The Experience of Emergency Department Providers with Embedded Palliative Care during COVID
Although the importance of palliative care (PC) integration in the Emergency Department (ED) has long been recognized, few formalized programs have been reported and none have evaluated the experience of ED clinicians with embedded PC. We evaluate the experience of ED clinicians with embedded PC in the ED during COVID. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 30, 2020 Category: Palliative Care Authors: Emily Loving Aaronson, Laura Petrillo, Mark Stoltenberg, Juliet Jacobsen, Erica Wilson, Jason Bowman, Kei Ouchi, Lara Traeger, Bethany-Rose Daubman, Christine Seel Ritchie, Vicki Jackson Tags: Original Article Source Type: research

Racial/ethnic differences in staff-assessed pain behaviors among newly-admitted nursing home residents
Nonverbal pain behaviors are effective indicators of pain among persons who have difficulty communicating. In nursing homes, racial/ethnic differences in self-reported pain and pain management have been documented. Few studies have examined racial/ethnic differences in nonverbal pain behaviors and pain management among residents with staff-assessed pain. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 30, 2020 Category: Palliative Care Authors: Reynolds Morrison, Bill Jesdale, Catherine Dube, Sarah Forrester, Anthony Nunes, Carol Bova, Kate L. Lapane Source Type: research

National Trends in Hospice Facility Deaths in the United States, 2003 –2017
Hospice facilities are increasingly preferred as a location of death, but little is known about the characteristics of patients who die in these facilities in the U.S. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 25, 2020 Category: Palliative Care Authors: Sarah H. Cross, Brystana G. Kaufman, Tammie E. Quest, Haider J. Warraich Tags: Brief Report Source Type: research

The #PalliativeCare Conversation on Twitter: An Analysis of Trends, Content, and Caregiver Perspectives
Palliative care is known to improve patients ’ quality of life, but oftentimes these conversations occur outside of the health-care setting. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 25, 2020 Category: Palliative Care Authors: Divya L. Padmanabhan, Varun Ayyaswami, Arpan V. Prabhu, Christian Sinclair, Marilyn R. Gugliucci Tags: Original Article Source Type: research

The #PalliativeCare conversation on Twitter: An analysis of trends, content and caregiver perspectives
Palliative care is known to improve patients ’ quality of life, but oftentimes these conversations occur outside of the healthcare setting. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 25, 2020 Category: Palliative Care Authors: Divya L. Padmanabhan, Varun Ayyaswami, Arpan V. Prabhu, Christian Sinclair, Marilyn R. Gugliucci Source Type: research

National Trends in Hospice Facility Deaths in the United States, 2003-2017
Hospice facilities are increasingly preferred as a location of death, but little is known about the characteristics of patients who die in these facilities in the United States. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 25, 2020 Category: Palliative Care Authors: Sarah H. Cross, Brystana G. Kaufman, Tammie E. Quest, Haider J. Warraich Tags: Brief Report Source Type: research

Identifying Goals of Care Conversations in the Electronic Health Record Using Natural Language Processing and Machine Learning
Goals-of-care discussions are an important quality metric in palliative care. However, goals-of-care discussions are often documented as free text in diverse locations. It is difficult to identify these discussions in the electronic health record (EHR) efficiently. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 24, 2020 Category: Palliative Care Authors: Robert Y. Lee, Lyndia C. Brumback, William B. Lober, James Sibley, Elizabeth L. Nielsen, Patsy D. Treece, Erin K. Kross, Elizabeth T. Loggers, James A. Fausto, Charlotta Lindvall, Ruth A. Engelberg, J. Randall Curtis Tags: Brief Methodological Report Source Type: research

Identifying Goals of Care Conversations in the Electronic Health Record, Using Natural Language Processing and Machine Learning
Goals-of-care discussions are an important quality metric in palliative care. However, goals-of-care discussions are often documented as free text in diverse locations. It is difficult to identify these discussions in the electronic health record (EHR) efficiently. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 24, 2020 Category: Palliative Care Authors: Robert Y. Lee, Lyndia C. Brumback, William B. Lober, James Sibley, Elizabeth L. Nielsen, Patsy D. Treece, Erin K. Kross, Elizabeth T. Loggers, James A. Fausto, Charlotta Lindvall, Ruth A. Engelberg, J. Randall Curtis Source Type: research

The Palliative Care – Promoting Assessment and Improvement of the Cancer Experience (PC-PAICE) Project: A Multi-Site International Quality Improvement Collaborative
Mentors at seven United States and Australian academic institutions partnered with seven leading Indian academic palliative care and cancer centers to undertake a program combining remote and in-person mentorship, didactic instruction, and project-based learning in quality improvement. From its inception in 2017 to 2020, the Promoting Assessment and Improvement of the Cancer Experience (PC-PAICE) Program conducted three cohorts for capacity building of 22 Indian palliative care and cancer programs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 24, 2020 Category: Palliative Care Authors: K.A. Lorenz, J. Mickelsen, N. Vallath, S. Bhatnagar, O. Spruyt, M. Rabow, M. Agar, S.M. Dy, K. Anderson, J. Deodhar, L. Digamurti, G. Palat, S. Rayala, M.M. Sunilkumar, V. Viswanath, J.J. Warrier, S. Gosh-Laskar, S.M. Harman, K.G. Giannitrapani, A. Satija Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 23, 2020 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 23, 2020 Category: Palliative Care Source Type: research

Should It Be Called "Suicide" or "Withdrawal of LVAD Support"?
Left ventricular assist devices (LVADs) have become the standard of care for patients with end-stage heart failure refractory to conventional therapy to improve their survival and quality of life.1 But when LVAD therapy no longer meets their treatment-related preferences, goals, and values, patients may request withdrawal of LVAD support. Especially when patients are not acutely ill and they are medically stable, this request raises ethical concerns among clinicians. Prior research has shown that some clinicians (13%) perceive turning off an LVAD is the same as physician-assisted suicide or euthanasia. (Source: Journal of ...
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Shunichi Nakagawa, Nir Uriel, Kenneth M. Prager Tags: Letter Source Type: research

Beyond Traditional Advance Care Planning: Tailored Preparedness for COVID-19
At the time of writing, there have been over 18.6 million patients across the world with the novel coronavirus (COVID-19)(1). COVID-19 has drastically altered how we care for patients, requiring barriers between providers and patients that undermine the depth of conversations and the ability to keep patients and families truly informed. The pandemic has introduced both logistical and psychosocial challenges put forth by resource shortages, visitor restrictions, and requirements for social distancing. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Joanna S. Cavalier, Jennifer M. Maguire, Arif H. Kamal Source Type: research

Should it be called “Suicide” or “Withdrawal of LVAD support”?
Left ventricular assist devices (LVADs) have become the standard of care for patients with end-stage heart failure refractory to conventional therapy, to improve their survival and quality of life.1 But when LVAD therapy no longer meets their treatment-related preferences, goals and values, patients may request withdrawal of LVAD support. Especially when patients are not acutely ill and they are medically stable, this request raises ethical concerns among clinicians. Prior research has shown some clinicians (13%) perceive turning off an LVAD is the same as physician assisted suicide or euthanasia. (Source: Journal of Pain ...
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Shunichi Nakagawa, Nir Uriel, Kenneth M. Prager Source Type: research

What If I Get Seriously Ill? A Virtual Workshop for Advance Care Planning During COVID-19
The coronavirus disease 2019 (COVID-19) has brought public attention to questions regarding the type of care individuals would want to receive in the event of becoming suddenly critically ill. Advance care planning (ACP) is one way to help individuals and families address these questions. However, social distancing, stay-at-home orders, and hospital visitor restrictions have raised new barriers to facilitating these conversations. Here, we describe the implementation and evaluation of a novel, public-facing, 2-part virtual ACP workshop. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Grant M. Smith, Felicia A. Hui, Claire R. Bleymaier, Ashley R. Bragg, Stephanie M. Harman Source Type: research

How we can improve the quality of care for patients requesting medical assistance in dying: a qualitative study of health care providers
Since Canada decriminalized medical assistance in dying (MAID) in 2015, clinicians and organizations have developed policies and protocols to implement assisted dying in clinical practice. Five years on, there is little consensus as to what constitutes high-quality care in MAID. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Simon JW. Oczkowski, Diane Crawshaw, Peggy Austin, Donald Versluis, Gaelen Kalles-Chan, Mike Kekewich, Dorothyann Curran, Paul Miller, Michaela Kelly, Ellen Wiebe, Marianne Dees, Andrea Frolic Source Type: research

“Are They Saying It How I'm Saying It?” A Qualitative Study of Language Barriers and Disparities in Hospice Enrollment
Language barriers contribute significantly to disparities in end-of-life (EOL) care. However, the mechanisms by which these barriers impact hospice care remains underexamined. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 20, 2020 Category: Palliative Care Authors: Gabrielle Dressler, Katherine Cicolello, Gowri Anandarajah Tags: Original Article Source Type: research

“Are they saying it how I’m saying it?” A Qualitative Study of Language Barriers and Disparities in Hospice Enrollment
Language barriers contribute significantly to disparities in end-of-life (EOL) care. However, the mechanisms by which these barriers impact hospice care remains under-examined. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 20, 2020 Category: Palliative Care Authors: Gabrielle Dressler, Katherine Cicolello, Gowri Anandarajah Source Type: research

Stable symptom clusters and evolving symptom networks in relation to chemotherapy cycles
The existence of stable symptom clusters with variations or changes in cluster membership and the merging of symptom clusters over time urges us to investigate how symptom relationships change over time. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 19, 2020 Category: Palliative Care Authors: Sun Young Rha, Jiyeon Lee Source Type: research

Caregiving Experience and Other Factors Associated with Having End-of-Life Discussions: A Cross-sectional Study of a General Japanese Population
The factors associated with end-of-life discussion (EOLD) are not well elucidated; an understanding of these factors may help facilitate EOLD. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 19, 2020 Category: Palliative Care Authors: Kyoko Hanari, Takehiro Sugiyama, Megumi Inoue, Thomas Mayers, Nanako Tamiya Source Type: research

Effect of Virtual Reality Therapy in Reducing Pain and Anxiety for Cancer-Related Medical Procedures: A Systematic Narrative Review
Virtual reality (VR) has emerged as a novel form of nonpharmacological analgesia therapy. We wished to review the use of VR to treat pain and anxiety in cancer-related medical procedures and chemotherapy. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Howard Chow, Joshua Hon, Wei Chua, Alwin Chuan Tags: Review Article Source Type: research

Epidemiology of Fear, Sadness, and Anger Expression in Palliative Care Conversations
Advancing the science of serious illness communication requires methods for measuring characteristics of conversations in large studies. Understanding which characteristics predict clinically important outcomes can help prioritize attention to scalable measure development. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Robert Gramling, Jack Straton, Lukas T. Ingersoll, Laurence A. Clarfeld, Laura Hirsch, Cailin J. Gramling, Brigitte N. Durieux, Donna M. Rizzo, Margaret J. Eppstein, Stewart C. Alexander Tags: Original Article Source Type: research

Emergency Department Use by Terminally Ill Patients: A  Systematic Review
Terminally ill patients (TIP) frequently visit the emergency department (ED), but the prevalence of these visits is unclear. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Jos é P. Amado-Tineo, Teodoro Oscanoa-Espinoza, Rolando Vásquez-Alva, Roberto Huari-Pastrana, Marvin O. Delgado-Guay Tags: Original Article Source Type: research

The Still, Small Voice of Grief
Reference: Larkin, P. (1979). The mower. Hull literary magazine. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Sarah Byrne-Martelli Source Type: research

Emergency department use by Terminally Ill patients: a systematic review
Terminally ill patients (TIP) frequently visit the emergency department (ED), but the prevalence of these visits is unclear. Objective: To determine the prevalence of TIP visiting the ED. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Jos é P. Amado-Tineo, Teodoro Oscanoa-Espinoza, Rolando Vásquez-Alva, Roberto Huari-Pastrana, Marvin O. Delgado-Guay Source Type: research

A Retrospective Study of Rapid Symptom Response in Bleeding Gynecologic Malignancies with Short Course Palliative Radiation Therapy: Less is More
Advanced gynecologic malignancies can cause significant vaginal bleeding. Radiotherapy (RT) is often used to palliate symptoms, but limited data exists concerning the optimal dose and expected time to bleeding hemostasis in this population. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Anish A. Butala, Daniel Y. Lee, Roshal R. Patel, Nawar A. Latif, Ashley F. Haggerty, Ima Paydar, Joshua A. Jones, Neil K. Taunk Source Type: research

Associations of uncertainty with psychological health and quality of life in older adults with advanced cancer
Older adults with advanced cancer face uncertainty related to their disease and treatment. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Haydee C. Verduzco-Aguirre, Dilip Babu, Supriya Gupta Mohile, Javier Bautista, Huiwen Xu, Eva Culakova, Beverly Canin, Yingzi Zhang, Megan Wells, Ronald Epstein, Paul Duberstein, Colin McHugh, William Dale, Alison Conlin, James Bearden, Jeffrey Berenberg, Source Type: research

Frequency and Characteristics of First-Time Palliative Care Referrals During the Last Day of Life
Palliative care referrals (PCR) improve symptom management, provide psychosocial and spiritual support, clarify goals of care and facilitate discharge planning. However, very late PCR can result in increased clinician distress and prevent patients and families from benefitting from the full spectrum of interdisciplinary care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Yvonne Heung, Ahsan Azhar, Syed Mujtaba Ali Akbar Naqvi, Janet Williams, Minjeong Park, David Hui, Seyedeh Dibaj, Diane Liu, Eduardo Bruera Source Type: research

Exploring Factors Associated with Long-Term Opioid Therapy in Cancer Survivors:An Integrative Review
The prevalence of chronic pain in cancer survivors is double that of the general US population. Opioids have been the foundation of cancer pain management for decades; however, there is a paucity of literature on long-term opioid therapy (LTOT) in cancer survivors. An understanding of factors related to LTOT use in cancer survivors is needed to address chronic pain and balance opioid harms in the expanding population of cancer survivors. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Katie Fitzgerald Jones, Mei R. Fu, Jessica Merlin, Judith A. Paice, Rachelle Bernacki, Christopher Lee, Lisa Wood Source Type: research

Effect of virtual reality therapy in reducing pain and anxiety for cancer related medical procedures: A systematic narrative review
Virtual reality (VR) has emerged as a novel form of non-pharmacological analgesia therapy. We wished to review the use of VR to treat pain and anxiety in cancer related medical procedures and chemotherapy. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: Howard Chow, Joshua Hon, Wei Chua, Alwin Chuan Source Type: research

Epidemiology of Fear, Sadness and Anger Expression in Palliative Care Conversations
Advancing the science of serious illness communication requires methods for measuring characteristics of conversations in large studies. Understanding which characteristics predict clinically important outcomes can help prioritize attention to scalable measure development. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 18, 2020 Category: Palliative Care Authors: R. Gramling, J. Straton, L.T. Ingersoll, L.A. Clarfeld, L. Hirsch, C.J. Gramling, B.N. Durieux, D.M. Rizzo, M.J. Eppstein, S.C. Alexander Source Type: research

User-centered design of the consideRATE questions, a measure of people ’s experiences when they are seriously ill
No brief patient-reported experience measure focuses on the most significant concerns of seriously ill individuals. We aimed to develop one called the consideRATE questions. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 16, 2020 Category: Palliative Care Authors: Catherine H. Saunders, Marie-Anne Durand, Peter Scalia, Kathryn B. Kirkland, Meredith A. MacMartin, Amber E. Barnato, David Wilson Milne, Joan Collison, Ashleigh Jaggars, Tanya Butt, Garrett Wasp, Eugene Nelson, Glyn Elwyn Source Type: research

Nephrologist views regarding cannabinoid use in advanced chronic kidney disease and dialysis: a survey
The efficacy and safety of cannabinoids to treat symptoms in individuals with kidney disease is uncertain. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 13, 2020 Category: Palliative Care Authors: David Collister, Karthik Tennankore, Sara N. Davison, Ron Wald, Christian Rabbat, Michael Walsh Source Type: research

Update to the Fast-Tracked Article Entitled “Palliative Care Utilization Among Patients With COVID-19 in an Underserved Population: A Single-Center Retrospective Study by Haydar et al.”
We would like to correct a misrepresentation in the fast-tracked article entitled “Palliative care utilization among patients with COVID-19 in an underserved population: A single-center retrospective study by Haydar et al.”1 (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 12, 2020 Category: Palliative Care Authors: Katherine Pettus, Liliana de Lima Tags: Letter Source Type: research

Yokukansan for treatment of preoperative anxiety and prevention of postoperative delirium in cancer patients undergoing highly invasive surgery. J-SUPPORT 1605 (ProD Study): A randomized, double-blind, placebo-controlled trial.
No standard preventive or therapeutic methods have been established for preoperative anxiety and postoperative delirium in cancer patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 12, 2020 Category: Palliative Care Authors: Saho Wada, Ryoichi Sadahiro, Yutaka J. Matsuoka, Yosuke Uchitomi, Takuhiro Yamaguchi, Tetsufumi Sato, Kazuaki Shimada, Seiichi Yoshimoto, Hiroyuki Daiko, Yukihide Kanemitsu, Akira Kawai, Tomoyasu Kato, Hiroyuki Fujimoto, Ken Shimizu Source Type: research

Update to the Fast Tracked article entitled “Palliative Care Utilization Among Patients With COVID-19 in an Underserved Population: A Single-Center Retrospective Study,” by Haydar et al.
We would like to correct a misrepresentation in the Fast Tracked article entitled Palliative Care Utilization Among Patients With COVID-19 in an Underserved Population: A Single-Center Retrospective Study, by Haydar et al. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 12, 2020 Category: Palliative Care Authors: Katherine Pettus, Liliana de Lima Source Type: research

Pc-facs
Sympathectomy Effects on Allodynia Concerns of Decision Makers (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 12, 2020 Category: Palliative Care Authors: Danielle Leber Source Type: research

Enhancing palliative care with mindful touch: Impact of a manual and movement therapy training program in an international multi-disciplinary integrative oncology setting
In this study we examine the impact of an MMT-based integrative oncology training program with the participation of an international and multi-disciplinary group of oncology HCPs. The feasibility of implementing these skills in palliative cancer care is examined. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 11, 2020 Category: Palliative Care Authors: Eran Ben-Arye, Emanuela Portalupi, Yael Keshet, Massimo Bonucci, Gulbeyaz Can, Yolanda Kading, Noah Samuels, Maria Livas, Orit Gressel, Michael Silbermann, Thomas Breitkreuz Source Type: research

Trends in Place of Death for Individuals with Deaths Attributed to Advanced Chronic or End-Stage Kidney Disease in the United States
An important aspect of end-of-life care, place of death is understudied in advanced chronic (CKD) and end-stage kidney disease (ESKD). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 10, 2020 Category: Palliative Care Authors: Sarah H. Cross, Joshua R. Lakin, Mallika Mendu, Ernest I. Mandel, Haider J. Warraich Source Type: research

Implementing Goals-of-Care Conversations: Lessons From High- and Low-Performing Sites From a VA National Initiative
The Veterans Health Administration (VA) National Center for Ethics in Healthcare implemented the Life-Sustaining Treatment Decisions Initiative, including policy and practice standards, clinician communication training, a documentation template, and central implementation support to foster advance care planning via goals-of-care conversations for seriously ill veterans in 2014, spreading nationally to other Veterans Health Affairs (VA) sites in  2017. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 8, 2020 Category: Palliative Care Authors: Cati Brown-Johnson, Marie C. Haverfield, Karleen F. Giannitrapani, Natalie Lo, Jill S. Lowery, Mary Beth Foglia, Anne M. Walling, David B. Bekelman, Scott T. Shreve, Lisa Soleymani Lehmann, Karl A. Lorenz Tags: Original Article Source Type: research

Implementing Goals of Care Conversations: Lessons from High and Low Performing Sites from a VA National Initiative
The Veterans Health Administration (VA) National Center for Ethics in Healthcare (NCEHC) implemented the Life-Sustaining Treatment Decisions Initiative (LSTDI) including policy and practice standards, clinician communication training, a documentation template, and central implementation support to foster advance care planning (ACP) via goals of care conversations for seriously ill Veterans in 2014, spreading nationally to other Veterans Health Affairs (VA) sites in 2017. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 8, 2020 Category: Palliative Care Authors: Cati Brown-Johnson, Marie C. Haverfield, Karleen F. Giannitrapani, Natalie Lo, Jill S. Lowery, Mary Beth Foglia, Anne M. Walling, David Bekelman, Scott T. Shreve, Lisa Soleymani Lehmann, Karl A. Lorenz Source Type: research

The Effect of Disclosing Life Expectancy Information on Patients' Prognostic Understanding: Secondary Outcomes From a Multicenter Randomized Trial of a Palliative Chemotherapy Educational Intervention
Many advanced patients with cancer have unrealistic prognostic expectations. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 7, 2020 Category: Palliative Care Authors: Andrea C. Enzinger, Hajime Uno, Nadine McCleary, Elizabeth Frank, Hanna Sanoff, Katherine Van Loon, Khalid Matin, Andrea Bullock, Christine Cronin, Janet Bagley, Deborah Schrag Tags: Original Article Source Type: research

Communication and Behavior of Palliative Care Physicians of Patients With Cancer Near End of Life in Three East Asian Countries
The characteristics of physician communication with patients at the end of life (EOL) in East Asia have not been well studied. We investigated physicians' communications with imminently dying patients with cancer and their families in palliative care units (PCUs) in Japan, South Korea, and Taiwan. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 7, 2020 Category: Palliative Care Authors: Takashi Yamaguchi, Isseki Maeda, Yutaka Hatano, Sang-Yeon Suh, Shao-Yi Cheng, Sun Hyun Kim, Ping-Jen Chen, Tatsuya Morita, Satoru Tsuneto, Masanori Mori, EASED investigators Tags: Original Article Source Type: research

Pain Experience, Physical Function, Pain Coping, and Catastrophizing in Children with Sickle Cell Disease who had Normal and Abnormal Sensory Patterns
Sickle cell disease (SCD) is associated with recurrent pain that could lead to abnormal sensory patterns. The purpose of this study is to compare children with SCD who had normal sensory patterns (NSP) and abnormal sensory patterns (ASP) in pain experience, physical function, pain coping, and pain catastrophizing. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 7, 2020 Category: Palliative Care Authors: Octavia Hyacinth, Fernanda Machado Silva-Rodrigues, Michelle Darezzo Rodrigues Nunes, Lu ís Carlos Lopes Júnior., Ananda Fernandes, Lucila Castanheira Nascimento, Eufemia Jacob Source Type: research

The effect of disclosing life expectancy information on patients ’ prognostic understanding: secondary outcomes from a multicenter randomized trial of a palliative chemotherapy educational intervention
Many advanced cancer patients have unrealistic prognostic expectations. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 7, 2020 Category: Palliative Care Authors: Andrea Enzinger, Hajime Uno, Nadine McCleary, Elizabeth Frank, Hanna Sanoff, Katherine Van Loon, Khalid Matin, Andrea Bullock, Christine Cronin, Janet Bagley, Deborah Schrag Source Type: research

Communication and behavior of palliative care physicians of cancer patients near end-of-life in three East Asian countries
The characteristics of physician communication with patients at the end-of-life (EOL) in East Asia have not been well studied. We investigated physicians ’ communications with imminently dying cancer patients and their families in palliative care units (PCUs) in Japan, South Korea, and Taiwan. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 7, 2020 Category: Palliative Care Authors: Takashi Yamaguchi, Isseki Maeda, Yutaka Hatano, Sang-Yeon Suh, Shao-Yi Cheng, Sun Hyun Kim, Ping-Jen Chen, Tatsuya Morita, Satoru Tsuneto, Masanori Mori, EASED investigators Source Type: research

The content validity of the items related to the social and spiritual dimensions of the Utrecht Symptom Diary – 4 Dimensional from a patient’s perspective: a qualitative study
In palliative care, caregivers often lack words and competences to discuss patients ’ needs in the social and spiritual dimensions. The Utrecht Symptom Diary – 4 Dimensional (USD-4D) is an instrument that can be used to monitor symptoms and needs in the physical, psychological, social and spiritual dimensions and to optimize communication between patients and caregivers. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 7, 2020 Category: Palliative Care Authors: Sita de Vries, Tom. Lormans, Everlien de Graaf, Carlo Leget, Saskia Teunissen Source Type: research

Association Between Pretreatment Sleep Disturbance and Radiation Therapy-Induced Pain in 573 Women With Breast Cancer
Pain can be a debilitating side effect of radiation therapy (RT). Data from the general population have shown that sleep disturbance can influence pain incidence and severity; however, less is known about this relationship in patients with breast cancer receiving RT. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 5, 2020 Category: Palliative Care Authors: Anita R. Peoples, Wilfred R. Pigeon, Dongmei Li, Sheila N. Garland, Michael L. Perlis, Julia E. Inglis, Vincent Vinciguerra, Thomas Anderson, Lisa S. Evans, James L. Wade, Deborah J. Ossip, Gary R. Morrow, Julie Ryan Wolf Tags: Original Article Source Type: research

Cancer Rehabilitation and Palliative Care —Exploring the Synergies
With perpetual research, management refinement, and increasing survivorship, cancer care is steadily evolving into a chronic disease model. Rehabilitation physicians are quite accustomed to managing chronic conditions, yet, in Australia, cancer rehabilitation remains underexplored.Palliative care physicians, along with rehabilitationists, are true generalists, who focus on the whole patient and their social context, in addition to the diseased organ system. This, together with palliative care's expertise in managing the panoply of troubling symptoms that beset patients with malignancy, makes them natural allies in the comp...
Source: Journal of Pain and Symptom Management - August 5, 2020 Category: Palliative Care Authors: Rabeya A. Chowdhury, Frank P. Brennan, Matthew D. Gardiner Tags: Special Article Source Type: research

Experiences, Personal Attitudes, and Professional Stances of Swiss Health Care Professionals Toward Voluntary Stopping of Eating and Drinking to Hasten Death: A  Cross-Sectional Study
Voluntary stopping of eating and drinking (VSED) is the self-determined decision of an individual with the decision-making capacity to cause premature death. During the course of VSED, the person is dependent on the support of relatives and health professionals. To date, little is known of the attitudes of Swiss health professionals on this topic. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 5, 2020 Category: Palliative Care Authors: Sabrina St ängle, Daniel Büche, Christian Häuptle, André Fringer Tags: Original Article Source Type: research