Green Smoothies
Thanks to a couple of you I am now on the green smoothie kick! So far, the only ones I have made have strawberries, spinach, and one banana in them. I know there are a ton of recipes online but are there any specific ones people like? I would love to know, so I can vary it up! And a huge thank you to those of you that have posted blogs on the more "natural" medicines for CF. It has helped me a ton! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 19, 2012 Category: Respiratory Medicine Authors: sue35 Tags: Alternative Medicine Source Type: forums

Flavon
group has finaly opened an office in the U.S. - so to those that wished to purchase - it will be opened soon - I will send a link once I get it. Asia - after over ayear on taking flavon kids and green has had a runnng nose once, her staph never returned and still has natural flora - however its from her throat. Her elastaze has jumped from 420 to 530 and - finally - she has no progress in lungs comerated to last year. She always had some little progress. I cannot say its flavon - I can only say I believe taking it made a difference in her health. Our cf specialist says its a great idea and that flavonoids make capilary mo...
Source: Cystic Fibrosis Alternative Medicine Forum - April 18, 2012 Category: Respiratory Medicine Authors: AleksandraKaczynska Tags: Alternative Medicine Source Type: forums

Do I Apply
I am on State medicaid and recieve Medicaid My Husband was a Vet And has a Honorable Discharge My Question is if I apply for his benifits will they take me off Medicaid if my income goes up how will i be able to have any insurance?My Husband has passed in 1987 I would love to know should I or should i apply and if my income goes up will I lose my insurance? (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - April 15, 2012 Category: Respiratory Medicine Authors: kgfrompa Tags: Payment Assistance Resources Source Type: forums

Allergies
Every spring when everything starts to bloom, my allergies kick off. Problem is, they stick around and become an infection. I'm doing pretty well right now...so I was wondering if there was anything you had found helpful to help keep your allergies down? (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - March 6, 2012 Category: Respiratory Medicine Authors: sunshine39656 Tags: Asthma, Allergies and Green Source Type: forums

Being a more efficient parent.
I posted this under Families / Time Management. But also wanted to ask the question from a different angle - Looking for tips on managing your day with 2 lpwcf in the house. Where both parents work out of necessity ,balancing the day, physio,nebs,school run, work etc is challenging.wonder if someone out there has created an efficient routine? Thanks for your thoughts. Is there something extra we can do as parents to run a household more efficiently when there are 2 children with cf in the house. I find usually one or the other cooperates to get their treatments done before heading off for school / work in the mornings. ( ...
Source: Cystic Fibrosis Parenting Forum - January 25, 2012 Category: Respiratory Medicine Authors: MDad Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Winning with CF in 2012!
Hi All, It's time for my annual teleclass (by phone) for parents of kids with cystic fibrosis. I hope you can join me this year. Best Wishes for a happy, healthy 2012! REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids™ Dear CF Parents and Guardians, Wouldn't it be nice to know about the parenting potholes in the road of life with cystic fibrosis so you can avoid them? A new teleclass starting on Feb 1, 2012 will will make your life easier whether your child is two or twenty-two. Based on the popular Love and Logic® parenting program, you'll discover how t...
Source: Cystic Fibrosis Parenting Forum - January 5, 2012 Category: Respiratory Medicine Authors: LisaGreene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Needing Zevex Bag/bags 500ml ASAP in Jacksonville FL
We just left NC for Jacksonville FL for Christmas and we forgot Zevex feeding tube bags 500ml. If any one in the area or close by Jacksonville FLhas one or two to spare we would appriciate it. Thanks again and Happy Holidays!!!!!! (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - December 21, 2011 Category: Respiratory Medicine Authors: scheesman Tags: Asthma, Allergies and Green Source Type: forums

What are you allergic to?
Just curious as to what things--meds, foods, animals, plants--you're allergic too (not sensitive/intolerant).My only allergy is Sulfa medications, which kinda stinks since a few drugs used to treat CF related things require Sulfa drugs. Apparently when I was a baby it made me break out in hives...But! I decided to have my allergy tested, so right after this round of IV's is up it's off to the allergist! BTW, I love how they want to "test" it. I.e. crush up a sulfa pill and give me tiny bits until I break out. Very sophisticated.So let's hear your allergies! (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - September 20, 2011 Category: Respiratory Medicine Authors: SIcklyhatED Tags: Asthma, Allergies and Green Source Type: forums

Fev's up but switching meds??
Hi! It's been a while since I have posted anything but I always read these forums. I was wondering, my daughter's pfts were the best they have ever been at fev 112%. I was floored!! She had just been on prednisone for 5 days but still! Anyways, she keeps having episodes of needing to be on steroids so the pulmo thinks we need to change her meds from advair to symbicort. What I dont understand is why if her pfts were so good? Why would she keep having these "episodes" if her asthma is improving?? Or if her lungs were so open and clear??   Short history: She has one mutation, G576A. Thats it. 44 and 39 sw...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - July 18, 2011 Category: Respiratory Medicine Authors: kaylinsmom Tags: Asthma, Allergies and Green Source Type: forums

Warding off asthma attacks with a drink?
OK, I am NOT advocating the alcoholic type here, especially since it gives me gout! What I am talking about is drinking a super-chilled drink slowly through a straw when I feel the tightness of asthma coming on. Even something simple as ice water helps a lot. Amazingly, it seems to numb the nerve responsible for causing uncontrollable dry hacking for me. I have to sip slowly and really get the fluid to the back of my throat, then swallow slowly. A caffinated and carbonated cold drink seems the best for putting an attack on the back burner. If I am in a public situation or in a car, it least it buys me some time. Anyone els...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - June 28, 2011 Category: Respiratory Medicine Authors: imported_Momto2 Tags: Asthma, Allergies and Green Source Type: forums

Older child acting out
Not sure where to post this, hope this is the right place. I can barely get through my chest pts bc I have to get up 10x to discipline DD, which hasn't been a problem since she was really little. Thats always been an area where I take a firm hand-moms chest pt time does not get interrupted. The baby is honestly a piece of cake-he's very good, and I'm getting used to the sleep deprivation. Its this little 4 yr old spitfire thats doing me in... (Source: Cystic Fibrosis Parenting Forum)
Source: Cystic Fibrosis Parenting Forum - June 16, 2011 Category: Respiratory Medicine Authors: mamaScarlett Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

P. Aerginosa Infection - Forehead Sinuses
Does anyone else have this? I've had a Pseudomonas infection for over a year.  Gives me migraines.  I do daily sinus rinses with the salt/water solution with Alkalol, Johnson & Johnson and Baking Soda added.  The green infection is draining from my sinuses to back of my throat (post-nasal drip basically) and it's like a thick sticky blob of infection.  VERY annoying.  The sinus wash isn't really washing it out b/c my sinuses are so swollen from the infection.Thoughts anyone??Thanks! (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - June 2, 2011 Category: Respiratory Medicine Authors: Sixty5roses Tags: Asthma, Allergies and Green Source Type: forums

"Winning with CF" Live Presentations
Hi All, I will update this post regularly as I schedule new Family Ed Day presentations and workshops. Following is a description of what I talk about. I would LOVE to meet you if you are attending one. It's so fun to put faces to the names I see here. Hope to see you soon! Hugs and Hope, Lisa   Winning with CF: Top Do’s and Don’ts for Raising Healthier, Happy Kids™ Every parent dreams of raising responsible kids who do their homework, chores and make wise decisions. And when a child has cystic fibrosis, responsibility also means medical adherence. You’ll learn prac...
Source: Cystic Fibrosis Parenting Forum - May 7, 2011 Category: Respiratory Medicine Authors: LisaGreene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

went off my singulair
Has this happened to anyone else I went in for allergie shots and then was taken off my singulair I have been so sick my lungs are full and I have such a sore throat. My doctor put me back on singulair and I am on IVs but who would know such a small pill would be so inportant! (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - April 23, 2011 Category: Respiratory Medicine Authors: kgfrompa Tags: Asthma, Allergies and Green Source Type: forums

I'm so excited to share this new project with you!
Living with CF Series I am SO EXCITED to share this with you all. I've been working on it for about a year and it's really coming together. We have created a series of (free) pamphlets for parents of children with cystic fibrosis (and medical professionals). Right now, they are available as downloads. We are working on getting hard copies printed for the CF clinics to hand out. Here's the link to view them at www.ParentingChildrenWithHealthIssues.com under "Resources" and "Living with CF" pamphlets towards the bottom of the page. Please let me know what you think. We've gotten amazing feedback s...
Source: Cystic Fibrosis Parenting Forum - March 25, 2011 Category: Respiratory Medicine Authors: LisaGreene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

When is it too much information?
I have a three year old with CF. She is an active, happy girl. I am very involved with the CF Foundation and make speeches. I also am fundraising constantly on the phone and in person. My daughter is with me on all of these outings. I am starting to get worried she is hearing too much about the disease she has and will start getting stressed about it. I know she is three, but is this too much for her? Am I causing her to be worried about her disease too soon? (Source: Cystic Fibrosis Parenting Forum)
Source: Cystic Fibrosis Parenting Forum - March 21, 2011 Category: Respiratory Medicine Authors: BabyBeauty Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids
This message is updated to reflect current info: Hi All, Dr. Cline and I have scheduled our 2012 teleclass for CF parents. I hope you can join us! It's a wonderful class. Here's the scoop: Wouldn't it be nice to know about the potholes in the road of life with cystic fibrosis so you can avoid them? A new teleclass starts on Feb 1st, 2012 which will help you along the way. Discover how to: . Motivate children to make wise choices about food and medication. . Put an end to power struggles, arguing, whining, and complaining. . Prevent behavior problems before they start. . Promote responsibility without nagg...
Source: Cystic Fibrosis Parenting Forum - January 28, 2011 Category: Respiratory Medicine Authors: LisaGreene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

CF Ed Day- Lisa Greene - Tools, Tips, and Tactics for Raising Healthier Kidstm
From the flyer: The Cystic Fibrosis Foundation proudly presents AN EVENING OF LOVE & LOGIC with LISA GREENE Award-winning co-author of Parenting Children with Health Issues February 24, 2011 6 to 8:30 pm Location: The Skaggs Institute for Chemical Biology The Scripps Research Institute 10596 North Torrey Pines Rd, La Jolla, CA 92037 Seating is limited. To reserve admission to the event call: (858) 452-2873 Parents Please join us for a life-changing evening. $10 suggested donation benefiting the CF Foundation. Sponsored by Smart Vest- Thank you. (Source: Cystic Fibrosis Parenting Forum)
Source: Cystic Fibrosis Parenting Forum - January 28, 2011 Category: Respiratory Medicine Authors: LisaGreene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

2% Bactroban as nasal rinse
I saw a sinus specialist at Hopkins today who works with CF patients. I still have no diagnosis; the adult CF clinic sent me to her as they don't think I have CF. I was using pulmicort in my nose for the last month and today she switched to bactorban 2% mixed in a neil med solution, twice a day. I keep getting green drainage (specks, dried up muscus) My sinus scan looked pretty good after a month of levaquin and pulmicort. Anybody ever used this stuff in their nose? My first surgery didnt heal correctly (different doctor) amd may be the problem. However she went into the this is respiratory, my PFV was 78, which she call...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - January 14, 2011 Category: Respiratory Medicine Authors: bmombtoo Tags: Asthma, Allergies and Green Source Type: forums

Supplements for baby and breastfeeding momma
Hello. I am new to this site. My baby girl was dx with CF via NBS at 5 wks. SShe is now almost 5 mo. She is just about exclusively breastfed. Although, we are just starting to introduc some solids. I was wondering at what age folks added supplements to their infant's diet. I've upped my vitamin intake, take fish oil and probiotics in hopes that this will pass to my baby via breastmilk. I would like to add fish oil and probiotics to her diet but have been cautioned by the CF team about aspiration. Are there folks out their supplementing their infant's diet? She is currently taking vitamax liquid vits and she will soon take ...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - October 26, 2010 Category: Respiratory Medicine Authors: momtocrazel Tags: Asthma, Allergies and Green Source Type: forums

Insurance Question
We have BC/BS insurance through my husband and it's a lousy plan. The deductible is $10K/ind. and $15K/fam. and our WEEKLY premium just jumped up to $230/wk, an increase of $100/wk. My husband doesn't want to change jobs if he doesn't have to and isn't sure he could find anything better anyhow. I'm on Medicare A&B, but my prescriptions are the problem. We've been looking into alternate private ins. plans for the whole family or something just for me to pick up the prescriptions. Humana is coming to talk next week. Are any of you on Medicare and use Humana? What do I need to be cautious of? Do you have recommendation...
Source: Cystic Fibrosis Payment Assistance Resources Forum - October 1, 2010 Category: Respiratory Medicine Authors: Aspiemom Tags: Payment Assistance Resources Source Type: forums

Best Places to Live for CF kids
Did anyone see last night's CBS 60 Minutes segment about surfing and CF kids? The article said that the kids were reporting to breathe easier after coming out of the salt water. I have been looking for a while for any studies which show under which environments CF patients do best. Does anyone have any thoughts? According to last night's piece, being near the coastline would be a good thing. Thanks! (Source: Cystic Fibrosis Parenting Forum)
Source: Cystic Fibrosis Parenting Forum - September 8, 2010 Category: Respiratory Medicine Authors: kristanbz Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

How do you guys deal?
I recently returned from Walgreens empty handed because my card got declined. Thankfully this time I will be able to return tomorrow and get the pills I need. How do you guys deal with the extreme cost of medicine? Some corporation is profiteering off of my life and I have trouble dealing with this. I have pretty much run out of drugs to help me escape that don't negatively effect my health. I leave walgreens once a month wishing I could murder the people responsible for charging so much for my medicine. How do you guys escape this? (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - August 28, 2010 Category: Respiratory Medicine Authors: Node Tags: Payment Assistance Resources Source Type: forums

Battling a cold: Should I give a decongestant to 2 yo?
My son, 23 months old, is currently battling what seems to be a cold. It may or may not be related to teething (2 year molars). I noticed the symptoms beginning Thursday. It started with what sounded like post nasal drip (he was swallowing hard). Then his cough increased and he developed a small temp (99.8). His eyes appeared glassy and he has occasionally sneezed. Last night he did not sleep well, cryed out in his sleep on and off. I can hear the mucous is his sinuses as he sleeps. I'm thinking a decongestant or antihistamine would help dry it up so he can sleep but would that be undoing what the hypertonic saline is ...
Source: Cystic Fibrosis Parenting Forum - July 24, 2010 Category: Respiratory Medicine Authors: n8thegr8 Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

hollistic meds for 13 month old
what hollistic meds can a 13 month old take. want to start him on fish oil, what is the recomended doses? thanks (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - July 14, 2010 Category: Respiratory Medicine Authors: palinsyaya Tags: Asthma, Allergies and Green Source Type: forums

What do you do to discourage pseudomonas while keeping your child happily "normal"?
Hi Lisa, So, in the world of newly diagnosed, I am trying to regain some balance in my family's life, particularly concerning pseudomonas and how to avoid them. I konw about the hot tub issue, but I need to understand if I should keep my daughter away from other things. For example, this last week we have come in contact with the following. Should I have avoided them? 1.) Bubble machines! All kids LOVE them, but are they safe? Should I stear her away from them when we see them at the park/etc? 2.) Water fountains. Not to drink from, but the decorative ones at the park. She loves to play around those as well. Thanks for...
Source: Cystic Fibrosis Parenting Forum - July 10, 2010 Category: Respiratory Medicine Authors: edan Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Animals
Do any of you have animals, and do they impact your health? I have several, and lately I have been wondering if they will impact my health in the long run. Any input? (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - July 1, 2010 Category: Respiratory Medicine Authors: rose23 Tags: Asthma, Allergies and Green Source Type: forums

Toddler eating battles
My son is 22 months old and is at a very healthy weight, but lately we've been having some issues at mealtime. Do you have any suggestions to help when he refuses to eat what's put in front of him (or eat much of it at all)? He tends to be somewhat picky - doesn't like certain textures (or colors for that matter... red grapes good, green grapes bad). I want him to be able to eat at least part of what the rest of the family eats at mealtime and not make his dad and I short order cooks. How can I teach him good eating skills? Thanks!! (Source: Cystic Fibrosis Parenting Forum)
Source: Cystic Fibrosis Parenting Forum - June 27, 2010 Category: Respiratory Medicine Authors: AKJen Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

MUST be satisfied!
When I was pregnant, my husband Adam had the 32 gene mutation panel done and was NOT found to be a carrier. At the time, we were satisfied with that. However, as time goes on and I learn more about this disease and just how many mutations exist (thanks, in large part, to this website!) I'm not really satisfied with that anymore. I've been interested in getting more testing done, either on her or possibly having gene sequencing done on my husband. But since she shows no symptoms, our family doctor and everyone at my CF center have completely dismissed my concerns. Usually saying something like "She's growing fine, so...
Source: Cystic Fibrosis Parenting Forum - June 24, 2010 Category: Respiratory Medicine Authors: jennylivingston Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Young children with asthma, adult with CF, cross contamination
My husband (age 24) has cystic fibrosis. We are looking into adopting children from foster care. Some of the children have severe asthma. My husband has had a positive sputum test for PA once years ago but his infection must not be real bad because the sputum tests since then have come back negative. I was wondering if the bugs my husband harbors and may harbor in the future would harm toddlers with severe asthma. Would a different home be better for them? We aren't adopting children yet, just looking through profiles and talking about what would be the best match for our family. My husband is relatively healthy for ...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - June 8, 2010 Category: Respiratory Medicine Authors: Pebbles8 Tags: Asthma, Allergies and Green Source Type: forums