new need opinions

Let me start from the beginning.Last December my daughter was diagnosed with malabsorpation. She was 10lbs at 7 months old. We seen a gastric specialist. Changed diet etc. She gained weight and doctors were happy. When she turned a year old in may we discovered she is lactose intolerant. It progressively got worse until 3 months ago. The middle of October my daughter formed a nasty cough and runny nose. Doctors told me it was viral.for a month my daughter would cough so bad at night it would make her sick, keep her awake. She would scream in her sleep. (Not night terrors) finally I got fed up. My daughter was suffering. I was suffering. There was no sleep. My precious daughter turned into a mean little girl 😟 on black Friday her Dr diagnosed her with asthma (her daddy's side has it bad and she was a premier) so the Dr gave us a nebulizer with pulmicort(sp??) And albuterol for emergencies. 2 weeks in she was the same. Coughing bad, snotty nose but sleeping was better. Dr refered us to a pediatric pulmonary. He did an auto immune (Aa) blood work. And ordered a cf sweat test. Started her on singular and upped the nebulizer to twice a day. We did the sweat test. I got the phone call her levels were elevated. Now we are scheduled to do another sweat test at a cystic fibrosis center. The center says this test is more in depth. Her pulmonary dr said that he doesn't think the new test is needed as he believes her results were not elevated enough. The CF center told me she ha...
Source: Cystic Fibrosis Newly Diagnosed Forum - Category: Respiratory Medicine Authors: Tags: Newly Diagnosed Source Type: forums