Urgent research needed into contact sports link motor neurone disease after Rob Burrow
Leading doctors and scientists told MailOnline they were 'frustrated' the cause of the cruel condition had not yet been pinpointed. English rugby stalwart Rob Burrow was diagnosed this week. (Source: the Mail online | Health)
Source: the Mail online | Health - December 20, 2019 Category: Consumer Health News Source Type: news

Motor neurone disease 'linked to cholesterol'
UK scientists say their discovery could help in the search for new treatments. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - December 18, 2019 Category: Consumer Health News Source Type: news

FDA grants priority review to Roche ’s risdiplam for spinal muscular atrophy
Roche (SIX: RO, ROG; OTCQX: RHHBY) announced that the U.S. Food and Drug Administration (FDA) has accepted the New Drug Application (NDA) and granted Priority Review for risdiplam, an investigational survival motor neuron-2 (SMN-2) splicing modifier for SMA. Risdiplam is designed to increase and sustain SMN protein levels both throughout the central nervous system and peripheral tissues of the body. (Source: World Pharma News)
Source: World Pharma News - November 27, 2019 Category: Pharmaceuticals Tags: Featured Roche Business and Industry Source Type: news

FDA grants priority review to Roche ’s risdiplam for spinal muscular atrophy
Roche today announced that the U.S. Food and Drug Administration (FDA) has accepted the New Drug Application (NDA) and granted Priority Review for risdiplam, an investigational survival motor neuron-2 (SMN-2) splicing modifier for SMA. (Source: Roche Investor Update)
Source: Roche Investor Update - November 25, 2019 Category: Pharmaceuticals Source Type: news

FDA grants priority review to Roche ’s risdiplam for spinal muscular atrophy
Roche today announced that the U.S. Food and Drug Administration (FDA) has accepted the New Drug Application (NDA) and granted Priority Review for risdiplam, an investigational survival motor neuron-2 (SMN-2) splicing modifier for SMA. (Source: Roche Media News)
Source: Roche Media News - November 25, 2019 Category: Pharmaceuticals Source Type: news

AI project to preserve people's voices in effort to tackle speech loss
Clinic hopes to help those at risk of losing ability to speak maintain sense of identityA pioneering centre aimed at preserving and re-creating people ’s voices using artificial intelligence has opened in the US, with researchers hoping it will change the lives of people who face losing their ability to speak.Researchers say the venture – a joint effort between Northeastern University in Boston and the company VocaliD – could play an important role in maintaining a sense of identity among those with conditions ranging from throat cancer to motor neurone disease, by offering them the chance to sound like themselves ev...
Source: Guardian Unlimited Science - November 9, 2019 Category: Science Authors: Nicola Davis Tags: Artificial intelligence (AI) Computing Consciousness Human biology Neuroscience Psychology Technology World news Source Type: news

Ex-Liverpool player Stephen Darby on fight with 'brutal disease'
Stephen Darby, who is married to England women's captain Steph Houghton, has motor neurone disease. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - October 27, 2019 Category: Consumer Health News Source Type: news

RightCare Progressive Neurological Conditions Toolkit
This toolkit will support systems to understand the priorities in care for people living with various progressive neurological conditions including multiple sclerosis (MS), motor neurone disease (MND), Parkinson ' s and the atypical Parkinsonism ' s of multiple system atrophy (MSA), progressive supranuclear palsy (PSP) and coticobasal degeneration (CBD). It provides the opportunity to assess and benchmark current systems to find opportunities for improvement. (Source: Current Awareness Service for Health (CASH))
Source: Current Awareness Service for Health (CASH) - October 17, 2019 Category: Consumer Health News Source Type: news

Is This a Fasciculation?
Discussion Benign fasciculations are very common and occur in up to 70% of the general population. They occur at different points in people’s lives. They can be brought out by stress, poor sleep hygiene and caffeine. Caffeine has numerous uses especially for regulating sleep and attention. However too much can cause restlessness, jitteriness and sleep deprivation too. The recommended amount of caffeine for a teenager is < 2.5 mg/kg or 100-175 mg/day. A Red Bull® beverage has 80 mg of caffeine /12 ounces, while Mountain Dew® has 55 mg caffeine/12 ounces. A review of caffeine can be found here. Adolescents, if l...
Source: PediatricEducation.org - September 16, 2019 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news

MRC backs MSD and Francis Crick Institute collaboration to tackle motor neurone disease
Scientists at global biopharmaceutical company MSD and the Francis Crick Institute have started a unique new collaboration to understand the causes of motor neurone disease and identify potential targets for future treatments, co-funded by the Medical Research Council and MSD. (Source: Medical Research Council General News)
Source: Medical Research Council General News - August 29, 2019 Category: Research Source Type: news

MSD backs MSD and Francis Crick Institute collaboration to tackle motor neurone disease
Scientists at global biopharmaceutical company MSD and the Francis Crick Institute have started a unique new collaboration to understand the causes of motor neurone disease and identify potential targets for future treatments, co-funded by the Medical Research Council and MSD. (Source: Medical Research Council General News)
Source: Medical Research Council General News - August 27, 2019 Category: Research Source Type: news

Search for motor neurone disease cure gathers pace
Crick Institute links up with drug company Merck to tackle degenerative brain disorder (Source: FT.com - Drugs and Healthcare)
Source: FT.com - Drugs and Healthcare - August 20, 2019 Category: Pharmaceuticals Source Type: news

CCGs offered help tackling neurological conditions
Better care for Parkinson ’s, MS and motor neurone disease Related items fromOnMedica 'Revived' dead pig brains offer new research hopes NICE issues guidelines on neurological conditions GPs have duty to protect abused vulnerable adults NICE sets care standards for spasticity GPs must greatly improve deaf awareness (Source: OnMedica Latest News)
Source: OnMedica Latest News - August 15, 2019 Category: UK Health Source Type: news

The son giving the gift of his voice to his father
Bob Alderman, 70, lost his voice to motor neurone disease - until his son stepped in to help. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - August 13, 2019 Category: Consumer Health News Source Type: news