Pseudomonas and Balancing Work & Treatment

Good morning. My 8 month old daughter had a cough for 5+ weeks and the CF clinic asked us to bring her in for a check. She dx as CRMS due to her mutations (DF508 and F1052V) and is tracked by our local CF clinic. F1052V is very rare and causes CF in some, and not in others. Her lungs sounded clear so the doctor told us to start CPT 2x/day to see if that helped. Her theory was that this wouldn't hurt her and COULD possibly help her. They did a chest xray which showed bronchitis of some sort but no pneumonia and the doc said her lungs sounded perfectly clear. Well...two days later I get a phone call from the nurse. My daughter cultured Pseudomonas. I've read up on the Pseudomonas on this web site and google and have found out that she has the non-mucoid version, which is a good thing. The doc said she's not sure if she's going to dx my daughter as CF now or not, and I'm not overly anxious for any sort of classification...I'm just confused about the occurrence of Pseudomonas in non-CF people. The nurse told me it CAN occur in other people, but it's rare. I looked up F1052V on the CFTR website, and out of the 12 people with that mutation, 0 have cultured Pseudomonas. All of this information just leads me to believe that my daughter is leaning more towards to CF realm. And what are the side effects of Pseudomonas? Could this be what's causing her cough and congestion or is it simply a pro-active measure to prevent the Pseudomonas from colonizing into the mucoid type? ...
Source: Cystic Fibrosis Newly Diagnosed Forum - Category: Respiratory Medicine Authors: Tags: Newly Diagnosed Source Type: forums