Hill-rom vest model 103
I have a Hill-Rom vest model 103 im trying to sell it has not been used long I paid 16,000 out of pocket nd would like to sell it for around 2200 but def willing to go down . I wouldn't sell it if I didn't pay so much out of pocket I have a new one . it will come with the orginal box nd the new vest they call 3-d vest from Hill-Rom never been used its an adult medium it has one hose missing cause I had to replace mine on my other machine but they r easily replaced if instrested u can send me a message on here or to dextersbabygirl4ever@gmail.com. thanks Attached Images image.jpg (13.4 KB) (So...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - June 8, 2013 Category: Respiratory Medicine Authors: dextersbabygirl4ever Tags: Airway Clearance Techniques Source Type: forums

3 months Post Transplant...
My boyfriend was transplanted Feb 24, 2013. He was at about 13% lung function at the time and was listed for about 8 months before transplant. He had one dry run around Thanksgiving of 2012. He was very hesitant about this whole process. In January of 2004 he got a bad case of pneumonia and was put in a medical induced coma. We live in Syracuse NY but he was transported to Boston during this time. he got put on the transplant list there. He was eventually taken off the list because he seemed to bounce back. After being hospitalized for about 6 months... He went back to his normal life.. Even playing recreational sports aga...
Source: Cystic Fibrosis Transplants Forum - June 7, 2013 Category: Respiratory Medicine Authors: Cmk0808 Tags: Transplants Source Type: forums

How did your decline go?
If no one wants to answer that's fine. I'm honestly just curious. How did your decline leading you to need a lung transplant go? I am moderately healthy for a CFer, and have never really known anyone go from being healthy to transplant, only ever met people while they were waiting for the transplant or had already had one. I always wonder, like where were your PFTs 1 year before, 5 years before? I just it's hard for me to wrap my head around sometimes. I mean I've had my own decline, but I'm no where near transplant yet thankfully, and I just always wondered how drastic or fast it is? Or can it happen quickly or slowly? I ...
Source: Cystic Fibrosis Transplants Forum - June 5, 2013 Category: Respiratory Medicine Authors: Lena Bean Tags: Transplants Source Type: forums

24 hour ph study
Hi everyone. As of right now I only need one more test before my lung and liver team present my case to the transplant committee. It's the ph study, you know, the one where they shove a tube up your nose and down your throat to measure your acid reflux. Anyway, I tried it outpatient last week and couldn't stand it. I was in so much pain and throwing up every time I coughed so I ended up taking it out 7 hours in. They want me to try it again on Monday, I'm in the hospital for an exacerbation right now so they say they can give me better stuff to help my throat from being so sore and to calm down my gag reflex. I was just ...
Source: Cystic Fibrosis Transplants Forum - May 30, 2013 Category: Respiratory Medicine Authors: Kyrav Tags: Transplants Source Type: forums

Kalydeco and transplant
Has anyone ever heard of a patient on Kalydeco, who hasn't responded well and has ended up with a transplant anyway? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 23, 2013 Category: Respiratory Medicine Authors: echolaura Tags: Transplants Source Type: forums

Researchers Find Immunity Protein That Ramps Up Inflammation, and Agents That Can Blo
http://www.sciencedaily.com/releases...0331165601.htm "The research team, led by Bill B. Chen, Ph.D., associate professor, Division of Pulmonary, Allergy and Critical Care Medicine, conducted experiments in which mice that lacked the ability to make Fbxo3 were infected with a strain of Pseudomonas bacteria, and found that they had better lung mechanics and longer survival than mice that still made the protein." Read more at link above. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 23, 2013 Category: Respiratory Medicine Authors: CyrilCrodius Tags: Airway Clearance Techniques Source Type: forums

Anyone had experience with essential oils?
Hi there, I was curious if anyone has had any experience with essential oils, particularly do Terra brand? I have read some really encouraging testimonials on these and I am continuously looking for ways to combine my conventional CF clinic medical model with alternative therapies to boost my overall health and wellness. I would love to hear any feedback! Thank you! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 23, 2013 Category: Respiratory Medicine Authors: kristenj Tags: Alternative Medicine Source Type: forums

Fundraising for CFer awaiting double lung transplant
It is that time of year again. For the second year in a row I am promoting a Standup Comedy show to raise money for CF and / or CF Patients. This year we are raising money for Team TLC. Team TLC is a team comprised of friends and family of Terry Lee Carroll. Terry is a 32 year old CF patient who is currently awaiting a double lung transplant. Terry lives in Southgate, KY; just a short distance across the river and a couple miles from Cincinnati, OH. During his wait, he and his family will need to make several trips to the Cleveland Clinic, where he will eventually have his surgery. As you can imagine the financial burden t...
Source: Cystic Fibrosis Transplants Forum - May 22, 2013 Category: Respiratory Medicine Authors: skeeter Tags: Transplants Source Type: forums

Getting the cost of Mini One AMT coverered
We have twin girls with CF. They are 11 months old and after battling with ng feeds for the last 10 months- they had Mini One tubes placed last week. Going into the surgery- the doctors told us that we would have 3 mini ones covered each year through insurance. But now as we are trying to get our replacements ordered- insurance is telling us that they only cover $36 of the $190 cost because that is what the government says a g tube should cost. Does this sound accurate based on anyone's experiences? We do not qualify for gov't assistance through SSI, BCMH, or Medicaid. Any thoughts or ideas or similar experiences would be ...
Source: Cystic Fibrosis Payment Assistance Resources Forum - May 21, 2013 Category: Respiratory Medicine Authors: emacsurak Tags: Payment Assistance Resources Source Type: forums

Vest model 104(105,205) Hill-Rom - need help with configuration for 4years old CFboy
Hello, please can someone help us with configuration and adjusting Vest model 104 (105,205) Hill ROM for 4 years old boy with CF? My friends in Central Europe bought 104 model ...and doctors have no experiences with the vest system in our country. How setup (what values): oscillation frequency (5-20Hz), force (1-10) and duration of treatment (in minutes) for 4year old boy. How many times a day is the treatment ok for him? Should they buy for him Chest Vest or Full Vest? Thank you for any tips! (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 21, 2013 Category: Respiratory Medicine Authors: Johny81Johny Tags: Airway Clearance Techniques Source Type: forums

How to begin to address infertility issues? (Male partner who has CF)
Hi all, My husband has CF. We have been married 3 years and have always hoped that we will be able to have a family, whether biologically or through adoption. We have decided recently that we might be ready to start exploring our biological options. I have done enough research to know that we will likely have to do IVF, and that the first step is to do genetic counseling (I have no idea if I am a carrier). However, we recently moved from Massachusetts to North Carolina... and I am honestly at a loss as to how to begin this process. I don't have any healthcare providers set up yet (we moved one month ago). Another comp...
Source: Cystic Fibrosis Pregnancy Forum - May 17, 2013 Category: Respiratory Medicine Authors: cf1gf1 Tags: Pregnancy Source Type: forums

Fertile CM
Hello, Ive been looking into why I have fertility problems lately. Not fully ready to have a baby but getting there. I was looking up some stuff online and I found this product called Fertile CM. CM stands for cervical mucus. This is my back story..... I am a 27 year old woman, never been on birth control, been in a very long term relationship, figured if it happens it happens, I am healthy and don't need much meds, I am at an overly good weight of 150lbs and 5'7 in height, I have completely regular periods, and they last exactly 3-4 days. I went to have a blood test done to see if my egg count was good and they test for a...
Source: Cystic Fibrosis Pregnancy Forum - May 16, 2013 Category: Respiratory Medicine Authors: kmhbeauty Tags: Pregnancy Source Type: forums

Nothing coming up!
Is there anyone out there like this or is it just me! I'm not very productive at all! I bring tiny amounts up a day even after physio etc and I'm not sure weather this is good or bad and my lung functions around 55-58% so somethings wrong somewhere. My doctor always asks if I bring a tablespoon or teaspoon up but It's more like the size of a thumbnail I bring up a day! (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 15, 2013 Category: Respiratory Medicine Authors: Jellybaby Tags: Airway Clearance Techniques Source Type: forums

diffusing essential oils
I have several friends who claim great success keeping their families healthy by using essential oils in a diffuser. In doing some research on the web, I found that there are certain oils that can be greatly helpful for those with CF, but I also found that there can be some concern for CF kids about any diffuser that uses water along with the oil? Not sure why? Anyone here use a diffuser or know which ones do or do not use water? or if that's even being overly worried and I can really pick whatever diffuser I want? ;) TIA - Heidi mom of Dekorrah - 5mo son with Delta F-508 CF (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 14, 2013 Category: Respiratory Medicine Authors: heidikk Tags: Alternative Medicine Source Type: forums

CPT Advice... Use a Regular Massager?
I have no insurance and am super duper "broke" thanks to tons of medical bills, so was thinking about using a regular percussive hand massager (meant for shoulders and neck) on my ribs and lung area to encourage cough when no one is available to help with CPT, and/or I'm doing my neb, and/or need to clear my airways. Thoughts? Has anyone ever used a non-medical type of tool just because it's better than nothing? xoxo : ) (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 13, 2013 Category: Respiratory Medicine Authors: Bailey Vincent Tags: Airway Clearance Techniques Source Type: forums

Hill Rom Vest Model 105 For Sale
I Have a Hill Rom The Vest System Model 105 For Sale. This device has 182 hours on it. It is in good working condition. The casing has a few scuffs and there are a few dark spots on the display that are not noticeable once powered up. They do not affect the operation of the device. This is a complete system with the hoses, remote, power cable, vest (small), carrying case, manual, cd and original box. I am asking $1500 but will consider any reasonable offer. I am located in Houston but will ship anywhere in the USA. Please contact me at twinbabymama@gmail.com for pictures. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 10, 2013 Category: Respiratory Medicine Authors: twinbabymama Tags: Airway Clearance Techniques Source Type: forums

The Power of Two
After nearly 30 years, a long, hard fight against cystic fibrosis and 3 miraculous double lung transplants between them, Ana and Isa Stenzel are still alive at 41. Watch their incredible story in the acclaimed film THE POWER OF TWO premiering May 22 at 8pm ET & PT on Link TV and KCET. Watch free online starting May 22 at http://bit.ly/11QpWNF (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 10, 2013 Category: Respiratory Medicine Authors: jcahill Tags: Transplants Source Type: forums

Therapies: What do you do each day?
Hey there! I think it would be interesting to read what kind of therapy everyone is doing, especially concerning age, which mutations and where you come from. If you are also interested, please share! I will make a start: 22 months old, with f508del and r553x, living in Germany morning: Sultanol, after that 4ml HTS 6% midday: 2,5ml Pulmozyme evening: Sultanol, after that 4ml HTS 6% after/during each neb session doing stretching exercises, blowing games etc. Taking Kreon, AntraMups, Aquadeks, Vitamin D and if necessary oral Antibiotics (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 7, 2013 Category: Respiratory Medicine Authors: Kaethe108 Tags: Airway Clearance Techniques Source Type: forums

Starting the evaluation for transplant
My son is 22 years old and is getting sick every time he comes off IV meds the dr.s are telling us to get prepared to start the evaluation process. Iam watching my son get sicker and thinner aLl the time And as soon as he comes off the ivs his gets sick again to watch him get disappointed is hard to handle. So I am trying to prepare my self as what this process is going to be like. Can any one tell me about the process and the Drs. have told us in the past that success rate isn't very good but when look on here I read many success stories. I don't know what to think any info would be very helpful (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 6, 2013 Category: Respiratory Medicine Authors: robbiekay Tags: Transplants Source Type: forums

Nexus6 asthma monitoring technology
Auckland-based medical device company Nexus6 has secured $3m from Australia-based life sciences investment firm BioScience Managers. Details can be found here.. http://medicaldevices-business-review.com...asthma-monitoring-technology (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - April 29, 2013 Category: Respiratory Medicine Authors: emilymainzer Tags: Asthma, Allergies and Green Source Type: forums

Tricia Lawrenson
Tricia wanted me to post here for her to let you all know that she received a call for transplant this morning at 7am. We are at the hospital, waiting to find out if it is a go. Thanks. Nate (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - April 27, 2013 Category: Respiratory Medicine Authors: NathanL Tags: Transplants Source Type: forums

Asthma doctors
I wanted to know if any of you know an excellent asthma specialist in the new york city area. The cf clinics can only do so much with severe asthma issues. Need to have someone who really understands asthma and all it's complications. Any suggestions would be appreciated. thanks (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - April 27, 2013 Category: Respiratory Medicine Authors: 4hats Tags: Asthma, Allergies and Green Source Type: forums

My husband just had a transplant...some of his nurses and his surgeon are saying...
He can't have certain foods and drinks. For example, they said he isn't allowed to have any fruits or vegetables that are fresh (otherwise, they have to be cooked) And he cannot have stuff like sushi (with the raw fish in it) And water that isn't bottled. Is some of this true, and do any of you have a comprehensive list of what to eat/not to eat post transplant? Btw, he is doing amazing. He got the surgery Tuesday night and I'm sitting here with him now. He has oxygen stats of 100 without oxygen and has been on room air the whole time. Got up and walked around the nurses station twice on this floor the day after his surge...
Source: Cystic Fibrosis Transplants Forum - April 27, 2013 Category: Respiratory Medicine Authors: Cbegley Tags: Transplants Source Type: forums

Is there a need for a nebulization guidance computer program?
When I was a child, I never used to focus much on doing my inhalations properly. I did them twice a day like I was told but the effect was probably small to nonexistent due to poor technique. I did know the correct technique but it was easier and more fun to do something else while inhaling and ignoring the effectiveness. Luckily, I did a lot of sports so it never really mattered but now when I am grown up I find it incredibly boring to do the inhalations effectively. It is possible to do the inhalations very effectively if there are no outer distractions but if I e.g. read my mail while inhaling this usually leads to very...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - April 24, 2013 Category: Respiratory Medicine Authors: jwk Tags: Airway Clearance Techniques Source Type: forums

transplant and ssdi
Have you had a transplant, and if so did you receive ssdi before the tx? Are you still getting ssdi? If not, when did it stop? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - April 15, 2013 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

looking for asst application for pfizer??? im out of tobi an hypertonic!!!!!!!!
hey guys looking for asst. programs for tobi, hypertonic etc. i belive it was pfizer who had it but not sure. im out of tobi an hypertonic!!!!!!!! my insurance will only pay 80% (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - March 26, 2013 Category: Respiratory Medicine Authors: Matt31 Tags: Payment Assistance Resources Source Type: forums

Allergies with low IGE
My scratch are positive for a large number of allergies, but my bloodwork shows my IGE level is very low. My daughter has the same allergy and blood test results. My sinus CT scan shows lots of mucus from allergies too. So does anyone else have this? I have been reading about non-iGE mediated allergies and that they are treated with mast cell stabilizers such as Zyrtec and Chromolyn Sodium. I found Nasalcrom nose sprey over the counter with Chromolyn Sodium as the active ingredient. I tried the Nasalcrom nose spray and Zyrtec and they seem to be working. I am not a medical person, so if anyone has experience with these me...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - March 21, 2013 Category: Respiratory Medicine Authors: Beccamom Tags: Asthma, Allergies and Green Source Type: forums

Smoking Pot/RSO Oil
I have been using Rick Simpson Oil now for 3 weeks and I have seen some amazing results.http://phoenixtears.ca/ I have also been smoking Marijuana for a year now. Ive found that it breaks and forces that mucus up. Sure the coughing hurts and is certainly not fun but if you can tough out the painful part smoking gets easier over time and the pain relief is almost instant! Anyone else experiencing great results with Marijuana use? I was not ever officially diagnosed with CF we started to suspect I had it a year ago. Over time I noticed my "asthma" attacks getting worse and worse and it feels like I have a lung infe...
Source: Cystic Fibrosis Alternative Medicine Forum - March 5, 2013 Category: Respiratory Medicine Authors: burnanator420 Tags: Alternative Medicine Source Type: forums

Is anyone selling a vest? we are fundraising for one x
Hi, im in the UK, we have been fundraising to buy my 17 year old daughter the vest, she has Pseudomonas and B-cepacia and would really benefit from the vest, has anyone got one for sale please and able to send to the uk, ill pay full shipping costs obviously, please let me know thank you Nikki mum to Chloe, 17 years old with CF ad CFRD, pseudomonas, B-cepacia. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - February 26, 2013 Category: Respiratory Medicine Authors: Nikki Hinchliffe Tags: Airway Clearance Techniques Source Type: forums

Reactions to Ceftazidime
Hi, I'm new here and have never posted before, so I hope I'm doing the right thing?!?!? My daughter (16yo with CF) was in hospital last week having IV Ceftazidime and Tobramycin to treat pseudomonas. I was wondering if anyone has had a reaction to Ceftazidime? She has previously had other medications, but this time and last year when she was in, she seemed to have a reaction of some sort, to something. The doctors suggested it to be a viral thing, "perhaps she caught a bug just before coming in to hospital". However, every other time she has been admitted to hospital she's felt fine, it's only been these last t...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - February 26, 2013 Category: Respiratory Medicine Authors: hll124 Tags: Asthma, Allergies and Green Source Type: forums

A few questions about obtaining medical training in Ireland
Greetings, all! I have a few questions regarding obtaining medical training in Ireland... specifically higher specialty training. >> As of now, after talking with representatives/agents in the Irish Medical Council, the best I can do at this point is to apply for registration into the general registry. I am a Category 4 applicant - I did my medical schooling and postgraduate internship in a non-EU/EEA country - however, I completed my residency in internal medicine and fellowship training in critical/intensive care medicine in the US. They stated that applicants who do not have the equivalent or a Certificate of Ex...
Source: Student Doctor Network Forums - February 13, 2013 Category: Universities & Medical Training Authors: TerraCotta Tags: UK & Ireland Source Type: forums

colloidal Silver?
Hello All! This is my first time posting, but I am desperately trying to find information about colloidal silver. There is some talk bubbling up among my Cf community about nebulizing colloidal silver, so I wanted to get a feel for it from y'all. I've been trying to find research on the issue but all I can come up with is claims by the actual companies selling the product. I will admit I am very skeptical, so this post will reflect my fear. Please know I am not trying to offend anyone or start an argument, but I would like to see some healthy debate on the issue. I think we can be adults and not get everyone's ire up. :...
Source: Cystic Fibrosis Alternative Medicine Forum - February 11, 2013 Category: Respiratory Medicine Authors: politicaljules Tags: Alternative Medicine Source Type: forums

Occam's Razor be damned
yesterday, 2 cases, the first severe respiratory distress and chest pain. Turns out to be pneumonia with adjacent effusion, and b/l PE's, and a large lung nodule suspicious for Ca, despite a story sounding like COPD and lungs too tight to move any air and an CXR looking more like CHF. The second, suicide attempt, by alcohol and xanies and oxy's (the latter 2 stolen), with aspiration pneumonitis, and tylenol level>100 (despite the PD and paramedics finding no tylenol containing bottles), and then the urine hcg popped up positive, lol. At least I felt like an EP instead of an urgent care doc, :) (Source: Student Doctor Network Forums)
Source: Student Doctor Network Forums - February 9, 2013 Category: Universities & Medical Training Authors: Rendar5 Tags: Emergency Medicine Source Type: forums

The best airway clearance for me..
is LAUGHTER! Honestly besides the acapella, laughter is the only other thing that gives me great clearance! I don't mean to sound crazy or dumb. I could sit and do the vest til the cows came home but it just doesn't do anything except make my cheeks shake. Plus laughter is good for the soul (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - February 7, 2013 Category: Respiratory Medicine Authors: eliqueang Tags: Airway Clearance Techniques Source Type: forums

MD & DO low GPA, good ECs/experience
-cGPA: 3.38, sGPA 2.75--no MCAT as of yet, current semester's GPA was 3.78 -volunteered throughout undergrad at a free clinic every Saturday for 3-4 hours serving under and uninsured patients also coordinate service and secured a grant for the clinic -shadowing: intensive care unit 20 hours, pediatric ER 40 hours, primary care clinic 10 hours, respiratory and allergist specialist 5 hours -no research -volunteered as Hispanic clinic service coordinator (1 yr), at a local crisis nursery (30 hrs/yr), started school club to raise awareness regarding Hispanic immigrant issues, executive board position with school's pre-health h...
Source: Student Doctor Network Forums - February 3, 2013 Category: Universities & Medical Training Authors: mokf14 Tags: What Are My Chances? Source Type: forums

Alternative Pain Medicine
Hi all! I posted in the Adult Section just now - but wanted to post here as well. Looking for some alternatives to pain medicine - my BF is currently taking VICODIN (6-8 pills per day) to manage his chronic pain from CF and also to deal with the pain that comes with his recent lung surgery (left lung had collapsed recently) His current pain doctor feels that he is abusing the pain medicine, he is a 26 year old male (BF) Looking for some suggestions/help! We are in the process in looking for a new doctor for a second opinion but I would love to hear some alternative pain medicine that helps with the pain in the inner ...
Source: Cystic Fibrosis Alternative Medicine Forum - January 31, 2013 Category: Respiratory Medicine Authors: Nicole Emily Buckley Tags: Alternative Medicine Source Type: forums

More Active
I really wish this section of CF.com was more active. I believe we could really change the CF community with this info. Check out my blog www.insidecf.blogpsot.com and see how Im using alternative medicine and diet. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 29, 2013 Category: Respiratory Medicine Authors: jbrandonAW Tags: Alternative Medicine Source Type: forums

Mini Podiatric Med School April 20, 2013 @ BUSPM
Program Announcement: Mini Podiatric Medical School at Barry University Location: Center for Community Health and Minority Medicine, 320 NW 115th Street, Miami, Florida 33168 To raise awareness of the field of Podiatric Medicine and Surgery and to encourage students to consider a career in podiatry, Barry University¬ís School of Podiatric Medicine and Surgery is hosting its third Mini Podiatric Medical School on April 20, 2013 from 1 to 5 P.M. This program consist of 1 1/4 hours of lecture followed by a 15 minute break, then 2 hours of hands on experience concluding with a ½ hour talk on admissions to podiatry sch...
Source: Student Doctor Network Forums - January 28, 2013 Category: Universities & Medical Training Authors: naperpeds Tags: Pre-Podiatry Students Source Type: forums

Love & Logic approach to meds when afraid?
Lisa, I'm hoping you can help me with your thoughts. DS just finished a bad 2 weeks of stomach stuff. He was getting a back-up, choked on a chip and then got a stomach bug (at least that's what I think happened). He started refusing his enzymes when he had no problem before and I believe became afraid to take b/c of problems swallowing (the puree with them sprinkled). I'm working with a good dietitian/feeding expert/therapist on self-mastery and we're getting a little better. (Her approach is very L&L based--calm, not anger, setting expectation, etc.) He started with one little "pebble" at a time and is now t...
Source: Cystic Fibrosis Parenting Forum - January 21, 2013 Category: Respiratory Medicine Authors: Aboveallislove Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

New Respiratory Physiology Website, Free open access!
Hi Im involved in a project with my university supervisor where we are producing a respiratory physiology website. We have 2 cases up and running at the moment but could really use some feedback and suggestions for improvement. We want to expand the cases to include cardio,resp etc. Natalies Casebook Cheers Edd (Source: New Media Medicine)
Source: New Media Medicine - January 20, 2013 Category: Universities & Medical Training Authors: ed12121212 Tags: Current Medical Students Source Type: forums

Alternatives to Aquadeks
I was very disappointed to read that my Aquadeks have food dyes and GMOs on the ingredient list- can any of you recommend an alternative with a comparable vitamin profile? Thanks! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 11, 2013 Category: Respiratory Medicine Authors: jmiller1 Tags: Alternative Medicine Source Type: forums

Halo?
Hi All! Has anyone seen this new Halo product or tried it? (http://halogermdefense.com/) Is it safe for CFers? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - November 29, 2012 Category: Respiratory Medicine Authors: smurn Tags: Alternative Medicine Source Type: forums

CF related bowel cancer and alternative therapies?
Hi I am 12 years post lung transplant for CF. Last year, I was diagnosed with small bowel adenocarcinoma at 39, did surgery and chemo ,and five months after stopping chemo , it came back and metastasized. I had more surgery and am doing chemo again. My oncologists have never seen a CF -post-lung transplant pt with cancer before so I feel like I am playing doctor in this role as an expert of my body and doing my own research on PubMed, ect. has any other cf adult out there had bowel cancer and how did you handle it with the docs? were you post-transplant ? if so, how did you handle the chemo and immunosuppressants? Did ...
Source: Cystic Fibrosis Alternative Medicine Forum - November 18, 2012 Category: Respiratory Medicine Authors: amstenzel Tags: Alternative Medicine Source Type: forums

Beth Sufian's guide to insurance
Passing along this information: ---- Children and adults with cystic fibrosis (CF) need some form of insurance coverage to help pay for medical care and medications needed to treat the disease. Beth Sufian, the author, has developed a general guide with Gilead Sciences, Inc. to assist people with CF, their families, and healthcare providers in identifying potential health insurance policies offered by an employer, and government programs such as Social Security benefits, Medicaid, Medicare, and state-government programs. In addition, the Affordable Care Act may help people with CF access coverage. To download a co...
Source: Cystic Fibrosis Payment Assistance Resources Forum - November 17, 2012 Category: Respiratory Medicine Authors: CrisDopher Tags: Payment Assistance Resources Source Type: forums

Wanted: Participants for test group homeopathic treatment of Cystic Fibrosis
. Hello, My name is Deny De Meyer, I am a Belgian classic homeopath. Currently, I’m in the process of starting up a test group of people with cystic fibrosis, for a homeopathic treatment of 3 months. It’s my intention to gather a lot of experience over a short period of time regarding the treatment of CF-patients by means of homeopathy: to see how deep homeopathy can affect them and what results are possible. You might be wondering, “A Belgian homeopath, what’s she doing here on this American forum?” In order to achieve as much information as possible over such a short time, it is necessary...
Source: Cystic Fibrosis Alternative Medicine Forum - October 30, 2012 Category: Respiratory Medicine Authors: Deniee55 Tags: Alternative Medicine Source Type: forums

Hope for Brandon!
This is a donation page for Brandon Delacruz. He is a 23 year old, suffering from Cystic Fibrosis. He has recently been given a year left to live. He doesn't want anything extravagant or fancy, but a lot of his friends have been wanting to chip in and donate in hopes for a "Make a Wish" type of fund for him, so that he and his wife (me) can do something with it. Maybe a small vacation, help towards buying a scooter, or a portable oxygen tank, something useful that will really help him. We want to make him happy, so please help this remarkable young man! http://www.gofundme.com/hopeforbrandon (Source: Cysti...
Source: Cystic Fibrosis Payment Assistance Resources Forum - October 14, 2012 Category: Respiratory Medicine Authors: Shelby Delacruz Tags: Payment Assistance Resources Source Type: forums

Anyone have any experience with Quinton or Marine Plasma?
My wife is pregnant with a CF baby due in January. My aunt owns a health products company in Colorado and she's been doing some research and talking with doctors and she highly suggests that we start some treatments with a product called Quinton which i believe is also called marine plasma. It's supposed to be great for all around health and help fight diseases/sickness etc. She's sending 6 boxes for free to get started which is awesome, and so far I haven't seen anything negative about it. Does anyone have any experience with this stuff? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 10, 2012 Category: Respiratory Medicine Authors: dougs280z Tags: Alternative Medicine Source Type: forums

chiropractor
Just wondering what your thoughts are on chiropractic care for a cfer. Does it help? Does it improve lung function and overall well being. Considering it for my daughter. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 5, 2012 Category: Respiratory Medicine Authors: Bella's-mom Tags: Alternative Medicine Source Type: forums

Possible new way to fight lung infections
Check out this article. http://www.spiritindia.com/health-ca...cles-7534.html A study done in collaboration with the University of Washington found that using a metallic "Trojan Horse" - tricking the bacteria by replacing the iron they need from their environment with the metallic element gallium - can ki ll bacteria. The study will appear in the April 2 issue of the Journal of Clinical Investigation. The UC team headed by Bradley Britigan, MD, chairman of the internal medicine department at UC and staff physician at the Cincinnati Department of Veterans Affairs Medical Center, found substituting galliu...
Source: Cystic Fibrosis Alternative Medicine Forum - September 4, 2012 Category: Respiratory Medicine Authors: rmotion Tags: Alternative Medicine Source Type: forums

pollen
any one here allergic to pollen and what does it do it used to never bother but my lungs have been going downwards and i think this is what may be bothering me cuz for the past week ive been caughing alot more and it seems to be harder to breath my lungs feel really congested could this be due to pollen because it is high at this time of the year where i live i dont sneeze or have runny nose but (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - August 26, 2012 Category: Respiratory Medicine Authors: monds1234 Tags: Asthma, Allergies and Green Source Type: forums