Directionality of the relationship between social well-being and subjective well-being: evidence from a 20-year longitudinal study
ConclusionThese findings suggest that optimal social functioning is more likely to be an antecedent to subjective well-being, not the other way around. The results are consistent with predictions guided by self-determination theory. (Source: Quality of Life Research)
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

Quality of life of middle-aged adults in single households in South Korea
ConclusionsThe study results revealed that middle-aged people in single households had low QOL than those in multi-person households. The trend was significantly observable in men than in women. Because middle-aged adults might transform into elderly with low QOL, program development and social support for middle-aged adults in single households should be provided. (Source: Quality of Life Research)
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

Health-related quality of life of maltreated children and adolescents who attended a service center in Brazil
This study ’s aim was to evaluate the health-related quality of life (HRQoL) and associated factors of maltreated children and adolescents.MethodsThis cross-sectional study consisted of individuals between 8 and 17  years of age who were victims of maltreatment. The KIDSCREEN-52 was used to measure their HRQoL. Socioeconomic and demographic data were collected, as well as information about the type of abuse, type of perpetrator, and psychological support adherence. The Kruskal–Wallis test was used to analyz e the scores of the KIDSCREEN-52 by the independent variables.ResultsOne hundred and thirteen victim...
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

Deprivation is associated with worse physical and mental health beyond income poverty: a population-based household survey among Chinese adults
ConclusionsIncome does not capture all aspects of poverty that are associated with adverse health outcomes. Deprivation of non-monetary resources has an independent effect on general health above and beyond the effect of income poverty. Policies should move beyond endowment and take into account the multidimensionality of poverty, in order to address the problem of health inequality. (Source: Quality of Life Research)
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

Measurement properties of ThyPRO short-form (ThyPRO-39) for use in Chinese patients with benign thyroid diseases
ConclusionsThis was the first psychometric study to translate and adapt the ThyPRO-39 instrument for non-Caucasian patients, and report its validity and reliability for use in Chinese patients with benign thyroid diseases. Given the low item-total correlations in eight items and low internal consistency reliability in respective scales of the ThyPRO-39, we suggest that the improvement of those eight items should produce a more valid and reliable ThyPRO-39 instrument. (Source: Quality of Life Research)
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

Giving voice to the child perspective: psychometrics and relative precision findings for the Child Health Questionnaire self-report short form (CHQ-CF45)
ConclusionThe CHQ-SF45 is reliable and valid and exceeds item level scaling criteria. (Source: Quality of Life Research)
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

Health-related quality of life of African-American female breast cancer survivors, survivors of other cancers, and those without cancer
ConclusionsOur findings highlight the need for public health agencies to adopt practices to improve the mental and physical health of African-American female survivors of cancer. (Source: Quality of Life Research)
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

Maternal quality of life in routine labor epidural analgesia versus labor analgesia on request: results of a randomized trial
ConclusionRoutine administration of EA during labor and pain relief on maternal request only are associated with comparable changes of women ’s QOL antepartum to 6 weeks postpartum. (Source: Quality of Life Research)
Source: Quality of Life Research - July 9, 2018 Category: Health Management Source Type: research

The quality of life in Chinese population with chronic non-communicable diseases according to EQ-5D-3L: a systematic review
ConclusionsEQ-5D-3L is widely used in studies of HRQoL associated with CNCDs in China. Our results suggest that many factors may influence the measurement results of health utilities, including age, gender, sample source, comorbidities, rural/urban, and EQ-5D-3L value sets. (Source: Quality of Life Research)
Source: Quality of Life Research - July 6, 2018 Category: Health Management Source Type: research

Psychometric properties of the EQ-5D-5L in patients with hip or knee osteoarthritis: reliability, validity and responsiveness
We examined known-groups validity by comparing the EQ-5D-5L between subgroups defined by WOMAC scores using ANOVA or the Kruskal–Wallis test. Effect sizes were calculated to assess responsiveness, and minimal clinically important differ ence (MCID) was estimated.ResultsThe EQ-5D-5L showed minimal floor and ceiling effects (
Source: Quality of Life Research - July 5, 2018 Category: Health Management Source Type: research

Mapping between HAQ-DI and EQ-5D-5L in a Chinese patient population
ConclusionIt is hoped that the availability of these algorithms will facilitate the development of cost-effectiveness studies evaluating RA treatments in the Chinese health care setting. (Source: Quality of Life Research)
Source: Quality of Life Research - July 4, 2018 Category: Health Management Source Type: research

Measurement invariance, the lack thereof, and modeling change
ConclusionsMeasurement invariance implies that the links between the items and the construct of interest are invariant over some domain, grouping, or classification. Examining a new or existing test for measurement invariance should be part of any test construction/implementation plan. In addition to reviewing implications of the simulation study results, we also provide a discussion of the limitations of current approaches and areas in need of additional research. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

The modified Memorial Symptom Assessment Scale Short Form: a modified response format and rational scoring rules
ConclusionThe modified MSAS-SF was useable for self-completion and responses demonstrated validity. The rational scoring rules can minimise loss of data from incorrectly completed responses. Further investigation is recommended. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

Health state utility values of high prevalence mental disorders in Australia: results from the National Survey of Mental Health and Wellbeing
ConclusionsHealth state utility values of people with high prevalence mental disorders differ significantly by severity level, number of mental health comorbidities and the recency of symptoms, which provide new insights on the burden associated with high prevalence mental disorders in Australia. The derived utility values can be used to populate future economic models. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

Ensuring content validity of patient-reported outcomes: a shadow-test approach to their adaptive measurement
ConclusionsThe optimal test design and shadow-test approach to CAT provide a flexible framework for solving complex test-assembly problems with better control of their domain coverage than for the conventional use of CAT in PRO measurement. Applications in a wide array of PRO domains are expected to lead to more controlled and balanced use of CAT in the field. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

The importance of content and face validity in instrument development: lessons learnt from service users when developing the Recovering Quality of Life measure (ReQoL)
ConclusionsThis research has underlined the importance of service users ’ views on the acceptability and validity of items for use in developing a new measure. Whether or not service users favoured an item was associated with their ability or intention to respond accurately and honestly to the item which will impact on the validity and sensitivity of the measure. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

Validation of the PROMIS Sleep Disturbance and Sleep-Related Impairment item banks in Dutch adolescents
ConclusionsWhile the PROMIS Sleep Disturbance-23 for adolescents and PROMIS Sleep-Related Impairment-11 for adolescents provide a framework to assess adolescent sleep, additional research is needed to replicate these findings in a larger and more diverse sample. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

A meta-analytic review of measurement equivalence study findings of the SF-36 ® and SF-12® Health Surveys across electronic modes compared to paper administration
ConclusionsThe results of the meta-analysis support equivalence of paper-based and electronic versions of the SF-36 and SF-12 across a variety of disease populations, countries, and electronic modes. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

Evaluation of options for presenting health-states from PROMIS ® item banks for valuation exercises
ConclusionsCreating health descriptions by presenting 2 items maximized the range of theta while minimizing difficulty and maintaining a monotonic relationship with utility estimates. We recommend this approach for valuation of IRT-based descriptive systems such as PROMIS. (Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

Importance ratings on patient-reported outcome items for survivorship care: comparison between pediatric cancer survivors, parents, and clinicians
AbstractPurposeTo compare importance ratings of patient-reported outcomes (PROs) items from the viewpoints of childhood cancer survivors, parents, and clinicians for further developing short-forms to use in survivorship care.Methods101 cancer survivors, 101 their parents, and 36 clinicians were recruited from St. Jude Children ’s Research Hospital. Participants were asked to select eight items that they deemed useful for clinical decision making from each of the four Patient-Reported Outcomes Measurement Information System Pediatric item banks. These item banks were pain interference (20 items), fatigue (23 items), p...
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

Introduction to special section: test construction
(Source: Quality of Life Research)
Source: Quality of Life Research - June 12, 2018 Category: Health Management Source Type: research

Association of religiosity and spirituality with quality of life in patients with cardiovascular disease: a systematic review
ConclusionsOur findings suggest that higher levels of R/S may be related to better QOL among patients with CVD, with varying associations depending on the R/S dimension and QOL domain assessed. Future longitudinal studies in large patient samples with different CVDs and designs are needed to better understand how R/S may influence QOL. More uniformity in assessing R/S would enhance the comparability of results across studies. Understanding the influence of R/S on QOL would promote a holistic approach in managing patients with CVD. (Source: Quality of Life Research)
Source: Quality of Life Research - June 11, 2018 Category: Health Management Source Type: research

Changes in health-related quality of life (EQ-5D) dimensions associated with community-based musculoskeletal physiotherapy: a multi-centre analysis
AbstractPurposeTo determine the changes in each of the five dimensions of the EuroQol 5-dimension index associated with community-based physiotherapy.MethodsFour thousand one hundred and thirty-six patients that received community-based musculoskeletal physiotherapy across five NHS centres completed the EQ-5D on entry into the service and upon discharge. Patients were categorised on symptom location and response to treatment based on their EQ-5D index improving by at least 0.1 ( “EQ-5D responders”). For each symptom location, and for responders and non-responders to treatment, the mean (± SD) were c...
Source: Quality of Life Research - June 9, 2018 Category: Health Management Source Type: research

Does anthropometric and fitness parameters mediate the effect of exercise on the HRQoL of overweight and obese children/adolescents?
ConclusionThe reduction of waist circumference mediates the change on proxies ’ perception of quality of life and not by the improvement in physical fitness. Trial registration: ISRCTN97887613 (Source: Quality of Life Research)
Source: Quality of Life Research - June 8, 2018 Category: Health Management Source Type: research

Utility elicitation in adults and children for allergic rhinoconjunctivitis and associated health states
ConclusionsSymptoms of allergic rhinitis and asthma were valued as having a clinically meaningful impact on HRQoL. Children valued health states as poorer than adults, and further research should investigate whether this reflects true preferential differences or results from methodological and/or comprehension differences between the two groups. (Source: Quality of Life Research)
Source: Quality of Life Research - June 8, 2018 Category: Health Management Source Type: research

Cross-cultural adaptation and psychometric evaluations of the Turkish version of Parkinson Fatigue Scale
ConclusionsThe Turkish version of the Parkinson Fatigue Scale seems to be culturally well adapted and have good psychometric properties. The scale can be used in further studies to assess the fatigue in patients with Parkinson ’s disease. (Source: Quality of Life Research)
Source: Quality of Life Research - June 7, 2018 Category: Health Management Source Type: research

Body mass index and waist circumference predict health-related quality of life, but not satisfaction with life, in the elderly
ConclusionsObesity is associated with and predicts lower quality of life in elderly adults aged 70 –90 years, and the areas most affected are independent living, social relationships, and the experience of pain. (Source: Quality of Life Research)
Source: Quality of Life Research - June 7, 2018 Category: Health Management Source Type: research

Procedures to develop a computerized adaptive test to assess patient-reported physical functioning
ConclusionsWe demonstrated feasibility and efficiency of using CAT for PRO measurement of physical functioning. The procedures we outlined are straightforward, and can be applied to other PRO measures. Additionally, we have included all the information necessary to implement the CAT of physical functioning in the electronic supplementary material of this paper. (Source: Quality of Life Research)
Source: Quality of Life Research - June 7, 2018 Category: Health Management Source Type: research

Relationship between cyberbullying and health-related quality of life in a sample of children and adolescents
AbstractPurposeHealth-related quality of life (HRQoL) is a well-known construct that refers to a state of complete physical, mental, and social well-being. Its relationship with multiple forms of violence, including bullying, has been widely explored, but this is not the case for cyberbullying. The main objective is to analyze how HRQoL varies depending on the role played in cyberbullying, its temporal stability, and gender and age differences.MethodAn analytical and longitudinal study was conducted at two temporal moments. At Time 1 (December 2015), 920 Spanish students aged between 11 and 18  years participated (Mag...
Source: Quality of Life Research - June 7, 2018 Category: Health Management Source Type: research

Correction to: Health-related quality of life in coronary heart disease: a systematic review and meta-analysis mapped against the International Classification of Functioning, Disability and Health
In the original publication of the article, the surname of one of the co-authors was misspelled as ‘Mpfou’. This has been updated in this correction. (Source: Quality of Life Research)
Source: Quality of Life Research - June 6, 2018 Category: Health Management Source Type: research

The impact of axial spondyloarthritis on quality of life (QoL): a comparison with the impact of moderate to end-stage chronic kidney disease on QoL
AbstractPurposeThe purpose of the study was to assess the impact of axial spondyloarthritis (axSpA) on patients ’ quality of life (QoL) compared to patients with moderate to end-stage chronic kidney disease (CKD).MethodsWe conducted secondary analysis of QoL data obtained from patients with axSpA and CKD from 2011 to 2014. QoL was assessed using the SF-36 version 2 and KDQoL-SF for patients with axSpA and CKD, respectively. Patients with CKD were subcategorized to CKD-pre-dialysis, hemodialysis (CKD-HD) and peritoneal dialysis (CKD-PD). Linear regression was used to compare QoL between patients with axSpA and CKD aft...
Source: Quality of Life Research - June 5, 2018 Category: Health Management Source Type: research

Validity of the PROMIS depression and anxiety common metrics in an online sample of Australian adults
ConclusionsThe results demonstrate the validity of generating PROMIS depression and anxiety scores from the PHQ-9, GAD-7 and K6 in an independent sample of Australians. The agreement between equated scores provides some assurance that researchers and clinicians can utilise the converted PHQ-9, GAD-7 and K6 scores on the PROMIS metrics without a substantial decrease in accuracy and precision at the group level. (Source: Quality of Life Research)
Source: Quality of Life Research - June 5, 2018 Category: Health Management Source Type: research

Effects of substance use screening and brief intervention on health-related quality of life
ConclusionsThese findings have implications for practice, as they suggest that brief substance abuse interventions delivered in the emergency department settings may have effects beyond those targeted by the intervention. Specifically, brief substance abuse interventions may positively impact mental health, thus enhancing the quality of life among targets of the intervention. (Source: Quality of Life Research)
Source: Quality of Life Research - June 5, 2018 Category: Health Management Source Type: research

The relationship between alexithymia and headache impact: the role of somatization and pain catastrophizing
ConclusionsHeadache patients may benefit from interventions aiming at improving psychological factors in order to improve the functioning and QOL of headache patients. (Source: Quality of Life Research)
Source: Quality of Life Research - June 4, 2018 Category: Health Management Source Type: research

Weak social networks and restless sleep interrelate through depressed mood among elderly
ConclusionsWeak social networks and restless sleep reciprocally influence each other through depressed mood. Recognition of this interplay can inform efforts in improving elderly ’s sleep quality, social networks, and psychological well-being. (Source: Quality of Life Research)
Source: Quality of Life Research - June 4, 2018 Category: Health Management Source Type: research

Trajectory of health-related quality of life and its determinants in patients who underwent lumbar spine surgery: a 1-year longitudinal study
AbstractPurposeThe purpose of the study was to investigate the trajectory and determinants of changes in health-related quality of life (HRQoL) in the first year after lumbar spine surgery.MethodsA total of 154 consecutive patients who underwent lumbar spine surgery were included in this prospective longitudinal observational study. All participants were asked to complete a battery of questionnaires (Taiwanese version of World Health Organization Quality of Life-BREF, Numerical Rating Scale for leg and back pain, Mandarin Chinese version of the Clinically Useful Depression Outcome Scale, and Chinese version of the Pittsbur...
Source: Quality of Life Research - June 2, 2018 Category: Health Management Source Type: research

Long-term quality of life improvement for chronic intractable back and leg pain patients using spinal cord stimulation: 12-month results from the SENZA-RCT
ConclusionsIn addition to superior pain relief, 10  kHz SCS provides long-term improvements in quality of life and functionality for subjects with chronic low-back and leg pain. Trial registration: ClinicalTrials.gov (NCT01609972). (Source: Quality of Life Research)
Source: Quality of Life Research - June 1, 2018 Category: Health Management Source Type: research

Cross-national health comparisons using the Rasch model: findings from the 2012 US Health and Retirement Study and the 2012 Mexican Health and Aging Study
This study creates a metric using Rasch analysis and determines the health of American and Mexican older adult populations.MethodsSecondary data analysis using representative samples aged 50 and older from 2012 U.S. Health and Retirement Study (n = 20,554); 2012 Mexican Health and Aging Study (n = 14,448). We developed a function measurement scale using Rasch analysis of 22 daily tasks and physical function questions. We tested psychometrics of the scale including factor analysis, fit statistics, internal consistency, and item difficulty. We investigated differences in function using m ultiple l...
Source: Quality of Life Research - May 10, 2018 Category: Health Management Source Type: research

Constant –Murley Score: systematic review and standardized evaluation in different shoulder pathologies
ConclusionsThe current evidence does not support the CMS as a gold standard in shoulder evaluation. Its use is advisable for subacromial pathology; but data are inconclusive for other shoulder conditions. Prospective studies exploring the psychometric properties of the scale, particularly for fractures, arthritis, instability and frozen shoulder are needed.Level of evidenceSystematic review. (Source: Quality of Life Research)
Source: Quality of Life Research - May 10, 2018 Category: Health Management Source Type: research

Quality of life, problems, and needs of disease-free breast cancer survivors 5  years after diagnosis
ConclusionsWhile QoL in disease-free breast cancer survivors 5  years post-diagnosis was largely comparable to the general population on average, still many survivors suffered from adverse effects. There appears to be a need for ongoing screening and support regarding fatigue, sleep problems, cognitive problems, arthralgia/pain, menopausal/sexual symptoms, phy sical performance, and weight problems during and several years following breast cancer therapy. (Source: Quality of Life Research)
Source: Quality of Life Research - May 8, 2018 Category: Health Management Source Type: research

Diabetic retinopathy and health-related quality of life among Chinese with known type 2 diabetes mellitus
ConclusionChinese T2DM patients with bilateral DR tend to report lower HRQOL scores compared with those without DR, especially in health problems associated with usual activities. (Source: Quality of Life Research)
Source: Quality of Life Research - May 8, 2018 Category: Health Management Source Type: research

Anxiety in the orthopedic patient: using PROMIS to assess mental health
ConclusionsOne in five new orthopedic patients reports Anxiety levels that may warrant intervention. This rate is heightened in patients needing spine care. Patient-reported Physical Function more strongly correlates with PROMIS Anxiety than Depression suggesting that the Anxiety CAT is a valuable addition to assess mental health among orthopedic patients.Level of EvidenceDiagnostic level III. (Source: Quality of Life Research)
Source: Quality of Life Research - May 8, 2018 Category: Health Management Source Type: research

Measuring quality of life in patients with stress urinary incontinence: is the ICIQ-UI-SF adequate?
This study conducts a comprehensive evaluation of the ICIQ-UI-SF on a sample of urological surgery patients in Canada.MethodsOne hundred and seventy-seven surgical patients with stress urinary incontinence completed the ICIQ-UI-SF pre-operatively. Methods drawing from confirmatory factor analysis (CFA), measures of reliability, item response theory (IRT), and differential item functioning were applied. Ceiling effects were examined.ResultsCeiling effects were identified. In the CFA, the factor loadings of items one and two differed significantly (p 
Source: Quality of Life Research - May 8, 2018 Category: Health Management Source Type: research

Psychometric evaluation of the Chinese version of the Child Health Utility 9D (CHU9D-CHN): a school-based study  in China
AbstractPurposeThe Child Health Utility 9D (CHU9D), a new generic preference-based health-related quality of life (HRQoL) instrument, was developed specifically for the application in cost-effectiveness analyses of treatments and interventions for children and adolescents. The main objective of this study was to examine the psychometric property of the Chinese version of CHU9D (CHU9D-CHN) in a large school-based sample in China.MethodsData were collected using a multi-stage sampling method from third-to-ninth-grade students in Shaanxi Province, China. Participants self-completed a hard-copy questionnaire including the CHU9...
Source: Quality of Life Research - May 5, 2018 Category: Health Management Source Type: research

Grooming a CAT: customizing CAT administration rules to increase response efficiency in specific research and clinical settings
AbstractPurposeTo evaluate the degree to which applying alternative stopping rules would reduce response burden while maintaining score precision in the context of computer adaptive testing (CAT).DataAnalyses were conducted on secondary data comprised of CATs administered in a clinical setting at multiple time points (baseline and up to two follow ups) to 417 study participants who had back pain (51.3%) and/or depression (47.0%). Participant mean age was 51.3  years (SD = 17.2) and ranged from 18 to 86. Participants tended to be white (84.7%), relatively well educated (77% with at least some college), fe...
Source: Quality of Life Research - May 5, 2018 Category: Health Management Source Type: research

The sensitivity of the MOS SF-12 and PROMIS ® global summary scores to adverse health events in an older cohort
ConclusionsThe SF-12 and PROMIS brief measures of physical and mental health assess related but distinct health constructs. However, they display comparable sensitivity to adverse health outcomes. Results from studies utilising the SF-12 and PROMIS global health measures should be compared with sensitivity to differences in the content and scoring of these measures. (Source: Quality of Life Research)
Source: Quality of Life Research - May 3, 2018 Category: Health Management Source Type: research

Prevalence of context effects: testing with a straightforward question of yesterday happiness
ConclusionsContext effects were still found for a measure of subjective wellbeing even when the effects were thought to be minimal. That said, the different influence of sadness versus boredom and anger suggests that there are ways to alleviate context effects. (Source: Quality of Life Research)
Source: Quality of Life Research - May 3, 2018 Category: Health Management Source Type: research

WHO disability assessment schedule 2.0 is related to upper and lower extremity disease-specific quality of life
AbstractPurposeWe evaluated whether two disease-specific quality of life instruments (Disabilities of the Arm, Shoulder and Hand, DASH and Western Ontario& McMaster Universities Osteoarthritis Index, WOMAC) reflect a patient ’s perception of general disability using the WHO Disability Assessment Schedule 2.0 (WHODAS 2.0) and determined whether disability components are explained by upper and lower extremity HRQOL.MethodsWe recruited 421 participants, 50  years or older without stroke, cancer, or history of surgery for musculoskeletal disease, who participated in the NAMGARAM Cohort. Upper extremity HRQOL was...
Source: Quality of Life Research - May 2, 2018 Category: Health Management Source Type: research

Norwegian reference values for the Short-Form Health Survey 36: development over time
AbstractPurposeReference values for patient-reported outcome measures are useful for interpretation of results from clinical trials. The study aims were to collect Norwegian SF-36 reference values and compare with data from 1996 to 2002.MethodsIn 2015, SF-36 was sent by mail to a representative sample of the population (N = 6165). Time trends and associations between background variables and SF-36 scale scores were compared by linear regression models.ResultsThe 2015 response rate was 36% (N = 2118) versus 67% (N = 2323) in 1996 and 56% (N = 5241) in 2002. Only 5% of the youngest (18...
Source: Quality of Life Research - April 10, 2018 Category: Health Management Source Type: research

The association of alcohol use and quality of life in depressed and non-depressed individuals: a cross-sectional general population study
ConclusionsOf the alcohol-related variables, binge drinking and alcohol problems indicated by AUDIT-score contributed to impaired QoL in depressed individuals and both should be assessed as part of the clinical management of depression. (Source: Quality of Life Research)
Source: Quality of Life Research - April 10, 2018 Category: Health Management Source Type: research