Reciprocal association between pain and quality of life after newly acquired spinal cord injury
ConclusionResults indicate that pain intensity does not predict changes in QoL during first rehabilitation, and vice versa. Associations between pain intensity and QoL reported by previous studies may be attributable to individual characteristics and timely events that simultaneously influence pain and QoL. (Source: Quality of Life Research)
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research
AbstractThis paper presents an empirical challenge to the assumption that an item-response theory analysis always yields a better measure of a clinical construct. We summarize results from two measurement development studies that showed that such an analysis lost important content reflecting the conceptual model ( “conceptual validity”). The cost of parsimony may thus be too high. Conceptual models that form the foundation of QOL measurement reflect the patient’s experience. This experience may include concepts and items that are psychometrically “redundant” but capture distinct features of the conc ept. Good mea...
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
Health-related quality of life and associated risk factors in patients with Multiple Osteochondromas: a cross-sectional study
ConclusionIncreasing age and surgical procedures were found highly associated with reduced health-related quality of life in Multiple Osteochondromas patients. Our findings provide relevant information to support the establishment of patient-centered healthcare pathways and pave the way for further research into medical and non-medical therapeutic strategies for these patients. (Source: Quality of Life Research)
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
Correction: Reference values of EORTC QLQ-C30, EORTC QLQ-BR23, and EQ-5D-5L for women with non-metastatic breast cancer at diagnosis and 2 years after
(Source: Quality of Life Research)
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
Reciprocal association between pain and quality of life after newly acquired spinal cord injury
ConclusionResults indicate that pain intensity does not predict changes in QoL during first rehabilitation, and vice versa. Associations between pain intensity and QoL reported by previous studies may be attributable to individual characteristics and timely events that simultaneously influence pain and QoL. (Source: Quality of Life Research)
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research
AbstractThis paper presents an empirical challenge to the assumption that an item-response theory analysis always yields a better measure of a clinical construct. We summarize results from two measurement development studies that showed that such an analysis lost important content reflecting the conceptual model ( “conceptual validity”). The cost of parsimony may thus be too high. Conceptual models that form the foundation of QOL measurement reflect the patient’s experience. This experience may include concepts and items that are psychometrically “redundant” but capture distinct features of the conc ept. Good mea...
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
Health-related quality of life and associated risk factors in patients with Multiple Osteochondromas: a cross-sectional study
ConclusionIncreasing age and surgical procedures were found highly associated with reduced health-related quality of life in Multiple Osteochondromas patients. Our findings provide relevant information to support the establishment of patient-centered healthcare pathways and pave the way for further research into medical and non-medical therapeutic strategies for these patients. (Source: Quality of Life Research)
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
Correction: Reference values of EORTC QLQ-C30, EORTC QLQ-BR23, and EQ-5D-5L for women with non-metastatic breast cancer at diagnosis and 2 years after
(Source: Quality of Life Research)
Source: Quality of Life Research - March 8, 2024 Category: Health Management Source Type: research
The Hemodialysis Distress Thermometer for Caregivers (HD-DT-C): development and testing of the psychometric properties of a new tool for screening psychological distress among family caregivers of adults on hemodialysis
ConclusionThe HD-DT-C is a brief, reliable, valid, and acceptable measure for identifying self-reported psychological distress and its sources among people caring for a family member or friend on hemodialysis. Future research is needed to explore the measurement properties of the American English version of this new tool. (Source: Quality of Life Research)
Source: Quality of Life Research - March 7, 2024 Category: Health Management Source Type: research
An effort to improve the collection of patient-generated data: readability and understandability of patient-reported outcomes measures in a survivorship cohort
ConclusionNone of the studied PROMs met the standards of readability and understandability. Future development and translation of PROMs should follow comprehensive linguistic and cultural frameworks to ensure plain-language standards and enhance equitable patient-centered care and research. (Source: Quality of Life Research)
Source: Quality of Life Research - March 5, 2024 Category: Health Management Source Type: research
Patient experiences in ulcerative colitis: conceptual model and review of patient-reported outcome measures
ConclusionExisting PRO measures assess concepts relevant to patients with UC, but all PRO measures reviewed require further psychometric evaluation to demonstrate they are fit for purpose. (Source: Quality of Life Research)
Source: Quality of Life Research - March 5, 2024 Category: Health Management Source Type: research
Understanding Canadian stakeholders ’ views on measuring and valuing health for children and adolescents: a qualitative study
ConclusionsMost Canadian stakeholders supported eliciting the preferences of adolescents directly from their own perspective for child health valuation. DCE was preferred if adolescents are directly involved. (Source: Quality of Life Research)
Source: Quality of Life Research - March 5, 2024 Category: Health Management Source Type: research
Correction: Understanding experiences of cancer-related fatigue in patients with lung cancer after their cancer treatment: a qualitative content analysis
(Source: Quality of Life Research)
Source: Quality of Life Research - March 5, 2024 Category: Health Management Source Type: research
