Cough question
My daughter recently had an endoscopy done. Anesthesiology told me "she had more respiratory secretions than we normally see, typically we see it if someone has a cold" According to her GI doc they "suctioned a great big blob out during extubation and said she should feel some relief now" I did ask anesthesiology if they could culture any secretions they encountered, they said that is not something they do. :( She has had this chronic, productive, daily cough since this past October. Last Friday she had tubes put in both her ears d/t failing her hearing test, large amount of fluid behind her ears and 6 ...
Source: Cystic Fibrosis Newly Diagnosed Forum - April 9, 2015 Category: Respiratory Medicine Authors: Makmomma2 Tags: Newly Diagnosed Source Type: forums
Headache which gets worse when I cough
Forum: Health
Posted By: Anonymous
Post Time: 22-03-2015 at 00:21 (Source: The Student Room)
Source: The Student Room - March 22, 2015 Category: Universities & Medical Training Source Type: forums
Sweat test scheduled...I have so many questions
Hi there. I have four children ages 8, 6, 3.5 and 21 months. My youngest is being tested for CF. My 6 year old was tested when he was 3, and his first test was inconclusive, his second was negative. My 21 month old was sent to a pediatrician (he normally sees a NP a family practice) because of his small stature. He is still in 6/9-9/12 month clothing , weighs 20 lbs on a good day, and is 30.5 inches. He has a wonderful appetite and eats a variety of foods. His stool has always been bulky. With whole food, stringy mucus at times, and very greasy/soft/SMELLY. Since my older son (the one who was previously tested) also had/ha...
Source: Cystic Fibrosis Newly Diagnosed Forum - March 18, 2015 Category: Respiratory Medicine Authors: 1princess3princes04 Tags: Newly Diagnosed Source Type: forums
Is it normal to cough up mucous while casually working out and doing treatments?
Cause I've seen that a lot of CFers do that, but I don't. I don't cough up anything. why is that?
My pft is 111% btw (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - March 16, 2015 Category: Respiratory Medicine Authors: Enzo2311 Tags: Exercise & Fitness Source Type: forums
Is cough etiquette more useful than handwashing in prevention of swine flu in india?
(Source: BMJ Comments)
Source: BMJ Comments - March 13, 2015 Category: Journals (General) Source Type: forums
Should it be considered?
I know that we are supposed to trust our doctors. They've gone to college for many years and they know a lot. I'm currently 15, a female, and I've had many problems with my doctor. He diagnosed me with asthma about a year and a half ago, and for the most part, I accepted that. But my mom was diagnosed with CF when she was pregnant with my little brother. He was tested, but I never was. My mom brought that up to him when the asthma meds weren't having the desired effects, but he simply told her the tests she had must have been wrong and that she didn't have CF. I unno he's a doctor, and maybe he's right, but I am just so ti...
Source: Cystic Fibrosis Newly Diagnosed Forum - February 21, 2015 Category: Respiratory Medicine Authors: tiffanymarie316 Tags: Newly Diagnosed Source Type: forums
Sinus Surgery in 4 Year Old- Looking for Information
Hi everyone! My son is 4 years old (DDF508) and it looks like sinus surgery might be happenning in the next few months. From Sept-December he was on sick plan almost non stop (3 weeks to get rid of the illness, 1 week off, repeat)-- no huge illnesses but a very insistent cough that kept coming back. He also had sinusitis that whole time as well. He's been healthy since the end of December after a round of bactrim, luckily, but they had him do a CT scan to get a better idea of why he had a hard time staying healthy. Not surprisingly the CT scan showed his sinuses completely blocked up with mucus. They said he's too you...
Source: Cystic Fibrosis Families Forum - February 5, 2015 Category: Respiratory Medicine Authors: CCyr Tags: Families Source Type: forums
struggling for answers
So last week I posted a thread on everything going on with my daughter. Long story short we had one sweat test done, came back elevated/positive for CF. Pulmonary doctor sent us to a CF center had another sweat test done. They actually did 2 different types yesterday. Results came back borderline/positive with these 2 test. Her pulmonary doctor told me I need to stop worrying he doesn't feel she has CF he is done testing. Told me he doesn't know what's wrong and we should just go on about our life as she just has a cough!!! 😠😠😠 any ways I guess I really like to know other parents input on what I sh...
Source: Cystic Fibrosis Newly Diagnosed Forum - January 29, 2015 Category: Respiratory Medicine Authors: jabug8 Tags: Newly Diagnosed Source Type: forums
new need opinions
Let me start from the beginning.Last December my daughter was diagnosed with malabsorpation. She was 10lbs at 7 months old. We seen a gastric specialist. Changed diet etc. She gained weight and doctors were happy. When she turned a year old in may we discovered she is lactose intolerant. It progressively got worse until 3 months ago. The middle of October my daughter formed a nasty cough and runny nose. Doctors told me it was viral.for a month my daughter would cough so bad at night it would make her sick, keep her awake. She would scream in her sleep. (Not night terrors) finally I got fed up. My daughter was suffering. I...
Source: Cystic Fibrosis Newly Diagnosed Forum - January 21, 2015 Category: Respiratory Medicine Authors: jabug8 Tags: Newly Diagnosed Source Type: forums
Best cures for a cough/cold fast
Forum: Chat
Posted By: mrocd2014
Post Time: 27-12-2014 at 20:47 (Source: The Student Room)
Source: The Student Room - December 28, 2014 Category: Universities & Medical Training Source Type: forums
Christmas cough
It never fails that this time of year is hard. Too many germs. My daughter had a dry cough last week(I was hoping it would go away, trying to ignore)..She had a routine CF appointment last week. This week she started feeling more yucky, tired increase in cough(really dry and irritated cough, yesterday she had a fever:( called the clinic and sure enough she grew some staph. She's on high dose Bactrim started that yesterday...We are planning on going to visit family at the end of the week. Today her lungs had a few squeaks which cleared....Not sure if this trip will happen...Feel like we are always disappointing our f...
Source: Cystic Fibrosis Families Forum - December 23, 2014 Category: Respiratory Medicine Authors: Rebjane Tags: Families Source Type: forums
DNA results
Well my daughter had the fecal elase (not sure on spelling, sorry) testing done, doctor at CF clinic said it came back fine, no loss of pancreatic function, so relieved!! She also had blood drawn for the Ambry full screen. We waited a little over a month till the doctor called with results. He said given her negative sweat tests and only the one known disease causing mutation he is considering her just a carrier. I was so relieved with this news I didn't think to ask what the actual results were! I called the CF clinic asking if they could fax the results of both tests to me & the receptionist stated she would have to ...
Source: Cystic Fibrosis DNA and Mutations Forum - December 11, 2014 Category: Respiratory Medicine Authors: Makmomma2 Tags: DNA and Mutations Source Type: forums
Pseudomonas and Balancing Work & Treatment
Good morning. My 8 month old daughter had a cough for 5+ weeks and the CF clinic asked us to bring her in for a check. She dx as CRMS due to her mutations (DF508 and F1052V) and is tracked by our local CF clinic. F1052V is very rare and causes CF in some, and not in others.
Her lungs sounded clear so the doctor told us to start CPT 2x/day to see if that helped. Her theory was that this wouldn't hurt her and COULD possibly help her. They did a chest xray which showed bronchitis of some sort but no pneumonia and the doc said her lungs sounded perfectly clear.
Well...two days later I get a phone call from the nurse. M...
Source: Cystic Fibrosis Newly Diagnosed Forum - December 11, 2014 Category: Respiratory Medicine Authors: lauryn.tubes Tags: Newly Diagnosed Source Type: forums
Working Towards Diagnosis - Fearing CF
Hello everyone! I have a 17 month old son who I fear may have CF. He is in the process of being worked up for poor weight gain, malabsorption, and iron-deficiency anemia. Among his symptoms, include poor weight gain (he's in the 14th percentile), malabsorption (he eats like a linebacker and at 17 months old still hasn't tripled his birth weight), has increased fat in his stool, has microcytic/iron-deficient anemia despite being on the max dose by weight of iron, has a persistent, phlegmy cough (he's in daycare, had RSV at 5 months old that did not require hospitalization but has never seemed to clear this cough/cold since ...
Source: Cystic Fibrosis Newly Diagnosed Forum - December 8, 2014 Category: Respiratory Medicine Authors: ChelseaLu Tags: Newly Diagnosed Source Type: forums
Going to the doctor for a sweat test rcmndtn.
Im going to the doctor this week to try and get a recommendation for a cf sweat test. Im worried they may think Im crazy, but I'm so frustrated that I dont know what else to do. Since a child I have been getting sinus infections and bronchitis frequently. My doctor diagnosed me with asthma and put me on antibiotics and that worked for a while. I'm now 22 years old (female) and have started going downhill since 16. I know cystic fibrosis is usually diagnosed as a child but i was not tested at birth and I have read that some milder mutations do not.become severe until later in life. Anyway at 16 I started having severe pain ...
Source: Cystic Fibrosis Teenagers and Young People Forum - November 12, 2014 Category: Respiratory Medicine Authors: plainjane Tags: Teenagers and Young People Source Type: forums
