Therapies: What do you do each day?
Hey there! I think it would be interesting to read what kind of therapy everyone is doing, especially concerning age, which mutations and where you come from. If you are also interested, please share! I will make a start: 22 months old, with f508del and r553x, living in Germany morning: Sultanol, after that 4ml HTS 6% midday: 2,5ml Pulmozyme evening: Sultanol, after that 4ml HTS 6% after/during each neb session doing stretching exercises, blowing games etc. Taking Kreon, AntraMups, Aquadeks, Vitamin D and if necessary oral Antibiotics (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - May 7, 2013 Category: Respiratory Medicine Authors: Kaethe108 Tags: Airway Clearance Techniques Source Type: forums

Starting the evaluation for transplant
My son is 22 years old and is getting sick every time he comes off IV meds the dr.s are telling us to get prepared to start the evaluation process. Iam watching my son get sicker and thinner aLl the time And as soon as he comes off the ivs his gets sick again to watch him get disappointed is hard to handle. So I am trying to prepare my self as what this process is going to be like. Can any one tell me about the process and the Drs. have told us in the past that success rate isn't very good but when look on here I read many success stories. I don't know what to think any info would be very helpful (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - May 6, 2013 Category: Respiratory Medicine Authors: robbiekay Tags: Transplants Source Type: forums

Nexus6 asthma monitoring technology
Auckland-based medical device company Nexus6 has secured $3m from Australia-based life sciences investment firm BioScience Managers. Details can be found here.. http://medicaldevices-business-review.com...asthma-monitoring-technology (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - April 29, 2013 Category: Respiratory Medicine Authors: emilymainzer Tags: Asthma, Allergies and Green Source Type: forums

Tricia Lawrenson
Tricia wanted me to post here for her to let you all know that she received a call for transplant this morning at 7am. We are at the hospital, waiting to find out if it is a go. Thanks. Nate (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - April 27, 2013 Category: Respiratory Medicine Authors: NathanL Tags: Transplants Source Type: forums

Asthma doctors
I wanted to know if any of you know an excellent asthma specialist in the new york city area. The cf clinics can only do so much with severe asthma issues. Need to have someone who really understands asthma and all it's complications. Any suggestions would be appreciated. thanks (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - April 27, 2013 Category: Respiratory Medicine Authors: 4hats Tags: Asthma, Allergies and Green Source Type: forums

My husband just had a transplant...some of his nurses and his surgeon are saying...
He can't have certain foods and drinks. For example, they said he isn't allowed to have any fruits or vegetables that are fresh (otherwise, they have to be cooked) And he cannot have stuff like sushi (with the raw fish in it) And water that isn't bottled. Is some of this true, and do any of you have a comprehensive list of what to eat/not to eat post transplant? Btw, he is doing amazing. He got the surgery Tuesday night and I'm sitting here with him now. He has oxygen stats of 100 without oxygen and has been on room air the whole time. Got up and walked around the nurses station twice on this floor the day after his surge...
Source: Cystic Fibrosis Transplants Forum - April 27, 2013 Category: Respiratory Medicine Authors: Cbegley Tags: Transplants Source Type: forums

Is there a need for a nebulization guidance computer program?
When I was a child, I never used to focus much on doing my inhalations properly. I did them twice a day like I was told but the effect was probably small to nonexistent due to poor technique. I did know the correct technique but it was easier and more fun to do something else while inhaling and ignoring the effectiveness. Luckily, I did a lot of sports so it never really mattered but now when I am grown up I find it incredibly boring to do the inhalations effectively. It is possible to do the inhalations very effectively if there are no outer distractions but if I e.g. read my mail while inhaling this usually leads to very...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - April 24, 2013 Category: Respiratory Medicine Authors: jwk Tags: Airway Clearance Techniques Source Type: forums

transplant and ssdi
Have you had a transplant, and if so did you receive ssdi before the tx? Are you still getting ssdi? If not, when did it stop? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - April 15, 2013 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

looking for asst application for pfizer??? im out of tobi an hypertonic!!!!!!!!
hey guys looking for asst. programs for tobi, hypertonic etc. i belive it was pfizer who had it but not sure. im out of tobi an hypertonic!!!!!!!! my insurance will only pay 80% (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - March 26, 2013 Category: Respiratory Medicine Authors: Matt31 Tags: Payment Assistance Resources Source Type: forums

Allergies with low IGE
My scratch are positive for a large number of allergies, but my bloodwork shows my IGE level is very low. My daughter has the same allergy and blood test results. My sinus CT scan shows lots of mucus from allergies too. So does anyone else have this? I have been reading about non-iGE mediated allergies and that they are treated with mast cell stabilizers such as Zyrtec and Chromolyn Sodium. I found Nasalcrom nose sprey over the counter with Chromolyn Sodium as the active ingredient. I tried the Nasalcrom nose spray and Zyrtec and they seem to be working. I am not a medical person, so if anyone has experience with these me...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - March 21, 2013 Category: Respiratory Medicine Authors: Beccamom Tags: Asthma, Allergies and Green Source Type: forums

Smoking Pot/RSO Oil
I have been using Rick Simpson Oil now for 3 weeks and I have seen some amazing results.http://phoenixtears.ca/ I have also been smoking Marijuana for a year now. Ive found that it breaks and forces that mucus up. Sure the coughing hurts and is certainly not fun but if you can tough out the painful part smoking gets easier over time and the pain relief is almost instant! Anyone else experiencing great results with Marijuana use? I was not ever officially diagnosed with CF we started to suspect I had it a year ago. Over time I noticed my "asthma" attacks getting worse and worse and it feels like I have a lung infe...
Source: Cystic Fibrosis Alternative Medicine Forum - March 5, 2013 Category: Respiratory Medicine Authors: burnanator420 Tags: Alternative Medicine Source Type: forums

Is anyone selling a vest? we are fundraising for one x
Hi, im in the UK, we have been fundraising to buy my 17 year old daughter the vest, she has Pseudomonas and B-cepacia and would really benefit from the vest, has anyone got one for sale please and able to send to the uk, ill pay full shipping costs obviously, please let me know thank you Nikki mum to Chloe, 17 years old with CF ad CFRD, pseudomonas, B-cepacia. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - February 26, 2013 Category: Respiratory Medicine Authors: Nikki Hinchliffe Tags: Airway Clearance Techniques Source Type: forums

Reactions to Ceftazidime
Hi, I'm new here and have never posted before, so I hope I'm doing the right thing?!?!? My daughter (16yo with CF) was in hospital last week having IV Ceftazidime and Tobramycin to treat pseudomonas. I was wondering if anyone has had a reaction to Ceftazidime? She has previously had other medications, but this time and last year when she was in, she seemed to have a reaction of some sort, to something. The doctors suggested it to be a viral thing, "perhaps she caught a bug just before coming in to hospital". However, every other time she has been admitted to hospital she's felt fine, it's only been these last t...
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - February 26, 2013 Category: Respiratory Medicine Authors: hll124 Tags: Asthma, Allergies and Green Source Type: forums

A few questions about obtaining medical training in Ireland
Greetings, all! I have a few questions regarding obtaining medical training in Ireland... specifically higher specialty training. >> As of now, after talking with representatives/agents in the Irish Medical Council, the best I can do at this point is to apply for registration into the general registry. I am a Category 4 applicant - I did my medical schooling and postgraduate internship in a non-EU/EEA country - however, I completed my residency in internal medicine and fellowship training in critical/intensive care medicine in the US. They stated that applicants who do not have the equivalent or a Certificate of Ex...
Source: Student Doctor Network Forums - February 13, 2013 Category: Universities & Medical Training Authors: TerraCotta Tags: UK & Ireland Source Type: forums

colloidal Silver?
Hello All! This is my first time posting, but I am desperately trying to find information about colloidal silver. There is some talk bubbling up among my Cf community about nebulizing colloidal silver, so I wanted to get a feel for it from y'all. I've been trying to find research on the issue but all I can come up with is claims by the actual companies selling the product. I will admit I am very skeptical, so this post will reflect my fear. Please know I am not trying to offend anyone or start an argument, but I would like to see some healthy debate on the issue. I think we can be adults and not get everyone's ire up. :...
Source: Cystic Fibrosis Alternative Medicine Forum - February 11, 2013 Category: Respiratory Medicine Authors: politicaljules Tags: Alternative Medicine Source Type: forums

Occam's Razor be damned
yesterday, 2 cases, the first severe respiratory distress and chest pain. Turns out to be pneumonia with adjacent effusion, and b/l PE's, and a large lung nodule suspicious for Ca, despite a story sounding like COPD and lungs too tight to move any air and an CXR looking more like CHF. The second, suicide attempt, by alcohol and xanies and oxy's (the latter 2 stolen), with aspiration pneumonitis, and tylenol level>100 (despite the PD and paramedics finding no tylenol containing bottles), and then the urine hcg popped up positive, lol. At least I felt like an EP instead of an urgent care doc, :) (Source: Student Doctor Network Forums)
Source: Student Doctor Network Forums - February 9, 2013 Category: Universities & Medical Training Authors: Rendar5 Tags: Emergency Medicine Source Type: forums

The best airway clearance for me..
is LAUGHTER! Honestly besides the acapella, laughter is the only other thing that gives me great clearance! I don't mean to sound crazy or dumb. I could sit and do the vest til the cows came home but it just doesn't do anything except make my cheeks shake. Plus laughter is good for the soul (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - February 7, 2013 Category: Respiratory Medicine Authors: eliqueang Tags: Airway Clearance Techniques Source Type: forums

MD & DO low GPA, good ECs/experience
-cGPA: 3.38, sGPA 2.75--no MCAT as of yet, current semester's GPA was 3.78 -volunteered throughout undergrad at a free clinic every Saturday for 3-4 hours serving under and uninsured patients also coordinate service and secured a grant for the clinic -shadowing: intensive care unit 20 hours, pediatric ER 40 hours, primary care clinic 10 hours, respiratory and allergist specialist 5 hours -no research -volunteered as Hispanic clinic service coordinator (1 yr), at a local crisis nursery (30 hrs/yr), started school club to raise awareness regarding Hispanic immigrant issues, executive board position with school's pre-health h...
Source: Student Doctor Network Forums - February 3, 2013 Category: Universities & Medical Training Authors: mokf14 Tags: What Are My Chances? Source Type: forums

Alternative Pain Medicine
Hi all! I posted in the Adult Section just now - but wanted to post here as well. Looking for some alternatives to pain medicine - my BF is currently taking VICODIN (6-8 pills per day) to manage his chronic pain from CF and also to deal with the pain that comes with his recent lung surgery (left lung had collapsed recently) His current pain doctor feels that he is abusing the pain medicine, he is a 26 year old male (BF) Looking for some suggestions/help! We are in the process in looking for a new doctor for a second opinion but I would love to hear some alternative pain medicine that helps with the pain in the inner ...
Source: Cystic Fibrosis Alternative Medicine Forum - January 31, 2013 Category: Respiratory Medicine Authors: Nicole Emily Buckley Tags: Alternative Medicine Source Type: forums

More Active
I really wish this section of CF.com was more active. I believe we could really change the CF community with this info. Check out my blog www.insidecf.blogpsot.com and see how Im using alternative medicine and diet. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 29, 2013 Category: Respiratory Medicine Authors: jbrandonAW Tags: Alternative Medicine Source Type: forums

Mini Podiatric Med School April 20, 2013 @ BUSPM
Program Announcement: Mini Podiatric Medical School at Barry University Location: Center for Community Health and Minority Medicine, 320 NW 115th Street, Miami, Florida 33168 To raise awareness of the field of Podiatric Medicine and Surgery and to encourage students to consider a career in podiatry, Barry University’s School of Podiatric Medicine and Surgery is hosting its third Mini Podiatric Medical School on April 20, 2013 from 1 to 5 P.M. This program consist of 1 1/4 hours of lecture followed by a 15 minute break, then 2 hours of hands on experience concluding with a ½ hour talk on admissions to podiatry sch...
Source: Student Doctor Network Forums - January 28, 2013 Category: Universities & Medical Training Authors: naperpeds Tags: Pre-Podiatry Students Source Type: forums

Love & Logic approach to meds when afraid?
Lisa, I'm hoping you can help me with your thoughts. DS just finished a bad 2 weeks of stomach stuff. He was getting a back-up, choked on a chip and then got a stomach bug (at least that's what I think happened). He started refusing his enzymes when he had no problem before and I believe became afraid to take b/c of problems swallowing (the puree with them sprinkled). I'm working with a good dietitian/feeding expert/therapist on self-mastery and we're getting a little better. (Her approach is very L&L based--calm, not anger, setting expectation, etc.) He started with one little "pebble" at a time and is now t...
Source: Cystic Fibrosis Parenting Forum - January 21, 2013 Category: Respiratory Medicine Authors: Aboveallislove Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

New Respiratory Physiology Website, Free open access!
Hi Im involved in a project with my university supervisor where we are producing a respiratory physiology website. We have 2 cases up and running at the moment but could really use some feedback and suggestions for improvement. We want to expand the cases to include cardio,resp etc. Natalies Casebook Cheers Edd (Source: New Media Medicine)
Source: New Media Medicine - January 20, 2013 Category: Universities & Medical Training Authors: ed12121212 Tags: Current Medical Students Source Type: forums

Alternatives to Aquadeks
I was very disappointed to read that my Aquadeks have food dyes and GMOs on the ingredient list- can any of you recommend an alternative with a comparable vitamin profile? Thanks! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 11, 2013 Category: Respiratory Medicine Authors: jmiller1 Tags: Alternative Medicine Source Type: forums

Halo?
Hi All! Has anyone seen this new Halo product or tried it? (http://halogermdefense.com/) Is it safe for CFers? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - November 29, 2012 Category: Respiratory Medicine Authors: smurn Tags: Alternative Medicine Source Type: forums

CF related bowel cancer and alternative therapies?
Hi I am 12 years post lung transplant for CF. Last year, I was diagnosed with small bowel adenocarcinoma at 39, did surgery and chemo ,and five months after stopping chemo , it came back and metastasized. I had more surgery and am doing chemo again. My oncologists have never seen a CF -post-lung transplant pt with cancer before so I feel like I am playing doctor in this role as an expert of my body and doing my own research on PubMed, ect. has any other cf adult out there had bowel cancer and how did you handle it with the docs? were you post-transplant ? if so, how did you handle the chemo and immunosuppressants? Did ...
Source: Cystic Fibrosis Alternative Medicine Forum - November 18, 2012 Category: Respiratory Medicine Authors: amstenzel Tags: Alternative Medicine Source Type: forums

Beth Sufian's guide to insurance
Passing along this information: ---- Children and adults with cystic fibrosis (CF) need some form of insurance coverage to help pay for medical care and medications needed to treat the disease. Beth Sufian, the author, has developed a general guide with Gilead Sciences, Inc. to assist people with CF, their families, and healthcare providers in identifying potential health insurance policies offered by an employer, and government programs such as Social Security benefits, Medicaid, Medicare, and state-government programs. In addition, the Affordable Care Act may help people with CF access coverage. To download a co...
Source: Cystic Fibrosis Payment Assistance Resources Forum - November 17, 2012 Category: Respiratory Medicine Authors: CrisDopher Tags: Payment Assistance Resources Source Type: forums

Wanted: Participants for test group homeopathic treatment of Cystic Fibrosis
. Hello, My name is Deny De Meyer, I am a Belgian classic homeopath. Currently, I’m in the process of starting up a test group of people with cystic fibrosis, for a homeopathic treatment of 3 months. It’s my intention to gather a lot of experience over a short period of time regarding the treatment of CF-patients by means of homeopathy: to see how deep homeopathy can affect them and what results are possible. You might be wondering, “A Belgian homeopath, what’s she doing here on this American forum?” In order to achieve as much information as possible over such a short time, it is necessary...
Source: Cystic Fibrosis Alternative Medicine Forum - October 30, 2012 Category: Respiratory Medicine Authors: Deniee55 Tags: Alternative Medicine Source Type: forums

Hope for Brandon!
This is a donation page for Brandon Delacruz. He is a 23 year old, suffering from Cystic Fibrosis. He has recently been given a year left to live. He doesn't want anything extravagant or fancy, but a lot of his friends have been wanting to chip in and donate in hopes for a "Make a Wish" type of fund for him, so that he and his wife (me) can do something with it. Maybe a small vacation, help towards buying a scooter, or a portable oxygen tank, something useful that will really help him. We want to make him happy, so please help this remarkable young man! http://www.gofundme.com/hopeforbrandon (Source: Cysti...
Source: Cystic Fibrosis Payment Assistance Resources Forum - October 14, 2012 Category: Respiratory Medicine Authors: Shelby Delacruz Tags: Payment Assistance Resources Source Type: forums

Anyone have any experience with Quinton or Marine Plasma?
My wife is pregnant with a CF baby due in January. My aunt owns a health products company in Colorado and she's been doing some research and talking with doctors and she highly suggests that we start some treatments with a product called Quinton which i believe is also called marine plasma. It's supposed to be great for all around health and help fight diseases/sickness etc. She's sending 6 boxes for free to get started which is awesome, and so far I haven't seen anything negative about it. Does anyone have any experience with this stuff? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 10, 2012 Category: Respiratory Medicine Authors: dougs280z Tags: Alternative Medicine Source Type: forums

chiropractor
Just wondering what your thoughts are on chiropractic care for a cfer. Does it help? Does it improve lung function and overall well being. Considering it for my daughter. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 5, 2012 Category: Respiratory Medicine Authors: Bella's-mom Tags: Alternative Medicine Source Type: forums

Possible new way to fight lung infections
Check out this article. http://www.spiritindia.com/health-ca...cles-7534.html A study done in collaboration with the University of Washington found that using a metallic "Trojan Horse" - tricking the bacteria by replacing the iron they need from their environment with the metallic element gallium - can ki ll bacteria. The study will appear in the April 2 issue of the Journal of Clinical Investigation. The UC team headed by Bradley Britigan, MD, chairman of the internal medicine department at UC and staff physician at the Cincinnati Department of Veterans Affairs Medical Center, found substituting galliu...
Source: Cystic Fibrosis Alternative Medicine Forum - September 4, 2012 Category: Respiratory Medicine Authors: rmotion Tags: Alternative Medicine Source Type: forums

pollen
any one here allergic to pollen and what does it do it used to never bother but my lungs have been going downwards and i think this is what may be bothering me cuz for the past week ive been caughing alot more and it seems to be harder to breath my lungs feel really congested could this be due to pollen because it is high at this time of the year where i live i dont sneeze or have runny nose but (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - August 26, 2012 Category: Respiratory Medicine Authors: monds1234 Tags: Asthma, Allergies and Green Source Type: forums

Winning with CF Class in 2013
Hi All, I have scheduled my annual "Winning with CF" teleclass for Febuary, 2013 and wanted you to know about it. This will be my fifth year teaching it! This is a six week, 2 hour teleclass for parents/ guardians of children of all ages with cystic fibrosis. You will learn techniques that: - Are simple and easy to learn - Teach resilience, responsibility, character and good coping skills - Lower your stress level - Have immediate and positive effects - Up the odds your child’s transition to independence will be fun instead of frantic In this class, you'll discover how to: - Motivate kids with CF to ad...
Source: Cystic Fibrosis Parenting Forum - August 10, 2012 Category: Respiratory Medicine Authors: LisaGreene Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

M. abscessus patient recovers using bioactive compounds and supplements
My husband is recovering very nicely from M. abscessus after using an intensive regimen of bioactive compounds and supplements. New website with all the information is ntmnews.com. http://www.prweb.com/releases/2012/7/prweb9701215.htm (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - July 16, 2012 Category: Respiratory Medicine Authors: sedonagate Tags: Alternative Medicine Source Type: forums

Anyone Heard of MSM / DMSO?
My Dad has found, through research, a naturally ocurring compound called MSM. Naturally ocurrs in the body and in many foods. Basically a sulphur that our body needs. Why does it POTENTIALLY relate to CF? Because MSM affects cell membranes, especially mucous membranes. It basically naturally coats cell membranes to help relieve them of excess pressure, fluid and toxins. It is believed to have amazing anti-inflammatory effects. I found a few articles referencing MSM use for the respiratory and digestive tracts. There aren't many studies done on this, and as usual, our ridiculous FDA does not want to approve this. Only side ...
Source: Cystic Fibrosis Alternative Medicine Forum - June 30, 2012 Category: Respiratory Medicine Authors: 3RingCircus Tags: Alternative Medicine Source Type: forums

Inhaled glutathione
.....how many times a day do you use it? When in the daily routines do you use it? During vest? Immediately after vest? Where in the list of other inhaled Meds does it find the greatest benefit in your experiences? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 27, 2012 Category: Respiratory Medicine Authors: brianbrandi Tags: Alternative Medicine Source Type: forums

Vitamins...
The cf clinic called and said my oldest DD's vit D is low and she should now take two source CF's. She is already taking one source cf, 1 vit D3 2,000 IU's, faxseed, garlic, fish oil, and vit C. I told her she was supposed to take a second source CF and she groaned. So now I'm in search of better ways to get this under control. I guess part of me is just frusterated that instead of trying to help us find better food's the clinics are quick to push pills. Well there is no guarantee the pills are even worth the money that is spent on them. So we're just shoving random stuff in their bodies hoping it works? We have removed gl...
Source: Cystic Fibrosis Alternative Medicine Forum - June 27, 2012 Category: Respiratory Medicine Authors: mysticrose Tags: Alternative Medicine Source Type: forums

Cure diseases/infections/viruses with microcurrents
I originally posted this link int he Adults section but then noticed this section and thought it might be best suited here. Very interesting video I cam accross while searching stuff. draw from it what you will, some might totally not belive it and think it's crazy but who knows. I guess when you're deperate enough you'll try anything and it seems they've got quite a bit of evidence of it working - all be it suppressed or even dismissed to the public. Anyway here it is link (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 26, 2012 Category: Respiratory Medicine Authors: lilmac7 Tags: Alternative Medicine Source Type: forums

AP for green smoothies
A while back Josh had candida overgrowth and began drinking green smoothies as a part of his treatment. We had a recipe book, but I just found this AP that gives good info about the health benefit if each ingredient too. Just thought I'd share. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 24, 2012 Category: Respiratory Medicine Authors: Jane Tags: Alternative Medicine Source Type: forums

Trying to rid PA!
Our 6yo is still positive for PA. Since PA dx in Jan, we have done 11weeks of Tobi. Then went gluten free, dairy free, nearly sugar free, and 2weeks of inhaled colloidal silver. Also started glutathione, magnesium, and NAC during this time. Results came back today that she is still positive. Thoughts? Suggestions? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 20, 2012 Category: Respiratory Medicine Authors: brianbrandi Tags: Alternative Medicine Source Type: forums

Do you have to claim assistance on your taxes?
Does anyone know if the CFPAP and/or the manufacturer patient assistance programs send out 1099 forms? I'd like to know if I need to budget paying taxes on the amount of assistance I get. (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - May 18, 2012 Category: Respiratory Medicine Authors: Kristen Tags: Payment Assistance Resources Source Type: forums

Probiotics ~ Do you think they help
I have a 2 1/2 month old DDf508 that I have recently put on a probiotic with LGG. I am curious if you more experienced cf mom's or CFer's feel that taking a probiotic with LGG has helped you or your little one stay out of the hospital and are overall healthier with less inflamation and better digestion? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 1, 2012 Category: Respiratory Medicine Authors: Allmylife Tags: Alternative Medicine Source Type: forums

Microcyn???? Mucolyxir???
I've been reading a lot info on Microcyn? But I'm finding old data. Anyone currently using it? Please share the good and the bad. I'm aiming to get the PA out of my 6yo. Also, any current thoughts on mucolyxir. Again the threads and info I am finding is not recent. Any insight is appreciated. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 22, 2012 Category: Respiratory Medicine Authors: brianbrandi Tags: Alternative Medicine Source Type: forums

Socially Acceptable Ways to Pass Gas!
Okay. If I have trouble figuring out how to introduce this topic, I can't blame my 7 year old for handling it inappropriately! Lately our CFer has been very gassy and belching rather loudly. It's s frequent problem which I have discussed with his CF doc. Frankly I think we need a visit with a gastroenterologist, but that's another thread. At school, our kiddo has taken to emphasizing his gassiness, out of embarrassment I suspect, and trying to make everyone laugh. It's very disconcerting to the teachers and other children. I have discussed it with him, to no apparent satisfactory resolution. How do you handle this? How can...
Source: Cystic Fibrosis Parenting Forum - April 19, 2012 Category: Respiratory Medicine Authors: Gammaw Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums

Green Smoothies
Thanks to a couple of you I am now on the green smoothie kick! So far, the only ones I have made have strawberries, spinach, and one banana in them. I know there are a ton of recipes online but are there any specific ones people like? I would love to know, so I can vary it up! And a huge thank you to those of you that have posted blogs on the more "natural" medicines for CF. It has helped me a ton! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 19, 2012 Category: Respiratory Medicine Authors: sue35 Tags: Alternative Medicine Source Type: forums

Flavon
group has finaly opened an office in the U.S. - so to those that wished to purchase - it will be opened soon - I will send a link once I get it. Asia - after over ayear on taking flavon kids and green has had a runnng nose once, her staph never returned and still has natural flora - however its from her throat. Her elastaze has jumped from 420 to 530 and - finally - she has no progress in lungs comerated to last year. She always had some little progress. I cannot say its flavon - I can only say I believe taking it made a difference in her health. Our cf specialist says its a great idea and that flavonoids make capilary mo...
Source: Cystic Fibrosis Alternative Medicine Forum - April 18, 2012 Category: Respiratory Medicine Authors: AleksandraKaczynska Tags: Alternative Medicine Source Type: forums

Do I Apply
I am on State medicaid and recieve Medicaid My Husband was a Vet And has a Honorable Discharge My Question is if I apply for his benifits will they take me off Medicaid if my income goes up how will i be able to have any insurance?My Husband has passed in 1987 I would love to know should I or should i apply and if my income goes up will I lose my insurance? (Source: Cystic Fibrosis Payment Assistance Resources Forum)
Source: Cystic Fibrosis Payment Assistance Resources Forum - April 15, 2012 Category: Respiratory Medicine Authors: kgfrompa Tags: Payment Assistance Resources Source Type: forums

Allergies
Every spring when everything starts to bloom, my allergies kick off. Problem is, they stick around and become an infection. I'm doing pretty well right now...so I was wondering if there was anything you had found helpful to help keep your allergies down? (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - March 6, 2012 Category: Respiratory Medicine Authors: sunshine39656 Tags: Asthma, Allergies and Green Source Type: forums

Being a more efficient parent.
I posted this under Families / Time Management. But also wanted to ask the question from a different angle - Looking for tips on managing your day with 2 lpwcf in the house. Where both parents work out of necessity ,balancing the day, physio,nebs,school run, work etc is challenging.wonder if someone out there has created an efficient routine? Thanks for your thoughts. Is there something extra we can do as parents to run a household more efficiently when there are 2 children with cf in the house. I find usually one or the other cooperates to get their treatments done before heading off for school / work in the mornings. ( ...
Source: Cystic Fibrosis Parenting Forum - January 25, 2012 Category: Respiratory Medicine Authors: MDad Tags: Parenting with Foster Cline, MD and Lisa Greene Source Type: forums