'I feel like I don't count,' says man with MND
The government's advice on shielding is failing people with motor neurone disease, according to a charity. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - April 26, 2020 Category: Consumer Health News Source Type: news
Coronavirus: Lockdown, a baby and MND - but I'm feeling great
Lucy Lintott is the youngest person in Scotland with motor neurone disease - and is now facing a mountain of new challenges. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - April 9, 2020 Category: Consumer Health News Source Type: news
Roche provides regulatory update on risdiplam for the treatment of spinal muscular atrophy (SMA)
Basel, 07 April 2020 - Roche (SIX: RO, ROG; OTCQX: RHHBY), today announced that the U.S. Food and Drug Administration (FDA) has extended the Prescription Drug User Fee Act (PDUFA) date for its review of the New Drug Application (NDA) of risdiplam with a decision expected by August 24, 2020. The extension is a result of the recent submission of additional data by Roche, including data from the pivotal SUNFISH Part 2 study, in close collaboration with the FDA. These data were recently presented at the 2nd International Scientific and Clinical Congress on Spinal Muscular Atrophy. In November 2019, the FDA granted Priority Rev...
Source: Roche Investor Update - April 7, 2020 Category: Pharmaceuticals Source Type: news
Roche provides regulatory update on risdiplam for the treatment of spinal muscular atrophy (SMA)
Basel, 07 April 2020 - Roche (SIX: RO, ROG; OTCQX: RHHBY), today announced that the U.S. Food and Drug Administration (FDA) has extended the Prescription Drug User Fee Act (PDUFA) date for its review of the New Drug Application (NDA) of risdiplam with a decision expected by August 24, 2020. The extension is a result of the recent submission of additional data by Roche, including data from the pivotal SUNFISH Part 2 study, in close collaboration with the FDA. These data were recently presented at the 2nd International Scientific and Clinical Congress on Spinal Muscular Atrophy. In November 2019, the FDA granted Priority Rev...
Source: Roche Media News - April 7, 2020 Category: Pharmaceuticals Source Type: news
GP surgery sends out letter asking terminally ill patients to sign DNR notices
Llynfi Surgery, in Maesteg, South Wales, sent the letter to patients with serious health conditions such as incurable cancer, motor neurone disease, and untreatable heart and lung conditions. (Source: the Mail online | Health)
Source: the Mail online | Health - April 1, 2020 Category: Consumer Health News Source Type: news
New brain reading technology could help the development of brainwave-controlled devices
(The Francis Crick Institute) A new method to accurately record brain activity at scale has been developed by researchers at the Crick, Stanford University and UCL. The technique could lead to new medical devices to help amputees, people with paralysis or people with neurological conditions such as motor neurone disease. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - March 20, 2020 Category: International Medicine & Public Health Source Type: news
Coronavirus UK: Death toll hits 137, youngest fatality is 47
Only a handful of coronavirus victims have already been identified, including the UK's youngest - a 45-year-old with motor neurone disease from Kettering in Northamptonshire. (Source: the Mail online | Health)
Source: the Mail online | Health - March 19, 2020 Category: Consumer Health News Source Type: news
Coronavirus: Craig Ruston 'youngest UK death'
Craig Ruston, who had motor neurone disease, died on Monday morning in Kettering. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - March 18, 2020 Category: Consumer Health News Source Type: news
Experts discover toolkit to repair DNA breaks linked to aging, cancer and MND
(University of Sheffield) A new 'toolkit' to repair damaged DNA that can lead to aging, cancer and motor neurone disease (MND) has been discovered by scientists at the universities of Sheffield and Oxford. (Source: EurekAlert! - Biology)
Source: EurekAlert! - Biology - March 9, 2020 Category: Biology Source Type: news
Initial protective role of nervous system's 'star-shaped cells' in sporadic motor neuron disease uncovered
(The Francis Crick Institute) Support cells in the nervous system help protect motor neurons in the early-stages of sporadic motor neuron disease, according to new research from the Crick and UCL. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - February 10, 2020 Category: International Medicine & Public Health Source Type: news
Roche ’s Risdiplam meets primary endpoint in pivotal FIREFISH trial in infants with type 1 spinal muscular atrophy
Basel, 23 January 2020 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced positive topline results from the pivotal Part 2 of the FIREFISH study, evaluating risdiplam in infants aged 1-7 months with Type 1 spinal muscular atrophy (SMA). The primary outcome measure of the study was the proportion of infants sitting without support for at least five seconds at 12-months of treatment, assessed by the Gross Motor Scale of the Bayley Scales of Infant and Toddler Development Third Edition (BSID-III). Safety for risdiplam in the FIREFISH study was consistent with its known safety profile and no new saf...
Source: Roche Media News - January 23, 2020 Category: Pharmaceuticals Source Type: news
Roche ’s Risdiplam meets primary endpoint in pivotal FIREFISH trial in infants with type 1 spinal muscular atrophy
Basel, 23 January 2020 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced positive topline results from the pivotal Part 2 of the FIREFISH study, evaluating risdiplam in infants aged 1-7 months with Type 1 spinal muscular atrophy (SMA). The primary outcome measure of the study was the proportion of infants sitting without support for at least five seconds at 12-months of treatment, assessed by the Gross Motor Scale of the Bayley Scales of Infant and Toddler Development Third Edition (BSID-III). Safety for risdiplam in the FIREFISH study was consistent with its known safety profile and no new saf...
Source: Roche Investor Update - January 23, 2020 Category: Pharmaceuticals Source Type: news
MND: The search for new treatments
A major study will assess if new - and existing - drugs can help people with motor neurone disease. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - January 15, 2020 Category: Consumer Health News Source Type: news
Urgent research needed into contact sports link motor neurone disease after Rob Burrow
Leading doctors and scientists told MailOnline they were 'frustrated' the cause of the cruel condition had not yet been pinpointed. English rugby stalwart Rob Burrow was diagnosed this week. (Source: the Mail online | Health)
Source: the Mail online | Health - December 20, 2019 Category: Consumer Health News Source Type: news
Motor neurone disease 'linked to cholesterol'
UK scientists say their discovery could help in the search for new treatments. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - December 18, 2019 Category: Consumer Health News Source Type: news
