Availability of Internationally Controlled Essential Medicines in the COVID-19 Pandemic
Section 2 of the 2019 World Health Organization (WHO) Model List of Essential Medicines includes opioid analgesics formulations commonly used for the control of pain and respiratory distress, as well as sedative and anxiolytic substances such as midazolam and diazepam. These medicines, essential to palliative care, are regulated under the international drug control conventions overseen by United Nations (UN) specialized agencies and treaty bodies and under national drug control laws. Those national laws and regulations directly affect bedside availability of Internationally Controlled Essential Medicines (ICEMs). (Source: ...
Source: Journal of Pain and Symptom Management - May 7, 2020 Category: Palliative Care Authors: Katherine Pettus, James F. Cleary, Liliana de Lima, Ebtesam Ahmed, Lukas Radbruch Tags: COVID-19 for Fast Track Publication Source Type: research

Redefining Palliative Care —A New Consensus-Based Definition
The International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health-related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 6, 2020 Category: Palliative Care Authors: Lukas Radbruch, Liliana De Lima, Felicia Knaul, Roberto Wenk, Zipporah Ali, Sushma Bhatnaghar, Charmaine Blanchard, Eduardo Bruera, Rosa Buitrago, Claudia Burla, Mary Callaway, Esther Cege Munyoro, Carlos Centeno, Jim Cleary, Stephen Connor, Odontuya Dava Tags: Original Article Source Type: research

Redefining Palliative Care – a New Consensus-based Definition
The International Association for Hospice and Palliative Care (IAHPC) developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 6, 2020 Category: Palliative Care Authors: Lukas Radbruch, Liliana De Lima, Felicia Knaul, Roberto Wenk, Zipporah Ali, Sushma Bhatnaghar, Charmaine Blanchard, Eduardo Bruera, Rosa Buitrago, Claudia Burla, Mary Callaway, Esther Cege Munyoro, Carlos Centeno, Jim Cleary, Stephen Connor, Odontuya Dava Tags: Global Health Source Type: research

COVID-19 —Impact on DNR Orders in the Largest Cancer Center in Jordan
The COVID-19 pandemic requires health care teams to rethink how they can continue to provide high-quality care for all patients, whether they are  suffering from a COVID-19 infection or other diseases with clinical uncertainty. Although the number of COVID-19 cases in Jordan remains relatively low compared to many other countries, our team introduced significant changes to team operations early, with the aim of protecting patients, families, and health care staff from COVID-19 infections, while preparing to respond to the needs of patients suffering from severe COVID-19 infections. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 5, 2020 Category: Palliative Care Authors: Omar Shamieh, Kathryn Richardson, Hikmat Abdel-Razeq, Richard Harding, Richard Sullivan, Asem Mansour Tags: COVID-19 for Fast Track Publication Source Type: research

A Dual-Center Observational Review of Hospital-Based Palliative Care in Patients Dying With COVID-19
The current coronavirus disease 2019 (COVID-19) pandemic has put significant strain on all aspects of health care delivery, including palliative care services. Given the high mortality from this disease, particularly in the more vulnerable members of society, it is important to examine how best to deliver a high standard of end-of-life care during this crisis. This case series collected data from two acute hospitals examining the management of patients diagnosed with COVID-19 who subsequently died (n  = 36) and compared this with national and local end-of-life audit data for all other deaths. (Source: Journal of ...
Source: Journal of Pain and Symptom Management - May 5, 2020 Category: Palliative Care Authors: Jennifer Turner, Luke Eliot Hodgson, Todd Leckie, Lisa Eade, Suzanne Ford-Dunn Tags: Clinical Practice Source Type: research

COVID-19 – Impact on DNR Orders in the Largest Cancer Center in Jordan
The COVID-19 pandemic requires healthcare teams to rethink how they can continue to provide high quality care for all patients, whether they are suffering from a COVID-19 infection or other diseases with clinical uncertainty. Although the number of cases of COVID-19 in Jordan remains relatively low compared to many other countries, our team introduced significant changes to team operations early, with the aim of protecting patients, families and healthcare staff from COVID-19 infections, while preparing to respond to the needs of patients suffering from severe COVID-19 infections. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 5, 2020 Category: Palliative Care Authors: Omar Shamieh, Kathryn Richardson, Hikmat Abdel-Razeq, Richard Harding, Richard Sullivan, Asem Mansour Tags: COVID-19 for Fast Track Publication Source Type: research

A dual-centre observational review of hospital based palliative care in patients dying with COVID-19
The current Covid-19 pandemic has put significant strain on all aspects of healthcare delivery, including palliative care services. Given the high mortality from this disease, particularly in the more vulnerable members of society, it is important to examine how best to deliver a high standard of end of life care during this crisis. This case series collected data from two acute hospitals examining the management of patients diagnosed with Covid-19 who subsequently died (n=36) and compared this to national and local end of life audit data for all other deaths. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 5, 2020 Category: Palliative Care Authors: Jennifer Turner, Luke Eliot Hodgson, Todd Leckie, Lisa Eade, Suzanne Ford-Dunn Tags: COVID-19 for Fast Track Publication Source Type: research

Religious Coping in Cancer: A quantitative analysis of expressive writing samples from patients with renal cell carcinoma
Past religiosity/spirituality (R/S) research has mainly relied on self-report instruments which may result in self-presentation and defensive biases. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 5, 2020 Category: Palliative Care Authors: Santhosshi Narayanan, Kathrin Milbury, Richard Wagner, Lorenzo Cohen Tags: Original Article Source Type: research

Understanding End-of-Life Preferences: Predicting Life-Prolonging Treatment Preferences Among Community-Dwelling Older Americans
To determine how demographic, socioeconomic, health, and psychosocial factors predict preferences to accept life-prolonging treatments (LPTs) at the end of life (EOL). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 3, 2020 Category: Palliative Care Authors: Allison B. Brenner, Lesli E. Skolarus, Chithra R. Perumalswami, James F. Burke Tags: Brief Report Source Type: research

Understanding End of Life Preferences: Predicting Life Prolonging Treatment Preferences among Community Dwelling Older Americans
To determine how demographic, socioeconomic, health and psychosocial factors predict preferences to accept life prolonging treatments (LPT) at the end of life. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 3, 2020 Category: Palliative Care Authors: Allison B. Brenner, Lesli E. Skolarus, Chithra R. Perumalswami, James F. Burke Tags: Brief Report Source Type: research

Bereavement support on the frontline of COVID-19: Recommendations for hospital clinicians
Deaths due to COVID-19 are associated with risk factors which can lead to prolonged grief disorder, post-traumatic stress and other poor bereavement outcomes among relatives, as well as moral injury and distress in frontline staff. Here we review relevant research evidence, and provide evidence-based recommendations and resources for hospital clinicians to mitigate poor bereavement outcomes and support staff. For relatives, bereavement risk factors include dying in an intensive care unit, severe breathlessness, patient isolation or restricted access, significant patient and family emotional distress, and disruption to rela...
Source: Journal of Pain and Symptom Management - May 3, 2020 Category: Palliative Care Authors: Lucy E. Selman, Davina Chao, Ryann Sowden, Steve Marshall, Charlotte Chamberlain, Jonathan Koffman Tags: COVID-19 for Fast Track Publication Source Type: research

Palliative care in the time of COVID-19
After covid-19 crisis in Italy, serious restrictions have been introduced for relatives, with limitations or prohibitions on hospital visits. To partially overcome these issues “WhatsApp” has been adopted to get family members to participate in clinical rounds. Family members of patients admitted to the acute palliative care unit and hospice were screened for a period of 2 weeks. Four formal questions were posed: 1) Are you happy to virtually attend the clinical round? 2) Are you happy with the information gained in this occasion? 3) Do you think that your loved one was happy to see you during the clinical roun...
Source: Journal of Pain and Symptom Management - May 3, 2020 Category: Palliative Care Authors: Sebastiano Mercadante, Claudio Adile, Patrizia Ferrera, Fausto Giuliana, Lidia Terruso, Tania Piccione Tags: COVID-19 for Fast Track Publication Source Type: research

Terminally Ill Cancer Patients' Emotional Preparedness for Death Is Distinct From Their Accurate Prognostic Awareness
Emotional preparedness for death (hereafter called death preparedness) and prognostic awareness (PA), a distinct but related concept, each contributes to patients' practical, psychological, and interpersonal preparations for death. However, the distinction between these two concepts has never been investigated. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 30, 2020 Category: Palliative Care Authors: Siew Tzuh Tang, Wen-Chi Chou, Chia-Hsun Hsieh, Wen-Cheng Chang, Jen-Shi Chen, Fur-Hsing Wen Tags: Original Article Source Type: research

Healing the hearts of bereaved parents: Impact of legacy artwork on grief in pediatric oncology
Approximately 12% of children with cancer will not survive, representing a devastating loss for parents. Strategies to improve parental coping and grief have been understudied. Although legacy-making is frequently offered as standard care to children with terminal illness and their families, these interventions have received little empirical attention. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 30, 2020 Category: Palliative Care Authors: Megan R. Schaefer, Scott T. Wagoner, Margaret E. Young, Avi Madan-Swain, Michael Barnett, Wendy N. Gray Source Type: research

Heightened Tamoxifen Activation Masquerading as a Venlafaxine-Associated Adverse Event after Rotation from Duloxetine
Palliative care providers are consulted frequently to manage complex symptoms in medically complex patients. Supportive care of patients with hormone-receptor positive breast cancer often involves consideration of ongoing medical therapy such as tamoxifen. Tamoxifen is an estrogen-receptor modulator with known association with mood disturbances, hot flashes, and fatigue. As palliative care providers, we must be aware of how to optimally manage these challenging symptoms while avoiding drug-drug interactions that could negatively impact the disease prognosis. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 30, 2020 Category: Palliative Care Authors: Carolyn E. Kezar, Leslie K. Dawson, Gabrielle B. Rocque, Keith M. Swetz Tags: Letter Source Type: research

Terminally ill cancer patients ’ emotional preparedness for death is distinct from their accurate prognostic awareness
Emotional preparedness for death (hereafter called death preparedness) and prognostic awareness (PA), a distinct but related concept, each contributes to patients ’ practical, psychological, and interpersonal preparation for death. However, the distinction between these two concepts has never been investigated. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 30, 2020 Category: Palliative Care Authors: Siew Tzuh Tang, Wen-Chi Chou, Chia-Hsun Hsieh, Wen-Cheng Chang, Jen-Shi Chen, Fur-Hsing Wen Source Type: research

Racial and Ethnic Differences in Communication and Care for Children with Advanced Cancer
Racial and ethnic disparities in end-of-life care are well documented among adults with advanced cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 30, 2020 Category: Palliative Care Authors: Jennifer W. Mack, Hajime Uno, Clare J. Twist, Rochelle Bagatell, Abby R. Rosenberg, Araz Marachelian, M. Meaghan Granger, Julia Glade Bender, Justin N. Baker, Julie R. Park, Susan L. Cohn, Jorge H. Fernandez, Lisa R. Diller, Suzanne Shusterman Source Type: research

The Impact of Sociocultural Influences on the COVID-19 Measures —Reflections From Singapore
The coronavirus disease 2019 (COVID-19) pandemic presents unique challenges to Asian countries like Singapore with a predominantly Confucian culture. Palliative care providers play an important role in supporting their patients and family members in these difficult times. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 28, 2020 Category: Palliative Care Authors: Ong Eng Koon Tags: Clinical Practice Source Type: research

“The impact of socio-cultural influences on the COVID-19 measures – reflections from Singapore.”
The coronavirus disease 2019 (COVID-19) pandemic presents unique challenges to Asian countries like Singapore with a predominantly Confucian culture. Palliative care providers play an important role in supporting their patients and family members in these difficult times. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 28, 2020 Category: Palliative Care Authors: Dr Ong Eng Koon Source Type: research

Interventions to Support Family Caregivers in Pain Management: A Systematic Review
Family caregivers encounter many challenges when managing pain for their loved ones. ​​There is a lack of clear recommendations on how to prepare caregivers in pain management. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 24, 2020 Category: Palliative Care Authors: Nai-Ching Chi, Emelia Barani, Ying-Kai Fu, Lynn Nakad, Stephanie Gilbertson-White, Keela Herr, Seyedehtanaz Saeidzadeh Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 23, 2020 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 23, 2020 Category: Palliative Care Source Type: research

Retraction of “Prevalence and Predictors of Burnout Among Hospice and Palliative Care Professionals From 2016 Apr;51(4):690-6”
We reported a burnout rate of 62% among survey participants, calculated using the Maslach Burnout Inventory-22 (MBI), a widely recognized standard for burnout measurement in health services field. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 23, 2020 Category: Palliative Care Authors: Arif H. Kamal, Janet H. Bull, Steven P. Wolf, Keith M. Swetz, Tait D. Shanafelt, Katherine Ast, Dio Kavalieratos, Christian T. Sinclair Tags: Retraction Notice Source Type: research

Attitudes and Beliefs Toward Advance Care Planning Among Underserved Chinese-American Immigrants
Many in the rapidly growing Chinese-American population are non-English-speaking and medically underserved, and few engage in advance care planning (ACP). Evaluating culturally-determined factors that may inhibit ACP can inform programs designed to increase ACP engagement. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 23, 2020 Category: Palliative Care Authors: Lara Dhingra, William Cheung, Brenda Breuer, Philip Huang, Kin Lam, Jack Chen, Xiaotian Zhou, Victor Chang, Timothy Chui, Stephanie Hicks, Russell Portenoy Tags: Brief Report Source Type: research

Attitudes and Beliefs Towards Advance Care Planning among Underserved Chinese-American Immigrants
Many in the rapidly-growing Chinese-American population are non-English-speaking and medically-underserved, and few engage in advance care planning (ACP). Evaluating culturally-determined factors that may inhibit ACP can inform programs designed to increase ACP engagement. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 23, 2020 Category: Palliative Care Authors: Lara Dhingra, William Cheung, Brenda Breuer, Philip Huang, Kin Lam, Jack Chen, Xiaotian Zhou, Victor Chang, Timothy Chui, Stephanie Hicks, Russell Portenoy Tags: Brief Report Source Type: research

Associations between the intention to use early palliative care, sources of information, and attitudes toward a good death in Korean adults
Providing hospice and palliative care (HPC) early in the course of care for patients with life-threatening illness is important for improving patient quality of life. However, little literature exists for factors affecting to the intention to use early palliative care (EPC) of general population. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 23, 2020 Category: Palliative Care Authors: Su Yeon Kye, Kyu-Tae Han, Jinyoung Choi, Hyun Jung Jho, So Jung Park, In Gyu Song, Eun Jung Nam, Yoon Jung Chang Tags: Original Article Source Type: research

Family-Centered Care During the COVID-19 Era
Family support is more, not less, important during crisis. However, during the COVID-19 pandemic, maintaining public safety necessitates restricting the physical presence of families for hospitalized patients. In response, health systems must rapidly adapt family-centric procedures and tools to circumvent restrictions on physical presence. Strategies for maintaining family integrity must acknowledge clinicians ’ limited time and attention to devote to learning new skills. Internet-based solutions can facilitate the routine, predictable, and structured communication which is central to family-centered care. (Source: J...
Source: Journal of Pain and Symptom Management - April 22, 2020 Category: Palliative Care Authors: Joanna L. Hart, Alison E. Turnbull, Ian M. Oppenheim, Katherine R. Courtright Source Type: research

Strengths, Gaps, and Opportunities: Results of a Statewide  Community Needs Assessment of Pediatric Palliative Care and Hospice Resources
Pediatric palliative care (PPC) can improve quality of life of children with life-threatening conditions and their families. However, PPC resources vary by state and within a state, and PPC resources and personnel are often inequitably distributed toward urban areas with major hospital systems. A community needs assessment (CNA) that evaluates the current status of PPC and pediatric hospice care can help identify gaps and opportunities to improve PPC access. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 20, 2020 Category: Palliative Care Authors: Khaliah Johnson, Kristen E. Allen, William West, Wynette Williams-Kirkwood, Karen Wasilewski-Masker, Cam Escoffery, Katharine E. Brock Tags: Original Article Source Type: research

Characteristics, Symptom Management, and Outcomes of 101 Patients With COVID-19 Referred for Hospital Palliative Care
Hospital palliative care is an essential part of the COVID-19 response but data are lacking. We identified symptom burden, management, response to treatment, and outcomes for a case series of 101 inpatients with confirmed COVID-19 referred to hospital palliative care. Patients (64 men, median [interquartile range {IQR}] age 82 [72 –89] years, Elixhauser Comorbidity Index 6 [2–10], Australian-modified Karnofsky Performance Status 20 [10–20]) were most frequently referred for end-of-life care or symptom control. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 20, 2020 Category: Palliative Care Authors: Natasha Lovell, Matthew Maddocks, Simon N. Etkind, Katie Taylor, Irene Carey, Vandana Vora, Lynne Marsh, Irene J. Higginson, Wendy Prentice, Polly Edmonds, Katherine E. Sleeman Tags: COVID-19 for Fast Track Publication Source Type: research

Strengths, Gaps, and Opportunities: Results of a Statewide Community Needs Assessment of Pediatric Palliative Care and Hospice Resources
Pediatric palliative care (PPC) can improve quality of life for children with life-threatening conditions and their families. However, PPC resources vary by state and within a state, PPC resources and personnel are often inequitably distributed towards urban areas with major hospital systems. A community needs assessment (CNA) that evaluates the current status of PPC and pediatric hospice care can help identify gaps and opportunities to improve PPC access. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 20, 2020 Category: Palliative Care Authors: Khaliah Johnson, Kristen E. Allen, William West, Wynette Williams-Kirkwood, Karen Wasilewski-Masker, Cam Escoffery, Katharine E. Brock Source Type: research

Characteristics, symptom management and outcomes of 101 patients with COVID-19 referred for hospital palliative care
Hospital palliative care is an essential part of the COVID-19 response but data are lacking. We identified symptom burden, management, response to treatment, and outcomes for a case series of 101 in-patients with confirmed COVID-19 referred to hospital palliative care. Patients (64 male, median [IQR] age 82 [72-89] years, Elixhauser Comorbidity Index 6 [2-10], Australian-modified Karnofsky Performance Status 20 [10-20]), were most frequently referred for end of life care or symptom control. Median [IQR] days from hospital admission to referral was 4 [1-12] days. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 20, 2020 Category: Palliative Care Authors: Natasha Lovell, Matthew Maddocks, Simon N. Etkind, Katie Taylor, Irene Carey, Vandana Vora, Lynne Marsh, Irene J. Higginson, Wendy Prentice, Polly Edmonds, Katherine E. Sleeman Source Type: research

Erratum to Attitudes of the General Public, Cancer Patients, Family Caregivers, and Physicians Toward Advance Care Planning: A Nationwide Survey Before the Enforcement of the Life-Sustaining Treatment Decision-Making Act [Journal of Pain and Symptom Management 57 (2019) 774 –782]
In the article “Attitudes of the General Public, Cancer Patients, Family Caregivers, and Physicians Toward Advance Care Planning: A Nationwide Survey Before the Enforcement of the Life-Sustaining Treatment Decision-Making Act” (Journal of Pain and Symptom Management (57(4):774-782)), data was misreported. The authors recently discovered that 236 members of the general population were mistakenly duplicated by the investigating agency (KSTAT Research [formerly, World Research]) and 1241 were reported rather than 1005. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 19, 2020 Category: Palliative Care Tags: Erratum Source Type: research

A Pilot Study of the Effects of COMPLETE: A Communication Plan Early Through End of Life, on  End-of-Life Outcomes in Children With Cancer
Most children with cancer die in hospital settings, without hospice, and many suffer from high-intensity medical interventions and pain at end of life (EOL). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 18, 2020 Category: Palliative Care Authors: Karen M. Moody, Verna L. Hendricks-Ferguson, Rebecca Baker, Susan Perkins, Joan E. Haase Tags: Clinical Practice Source Type: research

A pilot study of the effects of complete: a communication plan early through end of life, on end of life outcomes in children with cancer
Most children with cancer die in hospital settings, without hospice, and many suffer from high-intensity medical interventions and pain at end of life (EOL). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 18, 2020 Category: Palliative Care Authors: Karen M. Moody, Verna L. Hendricks-Ferguson, Rebecca Baker, Susan Perkins, Joan E. Haase Source Type: research

Author's Response
We thank Mr. Kobayashi et  al.1 for their interest in our article entitled “Effect of aromatherapy massage on quality of sleep in the palliative care ward: a randomized controlled trial.”2 We truly support them in using the results of our study for their future study. We are grateful that their letter did not condemn th e flaws of our study or provide rebuttals. However, we want to state the following comments with regard to their letter: (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 16, 2020 Category: Palliative Care Authors: Noriyuki Kawabata, Akiko Hata, Tomokazu Aoki Tags: Letter Source Type: research

Factors associated with terminally ill people who want to die
The decision to request and proceed with euthanasia or physician-assisted dying (PAD) is complex, and predictors of such decisions are heterogeneous with regard to physical health, psychological, and social factors. Local research is therefore needed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 16, 2020 Category: Palliative Care Authors: Gary Cheung, Adrian Martinez-Ruiz, Rebecca Knell, Anne O'Callaghan, Dawn Guthrie Tags: Original Article Source Type: research

Predicting anxiety in hospitalized cancer patients
Anxiety in cancer patients is highly prevalent, yet remains underestimated and inadequately assessed. Little is known about predictors for anxiety in hospitalized cancer patients. Insight in predictors should improve recognition and enable a targeted approach. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 16, 2020 Category: Palliative Care Authors: Lieke van den Brekel, Frederieke H. van der Baan, Danielle Zweers, Jos é J. Koldenhof, J. Bernard H. Vos, Alexander de Graeff, Petronella O. Witteveen, Saskia C.C.M. Teunissen Source Type: research

Response to “Effect of Aromatherapy Massage on Quality of Sleep in the Palliative Care Ward: Randomized Controlled Trial”
We read the recent paper titled “Effect of Aromatherapy Massage on Quality of Sleep in the Palliative Care Ward: A Randomized Controlled Trial” by Kawabata et al.1 with great interest. The study investigated the effects of a 30-minute single session of aromatherapy massage at night-time on quality of sleep and fatigue in palli ative care. This letter offers some discussion points regarding their conclusions. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 16, 2020 Category: Palliative Care Authors: Masamitsu Kobayashi, Jun Kako, Kohei Kajiwara, Yasufumi Oosono, Hiroko Noto Source Type: research

We hope the response enhances discussion in the journal and adds value to the Journal of Pain and Symptom Management.
We thank Mr. Kobayashi and his colleagues for their interest in our manuscript entitled “Effect of aromatherapy massage on quality of sleep in the palliative care ward: a randomized controlled trial.” We truly support them in utilizing the results of our study for their future study. We are grateful that their letter did not condemn the flaws of our study or provide rebuttals. Howe ver, we want to state the following comments with regard to their letter: (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 16, 2020 Category: Palliative Care Authors: Noriyuki Kawabata Source Type: research

Using Medicare Data to Identify Serious Illness in Older Surgical Patients
Palliative care delivered alongside surgical or trauma care is associated with improved quality of communication and quality of end-of-life care, reduced suffering, and lower healthcare utilization. However, despite its benefits seriously ill surgical patients are less likely to receive palliative care than other hospitalized patients (1). In response, The American College of Surgeons has endorsed the National Consensus Guidelines for Quality Palliative Care and recently issued its own guidelines promoting domains of palliative care in routine geriatric surgical and trauma care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 15, 2020 Category: Palliative Care Authors: Masami Kelly, Daniel Sturgeon, Alyssa F. Harlow, Molly Jarman, Joel Weissman, Zara Cooper Tags: Letter Source Type: research

A Methodologic Approach to Conducting a Statewide Community Needs Assessment of Pediatric Palliative Care and Hospice Resources
Prior studies have indicated that pediatric palliative care (PPC) resources vary across states and within regions in a state. Evaluating the current status of PPC and pediatric hospice care through a community needs assessment (CNA) can help address the gaps that exist in order to improve and increase access to PPC for children in need. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 15, 2020 Category: Palliative Care Authors: Katharine E. Brock, Kristen E. Allen, Camille Barton, Rachel Shapiro, Brendan Weintraub, Karen Wasilewski-Masker, Cam Escoffery, Khaliah Johnson Tags: Original Article Source Type: research

Grief During the COVID-19 Pandemic: Considerations for Palliative Care Providers
We describe the relationship of the COVID-19 pandemic to anticipatory grief, disenfranchised grief, and complicated grief for individuals, families, and their providers. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 13, 2020 Category: Palliative Care Authors: Cara L. Wallace, Stephanie P. Wladkowski, Allison Gibson, Patrick White Source Type: research

A Comparison of Burnout Frequency Among Oncology Physicians and Nurses Working on the Frontline and Usual Wards During the COVID-19 Epidemic in Wuhan, China
The epidemic of coronavirus disease 2019 (COVID-19) was first identified in Wuhan, China and has now spread worldwide. In the affected countries, physicians and nurses are under heavy workload conditions and are at high risk of infection. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 10, 2020 Category: Palliative Care Authors: Yuan Wu, Jun Wang, Chenggang Luo, Sheng Hu, Xi Lin, Aimee E. Anderson, Eduardo Bruera, Xiaoxin Yang, Shaozhong Wei, Yu Qian Tags: Brief Report Source Type: research

Rapid Implementation of Inpatient Telepalliative Medicine Consultations during COVID-19 Pandemic
As COVID-19 cases increase throughout the country and healthcare systems grapple with the need to decrease provider exposure and minimize personal protective equipment (PPE) use while maintaining high quality patient care, our specialty is called upon to consider new methods of delivering inpatient palliative care. Telepalliative medicine has been used to great effect in outpatient and home-based palliative care, but has had fewer applications in the inpatient setting. As we plan for decreased provider availability due to quarantine and redeployment and seek to reach increasingly isolated hospitalized patients in the face ...
Source: Journal of Pain and Symptom Management - April 10, 2020 Category: Palliative Care Authors: Jessi Humphreys, Laura Schoenherr, Giovanni Elia, Naomi Tzril Saks, Chelsea Brown, Susan Barbour, Steven Z. Pantilat Source Type: research

The family caregiving crisis meets an actual pandemic
The rapid pace of development during the COVID-19 pandemic presents unique challenges to palliative care and other clinicians who work with the seriously ill, including our largest “hidden” palliative care workforce: the millions of family caregivers across the world. We have relied on this lay workforce as our global population ages with serious illness, and as complex care continues to transition to the home (1, 2). The professional healthcare workforce is quickly becomi ng consumed with the deluge of inpatients critically ill with COVID-19. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 10, 2020 Category: Palliative Care Authors: Erin E. Kent, Katherine A. Ornstein, J. Nicholas Dionne-Odom Tags: COVID-19 for Fast Track Publication Source Type: research

A comparison of burnout frequency among oncology physicians and nurses working on the front lines and usual wards during the COVID-19 epidemic in Wuhan, China
The epidemic of Coronavirus Disease 2019 (COVID-19) was first identified in Wuhan, China and has now spread worldwide. In the affected countries, physicians and nurses are under heavy workload conditions and are at high risk of infection. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 10, 2020 Category: Palliative Care Authors: Yuan Wu, Jun Wang, Chenggang Luo, Sheng Hu, Xi Lin, Aimee E. Anderson, Eduardo Bruera, Xiaoxin Yang, Shaozhong Wei, Yu Qian Tags: Brief Report Source Type: research

To Relieve the Patient's Thirst, Refresh the Mouth First: A Pilot Study Using Mini Mint Ice Cubes in Severely Dehydrated Patients
Thirst refers to the urge to drink and it is consistently reported as one of the top five stressful symptoms by critically ill patients.1 It can also become a real torment for terminally ill patients2 or severely dehydrated individuals.3 However, thirst is often overlooked, poorly understood, and underrecognized in the hospital.4 For a long time, it was thought to be closely related to changes in the blood volume or plasma osmolarity and to the regulation of blood sodium concentration (Na+).5,6 Rehydration usually aims at normalizing biological targets like Na+  or plasma osmolarity, and the preferred routes for rehyd...
Source: Journal of Pain and Symptom Management - April 8, 2020 Category: Palliative Care Authors: Malcolm Lemyze, Johann Lavoisier, Johanna Temime, Maxime Granier, Jihad Mallat Tags: Letter Source Type: research

The role and response of palliative care and hospice services in epidemics and pandemics: a rapid review to inform practice during the COVID-19 pandemic
This study aimed to synthesise evidence for the role and response of palliative care and hospice teams to viral epi/pandemics, to inform the COVID-19 pandemic response. We conducted a rapid systematic review according to PRISMA guidelines in five databases. Of 3094 papers identified, ten were included in this narrative synthesis. Included studies were from West Africa, Taiwan, Hong Kong, Singapore, the United States and Italy. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 8, 2020 Category: Palliative Care Authors: Simon N. Etkind, Anna E. Bone, Natasha Lovell, Rachel L. Cripps, Richard Harding, Irene J. Higginson, Katherine E. Sleeman Tags: COVID-19 for Fast Track Publication Source Type: research

To relieve the patient ’s thirst, refresh the mouth first: a pilot study using mini mint ice cubes in severely dehydrated patients
Thirst refers to the urge to drink and it is consistently reported as one of the top five stressful symptoms by critically ill patients.1 It can also become a real torment for terminally ill patients2 or severely dehydrated individuals.3 However, thirst is often overlooked, poorly understood, and under-recognized in the hospital.4 For a long time, it was thought to be closely related to changes in the blood volume or plasma osmolarity and to the regulation of blood sodium concentration (Na+).5,6 Rehydration usually aims at normalizing biological targets like Na+ or plasma osmolarity, and the preferred routes for rehydratio...
Source: Journal of Pain and Symptom Management - April 8, 2020 Category: Palliative Care Authors: Malcolm Lemyze, Johann Lavoisier, Johanna Temime, Maxime Granier, Jihad Mallat Source Type: research

Integrating the surprise question, palliative care screening tool, and clinical risk models to identify peritoneal dialysis patients with high 1-year mortality
Universal screening to identify vulnerable patients who may receive limited benefits from life-sustaining treatments can facilitate palliative care in dialysis populations. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - April 8, 2020 Category: Palliative Care Authors: Chun-Fu Lai, Ching-I. Cheng, Chin-Hao Chang, Yi-Ting Chen, Hsiau-Chien Hwang, Shuei-Liong Lin, Jenq-Wen Huang, Sheng-Jean Huang Tags: Clinical Practice Source Type: research