Minimal clinically important differences in health-related quality of life after treatment with direct-acting antivirals for chronic hepatitis C: ANRS CO22 HEPATHER cohort (PROQOL-HCV)
ConclusionsThe overall MCID for the PROQOL-HCV scores ranged from 6.7 to 8.8 for improvement and from − 7.7 to − 4.6 for deterioration. The effect of DAA on PROQOL-HCV scores seemed particularly beneficial for patients with lower baseline scores. This subgroup could be motivated to take DAA if they are informed of the benefits for their HRQoL. (Source: Quality of Life Research)
Source: Quality of Life Research - April 5, 2024 Category: Health Management Source Type: research
Risk factors and intervention of caregiver burden in Parkinson ’s disease: a systematic review and meta-analysis
ConclusionCaregivers of PD patients experienced mild to moderate caregiver burden. Demographic factor, diseased-related factor and negative emotional factor were the risk factors of caregiver burden. Health education and care support for long-term management after DBS surgery should be provided for patients and caregivers to decrease caregiver burden. (Source: Quality of Life Research)
Source: Quality of Life Research - April 4, 2024 Category: Health Management Source Type: research
Symptom profiles in patients receiving maintenance hemodialysis and their association with quality of life: a longitudinal study
ConclusionPatients receiving maintenance hemodialysis reported unique symptom experiences which could be classified into different profiles. Patients reporting an overall high level of symptoms or a high level of fatigue and skin symptoms were more likely to have a poorer quality of life. (Source: Quality of Life Research)
Source: Quality of Life Research - April 2, 2024 Category: Health Management Source Type: research
Biopsychosocial factors of quality of life in individuals with moderate to severe traumatic brain injury: a scoping review
ConclusionIdentifying biopsychosocial factors relating to QOL after TBI can enable health services to develop targeted rehabilitation programs for individuals with TBI. (Source: Quality of Life Research)
Source: Quality of Life Research - April 1, 2024 Category: Health Management Source Type: research
Chronic cough: more than just a persistent cough: a systematic literature review to understand the impact of chronic cough on quality of life
ConclusionsCC can substantially affect HRQoL in patients, across physical, psychological, and social domains. Although treatments can improve HRQoL in these patients, the available evidence is limited. There remains an unmet need for approved pharmacological treatments to alleviate CC and improve HRQoL for these patients. (Source: Quality of Life Research)
Source: Quality of Life Research - April 1, 2024 Category: Health Management Source Type: research
Estimating anchor-based minimal important change using longitudinal confirmatory factor analysis
ConclusionThe MIC can accurately be estimated using LCFA, but sample sizes need to be preferably greater than 125. (Source: Quality of Life Research)
Source: Quality of Life Research - April 1, 2024 Category: Health Management Source Type: research
Mapping of Family Reported Outcome Measure (FROM-16) scores to EQ-5D: algorithm to calculate utility values
ConclusionsThe algorithm developed will enable researchers and decision scientists to calculate EQ-5D health utility estimates from FROM-16 scores, thus allowing the inclusion of the family impact of disease in health economic evaluation of medical interventions when EQ-5D data is not available. (Source: Quality of Life Research)
Source: Quality of Life Research - March 28, 2024 Category: Health Management Source Type: research
Biopsychosocial factors of quality of life in individuals with moderate to severe traumatic brain injury: a scoping review
ConclusionIdentifying biopsychosocial factors relating to QOL after TBI can enable health services to develop targeted rehabilitation programs for individuals with TBI. (Source: Quality of Life Research)
Source: Quality of Life Research - March 28, 2024 Category: Health Management Source Type: research
Relative importance of selected predictors of health-related quality-of-life (HRQOL) among U.S. adults
ConclusionThis study quantified and ranked selected contributing factors of HRQOL. Results of this analysis also can be used to validate HRQOL measures based on domain knowledge of HRQOL. (Source: Quality of Life Research)
Source: Quality of Life Research - March 22, 2024 Category: Health Management Source Type: research
Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff
ConclusionThe ASCOT-Proxy-Resident is a valid instrument of SCRQoL for older adults resident in care homes, completed by staff proxies. Due to the two-factor structure, which differs from the original ASCOT-SCT4, we do not recommend the use of the ASCOT-Proxy-Proxy measure, although collecting data as part of the ASCOT-Proxy questionnaire may support its feasibility and acceptability. Further qualitative study of how care home staff complete and perceive the ASCOT-Proxy is encouraged for future studies. (Source: Quality of Life Research)
Source: Quality of Life Research - March 20, 2024 Category: Health Management Source Type: research
The phenotype of recovery XI: associations of sleep quality and perceived stress with discounting and quality of life in substance use recovery
ConclusionTogether, these findings suggest sleep and stress contribute uniquely to the process of addiction recovery. Considering both factors when designing interventions and planning for future research is recommended. (Source: Quality of Life Research)
Source: Quality of Life Research - March 20, 2024 Category: Health Management Source Type: research
Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff
ConclusionThe ASCOT-Proxy-Resident is a valid instrument of SCRQoL for older adults resident in care homes, completed by staff proxies. Due to the two-factor structure, which differs from the original ASCOT-SCT4, we do not recommend the use of the ASCOT-Proxy-Proxy measure, although collecting data as part of the ASCOT-Proxy questionnaire may support its feasibility and acceptability. Further qualitative study of how care home staff complete and perceive the ASCOT-Proxy is encouraged for future studies. (Source: Quality of Life Research)
Source: Quality of Life Research - March 20, 2024 Category: Health Management Source Type: research
