Using Latent Profile Analysis to Classify Longitudinal Symptom Burden in Children with Advanced Cancer (GP767)
Children with advanced cancer experience physical and psychological symptom burden. Emphasis on cross-sectional evaluation of symptoms in children with advanced cancer has led to gaps in understanding the dynamic nature of symptoms over time and factors associated with different trajectories of symptom burden. The presence of distinct symptom trajectories in children with advanced cancer is largely unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Kathleen Montgomery, Roger Brown Source Type: research

Parenting in Serious Pediatric Illness: A Mixed Methods Study (GP768)
Nearly two-thirds of children requiring palliative care services have siblings, thus parents must consider their children ’s various needs. Exploring parenting in serious pediatric illness and palliative care provides insight into parents' challenges and sources of distress, as well as opportunities for support. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Kim Mooney-Doyle, Janet Deatrick, Connie Ulrich, Salimah Meghani, Chris Feudtner Source Type: research

A Dimensional Analysis of Inner Strength in People Aging with Serious Illness (GP769)
Palliative care shows promise in addressing the needs of older adults aging with serious life-limiting illness. Inner strength may be a mechanism for understanding the process of aging with serious illness and in turn facilitate improved models of care for this population. However, previous conceptual and theoretical models of inner strength are limited leaving the potential for clinical application untapped. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Brianna Morgan Source Type: research

Primary Palliative Care in the Trauma Intensive Care Unit: Are Surgeons Getting Better? (GP770)
Devastating or fatal injuries in critically ill trauma patients provide unique challenges to trauma providers and patient families. Studies describing impacts of early goals of care (GOC) discussions, specialty palliative care consults, and the provision of primary palliative care are limited. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Andrea Nagengast, Shannon Howard, David Zonies, Karen Brasel, Timothy Siegel Source Type: research

Improving End-of Life Care: Implementation and Evaluation of the 3 Wishes Project in an American Health System (GP771)
Empathy, dignity, and goal-concordance are cornerstones of high quality end-of-life (EOL) care. Initiated in Canada, the 3 Wishes Project (3WP) is a program where clinicians elicit and implement final wishes for patients dying in intensive care units (ICU) and their families in an effort to improve the EOL experience. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Thanh Neville, Peter Phung, Danielle Bear, Neha Agarwal, Xueqing Xu, Yuhan Kao, Kristen Hjelmhaug, Jessica Hainje, Marilyn Swinton, Patricia Jakel, Allegra Bell, Rayna Ewer, Kelly McCann, Daniel Karlin, Leah Roque, Natalie Sanaee, Jennifer Do, Melanie Don Source Type: research

Translating Evidenced-Based Guidelines into Clinical Practice using Goal Setting and Palliative Program Dashboards (GP772)
Palliative medicine practice is increasingly informed by evidence from clinical trials performed in academic medical centers. This evidence informs national practice guidelines, such as the National Consensus Project (NCP) and American Society of Clinical Oncology, aimed at improving quality of patient care. Translating these evidence-based guidelines into clinical practice is difficult due to resource limitations and lack of established models of palliative care delivery. This leads to gaps between published guidelines and clinical practice, particularly in the community setting. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Kristina Newport, Michelle Farnan, Sarah Miller, Caitlyn McNaughton, Shanthi Sivendran Source Type: research

Inpatient Opioid Stewardship Initiative to Improve Pain Assessment by Housestaff (GP773)
Prescription opioids account for over 70% of opioid addiction and more than 50% of opioid related deaths. Interventions have focused on efforts to reduce outpatient prescribing, but limited focus on inpatient prescribing. A survey of general internal medicine residents found that 17% have a system for daily pain assessment and 25% rarely or never evaluated their patients ’ total oral morphine equivalents (OME). The lack of standardization was considered a factor that lead to inconsistent opioid prescribing practices. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Kavitha Norton, Jennica Johns, Susan Li, Anghela Paredes, Michael Villarreal, Suzanne Hoholik, Scott Holliday Source Type: research

Patterns of Home Health and Hospice Service Use in the Last Year of Life among Community-Dwelling Older Adults with and without Dementia (GP774)
Home health and hospice are distinct supportive services that help older adults remain in their homes. Home health workers are required to receive 75 hours of training total, with little training devoted to palliative care for persons with dementia (PWD). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Anna Oh, Kanan Patel, Wendy Max, Caroline Stephens, Christine Ritchie, Alexander Smith Source Type: research

Racial disparities in end of life treatment intensity: Findings from the REGARDS study (GP775)
Although high intensity treatment at the end of life (use of life sustaining procedures) and multiple hospital and ED visits are common, most patients and families prefer to receive supportive care at the end of life in their homes. Hospice supports patients and families through interdisciplinary care focused on symptom management and maximization of quality of life. Yet many patients do not use hospice at all or enter care too late to receive any benefit. While racial disparities in treatment intensity at the end of life including hospice use have been documented, with non-whites receiving less hospice and more intensive ...
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Katherine Ornstein, David Roth, Jin Huang, Orla Sheehan Source Type: research

The Dreaded Data Monitoring Plan: Building Something Useful (GP776)
Data and safety monitoring plans are required for all federally funded clinical trials. These plans traditionally focus on assuring data quality and participants ’ safety and are often dreaded by researchers because of their complexity and administrative burden. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Debra Parker Oliver, Karla Washington, George Demiris Source Type: research

Describing the Spiritual Care Needs of Patients of Eastern Faiths (GP777)
Spiritual care is recognized as an integral component of cancer care, but little is known about the spiritual care needs or the utilization of chaplaincy services among hospitalized patients in the US who identify with the Eastern faiths (Hinduism, Buddhism, Sikhism). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Rushil Patel, Jill Bowden, Laurie Andersen, Judith Nelson Source Type: research

Symptom Experiences of Patients with Multiple Chronic Conditions Including Cancer: A Pilot Study (GP778)
Frequently individuals diagnosed with cancer also have other chronic conditions. Multiple chronic conditions (MCCs) has been defined as ≥2 conditions present for ≥12 months. Symptom management is a key component of comprehensive cancer care however little is known about the symptom experience of individuals with MCCs including cancer as they are often excluded from clinical research. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Isabella Penniston, Stephanie Gilbertson-White, Seyedehtanaz Saeidzadeh Source Type: research

Home Hospice as a Strategy for Promoting Better Care and Preventing Overuse within a Health Insurance Company in Brazil (GP779)
Palliative Care (PC) has been consistently associated with improvements in advance care planning, patient and caregiver satisfaction, and lower health care utilization. Finding new models of end-of-life care to meet the needs of an increasingly co-morbid and ageing population is an international challenge. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Maria Perez Soares D'Alessandro, Ana Maiello, Sebastian Geiger, Fabio Ferreira Correa, Patricia Neumann, Alexandre Rose Source Type: research

High Quality Care in Hospice? Medical Director Perspectives on Caring for Patients with Obesity in the United States (GP780)
As the prevalence of obesity in the US increases, hospices are caring for more patients with obesity. Several domains of quality exist for care pertaining to individual patient and systems-level issues. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Chithra Perumalswami, John Harris, Jennifer Griggs Source Type: research

Elements of Family, Social Relationships, and Caregiving in Palliative Care mHealth: A Scoping Review (GP781)
Mobile health (mHealth) can increase access to and awareness of palliative and end of life (PCEOL) care among patients, families, and caregivers from diverse backgrounds. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Jennifer Portz, Kira Elsbernd, Kelsey Ford, David Bekelman, Evan Plys Source Type: research

Predictors of Opioid-Nonresponsiveness in Post-Acute Care are Shared with Centralized Pain: A Pilot Feasibility Study (GP782)
Opioids are frequently used among older adults admitted to post-acute care (PAC), but some respond inadequately and adverse effects are common. Prior studies suggest those who receive opioids but continue to report pain may have central nervous system (CNS) sensitization. It is unclear how best to classify pain as opioid-nonresponsive and whether clinical correlates are shared with CNS sensitization. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Victoria Powell, Robert Hogikyan, April Bigelow, Maria Silveira Source Type: research

Evaluation of Fluoroquinolone Use in Hospice Patients (GP783)
Since 2004, the Food and Drug Administration (FDA) has released eight safety communications regarding serious adverse effects associated with fluoroquinolones, including peripheral neuropathy, tendonitis/tendon rupture, worsening of myasthenia gravis, central nervous system effects (confusion, hallucinations), hypoglycemia, QTc prolongation, and aortic tear/rupture. An FDA Boxed Warning was issued to reserve use of fluoroquinolones for patients with no alternative treatment options for acute bacterial sinusitis, acute bacterial exacerbation of chronic bronchitis, and uncomplicated urinary tract infections. (Source: Journal...
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Bridget Protus, Amanda Lovell Source Type: research

Moral Distress in Health Care Professionals (GP784)
Providing uncompromised compassionate care to patients and their families at their most vulnerable time can be a truly rewarding experience for many healthcare workers. A changing landscape in healthcare fueled by contentious debate can place providers in a unique situation, where their ability to carry out clinical duty is questioned due to the perception of ethically inappropriate action. These situations may occur often and are frequent sources of moral distress among providers. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Lucan Rodrigues, Kelly Cervellione, Priscila Echevarria Source Type: research

Surrogates ’ Assessment of Patient’s Minimally Acceptable Recovery and Recalibration after Severe Acute Brain Injury (GP785)
Severe acute brain injury (SABI) is a major cause of morbidity and mortality that requires complex decisions. As patients commonly lack decision-making capacity, surrogates are called upon to make life-or-death treatment decisions that are challenged by uncertainty regarding prognosis and patient ’s presumed goals of care (GoC). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Rachel Rutz Voumard, Whitney Kiker, Rachael Schutz, Gian D. Borasio, J. Randall Curtis, Ralf Jox, Claire Creutzfeldt Source Type: research

Moral Distress among US Nephrology Fellows: Report of a Nationwide Survey (GP786)
Moral distress is a severe and negative emotional response experienced during a situation that conflicts with a healthcare professional ’s personal or professional ethics and values. Such distress is frequently experienced by healthcare professionals caring for chronically ill patients and may contribute to burnout potentially leading to a health care professional to leave his or her job. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Fahad Saeed, Scott Liebman Source Type: research

Adapting a Palliative Care Literacy Intervention for Use in Israel (GP787)
Although palliative care (PC) is growing in Israel, few receive PC due to lack of knowledge and availability of services. Increased PC literacy and use is needed to improve health outcomes. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Dena Schulman-Green, Shelli Feder, David Collett, Yael Eilon, Eliana Aaron, Yafa Haron, Hanna Admi Source Type: research

Longitudinal Perception of Prognosis of Patients with High Grade Glioma Compared to their Caregivers and Clinicians (GP788)
Treatment options and prognosis are limited for patients with high grade glioma (pwHGG), underscoring the importance of patient and caregiver understanding to prioritize goals of care and quality of life. Patients and caregivers may experience discordance in understanding prognosis. Multiple factors may contribute to this discordance including cognitive decline, poor communication, emotional shock, grief, coping, etc. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Akanksha Sharma, Eric Wolfe, Celina Barrera, Samantha Williamson, Hannah Farfour, Mark Edwin Source Type: research

Central Pain in Patient with Cancer (GP789)
Despite the current efforts to manage cancer pain with opioids, a significant number of cancer patients still experience pain. One reason may be that such patients have pain that comes from problems with the brain ’s processing of pain rather than nociception, neuropathy, or inflammation. Pain related to aberrant central nervous system processing is called “central pain.” Central pain is the key pathway in many chronic pain syndromes (e.g. fibromyalgia). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Maria Silveira Source Type: research

Palliative Oncology Tumor Board: Implementation and Impact on Hospitalized Patients with Cancer (GP790)
The multidisciplinary tumor board (MTB) is a recognized format for discussion of complex oncology cases with experts of varied disciplines. The optimal incorporation of palliative care into the MTB is yet to be determined. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Shanthi Sivendran, Caitlyn McNaughton, Wendy Wilson, Roxanne Bolinger, Elizabeth Horenkamp Source Type: research

Developing a Spiritual Assessment Tool for Palliative Care (GP791)
Despite the mandate of palliative care and JCAHO there exists no gold standard, empirically developed and rigorously validated tool to assess spiritual care needs and thus translate preferences for care providers. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Karen Steinhauser, Heather King, Ryan Parker, Miriam Kirshner Source Type: research

Symptoms and Management Strategies for Older Chinese Adults with End Stage Renal Disease (ESRD) and Other Chronic Conditions (GP792)
Over $50 billion is spent on elderly patients with chronic kidney disease in the United States; with 1.5 times higher incidence of end stage renal disease (ESRD) in Asian Americans compared to Caucasians, there is a dire need to improve self-care and symptom management studies for this population. ESRD patients typically have a very short life expectancy and do not qualify for hospice benefits while they remain on dialysis or transplant lists. There are calls to strengthen palliative care for ESRD patients to help decrease distressing symptoms. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Carolyn Sun, Jingjing Shang, Pat Stone Source Type: research

Hospice Family Caregivers' Use of Audio Diaries: Preliminary Findings (GP793)
Evidence suggests that meaning-making and emotional processing can improve home hospice family caregivers' (HFCs) well-being. Previous work has used diary writing to process stressful events; in the current study, HFCs were asked to record brief daily audio diaries. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Kristin Cloyes, Elizabeth Porter, Maija Reblin, Kathi Mooney, Djin Tay, Lee Ellington Source Type: research

Defining a “Good Death” in Pediatric Oncology: A Mixed Methods Study of Healthcare Providers (GP794)
Empirical descriptions of a “good death” serve as the foundation for providing quality end of life (EOL) care for older adults. In contrast, little is known about what defines a “good death” in pediatric settings. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Mallory Taylor, Krysta Barton, Jenny Kingsley, Abby Rosenberg Source Type: research

A Moderating Model of Self-Efficacy in Caregivers of Latina Breast Cancer Survivors (GP795)
In caregivers of Latina breast cancer survivors, contextual factors such as informational support, Anglo-orientation, and spiritual well-being may affect physical and mental health. Historically, studies have focused on caregiver self-efficacy for cancer survivor health rather than caregiver health. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Megan Thomas Hebdon, Tracy Crane, Pamela Reed, Terry Badger Source Type: research

Attitudes of Undergraduate and Graduate Nursing Students Toward Caring for Dying Patients and Their Families: An Educational Needs Assessment (GP796)
Understanding the attitudes of nursing students toward caring for dying patients and their families is one key element for course content and design in palliative and end-of-life education. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Susan Thrane Source Type: research

Implementing Advance Care Planning in a Range of Primary Care Practices: Adapting the Serious Illness Care Program for a Comparative Effectiveness Trial (GP797)
Advance care planning (ACP) is an important foundational step in consideration of palliative care by clinicians and patients and in maximizing wellbeing of patients with serious illnesses. To realize this potential ACP needs to be routine in settings where these patients receive care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: David Nowels, Seiko Izumi, Annette Totten Source Type: research

Palliative Care Consultation and EOL Care In Trauma Patients: A Descriptive Study (GP798)
Patients involved in severe accidents have complex medical needs that go beyond the surgical care. The current guidelines from the American College of Surgeons recommend the integration of Palliative Care (PC) to the surgical care with early assessment to define the goals of care. PC is an undeveloped field in Puerto Rico, currently with only two inpatient programs. The Puerto Rico Trauma Hospital (PRTH) has established the first inpatient PC program at a public hospital which includes a unit for end-of-life called Palliative Care Unit (PCU). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Liliana Viera-Ortiz, Clariliz Munet, Mariely Nieves-Plaza Source Type: research

Parental Satisfaction with Communication in the Pediatric Cardiac Intensive Care Unit is Associated with Parental Anxiety and Education (GP799)
Little is known about parental satisfaction in communication with the pediatric cardiac intensive care unit (CICU) team although gaps in prognostic understanding have been documented. While increased levels of anxiety have been reported in other ICU settings, how this is associated with communication satisfaction is unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Jennifer Walter, Theodore Schall, Rui Xiao, Aaron Dewitt, Chris Feudtner Source Type: research

One Size Does Not Fit All: Exploring Dose Effect of an Early Palliative Care Intervention for Advanced Heart Failure Patients (GP800)
Guidelines recommend integration of palliative care (PC) in heart failure (HF), but little is known about factors associated with intervention completion and the most beneficial PC ‘dose.’ (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Rachel Wells, James Dionne-Odom, Andres Azuero, Harleah Buck, Sally Engler, Konda Keebler, Sheri Tims, Macy Stockdill, Elizabeth Sockwell, Deborah Ejem, Rodney Tucker, Kathryn Burgio, Raegan Durant, Salpy Pamboukian, Keith Swetz, Marie Bakitas Source Type: research

Development and Protocol for a Nurse-Led Telephonic Palliative Care Program (GP801)
Can nurses working with patients telephonically provide high quality palliative care to reduce the burden of understaffed palliative care services. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Rebecca Yamarik, Audrey Tan, Jeanne Cho, Corita Grudzen Source Type: research

End of Life in the Neurological Intensive Care Unit: Is Extubating to Comfort Care Comfortable? (GP802)
Patients extubated to comfort in the neurological intensive care unit (Neuro-ICU) are unique because their principal underlying cause of death is primarily neurological; thus, their end of life symptoms may be related to neurological pathology, multisystem dysfunction, or both. However, little is known about symptom development and control in these patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Angela Yeh, Christopher Pietras, David Wallenstein, Peifeng Hu Source Type: research

Case Report of the Importance of ‘Body Integrity’ to a Vietnamese-Chinese American Patient for End of Life Care and Terminal Extubation (GP803)
Recognize the importance of ‘body integrity’ to the Vietnamese-Chinese American community in relation to end of life care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Henry Zeng, V.J. Periyakoil Source Type: research

Career Breakout Sessions Early Career Break Out (CB801)
Explore the early grant experience with panelists Jennifer Mack, MD MPH, Virginia LeBaron, APRN PhD FAANP, Yael Schenker, MD MAS, and Cardinal Smith, MD PhD, as they discuss key resources for early career investigators and what they wish they had known as they were getting started. Engage in a lively discussion designed to address your questions moderated by Emily Johnston, MD MS, and Laura Petrillo, MD. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Jennifer Mack, Virginia LeBaron, Yael Schenker, Cardinale Smith, Emily Johnston, Laura Petrillo Source Type: research

Mid-Career Break Out (CB802)
Now you are managing grants and leading research teams. Corita Grudzen, MD MSHS, Maija Reblin, PhD, and Lynn Reinke, PhD RN ARNP NP will share their grant management strategies, lessons learned, and the successes and challenges of stepping into a leadership role, delegating tasks to team members, and managing staff. Brief presentations will be followed by a discussion with the panel facilitated by Lee Ellington, PhD. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Corita Grudzen, Maija Reblin, Lynn F. Reinke, Lee Ellington Source Type: research

Senior Career Break Out (CB803)
So where do we go from here? You are engaged in a successful career as an investigator. How do you sustain creativity? What is your vision for the field of palliative care research and how are you contributing to this vision? What is your role in translating findings into policy? When do you consider a major career decision? Join Chris Feudtner, MD PhD MPH, Maureen Lyon, PhD and Christine Ritchie, MD MSPH for a time of sharing and discussion. Kathryn Pollak, PhD, and Jean Kutner, MD MPH/MSPH, will moderate this discussion. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Chris Feudtner, Maureen E. Lyon, Christine S. Ritchie, Kathryn I. Pollak, Jean S. Kutner Source Type: research

Keepsakes at the End of Life
Keepsakes are a relatively unexplored form of bereavement support that is frequently provided as part of the 3 Wishes Project (3WP). The 3WP is a palliative care intervention in which individualized wishes are implemented in the adult intensive care unit for dying patients and their families. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Thanh H. Neville, France Clarke, Alyson Takaoka, Marina Sadik, Meredith Vanstone, Peter Phung, Kristen Hjelmhaug, Jessica Hainje, Orla M. Smith, Allana LeBlanc, Neala Hoad, Benjamin Tam, Brenda Reeve, Deborah J. Cook Tags: Original Article Source Type: research

The Feasibility and Acceptability of a Cognitive Behavioral Therapy-based intervention for Patients with Advanced Colorectal Cancer
Context/ objectives: Advanced colorectal cancer and its treatment can bring about challenges associated with psychological distress. The primary aims of this study were to examine the feasibility and acceptability of a cognitive behavioral therapy (CBT)-based intervention to improve coping with the disease. The secondary aim is to evaluate preliminary intervention efficacy. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Irene Teo, Yee Pin Tan, Eric A. Finkelstein, Grace Meijuan Yang, Fang Ting Pan, Henry Yuen Foong Lew, Emile Kwong Wei Tan, Simon Yew Kuang Ong, Yin Bun Cheung Source Type: research

Measuring Self-Efficacy and Readiness for Advance Care Planning in Chinese Older Adults
Self-efficacy and readiness for advance care planning (ACP) is underresearched in the Chinese population given that these are novel concepts in the culture. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Li. Liu, Ya-yi. Zhao, Li-Hui. Zhang, Helen Yue-lai. Chan Source Type: research

Cancer Patients' Perceived Difficulties Filling Opioid Prescriptions After Receiving Outpatient Supportive Care
Limited access to opioids for patients with cancer has been reported as a potential unintended consequence of recent regulations restricting opioid use and prescribing practices. To our knowledge, there are a limited number of peer-reviewed studies that evaluate the perceived difficulties of the patients with cancer when filling their opioid prescription. To understand these difficulties, we surveyed patients receiving opioids in our outpatient supportive care center (SCC). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2020 Category: Palliative Care Authors: Jessica H. Brown, Hilda P. Torres, Rama D. Maddi, Janet L. Williams, Seyedeh S. Dibaj, Diane Liu, Eduardo Bruera Tags: Original Article Source Type: research

Palliative Care for Idiopathic Pulmonary Fibrosis Patients: Pulmonary Physicians' View
Although idiopathic pulmonary fibrosis (IPF) has worse outcomes compared with most malignancies, patients with IPF receive poor access to optimal palliative care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2020 Category: Palliative Care Authors: Norimichi Akiyama, Tomoyuki Fujisawa, Tatsuya Morita, Kazutaka Mori, Hideki Yasui, Hironao Hozumi, Yuzo Suzuki, Masato Karayama, Kazuki Furuhashi, Noriyuki Enomoto, Yutaro Nakamura, Naoki Inui, Takafumi Suda Tags: Original Article Source Type: research

Palliative care for idiopathic pulmonary fibrosis patients: Pulmonary physicians ’ view
This study aimed to characterise the practice of pulmonologist ’s regarding palliative care and end of life communication for patients with IPF and identify perceived difficulties and barriers thereto. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2020 Category: Palliative Care Authors: Norimichi Akiyama, Tomoyuki Fujisawa, Tatsuya Morita, Kazutaka Mori, Hideki Yasui, Hironao Hozumi, Yuzo Suzuki, Masato Karayama, Kazuki Furuhashi, Noriyuki Enomoto, Yutaro Nakamura, Naoki Inui, Takafumi Suda Tags: Original Article Source Type: research

Cancer Patients ’ Perceived Difficulties Filling Opioid Prescriptions After Receiving Outpatient Supportive Care
Limited access to opioids for cancer patients has been reported as a potential unintended consequence of recent regulations restricting opioid use and prescribing practices. To our knowledge, there are a limited number of peer-reviewed studies that evaluate cancer patients ’ perceived difficulties when filling their opioid prescription. To understand these difficulties, we surveyed patients receiving opioids in our outpatient Supportive Care Center (SCC). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2020 Category: Palliative Care Authors: Jessica H. Brown, Hilda P. Torres, Rama D. Maddi, Janet L. Williams, Seyedeh S. Dibaj, Diane Liu, Eduardo Bruera Tags: Original Article Source Type: research

Off-label and unlicensed drugs in pediatric palliative care: a prospective observational study
Off-label and unlicensed use of drugs is a widespread practice in pediatric care due to the lack of specific efficacy and safety data and the absence of formulations adapted to the needs of these individuals. Pediatric patients with a life-limiting illness frequently receive drugs under these conditions, though no studies have established the prevalence of this practice. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2020 Category: Palliative Care Authors: Isabel Garc ía-López, Margarita Cuervas-Mons Vendrell, Irene Martin Romero, Iñigo de Noriega, Juana Benedí González, Ricardo Martino-Alba Tags: Original Article Source Type: research

The Creation of a Psychiatry-Palliative Care Liaison Team:  Using Psychiatrists to Extend Palliative Care Delivery and Access During the COVID-19 Crisis
During the course of March and April 2020, New York City experienced a surge of a 170,000 coronavirus disease 2019 (COVID-19) cases, overwhelming hospital systems and leading to an unprecedented need for palliative care services. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 13, 2020 Category: Palliative Care Authors: Daniel Shalev, Shunichi Nakagawa, Oliver M. Stroeh, Melissa R. Arbuckle, Rebecca Rendleman, Craig D. Blinderman, Peter A. Shapiro Tags: COVID-19 Articles Fast Tracked Articles Source Type: research

The Creation of a Psychiatry-Palliative Care Liaison Team: Using Psychiatrists to Extend Palliative Care Delivery and Access During the COVID-19 Crisis
During the course of March and April 2020, New York City experienced a surge of a 170,000 coronavirus disease 2019 (COVID-19) cases, overwhelming hospital systems and leading to an unprecedented need for palliative care services. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 13, 2020 Category: Palliative Care Authors: Daniel Shalev, Shunichi Nakagawa, Oliver M. Stroeh, Melissa R. Arbuckle, Rebecca Rendleman, Craig D. Blinderman, Peter A. Shapiro Tags: COVID-19 for Fast Track Publication Source Type: research