Cystic fibrosis campaign: Six young sufferers finally get wonder pills in NHS deal
SIX young cystic fibrosis sufferers get their hands on boxes of lifesaving pills at last after fighting in our crusade to win an NHS deal. Last year, all six spoke out in separate, tear-jerking Daily Express stories to plead for the medications produced by US firm Vertex. (Source: Daily Express - Health)
Source: Daily Express - Health - January 20, 2020 Category: Consumer Health News Source Type: news
Cystic Fibrosis victory: Ayden, 13, weeps with joy as he finally gets miracle drug
BRAVE cystic fibrosis sufferer Ayden Cochrane wept with joy last night, after we helped him secure the American wonder pill that could save his life. In a dramatic change of heart, drug maker Vertex contacted the Daily Express directly, telling us Ayden, 13, will receive Trikafta in the next 24 hours. (Source: Daily Express - Health)
Source: Daily Express - Health - January 19, 2020 Category: Consumer Health News Source Type: news
Novel Drug Candidate Aims To Tackle Superbug Infections In Cystic Fibrosis Patients
What makes the Antabio ’s molecule candidate so unique is that it’s not an antibiotic. Antibiotics typically work by killing bacteria, whereas this molecule aims to disable the bacteria, making it less able to attack and inflame the lungs. (Source: Forbes.com Healthcare News)
Source: Forbes.com Healthcare News - January 17, 2020 Category: Pharmaceuticals Authors: Dana Dovey, Contributor Source Type: news
Cystic fibrosis-sufferer, 13, feared to have DAYS left to live as drug giant fails to act
THE MOTHER of stricken 13-year-old Ayden Cochrane last night made a desperate appeal for drugs bosses to save her son ’s life by giving him access to a wonder pill. (Source: Daily Express - Health)
Source: Daily Express - Health - January 17, 2020 Category: Consumer Health News Source Type: news
Correcting airways in cystic fibrosis
(Source: ScienceNOW)
Source: ScienceNOW - January 15, 2020 Category: Science Authors: Alderton, G. Tags: twil Source Type: news
US FDA clears NuvoAir's connected spirometer device
The Air Next is designed for patients with respiratory conditions such as asthma, COPD and cystic fibrosis. (Source: mobihealthnews)
Source: mobihealthnews - January 9, 2020 Category: Information Technology Source Type: news
Swedish startup NuvoAir inks partnership with Roche Italy
The companies want to help people living with cystic fibrosis. (Source: mobihealthnews)
Source: mobihealthnews - January 3, 2020 Category: Information Technology Source Type: news
Girl, four, with life-limiting cystic fibrosis gets a 'wonder drug' in time for Christmas
Ayda Louden's family, from Carlisle, Cumbria, spent years calling for NHS access to Orkambi. It was finally approved in October. She didn't receive a dose until two weeks ago. (Source: the Mail online | Health)
Source: the Mail online | Health - December 27, 2019 Category: Consumer Health News Source Type: news
Rare cystic fibrosis mutations limit the benefits of targeted drugs
Mutations leading to cystic fibrosis in Latino patients may create treatment disparities, say School scientists (Source: UCSF School of Pharmacy News)
Source: UCSF School of Pharmacy News - December 26, 2019 Category: Universities & Medical Training Source Type: news
Cystic Fibrosis boy gets new drug after NHS discount deal
Negotiations with US pharmaceutical company means that some 5,000 NHS patients will benefit Related items fromOnMedica Drug firm urged to cut £100,000 price of cystic fibrosis drug Life-changing cystic fibrosis drug cost 'should be lowered' Health-focused line on drugs misuse would save lives and money TB could be cured by four months ’ treatment in many patients Statins of small and uncertain benefit in primary prevention (Source: OnMedica Latest News)
Source: OnMedica Latest News - December 23, 2019 Category: UK Health Source Type: news
Cystic fibrosis boy from Hull gets new drug after campaign
Seven-year-old Olly can now get Orkambi after the NHS struck a deal with the manufacturer. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - December 23, 2019 Category: Consumer Health News Source Type: news
'The day I found out that I will likely outlive my children'
Sharon Stepaniuk learned on the same day her oldest and youngest have cystic fibrosis. She hopes she can make a difference for them, and for others in Canada living with CF. (Source: CBC | Health)
Source: CBC | Health - December 22, 2019 Category: Consumer Health News Tags: News/Canada/Edmonton Source Type: news
'We can't wait': Life-saving cystic fibrosis drugs hard to access, advocates say
Hundreds of Albertans sent letters to Health Minister Tyler Shandro earlier this month, calling on the province to make cystic fibrosis drugs more accessible, and to support the development of a federal strategy on rare diseases. (Source: CBC | Health)
Source: CBC | Health - December 22, 2019 Category: Consumer Health News Tags: News/Canada/Edmonton Source Type: news
Family of cystic fibrosis sufferer, 28, issue a desperate plea to the NHS and drug firms
The only real hope of Nicole Adams, 28, from Belfast, lies in a new medicine that can dramatically improve lung function - but the pill is not yet approved for NHS patients. (Source: the Mail online | Health)
Source: the Mail online | Health - December 22, 2019 Category: Consumer Health News Source Type: news
Diagnostic markers for allergic bronchopulmonary aspergillosis in paediatric cystic fibrosis patients
Conference abstracts (Source: The Aspergillus Website - updates)
Source: The Aspergillus Website - updates - December 20, 2019 Category: Respiratory Medicine Authors: MeganB Source Type: news
