Motor Neurone Disease: 'It's like having a death sentence hanging over your family...'
A FAMILY that has lost six members to an inherited form of motor neurone disease has called for the Government to do more to remove the "death sentence" hanging over them. Cris Hoskin says she felt helpless as her two sons died from MND as a result of a familial gene passed down through the male descendants of her grandfather, who had symptoms of the disease at a time when little was known about it. (Source: Daily Express - Health)
Source: Daily Express - Health - August 22, 2021 Category: Consumer Health News Source Type: news
Motor neurone disease: Brave Jo on the cruel illness that robbed her independence
After leaving university, Jo Knowlton focused on starting a career with the police force, as a "forensic imaging officer". (Source: Daily Express - Health)
Source: Daily Express - Health - August 14, 2021 Category: Consumer Health News Source Type: news
Motor neurone disease: Three early warning signs in the hands to look out for
MOTOR neurone disease is a rare condition that affects around two in every 100,000 people in the UK each year. There are about 5,000 people living with the condition in the UK at any one time. Muscle aches are a common complaint among those in the early stages of the condition, particularly in the hands. (Source: Daily Express - Health)
Source: Daily Express - Health - August 9, 2021 Category: Consumer Health News Source Type: news
Assisted dying: Campaigners renewed hope for change in the law
David Peace intends to travel abroad to end his life before his motor neurone disease deteriorates further. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - August 2, 2021 Category: Consumer Health News Source Type: news
Data for Roche ’s Evrysdi® (risdiplam) published in New England Journal of Medicine shows significant improvement in survival and motor milestones in babies with Type 1 spinal muscular atrophy (SMA)
Basel, 29 July 2021 – Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced that the New England Journal of Medicine (NEJM) has published data from FIREFISH Part 2, a pivotal global study evaluating the efficacy and safety of Evrysdi® (risdiplam) in babies aged 1-7 months old with symptomatic Type 1 spinal muscular atr ophy (SMA). The study met its primary endpoint with 29% of infants (12/41) sitting without support for at least five seconds* by month 12, a milestone not seen in the natural course of the disease. Safety for Evrysdi in the FIREFISH Part 2 study was consistent with its known safety profile.“Without treatme...
Source: Roche Media News - July 29, 2021 Category: Pharmaceuticals Source Type: news
Data for Roche ’s Evrysdi® (risdiplam) published in New England Journal of Medicine shows significant improvement in survival and motor milestones in babies with Type 1 spinal muscular atrophy (SMA)
Basel, 29 July 2021 – Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced that the New England Journal of Medicine (NEJM) has published data from FIREFISH Part 2, a pivotal global study evaluating the efficacy and safety of Evrysdi® (risdiplam) in babies aged 1-7 months old with symptomatic Type 1 spinal muscular atr ophy (SMA). The study met its primary endpoint with 29% of infants (12/41) sitting without support for at least five seconds* by month 12, a milestone not seen in the natural course of the disease. Safety for Evrysdi in the FIREFISH Part 2 study was consistent with its known safety profile.“Without treatme...
Source: Roche Investor Update - July 29, 2021 Category: Pharmaceuticals Source Type: news
Sunday Express MND campaign: Give us the funds so we CAN cure Motor Neurone Disease
THE Sunday Express is today launching a crusade calling for £50million of Government funding for a "game-changing" Motor Neurone Disease Research Institute. (Source: Daily Express - Health)
Source: Daily Express - Health - July 17, 2021 Category: Consumer Health News Source Type: news
OHIO professor awarded NIH grant to research the motor neuron in relation to aging
(Ohio University) The research will look at the role of the motor neuron, the final neuron that connects the nervous system with the muscle, in health and disease. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - June 30, 2021 Category: International Medicine & Public Health Source Type: news
Health: Exercise can increase the risk of motor neurone disease, scientists warn
Three large-scale genetic analyses involving people who undertake different habitual levels of exercise were conducted by experts from the University of Sheffield looking for links to motor neurone disease. (Source: the Mail online | Health)
Source: the Mail online | Health - June 11, 2021 Category: Consumer Health News Source Type: news
Scientists link intense exercise with MND risk in some people
Those with a certain genetic makeup more likely to develop motor neurone disease, study confirmsRegular strenuous exercise raises the risk of developing motor neurone disease (MND) in people who are genetically predisposed to the condition, researchers say.Scientists at the University of Sheffield found a causal relationship between high intensity physical activity and the disorder among those already susceptible to the disease.Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - June 11, 2021 Category: Science Authors: Ian Sample Science editor Tags: Medical research Motor neurone disease Science Health University of Sheffield Education Source Type: news
Motor neurone disease: Intense exercise increases risk, say scientists
Regular and strenuous exercise can increase the risk of MND in people who are vulnerable, scientists say. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - June 10, 2021 Category: Consumer Health News Source Type: news
Discovering the Secrets of Motor Neurons with Single Cell Sequencing
Researchers identify new motor neuron subgroups and gain insights into amyotrophic lateral sclerosis (ALS). (Source: The Scientist)
Source: The Scientist - May 5, 2021 Category: Science Tags: Podcasts Source Type: news
Earswitch to allow people with MND to communicate again using hidden, tiny ear muscle
(University of Bath) The 'Earswitch', being developed by a GP and a team of researchers at the University of Bath, could offer fresh hope for people with conditions such as Motor Neurone Disease. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - May 5, 2021 Category: International Medicine & Public Health Source Type: news
Miniaturized models of neuron-muscle interactions give insight in ALS
(International Society for Stem Cell Research) Researchers have developed a new miniaturized model of neuromuscular junction formation that will have broad applications in studying motor neuron pathology and the discovery of potential therapeutics in ALS. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - April 22, 2021 Category: International Medicine & Public Health Source Type: news
Tipping Point: Woman has voice reconstructed thanks to ITV show appearance
Helen Whitelaw appeared on Tipping Point before Motor Neurone Disease rendered her speechless. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - April 15, 2021 Category: Consumer Health News Source Type: news
