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The NHS saved me. As a scientist, I must help to save it | Stephen Hawking
The crisis in the health service has been created by politicians who want to privatise it – when public opinion, and the evidence, point in the opposite directionLike many people, I have personal experience of the NHS. In my case, medical care, personal life and scientific life are all intertwined. I have received a large amount of high-quality NHS treatment andwould not be here today if it were not for the service.The care I have received since being diagnosed with motor neurone disease as a student in 1962 has enabled me to live my life as I want, and to contribute to major advances in our understanding of the univ...
Source: Guardian Unlimited Science - August 18, 2017 Category: Science Authors: Stephen Hawking Tags: NHS Privatisation Business Economic policy Health Society Politics Health policy Public services policy UK news Source Type: news

Motor neurone disease symptoms: Weakness in joints could be sign of MND
MOTOR neurone disease is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. (Source: Daily Express - Health)
Source: Daily Express - Health - August 15, 2017 Category: Consumer Health News Source Type: news

How AI robots hunt new drugs for crippling nerve disease
LONDON (Reuters) - Artificial intelligence robots are turbo-charging the race to find new drugs for the crippling nerve disorder ALS, or motor neurone disease. (Source: Reuters: Health)
Source: Reuters: Health - August 10, 2017 Category: Consumer Health News Tags: healthNews Source Type: news

Flex Pharma begins Phase II trial of FLX-787 for ALS in US
Flex Pharma has begun a Phase II clinical trial (COMMEND) of FLX-787 in the US to treat patients suffering from motor neuron disease (MND) with a focus on amyotrophic lateral sclerosis (ALS). (Source: Drug Development Technology)
Source: Drug Development Technology - August 2, 2017 Category: Pharmaceuticals Source Type: news

Man with motor neurone disease climbs Snowdon in wheelchair
Jason Liversidge, who has motor neurone disease, now plans to abseil off the Humber Bridge. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - July 20, 2017 Category: Consumer Health News Source Type: news

Terminally ill British man in right-to-die court fight
A British man who is terminally ill with motor neuron disease is asking the High Court to let him end his life (Source: ABC News: Health)
Source: ABC News: Health - July 17, 2017 Category: Consumer Health News Tags: Health Source Type: news

New discovery in MND and dementia could pave the way to novel treatments
(University of Sheffield) A new discovery by scientists at the University of Sheffield could help slow down the progression of neurodegenerative diseases such as motor neurone disease (MND), dementia and neurological decline associated with ageing. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - July 17, 2017 Category: International Medicine & Public Health Source Type: news

New gene therapy treatment routes for motor neurone disease uncovered in new study
(University of Sheffield) Scientists investigating the genetic causes and altered functioning of nerve cells in motor neurone disease (MND) have discovered a new mechanism that could lead to fresh treatment approaches for one of the most common forms of the disease. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - July 14, 2017 Category: International Medicine & Public Health Source Type: news

Man with ALS who inspired ice bucket challenge is still alive, despite reports
Peter Frates posted a video of himself in a hospital bed while Pearl Jam ’s Alive played in the background after multiple newspapers announced he had diedThe man who helped raise over $100m to combat the neurodegenerative disease ALS by encouraging millions of people topour icy buckets of water over their heads is still alive, despite reports to the contrary, and has posted a video to Twitter to prove it.Peter Frates, 32, posted a 45-second video of himself in a hospital bed while Pearl Jam ’s Alive played in the background on social media on Monday, writing: “In the words of my friend ed,” presumab...
Source: Guardian Unlimited Science - July 3, 2017 Category: Science Authors: Amanda Holpuch in New York Tags: Motor neurone disease Pearl Jam Health Medical research Charities Genetics Source Type: news

Exploring the financial impact of motor neurone disease
People with motor neurone disease (MND) and their families spend the equivalent of £9,645 every year as a direct result of the disease, plus a further £2,175 in one-off costs, says a report from the Demos think-tank. (Source: NHS Networks)
Source: NHS Networks - June 26, 2017 Category: UK Health Source Type: news

SITraN researchers report positive results of new MND drug
New research conducted by scientists from the Sheffield Institute for Translational Neuroscience (SITraN), part of the University of Sheffield, into a new drug candidate that can possibly delay the onset of Motor Neurone Disease (MND) has shown early … (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - May 25, 2017 Category: Pharmaceuticals Source Type: news

New gene identified in Lou Gehrig's Disease
For the first time, a variant in UBQLN4 gene has been associated with Lou Gehrig ’s disease or amyotrophic lateral sclerosis (ALS) – a progressive disease resulting in the loss of nerve cells that control muscle movement, which eventually leads to paralysis and death. The study also describes how this gene variant disrupts a cellular process that drives motor neuron developm ent. This new insight opens the door to potential treatment targets for ALS. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - May 15, 2017 Category: Science Source Type: news

Motor neurone patient completes Milton Keynes Half Marathon
Dave Solomon crosses the finish line of a half marathon in three hours and 14 minutes. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - May 2, 2017 Category: Consumer Health News Source Type: news

Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the Carer Support Needs Assessment Tool
The carers who took part is this Australian study identified the highest support priorities as “knowing what to expect in the future,” “knowing who to contact if concerned,” and “equipment to help care.” Care advisors advocated the CSNAT approach as an improvement over standard practice, allowing them to more clearly assess needs, to offer a more structured follow-up, and to focus on the caregiver and family. The discussions it facilitated can also inform an evidence base for the development of services, ensuring that they are designed to meet the explicit needs of the family caregivers ...
Source: Current Awareness Service for Health (CASH) - April 25, 2017 Category: Consumer Health News Source Type: news

Modern Love: A Dose of Empathy From My Syrian Doctor
A woman with a debilitating motor neuron disease finds hope in a man from a war-ravaged country. (Source: NYT Health)
Source: NYT Health - April 14, 2017 Category: Consumer Health News Authors: RANDI DAVENPORT Tags: Syria Source Type: news

Terminally ill man wins right to challenge assisted dying law
Noel Conway, who has motor neurone disease, wants to overturn 1961 Suicide Act Related items fromOnMedica Palliative/end-of-life care provision a ‘postcode lottery’ in England Third of Dutch doctors open to assisted suicide for early dementia Palliative care Nursing leaders update guidance on assisted suicide (Source: OnMedica Latest News)
Source: OnMedica Latest News - April 13, 2017 Category: UK Health Source Type: news

Dying man Noel Conway can fight right-to-die law
Noel Conway, who has motor neurone disease, wants to be allowed a "peaceful and dignified death". (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - April 12, 2017 Category: Consumer Health News Source Type: news

Alzheimer ’s: ultrasound safely delivers drugs to damaged brains of mice
Scientists at Queensland Brain Institute find noninvasive technique slows progression of Alzheimer ’s disease in miceAustralian researchers say they have made a promising step in the future treatment ofAlzheimer ’s disease after discovering ultrasound can effectively and safely deliver drugs to the damaged brain.Scientists atthe Queensland Brain Institute found the noninvasive technique successfully penetrated the blood-brain barrier to deliver a therapeutic antibody to the brain. This then slowed the progression of Alzheimer ’s disease in mice, according to a study published in the journal Brain.Continue...
Source: Guardian Unlimited Science - April 5, 2017 Category: Science Authors: Australian Associated Press Tags: Alzheimer's Health Dementia Medical research Science Queensland Australia news Parkinson's disease Motor neurone disease Mental health Source Type: news

Exposure to electromagnetic fields linked to motor neurone disease
Conclusion The study found an increased risk of ALS for men with high exposure to ELF magnetic fields, but that doesn't mean magnetic fields are a direct cause of ALS. While figures such as a doubling of risk suggest a big increase, the overall risk of ALS remains low, at 0.009 per hundred people per year in this study. We should also be cautious because the rarity of the disease means – even with a big group of people – there's room for error. The margin of error on the possible increased risk from ELF magnetic fields comes close to the point where the result could be down to chance. This point is reinforced b...
Source: NHS News Feed - March 30, 2017 Category: Consumer Health News Tags: Neurology Lifestyle/exercise Source Type: news

Electromagnetic fields link to motor neurone disease 'weak'
Conclusion The study found an increased risk of ALS for men with high exposure to ELF magnetic fields, but that doesn't mean magnetic fields are a direct cause of ALS. While figures such as a doubling of risk suggest a big increase, the overall risk of ALS remains low, at 0.009 per hundred people per year in this study. We should also be cautious because the rarity of the disease means – even with a big group of people – there's room for error. The margin of error on the possible increased risk from ELF magnetic fields comes close to the point where the result could be down to chance. This point is reinforced b...
Source: NHS News Feed - March 30, 2017 Category: Consumer Health News Tags: Neurology Lifestyle/exercise Source Type: news

Right-to-die case: Shrewsbury's Noel Conway loses court bid
The 67-year-old has terminal motor neurone disease and is not expected to live beyond 12 months. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - March 30, 2017 Category: Consumer Health News Source Type: news

Low frequency electromagnetic fields linked to motor neurone disease
Link to exposure of these fields is evident among men exposed at work Related items fromOnMedica No “convincing” evidence that mobile phones harm health Electric appliances can impact on pacemaker function Health risks over use of Tasers Motor neurone disease patients face long wait for diagnosis (Source: OnMedica Latest News)
Source: OnMedica Latest News - March 30, 2017 Category: UK Health Source Type: news

Motor neurone risk may be higher for pilots and welders
Workers exposed to electromagnetic fields in their jobs could be at risk of developing motor neurone disease, research suggests. (Source: the Mail online | Health)
Source: the Mail online | Health - March 29, 2017 Category: Consumer Health News Source Type: news

Motor neurone disease: Workplace exposure to electromagentic fields 'linked to ALS'
WORKPLACE exposure to electromagentic fields is linked to a higher risk of developing the most common form of motor neurone disease, research suggests. (Source: Daily Express - Health)
Source: Daily Express - Health - March 29, 2017 Category: Consumer Health News Source Type: news

Right-to-die case: I face unbearable death
A 67-year-old man with terminal motor neurone disease is challenging the law on assisted dying. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - March 21, 2017 Category: Consumer Health News Source Type: news

Could a diabetes drug be used for Motor Neurone Disease?
(Lancaster University) A diabetes drug could one day be used to treat neurodegenerative diseases like Motor Neurone Disease (MND), Alzheimer's and Parkinson's.Researchers at Lancaster University are to conduct a clinical trial of the diabetes drug Liraglutide, giving it to patients with MND to see whether they improve or not. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - March 10, 2017 Category: Global & Universal Source Type: news

Researchers initiate new non-invasive urinary test to fast-track drugs for Motor Neuron Disease
Researchers at Flinders University in South Australia (SA) and the University of Miami, US, have initiated a new non-invasive urinary test that can pick up signals of Motor Neuron Disease (MND) in patients. (Source: Pharmaceutical Technology)
Source: Pharmaceutical Technology - February 27, 2017 Category: Pharmaceuticals Source Type: news

Eating swordfish could double your risk of MND
Regular fish eaters whose mercury consumption registered in the top 25 per cent were twice as likely to have motor neurone disease, researchers from Dartmouth College, New Hampshire, found. (Source: the Mail online | Health)
Source: the Mail online | Health - February 21, 2017 Category: Consumer Health News Source Type: news

Heading footballs 'linked to brain damage in professional players'
Conclusion There is growing concern that repeated concussion in contact sports like American football and rugby increase the risk of CTE, which was first found in boxers. This study raises questions as to whether less severe but repeated head impacts, such as those sustained by heading a football, could lead to brain damage later in life. All six of the retired footballers who had a post-mortem showed features of CTE, but the study is not able to show that this was a result of heading footballs. As CTE can only be diagnosed at post-mortem, it has been difficult to study the progress of the condition with any de...
Source: NHS News Feed - February 15, 2017 Category: Consumer Health News Tags: Neurology Older people Source Type: news

Yorkshireman battling MND keeps accent when he can't speak
Experts have created a voice for Jason Liversidge, of Scarborough, who has been battling Motor Neurone Disease since 2014. His new voice was created from recordings of him speaking. (Source: the Mail online | Health)
Source: the Mail online | Health - February 5, 2017 Category: Consumer Health News Source Type: news

Motor neurone disease man given Yorkshire voice
A man with motor neurone disease tests his Yorkshire accent voice synthesiser live on air. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - February 5, 2017 Category: Consumer Health News Source Type: news

'Computer helps patients with severe MND communicate'
Conclusion It's hard to imagine the situation of being alert, aware of what's happening around you, but unable to move, respond or communicate with the outside world. So it is comforting, then, to hear that people with complete locked-in syndrome may be able to communicate – and may be relatively content with their situation. However, it's important to remember the limitations of this study. It's very small. Only four people took part, and full results are available for only three of them. The results may only apply to people with this very specific type of neurodegenerative disease, not to people with other typ...
Source: NHS News Feed - February 1, 2017 Category: Consumer Health News Tags: Neurology Source Type: news

'Breakthrough in communication for patients with severe MND', study claims
Conclusion It's hard to imagine the situation of being alert, aware of what's happening around you, but unable to move, respond or communicate with the outside world. So it is comforting, then, to hear that people with complete locked-in syndrome may be able to communicate – and may be relatively content with their situation. However, it's important to remember the limitations of this study. It's very small. Only four people took part, and full results are available for only three of them. The results may only apply to people with this very specific type of neurodegenerative disease, not to people with other typ...
Source: NHS News Feed - February 1, 2017 Category: Consumer Health News Tags: Neurology Source Type: news

Common cause of both neurological diseases such as dementia and motor neuron diseases
Currently, most scientists do not see a link between ALS and Alzheimer's disease, frontotemporal dementia (FTD), or other dementias. New research confirms the relevance of a certain neurotoxic pathway. The article also confirms TDP-43 inhibition as a viable therapeutic option for the treatment of neurologic disorders, including Alzheimer disease. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - January 23, 2017 Category: Science Source Type: news

This man is revolutionizing our understanding of motor neuron diseases and dementias
(Case Western Reserve University) Wang's team published a study in the January 2017 issue of Molecular Therapy that is seen as confirming the relevance of this neurotoxic pathway, according to an accompanying editorial by Eloise Hudry, Ph.D., of the Alzheimer's Disease Research Unit at Harvard Medical School. This paper also confirms TDP-43 inhibition as a viable therapeutic option for the treatment of neurologic disorders, including Alzheimer disease. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - January 23, 2017 Category: Global & Universal Source Type: news

Stephen Hawking at 75: a brief history – Science Weekly podcast
The origin of the universe, the distribution of galaxies, and the nature of black holes – it’s all in a day’s work for one of the most prominent scientists of all timeSubscribe& Review oniTunes,Soundcloud,Audioboom,Mixcloud&AcastOn 8 January 1942, Frank and Isobel Hawking celebrated the birth of their son, Stephen. 75 years later andProfessor Stephen Hawking is one of the most prominent scientists of all time. In a career spanning half a century, the cosmologist has notched up more than 150 scientific papers, a dozen or so books, and a string of TV and film appearances. It ’s an achievement ...
Source: Guardian Unlimited Science - January 8, 2017 Category: Science Authors: Presented by Ian Sample and produced by Max Sanderson Tags: Science Physics Astronomy Space Black holes Source Type: news

Cochrane Priority Reviews List: December 2016 Update
Cochrane-wide prioritisation remains an important project, with over 140 priority reviews or updates have been published since it began in January 2015.The December 2016 revision of the Cochrane Priority Reviews List includes new titles from the Cochrane Airways, Anaesthesia, Dementia& Cognitive Improvement, ENT, Epilepsy, Gynaecological, Neuro-oncology and Orphan Cancers, Gynaecology& Fertility, Haematological Malignancies, Heart, Incontinence, Kidney& Transplant, Lung Cancer, Neuromuscular Disease, Oral Health, Skin, Stroke, and Urology Groups.The following titles on the list are open to new authors:Long-acti...
Source: Cochrane News and Events - December 14, 2016 Category: Information Technology Authors: mumoquit at cochrane.org Source Type: news

Cochrane Priority Reviews List: Update
February 2017 UpdateThe February 2017 revision of the Cochrane Priority Reviews List includes new titles from the Cochrane Acute Respiratory Infections, Cystic Fibrosis& Genetic Disorders, ENT, Musculoskeletal, and Wounds Groups.The following titles on the list are open to new authors:Biomarkers for predicting outcomes in endometrial cancer (Gynaecological, Neuro-oncology and Orphan Cancer)Diagnostic test accuracy of sentinel LN node sampling in endometrial cancer (Gynaecological, Neuro-oncology and Orphan Cancer)Immunomodulatory treatment for amyotrophic lateral sclerosis /motor neuron disease (ALS/MND) (Neuromuscular...
Source: Cochrane News and Events - December 14, 2016 Category: Information Technology Authors: mumoquit at cochrane.org Source Type: news

Medical News Today: Study investigates how to turn stem cells into motor neurons
A team of researchers investigates details of the cellular mechanisms involved in transforming a stem cell into a motor neuron, through direct programming. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - December 9, 2016 Category: Consumer Health News Tags: Stem Cell Research Source Type: news

How to make a motor neuron
A team of scientists has uncovered details of the cellular mechanisms that control the direct programming of stem cells into motor neurons. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - December 8, 2016 Category: Science Source Type: news

Parkinson's disease: Dolly the sheep research shows cloning could be 'key to treatment'
PARKINSON ’S and motor neurone diseases could be treated using research gained from the creation of Dolly the sheep. (Source: Daily Express - Health)
Source: Daily Express - Health - December 5, 2016 Category: Consumer Health News Source Type: news

Nerve Injury, Types and Recovery
The anatomy and structure of any nerve is complex. A nerve is a bundle of axons that are grouped into fascicles. Nerves provide a pathway for impulses to be transmitted along each of the axons to the limbs and organs. A cross section of the nerve is shown in figure 1a. The epineurium is a thick connective tissue layer that covers and protects the nerve. The perineurium is a sheath that covers the fascicles and the endoneurium surrounds each axon. The myelin sheath acts as insulation cover that protects the neuron. The myelin sheath also allows the signal to move faster along the axon (Figure 1b). Injury to the axon may b...
Source: Healthy Living - The Huffington Post - November 18, 2016 Category: Consumer Health News Source Type: news

Joanne Quin dies seven weeks after motor neurone disease diagnosis after becoming fifth family member to succumb to the terminal illness
Mother-of-two Joanne Quin died just seven weeks after her diagnosis with motor neurone disease (MND). Mrs Quin left behind two young daughters and her husband. (Source: the Mail online | Health)
Source: the Mail online | Health - November 14, 2016 Category: Consumer Health News Source Type: news

Autopsy Shows Former NFL Player Kevin Turner Had Advanced CTE
Former NFL player Kevin Turner had the most advanced stage of chronic traumatic encephalopathy (CTE) when he died, Boston University brain researchers announced Thursday. Dr. Ann McKee said at a Thursday news conference that an autopsy showed Turner had died of the brain trauma-related condition, rather than amyotrophic lateral sclerosis (ALS), otherwise known as Lou Gehrig’s disease. Turner had been diagnosed with ALS, a motor neuron disease that presents itself similarly to CTE. “This is not ALS; this is CTE,’’ McKee said. “The severity of Mr. Turner’s CTE was extraordinary and unprece...
Source: TIME: Top Science and Health Stories - November 3, 2016 Category: Science Authors: Julia Zorthian Tags: Uncategorized Football health Sports Source Type: news

Medical News Today: ALS: Breakthrough discovery of destructive brain cells
Breakthrough research has discovered that a cell that usually supports motor neuron function can become destructive and cause cell death in ALS patients. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - September 28, 2016 Category: Consumer Health News Tags: Muscular Dystrophy / ALS Source Type: news

Medical News Today: ALS could be prevented with technique that halts protein clumping
SOD1 gene mutations form protein clumps, leading to motor neuron degeneration in ALS, but researchers may have found a way to halt this process. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - September 23, 2016 Category: Consumer Health News Tags: Muscular Dystrophy / ALS Source Type: news

Delaying motor neuron loss
A potential treatment to delay motor neuron loss and symptoms has been discovered in the inevitably fatal motor neuron disease (MND). Researchers have reported that triheptanoin, a synthetic triglyceride oil, might help to address problems with energy metabolism associated with the neurodegenerative disease. (Source: ScienceDaily Headlines)
Source: ScienceDaily Headlines - September 21, 2016 Category: Science Source Type: news

Music therapy strikes a chord
Reposted with permission from Cochrane AustraliaA trio of music therapy reviews featured in last year ’s Australian top 100 Cochrane Library downloads, withMusic Therapy for depression coming in at number 7,Music Therapy for people with spectrum disorder at number 40 andMusic Therapy for people with dementia at 76. Recently a new update ofMusic interventions for cancer patientstook centre stage and madeheadlines around the world, finding that music may have beneficial effects on anxiety, pain, fatigue, depression and quality of life for people with cancer.‘It’s great to see these reviews are the subject o...
Source: Cochrane News and Events - September 21, 2016 Category: Information Technology Authors: mumoquit at cochrane.org Source Type: news

The perils of being your own doctor – podcast
When an experienced physician became convinced he had ALS, none of the specialists he consulted could persuade him he was perfectly healthyContinue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - September 12, 2016 Category: Science Authors: Written by Mert Erogul, read by Andrew McGregor and produced by Simon Barnard Tags: Motor neurone disease Medical research Doctors Psychology Source Type: news

Guidance for nurses treating patients with MND
The RCN has launched a new online resource to improve knowledge and provide support for nurses treating people with motor neurone disease. (Source: NHS Networks)
Source: NHS Networks - September 4, 2016 Category: UK Health Source Type: news