Prognosis Discordance Between Physicians and Families Regarding Patients' Functional Recovery After Severe Acute Brain Injury (RP301)
Patients with severe acute brain injury (SABI) face substantial prognostic uncertainty. Families are charged with making treatment decisions weighing death versus survival in a dependent state. Our goal was to understand discrepancies in prognostic expectations between physicians and families regarding patients' functional recovery. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Whitney Kiker, Rachel Rutz Voumard, Ruth Engelberg, J. Randall Curtis, Claire Creutzfeldt Source Type: research

Advance Care Planning and Intensity of Care at the End of Life for Adults with Chronic Kidney Disease and Congestive Heart Failure (RP302)
Despite evidence supporting palliative care, access to advance care planning (ACP) remains limited for those with chronic kidney disease (CKD) and congestive heart failure (CHF). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Gwen Bernacki, Cara McDermott, Ruth Engelberg, J. Randall Curtis Source Type: research

Do Life-Sustaining Treatment Orders Match Patient and Surrogate Preferences? The Role of POLST (RP303)
It is essential to high-quality medical care that life-sustaining treatment orders match the current, values-based preferences of patients or their surrogate decision-makers. It is unknown whether concordance between orders and current preferences is higher when a POLST form is used compared to standard documentation practices. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Susan Hickman, Alexia Torke, Greg Sachs, Rebecca Sudore, Qing Tang, Giorgos Bakoyannis, Nicholette Heim Smith, Anne Myers, Bernard Hammes Source Type: research

Development of a Novel Implicit Association Test for Racial Bias in End of Life Care —The EOL-IAT (RP304)
Clinician unconscious bias may contribute to racial disparities in quality of end-of-life (EOL) care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Elizabeth Chuang, Michelle Gong, Ronit Elk, Christine Cha Source Type: research

Latent Profiles of Symptom Experiences in Advanced Stage Cancer: Relationships to Acceptance and Commitment Therapy Constructs (RP305)
Many advanced cancer patients experience persistent, disabling symptoms. In pilot research, Acceptance and Commitment Therapy (ACT) has shown promise for reducing symptom interference with activities in advanced cancer patients. However, relationships between key ACT constructs and cancer patients' symptoms are largely unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Catherine Mosher, Ellen Krueger, Ekin Secinti, Shelley Johns Source Type: research

Content of Documented Goals of Care Discussions Based on Communication Best Practices for Patients with Stage IV Cancer (RP306)
Written communication between clinicians is critical to goal-concordant care. Little is known about electronic health record (EHR) documentation of goals-of-care discussions. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Laura Hanson, Natalie Ernecoff, Kathryn Wessell, William Wood, Frances Collichio, Gary Winzelberg Source Type: research

“If It's the Time, It's the Time”: Existential Communication in Naturally Occurring Palliative Care Conversations with Individuals with Advanced Cancer, Their Families, and Clinicians (RP307)
Being diagnosed with a serious illness can heighten awareness of the fragility of life, with potential to trigger existential concerns. Despite the inevitability of existential experience for individuals facing life-limiting illnesses, existential experience remains a neglected area in palliative care research. In particular, little is known regarding how existential experience is discussed among individuals with advanced cancer, their families, and clinicians in everyday palliative care conversations. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Elise Tarbi, Robert Gramling, Christine Bradway, Salimah Meghani Source Type: research

Is PCP Involvement Associated with Earlier Advance Care Planning? A Study of Patients in an Academic Primary Care Setting (RP308)
Improving advance care planning (ACP) is important to ensuring patients receive care aligned with their preferences. While studies have examined factors correlated with ACP, few have examined primary care physician (PCP) involvement in ACP. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Dylan Sherry, Mary Buss Source Type: research

Improving Documentation of Advance Care Planning in Outpatients with Decompensated Cirrhosis (RP309)
Patients with decompensated cirrhosis (DC) experience high morbidity and mortality; very few will ultimately receive a liver transplant. Advance care planning (ACP) is one particularly unmet need. Reported rates of advance directive (AD) and goals of care discussion (GCD) completion are as low as 0% and 0-2%, respectively, among patients with DC. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Arpan Patel, Nina Kogekar, Ritu Agarwal, Cynthia Cohen, James Esteban, Kamron Pourmand, Eugenia Tsai, Thomas Schiano Source Type: research

Decision-Making About Clinical Trial Options Among Older Patients with Metastatic Cancer Who Have Exhausted Standard Therapies (RP310)
Research on decision-making among older patients with incurable cancer has focused on end-of-life care and advanced care planning. Fit, older patients may be candidates for investigational therapies once they exhaust standard options, yet are underrepresented in clinical trials, leading to gaps in the evidence basis for their management. Qualitative research is needed to understand and guide decision-making about the next steps after standard treatment for these patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Mazie Tsang, Daniel Dohan Source Type: research

Testing the “Extra Layer of Support” (ELOS) Mobile Application to Engage Cancer Patients Around Palliative Care (RP311)
Despite the immense growth of palliative care clinical services, only a minority of cancer patients and their oncologists have a robust understanding of palliative care's utility. This leads to underutilization of available palliative care services. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Arif Kamal Source Type: research

Getting Everyone on the Same Page: Key Components of an Implementation Process for a Large Pragmatic Randomized Trial Across Three Health Systems (RP312)
Pragmatic trials that implement scalable advance care planning (ACP) interventions in real-world setting are needed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Anne Walling, Rebecca Sudore, Christine Ritchie, Lisa Gibbs, Maryam Rahimi, Javier Sanz, Douglas Bell, Jonathan Lee, Judy Thomas, Neil Wenger Source Type: research

The Influence of Neoliberalism on Burdensome Life Sustaining Treatments Near the End of Life (RP313)
Burdensome, overly aggressive life-sustaining treatments (LST) near the end of life (EOL), such as mechanical ventilation and resuscitation, have the potential to create ethical challenges where treatments can cause harm and suffering with little chance of benefit. Interventions to reduce inappropriate LST have met with limited success, raising the possibility that the social context within which clinical decisions are made may play a role in the persistence of burdensome care. One such contextual factor is neoliberalism, characterized by free-market capitalism, which encourages a culture of consumerization and unlimited c...
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Elizabeth Dzeng, J. Randall Curtis, Thea Matthews, Jason Batten, Christine Ritchie, Daniel Dohan Source Type: research

Latent Class Analysis to Determine Patients with Advanced Heart Failure at Highest Risk of Poor Outcomes (RP314)
Predicting prognosis for patients with advanced heart failure (HF) is difficult. Most prediction models don't use regularly captured clinical data. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Karen McKendrick, Laura Gelfman, Harriet Mather, Nathan Goldstein, R. Sean Morrison Source Type: research

Communication About Prognosis and Illness Understanding Among Adults Receiving Targeted Therapy (TTx) for Metastatic Non-Small Cell Lung Cancer (mNSCLC) (RP315)
Precision medicine has dramatically improved survival for a subset of adults with mNSCLC, yet mNSCLC remains a life-limiting illness. Prognostic awareness allows patients and caregivers to plan for the future and discuss preferences with their medical team. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Laura Petrillo, Robert Sommer, Lara Traeger, Joseph Greer, Jennifer Temel Source Type: research

Advance Care Planning by an Embedded Social Worker for Patients with Advanced Heart Failure Desiring Heart Transplant or Mechanical Circulatory Support (RP316)
Patients with advanced heart failure who are candidates for mechanical circulatory support and heart transplant are at risk for severe adverse events and long hospital stays leading to death. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Neil Wenger, Codie Lieto, Anne Walling, Mario Deng, Jennie Kung Source Type: research

Palliative Care Consultation for Patients with Central Nervous System Malignancies (RP317)
American Society of Clinical Oncology guidelines recommend early palliative care referral into routine oncology care. Little is known about palliative care utilization among patients with central nervous system (CNS) malignancies. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Rita Crooms, Sean Neifert, Stacie Deiner, Jonathan Gal, Laura Gelfman Source Type: research

Frequency of Preoperative Advance Care Planning for Older Adults Having High-Risk Surgery (RP318)
Although surgery generally proceeds as planned, discussing patient preferences for life-sustaining treatments is important given the potential for poor outcomes. While surgeons believe ACP is commonly addressed, it is unclear how often this occurs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Elle Kalbfell, Anna Kata, Anne Buffington, Nicholas Marka, Karen Brasel, Anne Mosenthal, Zara Cooper, Emily Finlayson, Margaret Schwarze Source Type: research

New Horizons: Evolving Our Understanding of Prognostication in the Era of Machine Learning (RP319)
Significant mismatches exist between patient wishes and care delivery at the end of life. While global capture of end of life patient care preferences remains elusive for the healthcare system, another challenge, especially in an era of rapidly advancing therapies, is accurate prognostication. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Finly Zachariah, Lorenzo Rossi Source Type: research

A Machine Learning Based Risk Stratification Tool to Coordinate Referrals Between Inpatient Specialty and Palliative Care for Patients with Heart Failure (RP320)
Most inpatient palliative care teams rely on referrals from treating physicians. Reliable prognostication necessary to support timely referrals has proven challenging for treating physicians. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Claudia Nau, Peter Khang, Anne Ichiuji, Mingsum Lee, Rebecca Buttler, Janet Lee, Aiyu Chen, Iona (Xia) Li, Huong Nguyen Source Type: research

Living with Versus Dying from End Stage Renal Disease: Dialysis Patients' Experiences with Advance Care Planning (RP321)
People with end stage renal disease (ESRD) experience higher treatment intensity, more hospitalizations and lower rates of advance care planning near the end of life than people with other serious illnesses. Comprehensive care of people with ESRD includes advance care planning conversations that address goals of care well beyond choices between specific options for renal replacement therapy. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Deborah Waldrop, Patricia Denny, Sandra Lauer, Kathleen Grimm Source Type: research

“Connection”—The Integration of a Person-Centered Narrative Interventions into the Electronic Health Record: An Implementation Study (RP322)
Incorporating patient narratives into the EHR is an opportunity to integrate patients' values into their care and improve patient-clinician communication. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Heather Coats, Paula Meek, Lisa Schilling, Terrah Akard, Ardith Doorenbos Source Type: research

MyPref: An Adaptive Conjoint Analysis-based Communication and Cancer Treatment Decision-Making Tool for Adolescents with Advanced Cancer (RP400)
Adolescents and young adults (AYAs) with cancer receive high-intensity care and experience significant symptoms at the end of life. As novel therapies increase, AYAs face multiple treatment options, each with unique risk/benefit profiles. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Jennifer Snaman, Gabrielle Helton, Eve Wittenberg, James Tulsky, Joanne Wolfe Source Type: research

Identifying the Many Functions of Communication in Pediatric Oncology: Perspectives of Parents (RP401)
Communication between clinicians and parents fulfills several important functions, but these functions have not been directly studied in pediatric oncology. A clear understanding of these functions is necessary to better support families now and to develop effective communication interventions in the future. In adult oncology, a National Cancer Institute consortium identified six communication functions: exchanging information, making decisions, responding to emotion, enabling self-management, fostering healing relationships, and managing uncertainty. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Bryan Sisk, Lindsay Blazin, Jennifer Mack, Justin Baker Source Type: research

Popular Smartphone Apps to Improve Wellness and Reduce Stress: Science or Snake Oil? (RP402)
In an oversaturated market of commercially available smartphone apps for psychosocial self-care, providers, patients, and consumers interested in mental health-related apps may wonder which, if any, are efficacious. Metrics available to consumers include user popularity and media buzz. When an app purports to be based in science, its “scientific backing” may not reach classical standards of clinical rigor. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Nancy Lau, Alison O'Daffer, Susannah Colt, Joyce Yi-Frazier, Tonya Palermo, Abby Rosenberg Source Type: research

Facilitators and Barriers of Advance Care Planning Discussions with Adolescents, Young Adults, and Parents of Children with Serious Illness (RP403)
Parents desire earlier and more opportunities for advance care planning (ACP); however, large scale adoption of ACP for seriously ill children and AYAs remains unrealized. Little is known about the perceived facilitators and barriers of ACP discussions. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Lindsay Partin, Danielle DeCourcey, Anna Revette, Joanne Wolfe Source Type: research

When Cancer Survivors Become Cancer Caregivers: Psychosocial Effects on Couples (RP404)
As early detection and treatment improves, more people become cancer survivors, making it increasingly common that survivors eventually care for a spouse also diagnosed with cancer. Understanding these relationships is crucial to understanding patient-caregiver dynamics. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Maija Reblin, Dana Ketcher, Amy Otto Source Type: research

Relating Physical Decline with Reevaluating Goals of Care: A Qualitative Study of Young Men with Duchenne Muscular Dystrophy and Their Caregivers (RP405)
Duchenne Muscular Dystrophy (DMD) is a progressive, life-limiting disease that has evolved into a chronic illness of “unanticipated adults” living into their fourth decade. How these young men appreciate physical changes of disease progression, and whether and how they relate changes to care preferences, is unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Daniel Grossoehme, Rachel Thienprayoon, Hemant Sawnani, Ian Rossman, Kathryn Mosher, Sarah Friebert Source Type: research

Navigating Autonomy During a Vulnerable Transition: Examining Patient and Caregiver Experiences of Transitions from the Hospital to the Home Within a Palliative Care Program (RP406)
Although transitions from hospital to the community are well-described, little is known about the experience of transitioning from inpatient palliative care (IPC) to home-based palliative care (HPC). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Sarina Isenberg, Stephanie Saunders, Tieghan Killackey, Jaymie Varenbut, Emily Lovrics, Ramona Mahtani, Natalie Ernecoff, Kerry Kuluski, Mark Bernstein, Russell Goldman, Camilla Zimmermann, Kirsten Wentlandt Source Type: research

Palliative Care Principles and Advance Care Planning in Pediatric Oncology: Prospective, Longitudinal Investigation of Communication Across the Illness Trajectory (RP407)
In the field of medical oncology, palliative care principles and advance care planning are often discussed late in the illness trajectory, limiting the time available for nuanced discussions to guide goal-concordant care. Presently, the timing, frequency, context, and content of these critical discussions in the setting of pediatric cancer is not well understood. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Erica Kaye, Kendall Kennedy, Melanie Gattas, Justin Baker Source Type: research

Exploring Parental Decision Making Regarding Long-Term Ventilation for Children with and Without Severe Neurological Impairment (RP408)
Decisions around long-term ventilation (LTV) in children should consider the child's illness trajectory. Data suggest that children with severe neurologic impairment (SNI) are at increased risk of LTV being lifelong once placed (permanent) and have increased mortality compared to those without SNI due to their underlying medical complexity. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Vasu Munjapara, Renee Boss, Benjamin Wilfond, Carrie Henderson, Jessica Raisanen, Kelly Shipman, Nicholas Jabre, Jori Bogetz Source Type: research

Poly-Symptomatology in Pediatric Palliative Care Patients: Baseline Evaluation of SHARE Parent-Reported Data (RP409)
Pediatric palliative care (PPC) teams care for patients with a wide variety of conditions, often with substantial medical complexity, making symptom management challenging. Parental report data regarding the frequency and severity of symptoms in these patients has been limited. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Chris Feudtner, Ross Hays, Stefan Friedrichsdorf, Emily Johnston, Sarah Friebert, Tammy Kang, Joanne Wolfe Source Type: research

Quality of Life of Children and Adolescents Undergoing Hematopoietic Stem Cell Transplantation Is Negatively Affected by Psychological Distress Experienced by Their Parents: A Case for Pediatric Palliative Care (RP410)
Hematopoietic stem cell transplantation (HSCT) is curative for children with life-threatening conditions but can result in compromised quality of life (QoL). Parents provide extensive care for their children and can experience distress, yet the association between parent and child outcomes has not been sufficiently investigated. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Chelsea Balian, Jessica Ward, Paula Murray Source Type: research

Supporting In-Home Caregivers in Symptom Assessment of Frail Older Adults with Serious Illness: A Pilot Study (RP411)
Many older adults with serious illness who depend on others for care have symptoms that are difficult to manage. Supporting in-home caregivers in symptom assessment (SA) may improve suffering among older adults. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Sarah Nouri, Aiesha Volow, Christine Ritchie, Brookelle Li, Ismael Tellez, Rebecca Sudore Source Type: research

Difficult Conversations: Telling Adolescents About a Parent's Life Limiting Illness and Death (RP412)
This study describes four ways in which parents disclose information about a parent's life limiting illness and death to their adolescent children. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Mary Mayo, Denice Sheehan, Dana Hansen, Pam Stephenson Source Type: research

Provider Views on Integrating Family Caregivers in Clinical Encounters (RP413)
Family caregivers frequently accompany patients to clinical encounters, particularly when dealing with serious illnesses. Family caregivers, however, are not often invited to be active participants in clinical encounters. Little is known about provider perceptions on engaging caregivers in clinical encounters. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Rachel Havyer, Karen Schaepe, Joan Griffin Source Type: research

Health-Related Quality of Life of Parental Caregivers of Children with Medical Complexity (RP414)
Caregiver health affects health outcomes of those being cared for. Little is known about the health of parental caregivers of children with medical complexity (CMC) or whether receipt of care coordination support is associated with improved caregiver health. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Justin Yu, Kristin Ray Source Type: research

Tracheostomy Decision Making for Children with Medical Complexity: Roles, Factors, Facilitators, and Barriers (RP415)
Children with medical complexity (CMC) receive life-sustaining treatments (LST) such as tracheostomy for survival. Although guiding caregivers about LST is an important aspect of pediatric palliative care, very little is known about decision making process about LST. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Savithri Nageswaran, Shannon Golden, Nancy King, William Gower Source Type: research

Rural/Urban Differences in Clinical Care Task Learning (RP416)
Rural family caregivers for patients with serious illness receive minimal formal training but often perform clinical care tasks far from clinical settings. Evidence-based strategies to prepare caregivers for these tasks are needed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Erin Kent, Eliza Park, Michelle Mollica, James Dionne-Odom Source Type: research

“We Feel Like We Are in the Dark”: A Population Level Qualitative Study of the Training and Support Needs of Hospice Nurses Caring for Children and Families in the Community (RP417)
Approximately 500,000 children suffer from serious illness annually, with 50,000 children dying each year. Many of these children and families are eligible for provision of community-based hospice care, yet few organizations offer formal pediatric services. Recent population level data demonstrate that hospice nurses lack training, experience, and comfort in provision of care to children in the community; however, the specific educational preferences and supportive needs of hospice nurses is not well understood. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Amy Porter, Ashley Kiefer, Melanie Gattas, Justin Baker, Erica Kaye Source Type: research

An Exploration of Questions from Informal Family Caregivers of Cancer Patients in Home Hospice (RP418)
With a growing number of people choosing home hospice care after a terminal cancer diagnosis, communication between the hospice nurse and the informal caregiver is at the forefront of hospice care. Expert communication is vital to convey not only how to carry out the plan of care but also how assess family caregiver's understanding that plan. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Katherine Doyon, Maija Reblin, Lee Ellington Source Type: research

Disparities in End-of-Life Care in Children Dying of Cancer in Alabama (RP419)
Nearly 2,800 children die from cancer annually, yet gaps remain in our understanding of their end-of-life (EOL) care. Racial disparities exist in medical intensity (e.g. mechanical ventilation, hemodialysis) of adult EOL care that do not reflect patient preference. It is unknown if the same racial disparities exist in pediatric oncology EOL, especially among African Americans. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Elizabeth Davis, Isaac Martinez, Smita Bhatia, Emily Johnston Source Type: research

Despite Prognostic Awareness and Advance Care Planning Parents Feel Unprepared at End of Life for Children with Complex Chronic Conditions (RP420)
Children with complex chronic conditions (CCC) have lifelong, life-threatening health problems with high mortality. With increasing pediatric palliative care availability and advance care planning, little is known about how access to these services influences parental preparedness for their child's end-of-life (EOL). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Jori Bogetz, Anna Revette, Abby Rosenberg, Joanne Wolfe, Danielle DeCourcey Source Type: research

Family Caregiver Burden Among Advanced Cancer Patients: Findings from the CONNECT Trial (RP421)
Family caregivers for patients with advanced cancer spend significant time caregiving and experience burden that has been associated with poor outcomes. Patient-related factors associated with caregiver burden in this population are not well understood. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Wagahta Semere, Andrew Althouse, Douglas White, Robert Arnold, Thomas Smith, Margaret Rosenzweig, Kenneth Smith, Yael Schenker Source Type: research

Personal Spirituality and Perceived Importance of Discussing Spirituality Among Parents of Children with Cancer, Pediatric Oncologists, and Psychosocial Clinicians (RP422)
Spiritual meaning-making impacts parents' experiences of childhood cancer care. A recent systematic review (Robert et al, Pediatr Blood Cancer, 2019) advocated spiritual needs assessments throughout the illness trajectory. However, families of children with newly diagnosed cancer may lack immediate and routine access to chaplaincy. Thus, we sought to understand parent, oncologist, and psychosocial clinician preferences for discussing spirituality. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Angela Feraco, Sarah McCarthy, Sarah Stevens, Joanne Wolfe Source Type: research

Intersectionality of Gender and Poverty on Symptom Suffering Among Adolescents with Cancer (RP423)
Cancer survival has improved far less for adolescents than it has for older patients. Bona and colleagues identified adverse effects of poverty on relapse and survival for children with cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Sarah Friebert, Jennifer Needle, Jessica Thompkins, Justin Baker, Yao Cheng, Jichuan Wang, Maureen Lyon Source Type: research

Healthcare Utilization and End-of-Life Care Outcomes for Patients with Decompensated Cirrhosis Based on Transplant Candidacy (RP500)
Patients with decompensated cirrhosis have high rates of healthcare utilization at end-of-life (EOL). However, the impact of transplant candidacy on intensity of EOL care is currently unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Nneka Ufere, Jennifer Halford, Joshua Caldwell, Min Young Jang, Sunil Bhatt, John Donlan, Janet Ho, Vicki Jackson, Raymond Chung, Areej El-Jawahri Source Type: research

Lack of Exposure to Hospice and Palliative Medicine Training for African American Students: The State of the U.S. Medical Education System (RP501)
The hospice and palliative medicine (HPM) workforce lacks racial diversity; less than 5% of HPM fellows are African American (AA). Little is known about AA trainees' exposure to HPM during medical school and residency training. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Lindsay Bell, Jessica Livingston, Yael Schenker, Robert Arnold, Tessie October Source Type: research

Keystones in Behavioral Intervention Research in Hospice and Palliative Care (RP502)
The design of behavioral interventions in hospice and palliative care needs to acknowledge the unique challenges of these settings. Strategies to integrate ethical and cultural considerations, and to improve likelihood for translation into practice are needed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: George Demiris, Debra Parker Oliver, Karla Washington Source Type: research

National Variation in Palliative Care and Associated Outcomes Among Decedents with Heart Failure in Veterans Affairs Medical Centers (RP503)
National policies require that all Veterans with serious life-limiting illness have access to palliative care at all Veterans Affairs Medical Centers (VAMCs). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Shelli Feder, Mary Ersek, Ann Kutney-Lee, Nancy Redeker, Lori Bastian, Kathleen Akgun Source Type: research