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Unique Palliative Care Considerations for Patients at the US-Mexico Border: A Case Study
1. Understanding the perceptions of palliative care, treatment preferences, and end-of-life wishes of latino patients, participants will self-report the ability to apply these perceptions to guide conversations in Hispanic and Latino Populations approaching the end of life.2. Understanding border policies and health resources that affect palliative care, participants will self-report the ability to integrate border policies and health resources possible for uninsured and undocumented patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Tetsuyuki Kawai, Nancy Weber, Agnes Ayokosok, Jeanne Lee, Sarah Johnson Source Type: research

Variation in US Hospital Policies Addressing Decisions to Withhold and Withdraw Life Sustaining Treatment
1. Attendees will understand the extent US hospital policies address sociodemographic disparities in decisions to withhold or withdraw life sustaining treatment.2. Attendees with learn about reasons hospital policies permit the withholding or withdrawing life sustaining treatment. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Gina Piscitello, Patrick G. Lyons, Valerie Koch, William F. Parker, Michael Huber Source Type: research

Wild Swings of the Pendulum: The Estranged Surrogate Decision Maker in the ICU
1. Gain an understanding of substituted judgment and its historical context in American healthcare.2. Learn effective strategies for eliciting substituted judgment from surrogate decision-makers and develop insights into the dynamics of estrangement and recommended clinician responses when dealing with estranged families in medical decision-making. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Amtul M. Malik, Laura Hofmann, Maleeha Ruhi, Elizabeth L. Cobbs, Mona S. Wilson Source Type: research

"What's that Movement" - Practical Tips for Caring for Children with Serious Neurological Conditions
1. Using a case based approach, participants will be able to distinguish between different types of movement disorders in children with serious neurological impairments.2. Using a case based approach, participants will learn different pharmacological and non pharmacological management techniques for movement disorders in children with serious neurological impairments. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Tracy Hills, Heather Riordan, Rachna May Source Type: research

A National Survey describing Management Patterns for Pediatric Paroxysmal Sympathetic Hyperactivity (PSH)
1. Classify the common abortive and prophylactic medication choices to treat pediatric PSH.2. Recognize the variation in pharmacologic management between pediatric specialties for treating pediatric PSH. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Hitoshi G. Koshiya, Laura Kirkpatrick, Alyssa Zuziak, Julie Hauer, Justin A. Yu Source Type: research

An Amish Family's Hospital Experience at End-of-Life: The Importance of Culturally-Sensitive Visitation Policies
1. Utilizing a case-based approach, participants will be able to advocate for the specific values and preferences of end-of-life care in Amish patients.2. Utilizing a case-based approach, participants will develop an approach to advocate for culturally-sensitive care at the systems level for all patients. For example, they will be able to re-evaluate hospital visitation polices in the post-COVID-19 pandemic era. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Cesar E. Garcia-Canet, Michelle Rhodes, Keisha White Makinde Source Type: research

Caregiver Decision-Making Regarding Tracheostomies in Preterm Infants with Severe Bronchopulmonary Dysplasia
1. Describe caregiver decision-making experiences regarding tracheostomy placement in infants with severe bronchopulmonary dysplasia, including from families that have chosen not to proceed with tracheostomy and families that speak Spanish.2. Practically integrate caregiver perspectives and advice to improve clinical care for other families facing this decision. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Rachel M. Macak, Teresa Glade, Ivy Hansen, Tsivya Devereaux, Kristen Ameel, Katie Gradick, Dominic Moore, Jody L. Lin Source Type: research

Child and Caregiver Perspectives on COVID-19 During Pediatric Cancer Treatment: A Mixed Methods Approach
1. Utilizing a mixed-methods approach, participants will recognize the importance of including both qualitative and quantitative data in analysis of patient and caregiver perspectives during treatment.2. Through these results, participants will be able to integrate knowledge of themes identified in this patient population to their own patient cohorts. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Anne Byrd Mahoney, Jennifer Newton, Brittany Cowfer, Mary Jo Gilmer Source Type: research

Decision-Making Factors in Advanced or Incurable Childhood Cancer Diagnosis in Low- and Middle- Income Countries
1. Using a structured approach, participants will self-report the ability to understand the static and dynamic factors that influence treatment decision-making at diagnosis for children presenting with advanced cancer in LMICs.2. Participants will reflect on the need to revise and develop treatment guidelines that are adaptable to resource-constrained settings and consider challenges faced by physicians caring for children presenting with advanced cancer at diagnosis, considering also the need to explore decision-making approaches of other key decision-partners. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Alaina Rule, Marta Salek Source Type: research

Development of a Pediatric Palliative Care Roadmap Based on Quality Metrics and Psychosocial Standards of Care
1. Understand currently described pediatric palliative care quality metrics within the context of pediatric oncology psychosocial standards of care.2. Apply pediatric palliative care quality metrics and psychosocial standards of care to their own end of life team processes to facilitate equity and improved communication through the development of their own palliative care roadmaps specific to their local institution. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Connor Cocke, Jaxon Vallely, Teresa Black, Rebecca A. Ruck, Haree Pallera, Turaj Vazifedan, Melissa San Julian Mark Source Type: research

Early Palliative Care Introduction in Pediatric Neuro-Oncology Patients
1. Utilizing patient and provider interview data, participants will self-report the ability to advocate for early Introduction of pediatric palliative care in the treatment of neuro-oncology tumors.2. Utilizing patient and provider interview data, participants will self-report the ability to comprehend differences in provider and patient experience with early Introduction of pediatric palliative care in the treatment of neuro-oncology tumors. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Gabriel Daniels, Raba Tefera, Isaac Martinez, Susan Buckingham, Laura K. Metrock, Sasha Ramini, Smita Bhatia, Emily Johnston Source Type: research

Embers in Existence: Spiritual and Existential Distress in a Burn Injury Resulting from Spiritual Practice
1. Participants will better understand the distinct spiritual and existential challenges faced by pediatric burn patients, especially those stemming from fire-related religious practices.2. Participants will be able to identify how interdisciplinary collaboration between pediatric palliative care, spiritual care, and burn surgery specialists can effectively identify and address key themes like meaning-making and identity in pediatric burn cases. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Jennifer A. Salant, Stephen B. Douglas, Claire Slusarz, Philip Chang, CB Stewart Source Type: research

End of Life Ethical Considerations for Children of Parents Who Are Incarcerated
1. Utilizing a case-based approach, participants will self-report the ability to analyze and address the complex practical needs of the seriously ill or dying child with an incarcerated parent.2. Upon successful completion participants will be able to analyze and address the complex social and ethical considerations faced when a sick child dies and their incarcerated parent is not granted privileges to be present at the end of their life. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Lauren Baumgardner, Alyssa E. Tilly, Annie Creasey Source Type: research

Free and Appropriate: Navigating School Integration for Pediatric Patients Receiving Palliative Care or Hospice
1. Participants will self-report the ability to evaluate the complexities and nuances of school (re)integration for pediatric patients receiving palliative care or hospice.2. By utilizing an interdisciplinary approach which includes families and schools, participants will self-report the ability to facilitate school (re)integration for children receiving palliative care or hospice. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Elizabeth Maxwell, Alexandra M. Satty, Caitlin French, Nicholas Purol, Christina K. Ullrich Source Type: research

From Devotion to Power Differential: Where Parents, Providers, and Prayer Collide
1. Explore the zone of parental discretion and its impact on patient care within the hospital setting.2. Explore the principle of intimacy with formality and the role of the medical provider when religion directs care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Caitlin J. Creel, Vidhi Makanji, Grace N. Slater Source Type: research