Understanding Self-determination Learning Experiences Among Taiwanese Adults with Severe Disabilities
In this study, we interviewed 10 participants from Taiwan, all of whom had severe to profound physical disabilities or multiple disabilities. Data were analyzed thematically, and the following themes regarding participants ’ self-determination experiences emerged: (1) beliefs about self-determination, (2) challenges from external interference, (3) challenges from societal and cultural influences, (4) peer support for self-determination, and (5) family support for decision-making. Findings are discussed along with im plications for the teaching of self-determination practices to relevant stakeholders. (Source: Journal of ...
Source: Journal of Developmental and Physical Disabilities - April 24, 2024 Category: Disability Source Type: research

Perspectives from the Autism Community on the Potential Utility of a Novel Measure of Suicide Risk and Mental Health Symptoms for Autistic Youth: A Pilot Study
AbstractBecause autistic youth experience increased suicide risk and there are no suicide risk screening tools for this population, existing measures need to be evaluated and then modified with input from the autism community. This pilot study obtained feedback from autistic youth, caregivers, and autism specialist clinicians (N = 14) on the applicability of a novel measure of suicide and mental health symptoms, theKiddie-Computerized Adaptive Test (K-CAT) scales, for use with autistic youth. While impressions were largely positive and several features support its use, participants identified several concerns that warr...
Source: Journal of Developmental and Physical Disabilities - April 24, 2024 Category: Disability Source Type: research

Relationships Between Affiliate Stigma, Special Education Plans, and Family-school Partnerships Among Latino Parents of Children with Disabilities
AbstractLegislative mandates dictate that students with disabilities are provided instruction, services, and supports needed to progress in school (Individuals with Disabilities Education Act [IDEA] Part B,2004) which can be in the form of Individualized Education Plans (IEPs), Individualized Family Service Plans (IFSP) for children three and under, and 504 plans. A number of studies have highlighted the ways in which these formal educational processes may increase stress among parents (Rios et al.,Research in Autism Spectrum Disorders,73(March), 101534,2020). However, formal educational processes may also be protective in...
Source: Journal of Developmental and Physical Disabilities - April 18, 2024 Category: Disability Source Type: research

Long-Term Outcomes after Behavior-Analytic Intervention for Pediatric Feeding Disorders
AbstractMany children with autism spectrum disorder experience feeding difficulties that can lead to increased health risks (e.g., severe nutrition deficiencies, obesity-related illnesses) if left untreated. Intensive feeding programs that use behavior-analytic interventions have reported positive outcomes for treating challenging behavior associated with pediatric feeding disorders at discharge and up to 1 year post discharge. Whether these children achieve and maintain long-term goals is unknown. The purpose of the current study was to evaluate outcomes of behavior-analytic intervention for pediatric feeding disorders am...
Source: Journal of Developmental and Physical Disabilities - April 18, 2024 Category: Disability Source Type: research

Identifying the Correlates of Individual, Peer and Systemic Advocacy Among Parents of Children with Disabilities Who are Interested in Civic Engagement
AbstractParent advocacy is often critical for families of individuals with disabilities. Prior research has suggested that parent advocacy occurs across three levels: individual, peer, and systemic. Yet, little empirical research has identified the correlates of advocacy for each level. For this study, we examined the survey responses of 246 parents of individuals with disabilities who were interested in participating in a legislative advocacy program. Analyses included hierarchical regressions to identify the correlates of individual, peer, and systemic advocacy. Parents of children with autism were significantly more lik...
Source: Journal of Developmental and Physical Disabilities - April 15, 2024 Category: Disability Source Type: research

Communication Modality Preference and the Social Validity of Functional Communication and Mand Training
AbstractResearchers have shown that behavioral interventions that incorporate communication as a focus have demonstrated efficacy for individuals with intellectual and developmental disabilities (IDD). Researchers have demonstrated that individuals with IDD allocate responding to one communicative response modality over others when multiple communicative modalities produce reinforcement in the context of a concurrent-schedules arrangement. Identifying preference for communicative response modality provides one approach to incorporating aspects of social validity in the design of behavioral interventions for individuals wit...
Source: Journal of Developmental and Physical Disabilities - April 1, 2024 Category: Disability Source Type: research

Redesigning Rooms of Clients With Intellectual Disabilities and Severe Behavioral Problems in a Long-term Care Facility: Three Case Studies
AbstractTo observe changes in three clients with intellectual disabilities and severe behavioral problems and staff in a long-term care residential facility after redesigning the clients ’ rooms by making them more personal and homely, adjusting the amount of stimuli, changing the layout, connecting to the outdoor area, and using high-quality natural materials. Relatively many clients with intellectual disabilities exhibit severe problem behaviors, including self-harm, aggression toward others, and repeated destruction of their own rooms, which can eventually result in a barren, inhumane living environment. Research on ...
Source: Journal of Developmental and Physical Disabilities - March 22, 2024 Category: Disability Source Type: research

A Preliminary Trial of an Early Surveillance Program for Autism and Developmental Delays within General Practices
AbstractThere are inequities in engagement with established early childhood developmental surveillance programs, eclipsing disadvantaged families. The current study sought to address this by dovetailing developmental surveillance with immunization visits and other opportunistic contacts with children at general practices). While 53 General Practices  were recruited, significant COVID-19 disruptions resulted in only 81 children being screened (both parent-administered and GP completed). Of the 81 children, 11 screened positive and all of them along with 5% of screen negatives (i.e. 4 children) received clinician-administer...
Source: Journal of Developmental and Physical Disabilities - March 15, 2024 Category: Disability Source Type: research

Promoting Physical Activity Through Telehealth, Peer Support, and Wearables: A Pilot Randomized Controlled Trial Among Adults with Autism Spectrum Disorder
AbstractDespite strong evidence in favor of physical activity (PA), adults with autism spectrum disorder (ASD) are not meeting established PA guidelines to engage in at least 150 min of moderate to vigorous PA per week. Barriers to daily PA engagement include limited access to health services, transportation, and reduced self-determined motivation. Telehealth provides a potential alternative to deliver PA programming in a more accessible platform for adults with ASD. This pilot randomized controlled trial (RCT) assessed the preliminary efficacy of a 10-week PA intervention program called Physical Activity Connections via T...
Source: Journal of Developmental and Physical Disabilities - March 13, 2024 Category: Disability Source Type: research

Improving the Cultural Responsiveness of Measures for Latino Families of Children with Autism
AbstractIncreasingly, interventions are being developed and tested with families of color, including Latino families of transition-aged youth with autism. However, without culturally responsive measures, it is difficult to determine whether an intervention is effective. The purpose of this study was to improve the cultural responsiveness of measures related to: knowledge of adult disability services, advocacy, and family empowerment. Altogether, 30 Latinx parents of youth with autism participated in this study. Participants completed surveys and interviews to inform changes to the measures. Changes were made in relation to...
Source: Journal of Developmental and Physical Disabilities - March 12, 2024 Category: Disability Source Type: research

Community care: Exploring Natural and Formal Support for People with Disabilities in the Bastis of Mumbai
This study used a qualitative exploratory approach and explored the benefit of integrated support (natural  + formal) for people with disabilities. Fifteen people with diverse disabilities and thirteen support providers were purposely recruited from five bastis, and data was collected through face-to face interviews and through a psycho-social helpline. Three themes, i) understanding formal and natur al supports in Bastis, ii) the role of the community, and iii) the Intersection of formal and natural support. Findings indicate that while formal and natural supports have their independent benefits, yet together these su...
Source: Journal of Developmental and Physical Disabilities - March 8, 2024 Category: Disability Source Type: research

Teaching Siblings to Encourage and Praise Play: Supporting Interactions When One Sibling is Autistic
In this study, we taught four non-autistic siblings to encourage and praise play with their autistic siblings as well as self-monitor those play skills. We also measured changes in social-communicative behaviors during siblings’ interactions. All non-autistic siblings learned th e targeted play skills and the majority increased social-communicative behaviors. Only one autistic child increased their social-communicative behaviors toward their non-autistic sibling. On average, sibling dyads engaged in more interactions, with an increase in the duration of interactions during play. Future sibling intervention research shoul...
Source: Journal of Developmental and Physical Disabilities - March 8, 2024 Category: Disability Source Type: research

ABA Promotes Autonomy and Choice of People with Intellectual and Developmental Disabilities
We present behavior an alytic definitions of autonomy and choice, illustrate how each of these strategies enable greater autonomy and choice of people with IDD, and discuss unresolved issues and future directions. (Source: Journal of Developmental and Physical Disabilities)
Source: Journal of Developmental and Physical Disabilities - February 27, 2024 Category: Disability Source Type: research

Career Burnout in Parents of Deaf and Hard-of-Hearing Children: Do Self-Regulation and Resilience Matter?
This study focuses on the relationship between resilience, self-regulation and job burnout of parents of deaf and hard-of-hearing children in mainland China, and expands the research field of resilience and job burnout. The limitation and influence of this study are also discussed. (Source: Journal of Developmental and Physical Disabilities)
Source: Journal of Developmental and Physical Disabilities - February 22, 2024 Category: Disability Source Type: research

Microlearning as a Concept to Optimize Integrated Services for Racially/Ethnically Diverse Families of Autistic Children
We present the process of adapting Parents Taking Action, a community-based culturally appropriate intervention targeting racially/ethnically diverse families of young autistic children, using the microlearning approach. We further discuss how the microlearning concept can be applied and its limitations. (Source: Journal of Developmental and Physical Disabilities)
Source: Journal of Developmental and Physical Disabilities - February 19, 2024 Category: Disability Source Type: research