Sinus Surgery in 4 Year Old- Looking for Information

Hi everyone! My son is 4 years old (DDF508) and it looks like sinus surgery might be happenning in the next few months. From Sept-December he was on sick plan almost non stop (3 weeks to get rid of the illness, 1 week off, repeat)-- no huge illnesses but a very insistent cough that kept coming back. He also had sinusitis that whole time as well. He's been healthy since the end of December after a round of bactrim, luckily, but they had him do a CT scan to get a better idea of why he had a hard time staying healthy. Not surprisingly the CT scan showed his sinuses completely blocked up with mucus. They said he's too young to do nasal rinses so they are referring us to an ENT who will most likely want to do surgery, although we haven't met with them yet. He's culturing stenotropomonas maltophilia currently altho has cultured staph aureus and pseudo in the past. I know sinus surgeries don't seem to last very long for CFers so I was wondering what everyone else's experience with it was like with a young child? As he gets older I assume we will start nasal rinses to prevent needing more surgeries in the future, but for now this seems like to only way to clear him up. I know it's a pretty brutal surgery so I'd be really interested in hearing your opinions- was it worth it? Does your child get sick more often with clogged sinuses? Do they usually do a tune up while he's already in the hospital for the surgery? How long did it take to get back to normal after the surgery? Wou...
Source: Cystic Fibrosis Families Forum - Category: Respiratory Medicine Authors: Tags: Families Source Type: forums