Medical Marijuana as an Addition to Modern Medicine
After some research, I believe that Medical Marijuana's benefits far out way the risks. There are multiple alternatives to the typical instruments used to smoke marijuana, such as Vaporizing. Vaporizing uses convection heating to heat the air in a device to such a high temperature that it 'vaporizes' the marijuana plant, therefore, releasing its cannabinoids including THC (the psychoactive chemical of the plant), CBD & CBN (non-psychoactive chemicals of the plant), into a plastic type balloon or a medical grade plastic 'whip'. Because of the state's decision to legalize of Medical Marijuana, it can be monitored as w...
Source: Cystic Fibrosis Alternative Medicine Forum - October 5, 2014 Category: Respiratory Medicine Authors: jrocco Tags: Alternative Medicine Source Type: forums

thinner air in the winter
would anyone happen to know if the air is thinner in the fall/winter compared to the summer? When I have been running this past week I have felt like my lungs and legs could not get oxygen they needed. And I had been running all summer and there were no problems. Any ideas would be great. Thanks in advance. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - October 5, 2014 Category: Respiratory Medicine Authors: tylerp Tags: Exercise & Fitness Source Type: forums

Event Celebrates 25 Years of Genetic Advances in CF that Improved CF Care
Johns Hopkins University School of Medicine (JHUSOM), will be hosting a live satellite symposium celebrating the quarter century of progress that has occurred since mutations in the CFTR gene were first linked to cystic fibrosis (CF). Ahead of the Curve (AOTC): CFTR at 25 — Clinician and Patient Perspectives will take place at the 28th annual North American Cystic Fibrosis Conference (NACFC) in Atlanta on October 10, 2014. Source: http://dkbmed.com/AOTC_10-2-2014.html (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - October 3, 2014 Category: Respiratory Medicine Authors: jastherob Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

1 copy F508del mutation
So my daughter who has had some symptoms suggestive of Cf but passed the sweat test has had genetic testing done. They tested for 97 mutations and they detected 1 copy of F508del. Should I push for further genetic testing? The message the pediatrician left me made it sound as if they would not pursue it any further. Suggestions appreciated. (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - October 1, 2014 Category: Respiratory Medicine Authors: Makmomma2 Tags: DNA and Mutations Source Type: forums

Work out regime
Hey everyone, I am brand new to this forum! I just got released from hospital after having a course of IV antibiotics. I have fallen off the band wagon for working out numerous times, however I know how important it is.. I am wondering what is a good work out routine that you found useful? I sometimes cough up blood, but I've been told this is sometimes typical. I look forward to all your help and cant wait to read more on the forums. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - October 1, 2014 Category: Respiratory Medicine Authors: helmut28 Tags: Exercise & Fitness Source Type: forums

Using engineered probiotic bacteria for treating Pseudomonas-induced lung infection
Hi everyone, I am a member of a research group that engineered a commensal probiotic bacteria from the human gut to seek and kill Pseudomonas aeruginosa. This work is currently undergoing pre-clinical trial and we hope to reach clinical trial stage in a few years to treat Pseudomonas infections, which potentially include lung infections induced by Pseudomonas. In anticipation of the difficulties we may encounter in researching and promoting this treatment, we are conducting this short survey to understand the perspectives of healthcare specialists, patients and the public on this form of treatment. We hope that you could...
Source: Cystic Fibrosis Alternative Medicine Forum - September 30, 2014 Category: Respiratory Medicine Authors: jlfoo Tags: Alternative Medicine Source Type: forums

F508 and I148T/possible CF symptoms?
Hi, I'm new to this forum. Does anyone have this combination? My DS (8) has these 2 mutations, which we knew about since birth when he tested positive in his newborn screening but negative in his sweat test (I carry the F508 and my husband carries I148T). We were told that he may develop atypical CF and be infertile but he has never had a follow-up appointment as the reports were buried in his pediatrician's file. Fast forward 8 years...our DS has been to many specialists (neurologists, allergists, endocronologist, psychiatrists) for issues ranging from eyes rolling in the back of his head to anger management & anxiet...
Source: Cystic Fibrosis DNA and Mutations Forum - September 29, 2014 Category: Respiratory Medicine Authors: p.tsetsilas Tags: DNA and Mutations Source Type: forums

When (If) did your CRMS turn into CF?
I've been wondering this since my daughter was diagnosed with CRMS and after reading hundreds of posts I'm just going to ask: If your child (or you) was diagnosed with CRMS when did symptoms start to appear if they appeared at all? Now, I know this varies by mutations and by child and just because your child saw symptoms at 2 years old doesn't mean that my daughter will. I guess I just believe knowledge is power and this is something I would like to know :o) Thanks! (Source: Cystic Fibrosis Newly Diagnosed Forum)
Source: Cystic Fibrosis Newly Diagnosed Forum - September 29, 2014 Category: Respiratory Medicine Authors: lauryn.tubes Tags: Newly Diagnosed Source Type: forums

Kalydeco With "Other" Mutations
I would strongly urge anyone with the D1152H (Class 4) mutation to try to get Kalydeco! It has done wonders for my pulmonary problems thank G-d. (I’ve never had any digestive issues.) This is my seventh month on Kalydeco. To my initial astonishment, I noticed dramatic changes less than a day after starting it. Within a week my coughing stopped and the mucus disappeared. Because of my mutations, it took several weeks for me to become convinced that the improvements were really due to the Kalydeco. Kalydeco can definitely work for people with Class 4 and 3 mutations that are not on the “list”. (Source: Cystic Fib...
Source: Cystic Fibrosis DNA and Mutations Forum - September 29, 2014 Category: Respiratory Medicine Authors: stephen Tags: DNA and Mutations Source Type: forums

cystic fibrosis and criopreservation umbilical cord blood and tissue
We have a daughter of 10 months with cystic fibrosis (mutations F508del and N1303K). She was diagnosed at 5 months after 4 admissions. We saved (criopreservation) the stem cells of tissue and blood of umbilical cord of our daughter, and we still saved the umbilical cord blood of our son, older (does not carry the defective gene, he is healthy). Anyone know or can clarify me the following issues: 1. We can use the steam cells of tissue or cord blood of our daughter with healing perspectives? 2. And the brother’s umbilical cord blood? 3. Me and my husband we are 'A Rh positive' as my son, but my daughter is 'A Rh nega...
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - September 29, 2014 Category: Respiratory Medicine Authors: taafom Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

4 week old has CRMS for right now
Here is what I know so far--we went to Children's hospital Monday to get the sweat test and consult. The sweat test results were indeterminate--one was 33 and the other was 30. For infants, anything 29 or less is considered negative. 30-59 is indeterminate meaning CF is possible, and 60+ is considered positive. So I'm not sure if there's any weight in the results being on the lower end of intermediate or if intermediate means intermediate whether 30 or 55. Nothing is known about her second mutation, I1366T. So they said we're in a gray area based on the mutations--it's not a yes but it's not a no. Based on the sweat test...
Source: Cystic Fibrosis Newly Diagnosed Forum - September 26, 2014 Category: Respiratory Medicine Authors: Mama2Five Tags: Newly Diagnosed Source Type: forums

ears ringing
Does anyone else experience ringing in their ears from coughing and using the vest? (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - September 25, 2014 Category: Respiratory Medicine Authors: Georgiagirl Tags: Airway Clearance Techniques Source Type: forums

F508 and M265R
Looking for any others with M265R gene mutation it is not in the database. I am 33 and just diagnosed this year as atypical CF I have had a lot of problems with my pancreas. I don't have a clue what may develop later in life I do have extra mucus and some problems with sinuses and bronchitis in my life. (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - September 22, 2014 Category: Respiratory Medicine Authors: mommof2b1 Tags: DNA and Mutations Source Type: forums

Pregancy and Serious GI Issuses
I am the mom of a very beautiful 26 year old with CF. All of her life she has had really good lung function so that is not an issue however in the past 7 or 8 years she has experienced severe GI issues. I know that she wants to have a baby at some point so my question for any of you out there who may have some of these same issues is were you able to get pregnant and how did the pregnancy go - was there any severe issues while pregnant??? (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - September 19, 2014 Category: Respiratory Medicine Authors: TerriC Tags: Pregnancy Source Type: forums

Mevion Higher speed pencil beam scanning - Hyperscan proton therapy system
One of the radiation therapy company from US named Mevion Medical systems introduced a Hyperscan system which is going to deliver high speed pencil beam scanning.Current pencil beam systems are very sensitive to motion.This latest Hypersacn system delivers less sensitive to patient and tumour motions.As of now it is not approved by US FDA (Food and Drug Administration). Details: (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - September 18, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Newborn has 2 mutations-I1366T & DelF508..HELP?
So I received a call that my newborn has two mutations today-I1366T & DelF508. Her IRT was 97.99, and newborn cutoff is 67. I was told that they would refer her for the sweat test at Children's Hospital and I'll be hearing from her Dr and C.H. soon. *crickets* Soooo....in the MEANTIME, what am I supposed to think? Of course, I googled it and the information I got was "if baby tests positive for 2 mutations, baby most likely has C.F.". We have 5 children--#3 is a carrier of DelF508. Not sure about 1, 2 and 4. I never got any information after #4's birth so I assume she is not a carrier... Is it possible ...
Source: Cystic Fibrosis DNA and Mutations Forum - September 17, 2014 Category: Respiratory Medicine Authors: Mama2Five Tags: DNA and Mutations Source Type: forums

Pseudomonas Fluorescens?
My 12 month old son just tested positive for Pseudomonas Fluorescens and I'm just very confused with what it means exactly. His doctor explained to me that he would start on Tobi and that it's not to be taken lightly. I am so scared and confused and was just hoping to hear from someone that can tell me about it and what it means for my son.. (Source: Cystic Fibrosis Newly Diagnosed Forum)
Source: Cystic Fibrosis Newly Diagnosed Forum - September 16, 2014 Category: Respiratory Medicine Authors: ChristyLee619 Tags: Newly Diagnosed Source Type: forums

Residency after 38
by andreas1978 (Posted Mon Sep 15, 2014 3:29 am)Hello,My name is Andreas, I am 36 y.o. and I am from Greece. I am a fellow in respiratory medicine, in a hospital in Athens, and I have one more year to complete the fellowship.At the same time I am preparing for USMLE step 1, which I'm going to give in a few months.My question is the following:How difficult is going to be for a person like me, approximately in the age of 38, to find a residency at any hospital in the US (asuming that my step 1 score will be somewhere in the middle - not too high, not too low)?Thank you in advance for your help. (Source: Med Student Guide)
Source: Med Student Guide - September 15, 2014 Category: Universities & Medical Training Source Type: forums

C.777delT & DF508
I think my son is the only one with this combination. Anyone else have c.777delT? He was diagnosed at birth with MI & sweat test of 112. He's 14 yrs old, no hospitalizations or major lung complications so far. Main issues are with digestion (since birth) & nasal polyps (onset age 12). The results of this second mutation read - c.777delT (frameshift): Not a previously reported CFTR to our knowledge but predicted to be deleterious. I'm assuming that means Class 2 but with the mildness of his disease so far it leads me to believe it's not? thoughts? (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - September 14, 2014 Category: Respiratory Medicine Authors: aprung Tags: DNA and Mutations Source Type: forums

Non traditional looking for advice.
by Jbeans0916 (Posted Fri Sep 05, 2014 10:08 pm)I have multiple questions and I apologize if this is not the normal format used in this forum.I'm about to turn 35, received my batchelors in Biology with a GPA of 3.2 back in 2005 graduated cum Laude. I have loads of experience in terms of shadowing and Related work experiences ... Such as working in an OR for 4 years while going to school as an anesthesia tech, working in the respiratory industry, medical sales, even running a medical business and then next thing you know its ten years later and I'm in sales and I hate it. I've always wanted to be a physician like my brothe...
Source: Med Student Guide - September 6, 2014 Category: Universities & Medical Training Source Type: forums

Medical firm BioPhotas introduced LED therapy device Celluma ELITE
Medical device firm BioPhotas announced the launch of the Celluma ELITE for sale to the aesthetic physician market.The LED therapy device is stand-mounted and able to be precisely positioned over an area of treatment via an articulating arm and a patented shape-taking light panel.The Celluma ELITE is distinct from other light therapy devices. Source: (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - September 4, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Post Lung Transplant Pets - Are Cats Okay?
Does anyone here, who's post-transplant, have a cat as a pet? I've heard cats are okay as long as someone else cleans out the litter box, but I'd like to hear from somebody with real world experience. My six year-old desperately wants a kitty, and I'd love to get her one. I just want to know if it's safe for me first. Bill B 40 yrs old / 16 yrs Post Transplant Los Angeles, CA. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - September 4, 2014 Category: Respiratory Medicine Authors: Bill B Tags: Transplants Source Type: forums

Words of hope? Please
First let me say I know I am incredibly lucky. I am the proud mother of two healthy boys (3yrs and 17 months). My husband and I are, obviously at least carriers or I wouldn't even be seeking advice here. I found out I was a carrier for CF when I was 10 weeks pregnant with my first son in 2010 I tested positive for delta F508. My husband was subsequently tested and he's also a carrier for a different (and much less common) mutation though I don't remember which. We didn't do any prenatal (amnio,cvs) with our first baby. My pregnancy was difficult and scary as at 29 weeks I had a partial placental abruption and was on bed re...
Source: Cystic Fibrosis Pregnancy Forum - September 3, 2014 Category: Respiratory Medicine Authors: lexi0408 Tags: Pregnancy Source Type: forums

Transplant and pregnancies
Hello I have a few questions they are starting the work up for a transplant....I am still pretty healthy but I am not bounceing back to my normal after I get sick or get a tune up...I am 31 and have 1 daughter but we would like to have another...does anybody know good information as far as if I can have a baby now will that pro long the transplant process or will they completely look over me or what and has anybody heard of woman with cf having babies after the transplant? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 30, 2014 Category: Respiratory Medicine Authors: missmary083 Tags: Transplants Source Type: forums

Powerlifting
It's better than bodybuilding. I'm doing starting strength. I've gained 15 lbs in 3 months. I've had a history of fitness my whole life. I'm now 6', 160 lbs. ALl indications is that this progress will continue. And my lung function has stabalized for the last year as well. Seriously. Powerlifting. Do it. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - August 30, 2014 Category: Respiratory Medicine Authors: LKBamberg Tags: Exercise & Fitness Source Type: forums

HELP! Does Medicare and Medicaid cover ALL cost including all after care drugs??
If you've had a transplant or have looked into it, are there any out of pocket costs?? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 27, 2014 Category: Respiratory Medicine Authors: Chantal Tags: Transplants Source Type: forums

Hill rom model 105 the Vest for sale
I have the Vest by Hill Rom complete in box for sale. It's all here including instructional booklet and DVD. Clean condition and travel bag was never used. 300 hours of usage. Very nice unit, and I have numerous pictures available upon request. Asking $2000 obo, I use PayPal for buyer protection it's model 105.email blt138@yahoo.com or text 618-214-3395. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - August 25, 2014 Category: Respiratory Medicine Authors: billt138 Tags: Airway Clearance Techniques Source Type: forums

If you're American and have had a transplant, please help with info!
Hi all from Canada :) my sister passed from CF when she was 21 and I was 17 in 1990. I'm now writing a book, a novel where the lead is helping her sister obtain a lung transplant. It takes place is the US, and I have a few questions. Are all costs related to double lung transplants covered under basic medical insurance? If not, approximately what amount would need to be raised by the patient? The people in the story are not wealthy, so only basic health insurance is affordable...Please correct me if I'm wrong, but that would be be Medicare? What hospital or hospitals are recognized as the best covered facilities for lu...
Source: Cystic Fibrosis Transplants Forum - August 22, 2014 Category: Respiratory Medicine Authors: Chantal Tags: Transplants Source Type: forums

Still looking for others with 124del23bp
Anybody else out there? Seems to be an Azorian mutation from my husband's side...also goes by the nomenclature c.-9_14del23 (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - August 18, 2014 Category: Respiratory Medicine Authors: ccsalema Tags: DNA and Mutations Source Type: forums

blood in sputum after exersize
I felt great at the gym. I had a lung bleed about a week or so ago I just previously posted in the bulletin. I went back to the gym this am. Did my nornal routine and I came home felt great energized coughed up somen mucous and of coarse some blood was in it. Not like last week!! But now im wondering is it working out thats causing it? It is neccissarly a bad thing? Im on antibiotics and do my treatments 3x a day if not more. I feel healthier than last week what the hecccck April 23 CF (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - August 17, 2014 Category: Respiratory Medicine Authors: AprilCF2009 Tags: Exercise & Fitness Source Type: forums

boiling nebs and water?
We had a water issue in toledo ohio about microcystin bacteria in the water so we are not able to use our tap water. So I boiled my nebs with gallon water I got at the store and my nebs have a white powder substance all over them. How do you boil your nebs? What should I do now? (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - August 15, 2014 Category: Respiratory Medicine Authors: AprilCF2009 Tags: Airway Clearance Techniques Source Type: forums

coughing up blood at gym
So last thursday I was working out at my gym. I usually do 2x a day. Cardio and weight training. I fell in love with it. I was doing leg lifts and I noticed a wheeze that was really watery. I knew what was coming because it happened 4 years ago. Blood! I coughed it out and it was all over my hand. (I hope nobody saw) but I nonchalantly walked to bathroom trying not to panic. It went on for about 5 minutes and I left, I continued to go to the e.r to just get checked out. Everything was fine. Doctor started an extension on bactrim (which I was already taking), then 60mg prednisone, azithomyocin, vit k, etc haven't coughed up...
Source: Cystic Fibrosis Exercise and Fitness Forum - August 13, 2014 Category: Respiratory Medicine Authors: AprilCF2009 Tags: Exercise & Fitness Source Type: forums

Florida institute to provide funds for Powers Medical Devices
One of the famous institute Florida providing funds between $50,000 - $300,000 in seed funding to qualified companies.Funding may be provided either as debt or equity.They are going to get some powerful devices where they are facing issues with babies who are born prematurely.FDA cleared and encouraging the process. Source: (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - August 13, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: Pregnancy Source Type: forums

Nissen fundoplication
Has anyone here had this procedure? do you feel any weird stomach sensations since surgery? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 13, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Where to receive the best care - Stanford or Mayo Clinic?
My 2 week old Granddaughter was just diagnosed with CF. I've been reading as much as I can about the condition and feel completely devastated for my daughter and grandbaby. I just found out yesterday so I still need some time to digest it all. Medical conditions are, unfortunately, nothing new to my lil family. I have 3 daughters. My oldest and her 1 year old son, my grandbaby, have Cavernous Angioma's. Many bleeds, a brain surgery and another surgery when she had a bleed in the base of her brain stem while she was pregnant with my Grandson. Unfortunately, my girls Daddy passed last October and apparently he had it also....
Source: Cystic Fibrosis Newly Diagnosed Forum - August 11, 2014 Category: Respiratory Medicine Authors: TamaraLynn Tags: Newly Diagnosed Source Type: forums

Mucinex Dosage
What did you guys take as far as the dosage and how often? I see that there are 1200 mg, 600 mg and 400 mg tablets and wasn't sure what I should be taking and how often? (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - August 7, 2014 Category: Respiratory Medicine Authors: KEC1984 Tags: Pregnancy Source Type: forums

CF patient needs
Hey everyone, I am currently working together with a company that is working on developing a drug for Cystic Fibrosis. I am writing my thesis with them so it is my task to find out more about the disease and about the patients' needs, to be able to have as many insights as possible in the development process. They want to especially target problems with drug resistance. It would be great if some of you would be interested in answering some questions for me and giving some insights into your daily struggles, as you know best what kind of problems are most relevant and need to be addressed. We can either have a quick skyp...
Source: Cystic Fibrosis Teenagers and Young People Forum - August 6, 2014 Category: Respiratory Medicine Authors: LenaS Tags: Teenagers and Young People Source Type: forums

Post Transplant and Drinking Alcohol
I'm curious to see how many people drink alcohol after transplant. Do you drink once in a blue moon, once every month, etc. I know each hospital has different suggestions on this topic, but I have noticed that it seems drinking in moderation every once in awhile is acceptable. I rarely drink and since the new set of lungs it has only happened twice. Those two times I only had a few beers. Just wanted to see how everyone feels about the subject and if they do or don't. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - August 5, 2014 Category: Respiratory Medicine Authors: Joblazer86 Tags: Transplants Source Type: forums

Drugs During Pregnancy
I'm sure this answer is here somewhere but what drugs are allowed and not allowed during pregnancy. I am currently on TOBI Podhaler and alternating that with cayston. I also take Pulmozyme, albuterol and hypertonic saline, as well as azithromycin (500 mg 3x/week), symbicort, flonase. Any info would be appreciated. (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - August 4, 2014 Category: Respiratory Medicine Authors: KEC1984 Tags: Pregnancy Source Type: forums

Pain in belly during pt
Anyone ever have bad pain in their lower pregnant belly while vesting or coughing? If so, did anything help? It seems similar to what people describe as round ligament pain. This is my 3rd pregnancy so I'm thinking perhaps things are just more 'stretched' out? I remember having occasional episodes of pain during coughing or vesting with previous pregnancies, like a sudden twinge that comes and goes. But nothing like this. This is the same spot every day, and if it begins during a pt session its not going away. Also if I lie down a certain way and cough, I'll get the pain. I'm wondering if its just going to be like this ti...
Source: Cystic Fibrosis Pregnancy Forum - August 2, 2014 Category: Respiratory Medicine Authors: mamaScarlett Tags: Pregnancy Source Type: forums

Heart rate w/exercise? Plz help
I am 15, and I'll admit, not in the best shape. I joined a gym and got a personal trainer session free. He did a heart rate test as part of the fitness examination. When he showed me his chart afterwards, he explained that my heart rate was slightly over 200, that was about 30 more than the worst "very poor" section (the lowest his chart went). Should I be concerned about this? I received warnings from the elliptical saying my heart rate was too high as well. Can this be CF related? Also, I sweat a lot when I exercise, even when it's not very strenuous. So if anyone could give me some advice or information that w...
Source: Cystic Fibrosis Exercise and Fitness Forum - August 1, 2014 Category: Respiratory Medicine Authors: tiffanymarie316 Tags: Exercise & Fitness Source Type: forums

Effectiveness of IVF -- In regards to a Male CFer and female non-CF
Hello, My boyfriend, Dylan, has CF. We have already been told by a urologist that about 75% of his vas deferens are missing, but have yet to have any more tests done to see if I am a carrier yet. We are not prepared to have children yet, I was just curious how effectively IVF has worked for other people in our situation. (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - July 28, 2014 Category: Respiratory Medicine Authors: cfgf0417 Tags: Pregnancy Source Type: forums

3.2 cGPA, 34 MCAT.. any chance getting in?
by Grace (Posted Sun Jul 27, 2014 1:41 am)Hi All!Grades/MCAT scores3.2 cGPA3.0 sGPA34 MCATECsSpecial Medical Experiences:2011-2012 :: Barlow Respiratory Hospital -~250 direct patient care volunteer hrs -Clinical Care Extender Internship -Leadership Team: Department Coordinator -Activities: - Nurses and Doctors Shadowing Experience -Speech Pathologist Shadowing Experience -RT, PT, and OT Shadowing Experience - -Physical Therapy assistance to Geriatric Patients2012-2013:: Glendale Adventist Medical Center –-50 direct patient care vol...
Source: Med Student Guide - July 27, 2014 Category: Universities & Medical Training Source Type: forums

Smoking Marijuana to breathe easier
So about a month ago I got my official notice from the state saying I'm a legal Medical Marijuana User registered in the MM Registry. There are many times that I smoke Marijuana just so I can breathe easier, I notice that it is exactly like my Inhaler. I know what you're thinking about the smoking part, well when I have the money, i plan on either making Edibles or getting a Vaporizer in place of smoking. But for now, the safest thing that I currently do is I smoke out of a water pipe, and instead of the Marijuana holder (bowl), I use a triple filtered pipe (I put 3, tiny metal mesh filters in the pipe). So the place the b...
Source: Cystic Fibrosis Teenagers and Young People Forum - July 27, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

CF bodybuilder James Boudreau
Marc Lobliner is a pro bodybuilder that has a youtube channel and is one of many training channels that I'm subscribed to. To my surprise he mentions from time to time that his young daughter has a friend with CF and so once in a while he does something for CF. Lately too apparently he's been training a CF'er. James Boudreau, to compete in bodybuilding. That's a huge achievement and the guy is huge himself! James are you reading this? Please tell us more yourself! :) Great motivation. Here's the video's from Marc's channel that he posted this week. https://www.youtube.com/watch?v=hrprnHGG9yU https://www.youtube.com...
Source: Cystic Fibrosis Exercise and Fitness Forum - July 25, 2014 Category: Respiratory Medicine Authors: Twistofchaos Tags: Exercise & Fitness Source Type: forums

Expanding Orthopedics obtains FDA clearance for FLXfit 3D expandable interbody cage
FLXfit is the world's first 3D expandable interbody cage cleared for commercialization in the United States.This unique and patented technology combines minimal invasive access, maximum footprint support and large bone graft chamber with unique lordotic expansion for sagittal balance correction. Source: (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - July 23, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

F508 & d110h
Hi, I am new to this site. Curious if anyone has f508 & d110h? My daughter is 15 months and was diagnosed on newborn screening. My husband and I have dealt with this for over a year, but still cannot accept it. We feel as though she has not one symptom.....which is a good thing.....but makes it hard to accept something we dont see. We were told that from what they know it should be mild. Wish we could see into the future! (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - July 22, 2014 Category: Respiratory Medicine Authors: Jeannie85 Tags: DNA and Mutations Source Type: forums

CNBC News on Vertex...
http://www.cnbc.com/id/101783126#. (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - July 18, 2014 Category: Respiratory Medicine Authors: Imogene Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

New treatment for metastatic cervical cancer for women
It is good to hear that new treatment with Avastin plus chemotherapy may help women with these conditions live longer than chemotherapy alone. Recently US Food and Drug Administration has accepted sBLA (supplemental Biologics License Application).To know more details on this : http://regulatoryaffairs.pharmaceuti...160714-4318707 (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - July 17, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Need advice. Big time.
I have recently moved to stage three of liver disease after having a fatty liver most of life. I have been pregnant before a little over a year ago and gave birth to healthy baby boy conceived naturally. I had no liver complications during pregnancy and didn't have complications until a year after birth. I know am almost a month late but still getting negative pregnancy tests. Not sure if they are false and have an appointment with my GYN coming up. Just wanted to know if anyone has any experience with this same issue. Also if anyone has any experience being pregnant while in stage three. Thank you and hope to get some adv...
Source: Cystic Fibrosis Pregnancy Forum - July 16, 2014 Category: Respiratory Medicine Authors: Brittani Nicole Tags: Pregnancy Source Type: forums