Vertex cystic fibrosis drug approved for another 500 U.S. patients
The U.S. Food and Drug Administration has approved Kalydeco by Vertex Pharmaceuticals for use in about 500 more cystic fibrosis patients than previously. Kalydeco is the Boston pharmaceutical company's only approved drug, following it's decision last year to discontinue its hepatitis C drug due to competition. The drug is approved to treat several different gene mutations that cause the disease in about 1,150 patients who make up about 4 percent of CF patients in the U.S. The new approval for patients… (Source: bizjournals.com Health Care:Hospitals headlines)
Source: bizjournals.com Health Care:Hospitals headlines - December 29, 2014 Category: Hospital Management Authors: Don Seiffert Source Type: news

Cystic Fibrosis Market 2015 to 2019 Global New Research Report at...
Global Cystic Fibrosis Market 2015-2019 is a new industry research report which profiles key players like Actavis, Novartis, Gilead Sciences, Vertex Pharmaceuticals and F Hoffmann-La Roche.(PRWeb December 27, 2014)Read the full story at http://www.prweb.com/releases/cystic-fibrosis-market/research-2019/prweb12416068.htm (Source: PRWeb: Medical Pharmaceuticals)
Source: PRWeb: Medical Pharmaceuticals - December 27, 2014 Category: Pharmaceuticals Source Type: news

Cystic Fibrosis patient's festive wish to go swimming with friends and live to be a vet
EXCLUSIVE: Olivia Dein, from north London, has a simple wish this Christmas - she just wants to be well, like her little brother, Dylan, and sister, Jessica. (Source: the Mail online | Health)
Source: the Mail online | Health - December 24, 2014 Category: Consumer Health News Source Type: news

Commercial DNA Testing May Cause Harm, Scientific Studies Show (if You Read Through to the Study Limitations at the End)
A year after the US Food and Drug Administration urged 23andMe to stop the marketing of its personal genome test in the United States, the world's largest direct-to-consumer genetics company relaunched the test in Canada and the United Kingdom. "Find out how your genetics relate to things like abnormal blood clotting, cystic fibrosis or response to certain medications." [italics added] "Keep in mind that many conditions and traits are influenced by multiple factors. Our reports are intended for informational purposes only and do not diagnose disease or illness." The UK website of 23andMe opens with ...
Source: Science - The Huffington Post - December 22, 2014 Category: Science Source Type: news

Resistance to anti-viral drug may be more likely in cystic fibrosis patients
Following lung transplantation, resistance to the anti-viral drug ganciclovir may be more likely in cystic fibrosis patients, scientists report. Ganciclovir is given to lung transplant patients to protect against a life-threatening virus that is common after transplantation, and reduces mortality due to the virus from 34 percent to between 3 and 6 percent. But between 5 percent and 10 percent of patients infected with the virus have strains that are resistant to the drug. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - December 18, 2014 Category: Science Source Type: news

Resistance to anti-viral drug may be more likely in cystic fibrosis patients
(Loyola University Health System) Following lung transplantation, resistance to the anti-viral drug ganciclovir may be more likely in cystic fibrosis patients. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - December 18, 2014 Category: Global & Universal Source Type: news

Today's Patience Is Tomorrow's Possibility
Patience is not an entity in and of itself, but is a process, the act of learning to embrace a state of mind. It's something that must be practiced, embodied, and given room to grow. I must have patience for today, for the days ahead, and a steadfast appreciation for days past and how they have molded me. I would be foolish to tell all of you that I haven't had moments this week when I've lost sight of myself and felt a complete wreck: distraught with emotion for the future and the life I called my own a mere few weeks ago. The devastation that cystic fibrosis has caused in just a short time is unfathomable. I feel as if...
Source: Healthy Living - The Huffington Post - December 12, 2014 Category: Consumer Health News Source Type: news

Uh Oh, It's Flu Season! What You Need to Know About Flu Vaccination
Media reports from just about every corner of the country are cautioning that Americans could be in for a particularly intense flu season this year, with many medical experts encouraging folks not to delay getting their flu shots. The flu season is not only here -- it could last until as late as May of next year according to the CDC. With this in mind, it is helpful to review a few basics that could help keep you, your family and your friends and neighbors feeling at their best during this winter's seasonal outbreaks of the flu. Who's at Risk? The flu is a respiratory infection that can cause serious, sometimes life-thr...
Source: Healthy Living - The Huffington Post - December 12, 2014 Category: Consumer Health News Source Type: news

Recent Advances in the Management of Cystic FibrosisRecent Advances in the Management of Cystic Fibrosis
What new therapies are available for the management of cystic fibrosis? Archives of Disease in Childhood (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - December 4, 2014 Category: Consumer Health News Tags: Pediatrics Journal Article Source Type: news

DNA-screening test 23andMe launches in UK after US ban
The Google-backed genotyping service can screen for common genetic diseases such as cystic fibrosis or sickle cell anaemiaGenetic testing company 23andMe is launching its personal genome service in the UK after it was banned in the US.The service allows people to send their saliva in a testing kit to have their DNA screened for genes associated with certain inherited conditions, such as cystic fibrosis or sickle cell anaemia, and other genetic markers relating to parts of their lives and ancestry. Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - December 2, 2014 Category: Science Authors: Samuel Gibbs Tags: Google Technology Science UK news Health Genetics Research and development Biology Healthcare industry Business NHS Source Type: news

Making the most of life with cystic fibrosis
The man who lives each day as if it's his last (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - November 29, 2014 Category: Consumer Health News Source Type: news

Dry Powder Inhalers in Cystic FibrosisDry Powder Inhalers in Cystic Fibrosis
Dry powder inhalers may improve patient adherence, but are they as clinically effective, safe and cost-effective as nebulized antibiotics? Current Opinion in Pulmonary Medicine (Source: Medscape Today Headlines)
Source: Medscape Today Headlines - November 28, 2014 Category: Consumer Health News Tags: Pulmonary Medicine Journal Article Source Type: news

Don't expect the V Foundation to make a billion-dollar royalty deal a la the CFF
Don't expect the V Foundation to make a billion-dollar royalty deal anytime in the near future; that's not a part of its playbook. Last week, the Cystic Fibrosis Foundation sold royalty rights to drugs by Vertex Pharmaceuticals for $3.3 billion, or 17 times its revenue from 2012. In this case, the nonprofit acted like a venture capital group, investing $150 million in Vertex (Nasdaq: VRTX) 15 years ago to encourage the company, now based in Boston, to develop drugs for the deadly lung disease. With… (Source: bizjournals.com Health Care:Hospitals headlines)
Source: bizjournals.com Health Care:Hospitals headlines - November 25, 2014 Category: Hospital Management Authors: Jason deBruyn Source Type: news

High Cost of New Drugs Weighs on Medicaid
A U.S. District Court case highlights brewing concerns over the high costs of specialty drugs such as Kalydeco, which was approved by the U.S. Food & Drug Administration in 2012 and treats some cystic fibrosis patients at an approximate annual cost of $300,000. (Source: Arkansas Business - Health Care)
Source: Arkansas Business - Health Care - November 24, 2014 Category: American Health Source Type: news

What Types of Patients Can Be Referred for Palliative Care Services?
Discussion Pediatric pallative care (PPC) is care for patients who have life-threatening conditions or need end of life care. The main stakeholders receiving PPC are the patients and all members of the family which may include siblings, grandparents and other members. Other stakeholders are the medical care team including ancillary staff at the hospital and other venues where the patient receives care. PPC is provided by an interdisciplinary team including physicians, nurses, social workers, pharmacists, psychologists, chaplains/faith workers and others who assist families in four main areas: “…relieve sufferi...
Source: PediatricEducation.org - November 24, 2014 Category: Pediatrics Authors: pediatriceducationmin Tags: Uncategorized Source Type: news

Cystic Fibrosis Foundation Sells Drug's Rights for $3.3 Billion
The Cystic Fibrosis Foundation will receive $3.3 billion for selling the rights to drugs developed with its financial support in the biggest such royalty purchase ever. (Source: WSJ.com: Health)
Source: WSJ.com: Health - November 20, 2014 Category: Pharmaceuticals Tags: PAID Source Type: news

Royalty Pharma buys royalties on Vertex Pharma drugs for $3.3 billion
(Reuters) - Pharmaceutical investment firm Royalty Pharma said it would buy royalties on Vertex Pharmaceuticals Inc's cystic fibrosis treatments from Cystic Fibrosis Foundation for $3.3 billion in cash. (Source: Reuters: Health)
Source: Reuters: Health - November 19, 2014 Category: Consumer Health News Tags: healthNews Source Type: news

Deal by Cystic Fibrosis Foundation Raises Cash and Some Concern
The foundation is to announce that it will receive $3.3 billion after it helped finance the development of drugs for the deadly lung disease. (Source: NYT Health)
Source: NYT Health - November 19, 2014 Category: Consumer Health News Authors: By ANDREW POLLACK Tags: Cystic Fibrosis Clinical Trials Drugs (Pharmaceuticals) Vertex Pharmaceuticals Inc VRTX NASDAQ Cystic Fibrosis Foundation Research Source Type: news

Cells' natural response to chronic protein misfolding may do more harm than good
(Scripps Research Institute) 'Protein misfolding' diseases such as cystic fibrosis and Alzheimer's may be seriously exacerbated by the body's own response against that misfolding, according to a new study led by scientists at The Scripps Research Institute. (Source: EurekAlert! - Cancer)
Source: EurekAlert! - Cancer - November 18, 2014 Category: Cancer & Oncology Source Type: news

Chopin's Exhumed Heart Remains One Of The World's Strangest Classical Music Relics
WARSAW, Poland (AP) — As Frederic Chopin gasped for air on his deathbed in Paris in 1849, he whispered a request that became the stuff of musical legend: Remove my heart after I die and entomb it in Poland. He wanted the symbol of his soul to rest in the native land he pined for from self-imposed exile in France. Ever since, the composer's body has rested in peace at the famed Pere Lachaise cemetery in Paris — while his heart has endured a wild journey of intrigue and adulation. First it was sealed in a jar of liquor believed to be cognac. Then it was smuggled into Warsaw past Russian border guards. Once in hi...
Source: Science - The Huffington Post - November 17, 2014 Category: Science Source Type: news

Ferret genome sequenced, holds clues to respiratory diseases
(University of Washington Health Sciences/UW Medicine) The draft sequence of the ferret genome provides genetic information important to the study of respiratory disorders. Scientists are now able to examine the network of the animal's genes activated in response to various forms of influenza. Genetic analysis also shows that cystic fibrosis lung damage begins and significantly increases during the first days of life. (Source: EurekAlert! - Infectious and Emerging Diseases)
Source: EurekAlert! - Infectious and Emerging Diseases - November 17, 2014 Category: Infectious Diseases Source Type: news

Winning Stories
Photos from the two cover contest winners. Scott Spitz, left. Christina Lee, right. In October, 5,000 people took part in the Runner's World Half & Festival in Bethlehem, Pennsylvania. As usual, I started the half-marathon in last place, stepping across the timing mat on a raw and windy Sunday morning to spend some time at the back of the pack, making my way forward to meet and encourage as many runners as possible. Around mile two, I met a woman named Madeline who, nine years ago to the day, had a brain tumor removed. She was celebrating the anniversary (and the fact that she's been cancer-free since) by donning sho...
Source: Healthy Living - The Huffington Post - November 15, 2014 Category: Consumer Health News Source Type: news

Canadians with cystic fibrosis living 20 years longer than they did two decades ago
(Source: St. Michael's Hospital News and Media)
Source: St. Michael's Hospital News and Media - November 14, 2014 Category: Hospital Management Tags: Hospital News Source Type: news

Canadians with cystic fibrosis living 20 years longer than they did 2 decades ago
Canadians with cystic fibrosis are living almost 20 years longer than they did two decades ago, according to a new research paper. In addition, the median age at which Canadians with cystic fibrosis die has risen to 32 years in 2012 from 21.7 years in 1990. The death rate declined from 1.4 deaths per year in 1990 to 0.99 deaths per year in 2012, authors report. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - November 13, 2014 Category: Science Source Type: news

Tezacaftor - Ivacaftor, Ivacaftor Alone Effective in CF
And tezacaftor - ivacaftor effective for cystic fibrosis patients homozygous for CFTR Phe508del mutation (Source: Pulmonary Medicine News - Doctors Lounge)
Source: Pulmonary Medicine News - Doctors Lounge - November 11, 2014 Category: Respiratory Medicine Tags: Pharmacy, Pulmonology, Conference News, Source Type: news

Azithromycin Cuts Pulmonary Exacerbation in CF With Early Pa
Risk of pulmonary exacerbation down for children with cystic fibrosis, early Pseudomonas aeruginosa (Source: Pulmonary Medicine News - Doctors Lounge)
Source: Pulmonary Medicine News - Doctors Lounge - November 11, 2014 Category: Respiratory Medicine Tags: Infections, Pediatrics, Pharmacy, Pulmonology, Critical Care, Journal, Source Type: news

Sweat Sensors Could Bring Medical Diagnostics To Wearables
Wearable technology, like that seen in the fitness space, is making a transition to medical diagnostics. By analyzing sweat, a new patch can identify cystic fibrosis and may one day be used for monitoring blood glucose levels. (Source: Medical Design Online News)
Source: Medical Design Online News - October 31, 2014 Category: Medical Equipment Source Type: news

Let's (Cautiously) Celebrate the "New Eugenics"
It's a subject doctors, health providers and medical experts are discussing feverishly, but often quietly: whether parents should undergo genetic tests, either before conception or after, to determine if their unborn child might have a serious genetic disorder. Hanging over the debate is the specter of eugenics--fears that the ability to manipulate the health of our future babies could devalue the sanctity of life. About three percent of babies in the United States are born with a major structural or genetic birth defect. It's a bracing occurrence for a family and a multi-billion hit to our already strained medical sys...
Source: Science - The Huffington Post - October 30, 2014 Category: Science Source Type: news

StratAcuity Proud to Complete the Proteostasis Therapeutics Cystic...
StratAcuity, The Science of People: StratAcuity successfully completes the search for the Proteostasis Therapeutics Inaugural Cystic Fibrosis Clinical Advisory Board.(PRWeb October 29, 2014)Read the full story at http://www.prweb.com/releases/2014/10/prweb12275774.htm (Source: PRWeb: Medical Pharmaceuticals)
Source: PRWeb: Medical Pharmaceuticals - October 30, 2014 Category: Pharmaceuticals Source Type: news

Cystic fibrosis sufferer Naomi Hulme, died before she could have lung transplant
Naomi Hulme, from Macclesfield, suffered from the genetic condition cystic fibrosis. Her condition worsened before doctors could arrange an operation. (Source: the Mail online | Health)
Source: the Mail online | Health - October 29, 2014 Category: Consumer Health News Source Type: news

Baby Wipes Company Nutek Disposables Issues Recall After Possible Contamination
(Source: Healthy Living - The Huffington Post)
Source: Healthy Living - The Huffington Post - October 27, 2014 Category: Consumer Health News Source Type: news

Living life from a hospital room
A 17-year-old girl living with cystic fibrosis makes the hospital her happy place. "Every breath I take is a miracle," she says. (Source: CNN.com - Health)
Source: CNN.com - Health - October 23, 2014 Category: Consumer Health News Source Type: news

FDA panel votes to expand use of Vertex cystic fibrosis drug
(Reuters) - A U.S. Food and Drug Administration advisory panel on Tuesday voted 13-2 to recommend expanding approval of Vertex Pharmaceuticals Inc's cystic fibrosis drug Kalydeco to include a wider range of patients with the rare lung disease, the company said. (Source: Reuters: Health)
Source: Reuters: Health - October 21, 2014 Category: Consumer Health News Tags: healthNews Source Type: news

Cystic Fibrosis lung infection: Scientists open black box on bacterial growth
Researchers have shown for the first time how bacteria can grow directly in the lungs of Cystic fibrosis patients, giving them the opportunity to get tremendous insights into bacteria behavior and growth in chronic infections. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - October 17, 2014 Category: Science Source Type: news

Scientists opens black box on bacterial growth in cystic fibrosis lung infection
(University of Copenhagen - The Faculty of Health and Medical Sciences) Researchers from the University of Copenhagen have shown for the first time how bacteria can grow directly in the lungs of Cystic fibrosis patients, giving them the opportunity to get tremendous insights into bacteria behavior and growth in chronic infections. (Source: EurekAlert! - Infectious and Emerging Diseases)
Source: EurekAlert! - Infectious and Emerging Diseases - October 17, 2014 Category: Infectious Diseases Source Type: news

Synedgen to Present at North American Cystic Fibrosis Conference
Innovative Treatment to Improve Lung Function and Antibiotic Effectiveness in CF Patients(PRWeb October 01, 2014)Read the full story at http://www.prweb.com/releases/2014/10/prweb12217085.htm (Source: PRWeb: Medical Pharmaceuticals)
Source: PRWeb: Medical Pharmaceuticals - October 2, 2014 Category: Pharmaceuticals Source Type: news

Antibacterial resistance a cause for major concern, cystic fibrosis experts say
Experts have called for greater research to address the major concern of antibacterial resistance. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - September 26, 2014 Category: Science Source Type: news

Antibacterial resistance a cause for major concern according to world leading cystic fibrosis expert
(Queen's University Belfast) World leading cystic fibrosis experts, from Queen's University Belfast, have called for greater research to address the major concern of antibacterial resistance. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - September 26, 2014 Category: Global & Universal Source Type: news

UK researchers discover new gene responsible for serious respiratory infections
Researchers from the University College London have discovered a new gene associated to a rare disease, which induces respiratory problems similar to cystic fibrosis. (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - September 22, 2014 Category: Pharmaceuticals Source Type: news

Woman who died at 24 from cystic fibrosis inspires research into how Tai Chi can ease symptoms of the life-limiting diseaseĀ 
A new study, funded by the Tracie Lawlor Trust, is underway at London's Royal Brompton Hospital, to look at the effects Tai Chi has on people suffering the hereditary disease cystic fibrosis. (Source: the Mail online | Health)
Source: the Mail online | Health - September 17, 2014 Category: Consumer Health News Source Type: news

Synchrotron X-rays track fluids in the lungs
New non-invasive technique could help monitor cystic-fibrosis treatments (Source: PhysicsWeb News)
Source: PhysicsWeb News - September 13, 2014 Category: Physics Source Type: news

Diagnosis of elderly CF patient offers hope
Cystic fibrosis was only identified in case of 78-year-old woman two years ago (Source: The Irish Times - Health)
Source: The Irish Times - Health - September 11, 2014 Category: Consumer Health News Source Type: news

Quadruple Dosing of Doripenem Is Safe in Patients With CFQuadruple Dosing of Doripenem Is Safe in Patients With CF
High doses of the antibiotic doripenem are safe to use in patients with cystic fibrosis suffering from acute respiratory infection. Medscape Medical News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - September 7, 2014 Category: Consumer Health News Tags: Infectious Diseases News Source Type: news

Cystic fibrosis: Additional immune dysfunction discovered
(Helmholtz Zentrum München - German Research Center for Environmental Health) Cystic fibrosis is a frequent genetic disease affecting the lung and the gastrointestinal tract. Scientists from the Helmholtz Zentrum München now have shown that many of the adult patients with cystic fibrosis in addition lack a cell surface molecule, which is important for immune defence. The results have been published recently in the Journal of Molecular Medicine. (Source: EurekAlert! - Infectious and Emerging Diseases)
Source: EurekAlert! - Infectious and Emerging Diseases - September 4, 2014 Category: Infectious Diseases Source Type: news

Researchers uncover hidden infection route of major bacterial pathogen
(University of Liverpool) Researchers at the University of Liverpool's Institute of Infection and Global Health have discovered the pattern of infection of the bacterium responsible for causing severe lung infections in people with cystic fibrosis. (Source: EurekAlert! - Infectious and Emerging Diseases)
Source: EurekAlert! - Infectious and Emerging Diseases - September 2, 2014 Category: Infectious Diseases Source Type: news

Drug that improves blood flow may help find cause of exercise intolerance in cystic fibrosis
(Medical College of Georgia at Georgia Regents University) A little white pill may help scientists learn why patients with cystic fibrosis have less exercise capacity than their peers, even if their lungs are relatively healthy. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - September 2, 2014 Category: Global & Universal Source Type: news

SNOT-22 Helps Identify CF Patients With Nasal PolypsSNOT-22 Helps Identify CF Patients With Nasal Polyps
The SNOT-22 questionnaire can help identify cystic fibrosis (CF) patients with subclinical nasal polyps, researchers from Canada report. Reuters Health Information (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - August 29, 2014 Category: Consumer Health News Tags: Pulmonary Medicine News Source Type: news

Patients with Cystic Fibrosis Are Living Longer (FREE)
By Kelly Young Edited by Jaye Elizabeth Hefner, MD Survival among patients with cystic fibrosis significantly improved between 2000 and 2010, according to a study in the Annals of Internal Medicine.Researchers studied a cohort of roughly … (Source: Physician's First Watch current issue)
Source: Physician's First Watch current issue - August 19, 2014 Category: Primary Care Source Type: news

Cystic fibrosis doesn't have to define you
Breathe in. (Source: CNN.com - Health)
Source: CNN.com - Health - August 18, 2014 Category: Consumer Health News Source Type: news

Man with cystic fibrosis becomes champion BODYBUILDER
James Boudreau, 29, from Michigan, U.S, has a lung capacity of just 48 percent and sleeps with an oxygen mask at night to prevent potentially fatal infections. (Source: the Mail online | Health)
Source: the Mail online | Health - August 18, 2014 Category: Consumer Health News Source Type: news