Analysis of accidental falls and the integration in the chronicity programs of patients with amyotrophic lateral sclerosis - Castro-Rodr íguez E, Azagra-Ledesma R, Gómez-Batiste Alertón X, Aguyé-Batista A, Zwart-Salmerón M, Cabanas-Valdés R, Caballero-Gómez FM, Clemente-Azagra C.
INTRODUCTION: Amyotrophic lateral sclerosis (ALS) is the most common degenerative motor neuron disease. There is no curative treatment available, and these patients require multidisciplinary support to promote their comfort and quality of life. PAT... (Source: SafetyLit)
Source: SafetyLit - November 14, 2022 Category: International Medicine & Public Health Tags: Ergonomics, Human Factors, Anthropometrics, Physiology Source Type: news

Former rugby player Rob Burrow's health has gravely deteriorated because of disease
Rob Burrow, one of Leeds Rhinos' greatest rugby players, was diagnosed with motor neurone disease. (Source: Daily Express - Health)
Source: Daily Express - Health - October 18, 2022 Category: Consumer Health News Source Type: news

Motor neurone disease 'could be spotted in gut 14 YEARS before it takes hold'
Researchers at the University of Aberdeen studied samples from around a dozen patients who suffered from the rare condition that damages the brain and nerves. (Source: the Mail online | Health)
Source: the Mail online | Health - October 18, 2022 Category: Consumer Health News Source Type: news

Motor neurone disease 'could be spotted up to 14 YEARS before disease takes hold'
Researchers at the University of Aberdeen studied samples from around a dozen patients who suffered from the rare condition that damages the brain and nerves. (Source: the Mail online | Health)
Source: the Mail online | Health - October 17, 2022 Category: Consumer Health News Source Type: news

New Gene Mutants Identified in Rare Motor Neuron Diseases
The discovery of gene variants in cases of hereditary spastic dysplasia could provide a diagnosis to affected families where no genetic cause could be found before. (Source: The Scientist)
Source: The Scientist - October 17, 2022 Category: Science Tags: The Literature Magazine Issue Source Type: news

Positive new data for Roche ’s Evrysdi in largest trial ever undertaken in patients with previously-treated spinal muscular atrophy (SMA)
New two-year Evrysdi data show improvement or maintenance of motor function in people with SMA, a progressive neuromuscular disease that can be fatalThe JEWELFISH study enrolled the broadest and most diverse patient population ever studied in an SMA trialLonger-term safety data consistent with that previously seen in earlier trials and low study drop-out rateEvrysdi has proven efficacy in babies, children and adults, with more than 7,000 patients treated to date worldwideBasel, 12 October 2022- Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced new two-year data from the JEWELFISH study evaluating Evrysdi ® (risdiplam) in...
Source: Roche Investor Update - October 12, 2022 Category: Pharmaceuticals Source Type: news

Positive new data for Roche ’s Evrysdi in largest trial ever undertaken in patients with previously-treated spinal muscular atrophy (SMA)
New two-year Evrysdi data show improvement or maintenance of motor function in people with SMA, a progressive neuromuscular disease that can be fatalThe JEWELFISH study enrolled the broadest and most diverse patient population ever studied in an SMA trialLonger-term safety data consistent with that previously seen in earlier trials and low study drop-out rateEvrysdi has proven efficacy in babies, children and adults, with more than 7,000 patients treated to date worldwideBasel, 12 October 2022- Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced new two-year data from the JEWELFISH study evaluating Evrysdi ® (risdiplam) in...
Source: Roche Media News - October 12, 2022 Category: Pharmaceuticals Source Type: news

Former rugby players may be 15 times as likely to develop motor neuron disease, study finds - Mahase E.
he risk of neurodegenerative disease among former Scottish international rugby union players is more than double that of the general population, a study has found.1 The researchers from the University of Glasgow matched 412 Scottish former international... (Source: SafetyLit)
Source: SafetyLit - October 6, 2022 Category: International Medicine & Public Health Tags: Economics of Injury and Safety, PTSD, Injury Outcomes Source Type: news

Roche to present new data from its expanding neuromuscular disease portfolio at World Muscle Society 2022
New positive data fromEvrysdi, a treatment for spinal muscular atrophy (SMA), a progressive neuromuscular disease that can be fatalData from the gene therapyprogramme forDuchenne muscular dystrophy (DMD), a progressive disease that leads to premature death, reinforce confidence in the most advanced Phase 3 study currently underwayStudy designs of two new trials ingeneralised myasthenia gravis (gMG), a rare chronic autoimmune disease, andfacioscapulohumeral muscular dystrophy (FSHD), a genetic muscle disorderBasel, 05 October 2022 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced that new data from its industry-leading n...
Source: Roche Media News - October 5, 2022 Category: Pharmaceuticals Source Type: news

Roche to present new data from its expanding neuromuscular disease portfolio at World Muscle Society 2022
New positive data fromEvrysdi, a treatment for spinal muscular atrophy (SMA), a progressive neuromuscular disease that can be fatalData from the gene therapyprogramme forDuchenne muscular dystrophy (DMD), a progressive disease that leads to premature death, reinforce confidence in the most advanced Phase 3 study currently underwayStudy designs of two new trials ingeneralised myasthenia gravis (gMG), a rare chronic autoimmune disease, andfacioscapulohumeral muscular dystrophy (FSHD), a genetic muscle disorderBasel, 05 October 2022 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced that new data from its industry-leading n...
Source: Roche Investor Update - October 5, 2022 Category: Pharmaceuticals Source Type: news

Kevin Sinfield: Rugby league star to run ultra marathons for MND
The rugby league star aims to run 300 miles (482km) in a week to raise funds for motor neurone disease research. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - September 26, 2022 Category: Consumer Health News Source Type: news

‘Promising’ new drug shown to slow progression of motor neurone disease – new study
Motor neurone disease is one of the cruellest conditions someone can experience, however, a new study is providing hope to patients. (Source: Daily Express - Health)
Source: Daily Express - Health - September 21, 2022 Category: Consumer Health News Source Type: news

Biogen drug slows progress of motor neurone disease in landmark trial
Tofersen targets a defective gene that causes about 2% of cases of MND, also known as amyotrophic lateral sclerosis (Source: FT.com - Drugs and Healthcare)
Source: FT.com - Drugs and Healthcare - September 21, 2022 Category: Pharmaceuticals Source Type: news

ALS: Motor neurone disease breakthrough as drug helps wheelchair-bound sufferer walk again
University of Sheffield researchers found Tofersen, made by Biogen, slowed the progress of motor neurone disease in some patients who previously had no other treatment options. (Source: the Mail online | Health)
Source: the Mail online | Health - September 21, 2022 Category: Consumer Health News Source Type: news

Experimental drug shows signs of slowing motor neurone disease
Biogen drug Tofersen showed promising results when taken for six months beyond previous trialAn experimental drug for motor neurone disease (MND) has shown signs of slowing the progress of the devastating illness in a landmark trial.The results provide fresh hope after a phase-three trial of the same drug had previously failed to make a meaningful difference to patient outcomes after six months of treatment.Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - September 21, 2022 Category: Science Authors: Hannah Devlin Science correspondent Tags: Health Society Motor neurone disease Drugs Science Source Type: news