Barriers to accessing internationally controlled essential medicines in Uganda: A qualitative study
Access to internationally controlled essential medicines is a problem worldwide. More than 5 billion people cannot access opioids for pain and palliative care or do not have access to surgical care or anesthetics, 36 million people living with epilepsy do not have access to their medicines, and 120.000 women die annually due to post-partum hemorrhage. In Uganda access to controlled medicines is also problematic, but a lack of data on factors that influence access exists. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 11, 2019 Category: Palliative Care Authors: Gaby Isabelle Ooms, Paul Klatser, Hendrika A. van den Ham, Tim Reed Source Type: research

Stakeholders' Perceptions and Information Needs Regarding Research Medical Donation
Research Medical Donation (RMD), which entails collecting human tissue within hours after death, benefits cancer research but data are limited regarding barriers institutions face accruing patients to RMD programs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 11, 2019 Category: Palliative Care Authors: Andrew S. Epstein, Jada G. Hamilton, Elyse Shuk, Danielle R. Romano, Kathleen Lynch, Erva Khan, Margaux Genoff, Chelsea Michael, Christine Iacobuzio-Donahue Source Type: research

End of Life in the Neurological Intensive Care Unit: Is Extubating to Comfort Care Comfortable?
Patients extubated to comfort care in the neurological intensive care unit (Neuro-ICU) comprise a unique population because their end of life signs of distress can be related to both neurological pathology and multisystem dysfunction. Previous studies have examined time to cardiac death after extubation to comfort care and its predictors [1,2]; but there are few studies describing patients ’ distress developed after extubation and the time required to achieve observable distress control. [3-7] The goal of this study is to determine if Neuro-ICU patients demonstrate persistent signs of distress after transitioning to ...
Source: Journal of Pain and Symptom Management - July 11, 2019 Category: Palliative Care Authors: Angela Yeh, Christopher Pietras, David Wallenstein, Peifeng Hu Source Type: research

Pc-facs
PC-FACS (Fast Article Critical Summaries for Clinicians in Palliative Care) provides hospice and palliative care clinicians with concise summaries of the most important findings from more than 100 medical and scientific journals. If you have colleagues who would benefit from receiving PCFACS, please encourage them to join the AAHPM at aahpm.org. Comments from readers are welcomed at pcfacs@aahpm.org. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 10, 2019 Category: Palliative Care Authors: Mellar P. Davis Source Type: research

PC FACS July for September 2019
Cognitive Impairment in Septic Patients (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 10, 2019 Category: Palliative Care Authors: Andie Bernard Source Type: research

Palliative Management of Stridor in a Head and Neck Cancer Patient with Noninvasive Ventilation: Is It Safe?
We read with interest the paper by Lee et al reporting the use of continuous positive airway pressure (CPAP) as a means of non-invasive ventilation in the palliative management of stridor at the end of life in a patient with head and neck cancer.1 (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 10, 2019 Category: Palliative Care Authors: Jennifer Obi, Antonio M. Esquinas, Stephen M. Pastores Source Type: research

Rating Delirium Severity Using the Nursing Delirium Screening Scale: A Validation Study in Patients in Palliative Care
Delirium has a high prevalence in the medically ill, especially in inpatient palliative care.1 The fluctuation in clinical features of delirium over time has been a strong argument for developing rapid delirium assessment tools, particularly for use by nurses. Nurses' continuity of closer patient contact means they are ideally placed to observe and report on the presence and severity of the clinical features of delirium.2 However, many existing delirium severity rating tools validated in palliative populations are potentially burdensome for patients and not suited to repeated administration within a 24-hour period. (Source...
Source: Journal of Pain and Symptom Management - July 5, 2019 Category: Palliative Care Authors: Christopher J. Barnes, Colleen Webber, Shirley H. Bush, Marie McNamara-Kilian, Jennifer Brodeur, Katie Marchington, Elham Sabri, Peter G. Lawlor Tags: Letter Source Type: research

The Current Practice of Oxygen Therapy for Dyspnea in Terminally Ill Cancer Patients: A Nationwide Survey of Japanese Palliative Care Physicians
Dyspnea is a frequent and distressing symptom among terminal cancer patients.1,2 Oxygen therapy is often used to alleviate dyspnea in this population. However, the efficacy of oxygen therapy for dyspnea in patients without hypoxemia has not been proven,3,4 and several guidelines are against its use in such patients.5,6 In addition, oxygen therapy may worsen the quality of life because of adverse events such as oral dryness and feeling of restriction.7 It is, therefore, important to explore the daily provision of oxygen therapy for cancer dyspnea by palliative care physicians and to determine the criteria for oxygen therapy...
Source: Journal of Pain and Symptom Management - July 5, 2019 Category: Palliative Care Authors: Hiroaki Watanabe, Ryo Matsunuma, Kozue Suzuki, Yoshinobu Matsuda, Masanori Mori, Takashi Yamaguchi Tags: Letter Source Type: research

Is in-hospital mortality higher in patients with metastatic lung cancer who received treatment in the last month of life? A retrospective cohort study
Metastatic lung cancer is an incurable disease which results in a high burden of symptoms, a poor quality of life and an expected prognosis of less than 1 year after diagnosis. Treatment shortly before death may result in potential burdensome and inappropriate hospital admissions and hospital deaths. Dying at home is, at a population level, considered a quality for good end-of-life care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 5, 2019 Category: Palliative Care Authors: Adinda Mieras, H. Roeline W. Pasman, Bregje D. Onwuteaka-Philipsen Prof, Anne-Marie M.C. Dingemans, Edith V. Kok, Robin Cornelissen, Wouter Jacobs, Jan-Willem van den Berg, Alle Welling, Brigitte A.H.A. Bogaarts, Lemke Pronk, Annemarie Becker-Commissaris Source Type: research

Rating delirium severity using the Nursing Delirium Screening Scale (Nu-DESC): A validation study in patients in palliative care
Delirium has a high prevalence in the medically ill, especially in inpatient palliative care (1). The fluctuation in clinical features of delirium over time has been a strong argument for developing rapid delirium assessment tools, particularly for use by nurses. Nurses ’ continuity of closer patient contact means they are ideally placed to observe and report on the presence and severity of the clinical features of delirium (2). However, many existing delirium severity rating tools validated in palliative populations are potentially burdensome for patients, and n ot suited to repeated administration within a 24-hour ...
Source: Journal of Pain and Symptom Management - July 5, 2019 Category: Palliative Care Authors: Christopher J. Barnes, Colleen Webber, Shirley H. Bush, Marie McNamara-Kilian, Jennifer Brodeur, Katie Marchington, Elham Sabri, Peter G. Lawlor Source Type: research

The current practice of oxygen therapy for dyspnea in terminally-ill cancer patients: A nationwide survey of Japanese palliative care physicians
Dyspnea is a frequent and distressing symptom among terminal cancer patients (1, 2). Oxygen therapy is often used to alleviate dyspnea in this population. However, the efficacy of oxygen therapy for dyspnea in patients without hypoxemia has not been proven (3, 6), and several guidelines are against its use in such patients (4, 5). In addition, oxygen therapy may worsen the quality of life (QOL) due to adverse events such as oral dryness and feeling of restriction (7). It is, therefore, important to explore the daily provision of oxygen therapy for cancer dyspnea by palliative care physicians and determine their criteria fo...
Source: Journal of Pain and Symptom Management - July 5, 2019 Category: Palliative Care Authors: Hiroaki Watanabe, Ryo Matsunuma, Kozue Suzuki, Yoshinobu Matsuda, Masanori Mori, Takashi Yamaguchi Source Type: research

COMPASS: A Pilot Trial of an Early Palliative Care Intervention for Patients With End-Stage Liver Disease
Palliative care interventions have shown promise in improving quality of life and reducing health-care utilization among patients with chronic organ failure. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2019 Category: Palliative Care Authors: Myrick C. Shinall, Mohana Karlekar, Sara Martin, Cheryl L. Gatto, Sumi Misra, Chan Y. Chung, Michael K. Porayko, Andrew E. Scanga, Natasha J. Schneider, E. Wesley Ely, Jill M. Pulley, Rebecca N. Jerome, Mary Lynn Dear, Douglas Conway, Reagan Buie, Dandan Tags: Original Article Source Type: research

Courses of change in good emotional preparedness for death and accurate prognostic awareness and their associations with psychological distress and quality of life in terminally ill cancer patients ’ last year of life
Emotional preparedness for death is a distinct but related concept to prognostic awareness (PA). Both allow patients to prepare psychologically and interpersonally for death but they have primarily been examined in cross-sectional studies. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2019 Category: Palliative Care Authors: Siew Tzuh Tang, Wen-Chi Chou, Wen-Cheng Chang, Jen-Shi Chen, Chia-Hsun Hsieh, Fur-Hsing Wen, Shih-Chi Chung Source Type: research

COMPASS: A Pilot Trial of an Early Palliative Care Intervention for Patients with End Stage Liver Disease
Palliative care interventions have shown promise in improving quality of life and reducing healthcare utilization among patients with chronic organ failure. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2019 Category: Palliative Care Authors: Myrick C. Shinall, Mohana Karlekar, Sara Martin, Cheryl L. Gatto, Sumi Misra, Chan Y. Chung, Michael K. Porayko, Andrew E. Scanga, Natasha J. Schneider, E.Wesley Ely, Jill M. Pulley, Rebecca N. Jerome, Mary Lynn Dear, Douglas Conway, Reagan Buie, Dandan L Source Type: research

Prophylactic Fentanyl Sublingual Spray for Episodic Exertional Dyspnea in Cancer Patients: A Pilot Double-Blind Randomized Controlled Trial
The optimal dose of fentanyl sublingual spray (FSS) for exertional dyspnea has not been determined. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2019 Category: Palliative Care Authors: David Hui, Farley Hernandez, Liliana Larsson, Diane Liu, Kelly Kilgore, Jane Naberhuis, Avery Virgilio, Suresh Reddy, Akhila Reddy, Shalini Dalal, Ali Haider, Larry Driver, Ahsan Azhar, Rony Dev, Eduardo Bruera Source Type: research

Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Losing a child is the most burdensome event parents can experience involving risks of developing anxiety and depression. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2019 Category: Palliative Care Authors: Camilla Lykke, Ola Ekholm, Kjeld Schmiegelow, Marianne Olsen, Per Sj øgren Source Type: research

Palliative Psychology: Clinical Perspectives on an Emerging Specialty
Dr. Alessandra Strada has two goals in her book, Palliative Psychology: Clinical Perspectives on an Emerging Specialty. The first is to provide clinical perspectives on the role of palliative psychologists in palliative care and hospice, and the second, to advocate for the formalization of palliative psychology as a new specialty. And she does so, methodically and masterfully. In the Introduction to Palliative Psychology, Dr. Strada builds the case for palliative psychology as a specialty, and in the eight chapters that follow, she uses the eight domains of palliative care identified by the National Consensus Project as a ...
Source: Journal of Pain and Symptom Management - June 27, 2019 Category: Palliative Care Authors: Ronit Elk Tags: Book Review Source Type: research

Acceptance and Commitment Therapy for Symptom Interference in Advanced Lung Cancer and Caregiver Distress: A Pilot Randomized Trial
Advanced lung cancer patients typically have a poor prognosis and many symptoms that interfere with functioning, contributing to high rates of emotional distress in both patients and family caregivers. There remains a need for evidence-based interventions to improve functional outcomes and distress in this population. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 27, 2019 Category: Palliative Care Authors: Catherine E. Mosher, Ekin Secinti, Adam T. Hirsh, Nasser Hanna, Lawrence H. Einhorn, Shadia I. Jalal, Gregory Durm, Victoria L. Champion, Shelley A. Johns Source Type: research

Minocycline for Symptom Reduction during Oxaliplatin-Based Chemotherapy for Colorectal Cancer: A Phase II Randomized Clinical Trial
The most debilitating symptoms during oxaliplatin-based chemotherapy in patients with colorectal cancer (CRC) are neuropathy and fatigue. Inflammation has been suggested to contribute to these symptoms, and the anti-inflammatory agent minocycline is safe and readily available. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2019 Category: Palliative Care Authors: Xin Shelley Wang, Qiuling Shi, Nishin Bhadkamkar, Charles S. Cleeland, Araceli Garcia-Gonzalez, Jonathan Aguilar, Cobi Heijnen, Cathy Eng Source Type: research

Paying for Palliative Care in Medicare: Evidence from the Four Seasons/Duke CMMI Demonstration
Palliative care improves patient and family outcomes and may reduce the cost of care, but this service is underutilized among Medicare beneficiaries. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2019 Category: Palliative Care Authors: Donald H. Taylor, Brystana G. Kaufman, Andrew Olson, Matthew Harker, David Anderson, Sarah H. Cross, Lindsay Bonsignore, Janet Bull Source Type: research

Additive Duloxetine for Cancer-related Neuropathic Pain Nonresponsive or Intolerant to Opioid-Pregabalin Therapy: A Randomized Controlled Trial (JORTC-PAL08)
Although opioids and pregabalin are widely used for cancer-related neuropathic pain (CNP), no clinical trials exist to determine which medications are effective when an opioid-pregabalin combination therapy fails. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2019 Category: Palliative Care Authors: Hiromichi Matsuoka, Satoru Iwase, Tempei Miyaji, Takashi Kawaguchi, Keisuke Ariyoshi, Shunsuke Oyamada, Eriko Satomi, Hiroto Ishiki, Hideaki Hasuo, Hiroko Sakuma, Akihiro Tokoro, Toshiaki Shinomiya, Hiroyuki Otani, Yoichi Otake, Hiroaki Tsukuura, Yoshihis Source Type: research

Cancer-Related Pain: A Longitudinal Study of Time to Stable Pain Control and Its Clinicodemographic Predictors
Multidimensional assessment is pivotal in managing cancer-related pain. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 25, 2019 Category: Palliative Care Authors: Paulo Reis-Pina, Elham Sabri, Nicholas J. Birkett, Antonio Barbosa, Peter G. Lawlor Tags: Original Article Source Type: research

Association Between Plasma Brain Natriuretic Peptide and Overall Survival in Patients With Advanced Cancer: Preliminary Findings
Atrial and brain natriuretic peptides (ANP and BNP) are established diagnostic and prognostic markers in heart failure, but their utility in patients with advanced cancer is unclear. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 25, 2019 Category: Palliative Care Authors: David Hui, Jane Naberhuis, Seyedeh Dibaj, Mujtaba Naqvi, Diane Liu, Eduardo Bruera Tags: Brief Report Source Type: research

Cancer related pain: a longitudinal study of time to stable pain control and its clinico-demographic predictors
Multidimensional assessment is pivotal in managing cancer related pain. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 25, 2019 Category: Palliative Care Authors: Paulo Reis-Pina, Elham Sabri, Nicholas J. Birkett, Antonio Barbosa, Peter G. Lawlor Source Type: research

Behavioral Economics: Applying Defaults, Social Norms, and Nudges to Supercharge Advance Care Planning Interventions
Care that people receive at the end of their lives is not always consistent with their goals and values.1 Incongruent care can have emotional and financial consequences for individuals, families, and the overarching health care system.2 Advance care planning (ACP) is a lifelong process that elucidates a person's goals and values in the event of serious illness. However, despite policy changes, system overhauls, and educational interventions, only one-third of people in the U.S. have completed some form of an advance care plan. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 24, 2019 Category: Palliative Care Authors: Brianna Morgan, Elise Tarbi Tags: Letter Source Type: research

Use of auditing and feedback in an outpatient hospice setting: Quality and pharmacoeconomic oversight
Clinicians play an important role in containing pharmaceutical spending at the patient level, as well as ensuring efficacy and quality outcomes, yet little research has examined how to achieve this goal. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 24, 2019 Category: Palliative Care Authors: Matthew G. Kestenbaum, Krista Harrison, Domitilla Masi, Emily A. Kuhl, J. Cameron Muir Source Type: research

Behavioral Economics: Applying Defaults, Social Norms and Nudges to Supercharge Advance Care Planning Interventions
Care that people receive at the end of their lives is not always consistent with their goals and values [1]. Incongruent care can have emotional and financial consequences for individuals, families, and the overarching health care system [2]. Advance care planning (ACP) is a lifelong process that elucidates a person ’s goals and values in the event of serious illness. However, despite policy changes, system overhauls, and educational interventions only one-third of people in the United States have completed some form of an advance care plan [3]. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 24, 2019 Category: Palliative Care Authors: Brianna Morgan, Elise Tarbi Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 23, 2019 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 23, 2019 Category: Palliative Care Source Type: research

Perception of Multiple Sclerosis Impact and Treatment Efficacy Beliefs: Mediating Effect of Patient's Illness and Self-Appraisals
Patients with multiple sclerosis (MS) experience many negative, seriously aggravating disease symptoms, and hence, research studies are utmost required to improve their coping with symptoms. Our research is an attempt to show ways to increase participation of patients with MS in the treatment and treatment planning process, as well as in managing the symptoms of the disease. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 21, 2019 Category: Palliative Care Authors: Maciej Wilski, Piotr Kocur, Miros ław Górny, Magdalena Koper, Anna Nadolska, Bartosz Chmielewski, Maciej Tomczak Tags: Original Article Source Type: research

Comfort Measures Orders and Hospital Transfers: Insights from the OPTIMISTIC Demonstration Project
Nursing facility residents and their families may identify “comfort measures” as their overall goal of care, yet some hospital transfers still occur. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 21, 2019 Category: Palliative Care Authors: Kathleen T. Unroe, Erin O ’Kelly Phillips, Shannon Effler, Mary Ersek, Susan E. Hickman Source Type: research

Perception of multiple sclerosis impact and treatment efficacy beliefs: mediating effect of patient ’s illness and self-appraisals
To examine the relationship between perception of multiple sclerosis (MS) impact and treatment efficacy beliefs in patients with MS and the extent to which self and illness appraisals can be regarded as mediator variables in this relationship. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 21, 2019 Category: Palliative Care Authors: Maciej Wilski, Piotr Kocur, Miros ław Górny, Magdalena Koper, Anna Nadolska, Bartosz Chmielewski, Maciej Tomczak Source Type: research

Effect of opioid exposure on efficacy and tolerability of sublingual fentanyl and subcutaneous morphine for severe cancer pain episodes. Secondary analysis from a double-blind double-dummy, randomized trial
Few studies have addressed the impact of previous opioid exposure on the effect of opioids for the treatment of severe cancer pain episodes. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 21, 2019 Category: Palliative Care Authors: Francesca Ricchini, Augusto Caraceni, Ernesto Zecca, Alessandra Pigni, Fabio Centurioni, Andrea Manzoni, Stein Kaasa, Cinzia Brunelli Source Type: research

Reasons for Underreporting of Uremic Pruritus in People With Chronic Kidney Disease: A Qualitative Study
Uremic pruritus, or itch, is common in people with chronic kidney disease (CKD) and has a negative impact on their lives and well-being. However, for reasons currently unknown, itch often remains unreported and therefore untreated. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2019 Category: Palliative Care Authors: Giovanni Aresi, Hugh C. Rayner, Lamiece Hassan, James O. Burton, Sandip Mitra, Caroline Sanders, Sabine N. van der Veer Tags: Original Article Source Type: research

Reasons for underreporting of uraemic pruritus in people with chronic kidney disease: A qualitative study
Uraemic pruritus, or itch, is common in people with chronic kidney disease (CKD) and has a negative impact on their lives and well-being. However, for reasons currently unknown, itch often remains unreported and therefore untreated. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2019 Category: Palliative Care Authors: G. Aresi, H.C. Rayner, L. Hassan, J.O. Burton, S. Mitra, C. Sanders, S.N. Van der Veer Source Type: research

Toward Understanding the Relationship between Prioritized Values and Preferences for Cardiopulmonary Resuscitation Among Seriously Ill Adults
Prioritizing amongst potentially conflicting end-of-life values may help patients discriminate amongst treatments and allow clinicians to align treatments with values. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2019 Category: Palliative Care Authors: Matthew E. Modes, Ruth A. Engelberg, Lois Downey, Elizabeth L. Nielsen, Robert Y. Lee, J.Randall Curtis, Erin K. Kross Source Type: research

Development of a Pediatric Palliative Care Curriculum and Dissemination Model: Education in Palliative and End-of-Life Care (EPEC) Pediatrics
Most children living and dying with serious illnesses experience high burden of distressing symptoms. Many seriously ill children and their families do not have access to subspecialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. Lack of PPC education appears to be a significant barrier to PPC implementation. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 17, 2019 Category: Palliative Care Authors: Stefan J. Friedrichsdorf, Stacy Remke, Joshua Hauser, Laurie Foster, Andrea Postier, Alison Kolste, Joanne Wolfe Source Type: research

Narrative Interventions in the Palliative Care Setting: A Scoping Review
This scoping review maps the existing literature on narrative interventions within a palliative care and end-of-life context. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 16, 2019 Category: Palliative Care Authors: Thomas Laskow, Lauren Small, David Shih Wu Source Type: research

When Patients Say They Know About Palliative Care, How Much Do They Really Understand?
Lack of knowledge or misconceptions about palliative care (PC) can serve as barriers to accessing PC for seriously ill patients. Although self-reported rates of PC knowledge have been increasing, little is known about how self-reports relate to actual PC knowledge. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 14, 2019 Category: Palliative Care Authors: Yujun Zhu, Susan Engu ídanos Tags: Brief Report Source Type: research

A Response to: Challenges in Recruiting Patients to a Controlled Feasibility Study of a Drug for Opioid-Induced Constipation: Lessons From the Population With Advanced Cancer
We were most interested to read the letter by Bull et  al.1 As researchers, clinicians and academics in supportive and palliative care, the letter resonated with our own experiences when trying to recruit to studies exploring the problems of disordered bowel function in patients with advanced cancer. Although the authors of the published letter attrib ute this to the advanced cancer population, we would like to suggest an alternative opinion. In contrast, we submit that rather than this being an issue with the advanced illness stage of this patient cohort, the problems were related to the symptom they were investigati...
Source: Journal of Pain and Symptom Management - June 14, 2019 Category: Palliative Care Authors: Katherine Clark, Samuel Allingham, Jane L. Phillips, Linda Brown, David C. Currow Tags: Letter Source Type: research

Authors' Response
We appreciate the response of Clark et  al. to our article, Challenges in Recruiting Patients to a Controlled Feasibility Study of a Drug for Opioid-Induced Constipation: Lessons From the Population With Advanced Cancer (JPSM 2019;57(5):e5-e8), and their extensive experience from the Australian Palliative Care Outcomes Collaboration. A lthough we agree that distress from constipation may be limited to a small percentage of the cancer population and contribute to recruitment challenges, other factors we encountered included late referrals, rapid trajectory of disease, limited opioid use, and disinterest because of...
Source: Journal of Pain and Symptom Management - June 14, 2019 Category: Palliative Care Authors: Janet Bull Tags: Letter Source Type: research

Palliative Care Transitions From Acute Care to Community-Based Care —A Systematic Review
Although the literature on transitions from hospital to the community is extensive, little is known about this experience within the context of palliative care (PC). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 12, 2019 Category: Palliative Care Authors: Stephanie Saunders, Tieghan Killackey, Allison Kurahashi, Chris Walsh, Kirsten Wentlandt, Emily Lovrics, Mary Scott, Ramona Mahtani, Mark Bernstein, Michelle Howard, Peter Tanuseputro, Russell Goldman, Camilla Zimmermann, Rebecca A. Aslakson, Sarina R. Is Tags: Special Series: Science in Action: Evidence and Opportunities for Palliative Care Across Diverse Populations and Care Settings Source Type: research

To What Extent Do the NRS and CRQ Capture Change in Patients' Experience of Breathlessness in Advanced Disease? Findings From a Mixed-Methods Double-Blind Randomized Feasibility Trial
Chronic or refractory breathlessness is common and distressing. To evaluate new treatments, outcome measures that capture change in patients' experience are needed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 12, 2019 Category: Palliative Care Authors: Natasha Lovell, Simon Noah Etkind, Sabrina Bajwah, Matthew Maddocks, Irene Julie Higginson Tags: Original Article Source Type: research

To what extent do the NRS and CRQ capture change in patients ’ experience of breathlessness in advanced disease? Findings from a mixed-methods double blind randomised feasibility trial
Chronic or refractory breathlessness is common and distressing. To evaluate new treatments, outcome measures that capture change in patient experience are needed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 12, 2019 Category: Palliative Care Authors: N. Lovell, S.N. Etkind, S. Bajwah, M. Maddocks, I.J. Higginson Source Type: research

Palliative care transitions from acute care to community-based care – a systematic review
Although the literature on transitions from hospital to the community is extensive, little is known about this experience within the context of palliative care (PC). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 12, 2019 Category: Palliative Care Authors: Stephanie Saunders, Tieghan Killackey, Allison Kurahashi, Chris Walsh, Kirsten Wentlandt, Emily Lovrics, Mary Scott, Ramona Mahtani, Mark Bernstein, Michelle Howard, Peter Tanuseputro, Russell Goldman, Camilla Zimmermann, Rebecca A. Aslakson, Sarina R. Is Source Type: research

The Current Practice of Opioid for Cancer Dyspnea: The Result from the Nationwide Survey of Japanese Palliative Care Physicians
Morphine is recommended as the first-line pharmacological therapy for cancer dyspnea. However, the detailed practice of morphine has not been evaluated, and consensus about other opioids for cancer dyspnea has not been established. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 12, 2019 Category: Palliative Care Authors: Takashi Yamaguchi, Ryo Matsunuma, Kozue Suzuki, Yoshinobu Matsuda, Masanori Mori, Hiroaki Watanabe Source Type: research

Pc-facs
PC-FACS (Fast Article Critical Summaries for Clinicians in Palliative Care) provides hospice and palliative care clinicians with concise summaries of the most important findings from more than 100 medical and scientific journals. If you have colleagues who would benefit from receiving PCFACS, please encourage them to join the AAHPM at aahpm.org. Comments from readers are welcomed at pcfacs@aahpm.org. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 11, 2019 Category: Palliative Care Authors: Mellar P. Davis Source Type: research

All That This Hand May Hold: Phenomenological Exploration into the Meaning of Pediatric Legacy Prints
As a qualitative methodology, phenomenology explores “lived experience” (1). Phenomenological inquiry explores meaning-making or even the meaning of matter. Our cumulative and current life experiences influence the meaning we assign to our surroundings. Phenomenology represents experiential research in exploring what meaning is applied to objects or assigned to experiences (2, 3). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 11, 2019 Category: Palliative Care Authors: Meaghann S. Weaver, Gabe Linke, Jacob Robinson, Dale Wratchford Source Type: research

Organizing Psychologists, Behavioral Scientists, and Allied Professionals: Formation of the Society of Behavioral Medicine ’s Palliative Care Special Interest Group
Palliative care spans many disciplines, including physicians, nurses, social workers, chaplains, and psychologists. While psychologists and other behavioral scientists have much to offer the field of palliative care in both clinical and research domains, they are underrepresented in palliative care professional organizations. We thus held the first annual meeting of the Palliative Care Special Interest Group (SIG) at the Society of Behavioral Medicine ’s annual conference in March 2019. The meeting served as a mechanism for organizing psychologists involved in palliative care and improving their connections with alli...
Source: Journal of Pain and Symptom Management - June 11, 2019 Category: Palliative Care Authors: Michael Hoerger, Katherine Ramos, Lee Ellington, Laura M. Perry, Kathryn I. Pollak, Laura S. Porter Source Type: research

PC-FACS June 2019 for the August Issue
PC-FACS (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 11, 2019 Category: Palliative Care Authors: Andie Bernard Source Type: research