Log in to search using one of your social media accounts:

 

Lifetime traumatic events, health-related quality of life, and satisfaction with life in older adults
AbstractPurposesThe aims were to assess the association between lifetime traumatic events and post-traumatic stress syndrome (PTSS) and health-related quality of life (HRQOL) and satisfaction with life stratified by gender among a community-dwelling sample of older adults.MethodsData used came from the ESA-Services study (2011 –2013) and included a large convenience sample of 1811 older adults. Traumatic events were measured using a list of 14 events. PTSS was measured using the Impact of Event Scale-Revised. HRQOL and life satisfaction were measured with the EQ-5D-3L and the Satisfaction With Life Scale. Multivariat...
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

The impact of older person ’s frailty on the care-related quality of life of their informal caregiver over time: results from the TOPICS-MDS project
ConclusionsHealth professionals observing decreasing psychological well-being of an older person and increasing hours of informal care provision should be aware of the considerable problems this may bring to their informal caregiver, and should tailor interventions to support informal caregivers according to their specific needs and problems. (Source: Quality of Life Research)
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Relationships between environmental factors and participation in adults with traumatic brain injury, stroke, and spinal cord injury: a cross-sectional multi-center study
AbstractPurposeTo develop and evaluate a model of environmental factors-participation relationships for persons with traumatic brain injury (TBI), stroke, and spinal cord injury (SCI), and test whether this model differed across three diagnostic groups, as well as other demographic and clinical characteristics.MethodsA cross-sectional observational study included 545 community-dwelling adults with neurological disorders (TBI  = 166; stroke = 189; SCI = 190) recruited at three academic medical centers. Participants completed patient-reported measures of environmental factors and participation.R...
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors ’ social participation
ConclusionsThe LIBRE Profile is a promising new measure of social participation following a burn injury that enables burn survivors and their care providers to measure social participation. (Source: Quality of Life Research)
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Associations between illness duration and health-related quality of life in specified mental and physical chronic health conditions: results from a population-based survey
AbstractPurposeWe compared health-related quality of life (HRQOL) in incident ( ≤1 year since diagnosis), mid-term (>1 –5 years since diagnosis), and long-term (>5  years since diagnosis) cases of mental and physical chronic illness with the general population and assessed the modifying effects of age and gender on the association between HRQOL and illness duration.MethodsData from the 2007 Australian National Health and Mental Wellbeing Survey were used. HRQOL was captured by the Assessment of Quality of Life Scale 4D. Multivariable linear regression analyses compared HRQOL of individuals wit...
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Relationship between subjective and actigraphy-measured sleep in 237 patients with metastatic colorectal cancer
ConclusionsSubjective report of sleep problems was not associated with worse objectively measured sleep parameters in patients with MCC although it was associated with disrupted circadian rest-activity rhythm and poorer QOL. These findings coincide with prior research in cancer patients in that an inconsistent relationship exists between subjective and objective sleep measurements on some sleep domains. This study supports the value of coupled evaluation of self-reported and objective measures of sleep and circadian function in cancer patients. (Source: Quality of Life Research)
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Does exercise training augment improvements in quality of life induced by energy restriction for obese populations? A systematic review
ConclusionsA definitive conclusion regarding the capacity of exercise to facilitate greater improvement in HRQOL than diet alone, or, to formulate an exercise prescription for obese adults to address HRQOL is not feasible based on the existing evidence. Future studies should utilise comparable HRQOL assessment tools along with ensuring full reporting of results. (Source: Quality of Life Research)
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Tooth loss and general quality of life in dentate adults from Southern Brazil
ConclusionsOral health as measured by tooth loss was associated with negative impacts on general quality of life assessed by the WHOQOL-BREF. There was a lack of evidence that SDA is a condition that negatively affects general quality of life. (Source: Quality of Life Research)
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Comparison of quality of life among community-dwelling older adults with the frailty phenotype
AbstractPurposeTo compare the perception of the quality of life (QOL) of community-dwelling older adults with the phenotype of frailty.MethodsCross-sectional analysis of baseline data of the “Cohort of Obesity, Sarcopenia and Frailty of Mexican Older Adults” (COSFOMA). Operationalization of frailty was carried out using the phenotype as follows: weight loss, self-report of exhaustion, low physical activity, slow gait, and weakness. QOL was measured using two scales: World Health Org anization Quality of Life of Older Adults (WHOQOL-OLD), which is a specific instrument for the elderly population, and Short Form-...
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Enrollment in early head start and oral health-related quality of life
ConclusionsThis study is the first to demonstrate that families of young children enrolled in EHS report improved OHRQoL compared to their non-enrolled peers. These results highlight the potential effectiveness of improving the quality of life of low-resource families through early childhood education. (Source: Quality of Life Research)
Source: Quality of Life Research - September 13, 2017 Category: Health Management Source Type: research

Everyday life following hematopoietic stem cell transplantation: decline in physical symptoms within the first month and change-related predictors
AbstractPurposeLower quality of life, especially in the physical domain (Physical-QOL), is common in patients after hematopoietic stem cell transplantation (HSCT). However, few studies explore changes in the Physical-QOL, i.e., physical symptoms, in everyday life of patients following HSCT. The present study addresses this gap by examining patient daily physical symptoms and their predictors in terms of demographic and clinical characteristics.MethodsPhysical symptoms were reported by 188 patients (56.9% men; aged 47.6  ± 13.4 years) for 28 consecutive days after post-HSCT hospital discharge. Mult...
Source: Quality of Life Research - September 12, 2017 Category: Health Management Source Type: research

Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders
ConclusionThis study demonstrates some impairments in HRQOL and self-esteem in YA men with bleeding disorders. By monitoring HRQOL, problems can be identified early, especially with regard to their physical and professional/school functioning. (Source: Quality of Life Research)
Source: Quality of Life Research - September 12, 2017 Category: Health Management Source Type: research

Author index
(Source: Quality of Life Research)
Source: Quality of Life Research - September 12, 2017 Category: Health Management Source Type: research

24th Annual Conference of the International Society for Quality of Life Research
(Source: Quality of Life Research)
Source: Quality of Life Research - September 12, 2017 Category: Health Management Source Type: research

Perceived medication adherence barriers mediating effects between gastrointestinal symptoms and health-related quality of life in pediatric inflammatory bowel disease
AbstractObjectivesThe primary objective was to investigate the mediating effects of patient-perceived medication adherence barriers in the relationship between gastrointestinal symptoms and generic health-related quality of life (HRQOL) in adolescents with inflammatory bowel disease (IBD). The secondary objective explored patient health communication and gastrointestinal worry as additional mediators with medication adherence barriers in a serial multiple mediator model.MethodsThe Pediatric Quality of Life Inventory ™ Gastrointestinal Symptoms, Medicines, Communication, Gastrointestinal Worry, and Generic Core Scales...
Source: Quality of Life Research - September 8, 2017 Category: Health Management Source Type: research

Cross-cultural adaptation and measurement properties of generic and cancer-related patient-reported outcome measures (PROMs) for use with cancer patients in Brazil: a systematic review
ConclusionsThis review aids the selection process of Brazilian Portuguese PROMs for use in cancer patients. After acknowledging the methodological caveats and strengths of each tool, our opinion is that for quality of life and symptoms assessment the adapted FACT-G version and the ESAS could be recommended, respectively. Future research should rely on the already accepted standards of CCA and validation studies. (Source: Quality of Life Research)
Source: Quality of Life Research - September 8, 2017 Category: Health Management Source Type: research

How is weight stigma related to children ’s health-related quality of life? A model comparison approach
ConclusionsThe mediation model provided the best fitting and more parsimonious representation of the relations between body weight, stigma experiences, and HRQoL, meaning that an increased likelihood of experiencing weight-based teasing episodes, rather than excess weight per se, is associated with reduced quality of life in middle childhood. (Source: Quality of Life Research)
Source: Quality of Life Research - September 7, 2017 Category: Health Management Source Type: research

Assessing responsiveness over time of the PROMIS ® pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease
This study evaluated the ability of the PROMIS Pediatric measures to detect change over time in children and adolescents with cancer, nephrotic syndrome (NS), or sickle cell disease (SCD).MethodsParticipants (8 –17 years) completed measures of fatigue, pain interference, anger, anxiety, depressive symptoms, mobility, upper extremity, and peer relationships at three or four time points (T1–T4). Between T1 and T2, children with cancer received chemotherapy and children with SCD experienced a pain exacer bation. Children with NS were first assessed during active disease (T2), with T3 and T4 conducted at disea...
Source: Quality of Life Research - September 7, 2017 Category: Health Management Source Type: research

One question might be capable of replacing the Shoulder Pain and Disability Index (SPADI) when measuring disability: a prospective cohort study
ConclusionThe single question is a reasonable substitute for the SPADI and can be used as a screening instrument for shoulder disability in primary clinical practice. It has slightly poorer predictive power and should therefore not be used for prognosis. (Source: Quality of Life Research)
Source: Quality of Life Research - September 7, 2017 Category: Health Management Source Type: research

Prevalence of patient-reported gastrointestinal symptoms and agreement with clinician toxicity assessments in radiation therapy for anal cancer
ConclusionsAcute GI toxicity during definitive CRT for anal cancer was most significant during weeks 4 –5, while rectal bleeding improved during treatment. Discrepancies in patient- and clinician-reported symptoms demonstrate the potential for patient-reported outcomes to be useful tools for anal cancer clinical assessments. (Source: Quality of Life Research)
Source: Quality of Life Research - September 7, 2017 Category: Health Management Source Type: research

Assessing reserve-building pursuits and person characteristics: psychometric validation of the Reserve-Building Measure
ConclusionsThe Reserve-Building Measure provides a measure of activities and person-factors related to reserve that may potentially be useful in prospective research. (Source: Quality of Life Research)
Source: Quality of Life Research - September 6, 2017 Category: Health Management Source Type: research

Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
ConclusionsThis systematic review aids pediatric oncology researchers in identifying and selecting appropriate symptom measures with strong psychometric evidence for their studies. Enhancing the child ’s voice in pediatric oncology research studies allows us to better understand the impact of cancer and its treatment on the lives of children. (Source: Quality of Life Research)
Source: Quality of Life Research - September 6, 2017 Category: Health Management Source Type: research

Differential item functioning by language on the PROMIS ® physical functioning items for children and adolescents
ConclusionsThe results of this study provide support for measurement equivalence of self-reports of physical functioning by children and adolescents who completed the English- and Spanish-language surveys. Future analyses are needed to replicate the results of this study in other samples. (Source: Quality of Life Research)
Source: Quality of Life Research - September 5, 2017 Category: Health Management Source Type: research

Assessing health-related quality of life in patients with breast cancer: a reply to Maratia et al
(Source: Quality of Life Research)
Source: Quality of Life Research - September 5, 2017 Category: Health Management Source Type: research

Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L in psoriasis patients
ConclusionsThe EQ-5D-5L seems to improve measurement properties by reducing ceiling effects, strengthening correlations with PASI and improving informativity. Follow-up studies are needed to test responsiveness and reliability in psoriasis. (Source: Quality of Life Research)
Source: Quality of Life Research - September 5, 2017 Category: Health Management Source Type: research

Self-rated health as a predictor of mid-term and long-term mortality in older Afro-Caribbeans hospitalised via the emergency department
ConclusionAssessment of SRH could have implications for clinical practice, particularly in helping practitioners to better estimate prognosis in the acute care settings. (Source: Quality of Life Research)
Source: Quality of Life Research - September 1, 2017 Category: Health Management Source Type: research

Development and initial validation of a short three-dimensional inventory of character strengths
ConclusionsTICS is expected to be used for screening populations at risk, and a tool to aid mental health professionals in group-based treatment/intervention planning. It also should be noted that this short inventory should be used with caution for individual decision making. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Parent-reported cognitive function is associated with leukoencephalopathy in children with brain tumors
ConclusionThis study demonstrates that the pedsPCF is a valid indicator of leukoencephalopathy and provides support for its use as a screening tool for more comprehensive neurocognitive testing. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Depression severity and concentration difficulties are independently associated with HRQOL in patients with unipolar depressive disorders
AbstractPurpose Cognitive impairment is a core feature of major depressive disorder (MDD), and dysfunctions in this area strongly contribute to MDD-associated disability. Whether cognitive impairment has an independent clinical course and a unique impact on HRQOL is still debated. We sought to characterize the relationship between depression severity and HRQOL, evaluating the burden of concentration difficulties on HRQOL.MethodsSix hundred ninety-two  patients with unipolar depressive disorders recruited in 19 Italian centers answered a self-administered survey (SF-12 questionnaire, socio-demographic information). A...
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

The efficacy of Guolin-Qigong on the body-mind health of Chinese women with breast cancer: a randomized controlled trial
This study was to evaluate the efficacy of a complementary Chinese treatment modality Guolin-Qigong (GLQG) for patients with breast cancer on the body-mind health.MethodsA randomized controlled clinical trial was conducted among 158 women with breast cancer. Subjects were randomized to receive GLQG (test group) versus a physical stretching program (control group) following conventional treatment for breast cancer. GLQG and stretching interventions were performed twice a week over 24  weeks. The primary outcome was the change in quality of life (QoL). Secondary outcome measures included anxiety, depression, and clinica...
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure
ConclusionsThe Hemophilia Caregiver Impact measure is a useful new tool for clinical research on hemophilia. In addition to having eight relevant subscales, the measure can also be summarized with two scores. This versatility can be useful in analyzing studies with very small samples, which is to be expected when dealing with a rare condition like hemophilia. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Measurement of quality of life and attitudes towards illness in children and young people with chronic kidney disease
AbstractPurposeChronic kidney disease (CKD) can place restrictions upon biopsychosocial development in children; consequently, assessment of self-reported quality of life (QoL) is important in patient evaluations. This research aimed to evaluate a generic and renal-specific self-report QoL scale, assess children ’s attitudes towards living with CKD and propose an appropriate tool for future individual clinical use or departmental audit.MethodsSeventy-one children (41 male, 30 female; mean age  = 13.60 years, range = 6.00–18.96) with CKD completed the Generic Children’s QoL Measure...
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

The association between fear of cancer recurrence and quality of life among Chinese cancer survivors: main effect hypothesis and buffering hypothesis
ConclusionsFindings largely supported the main effect hypothesis. FCR was associated with diverse domains of HRQOL among Chinese cancer survivors. The buffering hypothesis was largely not supported in this population. Rather, in some cases, the effects of FCR and coping strategies on HRQOL were independent. Thus, ways to attenuate the harmful effects of FCR on HRQOL among Chinese cancer survivors remain unresolved. It is urgent and timely that future studies focus on FCR and HRQOL in this population. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Quality of life among perinatally HIV-affected and HIV-unaffected school-aged and adolescent Ugandan children: a multi-dimensional assessment of wellbeing in the post-HAART era
ConclusionPHEU and HUU had similar QOL profile but PHIV predicted sustained deficits in multiple QOL domains. PHIV and PHEU children were similar with respect to general wellbeing and present functioning. Psychosocial and scholastic interventions in combination with HIV care are likely to improve QOL in PHIV. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Income and health-related quality of life among prostate cancer patients over a one-year period after radical prostatectomy: a linear mixed model analysis
ConclusionsOne year after surgery, income-related disparities in various dimensions of HRQOL persist. With respect to economically disadvantaged PCa patients, the findings emphasize the importance of continuous psychosocial screening and tailored interventions, of patients ’ empowerment and improved access to supportive care. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Online support groups for head and neck cancer and health-related quality of life
AbstractPurposeTo investigate the association between using online support groups (OSGs) and health-related quality of life (HRQoL), and the psychosocial factors that may influence this association among individuals with head and neck (H&N) cancer.MethodA sample of 199 persons with H&N cancer using four OSGs completed an online questionnaire using six pre-validated measures for social network, self-efficacy, anxiety and depression, adjustment, empowerment and quality of life. In addition, socio-demographic as well as illness-related and OSGs-related information was collected.ResultsParticipants who had better HRQoL...
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Making decisions about breast reconstruction: A systematic review of patient-reported factors influencing choice
ConclusionsUnderstanding women ’s reasons for wanting or not wanting BR can assist clinicians to help women make choices most aligned with their individual values and needs. Our thematic findings have equity implications and illustrate the need for surgeons to discuss all clinically appropriate BR options with mastectomy patien ts, even if some options are not available locally. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Use of large-scale HRQoL datasets to generate individualised predictions and inform patients about the likely benefit of surgery
ConclusionsPatients are heterogeneous in their expected benefit from surgery, and decision aids should reflect this. Large administrative datasets on HRQoL can be used to generate the required individualised predictions to inform patients. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Impact of an electronic monitoring device and behavioral feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial
ConclusionsParticipants receiving MI  + EM experienced worsening on objective measures of adherence and increased parental involvement, but improved on some self- and parent-reported measures. MI participants reported improvements in quality of life and self-efficacy, but worsened well-being. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

The patient ’s experience of primary ciliary dyskinesia: a systematic review
ConclusionHealth-related quality of life decreases with age in patients with PCD. For all age groups, PCD was found to greatly impact physical, emotional, social functioning, and treatment burden. More research is needed on the psychosocial impact of the illness, disease burden and its effect on quality of life. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

The relationship between internalized stigma and quality of life among people with mental illness: are self-esteem and sense of coherence sequential mediators?
ConclusionsSelf-esteem and SOC are personal resources that should be considered as potential targets of interventions aiming to prevent the harmful consequences of internalized stigma for the QoL of people receiving psychiatric treatment. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Assessment of apathy minimising the effect of motor dysfunctions in Parkinson ’s disease: a validation study of the dimensional apathy scale
ConclusionsThe DAS is a valid and reliable tool to assess multidimensional apathy in PD, independently of severity of motor symptoms. Reduced initiation of thought and behaviour and emotional blunting characterised PD patients, without confounding effects of motor disability. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Further evidence on EQ-5D-5L preference inversion: a Brazil/U.S. collaboration
ConclusionsThis evidence confirms previous findings for the U.S. English version of the EQ-5D-5L and led to a relabeling on the Portuguese version. It demonstrates the usefulness of collaboration between psychometric, econometric, and linguistic experts in developing the wording for and translating preference-based measures of health-related quality of life. Further research may explore inversions in other translations. The authors recommend that preference inversion tests should be included in the development and translation process. (Source: Quality of Life Research)
Source: Quality of Life Research - August 9, 2017 Category: Health Management Source Type: research

Differences in quality of life between Jewish and Arab patients on hemodialysis
AbstractPurposeHigher health-related quality of life (HRQOL) in dialysis patients has been associated with fewer hospitalizations and lower mortality. Since Arab patients on dialysis have better survival rates than Jewish patients, we hypothesized that they would have higher HRQOL. We also studied the impact of several risk factors on HRQOL in each population.MethodsBased on a national dialysis registry, patients from 64 hemodialysis units were recruited to participate. Patients who consented were interviewed face-to-face, using the Kidney Disease Quality of Life Short Form (KDQOL-SF36) questionnaire.ResultsFive hundred an...
Source: Quality of Life Research - August 8, 2017 Category: Health Management Source Type: research

A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers
ConclusionsThese findings highlight the importance of considering the wider impact beyond the individual of long-term care on quality of life in the evaluation of long-term care policy and practice. (Source: Quality of Life Research)
Source: Quality of Life Research - August 7, 2017 Category: Health Management Source Type: research

The role of dual diagnosis in health-related quality of life among treatment-seeking patients in Spain
ConclusionThese findings emphasize the significance of dual diagnosis in the impairment of HRQoL in substance-dependent patients, particularly with regard to mental component. In addicted patients with low scores on SF-36, psychiatric comorbidity should be evaluated and treated in an integrated approach. (Source: Quality of Life Research)
Source: Quality of Life Research - August 7, 2017 Category: Health Management Source Type: research

Standardization of health outcomes assessment for depression and anxiety: recommendations from the ICHOM Depression and Anxiety Working Group
ConclusionAn international standard of health outcomes assessment has the potential to improve clinical decision making, enhance health care for the benefit of patients, and facilitate scientific knowledge. (Source: Quality of Life Research)
Source: Quality of Life Research - August 7, 2017 Category: Health Management Source Type: research

Health-related quality of life in Spanish informal caregivers: gender differences and support received
ConclusionsMale and female caregivers in Spain differ in received support and how their HRQoL is affected. These differences are important to design interventions to promote more equitable sharing of care responsibilities and better caregiver health. (Source: Quality of Life Research)
Source: Quality of Life Research - August 5, 2017 Category: Health Management Source Type: research

The significance of frailty in the relationship between socioeconomic status and health-related quality of life in the Korean community-dwelling elderly population: mediation analysis with bootstrapping
ConclusionFrailty has a significant negative influence on HRQOL in the community-based elderly population, and acts as a mediator between SES and HRQOL. As a mediator, income can explain educational difference related with the frailty. (Source: Quality of Life Research)
Source: Quality of Life Research - August 3, 2017 Category: Health Management Source Type: research

The Minneapolis-Manchester Quality of Life Instrument: reliability and validity of the Adult Form in cancer survivors
ConclusionsThe MMQL-Adult Form is a reliable and valid self-report instrument for measuring multidimensional HRQL in cancer survivors. Development of this instrument ensures availability of a tool enabling cross-sectional and longitudinal assessment of HRQL in childhood cancer survivors as they age. (Source: Quality of Life Research)
Source: Quality of Life Research - August 2, 2017 Category: Health Management Source Type: research