Welcome to my New Granddaughter
My daughter had a BABY GIRL!! Her name is Sydney Ann she was a couple weeks early but mom and baby doing great!! She was 6lbs and 9 oz she seems so little!! Been a while since we have had a newborn! I feel so blessed she is perfect! Connor is my grandson he is 7 years old he has CF and he could not be happier!! He loves to hold her, rock her and sings to her. But he does not want us to hear so he sings very softly it just melts my heart! (L) pics on my profile! Connor had a very rough year last year but now he is doing great!! Back to school in 2nd grade and very happy, smart little guy! because of the rough year Connor...
Source: Cystic Fibrosis Families Forum - September 22, 2015 Category: Respiratory Medicine Authors: Carol H Tags: Families Source Type: forums

Question about Cultures - When is it concerning?
I've posted a few times but the quick background is I have a 15 month old son dx CRMS (one disease cause and one variable mutation). He just switched from one clinic that was being reactive to a more proactive clinic last month. The question I have right now is about throat cultures. He has never had a completely clear swab but so far we have been told that nothing he has cultured needed to be treated. I have trusted that and I do still trust that, but I guess I am wondering when a positive culture would warrant treatment or when a positive culture may be something to be more concerned over. He has never cultured pseudo so...
Source: Cystic Fibrosis Families Forum - September 21, 2015 Category: Respiratory Medicine Authors: emason Tags: Families Source Type: forums

Asthama and PFT?
I'm hoping our resident expert (Dot the darling!) can help with this but wanted to post instead of PM in case others have similar questions but also in case others have ideas based on their clinic's handling. DS has just figured out the spirometer and in prep for next week's quarterly I wanted to see what how things changed pre and post brochialdialtor. When he was an infant and they did the "plastic box" test he had a pretty sharp improvement after the Xopenex which they said indicated an asthmatic component. he's been on Qvar daily for a couple years when he had a cough with running. So I'm wondering if that h...
Source: Cystic Fibrosis Adults Forum - September 21, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

Orkambi and Pregnancy
Anyone here that is taking Orkambi and trying to get/is pregnant?? (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - September 21, 2015 Category: Respiratory Medicine Authors: Callista15 Tags: Pregnancy Source Type: forums

GlobalGenes.org in Huntingdon Beach California
I will be there representing all of us! We are being sponsored by Healthcare at Home a company from the UK. I met Natalie Douglas in April at an eyeforpharma conference in Philadelphia. She is a Board member of www.globalgenes.org. She is impressed with our community, and the work we are doing since the important survey when 478 of you participated. I will bring the reports...but mostly KNOW that YOU are the Gatekeepers of so much important work for Rare Diseases! I want to let everyone know YOU are the ones who cheer each other into clinical trials. You are the ones who are testing personalized medicine...which as Littl...
Source: Cystic Fibrosis Adults Forum - September 21, 2015 Category: Respiratory Medicine Authors: Imogene Tags: Adults Source Type: forums

Best nebulizer recommended for Tobi and Pulmozyme
My daughter who is almost 5 just recently started doing Pulmozyme and will start Tobi in a few days. Up until now we were doing her nebs using a device that is not specifically recommended for CF meds. I want to look for something online (I live in the middle east and we don't have these types of nebs available locally) that would be the best for use with these medications but I have no idea where to start. Can you guys recommend something for me? I want a device that is known for its best delivery of these medications and if it's light-weight and can operate on batteries as well as a power cord then this would be a plus. ...
Source: Cystic Fibrosis Families Forum - September 20, 2015 Category: Respiratory Medicine Authors: MyBabyCeline Tags: Families Source Type: forums

Just one day off
So was at the hair salon (woops, typo, but now THATwould be nice!) and overhearing the ladies next to me chatting about one lady whose son just started football and they practice everyday and even though it's just up the block, the drop off and pick up just is constant and "oh, can't we just have one day off." They. Have. No. Idea. How blessed they are. (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 19, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

long term hospital stay
I was in upmc for a month had pnemonia and mucus plugs and my pfts went down by 20% culured mersa and b cepicea amd phsudo had bronc scope and had a bad reaction to it got a fever a high one that couldn't get down for couple days got confused amd really scared but it broke and they got out 2 mucus plugs out I was on fortaz iv and televansin in and another iv I forget the name but was one they always give me I got out bout 4 weeks now getting legs back was hard lost alot of wt and mucle got pft back to base but went for check up pft back down some and having short of breath and streaks of blood in mucus this just started fe...
Source: Cystic Fibrosis Adults Forum - September 19, 2015 Category: Respiratory Medicine Authors: cam Tags: Adults Source Type: forums

spacer brand
any comparator between optichamber and vortex? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 18, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

Bronchial dialator question
Stupid question (again). How does chronic treatment with bronchial dialator's help those with CF? My understanding is it opens the airways. But what does it do for CF? I mean it doesn't think the mucus...and if there is no excerabation or shortness of breath, what is the way that it works prophelatically? The reason I'm asking is this: We do 2x a day. Occassionally, if DS is coughing more than baseline (like after a day outside with lots of polland), I might do 3x. So what I want to discuss with the doctor is whether it makes sense to always do 3x a day (I would do the mid-day one with an inhaler and not nebulized, absen...
Source: Cystic Fibrosis Adults Forum - September 17, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

Pancreatic Issues and Orkambi
So I am having stomach issues since I started taking Orkambi. It seems that when I increase my dosage of zenpep these issues subside on their own. Yesterday, I asked my doctor if I could up my dosage of zenpep, currently 13 per meal, by 1 or 2 pills and was told that I could not. His response was that I would go over the maximum amount of Lipase per day and would scar my colon. However, I have done some research on my own today and have found that the dosing info says 2,500 units of lipase per kg per meal OR 10,000 units of lipase per kg per day. If I use the daily calculation I still have another 11 pills I could actually...
Source: Cystic Fibrosis Adults Forum - September 16, 2015 Category: Respiratory Medicine Authors: brad.johns Tags: Adults Source Type: forums

Lifetime of undiagnosed GI symptoms + asthma and waiting for genetic testing
(Source: Cystic Fibrosis Newly Diagnosed Forum)
Source: Cystic Fibrosis Newly Diagnosed Forum - September 16, 2015 Category: Respiratory Medicine Authors: shretl Tags: Newly Diagnosed Source Type: forums

R117h + ivs8-5t/78/9t/7t
We got a phone call from the hospital where my two week old daughter was born...they said that he CF test came back positive with this info R117H + IVS8-5T/78/9T/7T... Can someone please help me figure out what this means? They were no help over the phone. My wife is a carrier of CF, but not sick at all...we told the baby's pediatrician about this and she said not to worry about a sweat test yet, but now the hospital wants us to have one! Any help would be great! (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - September 16, 2015 Category: Respiratory Medicine Authors: adamgreenberger Tags: DNA and Mutations Source Type: forums

Where to find "generic" Kalydeco
Hello dear friends, A close friend of mine has one of the gene mutations to be treated with Kalydeco but is not available here in Chile (and even if it was, the financial aid or insurance coverage for this kind of medication is non-existent here and way out budget for almost any family). We have heard there might be some "generic" versions being produced and sold in Israel, India and China, but so far we haven't been able to find a reliable contact. I would really appreciaty any kind of information that might help us find a reachable option. Thanks in advance Sebastian (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 15, 2015 Category: Respiratory Medicine Authors: aifenua Tags: Adults Source Type: forums

scholarship info
In placing an order earlier I was chit chatting with the agent based on my .edu email address and he shared with me some info for scholarships, which I'm posting here too: The scholarship award information, criteria for the scholarship, application process, and deadline for submission are provided at http://www.vitalitymedical.com/scholarship. (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 15, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

More exciting research to fix cftr
Proqr http://finance.yahoo.com/news/proqr-...110000137.html (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 15, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

constant sinus drainage after lung transplant
I had a lung transplant (and liver) in late 2012. I had sinus surgery in December 2013. But I have constant mucus buildup and sinus drainage 24/7. I blow my nose several times a day and cough up stuff often that I know is from the sinus drainage. I do sinus rinses at least once a day, every day along with nasonex every day. I don't want this to cause an infection. I feel like this is getting worse and my ENT just says its CF and doesn't do anything about it (although he does clean out my sinuses when I see him). Does anyone have any remedies to decrease the amount of mucus buildup in my sinuses? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 14, 2015 Category: Respiratory Medicine Authors: randomgirl Tags: Adults Source Type: forums

Help Please: 50 psi recommendations
What 50 psi compressor do you use/have you used? Pros/cons, etc? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 14, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

Own your own health records?
only in New Hampshire! It is a beginning...for patient self management! http://www.xconomy.com/san-diego/201...-patient-data/ I love Eric Topol...Hope I can meet him someday soon! Salt and Light, jeanne (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 14, 2015 Category: Respiratory Medicine Authors: Imogene Tags: Adults Source Type: forums

Transcript from FDA Advisory Committee Meeting for Orcambi
Is finally available on line here: http://www.fda.gov/downloads/Advisor.../UCM455654.pdf (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 12, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

Looking for Stock photos for fundraising
I am looking for a few photos to download for our CF walk. In the past, to promote awareness I would use a photo of my daughter. I think she would prefer a generic photo of a logo from the CF foundation or purple ribbon and I am having trouble finding something. Help? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 12, 2015 Category: Respiratory Medicine Authors: Rebjane Tags: Adults Source Type: forums

strange question about chairs for vest users
My adult son uses an airway clearance vest 2 times a day. He is pancreatic sufficient and not on the skinny side. He needs to sit at a desk while he does the vest so he can do nebs (and look at a computer screen to ease boredom) at the same time. Anyway, with the oscillation of the vest, he has so far broken 4-5 different chairs. Some break while he is on the chair, and some break several days or months later. Several of them were Danish modern quality chairs made of teak from a high end furniture store. Several of them were less expensive chairs with caning. It seems that any chair with joints that can come apart from c...
Source: Cystic Fibrosis Adults Forum - September 11, 2015 Category: Respiratory Medicine Authors: fel Tags: Adults Source Type: forums

Stupid spirometer question
If a spirometer is properly working (sincroniced or whatever its called/spelled), is it possible for it to wrongly record a too high number based on a child's improper technique? I can see a low number being wrong or not an accurate assessment because the technique is wrong, but is it possible for a high number (that isn't repeatedable, because of youth and inability to consistently do a good technique), to be wrong or inaccurate based on technique? Or can you assume if there are 6 blows and one is high and the others all low, the high is the "correct" one and the lows are based on inconsistent/inaccurate techniq...
Source: Cystic Fibrosis Adults Forum - September 10, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

Traveling Abroad
I've recently just applied to travel abroad to Thailand with my school but have never before traveled outside of the US. Does anyone have any suggestions on how to safely get all meds on the plane, through security, etc. Or any other good travel tips. Thank!!! (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 8, 2015 Category: Respiratory Medicine Authors: Jriet Tags: Adults Source Type: forums

Weight Lifting
I've heard weight lifting can help with lung function and improving PFT scores. I'm just not sure what type of weight lifting exercises I should be doing...please help! (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - September 8, 2015 Category: Respiratory Medicine Authors: Jriet Tags: Exercise & Fitness Source Type: forums

In Need o Help Right Away
I have been on this site a few years ago and have decided to return because I am in great need of help, guidance and advice. MY SITUATIONS: I am a 29 year old female from California. I have cystic fibrosis, cystic fibrosis related type one diabetes, I had a double lung transplant 5 years ago and now have numerous transplant complications including 2 types of aggressive skin cancer, cataracts (now currently being treated), chronic pain, osteoarthritis and chronic pain. I have a college degree in anthropology, work as a freelance writer and in customer service and work as a volunteer for several different organizations. T...
Source: Cystic Fibrosis Adults Forum - September 8, 2015 Category: Respiratory Medicine Authors: anthro9310 Tags: Adults Source Type: forums

How do you know when you need IV antibiotics?
I have posted here before about my two sons getting diagnosed in their teens a few years ago. Because we did not go through the normal learning curve with CF, there is some basic knowledge that we do not have. This is one of these instances. My older son, age 20 is having an exacerbation. He has never been hospitalized (for anything, let alone CF). He has been on cipro over 3 days with no positive effect yet. He is using his vest 3 hours a day, and is coughing too much to sleep at night. When we called the doctor, he said all we can do now is take him to the ER if we want to. My question is -- what is bad enough to go ...
Source: Cystic Fibrosis Adults Forum - September 6, 2015 Category: Respiratory Medicine Authors: fel Tags: Adults Source Type: forums

Help with constipation
I've been using MiraLAX once a day and still pretty blocked and hard stools, is anybody else using something different I'm only going like once or twice a week. I'm so bloated and uncomfortable. I need some other methods thanks (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - September 6, 2015 Category: Respiratory Medicine Authors: missmary083 Tags: Pregnancy Source Type: forums

Looking for a thread started by a dad
The dad was lamenting that his young son had lost 40 points PFT in between office visits.. I think it was about two years ago. Thanks for any one who can help me find the thread. Salt and Light, Jeanne (Source: Cystic Fibrosis Families Forum)
Source: Cystic Fibrosis Families Forum - September 6, 2015 Category: Respiratory Medicine Authors: Imogene Tags: Families Source Type: forums

Highest FEV1 ever?
What's the highest % of predicted FEV you've ever had? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 5, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

Looking for more information.
If I test positive for one copy of the R117H-7T mutation and 7T. Does this mean I have Cystic Fibrosis? I was told I am a carrier of the gene. I will not get into see a doctor for another week to discuss results. I am concerned and hoping for more information, if possible. Thank you! (Source: Cystic Fibrosis Newly Diagnosed Forum)
Source: Cystic Fibrosis Newly Diagnosed Forum - September 5, 2015 Category: Respiratory Medicine Authors: MattieG Tags: Newly Diagnosed Source Type: forums

Looking for more information.
If I test positive for one copy of the R117H-7T mutation and 7T. Does this mean I have Cystic Fibrosis? I was told I am a carrier of the gene. I will not get into see a doctor for another week to discuss results. I am concerned and hoping for more information, if possible. Thank you! (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - September 5, 2015 Category: Respiratory Medicine Authors: MattieG Tags: Adults Source Type: forums

Looking for a little more information.
If I test positive for one copy of the R117H-7T mutation and 7T. Does this mean I have Cystic Fibrosis? I was told I am a carrier of the gene. I will not get into see a doctor for another week to discuss results. I am concerned and hoping for more information, if possible. Thank you! (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - September 5, 2015 Category: Respiratory Medicine Authors: MattieG Tags: DNA and Mutations Source Type: forums

Good news
No news is good newsÂ…..just a general note to peeps on here how I'm doing. 35 years old (gonna be 36 in Nov, eek!) PFTs at 95 % and climbing, just signed up for a half marathon, working full time, living with a wonderful and accepting boyfriend, life is good. Feeling grateful. That is all
Source: Cystic Fibrosis Adults Forum - September 5, 2015 Category: Respiratory Medicine Authors: welshwitch Tags: Adults Source Type: forums

Secondary Insurance Reputations
Hi guys, I'm looking to move to another state and will need to get a new secondary insurance. I currently have secondary insurance, so I can't be denied, and I have browsed the "complaint index" for various companies that I can choose from. I also have prescription coverage so I'm mainly just looking at hospital and outpatient service coverage (part A and part B). I've already talked to many resources about how to go about getting my insurance and have seen the ones I can choose from. I was just wondering from a CF perspective have you guys had better luck with certain companies over others? Thanks in advance! ...
Source: Cystic Fibrosis Adults Forum - September 4, 2015 Category: Respiratory Medicine Authors: TheSaltyOne Tags: Adults Source Type: forums

Cystic Fibrosis Tag
Hey everyone, have you guys seen the Cystic Fibrosis Tag videos CFers are doing? It's kinda like a "CF Challenge". From what I understand the CF foundation urged CFers to share their stories and what it's like having CF to help raise awareness and The Frey Life on youtube started the trend of CFers making these videos. It's a really great idea for spreading CF awareness and helps people understand a little bit more about what it's like living with the disease. If you guys haven't already made one, try to do one and post it! Here are just a few so far and more keep popping up everyday: Larry Brian - https://yo...
Source: Cystic Fibrosis Adults Forum - September 2, 2015 Category: Respiratory Medicine Authors: TheSaltyOne Tags: Adults Source Type: forums

Nanny with Special Needs Experience Available
in NYC and surrounding suburbs. I have many years of experience caring for children with unique medical needs, including g-tube/j-tube feedings and respiratory therapy. I truly enjoy watching these children grow. I work closely with the child's medical team and therapists to encourage growth and development. My experience includes working with medical professionals and therapists, including: respiratory therapists, feeding therapists, speech therapists, physical therapists, and developmental specialists. When needed, I have successfully advocated for additional Early Intervention services that will benefit the child's gr...
Source: Cystic Fibrosis Parenting Forum - September 2, 2015 Category: Respiratory Medicine Authors: TNYC Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Seeking vest model 105
This is perhaps a long shot but I figured I would try. I'm a 32 year old CFer and my current vest(older model..received many years ago) is not quite working anymore and I am much need of a newer one. My insurance has already denied me which puts me in a very bad position. I've tried fighting with them for months but the best they can offer me is one for $16,000. I am on disability and have no excess cash, so I was hoping to find someone who perhaps had a 105 model that was not being used that they could donate to me at no or very little cost. If so..please email me at Ikarimalice@gmail.com Thank you very much. (Source: Cys...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - September 2, 2015 Category: Respiratory Medicine Authors: DanielN Tags: Airway Clearance Techniques Source Type: forums

Anyone knows?
Hello So im declining fast, my lungs function dropped from 90% to 45% fev 1 within a few months No antibiotics are working/recovering anything. Also weight is going down fast. I never had any issues witj cf before, not much atleast Its really weird. Its since a year or so. Im thinking ive got ABPA My currents symptons are: - Coughing up dark green mucus with hard pieces in it. - I feel like i constantly have to clear my throat, its harder to talk clearly. - rapid weight and lungfunction loss, not responding to antibiotics used against my known lunginfection. ( i do eat like crazy and get more than enough calorie...
Source: Cystic Fibrosis Adults Forum - September 1, 2015 Category: Respiratory Medicine Authors: Rickengelage Tags: Adults Source Type: forums

Vests for sale for Hillrom
I have several vests for sale. I have a basic black one in a child's medium, a basic black one in a child's large, the new style blue one in a child's large, and a new style one in camo adult small. Not looking to get much for any of them just to help purchase medications. Let me know if your interested in any of them. Thanks (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - September 1, 2015 Category: Respiratory Medicine Authors: emilyspeanut Tags: Airway Clearance Techniques Source Type: forums

Cystic Fibrosis in a Physical Form
Hey guys! Ive made a concept of CF's physical form for my animation. What ya think? CFphy.jpg Attached Images CFphy.jpg (11.2 KB) (Source: Cystic Fibrosis Community Initiatives Forum)
Source: Cystic Fibrosis Community Initiatives Forum - August 31, 2015 Category: Respiratory Medicine Authors: AngelXMikey Tags: Community Initiatives Source Type: forums

My baby is here!
jane newborn.jpg Jane Caterina August 24, 2015 6 lb 7 oz Delivery went smoothly and I'm recovering nicely. We're home now and doing well. Now I'm just trying to eat like crazy so I can keep my weight up so I can continue to breastfeed. Attached Images jane newborn.jpg (92.7 KB) (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - August 30, 2015 Category: Respiratory Medicine Authors: Meg73 Tags: Pregnancy Source Type: forums

For California Residents - GHPP and Medicare Questions
Hi everyone, My husband Gary and I are new to this forum, so thanks for having it! Does anyone have good answers about Medicare and GHPP? We're confused and need to make a decision very soon about whether or not to take parts B and D. After working all of his life, Gary finally went on disability last year. He has taken GHPP (Genetically Handicapped Persons Program) for years, which covers most everything--no copays or Rx costs--for an annual fee. Gary just received a Medicare notification. He automatically gets part A for hospitalization, as an individual on permanent disability. However, he needs to decide whether to ac...
Source: Cystic Fibrosis Adults Forum - August 29, 2015 Category: Respiratory Medicine Authors: Caszyrose Tags: Adults Source Type: forums

Orkambi and fat
I know there's been a lot of questions about Orkambi and how much fat you should eat with it. Vertex researchers have kindly shared feedback with me that "the data we have with ivacaftor and a controlled diet is with 20g of fat and greater; however, the guidance in the Phase 3 protocols was that LUM/IVA should be taken within 30 minutes of consuming fat-containing food such as a standard CF high-fat meal or snack. A snack may certainly contain less than 20g of fat. In addition, the example of foods in the Orkambi label contain 5-15 grams of fat, so 5 g should be adequate." The researcher also added that "5g ...
Source: Cystic Fibrosis Adults Forum - August 29, 2015 Category: Respiratory Medicine Authors: imported_Momto2 Tags: Adults Source Type: forums

Delta F508 + D797A
We have a recently diagnosed newborn with this rare combination. We have been fortunate enough to speak with several physicians both at Stanford and UCSF, we find ourself facing the great unknown. Our daughter is 6 weeks old, had a positive newborn screening which resulted in the genetic sequencing. Her sweat test came back at 40, clear chest X-ray. normal labs and completely asymptomatic to this point. She is growing normally and had we not had the call from the doctors office, we wouldn't think anything was wrong. I work in a unrelated field of medicine so I was able to get good access to the information available and ...
Source: Cystic Fibrosis DNA and Mutations Forum - August 29, 2015 Category: Respiratory Medicine Authors: sfzobie Tags: DNA and Mutations Source Type: forums

Liquid, tablet or effervescent Zantac for kids?
We use liquid but for various reasons I'm looking to switch and wanted to know thoughts on tablet versus effervescent pills so for Zantac? Anybody's kids use? Are they as effective? Thoughts? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 28, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

The vest clearance system for sale
I have a system for sale was used for a couple months and is still like new. Comes with unit, charger, hoses, meduim vest, and storage bag. Asking $1500 obo please email me at pntlyn@aol.com if interested. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - August 28, 2015 Category: Respiratory Medicine Authors: Mlcroft Tags: Airway Clearance Techniques Source Type: forums

Overanalyzing Buggers
So DS is 6 and until about 6 months ago, never had a bugger. What I'm trying to figure out is does this say anything about his CF sinus functioning...He hasn't seemed to have any sinus issues, but I want to make sure what to look for. He smells very easily; never complains of headaches; his nose runs when he throws a fit/cries or during treatment. The buggers are "normal" as far as I can tell (I say as far as I can tell as I think the carriers stuff hits me, as I have very and frequent thick mucus and GI issues, so who knows if my "normal" is really "normal" in that compartment. So any thoug...
Source: Cystic Fibrosis Adults Forum - August 27, 2015 Category: Respiratory Medicine Authors: Aboveallislove Tags: Adults Source Type: forums

How to
Does anyone make their own saline solution for nebulizing? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 26, 2015 Category: Respiratory Medicine Authors: Jo-anne Tags: Adults Source Type: forums

Styrofoam Rx boxes
So I searched the old threads, but was wondering if anyone has found a place to "donate" or recycle the styrofoam boxes that pulmozyme is shipped in. I have given away to friends and family, but we get 3 of these suckers a month and my garage in being over run by them! I hate to just throw them in the trash. Any suggestions besides building an igloo with them? (Source: Cystic Fibrosis Adults Forum)
Source: Cystic Fibrosis Adults Forum - August 25, 2015 Category: Respiratory Medicine Authors: 2005CFmom Tags: Adults Source Type: forums