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The relation between personality, informal caregiving, life satisfaction and health-related quality of life: evidence of a longitudinal study
This study aimed to examine the role personality characteristics of the caregiver might play in the relation between informal caregiving and well-being outcomes using a longitudinal approach.MethodsData were derived from the large Panel ‘Labour Market and Social Security.’ This is an annual household survey, which is conducted by order of the Institute for Employment Research covering persons and households registered as residents of Germany. The SF-12 was used to capture health-related quality of life (covering physical and me ntal health). A short version of the Big Five Inventory (BFI-K) was used to quantify...
Source: Quality of Life Research - January 15, 2018 Category: Health Management Source Type: research

Association between secondhand smoke exposure and quality of life in pregnant women and postpartum women and the consequences on the newborns
AbstractPurposeSecondhand smoke (SHS) exposure is prevalent and could damage the health of non-smokers, especially that of pregnant women (PW) and postpartum women (PPW). Nevertheless, there is no study on the impact of SHS during pregnancy on the quality of life (QOL) of PW and PPW. The study ’s purpose is to study the effects of exposure to SHS on the QOL of pregnant and postpartum women and health of the newborns.MethodsSelf-reports and urine tests for cotinine were used to obtain data on SSH exposure in 296 women in the second trimester of pregnancy and 106 women in the postpartum period at the Obstetrics& Gy...
Source: Quality of Life Research - January 11, 2018 Category: Health Management Source Type: research

Effect of health literacy on the quality of life of older patients with long-term conditions: a large cohort study in UK general practice
ConclusionsThis is the largest, most complete assessment of the effects of health literacy on QoL in older adults with LTCs. Low health literacy is an independent indicator of poor QoL older patients with LTCs. Interventions to improve health literacy in older people with LTCs are encouraged by these findings. (Source: Quality of Life Research)
Source: Quality of Life Research - January 10, 2018 Category: Health Management Source Type: research

Predictors of quality of life and psychological health in infertile couples: the moderating role of duration of infertility
ConclusionsBoth positive/active and avoiding/distancing coping strategies are effective to promote QoL and psychological health in infertile couples, but they are all compromised by a long duration of infertility. Conversely, positive effects of educational level and couple ’s Dyadic Adjustment persist and should be emphasised in the definition of interventions to promote well-being in couples undergoing long-term treatments. (Source: Quality of Life Research)
Source: Quality of Life Research - January 6, 2018 Category: Health Management Source Type: research

An empirical comparison of the measurement properties of the EQ-5D-5L, DEMQOL-U and DEMQOL-Proxy-U for older people in residential care
This study aimed to empirically compare the measurement properties of self-reported and proxy-reported (in cases of severe cognitive impairment) generic (EQ-5D-5L) and condition-specific (DEMQOL-U and DEMQOL-Proxy-U) preference-based HRQoL instruments in residential care, where the population is characterised by older people with high rates of cognitive impairment, dementia and disability.MethodsParticipants were recruited from seventeen residential care facilities across four Australian states. One hundred and forty-three participants self-completed the EQ-5D-5L and the DEMQOL-U while three hundred and eight-seven proxy c...
Source: Quality of Life Research - January 5, 2018 Category: Health Management Source Type: research

Health-related quality of life in mothers of children with epilepsy: 10  years after diagnosis
ConclusionTen years after the diagnosis of epilepsy in children, the HRQOL of mothers was similar to reports from women in the general population. This study identified factors contributing to better maternal HRQOL and highlights the importance of family environment over epilepsy-related variables. (Source: Quality of Life Research)
Source: Quality of Life Research - January 5, 2018 Category: Health Management Source Type: research

Lifestyle-related attitudes: do they explain self-rated health and life-satisfaction?
AbstractBackgroundStrategies to improve public health may benefit from targeting specific lifestyles associated with poor health behaviors and outcomes. The aim of this study was to characterize and examine the relationship between health and lifestyle-related attitudes (HLAs) and self-rated health and life-satisfaction.MethodsSecondary analyses were conducted on data from a 2012 community wellness survey in Kirklees, UK. Using a validated HLA tool, respondents (n = 9130) were categorized into five segments: health conscious realists (33%), balanced compensators (14%), live-for-todays (18%), hedonistic immort...
Source: Quality of Life Research - January 4, 2018 Category: Health Management Source Type: research

The reliability and validity of the Chinese version of the Metacognitions about Health Questionnaire in college students
ConclusionsThe CMCQ-HA shows promise for the measurement of specific HA-related metacognitions in Chinese populations. (Source: Quality of Life Research)
Source: Quality of Life Research - January 4, 2018 Category: Health Management Source Type: research

Quality of life at 6  years after occupational injury
ConclusionAt 6  years after occupational injury, workers’ HRQOL was poor among those whose salaries decreased after the injury, after adjustment for other factors. (Source: Quality of Life Research)
Source: Quality of Life Research - December 29, 2017 Category: Health Management Source Type: research

The relationships between timing of first childbirth, parity, and health-related quality of life
ConclusionsWomen of an early age at first childbirth tended to have lower HRQoL through giving more deliveries. Our findings suggest that more attention needs to be given to women with early pregnancy and more delivery to prevent impaired HRQoL. (Source: Quality of Life Research)
Source: Quality of Life Research - December 26, 2017 Category: Health Management Source Type: research

Correction to: Impact of an electronic monitoring device and behavioural feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial
AbstractThe clinicaltrials.gov identifying number for the article titled “Impact of an electronic monitoring device and behavioral feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial” is NCT02234713 (https://clinicaltrials.gov/ct2/show/NCT02234713). (Source: Quality of Life Research)
Source: Quality of Life Research - December 23, 2017 Category: Health Management Source Type: research

Psychometric evaluation of the PainCAS Interference with Daily Activities, Psychological/Emotional Distress, and Pain scales
ConclusionTaken together, results provide strong psychometric support for these PainCAS Pain scales. Strengths and limitations of the current study are discussed. (Source: Quality of Life Research)
Source: Quality of Life Research - December 22, 2017 Category: Health Management Source Type: research

Comparing and transforming PROMIS utility values to the EQ-5D
ConclusionsThe published estimates of the PROMIS-29 produce lower utility values than many other health instruments. Mapping the PROMIS-29 estimates to an EQ-5D-3L scale alleviates this issue and allows for a more straightforward comparison between the PROMIS-29 and other common health instruments. (Source: Quality of Life Research)
Source: Quality of Life Research - December 20, 2017 Category: Health Management Source Type: research

Comorbidity amplifies the effects of post-9/11 posttraumatic stress disorder trajectories on health-related quality of life
ConclusionsTen years post-9/11 physical and mental health comorbidities have a substantial impact on the PTSD trajectories and HRQOL association. The need for early identification and treatment of PTSD and comorbidity should be emphasized to potentially improve HRQOL. (Source: Quality of Life Research)
Source: Quality of Life Research - December 20, 2017 Category: Health Management Source Type: research

COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures
ConclusionsThe COSMIN Risk of Bias checklist was developed exclusively for use in systematic reviews of PROMs to distinguish this application from other purposes of assessing the methodological quality of studies on measurement properties, such as guidance for designing or reporting a study on the measurement properties. (Source: Quality of Life Research)
Source: Quality of Life Research - December 19, 2017 Category: Health Management Source Type: research

Utility of a patient-reported outcome in measuring functional impairment during autologous stem cell transplant in patients with multiple myeloma
AbstractBackgroundWe aimed to determine the utility of a patient-reported outcome (PRO) as it relates to patient performed testing (PPT) for measuring functional status in multiple myeloma patients after autologous hematopoietic stem cell transplantation (auto-HCT).MethodsSymptom interference on walking (a PRO) was measured by the MD Anderson Symptom Inventory (MDASI). PPT was assessed via 6-min walk test (6MWT). Mixed effects modeling was used to examine (1) the longitudinal relationship between the MDASI score and 6MWT distance and (2) the MDASI scores between patients who did or did not complete the 6WMT. Receiver opera...
Source: Quality of Life Research - December 19, 2017 Category: Health Management Source Type: research

Careless responding in internet-based quality of life assessments
ConclusionsThe results support the importance of identifying and screening out careless responders to ensure high-quality self-report data in Internet-based QoL research. (Source: Quality of Life Research)
Source: Quality of Life Research - December 16, 2017 Category: Health Management Source Type: research

Measuring what matters MOST: validation of the Measure of Ovarian Symptoms and Treatment, a patient-reported outcome measure of symptom burden and impact of chemotherapy in recurrent ovarian cancer
ConclusionsThe MOSTv2 validly quantifies patient-reported symptom burden, adverse effects, and symptom benefit in ROC, and as such is fit-for-purpose for clinical trials of palliative chemotherapy in ROC. Further research is required to assess test –retest reliability. (Source: Quality of Life Research)
Source: Quality of Life Research - December 16, 2017 Category: Health Management Source Type: research

Quality of life among parents of preterm infants: a scoping review
ConclusionsStandardizing the operationalization of the QoL when analysing mothers and fathers of preterm infants calls for a structured questionnaire adapted to their specific needs. Further research should include both mothers and fathers, invest in mixed methods approaches and be performed in different countries and settings for allowing integration and comparison of findings. (Source: Quality of Life Research)
Source: Quality of Life Research - December 16, 2017 Category: Health Management Source Type: research

A (five-)level playing field for mental health conditions?: exploratory analysis of EQ-5D-5L-derived utility values
AbstractPurposeEconomic evaluations of mental health interventions often measure health benefit in terms of utility values derived from the EQ-5D. For the five-level version of the EQ-5D, there are two methods of estimating utility [crosswalk and stated preference (5L-SP)]. This paper explores potential impacts for researchers and decision-makers when comparing utility values derived from either method in the specific context of mental health.MethodsBaseline EQ-5D-5L data from three large randomised controlled trials of interventions for mental health conditions were analysed. Utility values were generated using each metho...
Source: Quality of Life Research - December 16, 2017 Category: Health Management Source Type: research

Quality of life in a broader perspective: Does ASCOT reflect the capability approach?
ConclusionsWe conclude that the CA and the ASCOT contribute to the discussion on QoL, and that the ASCOT operationalizes core assumptions of the CA, translating the issues raised by the CA in a practical way. (Source: Quality of Life Research)
Source: Quality of Life Research - December 14, 2017 Category: Health Management Source Type: research

Conversion of standard retrospective patient-reported outcomes to momentary versions: cognitive interviewing reveals varying degrees of momentary compatibility
ConclusionsCognitive interviewing techniques proved useful for developing and evaluating momentary items. Researchers should be aware of the applied reference period and of emerging problems when evaluating adapted momentary items, since not all concepts are suitable. We recommend the proposed method in future adaptations of existing instruments. (Source: Quality of Life Research)
Source: Quality of Life Research - December 14, 2017 Category: Health Management Source Type: research

Quality of life after hip, vertebral, and distal forearm fragility fractures measured using the EQ-5D-3L, EQ-VAS, and time-trade-off: results from the ICUROS
ConclusionsThe approach to derive QoL markedly influences the estimated QoL impact of fracture. Therefore the choice of approach may be important for the outcome and interpretation of cost-effectiveness analysis of fracture prevention. (Source: Quality of Life Research)
Source: Quality of Life Research - December 12, 2017 Category: Health Management Source Type: research

Evaluating cognition in individuals with Huntington disease: Neuro-QoL cognitive functioning measures
ConclusionsThe Neuro-QoL Cognition measures provide reliable and valid assessments of self-reported cognitive functioning for individuals with HD. Findings support the utility of these measures for assessing self-reported cognition. (Source: Quality of Life Research)
Source: Quality of Life Research - December 8, 2017 Category: Health Management Source Type: research

Clustering based on unsupervised binary trees to define subgroups of cancer patients according to symptom severity in cancer
ConclusionOur study suggests that CUBT is relevant to define the levels of symptom severity in cancer. This finding may have important implications for helping clinicians to interpret symptom profiles in clinical practice, to identify individuals at risk for poorer outcomes and implement targeted interventions. (Source: Quality of Life Research)
Source: Quality of Life Research - December 8, 2017 Category: Health Management Source Type: research

Understanding the need for assistance with survey completion in people with Huntington disease
AbstractPurposeIn Huntington disease (HD), motor, cognitive, and psychiatric changes can have a detrimental impact on health-related quality of life (HRQOL). The purpose of this paper is to describe the extent and type of assistance needed to complete online HRQOL surveys, and the impact of assistance on HRQOL scores.MethodsA patient-reported outcome measurement system was developed for HD-specific HRQOL. Individuals across the prodromal and diagnosed disease severity spectrum (n = 532) completed surveys by computer, and reported the amount and type of assistance they received.ResultsSome participants (n&thin...
Source: Quality of Life Research - December 6, 2017 Category: Health Management Source Type: research

Internet use, social networks, loneliness, and quality of life among adults aged 50 and older: mediating and moderating effects
ConclusionsInternet use can enhance QoL of older adults directly or indirectly by reducing loneliness. However, these effects are conditional on other variables. The indirect effect moderated by ethnicity, and the direct effect moderated by the time the elderly spend with their families. Researchers and practitioners should be aware of these interactions which can impact loneliness and quality of life of older persons differently. (Source: Quality of Life Research)
Source: Quality of Life Research - December 5, 2017 Category: Health Management Source Type: research

Scoping review of response shift methods: current reporting practices and recommendations
ConclusionsDespite rapid methodological advancements in RS research, this review highlights the need for further research about RS detection methods for complex longitudinal data and standardized reporting guidelines. (Source: Quality of Life Research)
Source: Quality of Life Research - December 5, 2017 Category: Health Management Source Type: research

Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors
ConclusionsBeyond the parents ’ actual situation, our results underscore the importance of paying attention to their own perception of the situation in order to provide them with appropriate support. (Source: Quality of Life Research)
Source: Quality of Life Research - December 4, 2017 Category: Health Management Source Type: research

Long-term quality of life changes after primary septorhinoplasty
ConclusionSeptorhinoplasty can improve disease-specific and non-disease-specific QOL in the short- and long-term postoperative period. These improvements remain measurable 5  years after surgery. (Source: Quality of Life Research)
Source: Quality of Life Research - December 4, 2017 Category: Health Management Source Type: research

Adjusting for cross-cultural differences in computer-adaptive tests of quality of life
DiscussionAssessing differential item functioning using item response theory can identify measurement invariance between cultures which, if uncontrolled, may undermine accurate comparisons in computer-adaptive testing assessments of QoL. We demonstrate how compensating for DIF using item anchoring allowed data from all four countries to be compared on a common metric, thus facilitating assessments which were both sensitive to cultural nuance and comparable between countries. (Source: Quality of Life Research)
Source: Quality of Life Research - December 4, 2017 Category: Health Management Source Type: research

The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis
ConclusionsRehabilitation interventions were perceived to have potential to support QoL by people with ALS. Advantages and limitations of rehabilitation services within this population were identified. (Source: Quality of Life Research)
Source: Quality of Life Research - December 4, 2017 Category: Health Management Source Type: research

Physical and mental health status and their correlations among older wheelchair users with dementia in long-term care facilities
AbstractPurposeTo investigate the physical health (daily functioning and functional fitness) and mental health (depression and behavioral dysfunction) of older wheelchair users with dementia in long-term care facilities, examine the correlations between physical and mental health, and identify the independent variables of their daily functioning.MethodsA descriptive correlational method was adopted, which was conducted in six long-term care facilities in three cities, south Taiwan. Participants comprised 98 older wheelchair users with dementia. Data were collected using structured questionnaires (Mini-Mental State Examinat...
Source: Quality of Life Research - December 2, 2017 Category: Health Management Source Type: research

Lifestyle factors and social ties associated with the frequency of laughter after the Great East Japan Earthquake: Fukushima Health Management Survey
ConclusionChanges in lifestyle factors after the disaster were associated with the frequency of laughter in the evacuation zone. Future longitudinal studies are needed to examine what factors can increase the frequency of laughter. (Source: Quality of Life Research)
Source: Quality of Life Research - December 2, 2017 Category: Health Management Source Type: research

Internal resources among informal caregivers: trajectories and associations with well-being
ConclusionsPractices or interventions that support or improve internal resources could potentially improve caregiver well-being. (Source: Quality of Life Research)
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Impact of monitoring health-related quality of  life in clinical practice in children with type 1 diabetes mellitus
ConclusionsRoutine assessment and face-to-face patient-physician discussion of HRQOL results improved HRQOL scores after a year of follow-up, especially in Psychological well-being and school environment. The results support the routinary use of HRQOL assessment in clinical practice. (Source: Quality of Life Research)
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Perceived discrimination and health-related quality-of-life: gender differences among older African Americans
ConclusionsPerceived discrimination is associated with poor HRQOL in older African Americans, with this association appearing stronger in women than men for mental HRQOL. These findings warrant further investigation of effects of perceived discrimination in gender disparities in overall health, and such research can inform and guide efforts for reducing these disparities. (Source: Quality of Life Research)
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Examining transgender health through the International Classification of Functioning, Disability, and Health ’s (ICF) Contextual Factors
ConclusionsTransgender individuals benefit from gender-affirming services, improved family and social support systems, and competent provider care. Educational training programs, including medical curricula or workshops, might provide the greatest benefit in improving transgender health by increasing the knowledge and cultural competency of health professionals working with this population. Given the diversity of gender expression, differences in lived experiences, and potential for enduring persistent"double discrimination" due to the intersectional relationships between socioeconomic status, race, and/or age, h...
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Association between chronic conditions and health-related quality of life: differences by level of urbanization in Peru
AbstractPurposeTo evaluate the role of urbanization as an effect modifier for the association between specific chronic conditions and number of conditions with health-related quality of life (QOL).MethodsWe analyzed cross-sectional data from the CRONICAS Cohort Study conducted in Lima (highly urbanized), Tumbes (semi-urban), as well as rural and urban sites in Puno. Exposures of interest were chronic bronchitis, depressive mood, hypertension, type 2 diabetes, and a composite variable aggregating the number of chronic conditions (the four exposures plus heart disease and stroke). QOL outcomes were assessed with EuroQol &rsq...
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Measuring quality of life in opioid-dependent people: a systematic review of assessment instruments
ConclusionsNo instrument scored perfectly on both the content and properties. The limited suitability of instruments for opioid-dependent people hinders accurate and sensitive measurement of QOL in this population. Future research is in need of an opioid dependence-specific QOL instrument to measure the true impact of the disease on people ’s lives and to evaluate treatment-related services. (Source: Quality of Life Research)
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Subjective evaluation of psychosocial well-being in children and youths with overweight or obesity: the impact of multidisciplinary obesity treatment
AbstractPurposeTo investigate the effects of a multidisciplinary childhood obesity treatment programme on subjective evaluations of psychosocial well-being and quality of life.MethodsThis longitudinal observational study included 1291 children, adolescents and young adults, 6 –22 years of age, with overweight or obesity. At entry and after 2–82 months of obesity treatment, the patients evaluated the following domains of psychosocial well-being on a visual analogue scale: quality of life, mood, appetite, bullying, motivation for weight loss and body image satisfaction . The degree of overweight was calculated us...
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Social inequalities in children ’s oral health-related quality of life: the Generation R Study
AbstractPurposeOral health-related quality of life (OHRQoL) is the most important patient-reported outcome measure in oral health research. The purpose of the present research was to study the association of family socioeconomic position (SEP) with children ’s OHRQoL.MethodsThis cross-sectional study was embedded in the Generation R Study, a population-based cohort study conducted in Rotterdam, The Netherlands. For the present study, OHRQoL was assessed of 3871 ten-year old children. Family SEP was assessed with the following indicators: maternal/paternal education level, maternal/paternal employment status, househol...
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Comparison of health state values derived from patients and individuals from the general population
ConclusionsPatients may differ from members of the general population in the strength of their preferences for hypothetical health states. Using utility values derived from the general population may under-estimate the comparative effectiveness of healthcare interventions for certain diseases, such as heart diseases. (Source: Quality of Life Research)
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Associations between health-related quality of life, cardiorespiratory fitness, muscle strength, physical activity and waist circumference in 10-year-old children: the ASK study
AbstractPurposeTo examine the associations between cardiorespiratory fitness, muscle strength, physical activity and waist circumference with self-reported health-related quality of life (HRQoL) in children.MethodsWe conducted a cross-sectional analysis that included 1129 school children aged 10  years from 57 schools in Sogn and Fjordane County, Norway. The HRQoL outcome was assessed by the self-reported KIDSCREEN-27 questionnaire, which covers five life domains. Independent variables were cardiorespiratory fitness assessed by the Andersen intermittent field running test, handgrip strengt h measured by a hand dynamom...
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

Selection of key health domains from PROMIS ® for a generic preference-based scoring system
ConclusionWith input from measurement experts and community members, we selected 7 PROMIS domains that can be used to create a preference-based score. (Source: Quality of Life Research)
Source: Quality of Life Research - November 11, 2017 Category: Health Management Source Type: research

International development of four EORTC disease-specific quality of life questionnaires for patients with Hodgkin lymphoma, high- and low-grade non-Hodgkin lymphoma and chronic lymphocytic leukaemia
ConclusionsThis study provides four new EORTC modules for use in clinical research and routine practice in conjunction with the EORTC QLQ-C30 for assessing QoL in patients with lymphoma and CLL. (Source: Quality of Life Research)
Source: Quality of Life Research - November 10, 2017 Category: Health Management Source Type: research

Development of a practical outcome measure to account for individual differences in quality-of-life appraisal: the Brief Appraisal Inventory
ConclusionsThe BAI provides a practical, short tool for evaluating appraisal in a wide range of assessment situations. Future research might utilize the BAI in longitudinal research aimed at detecting response-shift effects over time, and in clinical settings to improve patient-provider communication about concerns related to health, health care, or QOL. (Source: Quality of Life Research)
Source: Quality of Life Research - November 10, 2017 Category: Health Management Source Type: research

Association between social support and health-related quality of life among Chinese rural elders in nursing homes: the mediating role of resilience
This study aims to confirm the relationship between social support and health-related quality of life (HRQOL) among rural Chinese elders in nursing homes, and to examine the mediating role of resilience in the impact of social support on HRQOL.MethodsA cross-sectional survey of 205 elders aged 60 and above was conducted in five rural public nursing homes. Sociodemographic characteristics, the SF-36 questionnaire, and information about social support and resilience were collected. The researchers administered the questionnaires to the participants in a face-to-face setting. Descriptive analysis and a correlation matrix were...
Source: Quality of Life Research - November 9, 2017 Category: Health Management Source Type: research

Effects of a 9-month resistance training intervention on quality of life, sense of coherence, and depressive symptoms in older adults: randomized controlled trial
ConclusionResistance training is beneficial for environmental quality of life and sense of coherence. Attending resistance training twice a week seems to be the most advantageous for these aspects of psychological functioning. (Source: Quality of Life Research)
Source: Quality of Life Research - November 9, 2017 Category: Health Management Source Type: research

Neighborhood structural differences and women ’s mental health: an empirical study in Accra, Ghana
ConclusionsThese findings suggest that policies and programs that improve the physical and economic conditions of deprived neighborhoods, as well as civic initiatives that improve social capital and cohesion, may be important for promoting collective actions and improving health outcomes in urban settings like Accra. (Source: Quality of Life Research)
Source: Quality of Life Research - November 8, 2017 Category: Health Management Source Type: research