CNBC News on Vertex...
http://www.cnbc.com/id/101783126#. (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - July 18, 2014 Category: Respiratory Medicine Authors: Imogene Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

New treatment for metastatic cervical cancer for women
It is good to hear that new treatment with Avastin plus chemotherapy may help women with these conditions live longer than chemotherapy alone. Recently US Food and Drug Administration has accepted sBLA (supplemental Biologics License Application).To know more details on this : http://regulatoryaffairs.pharmaceuti...160714-4318707 (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - July 17, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Need advice. Big time.
I have recently moved to stage three of liver disease after having a fatty liver most of life. I have been pregnant before a little over a year ago and gave birth to healthy baby boy conceived naturally. I had no liver complications during pregnancy and didn't have complications until a year after birth. I know am almost a month late but still getting negative pregnancy tests. Not sure if they are false and have an appointment with my GYN coming up. Just wanted to know if anyone has any experience with this same issue. Also if anyone has any experience being pregnant while in stage three. Thank you and hope to get some adv...
Source: Cystic Fibrosis Pregnancy Forum - July 16, 2014 Category: Respiratory Medicine Authors: Brittani Nicole Tags: Pregnancy Source Type: forums

Anyone with DF508/R1162L
Hi, im new to the site and from London, UK. I have CF double DF508. I have a 11 week old daughter whose cord bloods has come back having the above mutation df508/r1162l. Its a very rare mutation here in the UK and wondered if any one in America can shed some light what to expect? Thanxs (Source: Cystic Fibrosis DNA and Mutations Forum)
Source: Cystic Fibrosis DNA and Mutations Forum - July 15, 2014 Category: Respiratory Medicine Authors: Amy86 Tags: DNA and Mutations Source Type: forums

Tiotropium Respimat effective across asthma severities
Recently Boehringer Ingelheim done the research on asthma severity, in this the first results of phase III GraziaTinA says that tiotropium Respimat going to improve lung function. To know more details on this: http://anesthesiarespiratorydevices....030314-4189132 (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - July 14, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: Asthma, Allergies and Green Source Type: forums

ABI "The Vest" model 103 for Sale
Selling the vest (machine only) for 625.00 + shipping. Price is negotiable. Includes the machine, tubes, pedal and power cord (no vest included). Email me davids@raventechmd.com and I can send pics if needed. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - July 10, 2014 Category: Respiratory Medicine Authors: schmad27 Tags: Airway Clearance Techniques Source Type: forums

Atrovent and Aeropika
Does anybody use Atrovent as part of their daily routine? How about that little handheld device called Aeropika? I just started using Aeropika and for the 1st 3 days it was great. It seemed to get crap out that was deep in my little airways and I could breathe better. But for 5 days after that, I started having bad chest tightness and really bad coughing fits. I had to stop using it. I'm going to try using it but a little less frequently. I was doing it 3 X a day. Anybody else use this? (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - July 6, 2014 Category: Respiratory Medicine Authors: baseballfrank Tags: Airway Clearance Techniques Source Type: forums

What about today?
I have a 13yo son with CF and like you I want a cure. That is my hope and I cling to it savagely, but I am not a doctor or a scientist, I will not cure CF and I know this. So I, like many of you, do the next best thing and fundraise, so the people who will cure CF have the resources. I fundraise and I hope, then I look at my son and I think "what about today?" How can I make his life better today, right now? I might not be able to cure CF, but I know I can make today a little better. It was that mindset that led me to build something I call M.P.A.C.S or the Mobile Percussion Airway Clearance System. With MPACS yo...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - July 1, 2014 Category: Respiratory Medicine Authors: Q65 Tags: Airway Clearance Techniques Source Type: forums

sats become lower AFTER exercise and don't return
I use oxygen and i use a higher flow for when exercising. Recently I've been assessed so everything is right for me etc The issue im having is I was feeling great so decided to start exercising after a long long time of doing nothing more than sit on the sofa as now i have the right o2 flow to use when exercising whereas before i didnt The first day i just did 5 min light walk on the treadmill all was fine Same with the second day for longer But obviously i want to make a difference quicker and actually workout properly so decided to go for a quick walk to the point where my heart was beating quick at 150 and i...
Source: Cystic Fibrosis Exercise and Fitness Forum - June 25, 2014 Category: Respiratory Medicine Authors: Mr CFX Tags: Exercise & Fitness Source Type: forums

Kalydeco/lumacaftor for DDF508 results are in.
http://investors.vrtx.com/releasedet...leaseID=856185 (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - June 24, 2014 Category: Respiratory Medicine Authors: Sophiesmum Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Medical Marijuana
Hello. I have Cystic Fibrosis, and I was curious to know what your opinions were on CFers who use Medical Marijuana as a medicine to aide in Cystic Fibrosis. I want to know the benefits, the downsides, opinions, and facts about Medical Marijuana and Cystic Fibrosis. If you're a parent of someone who has CF, would you allow your child to consume Medical Marijuana? If you're a person with CF, would you use Medical Marijuana? When I say use, I mean smoke, "vape", consume (through eating), or any other way that it can be used. (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - June 23, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

Vibralung® Acoustical Percussor receives FDA 510(k) Clearance
Hi everyone, I don't want to be overly commercial and will keep this as brief as possible, but I just wanted to announce that Westmed, Inc. received FDA 510(k) clearance to market for its Vibralung® Acoustical Percussor on May 23, 2014. The official press releases will occur soon and the product launch will take place in late summer. The Westmed website is being modernized and updated and the new web site will also be relaunched soon along with a comprehensive family of web pages devoted to the Vibralung. I'll make an announcement when those sites are up and running. The operating theory of the Vibralung Acoustical P...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - June 19, 2014 Category: Respiratory Medicine Authors: mmcpeck Tags: Airway Clearance Techniques Source Type: forums

Various Factors of Infertility
There many Factors of Infertility. 1. bleed extremely heavily or lightly 2. either underweight or overweight 3. three successive miscarriages 4. you or your partner have any chronic illnesses, like diabetes, thyroid problems, or hypertension 5. you or your partner smoke or drink alcohol : smoking and drinking while trying to get pregnant is also a problem. 6. you or your partner have a history of STDs (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - June 17, 2014 Category: Respiratory Medicine Authors: alessialea750 Tags: Pregnancy Source Type: forums

Clinical Trial for kids ages 6 and up with DD508
Hi! I was wondering if anyone has heard what is going on with the clinical trial for the combo of the Kalydeco/VX-809 for kids ages 6 and up. Our hospital was chosen as one of the sites and my son's doctor had mentioned it a few months ago... I followed up with her about it today and she said it had been put on hold. Does anyone know why? Thank you! (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - June 17, 2014 Category: Respiratory Medicine Authors: mbrandazzo Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

How to keep salt out of your eyes?
My husband has cystic fibrosis. Whenever he spends the day outside in the warmer months, or even in the colder months if he is active, he ends up with red irritated eyes for days from the salt dripping in his eyes all day. This makes him not want to spend so much time doing stuff together as a family or exercising because he knows it will make his eyes burn. Is there anything you have been able to find to help with this problem? It makes him just want to hide in the house all Summer when I'd really rather we could be out doing things as a family. (We have 3 small children.) (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - June 16, 2014 Category: Respiratory Medicine Authors: Pebbles8 Tags: Exercise & Fitness Source Type: forums

The Council of Dads
I guess, remembering my dad, Jack Burke is a really important memory for me...especially here as I know I got the gift of computers and programming from him. He was an original, a Senior Method Analyst at Prudential Insurance Company back in the 1950s! I grew up with technology and am always amazed at the gift it is especially to this CF community. Dad is smiling as we learn new ways to use technology and any way that it has helped this community. His aunt Kate may always know something, I'll find out in heaven...as she died from a "very bad cough" in the 1930s...which always leaves me to wonder. I love Bruce Fe...
Source: Cystic Fibrosis Parenting Forum - June 15, 2014 Category: Respiratory Medicine Authors: Imogene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Positivity
Hi everyone! I am relatively new to this forum, and wanted to introduce myself. My name is Meg and I am a young-20s CFer with DDF508. I started a blog on positivity and CF, including topics on exercise, eating well, and mental wellness, and other fun topics. The Facebook page for CF has gotten very depressing & negative, and I think we need some light on the topic. It was actually quite difficult for me to start this blog--CF is not my most open topic, since I consider it only a small part of who I am. However, with all the negativity on this topic, I think we need some positivity on the subject--what do you think? If ...
Source: Cystic Fibrosis Exercise and Fitness Forum - June 15, 2014 Category: Respiratory Medicine Authors: Megw212 Tags: Exercise & Fitness Source Type: forums

How long to try to conceive before pushing for action
We have been trying to conceive for six months now. I have been using OPKs and timing intercourse the whole time, as well as using mucinex and preseed consistently, to no avail. My cervical mucus at the time of ovulation is thick, like a glob of rubber cement. My cycle is otherwise normal, my weight is healthy, etc. My lungs are really good…my issues are mostly GI and sinus stuff. CF doc is good with a pregnancy. I am late 20’s, so no one seems concerned about this length of time. I know 6 months is very, so in some ways my brain tells me to suck it up and keep trying. I am not yet upset that it hasn’t happened. Six mo...
Source: Cystic Fibrosis Pregnancy Forum - June 10, 2014 Category: Respiratory Medicine Authors: cf23 Tags: Pregnancy Source Type: forums

hill rom 103 vest system for sale, very cheap!!!
hi,i have a hill rom 103 or sale, im only asking £500 or $850 willing to ship to US. comes with 2 vests, all tubing ect, ( US power supply etc) please email me at pickolasuarus@gmail.com :) x (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - June 7, 2014 Category: Respiratory Medicine Authors: Nikki Hinchliffe Tags: Airway Clearance Techniques Source Type: forums

Hill Rom The Vest® System, Model 105 For Sale
I have an almost brand new Hill Rom "The Vest" System Model 105 for sale with only 49 hours on it. Brand new price over $18,000 willing to sell for $2,500.00 / best offer + shipping cost UPS. It weighs about 31lbs and is located in Idaho Falls, Idaho. Please send me an email at karenosadchey@hotmail.com if interested. Payment via paypal. Hill-Rom The Vest Airway Clearance System Used but perfect working condition. Cost us $17,852.37 new! It has been extremely well cared for! What's included: -Air Pulse Generator Model 105 - Remote control -2 Air Hoses -Adjustable Vest -User Manual ,DVD, and associat...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - June 4, 2014 Category: Respiratory Medicine Authors: misskitty4771 Tags: Airway Clearance Techniques Source Type: forums

Need friends as I struggle thru this thing called life
Hi (: My name is Hannah, I'm 17 and I have cf df508. I've always loved to talk to people about all the things that go on with having cf. Going through a bit of a rough patch in life right now, like I'm fighting a battle that I can't win. so I would love to talk to some people that maybe feel the same way. (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - June 4, 2014 Category: Respiratory Medicine Authors: Hannah Poiry Tags: Teenagers and Young People Source Type: forums

Can a dirty house cause rejection?
My GF had her transplant last February. A couple months ago, she was diagnosed with A1 rejection. They gave her steroids, and she went down to A0 rejection. A month later, her Bronch showed that she had gone up to A3 rejection. They tested for a virus related to mono, they tested her stomach with radiation to check aspirations. Still no evidence as to what could be causing her rejection. Now, for the main part. My roommates don't clean the house, and I am too busy to single-handedly keep up with all 5 of us regularly. There is mold all over my roommates' bathroom, there is mold and bacteria in the kitchen, and dust builds...
Source: Cystic Fibrosis Transplants Forum - June 2, 2014 Category: Respiratory Medicine Authors: ajmc87 Tags: Transplants Source Type: forums

Breastfeeding - tobi or cayston?
I posted this on the adult forum too - hoping to get some advice! I just had my baby last week, and I am breastfeeding. I had avoided using Tobi during my pregnancy, but now I would like to start back on it. Has anyone used Tobi (or Tobi podhaler) while breastfeeding? Would you recommend Tobi or Cayston (I've never used Cayston but willing to try it.) Thank you! (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - May 30, 2014 Category: Respiratory Medicine Authors: liveitup Tags: Pregnancy Source Type: forums

My Next Stem Cell Treatment, Need Your Help
I am 53 and planning to go in for my 3rd adult stem cell treatment in Sept. Should be off oxygen by Thanksgiving as a result. I know another CF Warrior going in a couple of weeks, and can't wait to hear about her results in the next few months. Can't disclose her name, because most CF docs get hostile about this. I had to leave Nashville/Vandy for that very reason. My CF doc in S. FL does not believe the stem cells work. He says, "You have no proof." But at least I can have an adult conversation with him. I told him that I am the proof. 3 years ago I had both feet in the grave with only weeks to live. 4 tuneups a...
Source: Cystic Fibrosis Alternative Medicine Forum - May 29, 2014 Category: Respiratory Medicine Authors: Angelo Tags: Alternative Medicine Source Type: forums

sinus issues post tx
Has anyone else had sinus issues post - tx? i have never had sinus problems but its been about 1.5 years after tx and i have constant bloody/dry nose. its like the humidifier in my nose broke or something. I am constantly blowing out dry, bloody scabs in my nose. no sinus pressure or pain, just dry nose. i thought it was related to the heat being on, but we've had our heat off for about a month now, and no improvement. nasal gel doesn't work, neither does sinus rinses or saline spray..... if you had this issue what did you do? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 29, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Headaches and Muscle Cramps
Many CF warriors experience chronic headaches. I have not yet heard from any doctors a clear and reasonable explanation as to why we have the headaches. My suspicion is that CF is not directly the cause of the headaches, but all the stuff we do and go through as a result of CF can point to several culprits. All I can contribute to this issue is my own experience. I have gone through periods of time with continuous headaches (if I don’t medicate the headache) and periods of time with absolutely no headaches. By the process of elimination, I have come to some conclusions. Due to CF causing a rapid depletion of vitamins...
Source: Cystic Fibrosis Alternative Medicine Forum - May 28, 2014 Category: Respiratory Medicine Authors: Angelo Tags: Alternative Medicine Source Type: forums

Bleeding Lungs
Every CF warrior needs to know about this whole food supplement. It is called Cyruta Plus. Made by Standard Process. It is sold by some chiropractors. Call the company at 800-848-5061 and they will give you list of resellers in or near your zip code. No negative side effects. Website for info: https://www.standardprocess.com/Prod...ss/Cyruta-PlusIt's the only thing I use for bleeding lungs and nose bleeds. I have not had a problem with bleeding lungs in years. On occasion I get nose bleeds. This stuff heals fragile blood vessels. I will do massive amounts of this stuff before I ever let them cauterize anything in my lungs....
Source: Cystic Fibrosis Alternative Medicine Forum - May 28, 2014 Category: Respiratory Medicine Authors: Angelo Tags: Alternative Medicine Source Type: forums

Stem Cell Therapy- Has anybody done it or know anyone who has?
I have been doing research on this for several years but have not talked to anyone who has done it. It sounds like it might work but it might also be a scam. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 25, 2014 Category: Respiratory Medicine Authors: scarecrow Tags: Alternative Medicine Source Type: forums

Question about health and body fat
Hello everyone, I've recently discovered about this forum and decided to give it a go. Anyways, I'm 19 years old and have CF. I've started going to the gym regulary (5-6 days a week) the past few months with the goal to acheive low body fat and build some muscles. Now, I'm at around 12% body fat and would like to go down to around 8% body fat to have more defined muscles. My parents are being parents and are worried about health issues. Question is, does having such low body fat can damage somehow my lung function or overall health? Thanks. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - May 25, 2014 Category: Respiratory Medicine Authors: RecoilM8 Tags: Exercise & Fitness Source Type: forums

May Ataluren Update - New phase 3 trial to start in June
I've just added an Ataluren update to my blog (relates to mutations ending in X), including investor presentation images & clinicaltrials.gov links to the upcoming Ataluren trials: http://sixtyfiverosesblog.wordpress....aluren-update/ There is also more information & images in the March update (I have not added this link here yet): http://sixtyfiverosesblog.wordpress....aluren-update/ (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - May 23, 2014 Category: Respiratory Medicine Authors: GenH Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Ataluren Phase 3 Trial Results
http://ir.ptcbio.com/releasedetail.cfm?ReleaseID=848453 (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - May 16, 2014 Category: Respiratory Medicine Authors: Imogene Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Respiratory Alkalosis
65 year old patient who was dignosed with primary B cell testicular lymphoma which had gone just to his brain ( frontal lobe) last year in August. He was given chemo which removed his tumor, he then has been given 2 rituximab session uptil now. Recently 3 or 4 days back he started hyperventilating and now has been dignosed with partially compensated resp alkalosis. His PH is 7.5 his Co2 and HCO3 are both 9. His cretinine is slightly elevated too. His lungs are clear. Plz help! (Source: Doc2Doc BMJ Cardiology)
Source: Doc2Doc BMJ Cardiology - May 12, 2014 Category: Cardiology Authors: princess58 Source Type: forums

Happy Mother's Day!
I always think Sarah Kay is inspirational..spoken word poetry it's called. Even if like me, you've seen this 20 times, I offer it as some great thoughts on nurturing, mothering, fathering for daughters and sons...I'm sure that this kind of love isn't gender specific and when I gave this poem in book form to my sister Chris...she said "But I don't have a daughter....." neither does Sarah Kay! She just has a battalion of the right words.... https://www.ted.com/talks/sarah_kay_...ave_a_daughter (Source: Cystic Fibrosis Parenting Forum)
Source: Cystic Fibrosis Parenting Forum - May 11, 2014 Category: Respiratory Medicine Authors: Imogene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

May Vertex Update- VX661 adds further benefit to those on Kalydeco with G551D/F508del
I've just summarised the May 1 Vertex investor conference, includes info about Kalydeco, VX809 & VX661: http://sixtyfiverosesblog.wordpress....vertex-update/ Also, it was announced on May 1 that the trial adding VX661 to patients stable on Kalydeco (with G551D/F508del), showed further improvements in FEV1 (+4.6%) and sweat chloride (-7mmol/L). My blog post above has more info about this. In theory this means that people who are likely respond to Kalydeco (gating, residual function) who also have F508del, may see further benefits when a corrector is added. (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - May 8, 2014 Category: Respiratory Medicine Authors: GenH Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Aerobika Therapy
Trudell Medical International, a global innovator of medical devices, is pleased to announce that its Aerobika* Oscillating PEP Therapy System has been selected as a finalist for the internationally recognized Medical Design Excellence Award (MDEA) 2014. The Aerobika is a handheld, low cost airway clearance device that is brand new to the market. Log on to www.aerobika-therapy.com to find out more. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 5, 2014 Category: Respiratory Medicine Authors: bluedot01 Tags: Airway Clearance Techniques Source Type: forums

MUST exercise and need encouragement!
Hi everybody. I'm a frequent viewer and commenter, but I've never started a thread. I've been totally slacking off my exercise, and I need some encouragement. I'll be 40 in a month and a half, and I used to belong to a gym, exercise regularly, and now I just don't. I have a treadmill and some weights. Start small, right? I'm tired and queasy all the time from Cayston side effects, but I like feeling fitter than this. Help! (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - May 2, 2014 Category: Respiratory Medicine Authors: imported_MaggieB Tags: Exercise & Fitness Source Type: forums

Air Ambulance/Jet to transplant center -- anyone done this?
Hi, I am currently about to be listed for tx at UPMC but I live in Boston. I have almost finished my evaluation and expect to be active on the list within a week or so. We have set up air ambulance with Angel MedFlight but we have to have "backups" in the unlikely case that they can't get there. I have 4 hours to get from Boston-->Pittsburgh. Pittsburgh is 1:20 away, but no company can 110% guarantee something, so backups are necessary. We are calling places (my mom is helping me) and are getting a handle on it, but I was just wondering if any of you out there had done this too. Who did you use? Was the proc...
Source: Cystic Fibrosis Transplants Forum - April 23, 2014 Category: Respiratory Medicine Authors: kittencaitlin Tags: Transplants Source Type: forums

Kalydeco and D1152h
Hi all! just wondered if anyone has managed to get kalydeco off label with this mutation? And if so what are your experiences? many thanks! Gemma x (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - April 21, 2014 Category: Respiratory Medicine Authors: Sophiesmum Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Please help I have Pseudomonas Aeruginosa bug in my lungs
Hi you all, I am new to the forum.I am looking for help and suggestion or anybody with same condition who has this bug in their lungs Pseudomonas Aeruginosa.I have this bug in my lungs for past two years and throw up blood with mucus often,my doctor has put me on Tobi and other antibiotics but it helps for while and nothing.......! I am thinking of doing collidal silver through nebulizer any thoughts....! Please help! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 20, 2014 Category: Respiratory Medicine Authors: acdkm Tags: Alternative Medicine Source Type: forums

Lung function during pregnancy
Hello everyone this is my first post here. I've found lots of info here and now would like to ask for some help. My wife and I have been together for over 5 years now and she happens to be the lucky one to have CF. We have a 2 year old son and when we were blessed to find out we were having a baby, lung function was about as high as could be. This time however, I think we are about 15-20% off of peak lung function. For anyone else who has CF and has been blessed with a baby, is it possible to increase lung function during this early time of pregnancy? With our son, everything went as smooth as can be with only 1 hospital s...
Source: Cystic Fibrosis Pregnancy Forum - April 17, 2014 Category: Respiratory Medicine Authors: jms44 Tags: Pregnancy Source Type: forums

Challenge Group
Hey everybody! I am a fitness coach and wanted to let you all know I am hosting a challenge group on facebook starting on May 19th. The group will be private so no one else will see anything you post in the group. You do have to use a beachbody program and I can help you figure out which one would work best for you! It will last for 30 days and throughout the challenge group you will post daily in the group and myself and a fellow coach will be there to help you stay accountable and motivated to stay active! I have been using several beachbody workouts and I have improved my lung function and gained 10lbs of muscle in ju...
Source: Cystic Fibrosis Exercise and Fitness Forum - April 15, 2014 Category: Respiratory Medicine Authors: Norman Fitness Tags: Exercise & Fitness Source Type: forums

Does this look like arthritis?
Wrist Left http://i.imgur.com/8ewS21u.jpg http://i.imgur.com/PpbFz8w.jpg http://i.imgur.com/YeFuW3S.jpg wrist right http://i.imgur.com/Zli7xrX.jpg Knee left http://i.imgur.com/bzGsuEZ.jpg http://i.imgur.com/x0QTnYd.jpg (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - April 6, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Exercise & Fitness Source Type: forums

BCAAs
Anyone taking any supplements for working out? I am taking a small amount, mostly just branch-chain amino acids but I was wondering if anyone else has any recommendations or experience to share? (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - April 3, 2014 Category: Respiratory Medicine Authors: RobinB29 Tags: Exercise & Fitness Source Type: forums

I need help translating my testosterone results!!
I know you're not doctors I just need help though. Test. Total : Ref range 250-1100 I'm in 462 Test. Free : Ref range 46-224 I'm in 98.8 Test bio available : Ref range 110-575 I'm in 211.8 Sex hormone binding : Ref range 10-50 I'm 17 Globulin albumin Ref range 3.6-5.1 I'm 4.7 *test. = testosterone (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - March 30, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

where to donate vest
does anyone know where a vest can be donated? I would like to get a tax deduction so it would have to be an entity that can give me a receipt. unless you need it badly and can pay the shipping from east coast. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - March 25, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Airway Clearance Techniques Source Type: forums

Cleveland Clinic?
We're still weighing our options between Duke and Cleveland Clinic. I know much more about the Duke program. The benefit if Cleveland is that we can stay home until the call comes. Have any of you been transplanted at Cleveland? I'd love to hear pros/cons. thanks (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - March 22, 2014 Category: Respiratory Medicine Authors: Jane Tags: Transplants Source Type: forums

Surprising Results with Essential Oils! Give it a Go!
**This by no means is "official" help for CF. This is simply my experience and what I have discovered from personal use. Sorry for the lengthy post but it is worth reading. Also, I'm trying to help and post this to a lot of my CF forums so it might be filled with some obvious info. MY PROBLEMS: I have not had many issues until 5 years ago. For the first couple of those years I was required to have 2 week hospital admissions for IV antibiotics every few months, then as time progressed and my lungs continued to scar my admissions became more frequent causing more resistance to various antibiotics. A big problem w...
Source: Cystic Fibrosis Alternative Medicine Forum - March 22, 2014 Category: Respiratory Medicine Authors: TheSaltyOne Tags: Alternative Medicine Source Type: forums

IVF - CF Female
Hi all, I am a CF female who is on the wait list to go through IVF. Just wondering if anything differs from the normal IVF process due to CF? The doctor I have been seeing does not seem to know anything about CF. Thanks (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - March 16, 2014 Category: Respiratory Medicine Authors: carmenNZ Tags: Pregnancy Source Type: forums

malabsorption and belly fat
Does malapsorption cause belly fat? Or is that more a diabetes thing? I work out hard by doing Insanity and weights and biking. But it seems the only place I store fat is my stomach. I noticed that lots of people with CF seem to be built the same way I am. Thin legs and arms and a thicker midsection. I have lots of muscle on my stomach which I'm guessing is compensation for the lungs having to work harder and coughing all of the time. I know CFers have larger rib cages. My respiratory therapist told me that. Nothing I do gets rid of this little belly flab though. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - March 15, 2014 Category: Nutrition Authors: Kayla11 Tags: Nutrition Source Type: forums

Celebrating 7 year Transplant anniversary!
Yesterday I celebrated 7 years post double lung transplant. (^) I'm doing extremely well. Healthy, happy and engaged to be married! :) Anyone with transplant questions feel free to ask. I'll do my best to answer with my knowledge. (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - March 15, 2014 Category: Respiratory Medicine Authors: beautifulsoul Tags: Transplants Source Type: forums