Comparative effectiveness of verbal instruction versus video-based education (VIVid) among family caregivers for improving the quality of life in advanced head and neck cancer patients receiving palliative care in Eastern India: a randomized controlled trial
ConclusionVBE intervention using smart-phone may offer caregivers a viable means of enhancing self-management while improving patients ’ QoL within the socio-cultural challenges for home-based palliative care in India. Further research on training caregivers using digital interventions and home-based visits is recommended.Trial registration numberCTRI/2021/06/034473 [Registered on: 30/06/2021]. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Profiles of subjective well-being among people living with HIV during the COVID-19 pandemic
ConclusionIt seems that in the context of chronic illness and socially shared stressful circumstances, which was the COVID-19 pandemic, the components of SWB among PLWH developed rather congruent profiles. Sociodemographic, but not clinical characteristics were found to be significant correlates of belonging to obtained SWB profiles in this sample. The most striking effect with this regards was obtained for the members of the languishing profile, defined by the co-occurrence of low positive affect, low satisfaction with life, and high negative affect. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Estimating the disutility of relapse in relapsing –remitting and secondary progressive multiple sclerosis using the EQ-5D-5L, AQoL-8D, EQ-5D-5L-psychosocial, and SF-6D: implications for health economic evaluation models
ConclusionMS-related relapses are associated with substantial utility decrements. As the type and severity of MS influence disutility of relapse, the use of disability severity and MS-type-specific disutility inputs is recommended in future health economic evaluations of MS. Our study supports relapse management and prevention as major mechanisms to improve QoL in people with MS. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Patient quality of life and caregiver experiences in ovarian cancer: How are they related?
ConclusionThe study provides a unique perspective into the caregiver experience by attending to interpersonal factors in relation to caregiver experiences. Results may be able to guide interventions aimed at supporting caregivers through the cancer process by offering more assistance with tasks as their partner ’s physical condition worsens. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Translation and validation of a Chinese version of the pancreatitis quality of life instrument (PANQOLI) in patients with chronic pancreatitis
ConclusionThe Chinese version of PANQOLI appears to be culturally appropriate, reliable, and valid for assessing the QoL amongst Chinese patients with CP. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults
ConclusionsStudies identified in this scoping review demonstrate that several methods have been successfully applied e.g. with people living with aphasia post-stroke and people living with a disability, which potentially could be adapted for application with more diverse populations. A cohesive and interdisciplinary approach to the development and validation of communication accessible versions of QOL instruments, is needed to support widespread application, thereby reducing reliance on proxy assessors and promoting self-assessment of QOL across multiple consumer groups and sectors. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Feasibility of self-reported health related quality of life assessment with older people in residential care: insights from the application of eye tracking technology
ConclusionsThis exploratory study applying eye tracking technology provides novel insights and evidence of the feasibility of self-reported HRQoL assessments in older people in aged care settings where cognitive impairment and dementia are highly prevalent. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Association of body mass index from childhood to mid-adulthood with health-related quality of life in mid-adulthood
ConclusionHigh BMI from childhood to mid-adulthood had only modest associations with HRQoL and HSUs, with effects on physical HRQoL most apparent. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Estimating meaningful change for The Impact of Weight on Self-Perception (IW-SP) questionnaire among people with type 2 diabetes
ConclusionThe MIC for the IW-SP for patients with T2D is a 25-point change on the transformed score. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Living well while providing support: validation of LTCQ-Carer for assessing informal carers ’ quality of life
ConclusionLTCQ-Carer is a valid new measure for assessing family caregivers ’ quality of life across broad health and social care domains, expanding the range of high-quality tools for evaluating carer support. When used concurrently with patient assessment, it could highlight carer needs and prompt appropriate family support at the earliest point in the clinical pathway. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Change in health-related quality of life and functional disability over time post-concussion in youth
ConclusionConcussions have a negative impact on overall and physical HRQOL and functional disability in youth acutely post-injury. Ratings of HRQOL could be used to inform clinical treatment decisions to assist with the recovery process. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Supportive care needs in Australian melanoma patients and caregivers: results from a quantitative cross-sectional survey
ConclusionAustralian melanoma patients and caregivers report substantial unmet supportive care needs, particularly regarding their psychological and emotional well-being. Psychological and emotional well-being services, such as access to a clinical psychologist or implementation of patient-reported outcome measures, should be incorporated into routine melanoma care to address unmet patient and caregiver needs and improve well-being. (Source: Quality of Life Research)
Source: Quality of Life Research - November 7, 2023 Category: Health Management Source Type: research
Validation of the bowel urgency numeric rating scale in patients with Crohn ’s disease: results from a mixed methods study
ConclusionThe Urgency NRS is a valid and reliable instrument to assess BU severity in CD. (Source: Quality of Life Research)
Source: Quality of Life Research - November 3, 2023 Category: Health Management Source Type: research
The early years: hirschsprung disease and health-related quality of life
ConclusionDespite overall positive results for children, parents reported elevated symptoms of anxiety. This study highlights the importance of long-term follow-up care for HD patients and their families. (Source: Quality of Life Research)
Source: Quality of Life Research - November 3, 2023 Category: Health Management Source Type: research
Health-related quality of life and associated factors in elderly individuals with dyslipidemia in rural Northern China
ConclusionPain/discomfort dimension was the most affected problems. Education, occupation, marital status, smoking, secondhand smoke exposure, chronic disease core knowledge, comorbidities, and daily sedentary time were significantly associated with HRQOL in the present study. (Source: Quality of Life Research)
Source: Quality of Life Research - November 3, 2023 Category: Health Management Source Type: research
