Early Stage Treatment for Breast Cancer Patients
iCAD has announced that more than 1,000 early stage breast cancer patients have been treated with Intraoperative Radiation Therapy (IORT) . (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - March 14, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: Alternative Medicine Source Type: forums

When and how do you tell your child about surgery?
You know, I always struggle with this. We have an upcoming outpatient sinus surgery. At least it's hopefully outpatient. My little guy hates PICC lines and IVs to the point of hysteria at times, but hopefully there won't be much of that this time since its outpatient. I don't want him walking through his school day and playtimes fearful. But I don't want to scare the bejesus out of him by saying "Good Morning, we're going to the hospital for surgery today" either! I tend to discuss the issues he's having for a week or so before, and propose surgery as a potential solution, letting him come to the conclusion that ...
Source: Cystic Fibrosis Teenagers and Young People Forum - March 3, 2014 Category: Respiratory Medicine Authors: Gammaw Tags: Teenagers and Young People Source Type: forums

Lung Washing
So my teacher asked if I've ever had my lungs suctioned before. I had no idea what that meant so after tons of research, I found out he may be talking about a lung washing. I watched a short video about it, and it looks like it would feel amazing. But what exactly is it? Is it painful? What's it feel like before and after the procedure? How much does it cost? I'm very much interested in trying it. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - March 1, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Exercise & Fitness Source Type: forums

Exercise Bike Highly Recommended
I want to share about this exercise bike "Exerpeutic Folding Magnetic Upright Bike" for you who want to buy this product. this upright bike is amazing. it is cold and miserable and snowy here and so i must be inside on the bike. The only drawback is that the pedals are a bit too far in front of the seat. i have very long legs and so i can make it work. you can adjust the seat for height but you can not place the pedals under your feet like a regular bike. my physical therapist told me that this is somewhat typical of upright bikes but i do not know. i did take my bike to him for adjustment to suit me and he place...
Source: Cystic Fibrosis Exercise and Fitness Forum - March 1, 2014 Category: Respiratory Medicine Authors: kirklittle35 Tags: Exercise & Fitness Source Type: forums

Cycle for Life in San Francisco Ba Area - June 21 2014
Want to spread the word on a wonderful fundraising event in the San Francisco Ba Area on June 21 2014: The local SF CFF Chapter is organizing a fully supported bicycle ride with 25 and 65 mile options starting in Half Moon Bay. Awesome scenery, great company - all for a cause to close to our hearts (or lungs?!?!)! If you are a rider, sign up - individually or as a team: http://fightcf.cff.org/site/TR/Cycle...=2541&pg=entry Do you know somebody some bike riders, please forward this post and the links! I will be riding myself - just establishing my "race team". Look for another post once that is all set up!...
Source: Cystic Fibrosis Exercise and Fitness Forum - February 28, 2014 Category: Respiratory Medicine Authors: sdeuber Tags: Exercise & Fitness Source Type: forums

A New Drug Device for Cystic Fibrosis Patients
Activaero has entered into research collaboration with Italian pharmaceutical firm Chiesi Farmaceutici to develop an effective solution to treat patients with cystic fibrosis (CF). (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - February 28, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Can testosterone cream still deepen my voice?
So I'm gonna ask my dr about this. Will it deepen my voice and make muscle gain much easier even though it's a cream instead of an injection? (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - February 28, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

Testosterone Replacement Therapy
I wanna talk to my primary doctor about testosterone replacement therapy. But I have a few concerns, I'm turning 19 in 2 months and I started puberty late and what I wanna know is will testosterone still deepen my voice this late? Also, is the injectable version the same as the cream or deodorant version? I fear needles as big as you need for testosterone and the thick gel you must inject. I'm not scared of needles, just the thickness of the syrup and the needle (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - February 28, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

Feb Vertex Update - Kalydeco receives FDA approval for 8 gating mutations
I've just summarised the Feb 25 Vertex investor conference, includes info about Kalydeco, VX809, VX661 and second generation correctors: http://sixtyfiverosesblog.wordpress....vertex-update/ Also, last week it was announced that Kalydeco received FDA approval for eight gating mutations: G178R, S549N, S549R, G551S, G1244E, S1251N, S1255P and G1349D. http://investors.vrtx.com/releasedet...leaseID=827435 (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - February 27, 2014 Category: Respiratory Medicine Authors: GenH Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Another interesting article
http://www.npr.org/blogs/health/2014...ds-transplants (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 26, 2014 Category: Respiratory Medicine Authors: Rebjane Tags: Transplants Source Type: forums

Useful Android apps for medical students
Hi! I couldn't see a list of medical apps for Android anywhere, but there's some great apps out there that really help me so I thought I'd create a list. Please post any apps to add to the list The following are apps I've selected are my favourite free or paid apps out of the many I have looked at. FREE APPS Medicine MCQs An essential revision aid for your medical exams, containing over 900 multiple choice questions right at your fingertips. Revise with tips, tricks and explanations in Practice Mode or test yourself against the clock in Exam Mode. Prognosis: Cardiology, Respiratory, Neurology, Emergency Medicine Pr...
Source: New Media Medicine - February 26, 2014 Category: Universities & Medical Training Authors: PenguinPro Tags: Current Medical Students Source Type: forums

People with Cf can make a wish at make a wish foundation?!?
I never knew this! I'm very healthy, so would this exempt me from participating? If not, how do I do this and what are the limit of a wish? Like can they grant me the wish to going to culinary school or going on a world wide trip to different countries? (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - February 26, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

I'm not a normal teenage guy
I swear I'm not normal. I feel like I'm an "old soul", literally. I have traditional values, I find women back in the 30s-50s era the most beautiful, and I hate how women dress s.ty and have piercings. I even hate ear piercings. The thing that makes me most abnormal, is I don't really think about sex, and I really only want a girlfriend so I can have a companion, not for sex or anything like that. If I didn't have cf I'd love to live in the 30s and 40s era. I also hate saying that women are "hot", instead I prefer the words pretty and beautiful. But here's where my main question comes in, I have cf, I...
Source: Cystic Fibrosis Teenagers and Young People Forum - February 26, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

Natural Rinse Agent in Dishwasher for Cleaning Nebulizer Parts
Has anyone considered how the rinse agent (like Jet-Dry) in the dishwasher remains on our CFers nebulizer parts? We stopped using a rinse agent, and all our dishes now have soap spots. We currently rinse the soap off the nebulizer pieces, but I am now considering using a natural rinse agent. However, I'm not sure if that substance will contaminate the lungs. Has anyone done any research on this topic? We're pretty sold on washing nebulizer parts in the dishwasher since it is easier. (Source: Cystic Fibrosis Asthma, Allergies and Green Forum)
Source: Cystic Fibrosis Asthma, Allergies and Green Forum - February 25, 2014 Category: Respiratory Medicine Authors: annearnie Tags: Asthma, Allergies and Green Source Type: forums

What does yoga do for you?
i really want to try out yoga to relax after a workout, or even workout using yoga.. where can i find videos like what do i search for, yoga workouts? and what does it do for you? does anyone do yoga on here? how does it feel? (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - February 24, 2014 Category: Respiratory Medicine Authors: ophelia Tags: Exercise & Fitness Source Type: forums

TEENAGE PREGNANCY or ADULT PREGNANCY?
Which one is the bigger epidemic really? Teenagers having unwanted pregnancys or adults having unwanted pregnancys? I kind of feel that adult unwanted pregnancy maybe a bigger problems then teenagers pregnancy. I think that grown people probably end up with more issue then teenagers do. DNA testing, alimony ect. I think that teenage pregnancy is more publized. Just because you're a "grown adult" doesn't mean you're any better off. Thoughts? (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - February 24, 2014 Category: Respiratory Medicine Authors: ophelia Tags: Pregnancy Source Type: forums

Inspiring video of a double lung transplant survivor
Here is a inspiring video of my 35 year old brother who has Cystic Fibrosis and had a double lung transplant 5 years ago. This video was made to document the celebration of the 5 years and to reflect on his life so far. http://youtu.be/OBk_1h3CK-g Or search LUNGIVERSARY on YouTube. Please comment and share if you enjoyed it (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 23, 2014 Category: Respiratory Medicine Authors: Billwaukee1 Tags: Transplants Source Type: forums

Vest study results
I've heard that there was a study done comparing the vest therapy to PEP and apparently PEP came out on top. Anyone have more details on that? (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - February 23, 2014 Category: Respiratory Medicine Authors: smiles Tags: Airway Clearance Techniques Source Type: forums

prednisone
do you mind sharing what post-transplant dosage you are currently on? thx (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 21, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

mom of a 16 yr old daughter
Junior Member Join DateFeb 2014Posts1 Hi I am also new to this site. I am a mom of a 16 yr old daughter. She has ddf508, mostly weight issues. She is 5'2, 94 lbs. She has a g tube and takes 2-3k calories at night. She also does hyper tonic, pulmozyme, albuterol and the vest. Her dr says she has very mild chrons, but she never has any symptoms and hasn't taken the pentasa for a while. She has maintained her weight and height and fev of 72-4 for the past yr without any hospitalizations. They want her to be at 100lbs. I feel like her GI dr always wants to do unnessecary tests. Now he is saying her lack of weigh...
Source: Cystic Fibrosis Teenagers and Young People Forum - February 19, 2014 Category: Respiratory Medicine Authors: heathercrittendon Tags: Teenagers and Young People Source Type: forums

CF friendly careers?
Hi all, I'm 29, have CF and have not worked due to health issues these last four years. I'm changing my degree plans to something with a varying schedule (private investigator) and I was wondering if anyone had any great ideas or ways to work in your treatments and medical routines into a career? I'm going to be done with my degree in a year and I really want to have a good plan to stay on top of my health when I get back out there. Any career/work tips or ideas would be great to hear. Thanks :) (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - February 18, 2014 Category: Respiratory Medicine Authors: RobinB29 Tags: Teenagers and Young People Source Type: forums

Cord Blood Banking
Has anyone done private or donated cord blood? It's so expensive to do private! I am trying to make a decision on what to do...thanks for any input! (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - February 15, 2014 Category: Respiratory Medicine Authors: liveitup Tags: Pregnancy Source Type: forums

kidneys and water
Have any doctors or research shown that drinking more water helps prevent kidney disease after transplant? (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 14, 2014 Category: Respiratory Medicine Authors: musclemania70 Tags: Transplants Source Type: forums

Antibiotics and birth control
Hi All, I know antibiotics can interfere with birth control and make it less effective and even fail. But I am just wondering which antibiotics exactly do this and to what extent? Is it inhaled such as Tobi (taken every other month) or the pill antibiotics such as azithromycin ( I take 3 times a week)? I always want to be safe in preventing pregnancy but this worries me. Thanks for your feed back! (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - February 14, 2014 Category: Respiratory Medicine Authors: Jriet Tags: Pregnancy Source Type: forums

Lungs "in a box" Cool article (does show picture of lungs, if you are squeamish)
http://www.npr.org/blogs/health/2014...re-transplants (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - February 10, 2014 Category: Respiratory Medicine Authors: Rebjane Tags: Transplants Source Type: forums

A miraculous home remedy !!!!!
I have a miracuolous home remedy that almost completely solve my problems. It's drinking Sodium-Chloride solution !!! Just a little every day, I also inhale it (boil it then inhale) and it cured muy lungs, I tried it first a month ago and it was a miracle to me. I advice everyone to try it. It is probably so beneficial as the main problem with cf is actually not transporting water and electrolites through lungs, intestines etc. This was a true miracle for me I advice everyone to try it it can do no harm. drinking Sodiium-Chloride solution for intravenouous rehidratation!!!​ A miraculous home remedy!!! (Source: Cystic Fi...
Source: Cystic Fibrosis Alternative Medicine Forum - February 4, 2014 Category: Respiratory Medicine Authors: purple88 Tags: Alternative Medicine Source Type: forums

Anyone who took respiratory scleratoma massages.
Hi, Am mother of 3yrs old boy with double copy of df508. I am actively pursuing alternative medicine for my son. A naturopath I consulted suggested me about dr Kauffman's scleratoma techniques to deal with my sons frequent lung infections. He has given me few internet links (below) to understand the scleratoma techniques. there are many scleratomas but my interest is on this respiratory scleratoma. http://bulk-mail.axint.net/pipermail...st/000059.html http://bulk-mail.axint.net/pipermail...er/000070.html terrywilliamsasthama in YouTube i understand these are some massages to turn on the reflexes. I have no clu...
Source: Cystic Fibrosis Alternative Medicine Forum - February 4, 2014 Category: Respiratory Medicine Authors: Mallika Tags: Alternative Medicine Source Type: forums

Masturbation
I have a few questions about this very uncomfortable subject. 1. Is it wrong or bad to do? I was reading a Christian magazine and it said it isn't wrong (I'll link it here http://www.focusonthefamily.com/pare...r-puberty.aspx) "Your approach to this issue will need to be both tactful and realistic. A bottom line worth stressing is that masturbation should not play a major role in your child's life, either as a source of relentless guilt or as a frequent and persistent habit that displaces healthy sexual relations in the future. If it happens once in a while, it happens." 2. I get no real pleasure from doing th...
Source: Cystic Fibrosis Teenagers and Young People Forum - February 4, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

I want kids and I'm 18
I go through these "I want a kid" obsessions every now and then. But I was reading that CF Males may not be able to make a baby, why is this? What makes cf males unable to make a baby? What are the chances of my kid having cf if my wife does and does not carry the gene (both situations)? (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - February 4, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Pregnancy Source Type: forums

Curious about Prenatal Testing for CF
I just found out I am pregnant. I have two children already, oldest without CF and youngest with CF. There was no history of CF in our families so I as never had any testing done. I know that you can have the fetus tested to see if they will have CF. I was hoping to find someone who may have had tests done while they were pregnant that might have some advice on what to expect and what their experience was like. Thanks (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - February 4, 2014 Category: Respiratory Medicine Authors: Kristina786 Tags: Pregnancy Source Type: forums

pricing question
I have a 105 model that I may be looking to dispose of. It functions perfectly normal and shows no signs at all of wear. the problem is that it has over 1000 hours on it. Is this of any value to anyone with those hours? If so, what could I expect to get for it? (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - February 3, 2014 Category: Respiratory Medicine Authors: tms122 Tags: Airway Clearance Techniques Source Type: forums

January Vertex Update- Latest VX809, VX661 and Kalydeco with gating & R117H info
I recently wrote a blog post about the latest Vertex news (includes info from the Dec and Jan press releases & investor conferences). Since I wrote this post it has also been announced that the combination therapy VX661/Ivacaftor has been granted breakthrough FDA designation. http://sixtyfiverosesblog.wordpress.com/2014/01/29/january-vertex-update/ (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - February 3, 2014 Category: Respiratory Medicine Authors: GenH Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

UK Gene Therapy Trial Update
I've recently added info to my blog about the current gene therapy trial, as well as info about a future trial that involves a new approach: http://sixtyfiverosesblog.wordpress....herapy-update/ (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - January 30, 2014 Category: Respiratory Medicine Authors: GenH Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Is having CF a good enough reason to get a Medical Marijuana Card?
So because I have CF, is that a good enough reason for a doctor to get me a MM Card? Ive done a lot of study about this subject. And I believe an MM Card will benefit me greatly because I have CF. It will help me eat more, as well as help with other issues. I am at a good weight. But I can't eat nearly enough calories the CF doctors say I should be eating. They say I should be eating 4,000 calories a day if I'm working out, and 3,000 calories a day if I'm sedentary. I can't at all eat nearly that much! Like today I ate a ton of food, and I found out that I only ate 2400 calories today. Right now, I'm so full and earlier ...
Source: Cystic Fibrosis Teenagers and Young People Forum - January 29, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

Favorite Workout DVD
What is everyones favorite workout DVD? I use my ellipitcal machine when it is cold during the winter. I am looking to change it up since I had a decline in my FEV 1 47%.. yikes. I am not having any symptoms of an exacerbation, very strange. My doctor suggested doing hardcore cardio to get my lungs into shape. Any suggestions of a good intense cardio workout DvD?? Thanks, Ashley 28 yo, DF508 R5538, dx at 6 months old (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - January 23, 2014 Category: Respiratory Medicine Authors: awagner Tags: Exercise & Fitness Source Type: forums

How bad is smoking pot?
I'm just curious, how bad is smoking pot (out of a bubbler/bong) for your lungs if you only smoke 2-4x a week? I also have a question about drug testing, if you're applying for a job and they require a drug test and you fail it, do they call the police or are you just denied of the job? What about drug tests at a phlegm checkup or blood tests at a hospital, if you fail is it just between you and your dr or do they call the police? I figure it's a whole lot healthier in comparison to ecigs and it's twice as healthy than cigs. I kinda think of it as breathing in camp fire smoke in a way, but maybe even healthier? (Source: C...
Source: Cystic Fibrosis Teenagers and Young People Forum - January 23, 2014 Category: Respiratory Medicine Authors: Enzo2311 Tags: Teenagers and Young People Source Type: forums

HELP! I'm producing way too much mucus!
Hi all, i hope you are well. I am in a bit of a situation and i hope somebody can give me some tips. For the past 3-4 weeks, because of what assume is a chest infection, i have been coughing up extra mucus. Due to having pseudomonas i natural have to do a lot of airway clearance, but i have gone from 2 airway clearance sessions a day to 3, i have taken Tobi twice daily for 4 weeks, i am on antibiotics. I am clearing about a quarter of a cup PER session. Close to a cup by the end of the day. I have spoke with my health team and they suggest i am doing everything i can and suggest a possible admission. I just want to see if ...
Source: Cystic Fibrosis Airway Clearance Techniques Forum - January 20, 2014 Category: Respiratory Medicine Authors: Cados Tags: Airway Clearance Techniques Source Type: forums

Please take a minute and vote
Hi everyone. My son has CF and autism. His service dog Oscar is in a contest to be a super pet for a local company. For some reason my son wants his dog to win so bad. He is so excited about this. Please take one minute to click on the link and vote for Oscar our super star. In my eyes we are already winners having been blessed by such a precious dog who has helped my son begin to enter our world. Thank you everyone. http://bit.ly/1aKVCYp (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - January 16, 2014 Category: Respiratory Medicine Authors: jshet Tags: Teenagers and Young People Source Type: forums

IT Works Greens
Hi, Has anyone tried the IT Works Greens??? Curious if you have had any benefit. I have been reading a lot about this and it seems to have many superfoods in it. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 15, 2014 Category: Respiratory Medicine Authors: awagner Tags: Alternative Medicine Source Type: forums

Safety Precautions After Transplant
Hi all, My girlfriend had her transplant last February (almost one year!) and I was wondering if you all could share some tips and tricks for preventing infection. We follow the basic precautions, like hand-washing, sanitizing, housekeeping, avoiding large crowds, etc. But I was hoping to get some advice that is a little more on the creative side. Any and all advice helps! (Source: Cystic Fibrosis Transplants Forum)
Source: Cystic Fibrosis Transplants Forum - January 15, 2014 Category: Respiratory Medicine Authors: ajmc87 Tags: Transplants Source Type: forums

Failed Frozen Embryo Transfer few questions any help appreciated
Hi All I hope this finds you all well. I have posted before but i'll update to bring you up to speed!! We did a fresh IVF cycle back in June and that failed. We had a break for a while and in November just gone we did a frozen embryo transfer. All was going well our first blood test 9th December was positive, 2nd blood test 13 December positive! We live in France and went home to Ireland for Christmas and I bled over Christmas had an early miscarriage! We really thought it would all go well and we were so happy!! I got my period , first period after the miscarriage 2 weeks later! Nearly finished it!! I felt awful whe...
Source: Cystic Fibrosis Pregnancy Forum - January 11, 2014 Category: Respiratory Medicine Authors: laneyb Tags: Pregnancy Source Type: forums

Does Kalydeco Eliminate Pseudemonas?
I'm just wondering. If Kalydeco goes a long way toward normalizing lung function, have users found they are finally able to rid themselves of pseudemonas or other colonized bacteria? (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - January 9, 2014 Category: Respiratory Medicine Authors: Gammaw Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

exercise video for 12 yr old boy
Can people make recommendations for an exercise video/program that might appeal to a middle school age boy? PXsomething? Insanity? I've heard of these things, but don't really know much about them. It's too icy to run outside safely right now, and jogging has not appealed to my son thus far anyway. I really want to get him on a routine that appeals to him and can be done year round. He plays fall and spring team sports, but winter and summer are sedate. Fwiw, he doesn't have CF, though like me he gets pneumonia easily. I want him to have the exercise habit to possibly help him not get bronchiectasis like me, and for endo...
Source: Cystic Fibrosis Exercise and Fitness Forum - January 6, 2014 Category: Respiratory Medicine Authors: Melissa75 Tags: Exercise & Fitness Source Type: forums

We need help to keep Makai active.
http://www.gofundme.com/6243b4 This is all she asks for. (Source: Cystic Fibrosis Teenagers and Young People Forum)
Source: Cystic Fibrosis Teenagers and Young People Forum - January 5, 2014 Category: Respiratory Medicine Authors: Sirenamity05 Tags: Teenagers and Young People Source Type: forums

Take Steps To Better Health
Recent research has shown that obesity and inactivity is actually the second leading cause of preventable death in the United States. About 400,000 Americans die each year from this cause, compared to 435,000 from the leading cause—tobacco use. (Source: Cystic Fibrosis Exercise and Fitness Forum)
Source: Cystic Fibrosis Exercise and Fitness Forum - December 21, 2013 Category: Respiratory Medicine Authors: Juli2013 Tags: Exercise & Fitness Source Type: forums

The Vest after a Tonsillectomy
Does anyone know if it is safe to use your The Vest following a tonsillectomy? Our 7 year old CFer had his tonsils out yesterday and the ENT has no expericence as to whether this would be to much movement and create an issue. Our son woke of this morning coughing up a lot of crap, so I would like to use it. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - December 20, 2013 Category: Respiratory Medicine Authors: aannddd Tags: Airway Clearance Techniques Source Type: forums

Traveling with vest
I'm just checking to see what everyone else's experience was flying with the vest machine in tow. It is for my 3 yr old, and wonder what obstacles I might face with TSA or the airport. I will be flying with my 3 and 5 yr old so I need to be prepared on what to expect. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - December 2, 2013 Category: Respiratory Medicine Authors: tysmama Tags: Airway Clearance Techniques Source Type: forums

Ataluren and Nonsense Mutations Update
I just added two blog posts, one about Ataluren, with information about the upcoming trial & EMA application, and the other about a new potential approach for nonsense mutations (mutations that end in X). New Potential Approach for Nonsense Mutations November Ataluren Update (Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum)
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - November 26, 2013 Category: Respiratory Medicine Authors: GenH Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums

Vest for Sale(Adult Large Full)
Anyone interested in an adult large full vest(black)? I'll also consider trading for an adult medium in similarly good condition. * This is just the vest that you wear. It does not include the machine or any other components. (Source: Cystic Fibrosis Airway Clearance Techniques Forum)
Source: Cystic Fibrosis Airway Clearance Techniques Forum - November 26, 2013 Category: Respiratory Medicine Authors: tms122 Tags: Airway Clearance Techniques Source Type: forums

Breastfeeding?
Hello, I have cf, my son is 7 months and I have breastfed him with formula supplement (not very much comes out when I pump). My question is how many cfers have breastfed? how long? also my baby has constipation issues (he tested negative for cf and is not even a carrier) and was wondering if it could be my milk? I also have problems gaining weight, I only gained 8lbs while pregnant and lost 15lbs after the baby. Any advice? (Source: Cystic Fibrosis Pregnancy Forum)
Source: Cystic Fibrosis Pregnancy Forum - November 26, 2013 Category: Respiratory Medicine Authors: Jakesgirl05 Tags: Pregnancy Source Type: forums