Health Care Provider Attitudes, Beliefs, and Perceived Confidence in Managing Patients With Cancer Pain and Nonmedical Opioid Use
Health care provider education is an effective strategy to improve knowledge and competencies in opioid-prescribing practices. However, there are very few studies regarding this among providers of patients with cancer pain and nonmedical opioid use (NMOU). The aim of our study was to assess participants' attitudes, beliefs, and self-perceived confidence in caring for patients with cancer pain and NMOU before and after attending an opioid educational seminar on the use and nonmedical use of opioids in patients with cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Joseph Arthur, Tonya Edwards, Zhanni Lu, David Hui, Bryan Fellman, Eduardo Bruera Tags: Brief Report Source Type: research

Unraveling Fatigue in Hemodialysis Patients: Comparing Retrospective Reports to Real-Time Assessments With an mHealth Experienced Sampling Method
Fatigue is prevalent among hemodialysis (HD) patients and associated with depressive mood. To advance our understanding of its etiology and develop appropriate treatments, reliable measurement instruments are needed. However, conventional fatigue and mood questionnaires are prone to bias because of their retrospective nature and may misrepresent or overestimate actual symptom experience (i.e., the so-called memory-experience gap). Experience sampling methodology (ESM) overcomes this limitation through repeated real-time assessments in patients' natural environment, thereby providing reliable and ecologically valid data. (S...
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Astrid D.H. Brys, Frank Stifft, Caroline M. Van Heugten, Maurizio Bossola, Giovanni Gambaro, Bert Lenaert Tags: Original Article Source Type: research

Palliative and end-of-life care in a small Caribbean country: A mortality follow-back study of home deaths
Empirical information on circumstances of dying from advanced illness in developing countries remain sparse. Evidence indicates that out-of-hospital end-of-life care can have significant benefits like increased satisfaction for the patient and caregivers, and cost-effective for a healthcare system. Services that are aimed to deliver care at private homes may be a good model for low- and middle-income countries or other low-resourced settings. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Nicholas Jennings, Kenneth Chambaere, Stacey Chamely, Cheryl C. Macpherson, Luc Deliens, Joachim Cohen Tags: Original Article Source Type: research

Quality assessments of end-of-life care by medical record review for patients dying in intensive care units in Taiwan
/Aim: Essential indicators of high-quality end-of-life care in intensive care units (ICUs) have been established but examined inconsistently and predominantly with small samples, mostly from Western countries. Our study goal was to comprehensively measure end-of-life-care quality delivered in ICUs using chart-derived process-based quality measures for a large cohort of critically ill Taiwanese patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Mei-Ling Lo, Chung-Chi Huang, Tsung-Hui Hu, Wen-Chi Chou, Li-Pang Chuang, Ming Chu Chiang, Fur-Hsing Wen, Siew Tzuh Tang Tags: Original Article Source Type: research

Healthcare Provider Attitudes, Beliefs, and Perceived Confidence in Managing Patients with Cancer Pain and Nonmedical Opioid Use
Healthcare provider education is an effective strategy to improve knowledge and competencies in opioid prescribing practices. However, there are very few studies regarding this among providers of patients with cancer pain and nonmedical opioid use (NMOU). The aim of our study was to assess participants ’ attitudes, beliefs, and self-perceived confidence in caring for patients with cancer pain and NMOU before and after attending an opioid educational seminar on the use and nonmedical use of opioids in cancer patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Joseph Arthur, Tonya Edwards, Zhanni Lu, David Hui, Bryan Fellman, Eduardo Bruera Source Type: research

Surrogate Decision Maker Stress in Advance Care Planning Conversations: A Mixed-Methods Analysis from a Randomized Controlled Trial
Spokespersons serving as surrogate decision-makers for their loved ones report high levels of stress. Despite known benefits, advance care planning (ACP) conversations often do not occur. More information is needed to understand spokesperson stress during ACP. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Daniella Lipnick, Michael Green, Elizabeth Thiede, Theresa J. Smith, Erik B. Lehman, MS; Rhonda Johnson, In Seo La, Debra Wiegand, Benjamin H. Levi, Lauren Jodi Van Scoy Source Type: research

Unravelling fatigue in hemodialysis patients: comparing retrospective reports to real-time assessments with an mHealth Experienced Sampling Method
Fatigue is prevalent among hemodialysis (HD) patients and associated with depressive mood. To advance our understanding of its etiology and develop appropriate treatments, reliable measurement instruments are needed. However, conventional fatigue and mood questionnaires are prone to bias due to their retrospective nature and may misrepresent or overestimate actual symptom experience (i.e., the so-called ‘memory-experience’ gap). Experience sampling Methodology (ESM) overcomes this limitation through repeated real-time assessments in patients’ natural environment, thereby providing reliable and ecologicall...
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Astrid DH. Brys, Frank Stifft, Caroline M. Van Heugten, Maurizio Bossola, Giovanni Gambaro, Bert Lenaert Source Type: research

Exploring the Uptake of Advance Care Planning in Older Adults: An Integrative Review
Advance Care Planning (ACP) is essential to elicit goals, values, and preferences of care in older adults with serious illness and on trajectories of frailty. An exploration of ACP uptake in older adults may identify barriers and facilitators. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 6, 2020 Category: Palliative Care Authors: Erica Frechman, Mary S. Dietrich, Rachel Lane Walden, Cathy A. Maxwell Source Type: research

Palliative Care's Role Managing Cancer Pain During the Opioid Crisis: A Qualitative Study of Patients, Caregivers, and Clinicians
Patients with cancer face symptoms because of disease and treatment, and pain is common and complex. The opioid crisis may complicate patients' and clinicians' experiences of managing pain in cancer care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 5, 2020 Category: Palliative Care Authors: Joanna Veazey Brooks, Claire Poague, Taynara Formagini, Andrew W. Roberts, Christian T. Sinclair, Carla C. Keirns Tags: Original Article Source Type: research

Palliative Care ’s Role Managing Cancer Pain During the Opioid Crisis: A Qualitative Study of Patients, Caregivers, and Clinicians
Patients with cancer face symptoms due to disease and treatment, and pain is common and complex. The opioid crisis may complicate patients ’ and clinicians’ experiences of managing pain in cancer care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 5, 2020 Category: Palliative Care Authors: Joanna Veazey Brooks, Claire Poague, Taynara Formagini, Andrew W. Roberts, Christian T. Sinclair, Carla C. Keirns Source Type: research

Stress and Perception of Procedural Pain Management in Chinese Parents of Children with Cancer
This study examines Chinese parents ’ stress and perception towards their children’s procedural pain-control. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 5, 2020 Category: Palliative Care Authors: Cuixia Yan, Rita Cheung, Cho Lee Wong, Ho Yu Cheng, Fengying Liu, Haiying Huang, Celeste Ewig, Chi-Kong Li, Hui Zhang, Yin Ting Cheung Source Type: research

Determinants of Physicians' Attitudes Toward the Management of Infectious Diseases in Terminally Ill Patients With Cancer
This study aimed to systematically identify factors that determine physicians' attitudes toward the management of infectious diseases in terminally ill patients with cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 4, 2020 Category: Palliative Care Authors: Shinichiro Morioka, Masanori Mori, Tomomi Suzuki, Marika Yokomichi, Jun Hamano, Tatsuya Morita Tags: Original Article Source Type: research

Determinants of physicians ’ attitudes toward the management of infectious diseases in terminally-ill patients with cancer
This study aimed to systematically identify factors that determine physicians’ attitudes toward the management of infectious diseases in terminally-ill patients with cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 4, 2020 Category: Palliative Care Authors: Shinichiro Morioka, Masanori Mori, Tomomi Suzuki, Marika Yokomichi, Jun Hamano, Tatsuya Morita Source Type: research

The Urgency of Spiritual Care: COVID-19 and the Critical  Need for Whole-Person Palliation
The coronavirus disease 2019 (COVID-19) crisis has amplified the importance of palliative care to countless patients suffering with and dying from this disease, as well as to their families, communities, and the worldwide cadre of overburdened health care workers. Particularly urgent is the need for spiritual care specialists and generalists to address spiritual suffering given the degree of isolation, loneliness, and vulnerability caused by this pandemic. Although spiritual care has long been recognized as one of the domains of quality palliative care, it is often not fully integrated into practice. (Source: Journal of Pa...
Source: Journal of Pain and Symptom Management - July 2, 2020 Category: Palliative Care Authors: Betty R. Ferrell, George Handzo, Tina Picchi, Christina Puchalski, William E. Rosa Tags: COVID-19 Articles Fast Tracked Articles Source Type: research

The Urgency of Spiritual Care: COVID-19 and the Critical Need for Whole-Person Palliation
The COVID-19 crisis has amplified the importance of palliative care to countless patients suffering with and dying from this disease, as well as to their families, communities, and the worldwide cadre of overburdened healthcare workers. Particularly urgent is the need for spiritual care specialists and generalists to address spiritual suffering given the degree of isolation, loneliness, and vulnerability caused by this pandemic. Although spiritual care has long been recognized as one of the domains of quality palliative care, it is often not fully integrated into practice. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2020 Category: Palliative Care Authors: Betty R. Ferrell, George Handzo, Tina Picchi, Christina Puchalski, William E. Rosa Tags: COVID-19 for Fast Track Publication Source Type: research

“I Could Never Prepare for Something Like the Death of My Own Child”: Parental Perspectives on Preparedness at End of Life for Children with Complex Chronic Conditions
Children with complex chronic conditions (CCCs) have high morbidity and mortality. While these children often receive palliative care services, little is known about parental preparedness for their child ’s end of life (EOL). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2020 Category: Palliative Care Authors: Jori F. Bogetz, Anna Revette, Abby R. Rosenberg, Danielle DeCourcey Source Type: research

Investigation of modifiable variables to increase hospice nurse comfort with care provision to children and families in the community: A population-level study across Tennessee, Mississippi, and Arkansas
Most hospice nurses across Tennessee, Arkansas, and Mississippi report significant discomfort with provision of pediatric palliative and hospice care (PPHC). How best to target and modify variables to increase nurse comfort levels is not well understood. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 2, 2020 Category: Palliative Care Authors: Erica C. Kaye, Melanie Gattas, Ashley Kiefer, Jason Reynolds, Kristina Zalud, Chen Li, Zhaohua Lu, Justin N. Baker Source Type: research

Creating a Resilient Research Program —Lessons Learned From a Palliative Care Research Laboratory
Conducting palliative care research can be personally and professionally challenging. Although limitations in funding and training opportunities are well described, a less recognized barrier to successful palliative care research is creating a sustainable and resilient team. In this special report, we describe the experience and lessons learned in a single palliative care research laboratory. In the first few years of the program, 75% of staff quit, citing burnout and the emotional tolls of their work. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 1, 2020 Category: Palliative Care Authors: Abby R. Rosenberg, Krysta Barton, Courtney Junkins, Samantha Scott, Miranda C. Bradford, Angela Steineck, Nancy Lau, Liam Comiskey, Joyce P. Yi-Frazier Tags: Special Article Source Type: research

Creating a Resilient Research Program – Lessons Learned from a Palliative Care Research Lab
Conducting palliative care research can be personally and professionally challenging. While limitations in funding and training opportunities are well-described, a less recognized barrier to successful palliative care research is creating a sustainable and resilient team. In this special report, we describe the experience and lessons-learned in a single palliative care research lab. In the first few years of the program, 75% of staff quit, citing burnout and the emotional tolls of their work. To address our sustainability, we translated resilience theory to practice. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - July 1, 2020 Category: Palliative Care Authors: Abby R. Rosenberg, Krysta Barton, Courtney Junkins, Samantha Scott, Miranda C. Bradford, Angela Steineck, Nancy Lau, Liam Comiskey, Joyce P. Yi-Frazier Tags: Special Article Source Type: research

Knowledge, Opinion, and Attitude About the Italian Law on Advance Directives: A Population-Based Survey
Advance directives are legal documents which individuals draw up to declare their treatment preferences and to appoint well-informed proxies to safeguard patient autonomy in critical situations when that individual is temporarily or no longer able to communicate these preferences. On December 22, 2017, the Italian Parliament approved the first law on end of life ( “Provisions for informed consent and advance directives” L.219/2017), after a heated public and political debate lasting almost 20 years. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 30, 2020 Category: Palliative Care Authors: Ludovica De Panfilis, Paolo Giorgi Rossi, Elisa Mazzini, Luca Pistolesi, Luca Ghirotto, Antonio Noto, Sandra Cuocolo, Massimo Costantini Tags: Original Article Source Type: research

Knowledge, opinion and attitude about the Italian law on advance directives: a population-based survey
Advance directives are legal documents which individuals draw up to declare their treatment preferences and to appoint well-informed proxies to safeguard patient autonomy in critical situations when that individual is temporarily or no longer able to communicate these preferences. On December 22, 2017, the Italian Parliament approved the first law on end of life ( “Provisions for informed consent and advance directives” L.219/2017), after a heated public and political debate lasting almost twenty years. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 30, 2020 Category: Palliative Care Authors: Ludovica De Panfilis, Paolo Giorgi Rossi, Elisa Mazzini, Luca Pistolesi, Luca Ghirotto, Antonio Noto, Sandra Cuocolo, Massimo Costantini Source Type: research

Trends of utilization of palliative care and aggressive end-of-life care for patients who died of cancers and those who died of non-cancer diseases in hospitals
This study aimed to evaluate the trends of utilization of palliative care and aggressive end-of-life care for patients who died of cancers and those who died of non-cancer diseases in hospitals. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 30, 2020 Category: Palliative Care Authors: Yen-Ting Ko, Ming-Chung Ko, Chao-Ming Huang, Hsin-Yi Lien, Lin-Chung Woung, Sheng-Jean Huang Source Type: research

Rehabilitation for Cancer Patients in Inpatient Hospices/Palliative Care Units and Achievement of a Good Death: Analyses of Combined Data From Nationwide Surveys Among Bereaved Family Members
In end-of-life care, rehabilitation for patients with cancer is considered to be an important means for improving patients' quality of death and dying. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 29, 2020 Category: Palliative Care Authors: Takaaki Hasegawa, Ryuichi Sekine, Tatsuo Akechi, Satoshi Osaga, Tetsuya Tsuji, Toru Okuyama, Haruka Sakurai, Kento Masukawa, Maho Aoyama, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita Tags: Original Article Source Type: research

Using Grounded Theory to Inform the Human-Centered Design of Digital Health in Geriatric Palliative Care
Digital health offers innovative mechanisms to engage in palliative care, yet digital systems are typically designed for individual users, rather than integrating the patient ’s caregiving “social convoy” (i.e. family members, friends, neighbors, formal caregiving supports) to maximize benefit. As older adults with serious illness increasingly rely on the support of others, there is a need to foster effective integration of the social convoy in digitally supported palliative care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 29, 2020 Category: Palliative Care Authors: Jennifer Dickman Portz, Kelsey Lynett Ford, Katherine Doyon, David B. Bekelman, Rebecca S. Boxer, Jean S. Kutner, Sara Czaja, Sheana Bull Source Type: research

Rehabilitation for cancer patients in inpatient hospices / palliative care units and achievement of a good death: analyses of combined data from nationwide surveys among bereaved family members.
In end-of-life care, rehabilitation for cancer patients is considered to be an important means for improving patients ’ quality of death and dying (QODD). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 29, 2020 Category: Palliative Care Authors: Takaaki Hasegawa, Ryuichi Sekine, Tatsuo Akechi, Satoshi Osaga, Tetsuya Tsuji, Toru Okuyama, Haruka Sakurai, Kento Masukawa, Maho Aoyama, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita Source Type: research

Palliative care physicians and palliative radiotherapy, knowledge and barriers for referring: a cross-sectional study.
Palliative radiotherapy is effective in the management of symptoms resulting from advanced cancer. However, it remains underutilised. In developed countries, many factors have been linked to this phenomenon but data in developing and low income countries, particularly in Latin America, are lacking. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 29, 2020 Category: Palliative Care Authors: Andr és Vargas, Carolina Torres, Anna Küller-Bosch, Belén Villena Source Type: research

The effect of caregiver-facilitated pain management interventions in hospitalized patients on patient, caregiver, provider and health system outcomes: A systematic review
Alternative pain management interventions involving caregivers may be valuable adjuncts to conventional pain management interventions. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 29, 2020 Category: Palliative Care Authors: Israt Yasmeen, Karla D. Krewulak, Cherri Zhang, Henry T. Stelfox, Kirsten M. Fiest Source Type: research

Physician-Predicted Prognosis and Palliative Radiotherapy Treatment Utilization at the End of Life: An Audit of a Large Cancer Center Network
At our institution, clinical pathways capture physicians ’ prognostication of patients being evaluated for palliative radiotherapy. We hypothesize a low utilization rate of long-course radiotherapy (LCRT) and stereotactic ablative radiotherapy (SAbR) among patients seen at the end of life, especially those with physician-predicted poor prognosis. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Adrianna E. Mojica-M árquez, Joshua L. Rodríguez-López, Ankur K. Patel, Diane C. Ling, Malolan S. Rajagopalan, Sushil Beriwal Tags: Original Article Source Type: research

Changing Practices in the Use of Continuous Sedation at the End of Life: A Systematic Review of the Literature
The use of continuous sedation until death (CSD) has been highly debated for many years. It is unknown how the use of CSD evolves over time. Reports suggest that there is an international increase in the use of CSD for terminally ill patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Madelon T. Heijltjes, Ghislaine J.M.W. van Thiel, Judith A.C. Rietjens, Agnes van der Heide, Alexander de Graeff, Johannes J.M. van Delden Tags: Review Article Source Type: research

Narrative Approach to Goals of Care Discussions: Assessing the Use of the 3-Act Model in the Clinical Setting
This study moves beyond the classroom to the clinical setting to assess whether learners preferred this approach, believed it to be clinically effective, and demonstrated proficiency objectively. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Benjamin Roberts, Scott M. Wright, Sydney Morss Dy, David Shih Wu Tags: Educational Exchange Source Type: research

Narrative Approach to Goals of Care Discussions: Assessing Use of the 3-Act Model in the Clinical Setting
This study moves beyond the classroom to the clinical setting to assess whether learners preferred this approach, be lieved it to be clinically effective, and demonstrated proficiency objectively. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Benjamin Roberts, Scott M. Wright, Sydney Morss Dy, David Shih Wu Source Type: research

Sensitivity and specificity of a machine learning algorithm to identify goals-of-care documentation for adults with congenital heart disease at the end of life
Goals-of-care discussions are an important part of high-quality care for patients with serious illness. These discussions are most useful if they are documented in the electronic health record (EHR) in a way that is easily accessible. This is especially important in the inpatient setting, where team-based care is common and long-term clinician-patient relationships are the exception. Patients with adult congenital heart disease (ACHD) are a rapidly-growing group of young patients whose prognoses are changing quickly with advances in medical technology.(1) They face healthcare challenges throughout their lives, including th...
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Jill M. Steiner, Christina Morse, Robert Y. Lee, J. Randall Curtis, Ruth A. Engelberg Source Type: research

Changing practices in the use of continuous sedation at the end of life. A systematic review of the literature.
Background: The use of continuous sedation until death (CSD) has been highly debated for many years. It is unknown how the use of CSD evolves over time. Reports suggest that there is an international increase in the use of CSD for terminally ill patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Madelon Heijltjes, Ghislaine van Thiel, Judith Rietjens, Agnes van der Heide, Alexander de Graeff, Johannes van Delden Source Type: research

Physician-Predicted Prognosis and Palliative Radiotherapy Treatment Utilization at the End-of-Life: An Audit of a Large Cancer Center Network
At our institution, clinical pathways capture physicians ’ prognostication of patients being evaluated for palliative radiotherapy (PRT). We hypothesize a low utilization rate of long-course RT (LCRT) and stereotactic ablative radiotherapy (SAbR) among patients seen at the end-of-life, especially those with physician predicted poor prognosis. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Adrianna E. Mojica-M árquez, Joshua L. Rodríguez-López, Ankur K. Patel, Diane C. Ling, Malolan S. Rajagopalan, Sushil Beriwal Source Type: research

Measuring Goal-Concordant Care: Results and reflections from secondary analysis of a trial to improve serious illness communication
Many consider goal-concordant care (GCC) to be the most important of advance care planning and palliative care. Researchers face significant challenges in attempting to measure this outcome. We conducted a randomized controlled trial to assess the effects of a system-level intervention to improve serious illness communication on goal-concordant care and other outcomes. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 26, 2020 Category: Palliative Care Authors: Justin J. Sanders, Kate Miller, Meghna Desai, Olaf P. Geerse, Joanna Paladino, Jane Kavanagh, Joshua R. Lakin, Bridget A. Neville, Susan D. Block, Erik K. Fromme, Rachelle Bernacki Source Type: research

Pc-facs
GABAA Receptors and Pain Correlation (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 24, 2020 Category: Palliative Care Authors: Andie Bernard Source Type: research

Challenges in Using Insurance Claims Data to Identify Palliative Care Patients for a Research Trial
Little is known about strategies for enrolling patients in home-based palliative care programs despite the need to conduct effectiveness studies of this emerging industry. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 23, 2020 Category: Palliative Care Authors: Susan Enguidanos, Anna Rahman, Torrie Fields, Wendy Mack, Richard Brumley, Michael Rabow, Melissa Mert Tags: Brief Report Source Type: research

In Search of Hospice Information: Consumer Information Available on Hospice Compare and Yelp
Little is known about strategies for enrolling patients in home-based palliative care (HBPC) programs, despite the need to conduct effectiveness studies of this emerging industry. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 23, 2020 Category: Palliative Care Authors: Anna N. Rahman, Susan Enguidanos Source Type: research

Deep natural language processing to identify symptom documentation in clinical notes for patients with heart failure undergoing cardiac resynchronization therapy
Clinicians lack reliable methods to predict which patients with congestive heart failure (CHF) will benefit from cardiac resynchronization therapy (CRT). Symptom burden may help to predict response, but this information is buried in free-text clinical notes. Natural language processing (NLP) may identify symptoms recorded in the electronic health record (EHR) and thereby enable this information to inform clinical decisions about the appropriateness of CRT. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 21, 2020 Category: Palliative Care Authors: Richard E. Leiter, Enrico Santus, Zhijing Jin, Katherine Lee, Miryam Yusufov, Isabel Chien, Ashwin Ramaswamy, Edward T. Moseley, Yujie Qian, Deborah Schrag, Charlotta Lindvall Tags: Original Article Source Type: research

Educate, Nurture, Advise, Before Life Ends: Comprehensive Heart Care for Patients and Families (ENABLE CHF-PC): An Early Palliative Care Telehealth Randomized Trial for Patients with Advanced Heart Failure (103A)
Palliative care (PC) for advanced stage heart failure (HF) is recommended by national organizations and guidelines; however, there are few tested integrated HF PC models. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Marie Bakitas, Deborah Ejem, James Dionne-Odom, Rachel Wells, Andres Azuero, Macy Stockdill, Konda Keebler, Elizabeth Sockwell, Sheri Tims, Sally Engler, Elizabeth Kvale, Rodney Tucker, Kathryn Burgio, Jose Tallaj, Keith Swetz, Karen Steinhauser, Raegan D Tags: Saturday Morning Plenary Session Source Type: research

Caregiver-Guided Pain Management for Advanced Cancer: Results of a Randomized Controlled Trial (103B)
Pain is common among patients with advanced cancer and causes distress for both patients and their caregivers. Cognitive-behavioral pain coping skills interventions can improve pain and pain-related outcomes but have rarely been tested in advanced cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Laura Porter, Thomas LeBlanc, Janet Bull, Laura Hanson Source Type: research

Time Trends in Opioid Prescribing and Uncontrolled Pain in the Last Month of Life, 2010-2018 (103C)
Opioids are a core component of pain management near the end of life. Over the past decade, in response to the opioid crisis, organizations, including the Veterans Health Administration (VA) and the Centers for Disease Control and Prevention, have developed guidelines intended to reduce opioid overuse. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Melissa Wachterman, Erin Beilstein-Wedel, Ann Ohare, Carly Meyer, Walid Gellad, Karl Lorenz, Scott Shreve, Susan Crowley, Amanda O'Grady, Nancy Keating Source Type: research

Effects of Early Palliative Care for Family Caregivers of Persons with Advanced Heart Failure: The ENABLE CHF-PC Randomized Controlled Trial (CS201A)
Family caregivers (CGs) provide high levels of care to persons with advanced heart failure and are at high risk for distress and poor quality of life (QoL). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Deborah Ejem, Rachel Wells, Andres Azuero, Macy Stockdill, Konda Keebler, Elizabeth Sockwell, Sheri Tims, Sally Engler, Elizabeth Kvale, Rodney Tucker, Kathryn Burgio, Jose Tallaj, Keith Swetz, James Dionne-Odom, Marie Bakitas Tags: Oral Concurrent Sessions Source Type: research

Empowering Patient Participation in Advance Care Planning Discussions: Audio Recordings of Primary Care Visits Among PREPARE Randomized Trial Participants (CS201B)
A patient-directed, online program (prepareforyourcare.org – PREPARE) increases ACP documentation. However, whether PREPARE empowers diverse older adults to actively participate in primary care ACP discussions is unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Jennifer Freytag, Deborah Barnes, Ying Shi, Aiesha Volow, Janet Shim, Stewart Alexander, Rebecca Sudore Source Type: research

Effectiveness of Advance Care Planning Group Visits for Older Adults in Primary Care (CS201C)
Group visits can support behavior change. In primary care, an advance care planning (ACP) group visit intervention may leverage group dynamics to increase ACP engagement. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Hillary Lum, Rebecca Sudore, Jean Kutner Source Type: research

Changes in Place of Death in the United States (CS202A)
Place of death is an important aspect of the patient/caregiver experience and knowing where patients die is essential for delivery of high-quality end-of-life care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Sarah Cross, Haider Warraich Source Type: research

Trends in Residential Setting and Hospice Use at the End of Life: A Population-Based Study of Medicare Decedents (CS202B)
The locus of care for older adults is rapidly shifting from institutional to community settings. Consistent with preferences for care and policy changes, the past decade has seen a proliferation of community-based residential alternatives to private residences and nursing homes including assisted living facilities, retirement communities, personal care homes, and senior citizen housing. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Melissa Aldridge, Katherine Ornstein, Karen McKendrick, Jaison Moreno, Lihua Li Source Type: research

POLST-Discordant Intensive Care Near the End of Life: Prevalence and Thematic Analysis (CS202C)
Patients with chronic life-limiting illness frequently use Physician Orders for Life Sustaining Treatment (POLST) forms to document treatment limitations for emergency care. However, POLST orders may be overridden during acute illness, leading to POLST-discordant care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Robert Lee, Matthew Modes, Ruth Engelberg, J. Randall Curtis, Erin Kross Source Type: research

Expert Panel Endorsed Quality Metrics for End-of-Life Care for Children with Cancer: Results of a Modified Delphi Panel (CS203A)
Adult quality markers provide program accountability and informed outcomes for clinical trials. However, corresponding quality markers are lacking for children with cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Emily Johnston, Isaac Martinez, Smita Bhatia Source Type: research

A Stakeholder-Engaged Process for Refining the Design of a Hospice Clinical Trial (CS203B)
Clinical trials in the home hospice setting are important to build evidence for practice. Balancing the burdens and benefits of conducting a trial in the hospice setting, particularly from the point of view of clinicians, patients, and family caregivers, is challenging. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2020 Category: Palliative Care Authors: Jennifer Tjia, Margaret Clayton, Susan DeSanto-Madeya Source Type: research