QALY-type preference and willingness-to-pay among end-of-life patients with cancer treatments: a pilot study using discrete choice experiment
ConclusionOur findings suggest a prioritised resource allocation to EoL-prolonging health technologies. Given the small sample size and large individual heterogeneity, a full-scale study is needed to provide more robust results. (Source: Quality of Life Research)
Source: Quality of Life Research - December 11, 2023 Category: Health Management Source Type: research
Health-related quality of life in patients with extremity bone sarcoma after surgical treatment: a systematic review
ConclusionsThe approaches used to measure HRQoL were inconsistent and outcome scores varied substantially. Only one study used preference-weighted instruments for HRQoL measurement. Future research into the surgical treatment of extremity bone sarcoma should consider the use of preference-weighted instruments to measure HRQoL, which will therefore enable economic evaluation for the growing orthopaedic armamentarium of novel surgical interventions.RegistrationThis systematic review was registered with the PROSPERO International prospective register of systematic reviews (CRD42021282380). (Source: Quality of Life Research)
Source: Quality of Life Research - December 11, 2023 Category: Health Management Source Type: research
QALY-type preference and willingness-to-pay among end-of-life patients with cancer treatments: a pilot study using discrete choice experiment
ConclusionOur findings suggest a prioritised resource allocation to EoL-prolonging health technologies. Given the small sample size and large individual heterogeneity, a full-scale study is needed to provide more robust results. (Source: Quality of Life Research)
Source: Quality of Life Research - December 11, 2023 Category: Health Management Source Type: research
Health-related quality of life in patients with extremity bone sarcoma after surgical treatment: a systematic review
ConclusionsThe approaches used to measure HRQoL were inconsistent and outcome scores varied substantially. Only one study used preference-weighted instruments for HRQoL measurement. Future research into the surgical treatment of extremity bone sarcoma should consider the use of preference-weighted instruments to measure HRQoL, which will therefore enable economic evaluation for the growing orthopaedic armamentarium of novel surgical interventions.RegistrationThis systematic review was registered with the PROSPERO International prospective register of systematic reviews (CRD42021282380). (Source: Quality of Life Research)
Source: Quality of Life Research - December 11, 2023 Category: Health Management Source Type: research
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
ConclusionThe overall health-related quality of life of people with heart failure in low- and middle-income countries is poor. Strategies should be strategically developed to improve the health-related quality of life of people with heart failure in these countries.Systematic review registrationPROSPERO CRD42022377781. (Source: Quality of Life Research)
Source: Quality of Life Research - December 9, 2023 Category: Health Management Source Type: research
Using parameter perturbation to facilitate transparency in measure development
(Source: Quality of Life Research)
Source: Quality of Life Research - December 9, 2023 Category: Health Management Source Type: research
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis
ConclusionThe overall health-related quality of life of people with heart failure in low- and middle-income countries is poor. Strategies should be strategically developed to improve the health-related quality of life of people with heart failure in these countries.Systematic review registrationPROSPERO CRD42022377781. (Source: Quality of Life Research)
Source: Quality of Life Research - December 9, 2023 Category: Health Management Source Type: research
Using parameter perturbation to facilitate transparency in measure development
(Source: Quality of Life Research)
Source: Quality of Life Research - December 9, 2023 Category: Health Management Source Type: research
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology –hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
ConclusionThe Chinese version of the SONG –HD fatigue scale showed satisfactory reliability and validity in patients undergoing hemodialysis (HD) in China. It could be used as a tool to measure the fatigue of Chinese HD patients. (Source: Quality of Life Research)
Source: Quality of Life Research - December 8, 2023 Category: Health Management Source Type: research
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
ConclusionMeaningful change thresholds have not been evaluated in the DEE literature. This study was a preliminary qualitative approach to inform future studies that will aim to determine quantitative values of change, applicable to groups and within-person, to inform interpretation of specific clinical outcome assessments in individuals with a DEE. (Source: Quality of Life Research)
Source: Quality of Life Research - December 8, 2023 Category: Health Management Source Type: research
Translation, cultural adaptation, and validation of the Chinese standardized outcomes in nephrology –hemodialysis fatigue (C-SONG–HD fatigue) scale: a study of Chinese patients undergoing hemodialysis
ConclusionThe Chinese version of the SONG –HD fatigue scale showed satisfactory reliability and validity in patients undergoing hemodialysis (HD) in China. It could be used as a tool to measure the fatigue of Chinese HD patients. (Source: Quality of Life Research)
Source: Quality of Life Research - December 8, 2023 Category: Health Management Source Type: research
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy
ConclusionMeaningful change thresholds have not been evaluated in the DEE literature. This study was a preliminary qualitative approach to inform future studies that will aim to determine quantitative values of change, applicable to groups and within-person, to inform interpretation of specific clinical outcome assessments in individuals with a DEE. (Source: Quality of Life Research)
Source: Quality of Life Research - December 8, 2023 Category: Health Management Source Type: research
Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system
ConclusionThis study provides new information on the co-design of a healthcare organisation-wide PROM collection system. Implementing a clinician and patient informed strategy for PROMs collection, that meets their preferences across multiple domains, should address known barriers to routine collection. (Source: Quality of Life Research)
Source: Quality of Life Research - December 2, 2023 Category: Health Management Source Type: research
Influence of body mass index on health complains and life satisfaction
ConclusionsThe results of this study provide compelling evidence that BMI plays a crucial role in shaping adolescents ’ well-being and their interactions with peers at school. These findings underscore the importance of addressing childhood overweight and promoting healthy body mass index levels. Furthermore, the study highlights the need for targeted policy interventions to combat the social stigma associated wi th being overweight, fostering a more inclusive and supportive school environment for all students. (Source: Quality of Life Research)
Source: Quality of Life Research - December 1, 2023 Category: Health Management Source Type: research
