Rob Burrow makes CBeebies Bedtime Story history by reading book with eye-controlled computer
Former Leeds Rhinos player, 40, who was diagnosed with motor neurone disease in 2019, has filmed an episode of the BBC series to mark International Day of Persons with Disabilities. (Source: the Mail online | Health)
Source: the Mail online | Health - December 1, 2022 Category: Consumer Health News Source Type: news
Doddie Weir lost his 'battle' against motor neurone disease – early warning signs
Rugby player Doddie Weir suffered from a life-shortening disease. (Source: Daily Express - Health)
Source: Daily Express - Health - November 29, 2022 Category: Consumer Health News Source Type: news
‘Red tape’ holding back funds to fight disease that killed Doddie Weir
Crucial funding for motor neurone disease research is being held back by "red tape and bureaucracy", campaigners have said. (Source: Daily Express - Health)
Source: Daily Express - Health - November 28, 2022 Category: Consumer Health News Source Type: news
‘Force of nature’: ex-rugby player Doddie Weir leaves lasting legacy, say admirers
Scotland and British and Irish Lions legend died over the weekend from motor neurone diseaseDoddie Weir, the former Scotland and British and Irish Lions rugby union player who died over the weekend from motor neurone disease, leaves “a lasting legacy” and will, admirers said, be remembered as a man who helped transform people’s understanding of the disease.Weir ’s death aged 52 was announced by his family on Saturday. His wife, Kathy, said he was “an inspirational force of nature”.Continue reading... (Source: Guardian Unlimited Science)
Source: Guardian Unlimited Science - November 27, 2022 Category: Science Authors: Mark Brown Tags: Motor neurone disease Rugby union Medical research Sport Society Source Type: news
Former Top Gear host Sue Baker died after battle with motor neurone disease - symptoms
A trailblazer for women journalists, Sue Baker has died at the age of 75 after a battle with motor neurone disease. (Source: Daily Express - Health)
Source: Daily Express - Health - November 15, 2022 Category: Consumer Health News Source Type: news
Analysis of accidental falls and the integration in the chronicity programs of patients with amyotrophic lateral sclerosis - Castro-Rodr íguez E, Azagra-Ledesma R, Gómez-Batiste Alertón X, Aguyé-Batista A, Zwart-Salmerón M, Cabanas-Valdés R, Caballero-Gómez FM, Clemente-Azagra C.
INTRODUCTION: Amyotrophic lateral sclerosis (ALS) is the most common degenerative motor neuron disease. There is no curative treatment available, and these patients require multidisciplinary support to promote their comfort and quality of life. PAT... (Source: SafetyLit)
Source: SafetyLit - November 14, 2022 Category: International Medicine & Public Health Tags: Ergonomics, Human Factors, Anthropometrics, Physiology Source Type: news
Former rugby player Rob Burrow's health has gravely deteriorated because of disease
Rob Burrow, one of Leeds Rhinos' greatest rugby players, was diagnosed with motor neurone disease. (Source: Daily Express - Health)
Source: Daily Express - Health - October 18, 2022 Category: Consumer Health News Source Type: news
Motor neurone disease 'could be spotted in gut 14 YEARS before it takes hold'
Researchers at the University of Aberdeen studied samples from around a dozen patients who suffered from the rare condition that damages the brain and nerves. (Source: the Mail online | Health)
Source: the Mail online | Health - October 18, 2022 Category: Consumer Health News Source Type: news
Motor neurone disease 'could be spotted up to 14 YEARS before disease takes hold'
Researchers at the University of Aberdeen studied samples from around a dozen patients who suffered from the rare condition that damages the brain and nerves. (Source: the Mail online | Health)
Source: the Mail online | Health - October 17, 2022 Category: Consumer Health News Source Type: news
New Gene Mutants Identified in Rare Motor Neuron Diseases
The discovery of gene variants in cases of hereditary spastic dysplasia could provide a diagnosis to affected families where no genetic cause could be found before. (Source: The Scientist)
Source: The Scientist - October 17, 2022 Category: Science Tags: The Literature Magazine Issue Source Type: news
Positive new data for Roche ’s Evrysdi in largest trial ever undertaken in patients with previously-treated spinal muscular atrophy (SMA)
New two-year Evrysdi data show improvement or maintenance of motor function in people with SMA, a progressive neuromuscular disease that can be fatalThe JEWELFISH study enrolled the broadest and most diverse patient population ever studied in an SMA trialLonger-term safety data consistent with that previously seen in earlier trials and low study drop-out rateEvrysdi has proven efficacy in babies, children and adults, with more than 7,000 patients treated to date worldwideBasel, 12 October 2022- Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced new two-year data from the JEWELFISH study evaluating Evrysdi ® (risdiplam) in...
Source: Roche Investor Update - October 12, 2022 Category: Pharmaceuticals Source Type: news
Positive new data for Roche ’s Evrysdi in largest trial ever undertaken in patients with previously-treated spinal muscular atrophy (SMA)
New two-year Evrysdi data show improvement or maintenance of motor function in people with SMA, a progressive neuromuscular disease that can be fatalThe JEWELFISH study enrolled the broadest and most diverse patient population ever studied in an SMA trialLonger-term safety data consistent with that previously seen in earlier trials and low study drop-out rateEvrysdi has proven efficacy in babies, children and adults, with more than 7,000 patients treated to date worldwideBasel, 12 October 2022- Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced new two-year data from the JEWELFISH study evaluating Evrysdi ® (risdiplam) in...
Source: Roche Media News - October 12, 2022 Category: Pharmaceuticals Source Type: news
Former rugby players may be 15 times as likely to develop motor neuron disease, study finds - Mahase E.
he risk of neurodegenerative disease among former Scottish international rugby union players is more than double that of the general population, a study has found.1
The researchers from the University of Glasgow matched 412 Scottish former international... (Source: SafetyLit)
Source: SafetyLit - October 6, 2022 Category: International Medicine & Public Health Tags: Economics of Injury and Safety, PTSD, Injury Outcomes Source Type: news
Roche to present new data from its expanding neuromuscular disease portfolio at World Muscle Society 2022
New positive data fromEvrysdi, a treatment for spinal muscular atrophy (SMA), a progressive neuromuscular disease that can be fatalData from the gene therapyprogramme forDuchenne muscular dystrophy (DMD), a progressive disease that leads to premature death, reinforce confidence in the most advanced Phase 3 study currently underwayStudy designs of two new trials ingeneralised myasthenia gravis (gMG), a rare chronic autoimmune disease, andfacioscapulohumeral muscular dystrophy (FSHD), a genetic muscle disorderBasel, 05 October 2022 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced that new data from its industry-leading n...
Source: Roche Media News - October 5, 2022 Category: Pharmaceuticals Source Type: news
Roche to present new data from its expanding neuromuscular disease portfolio at World Muscle Society 2022
New positive data fromEvrysdi, a treatment for spinal muscular atrophy (SMA), a progressive neuromuscular disease that can be fatalData from the gene therapyprogramme forDuchenne muscular dystrophy (DMD), a progressive disease that leads to premature death, reinforce confidence in the most advanced Phase 3 study currently underwayStudy designs of two new trials ingeneralised myasthenia gravis (gMG), a rare chronic autoimmune disease, andfacioscapulohumeral muscular dystrophy (FSHD), a genetic muscle disorderBasel, 05 October 2022 - Roche (SIX: RO, ROG; OTCQX: RHHBY) today announced that new data from its industry-leading n...
Source: Roche Investor Update - October 5, 2022 Category: Pharmaceuticals Source Type: news
