GlycoNet invests $3.9 million to address research gaps in Canadian healthcare
(Canadian Glycomics Network) The Canadian Glycomics Network (GlycoNet) today awarded $3.9 million in grant funding to 11 collaborative research projects. The fund will support a wide range of multidisciplinary research teams across 17 Canadian research institutions and their industry partners to address unmet medical needs in cancer, gastrointestinal inflammations, cystic fibrosis, Sanfillipo disease, Parkinson's, and autoimmune diseases. (Source: EurekAlert! - Cancer)
Source: EurekAlert! - Cancer - July 23, 2020 Category: Cancer & Oncology Source Type: news

CFHealthHub for managing cystic fibrosis during the COVID-19 pandemic - Medtech innovation briefing (MIB219), NICE (published 10th July 2020)
CFHealthHub is a digital platform to help adults with cystic fibrosis manage their condition and monitor their medicine use. Evidence from a randomised feasibility study and two economic studies is discussed; the results of a UK RCT (n=607) are due for publication later this year (Source: Current Awareness Service for Health (CASH))
Source: Current Awareness Service for Health (CASH) - July 13, 2020 Category: Consumer Health News Source Type: news

Cystic fibrosis: why so many respiratory complications?
(Universit é de Gen è ve) Cystic fibrosis, one of the most common genetic diseases in Switzerland, causes severe respiratory and digestive disorders. Despite considerable therapeutic advances, this disease still reduces life expectancy, in particular due to life-threatening respiratory infections. Scientists from the University of Geneva (UNIGE) have discovered the reason for this large number of lung infections: a protein, Vav3. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - July 13, 2020 Category: International Medicine & Public Health Source Type: news

BARNEY CALMAN: Cystic fibrosis sufferers finally get 'wonder drug' after endless talks
Over the past six months, the MoS has lifted the lid on the secretive talks between NHS England and drug company Vertex on access to cystic fibrosis drugs. (Source: the Mail online | Health)
Source: the Mail online | Health - July 4, 2020 Category: Consumer Health News Source Type: news

NHS England secures deal for triple therapy for cystic fibrosis
(Source: PharmacoEconomics and Outcomes News)
Source: PharmacoEconomics and Outcomes News - June 30, 2020 Category: Drugs & Pharmacology Source Type: news

Cystic fibrosis patients offered 'life-transforming' drug
The three-drug combination, Kaftrio, will now be available on the NHS in England. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - June 30, 2020 Category: Consumer Health News Source Type: news

NHS to seal the deal on miracle cystic fibrosis medicine
Anthony Usher lost his brother Elliott, pictured together, last year and now his own health his faltering, but there is hope after a 'Holy Grail' drug was given the green light by the safety regulator. (Source: the Mail online | Health)
Source: the Mail online | Health - June 27, 2020 Category: Consumer Health News Source Type: news

Mycobiome-microbiome cross-talk analysis during acute pulmonary exacerbation: focus on climax-attack model in cystic fibrosis
Conference abstracts (Source: The Aspergillus Website - updates)
Source: The Aspergillus Website - updates - June 24, 2020 Category: Respiratory Medicine Authors: MeganB Source Type: news

Bronchodilator Response in Cystic Fibrosis Patients Diagnosed with Allergic Bronchopulmonary Aspergillosis
Conference abstracts (Source: The Aspergillus Website - updates)
Source: The Aspergillus Website - updates - June 22, 2020 Category: Respiratory Medicine Authors: MeganB Source Type: news

Presence of Fungal Species in Sputum of Adult Patients with Cystic Fibrosis Is Associated with Pseudomonas Spp. Colonization, Frequent Exacerbations, Inhaled Antibiotic and Steroid Use Single Center Experience
Conference abstracts (Source: The Aspergillus Website - updates)
Source: The Aspergillus Website - updates - June 21, 2020 Category: Respiratory Medicine Authors: MeganB Source Type: news

Miracle cystic fibrosis drug which has been dubbed the 'holy grail' could be free on NHS next month
Six months ago, Nicole Adams (pictured) was in intensive care at Belfast City Hospital and critically ill with cystic fibrosis. Within hours of taking her first dose of Trikafta, she began to feel different. (Source: the Mail online | Health)
Source: the Mail online | Health - June 20, 2020 Category: Consumer Health News Source Type: news

She Struggled With Asthma, but It Had Never Been This Bad
She had trouble breathing, and the E.R. doctors discovered a mass in her lung. Was this cancer — or something a little more unusual? (Source: NYT Health)
Source: NYT Health - June 17, 2020 Category: Consumer Health News Authors: Lisa Sanders, M.D. Tags: Cystic Fibrosis Coronavirus (2019-nCoV) Senses and Sensation Lungs Hospitals Pneumonia Smoking and Tobacco Source Type: news

Children With Cystic Fibrosis Caregivers Face Sleep Difficulties Children With Cystic Fibrosis Caregivers Face Sleep Difficulties
Medscape Medical News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - June 15, 2020 Category: Consumer Health News Tags: Pulmonary Medicine News Source Type: news

Insmed Receives FDA Breakthrough Therapy Designation for Brensocatib in Patients with Non-Cystic Fibrosis Bronchiectasis (NCFBE)
Full Results from Phase 2 WILLOW Study of Brensocatib in NCFBE to be Presented at Virtual ATS Session on June 24, 2020 BRIDGEWATER, N.J., June 8, 2020 -- (Healthcare Sales & Marketing Network) -- Insmed Incorporated (Nasdaq:INSM), a global biopharmaceu... Biopharmaceuticals, FDA Insmed, brensocatib, bronchiectasis (Source: HSMN NewsFeed)
Source: HSMN NewsFeed - June 8, 2020 Category: Pharmaceuticals Source Type: news

Cystic Fibrosis sufferers will be among first to benefit from NHS home test kits
A NEW handheld testing kit will allow thousands of shielding cystic fibrosis patients to check their health at home. The genetic lung condition means Britain's 10,500 sufferers are particularly vulnerable to COVID-19. Normally when they catch a lung bug they must travel to their local hospital's CF unit for tests and face-to-face consultation. (Source: Daily Express - Health)
Source: Daily Express - Health - June 8, 2020 Category: Consumer Health News Source Type: news