Pediatric Chronic Critical Illness: Training teams to address the communication challenges of patients with repeated and prolonged hospitalizations
Children with chronic critical illness (CCI) have repeated and prolonged hospitalizations. Discrete communication challenges characterize their inpatient care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 11, 2020 Category: Palliative Care Authors: Renee D. Boss, Ryan S. Hirschfeld, Barone Silvana, Johnson Emily, Robert M. Arnold Tags: Original Article Source Type: research

Human Touch via Touchscreen: Rural Nurses' Experiential Perspectives on Telehealth Use in Pediatric Hospice Care
Telemedicine has the potential to extend care reach and access to home-based hospice services for children. Few studies have explored nurse perspectives regarding this communication modality for rural pediatric cohorts. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 7, 2020 Category: Palliative Care Authors: Meaghann S. Weaver, Marie L. Neumann, Hema Navaneethan, Jacob E. Robinson, Pamela S. Hinds Tags: Brief Report Source Type: research

Using telehealth for hospice reauthorization visits: results of a quality improvement analysis
Increasing hospice need, a growing shortage of hospice providers, and concerns about in-person services due to COVID-19 require hospices to innovate care delivery. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 7, 2020 Category: Palliative Care Authors: Susan L. Moore, Jennifer Dickman Portz, Melodie Santodomingo, Kira Elsbernd, Michael McHale;, John Massone Source Type: research

Human Touch via Touchscreen: Rural nurses ’ experiential perspectives on telehealth use in pediatric hospice care
Telemedicine has the potential to extend care reach and access to home-based hospice services for children. Few studies have explored nurse perspectives regarding this communication modality for rural pediatric cohorts. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 7, 2020 Category: Palliative Care Authors: Meaghann S. Weaver, Marie L. Neumann, Hema Navaneethan, Jacob E. Robinson, Pamela S. Hinds Source Type: research

Engaging Hospices in Quality Measurement and Improvement: Early Experiences of a Large Integrated Healthcare System
The quality of hospice care remains highly variable in the United States. Patients, providers, and healthcare systems lack a comprehensive method of measuring the quality of care provided by an individual hospice. Partners HealthCare sought to assess hospice quality based on objective and quantitative criteria obtained directly from hospices and through public reporting. Here we describe the process of creating and administering this assessment, and the initial creation of a collaborative network with high quality hospices. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 5, 2020 Category: Palliative Care Authors: Richard E. Leiter, Charles T. Pu, Emanuele Mazzola, Julia Gallagher, Jennifer Wright, Shekinah Manigault, Susan T. Moore, Rachelle Bernacki Source Type: research

Minimal clinically important differences and feasibility of Dyspnea-12 and the Multidimensional Dyspnea Profile in cardiorespiratory disease
D12 and MDP are responsive to change and feasible for use for assessing multidimensional breathlessness in outpatients with cardiorespiratory disease. MCIDs were determined for use as endpoints in clinical trials. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 5, 2020 Category: Palliative Care Authors: Magnus Ekstr öm, Hans Bornefalk, C. Magnus Sköld, Christer Janson, Anders Blomberg, Anna Bornefalk-Hermansson, Helena Igelström, Jacob Sandberg, Josefin Sundh Source Type: research

Feasibility and Acceptability of Inpatient Palliative Care E-Family Meetings During COVID-19 Pandemic
We describe implementation of telemedicine to facilitate electronic family (e-family) meetings to facilitate in-patient palliative care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 4, 2020 Category: Palliative Care Authors: Joanne G. Kuntz, Dio Kavalieratos, Gregory J. Esper, Noble Ogbu, Julie Mitchell, C. McLean Ellis Source Type: research

National outreach of telepalliative medicine volunteers for a New York City safety net system COVID-19 pandemic response
The COVID-19 surge in New York City created an increased demand for palliative care (PC) services. In staff-limited settings such as safety net systems, and amid growing reports of healthcare worker illness, leveraging help from less-affected areas around the country may provide an untapped source of support. A national social media outreach effort recruited 413 telepalliative medicine volunteers (TPMV). After expedited credentialing and onboarding of 67 TPMV, a 2-week pilot was initiated in partnership with five public health hospitals without any previous existing telehealth structure. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 29, 2020 Category: Palliative Care Authors: Sigal Israilov, Mona Krouss, Milana Zaurova, Hillary S. Jalon, Georgia Conley, Pavel Shulman, Marina Ivanyuk, Elizabeth Jalkut, Carla Saladini-Aponte, Haseen Sharma-Cooper, Robert Smeltz, Robert T. Faillace, Eric K. Wei, Hyung J. Cho Tags: COVID-19 for Fast Track Publication Source Type: research

Methylphenidate as needed for fatigue in patients with advanced cancer. A prospective, double-blind, placebo-controlled study
Cancer related fatigue is a highly prevalent symptom with a strong negative impact on patients' daily life. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 25, 2020 Category: Palliative Care Authors: Lise Pedersen, Line Lund, Morten Aa. Petersen, Per Sjogren, Mogens Groenvold Source Type: research

Association between “Unacceptable Condition” Expressed in Palliative Care Consultation before Left Ventricular Assist Device Implantation and Care Received at the End of Life
Palliative care consultation before left ventricular assist device (LVAD) surgery (PreVAD) has been recommended, but its impact on goal concordant care is unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 25, 2020 Category: Palliative Care Authors: Shunichi Nakagawa, Hiroo Takayama, Koji Takeda, Veli K. Topkra, Lauren Yuill, Suzanne Zampetti, Katherine McLaughlin, Melana Yuzefpolskaya, Paolo C. Colombo, Yoshifumi Naka, Nir Uriel, Craig D. Blinderman Source Type: research

Complexities and Constraints in End-of-Life Care for Hospitalized Prisoner Patients
Managing the care of an increasing and aging prisoner population, including providing palliative and end-of-life care, is a challenge worldwide. There is little known about the views of health professionals who provide palliative care to hospitalized prisoner patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 24, 2020 Category: Palliative Care Authors: Stacey Panozzo, Tamsin Bryan, Anna Collins, David Marco, Carrie Lethborg, Jennifer A. Philip Tags: Original Article Source Type: research

Complexities and constraints in end of life care for hospitalised prisoner patients
Managing the care of an increasing and ageing prisoner population, including providing palliative and end of life care, is a challenge worldwide. There is little known about the views of health professionals who provide palliative care to hospitalised prisoner patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 24, 2020 Category: Palliative Care Authors: Stacey Panozzo, Tamsin Bryan, Anna Collins, David Marco, Carrie Lethborg, Jennifer A. Philip Source Type: research

Development of a Palliative Care Toolkit for the COVID-19 Pandemic
The COVID-19 pandemic has led to high numbers of critically ill and dying patients in need of expert management of dyspnea, delirium, and serious illness communication. The rapid spread of SARS-CoV-2 creates surges of infected patients requiring hospitalization and puts palliative care programs at risk of being overwhelmed by patients, families, and clinicians seeking help. In response to this unprecedented need for palliative care, our program sought to create a collection of palliative care resources for non-palliative care clinicians. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 23, 2020 Category: Palliative Care Authors: Jane deLima Thomas, Richard E. Leiter, Janet L. Abrahm, Jaclyn C. Shameklis, Stephanie B. Kiser, Samantha L. Gelfand, Kate R. Sciacca, Barbara Reville, Callie A. Siegert, Haipeng Zhang, Lucinda Lai, Rintaro Sato, Lorie N. Smith, Mihir M. Kamdar, Lauren Gr Source Type: research

Palliative Care Utilization among Patients with COVID-19 in an Underserved Population: A Single-Center Retrospective Study
As healthcare institutions mobilize resources to address the coronavirus disease 2019 (COVID-19) pandemic, palliative care may potentially be underutilized. It is important to assess the use of palliative care in response to the COVID-19 pandemic. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 23, 2020 Category: Palliative Care Authors: Ali Haydar, Kevin Bryan Lo, Abhinav Goyal, Fahad Gul, Eric Peterson, Ruchika Bhargav, Robert DeJoy, Grace Salacup, Jerald Pelayo, Jeri Albano, Zurab Azmaiparashvili, Huma Ansari, Gabriel Patarroyo Aponte Source Type: research

Goals-of-Care Consultation Associated with Increased Hospice Enrollment Among Propensity-Matched Cohorts of Seriously Ill African American and White Patients
African Americans are less likely to receive hospice care and more likely to receive aggressive end-of-life care than Whites. Little is known about how palliative care consultation to discuss goals-of-care (hereafter “PCC”) is associated with hospice enrollment by race. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 22, 2020 Category: Palliative Care Authors: Lauren T. Starr, Connie M. Ulrich, Paul Junker, Scott M. Appel, Nina R. O ’Connor, Salimah H. Meghani Tags: Brief Report Source Type: research

Parent Perceptions of Team-Delivered Care for Children with Advanced Cancer: A report from the PediQUEST study
Childhood cancer care is delivered by interprofessional healthcare teams however little is known about how parents perceive overall team-delivered care (TDC). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 21, 2020 Category: Palliative Care Authors: Angela M. Feraco, Prasanna Ananth, Veronica Dussel, Hasan Al-Sayegh, Clement Ma, Abby R. Rosenberg, Chris Feudtner, Joanne Wolfe Tags: Brief Report Source Type: research

An Integrative Framework of Appraisal and Adaptation in  Serious Medical Illness
Multiple randomized clinical trials have demonstrated that palliative care improves the quality of life of individuals with serious medical illness. Research also suggests that in patients with advanced cancer, palliative care's focus on symptom management, coping with illness, goals of care, and treatment decisions may be associated with improved patient quality of life in part by increasing patients' use of active (vs. passive) and approach-oriented (vs. avoidant) coping strategies. However, without a framework outlining the process that individuals with serious medical illness and their loved ones undergo, it is challen...
Source: Journal of Pain and Symptom Management - May 20, 2020 Category: Palliative Care Authors: Kathleen E. Bickel, Cari Levy, Edward R. MacPhee, Keri Brenner, Jennifer S. Temel, Joanna J. Arch, Joseph A. Greer Tags: Special Article Source Type: research

Gaps in Opioid Prescription for Severe Breathlessness in Hospitalized Patients With Chronic Obstructive Pulmonary Disease or Interstitial Lung Disease
Breathlessness is the predominant and debilitating symptom in patients with advanced chronic respiratory diseases, including chronic obstructive pulmonary disease (COPD) and interstitial lung disease (ILD). The chronic breathlessness syndrome has recently been defined as breathlessness at rest or on exertion that leads to disability, despite optimal medical treatment.1 In addition to conventional disease-directed therapy, there is conflicting evidence suggesting (and some guidelines recommend) that low-dose oral opioids may be useful for palliating chronic severe breathlessness in patients with ILD and stable outpatients w...
Source: Journal of Pain and Symptom Management - May 20, 2020 Category: Palliative Care Authors: Xinye Chen, Darran Treanor, Brian Le, Natasha Smallwood Tags: Letter Source Type: research

Gaps in opioid prescription for severe breathlessness in hospitalised patients with chronic obstructive pulmonary disease or interstitial lung disease
Breathlessness is the predominant and debilitating symptom in patients with advanced chronic respiratory diseases, including COPD and ILD. The “chronic breathlessness syndrome” has recently been defined as breathlessness at rest or on exertion that leads to disability, despite optimal medical treatment (1). In addition to conventional disease-directed therapy, there is conflicting evidence suggesting (and some guidelines recommend) low -dose, oral opioids may be useful for palliating chronic severe breathlessness in ILD patients and stable outpatients with advanced COPD (2-5). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 20, 2020 Category: Palliative Care Authors: Xinye Chen, Darran Treanor, Brian Le, Natasha Smallwood Tags: Letter Source Type: research

Hyperactive Delirium Requires More Aggressive Management in Patients with COVID-19: Temporarily Rethinking “Low and Slow”
Delirium is a common symptom in patients admitted to our hospital with COVID-19, and in cases of hyperactive delirium we have frequently observed behaviors that pose a significant risk of disease transmission to health care providers. Managing this symptom has emerged as an important challenge, as our local health care system has been strained by providers becoming sick or quarantined. Preventative and non-pharmacologic interventions remain critical for managing delirium in such patients, though occasionally pharmacologic treatment is required. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 20, 2020 Category: Palliative Care Authors: Barton J. Sanders, Melissa Bakar, Sonal Mehta, M. Carrington Reid, Eugenia L. Siegler, Robert C. Abrams, Ronald D. Adelman, Mark S. Lachs Source Type: research

An Integrative Framework of Appraisal and Adaptation in Serious Medical Illness
Multiple randomized clinical trials have demonstrated that palliative care improves the quality of life of individuals with serious medical illness. Research also suggests that in patients with advanced cancer, palliative care ’s focus on symptom management, coping with illness, goals of care, and treatment decisions may be associated with improved patient quality of life in part by increasing patients’ use of active (versus passive) and approach-oriented (versus avoidant) coping strategies. However, without a framewo rk outlining the process that individuals with serious medical illness and their loved ones un...
Source: Journal of Pain and Symptom Management - May 20, 2020 Category: Palliative Care Authors: Kathleen E. Bickel, Cari Levy, Edward R. MacPhee, Keri Brenner, Jennifer S. Temel, Joanna Arch, Joseph A. Greer Tags: Special Article Source Type: research

Quality of life changes with duration of chronic breathlessness: a random sample of community-dwelling people
Chronic breathlessness is associated with poorer quality of life. This population study aimed to define dimensions of quality of life (QoL), and duration and dominant causes of breathlessness that most diminished QoL. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 19, 2020 Category: Palliative Care Authors: David C. Currow, Sungwon Chang, Eleonora Dal Grande, Diana H. Ferreira, Slavica Kochovska, Irina Kinchin, Miriam J. Johnson, Magnus Ekstrom Source Type: research

Gaining Palliative Medicine subspecialty recognition and Fellowship Accreditation in Jordan
Palliative medicine has gained subspecialty recognition in many countries over the past two decades. Jordan is one of the first Arab countries to gain accreditation for the specialty. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 19, 2020 Category: Palliative Care Authors: Omar Shamieh, Kathryn Richardson, Hikmat Abdel-Razeq, Asem Mansour, Sheila Payne Source Type: research

COVID-19 Lessons: The Alignment of Palliative Medicine and Trauma-Informed Care
As the COVID-19 pandemic wears on, its psychological, emotional, and existential toll continues to grow and indeed may now rival the physical suffering caused by the illness. Patients, caregivers, and healthcare workers are particularly at risk for trauma responses and would be well served by trauma-informed care (TIC) practices to minimize both immediate and long-term psychological distress. Given the significant overlap between the core tenets of TIC and accepted guidelines for the provision of quality palliative care (PC), PC teams are particularly well poised to both incorporate such practices into routine care and to ...
Source: Journal of Pain and Symptom Management - May 18, 2020 Category: Palliative Care Authors: Chelsea Brown, Sarah Peck, Jessi Humphreys, Laura Schoenherr, Naomi Tzril Saks, Bridget Sumser, Giovanni Elia Tags: COVID-19 for Fast Track Publication Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 16, 2020 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 16, 2020 Category: Palliative Care Source Type: research

Developing Unique Insights from Narrative Responses to Bereaved Family Surveys
Although bereaved family surveys are routinely used quantitatively for quality assessment, open-ended, narrative responses are rarely systematically analyzed. Analysis of narrative responses may identify opportunities for improving end-of-life (EOL) care delivery. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 16, 2020 Category: Palliative Care Authors: Caroline Gray, Maria Yefimova, Matthew McCaa, Joy R. Goebel, Scott Shreve, Karl A. Lorenz, Karleen Giannitrapani Source Type: research

A Pilot Cross-Discipline Evidence-Based Palliative Care Curriculum for Postgraduate Medical Trainees
In this report, we provide an evidence-based and cross-disciplinary palliative care framework applicable to a spectrum of specialty training environments and intended for nonpalliative care trainees. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 15, 2020 Category: Palliative Care Authors: Amrita Sarpal, Valerie N. Schulz, Teneille E. Gofton Tags: Special Article Source Type: research

A Pilot Cross-Discipline Evidence-Based Palliative Care Curriculum for Post-Graduate Medical Trainees
In this report, we provide an evidence-based, cross-disciplinary palliative care framework applicable to a spectrum of specialty training environments and intended for non-palliative care trainees. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 15, 2020 Category: Palliative Care Authors: Amrita Sarpal, Valerie Schulz, Teneille Gofton Source Type: research

The Impact of Aliviado Dementia Care —Hospice Edition Training Program on Hospice Staff's Dementia Symptom Knowledge
As the aging population grows, the incidence of dementia continues to increase substantially. However, the lack of a significant geriatric health care workforce as well as little dementia training among generalist health care workers leads to suboptimal care for persons living with dementia (PLWD). In particular, few evidence-based interventions exist to improve the quality of dementia care among hospice interdisciplinary teams caring for PLWD. Aliviado Dementia Care —Hospice Edition is a quality assurance and performance improvement program that includes training, mentoring, and workflow enhancements, which aims to ...
Source: Journal of Pain and Symptom Management - May 13, 2020 Category: Palliative Care Authors: Catherine E. Schneider, Alycia Bristol, Ariel Ford, Shih-Yin Lin, Joyce Palmieri, Martina R. Meier, Abraham A. Brody, HAS-QOL Trial Investigators Tags: Brief Report Source Type: research

The Impact of Aliviado Dementia Care-Hospice Edition Training Program on Hospice Staff ’s Dementia Symptom Knowledge
As the aging population grows, the incidence of dementia continues to increase substantially. However, the lack of a significant geriatric healthcare workforce as well as little dementia training amongst generalist healthcare workers leads to sub-optimal care for persons living with dementia (PLWD). In particular, few evidence-based interventions exist to improve the quality of dementia care amongst hospice interdisciplinary teams (IDT) caring for PLWD. Aliviado Dementia Care-Hospice Edition is a quality assurance and performance improvement program that includes training, mentoring and workflow enhancements, that aims to ...
Source: Journal of Pain and Symptom Management - May 13, 2020 Category: Palliative Care Authors: Catherine E. Schneider, Alycia Bristol, Ariel Ford, Shih-Yin Lin, Joyce Palmieri, Martina R. Meier, Abraham A. Brody, HAS-QOL Trial Investigators Tags: Brief Report Source Type: research

A virtual children's hospice in response to COVID-19: The Scottish experience
This case report describes a pediatric hospice provider in Scotland and their experience implementing a telehospice program in response to COVID-19. Children ’s Hospices Across Scotland (CHAS) is the only provider of pediatric hospice care in the entire of Scotland, and we describe their experience offering pediatric telehospice. CHAS had strategically planned to implement telehospice, but COVID-19 accelerated the process. The organization evaluated it s pediatric clinical and wrap-around hospice services and rapidly migrated them to a virtual environment. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 13, 2020 Category: Palliative Care Authors: Kirsteen Ellis, Lisa C. Lindley Tags: COVID-19 for Fast Track Publication Source Type: research

Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement
This study aimed to review and synthesise learning from previous literature focused on the impact on grief and bereavement during other infectious disease outbreaks. We conducted a rapid scoping review according to the principles of the Joanna Briggs Institute and analysed qualitative data using thematic synthesis. From the 218 identified papers, 6 were included in the analysis. They were four qualitative studies, one observational study and a systematic review. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 13, 2020 Category: Palliative Care Authors: Catriona R. Mayland, Andrew JE. Harding, Nancy Preston, Sheila Payne Source Type: research

Experiencing the sublime in a palliative care unit
All of us, without exception, must sooner or later face the inevitability of death. However, as comparative studies of different cultures show, the idea that death is something to be feared, denied or hidden away is far from universal. Indeed, it was only during the nineteenth century that the denial of death and the metaphor of illness as a shadowy country began to emerge as narratives. In the works of Tolstoy and Flaubert, for example, dying was portrayed, for the first time, as something dirty, obscene, degrading (1). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 11, 2020 Category: Palliative Care Authors: Andrea Rodr íguez-Prat Source Type: research

Caring for the Patient with Cancer: Body and Soul
Is oncology a spiritual practice? As a medical oncology fellow, I have engaged in existential questions that patients dying from cancer often ask. What is the meaning of my illness? Why am I suffering? Recognizing illness as a spiritual event did not come from any classroom experience, but experiential learning. The transcendent, spiritual nature of medicine is found in the crevices of daily practice. The spiritual nature of medical care begins when we acknowledge how much patients and healthcare professionals suffer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 11, 2020 Category: Palliative Care Authors: Ramy Sedhom Source Type: research

Mapping Pediatric Palliative Care Development in the WHO-European Region: Children Living in Low-to-Middle-Income Countries Are Less Likely to Access It
Approximately 170,000 children in need of palliative care die every year in Europe without access to it. This field remains an evolving specialty with unexplored development. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: Natalia Arias-Casais, Eduardo Garralda, Juan Jos é Pons, Joan Marston, Lizzie Chambers, Julia Downing, Julie Ling, John Y. Rhee, Liliana de Lima, Carlos Centeno Tags: Original Article Source Type: research

LGBTQ+ Inclusive Palliative Care in the Context of COVID-19: Pragmatic Recommendations for Clinicians
As coronavirus disease 2019 (COVID-19) continues to impact the seriously ill and their families on a global scale, considerations given to marginalized groups amid the pandemic are essential to ensure the provision of high-quality and dignified care. Lesbian, gay, bisexual, transgender, gender-nonconforming, and queer/questioning-identified (LGBTQ+) persons are particularly vulnerable to health inequities across settings, including palliative care and at the end of life. There is a crucial gap in the literature pertaining to palliative care for LGBTQ+ populations during COVID-19. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: William E. Rosa, Alic Shook, Kimberly D. Acquaviva Tags: Diversity and Inclusion Source Type: research

Mapping paediatric palliative care development in the WHO-European region: Children living in low-middle income countries are less likely to access it
Approximately 170,000 children in need of palliative care die every year in Europe without access to it. This field remains an evolving specialty with unexplored development. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: Natalia Arias-Casais, Eduardo Garralda, Juan Jos é Pons, Joan Marston, Lizzie Chambers, Julia Downing, Julie Ling, John Y. Rhee, Liliana de Lima, Carlos Centeno Tags: Original Article Source Type: research

International COVID-19 palliative care guidance for nursing homes leaves key themes unaddressed
COVID-19 mortality disproportionally affects nursing homes, creating enormous pressures to deliver high-quality end-of-life care. Comprehensive palliative care should be an explicit part of both national and global COVID-19 response plans. Therefore, we aimed to identify, review and compare national and international COVID-19 guidance for nursing homes concerning palliative care, issued by government bodies and professional associations. We performed a directed documentary and content analysis of newly developed or adapted COVID-19 guidance documents from across the world. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: Gilissen Joni, Pivodic Lara, T. Unroe Kathleen, Van den Block Lieve Tags: COVID-19 for Fast Track Publication Source Type: research

LGBTQ+ Inclusive Palliative Care in the Context of COVID-19:Pragmatic Recommendations for Clinicians
As Coronavirus Disease 2019 (COVID-19) continues to impact the seriously ill and their families on a global scale, considerations given to marginalized groups amid the pandemic is essential to ensure the provision of high-quality, dignified care. Lesbian, gay, bisexual, transgender, gender-nonconforming, queer and/or questioning (LGBTQ+) identified persons are particularly vulnerable to health inequities across settings, including palliative care and at end-of-life. There is a crucial gap in the literature pertaining to palliative care during COVID-19. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: William E. Rosa, Alic Shook, Kimberly D. Acquaviva Tags: COVID-19 for Fast Track Publication Source Type: research

“To speak of death is to invite it”: Provider perceptions of palliative care for cardiovascular patients in Western Kenya
Cardiovascular disease (CVD) is the leading cause of death globally and a significant health burden in Kenya. Despite improved outcomes in CVD, palliative care has limited implementation for CVD in low- and middle-income countries. This may be partly due to providers ’ perceptions of palliative care and end-of-life decision-making for CVD patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: Keith R. Love, Elizabeth Karin, Daniel Morogo, Florence Toroitich, Juli M. Boit, Allison Tarus, Felix Ayub Barasa, Nathan E. Goldstein, Myra Koech, Rajesh Vedanthan Source Type: research

Managing Death in the Field: Prehospital End-of-life Care
Historically, the focus of prehospital care has been life-saving treatment. Absent a Non-Hospital Do Not Resuscitate (NHDNR) order, prehospital providers have been compelled to begin and continue resuscitation unless or until it was certain that the situation was futile; they have faced conflict when caregivers objected. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: Deborah P. Waldrop, Michael R. Waldrop, Jacqueline M. McGinley, Charlotte R. Crowley, Brian Clemency Source Type: research

Development and Implementation of a Clinician-facing Prognostic Communication Tool for Patients with COVID-19 and Critical Illness
Effective prognostication for a novel disease presents significant challenges, especially given the stress induced during a pandemic. We developed a point-of-care tool to summarize outcome data for critically ill patients with COVID-19 and help guide clinicians through a thoughtful prognostication process. Two authors reviewed studies of outcomes of patients with critical illness due to COVID-19 and created a visual infographic tool based on available data. Survival data were supplemented by descriptions of best and worst-case clinical scenarios. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2020 Category: Palliative Care Authors: Lindsay M. Gibbon, Katherine E. GrayBuck, Laura I. Buck, Kuang-Ning Huang, Neela L. Penumarthy, Shirou Wu, J. Randall Curtis Tags: COVID-19 for Fast Track Publication Source Type: research

Patient-Reported Receipt of Goal-Concordant Care Among Seriously Ill Outpatients —Prevalence and Associated Factors
Goal-concordant care is an important indicator of high-quality care in serious illness. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Matthew E. Modes, Susan R. Heckbert, Ruth A. Engelberg, Elizabeth L. Nielsen, J. Randall Curtis, Erin K. Kross Tags: Original Article Source Type: research

Pc-facs: covid-19
PC-FACS (Fast Article Critical Summaries for Clinicians in Palliative Care) provides hospice and palliative care clinicians with concise summaries of the most important findings from more than 100 medical and scientific journals. If you have colleagues who would benefit from receiving PCFACS, please encourage them to join the AAHPM at aahpm.org. Comments from readers are welcomed at pcfacs@aahpm.org. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Robert M. Arnold Tags: PC-FACS Source Type: research

Patient-reported receipt of goal-concordant care among seriously ill outpatients - prevalence and associated factors
Goal-concordant care is an important indicator of high-quality care in serious illness. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Matthew E. Modes, Susan R. Heckbert, Ruth A. Engelberg, Elizabeth L. Nielsen, J. Randall Curtis, Erin K. Kross Tags: Original Article Source Type: research

Impact of renal supportive care on symptom burden in dialysis patients: a prospective observational cohort study
Symptom burden is a strong predictor of reduced health-related quality of life and survival in patients with end-stage kidney disease (ESKD). Renal supportive care (RSC) is a comprehensive approach shown to benefit symptoms in non-dialysis conservatively managed patients, though its role in dialysis patients has not been reported. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Amanda N. Siriwardana, Anna T. Hoffman, Frank P. Brennan, Kelly Li, Mark A. Brown Tags: Original Article Source Type: research

PC-FACS May 2020 for July 2020 Issue
PC-FACS: COVID-19 (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Andie Bernard Source Type: research

Caring for bereaved family members during the COVID-19 pandemic: before and after the death of a patient
Bereavement care is considered an integral component of quality end-of-life care endorsed by the palliative care movement. However, few hospitals and health care institutions offer universal bereavement care to all families of patients who die. The current COVID-19 pandemic has highlighted this gap and created a sense of urgency, from a public health perspective, for institutions to provide support to bereaved family members. In this article, drawing upon the palliative care and bereavement literature, we offer suggestions about how to incorporate palliative care tools and psychological strategies into bereavement care for...
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Sue E. Morris, Amanda Moment, Jane deLima Thomas Tags: COVID-19 for Fast Track Publication Source Type: research

Prognostication and Proactive Planning in COVID-19
Accurate prognostication is challenging in the setting of SARS-CoV-2, the virus responsible for COVID-19, due to rapidly changing data, studies that are not generalizable and lack of morbidity and functional outcomes in survivors. To provide meaningful guidance to patients, existing mortality data must be considered and appropriately applied. While most people infected with SARS-CoV-2 will recover, mortality increases with age and co-morbidity in those who develop severe illness. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Kristina B. Newport, Sonia Malhotra, Eric Widera Tags: COVID-19 for Fast Track Publication Source Type: research