Health-Related Quality of Life Outcome Measures in Individuals With Hereditary Hemorrhagic Telangiectasia: A Scoping Review

CONCLUSIONS: Comparison of results across studies remains challenging given the heterogeneity in outcomes measures. Further development of HHT-specific patient-reported outcomes instruments that capture the global illness experience of HHT is needed.PMID:37855028 | DOI:10.1177/19458924231207123

Source: American Journal of Rhinology and Allergy - October 19, 2023 Category: ENT & OMF Authors: Anna J Gong Tushar Garg Adham Khalil Prateek C Gowda Stephen C Mathai Nicholas R Rowan Christian A Merlo Clifford R Weiss Source Type: research