22 months old, was taken into surgery on April 22. Staff lined the hospital singing Amazing Grace in the viral Facebook video. (Source: the Mail online | Health)
Source: the Mail online | Health - May 22, 2019 Category: Consumer Health News Source Type: news

St. Peter's home health care growing as baby boomers age
St. Peter's Health Partners is growing its home health care agency as the baby boomer generation ages. St. Peter's runs the largest home health care agency in the Albany region, called The Eddy Visiting Nurse and Rehab Association. The Eddy expects to serve 13,000 home health care patients this year, up from 11,960 last year. The home health care division is up to 2,500 visits a month. "We conti nue to grow every year," said Kim Baker, president of continuing care at St. Peter's. From 2016… (Source: bizjournals.com Health Care:Pharmaceuticals headlines)
Source: bizjournals.com Health Care:Pharmaceuticals headlines - May 22, 2019 Category: Pharmaceuticals Authors: Liz Young Source Type: news

Planned Parenthood donating $38 MILLION to 2020 Democrat candidates
(Natural News) Seems there are millions of dollars just laying around, folks, made “available” for Planned Parenthood to give away to anyone who supports executing live birth babies on the day they’re born. That’s strange. How did that come to be? Even Republicans, via paid taxes, are involuntarily funding population control by the extreme Left.... (Source: NaturalNews.com)
Source: NaturalNews.com - May 22, 2019 Category: Consumer Health News Source Type: news

Alabama House approves 'born alive' abortion bill
The Alabama House of Representatives has approved legislation that would put doctors in prison if they don't try to save babies "born alive" after an attempted abortion (Source: ABC News: Health)
Source: ABC News: Health - May 22, 2019 Category: Consumer Health News Tags: Health Source Type: news

Parents MUST NOT let their babies sleep in car seats as they're at risk of suffocating
A review by the University of Virginia into 12,000 infant sleep-related deaths between 2004 and 2014 found 219 babies died in car seats. In 99% of cases, they were not in a vehicle. (Source: the Mail online | Health)
Source: the Mail online | Health - May 22, 2019 Category: Consumer Health News Source Type: news

Sextuplets shock parents and doctors anticipating 5
A 29-year-old Polish mother who gave birth to sextuplets has been able to leave her hospital bed and visit her babies in another ward, where the infants are said to be doing fine. (Source: CBC | Health)
Source: CBC | Health - May 21, 2019 Category: Consumer Health News Tags: News/Health Source Type: news

Older Dads' Sperm Isn't What It Used to Be
TUESDAY, May 21, 2019 -- Just because a guy can make babies later in life doesn't mean it's risk-free. The partners and children of men who become fathers at an older age are at increased risk for health problems, a new study finds. " While it is... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - May 21, 2019 Category: General Medicine Source Type: news

Polish sextuplets surprise parents and doctors expecting five
Poland's first sextuplets on record, two boys and four girls, were born in the southern city of Krakow on Monday to the surprise of parents and doctors who had expected five babies. (Source: Reuters: Health)
Source: Reuters: Health - May 21, 2019 Category: Consumer Health News Tags: healthNews Source Type: news

Breastfeeding linked to reduced risk of heart disease
Research, presented at the European Congress of Endocrinology in Lyon, suggests that women who breastfed their babies are less likely to develop heart disease in later life.Daily Heralds (Source: Society for Endocrinology)
Source: Society for Endocrinology - May 21, 2019 Category: Endocrinology Source Type: news

Baby girl's cancerous tumour engulfs her mouth
Ainul Mardhiah Ahmad Safiuddin, nine months, is due to travel from her home in the state constituency of Ayer Molek, in south-western Malacca State, Malaysia, to London for treatment. (Source: the Mail online | Health)
Source: the Mail online | Health - May 21, 2019 Category: Consumer Health News Source Type: news

How does chemo during pregnancy affect child development?
Chemotherapy performed on women during pregnancy could adversely affect long-term...Read more on AuntMinnie.comRelated Reading: MRI brain scans show benefits of prenatal folic acid Fetal MRI can spot early brain abnormality MRI shows maternal depression meds affect babies' brains MRI links blood flow to brain development in preterm babies MRI scans during 1st trimester of pregnancy are safe (Source: AuntMinnie.com Headlines)
Source: AuntMinnie.com Headlines - May 21, 2019 Category: Radiology Source Type: news

Baby loss: The hospital helping bereaved families
As a hospital plans to build a safe haven for those experiencing baby loss, mums tell their stories. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - May 21, 2019 Category: Consumer Health News Source Type: news

Mum whose baby died speaks of pain of hearing others cry
Lynette Parkes lost her baby at seven months and spoke of the added pain of hearing other newborns cry nearby. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - May 21, 2019 Category: Consumer Health News Source Type: news

Book Review: Birth of a New Brain: Healing from Postpartum Bipolar Disorder
“I was caught in a whirl of racing, obsessive thoughts, which is how many people describe their bouts of mania. Instead of noticing my baby girl’s sweet scent or feeling her rose-petal soft skin, all I could think was, I must write this idea down, and this, and this…,” writes Dyane Harwood. In her new book, Birth of a New Brain: Healing from Postpartum Bipolar Disorder, Harwood offers an unfiltered, unedited and heart-wrenching journey through postpartum bipolar disorder and reminds us all that, even in the seemingly worst circumstances, hope can remain. Harwood’s story begins in the delivery...
Source: Psych Central - May 20, 2019 Category: Psychiatry Authors: Claire Nana Tags: Bipolar Book Reviews Disorders Family General Medications Memory and Perception Motivation and Inspiration Personal Stories Postpartum Depression Psychological Assessment Psychology Stigma Stress Suicide Treatment Women's I Source Type: news

Sextuplets born in Poland; mother and newborns doing well
A 29-year-old woman has given birth to six babies in Poland in what is believed to be the country's first-ever case of sextuplets (Source: ABC News: Health)
Source: ABC News: Health - May 20, 2019 Category: Consumer Health News Tags: Health Source Type: news

Pediatricians Warn Infant Car Seats Should Only Be Used for Travel
BOSTON (CBS) — Every year, several hundred babies die in sitting devices like car seats and strollers. A new study in the journal Pediatrics found many of those deaths occur when babies are left to sleep in car seats unsupervised, outside of the car. Researchers studied almost 12,000 infant sleep-related deaths and they found about 3 percent occurred in sitting devices.  Almost two-thirds of those in car seats, about one-third in bouncers and swings, and 2 percent in strollers. More than half of the deaths in sitting devices occurred in the child’s home and were more likely to occur while the baby was...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - May 20, 2019 Category: Consumer Health News Authors: Health – CBS Boston Tags: Boston News Health Healthwatch Seen On WBZ-TV Syndicated Local Car Seats Dr. Mallika Marshall Parenting Source Type: news

FP Delivers Best of Family Medicine Throughout Long Career
During his 65-year career as a family physician, Alexander D. " A.D. " Brickler II, M.D., has cared for a remarkable number of Tallahassee families and delivered more than 30,000 babies. The recently retired 90-year-old also helped deliver racially integrated health care to his Florida city. (Source: AAFP News)
Source: AAFP News - May 20, 2019 Category: Primary Care Source Type: news

Harri Stickler: Transplant joy for baby with rare cancer
Harri Stickler is "doing great" after a donor was found following an appeal. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - May 20, 2019 Category: Consumer Health News Source Type: news

Should Parents Use Their Deceased Child's Sperm to Create a Baby? Should Parents Use Their Deceased Child's Sperm to Create a Baby?
What are the ethical implications of using sperm from a beloved son after a fatal accident? Dr Art Caplan weighs in.Medscape Business of Medicine (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - May 20, 2019 Category: Consumer Health News Tags: Family Medicine/Primary Care Commentary Source Type: news

Putting Your Child to Sleep in a Car Seat Can Be Deadly
MONDAY, May 20, 2019 -- A car seat is the safest place for an infant while traveling in a car. But putting your baby to sleep in a portable car seat at home can be deadly, a new study warns. Over a decade, nearly 12,000 babies in the United States... (Source: Drugs.com - Daily MedNews)
Source: Drugs.com - Daily MedNews - May 20, 2019 Category: General Medicine Source Type: news

Ethiopia: Home News With Coffee Ceremony and Midwives, Mums Get a Happy Start in Rural Ethiopia
[UNFPA] When Fikre Molla was preparing to have her baby, she wanted the childbirth traditions she had grown up with, but the safety of professional care in a proper health facility. (Source: AllAfrica News: Pregnancy and Childbirth)
Source: AllAfrica News: Pregnancy and Childbirth - May 20, 2019 Category: OBGYN Source Type: news

Transgenderism results in the DEATH of a baby because medical records listed the mother as "male" to appease the LGBT thought police
(Natural News) A 32-year-old woman who thinks she’s a “man” recently gave birth to a dead child – a dead child who would have lived, by the way, had its deranged, mentally-ill mother correctly indicated her natural biology upon being admitted to the hospital. Reports indicate that this brain-damaged adult patient, who self-identifies as a... (Source: NaturalNews.com)
Source: NaturalNews.com - May 20, 2019 Category: Consumer Health News Source Type: news

IVF 'will alter human evolution' by allowing disease-prone people to have babies
At a conference in Vienna Dr Hans Hanevik will say babies could be being born with defective genes that led to their parent's difficulty having children. This may ultimately have an effect on evolution. (Source: the Mail online | Health)
Source: the Mail online | Health - May 19, 2019 Category: Consumer Health News Source Type: news

Every baby in the UK could get the chickenpox vaccine
Londoner Sarah Westcott, 44, right, had her youngest son Gabriel, now three, immunised after her 14-year-old daughter Bridy, left, suffered badly with chickenpox as a young girl. (Source: the Mail online | Health)
Source: the Mail online | Health - May 19, 2019 Category: Consumer Health News Source Type: news

Infant mental health home visiting in the context of an infant-toddler court team: changes in parental responsiveness and reflective functioning - Stacks AM, Barron CC, Wong K.
This article describes an infant-toddler court team in Michigan, the community-based participatory research approach to the implementation evaluation, and the resulting changes in parenting. Like other court teams, Michigan's Baby Court is led by a science... (Source: SafetyLit)
Source: SafetyLit - May 18, 2019 Category: International Medicine & Public Health Tags: Age: Infants and Children Source Type: news

Breastfeeding reduces long-term risk of heart disease in mothers
(European Society of Endocrinology) Women who breastfed their babies are less likely to develop heart disease later in life, according to findings to be presented in Lyon, at the European Society of Endocrinology annual meeting, ECE 2019. The study also suggests that the protective effect on heart health is increased in women who breastfed for longer periods of time. These findings provide further evidence for the long-term health benefits of breastfeeding and that women should be encouraged to do so when possible. (Source: EurekAlert! - Biology)
Source: EurekAlert! - Biology - May 18, 2019 Category: Biology Source Type: news

One in seven babies born too small, study says
More than 20 million newborns weighed less than 5.5 pounds in 2015, and many of them were born in middle- and low-income countries. (Source: Health News - UPI.com)
Source: Health News - UPI.com - May 17, 2019 Category: Consumer Health News Source Type: news