What is ALS? New drug is 'GAME changer' for Ice Bucket Challenge disease sufferers
A NEW ALS drug has been hailed as “a game changer” in reducing symptoms of the motor neurone disease. (Source: Daily Express - Health)
Source: Daily Express - Health - October 20, 2017 Category: Consumer Health News Source Type: news
The eyes have it: how technology allows you to speak when all you can do is blink
Developments in eye-gaze technology – which converts minute movements of the eye into spoken words – are opening up undreamed of opportunities for people with motor neurone syndromeSteve Thomas and I are talking about brain implants. Bonnie Tyler ’s Holding Out For a Hero is playing in the background and for a moment I almost forget that a disease has robbed Steve of his speech. The conversation breaks briefly; now I see his wheelchair, his ventilator, his hospital bed.Steve, a software engineer, was diagnosed with ALS (amyotrophic lateral sclerosis, a type ofmotor neurone disease) aged 50. He knew it was progre...
Source: Guardian Unlimited Science - October 16, 2017 Category: Science Authors: Jules Montague Tags: Motor neurone disease Medical research Technology Society Science Health & wellbeing Life and style Source Type: news
An uncomfortable truth - not every life is worth living
This week, Noel Conway, who has motor neurone disease, lost his High Court battle to allow assisted dying, writes DR MAX PEMBERTON. (Source: the Mail online | Health)
Source: the Mail online | Health - October 7, 2017 Category: Consumer Health News Source Type: news
Noel Conway: Terminally ill man loses right-to-die case
The High Court ruled the law should not be changed after hearing the case of man with motor neurone disease. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - October 5, 2017 Category: Consumer Health News Source Type: news
The NHS saved me. As a scientist, I must help to save it | Stephen Hawking
The crisis in the health service has been created by politicians who want to privatise it – when public opinion, and the evidence, point in the opposite directionLike many people, I have personal experience of the NHS. In my case, medical care, personal life and scientific life are all intertwined. I have received a large amount of high-quality NHS treatment andwould not be here today if it were not for the service.The care I have received since being diagnosed with motor neurone disease as a student in 1962 has enabled me to live my life as I want, and to contribute to major advances in our understanding of the universe...
Source: Guardian Unlimited Science - August 18, 2017 Category: Science Authors: Stephen Hawking Tags: NHS Privatisation Business Economic policy Health Society Politics Health policy Public services policy UK news Source Type: news
Motor neurone disease symptoms: Weakness in joints could be sign of MND
MOTOR neurone disease is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. (Source: Daily Express - Health)
Source: Daily Express - Health - August 15, 2017 Category: Consumer Health News Source Type: news
How AI robots hunt new drugs for crippling nerve disease
LONDON (Reuters) - Artificial intelligence robots are turbo-charging the race to find new drugs for the crippling nerve disorder ALS, or motor neurone disease. (Source: Reuters: Health)
Source: Reuters: Health - August 10, 2017 Category: Consumer Health News Tags: healthNews Source Type: news
Flex Pharma begins Phase II trial of FLX-787 for ALS in US
Flex Pharma has begun a Phase II clinical trial (COMMEND) of FLX-787 in the US to treat patients suffering from motor neuron disease (MND) with a focus on amyotrophic lateral sclerosis (ALS). (Source: Drug Development Technology)
Source: Drug Development Technology - August 2, 2017 Category: Pharmaceuticals Source Type: news
Man with motor neurone disease climbs Snowdon in wheelchair
Jason Liversidge, who has motor neurone disease, now plans to abseil off the Humber Bridge. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - July 20, 2017 Category: Consumer Health News Source Type: news
Terminally ill British man in right-to-die court fight
A British man who is terminally ill with motor neuron disease is asking the High Court to let him end his life (Source: ABC News: Health)
Source: ABC News: Health - July 17, 2017 Category: Consumer Health News Tags: Health Source Type: news
New discovery in MND and dementia could pave the way to novel treatments
(University of Sheffield) A new discovery by scientists at the University of Sheffield could help slow down the progression of neurodegenerative diseases such as motor neurone disease (MND), dementia and neurological decline associated with ageing. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - July 17, 2017 Category: International Medicine & Public Health Source Type: news
New gene therapy treatment routes for motor neurone disease uncovered in new study
(University of Sheffield) Scientists investigating the genetic causes and altered functioning of nerve cells in motor neurone disease (MND) have discovered a new mechanism that could lead to fresh treatment approaches for one of the most common forms of the disease. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - July 14, 2017 Category: International Medicine & Public Health Source Type: news
Man with ALS who inspired ice bucket challenge is still alive, despite reports
Peter Frates posted a video of himself in a hospital bed while Pearl Jam ’s Alive played in the background after multiple newspapers announced he had diedThe man who helped raise over $100m to combat the neurodegenerative disease ALS by encouraging millions of people topour icy buckets of water over their heads is still alive, despite reports to the contrary, and has posted a video to Twitter to prove it.Peter Frates, 32, posted a 45-second video of himself in a hospital bed while Pearl Jam ’s Alive played in the background on social media on Monday, writing: “In the words of my friend ed,” presumably a reference t...
Source: Guardian Unlimited Science - July 3, 2017 Category: Science Authors: Amanda Holpuch in New York Tags: Motor neurone disease Pearl Jam Health Medical research Charities Genetics Source Type: news
Exploring the financial impact of motor neurone disease
People with motor neurone disease (MND) and their families spend the equivalent of £9,645 every year as a direct result of the disease, plus a further £2,175 in one-off costs, says a report from the Demos think-tank. (Source: NHS Networks)
Source: NHS Networks - June 26, 2017 Category: UK Health Source Type: news
SITraN researchers report positive results of new MND drug
New research conducted by scientists from the Sheffield Institute for Translational Neuroscience (SITraN), part of the University of Sheffield, into a new drug candidate that can possibly delay the onset of Motor Neurone Disease (MND) has shown early … (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - May 25, 2017 Category: Pharmaceuticals Source Type: news
