& quot;not one size fits all ” The challenges of measuring paediatric health-related quality of life and the potential role of digital ecological momentary assessment: a qualitative study
ConclusionDigital EMA may address some of the challenges of HRQoL data collection with children. We conclude by discussing potential future research to explore and develop this approach. (Source: Quality of Life Research)
Source: Quality of Life Research - February 1, 2024 Category: Health Management Source Type: research

Response shift results of quantitative research using patient-reported outcome measures: a descriptive systematic review
ConclusionThe results draw attention to the need to focus on understanding variability in response shift results: Who experience response shifts, to what extent, and under which circumstances? (Source: Quality of Life Research)
Source: Quality of Life Research - February 1, 2024 Category: Health Management Source Type: research

A leaky gut contributes to reduced sarcopenia-related quality of life (SarQoL) in geriatric older adults
ConclusionAltogether, SarQoL appears reliable in measuring the quality of life in sarcopenic patients. A leaky gut has a potential contribution to reduced SarQoL in sarcopenia. (Source: Quality of Life Research)
Source: Quality of Life Research - February 1, 2024 Category: Health Management Source Type: research

Lower quality of life in obese ICU survivors: a multicenter cohort study
ConclusionAfter three months of post-ICU discharge, obese patients had lower HRQoL in the mental component than normal-weight patients. However, obese patients died less than underweight and normal-weight patients. (Source: Quality of Life Research)
Source: Quality of Life Research - February 1, 2024 Category: Health Management Source Type: research

Mapping the 12-item World Health Organization disability assessment schedule 2.0 (WHODAS 2.0) onto the assessment of quality of life (AQoL)-4D utilities
ConclusionThe developed mapping algorithm enables cost-utility analyses of interventions for people with disability where the WHODAS 2.0 has been collected. Mapping algorithms developed from different methods should be considered in sensitivity analyses in economic evaluations. (Source: Quality of Life Research)
Source: Quality of Life Research - February 1, 2024 Category: Health Management Source Type: research

Surgical prioritization based on decision model outcomes is not sensitive to differences between the health-related quality of life values estimates of physicians and citizens
ConclusionPhysicians put higher values on health states than citizens. However, these differences only result in switches between adjacent entries in the ranking. It would seem that HRQoL values obtained from physicians are adequate to inform decision models during crises. (Source: Quality of Life Research)
Source: Quality of Life Research - February 1, 2024 Category: Health Management Source Type: research

Home care and quality of life among community-dwelling dependent older adults in Israel: a multiple mediator model
ConclusionsUsing combinedformal home care might reduce the QoL of care-recipients by increasing their feelings of loneliness, social isolation and reduced perceived family support. Practitioners should encourage family members to continue with family regular support and contact alongside the use of formal home care in order to maintain satisfaction and QoL of older relatives. (Source: Quality of Life Research)
Source: Quality of Life Research - February 1, 2024 Category: Health Management Source Type: research

Assessing the interchangeability of linked scores in multivariable statistical analyses
ConclusionIn addition to the statistical quality of a linkage, users of linking methodology should also assess the question of whether the linkage is appropriate to apply to particular use cases of interest. (Source: Quality of Life Research)
Source: Quality of Life Research - January 31, 2024 Category: Health Management Source Type: research

Is well-becoming important for children and young people? Evidence from in-depth interviews with children and young people and their parents
ConclusionThe study findings, taken alongside relevant literature, have generated evidence to support the notion that future well-becoming is important to current wellbeing. We have drawn on our own work in capability wellbeing measure development to demonstrate how we have incorporated a well-becoming attribute into our measures. The inclusion of well-becoming indicators in measures could aid investment in interventions which more directly improve well-becoming outcomes for children and young people. (Source: Quality of Life Research)
Source: Quality of Life Research - January 31, 2024 Category: Health Management Source Type: research

Predictors of persistence of post-chemotherapy symptoms among survivors of solid tumor cancers
ConclusionRisk factors identified in this research (younger age, lower physical function, greater comorbidity, and higher depressive symptoms) can be used to allocate resources for post-treatment symptom management for cancer survivors in order to relieve symptoms that do not necessarily resolve with time. (Source: Quality of Life Research)
Source: Quality of Life Research - January 30, 2024 Category: Health Management Source Type: research

Dynamic changes and lifetime effect of functional disability profiles for stroke patients: real-world evidence from South Korea
ConclusionOur findings provide valuable insights for resource allocation and policy decisions in long-term stroke care, potentially enhancing the quality of life for stroke survivors and caregivers. (Source: Quality of Life Research)
Source: Quality of Life Research - January 29, 2024 Category: Health Management Source Type: research

Life ’s Essential 8 in relation to self-rated health and health-related quality of life in a large population-based sample: the SCAPIS project
ConclusionLE8 and LS7 had strong and inverse associations with SRH, mental-HRQoL, and physical-HRQoL, though LE8 had a somewhat higher capacity of discrimination than LS7. The novel LE8, a construct initially conceived to monitor cardiovascular health, also conveys SRH and HRQoL. (Source: Quality of Life Research)
Source: Quality of Life Research - January 25, 2024 Category: Health Management Source Type: research

Administering selected subscales of patient-reported outcome questionnaires to reduce patient burden and increase relevance: a position statement on a modular approach
AbstractPatient-reported outcome (PRO) questionnaires considered in this paper  contain multiple subscales, although not all subscales are equally relevant for administration in all target patient populations. A group of measurement experts, developers, license holders, and other scientific-, regulatory-, payer-, and patient-focused stakeholders participated in a panel to dis cuss the benefits and challenges of a modular approach, defined here as administering a subset of subscales out of a multi-scaled PRO measure. This paper supports the position that it is acceptable, and sometimes preferable, to take a modular approac...
Source: Quality of Life Research - January 24, 2024 Category: Health Management Source Type: research