'I don't have lots of time to sit around and wait'
Brian Murphy has motor neurone disease and is stuck in hospital waiting for a care package. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - March 23, 2023 Category: Consumer Health News Source Type: news
More terminally ill people to get fast-tracked benefits following Express campaign
Years of campaigning by the Express, Marie Curie and the Motor Neurone Disease Association helped expand quick access to benefits for thousands of terminally ill people. (Source: Daily Express - Health)
Source: Daily Express - Health - March 22, 2023 Category: Consumer Health News Source Type: news
New four year data for Roche ’s Evrysdi reinforce long-term efficacy and safety profile in some of the most severely affected people with types 2 and 3 spinal muscular atrophy (SMA)
Data from pivotal SUNFISH study showed increases in motor function observed during the first year were maintained through the fourth year, while the overall rate of adverse events continued to decreaseData confirm long-term efficacy and safety profile ofEvrysdi in a broad range of people with Type 2 and non‑ambulant Type 3 SMAMore than 8,500 people —from newborns to the over 60s—have been treated withEvrysdi, which is now approved in more than 90 countries worldwideBasel, 20 March 2023 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced new long-term data for Evrysdi ® (risdiplam) in a broad range of people aged 2-...
Source: Roche Investor Update - March 20, 2023 Category: Pharmaceuticals Source Type: news
New four year data for Roche ’s Evrysdi reinforce long-term efficacy and safety profile in some of the most severely affected people with types 2 and 3 spinal muscular atrophy (SMA)
Data from pivotal SUNFISH study showed increases in motor function observed during the first year were maintained through the fourth year, while the overall rate of adverse events continued to decreaseData confirm long-term efficacy and safety profile ofEvrysdi in a broad range of people with Type 2 and non‑ambulant Type 3 SMAMore than 8,500 people —from newborns to the over 60s—have been treated withEvrysdi, which is now approved in more than 90 countries worldwideBasel, 20 March 2023 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced new long-term data for Evrysdi ® (risdiplam) in a broad range of people aged 2-...
Source: Roche Media News - March 20, 2023 Category: Pharmaceuticals Source Type: news
A simple nasal spray could be the solution to treat MND and dementia
Something as simple as a nasal spray could be used to treat motor neurone disease and dementia. (Source: Daily Express - Health)
Source: Daily Express - Health - March 2, 2023 Category: Consumer Health News Source Type: news
'We’re doing everything we can': Steve Barclay's pledge over MND cure
Health Secretary Steve Barclay has vowed that the Government will do 'everything we can' to help find a cure for Motor Neurone Disease. (Source: Daily Express - Health)
Source: Daily Express - Health - February 4, 2023 Category: Consumer Health News Source Type: news
Marathon man: Kevin Sinfield raises more than £7m for MND charities for mate Rob Burrow
When Rob Burrow was diagnosed with motor neurone disease, his childhood friend and former Leeds Rhinos rugby teammate Kevin Sinfield pledged his support. So far he's raised a staggering £ 7million pounding the pavements for his pal. (Source: Daily Express - Health)
Source: Daily Express - Health - February 2, 2023 Category: Consumer Health News Source Type: news
British scientists give boost to hopes of living with motor neuron disease with new kidney drugs
A trial shows that injections of a protein used to treat kidney cancer may slow MND's spread and increase survival chances by 70 per cent. (Source: the Mail online | Health)
Source: the Mail online | Health - January 7, 2023 Category: Consumer Health News Source Type: news
Motor neurone disease research
The government will speed up research into motor neurone disease (MND) across the UK, with investment so NHS patients can benefit from cutting-edge treatment and medicines. (Source: NHS Networks)
Source: NHS Networks - December 13, 2022 Category: UK Health Source Type: news
David Niven lived with an 'extremely challenging' and 'terrifying' disease - early signs
The late David Niven was plagued by motor neurone disease in the later years of his life. (Source: Daily Express - Health)
Source: Daily Express - Health - December 10, 2022 Category: Consumer Health News Source Type: news
Rob Burrow makes CBeebies Bedtime Story history by reading book with eye-controlled computer
Former Leeds Rhinos player, 40, who was diagnosed with motor neurone disease in 2019, has filmed an episode of the BBC series to mark International Day of Persons with Disabilities. (Source: the Mail online | Health)
Source: the Mail online | Health - December 1, 2022 Category: Consumer Health News Source Type: news
Doddie Weir lost his 'battle' against motor neurone disease – early warning signs
Rugby player Doddie Weir suffered from a life-shortening disease. (Source: Daily Express - Health)
Source: Daily Express - Health - November 29, 2022 Category: Consumer Health News Source Type: news
‘Red tape’ holding back funds to fight disease that killed Doddie Weir
Crucial funding for motor neurone disease research is being held back by "red tape and bureaucracy", campaigners have said. (Source: Daily Express - Health)
Source: Daily Express - Health - November 28, 2022 Category: Consumer Health News Source Type: news
‘Force of nature’: ex-rugby player Doddie Weir leaves lasting legacy, say admirers
Scotland and British and Irish Lions legend died over the weekend from motor neurone diseaseDoddie Weir, the former Scotland and British and Irish Lions rugby union player who died over the weekend from motor neurone disease, leaves “a lasting legacy” and will, admirers said, be remembered as a man who helped transform people’s understanding of the disease.Weir ’s death aged 52 was announced by his family on Saturday. His wife, Kathy, said he was “an inspirational force of nature”.Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - November 27, 2022 Category: Science Authors: Mark Brown Tags: Motor neurone disease Rugby union Medical research Sport Society Source Type: news
Former Top Gear host Sue Baker died after battle with motor neurone disease - symptoms
A trailblazer for women journalists, Sue Baker has died at the age of 75 after a battle with motor neurone disease. (Source: Daily Express - Health)
Source: Daily Express - Health - November 15, 2022 Category: Consumer Health News Source Type: news
