Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 18, 2020 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 18, 2020 Category: Palliative Care Source Type: research

Engaging Parents of Children Who Died from Cancer in Research on the Early Grief Experience
Bereaved parents provide an important perspective for improving care for patients and families throughout the illness and following a child ’s death. However, involvement of bereaved parents in research studies is fraught with concerns over inflicting psychological distress and issues with study recruitment. Data on research strategies to engage parents early in their bereavement are limited. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 16, 2020 Category: Palliative Care Authors: Jennifer M. Snaman, Gabrielle Helton, Justin N. Baker, Sue E. Morris, Hasan Al-Sayegh, Clement Ma, Joanne Wolfe Tags: Original Article Source Type: research

Discordant Cardiopulmonary Resuscitation and Code Status at Death
One fundamental way to honor patient autonomy is to establish and enact their wishes for end of life care. Limited research exists regarding adherence with code status. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 16, 2020 Category: Palliative Care Authors: Alexandria J. Robbins, Nicholas E. Ingraham, Adam C. Sheka, Kathryn M. Pendleton, Rachel Morris, Alexander Rix, Victor Vakayil, Jeffrey G. Chipman, Anthony Charles, Christopher J. Tignanelli Tags: Original Article Source Type: research

Preparedness of African palliative care services to respond to the COVID-19 pandemic: A rapid assessment
Palliative care is an essential component of the COVID-19 pandemic response, but is overlooked in national and international preparedness plans. The preparedness and capacity of African palliative care services to respond to COVID-19 is unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 15, 2020 Category: Palliative Care Authors: Sabah Boufkhed, Eve Namisango, Emmanuel Luyirika, Katherine E. Sleeman, Massimo Costantini, Carlo Peruselli, Charles Normand, Irene J. Higginson, Richard Harding Source Type: research

Selection Bias in Observational Studies of Palliative Care: Lessons Learned
Palliative care programs are typically evaluated using observational data, raising concerns about selection bias. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 15, 2020 Category: Palliative Care Authors: Brystana G. Kaufman, Courtney H. Van Houtven, Melissa A. Greiner, Bradley G. Hammill, Matthew Harker, David Anderson, Sarah Petry, Janet Bull, Donald H. Taylor Tags: Original Article Source Type: research

Racial Disparities in End-of-Life Care between Black and White Adults with Metastatic Cancer
Cancer patients ’ comfort near the end of life is often undermined by unnecessary and burdensome treatments. There is a need for more research examining racial disparities in end-of-life care, especially in regions with a history of racial discrimination. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 15, 2020 Category: Palliative Care Authors: Laura M. Perry, Leah E. Wash, Ronald Horswell, Lucio Miele, San Chu, Brian Melancon, John Lefante, Christopher M. Blais, James L. Rogers, Michael Hoerger Tags: Brief Report Source Type: research

Workforce Planning for Community-based Palliative Care Specialist Teams using Operations Research
Many countries have aging populations. Thus, the need for palliative care will increase. However, the methods to estimate optimal staffing for specialist palliative care teams are rudimentary as yet. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 14, 2020 Category: Palliative Care Authors: Majid Taghavi, Grace Johnston, Robin Urquhart, David Henderson, Cheryl Tschupruk, Beth Tupala Tags: Original Article Source Type: research

Intensity of Vasopressor Therapy and In-Hospital Mortality for Infants and Children: An Opportunity for Counseling Families
To investigate whether the intensity of vasopressor therapy for pediatric patients, regardless of diagnosis, predicts in-hospital mortality. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 14, 2020 Category: Palliative Care Authors: Khyzer B. Aziz, Renee D. Boss, Christina C. Yarborough, Jessica C. Raisanen, Kathryn Neubauer, Pamela K. Donohue Tags: Original Article Source Type: research

Confirmed Medication Diversion in Hospice Care:Qualitative Findings from a National Sample of Agencies
The non-medical use of prescribed medications is a major public health concern in the United States. Medications prescribed to hospice patients for pain management may be at risk of being diverted to be sold or used illicitly. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 12, 2020 Category: Palliative Care Authors: Orrin D. Ware, John G. Cagle, Mary Lynn McPherson, Paul Sacco, Jodi Frey, Jack Guralnik Tags: Original Article Source Type: research

Assessing the will to live: a scoping review
The will to live is an important factor to consider in the context of providing resource-oriented palliative care. Until now, there has been no major review of the existing research on this subject. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 12, 2020 Category: Palliative Care Authors: Marc-Antoine Bornet, Mathieu Bernard, C écile Jaques, Eve Rubli Truchard, Gian Domenico Borasio, Ralf J. Jox Tags: Review Article Source Type: research

Concerns of Parents with Children Receiving Home-Based Pediatric Palliative Care
Caring for a child who will die from a life-limiting illness is one of the most difficult experiences a parent may face. Pediatric palliative care (PPC) has grown as a specialty service to address the unique needs of children and families with serious illness. However, gaps remain between the needs of families in PPC and the support received. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 12, 2020 Category: Palliative Care Authors: Perri R. Tutelman, Keagan G. Lipak, Aminat Adewumi, Marci Z. Fults, Lisa M. Humphrey, Cynthia A. Gerhardt Tags: Original Article Source Type: research

The association between hospital end-of-life care quality and the care received among patients with heart failure.
Improving end-of-life care (EOLC) quality among heart failure patients is imperative. Data are limited as to the hospital processes of care that facilitate this goal. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 12, 2020 Category: Palliative Care Authors: Shelli L. Feder, Janet Tate, Mary Ersek, Supriya Krishnan, Sarwat I. Chaudhry, Lori A. Bastian, Joshua Rolnick, Ann Kutney-Lee, Kathleen M. Akg ün Tags: Original Article Source Type: research

My Wife ’s Palliative Care Helped Both of Us
Fourteen months after she was diagnosed with pancreatic cancer, Sharon, my beloved wife and partner, died at home in my arms. I knew the end was near. Maybe Sharon did as well; I was no longer certain of her level of awareness. I lay with her all night, alternately dosing and awake, deeply sad, but wanting her misery to end. I would be alone, but she would no longer suffer. My arms were around her and I talked to her hoping that she could hear me. She died before the sun rose on the morning of January 10, 2018. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 11, 2020 Category: Palliative Care Authors: Thomas S. Wallsten Source Type: research

Palliative radiotherapy produced spectacular improvement in a terminally ill colorectal carcinoma patient with severe pain and duodenal bleeding
Colorectal cancer (CRC) has a devastating effect on the quality of life, and the treatment of active intestinal bleeding in CRC is a real challenge at the end of life. This case report presents a spectacular effect of an unusual palliative treatment strategy in a middle-aged home hospice patient with severe pain and persistent duodenal bleeding secondary to its neoplastic infiltration. Palliative radiotherapy (RT) significantly improved pain control, terminated the duodenal bleeding, and allowed successful treatment of deep vein thrombosis, previously impossible due to the bleeding. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 11, 2020 Category: Palliative Care Authors: Miroslaw Kiedrowski, Milena Szacht Source Type: research

Relationships between advanced cancer patients ’ worry about dying and illness understanding, treatment preferences, and advance care planning
Patients with advanced cancer often worry about dying. Less is known about the role of worry in decision making regarding future care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 11, 2020 Category: Palliative Care Authors: Rachel A. Rodenbach, Andrew D. Althouse, Yael Schenker, Thomas J. Smith, Edward Chu, Douglas B. White, Marie Bakitas, Robert M. Arnold Tags: Original Article Source Type: research

Screened In
At first it seems like a routine consult. He ’s not recovering, and we need Palliative Care to clarify goals of care and help manage symptoms. We’ve seen many patients like this. They come in daily with the novel coronavirus, some intubated within hours. Spring is in full bloom outside, but in the hospital, it feels like everything is wilt ing. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 11, 2020 Category: Palliative Care Authors: Jordana L. Meyerson Source Type: research

Charting the territory: end-of-life trajectories for children with complex neurological, metabolic and chromosomal conditions
For parents, family or clinicians of children with rare, life-threatening conditions there is little information regarding likely symptoms, illness trajectory and end-of-life care. This descriptive analysis of a bereaved cohort recruited in the Charting the Territory (CTT) study describes patient characteristics, symptoms, use of medications, discussion of resuscitation orders and care provided preceding and during the end-of-life. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 8, 2020 Category: Palliative Care Authors: Danielle Bao, Leanne Feichtinger, Gail Andrews, Colleen Pawliuk, Rose Steele, Harold (Hal) Siden Tags: Original Article Source Type: research

Palliative care in the Greater China region: a systematic review of needs, models and outcomes
There is rapidly increasing need for palliative care in Greater China due to rapidly aging populations. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 8, 2020 Category: Palliative Care Authors: Huei Chung, Richard Harding, Ping Guo Tags: Review Article Source Type: research

Potentially inappropriate treatments at the end of life in nursing home residents: Findings from the PACE cross-sectional study in 6 European countries
Certain treatments are potentially inappropriate when administered to nursing homes residents at the end of life and should be carefully considered. An international comparison of potentially inappropriate treatments allows insight into common issues and country-specific challenges of end-of-life care in nursing homes and helps direct health care policy in this area. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 8, 2020 Category: Palliative Care Authors: Elisabeth Honinx, L. Van den Block, R. Piers, S.M.J. Van Kuijk, B.D. Onwuteaka-Philipsen, S. Payne, K. Szczerbi ńska, G.G. Gambassi, H. Finne-Soveri, L. Deliens, T. Smets Tags: Original Article Source Type: research

Avoid stigmatizing language about atheist patients
In response to the article “The Urgency of Spiritual Care: COVID-19 and the Critical Need for Whole-Person Palliation” by Ferrell et al.(1), the authors’ use of the aphorism, ‘No Atheists in the Foxhole,’ insults the worldview of atheists, further stigmatizes a community of patients, families and clinicians, undermi nes the role of spiritual care professionals in health care, and is not representative of the whole-person approach heralded in palliative care. The authors must recognize the danger of this aphorism used in a scholarly context and they should remove this demeaning phrase while fin...
Source: Journal of Pain and Symptom Management - September 7, 2020 Category: Palliative Care Authors: Christian T. Sinclair, Drew Rosielle Tags: Letter Source Type: research

Honoring Veterans ’ Preferences: The Association between Comfort Care Goals and Care Received at the End of Life
As part of its Life Sustaining Treatment (LST) Decisions Initiative (LSTDI) the Veterans Health Administration (VA) in January 2017 began requiring electronic documentation of goals of care and preferences for Veterans with serious illness and at high risk for life-threatening events. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 7, 2020 Category: Palliative Care Authors: Susan C. Miller, Winifred J. Scott, Mary Ersek, Cari Levy, Robert Hogikyan, Vyjeynathi S. Periyakoil, Joan G. Carpenter, Jennifer Cohen, Mary Beth Foglia Source Type: research

Provider perceptions of a humanizing intervention for healthcare workers – a survey study of PPE Portraits
Reports from patients and healthcare workers dealing with COVID-19 underscore experiences of isolation and fear. Some of this experience results from the distancing effect of masks, gloves, and gowns known as Personal Protective Equipment (PPE). One approach to bridging the divide created by PPE is the use of PPE Portraits, postcard-sized pictures affixed to PPE. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 6, 2020 Category: Palliative Care Authors: Jennifer Reidy, Cati Brown-Johnson, Nancy McCool, Shawna Steadman, Mary Beth Heffernan, Vandana Nagpal Source Type: research

Re-ACT: Remote Advanced Communication Training in a Time of Crisis
We used a quality improvement framework to a transform two-day, in-person, advanced communication training (ACT) course into a remote ACT (Re-ACT) format to help clinicians improve serious illness conversation (SIC) skills. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 5, 2020 Category: Palliative Care Authors: Thomas Carroll, Christopher Mooney, Robert Horowitz Source Type: research

PC-FACS September 1, 2020
Preserved Hearing at EOL (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 5, 2020 Category: Palliative Care Authors: Danielle Leber Source Type: research

Erratum
Corrigendum to Patients' Self-Assessment of the Symptoms and Impact of Opioid-Induced Constipation: Results From a Prospective Observational Cohort Study of Japanese Patients With Cancer [Journal of Pain and Symptom Management 59 (2020) 1043-1051.e2]. In the article, Patients' Self-Assessment of the Symptoms and Impact of Opioid-Induced Constipation: Results From a Prospective Observational Cohort Study of Japanese Patients With Cancer by Fumita S et  al (Vol. 59 No. 5 May 2020 Journal of Pain and Symptom Management 1043); Figure 5 was submitted with an error. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 3, 2020 Category: Palliative Care Tags: Corrigendum Source Type: research

Corrigendum
to Patients' Self-Assessment of the Symptoms and Impact of Opioid-Induced Constipation: Results From a Prospective Observational Cohort Study of Japanese Patients With Cancer [Journal of Pain and Symptom Management 59 (2020) 1043-1051.e2]. In the article, Patients' Self-Assessment of the Symptoms and Impact of Opioid-Induced Constipation: Results From a Prospective Observational Cohort Study of Japanese Patients With Cancer by Fumita S et  al (Vol. 59 No. 5 May 2020 Journal of Pain and Symptom Management 1043); Figure 5 was submitted with an error. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 3, 2020 Category: Palliative Care Tags: Corrigendum Source Type: research

To Disclose or Not to Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric Disclosure
Due to differences in opinion about patient autonomy and perceived maturity, discussing diagnosis and prognosis with children can be challenging. Shifting away from “never tell” and “always tell” approaches, recent articles have championed more nuanced case-by-case approaches to disclosure of information to children.1–4 Here we present the case of Ari (names have been changed for confidentiality), a ten-year-old with metastatic NUT (nuclear protein of the testis) carcinoma—a rare and aggressive tumor with poor prognosis,5,6—whose medical course was complicated by parental wishes to...
Source: Journal of Pain and Symptom Management - September 2, 2020 Category: Palliative Care Authors: Isaac Martinez, Anna Hoppmann, Sam Perna, Paul Byrd, Joanne Wolfe, Jamie Aye, Emily E. Johnston Source Type: research

“Definitely Mixed Feelings:” The effect of COVID-19 on bereavement in parents of children who died from cancer
COVID-19 has impacted most elements of daily life, including the provision of support following a child ’s death and the experience of parental bereavement. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 1, 2020 Category: Palliative Care Authors: Gabrielle Helton, Joanne Wolfe, Jennifer M. Snaman Tags: COVID-19 for Fast Track Publication Source Type: research

Cerebrospinal fluid metabolomic profiles associated with fatigue during treatment for pediatric acute lymphoblastic leukemia
Cancer-related fatigue (CRF) is one of the most distressing and persistent symptoms reported during pediatric acute lymphoblastic leukemia (ALL) therapy; however, information on the pathways underlying CRF severity is limited. Therefore, we conducted global metabolomics profiling of cerebrospinal fluid (CSF) samples to provide insight into the underlying mechanisms of CRF. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 1, 2020 Category: Palliative Care Authors: Austin L. Brown, Pagna Sok, Olga Taylor, John P. Woodhouse, M. Brooke Bernhardt, Kimberly P. Raghubar, Lisa S. Kahalley, Philip J. Lupo, Marilyn J. Hockenberry, Michael E. Scheurer Source Type: research

Will you hear me? Have you heard me? Do you see me? Adding Cultural Humility to Resource Allocation and Priority Setting Discussions in the care of African-American patients with Covid-19
The COVID-19 pandemic has refocused our attention on healthcare disparities affecting patients of color, with a growing body of literature focused on the etiology of these disparities and strategies to eliminate their effects. In considering the unique impact COVID-19 is having on African American communities, added measure must be given to ensure for sensitivity, empathy, and supportive guidance in medical decision-making amongst African American patients faced with critical illness secondary to COVID-19. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 1, 2020 Category: Palliative Care Authors: Khaliah A. Johnson, Tammie Quest, Kimberly Curseen Source Type: research

Stress and symptom burden in oncology patients during the covid-19 pandemic
No information is available on oncology patients ’ level of stress and symptom burden during the COVID-19 pandemic. We evaluated for differences in demographic and clinical characteristics, levels of social isolation and loneliness, and the occurrence and severity of common symptoms between oncology patients with low versus high levels of COVID- 19 and cancer-related stress. In addition, we determined which of these characteristics were associated with membership in the high stressed group. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 1, 2020 Category: Palliative Care Authors: Christine Miaskowski, Steven M. Paul, Karin Snowberg, Maura Abbott, Hala Borno, Susan Chang, Lee May Chen, Bevin Cohen, Marilyn J. Hammer, Stacey A. Kenfield, Kord M. Kober, Jon D. Levine, Rachel Pozzar, Kim F. Rhoads, Erin L. Van Blarigan, Katherine Van Tags: Original Article Source Type: research

“Pain is Subjective”: A Mixed-Method Study of Provider Attitudes and Practices Regarding Pain Management in Sickle Cell Disease across Three Countries
Sickle cell disease (SCD), an autosomal recessive blood disorder, affects millions of people worldwide. Approximately 80% of all cases are located in Africa (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 31, 2020 Category: Palliative Care Authors: Kearsley A. Stewart, Monika Parshad-Asnani, Ambroise Wonkam, John Bollinger, Valentina Ngo Bitoungui, Edmond Wonkam-Tingang, Jill Powell, Kathia Desronvil, Kathryn Benson, Abby Clark, Madelaine Katz, Bianca Martin, Carolyn Peterseim, Christina Williams, N Source Type: research

The Effect of Aromatherapy Massage with Lavender and Citrus Aurantium Essential Oil on Quality of Life of Patients on Chronic Hemodialysis: A Parallel Randomized Clinical Trial Study
Poor quality of life are major problems in hemodialysis patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 31, 2020 Category: Palliative Care Authors: Reza Mohammadpourhodki, Hosein Sadeghnezhad, Hossein Ebrahimi, Mohammad Hasan Basirinezhad, Maryam Maleki, Maurizio Bossola Source Type: research

Can Orthodox Jewish Patients Undergo Palliative Extubation? A Challenging Ethics Case Study
We report the case of an 88-year-old Orthodox Jewish patient, on invasive mechanical ventilation, with severe anoxic brain injury after multiple cardiac arrests. Although the patient ’s son informed the palliative care team that his father did not want to be in pain or to linger in a vegetative state when terminally ill, the mechanical ventilation was keeping him alive with a poor neurological prognosis. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 31, 2020 Category: Palliative Care Authors: Cynthia X. Pan, Bruno Almeida Costa, Elina K. Yushuvayev, Liam Gross, Fernando Kawai Source Type: research

Psychological Distress in Bereaved Caregivers of Patients with Advanced Cancer
Many bereaved caregivers of patients with advanced cancer endure clinically significant depression and anxiety symptoms at three to six months after the death of their loved ones. Physical and psychological distress in patients at the EOL is associated with bereaved caregivers ’ depression and anxiety symptoms. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 31, 2020 Category: Palliative Care Authors: Areej El-Jawahri, Joseph A. Greer, Elyse R. Park, Vicki A. Jackson, Mihir Kamdar, Simone P. Rinaldi, Emily R. Gallagher, Annemarie D. Jagielo, Carlisle E.W. Topping, Madeleine Elyze, Bailey Jones, Jennifer S. Temel Source Type: research

A Practical Approach to Non-Medical Opioid Use in Palliative Care Cancer Patients: Using the PARTNERS Framework
Nearly 50% of cancer patients and 75% of those with advanced cancer suffer from disease-related pain. [1] In light of the opioid epidemic and high rates of prescription opioid misuse in the United States, there is an emphasis to prescribe responsibly, which includes using non-opioid modalities, careful screening and monitoring for opioid misuse. [2-4] It is recommended to treat mild to moderate cancer pain first with non-opioid analgesics (such as NSAIDS or acetaminophen), adjuvant analgesics (such as antidepressants, anticonvulsants, topical agents or corticosteroids) psychosocial support, physical therapy, education and ...
Source: Journal of Pain and Symptom Management - August 31, 2020 Category: Palliative Care Authors: Amy A. Case, Michelle Walter, Megan Pailler, LuAnn Stevens, Eric Hansen Source Type: research

The Experience of Emergency Department Providers with Embedded Palliative Care during COVID
Although the importance of palliative care (PC) integration in the Emergency Department (ED) has long been recognized, few formalized programs have been reported and none have evaluated the experience of ED clinicians with embedded PC. We evaluate the experience of ED clinicians with embedded PC in the ED during COVID. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 30, 2020 Category: Palliative Care Authors: Emily Loving Aaronson, Laura Petrillo, Mark Stoltenberg, Juliet Jacobsen, Erica Wilson, Jason Bowman, Kei Ouchi, Lara Traeger, Bethany-Rose Daubman, Christine Seel Ritchie, Vicki Jackson Tags: Original Article Source Type: research

Racial/ethnic differences in staff-assessed pain behaviors among newly-admitted nursing home residents
Nonverbal pain behaviors are effective indicators of pain among persons who have difficulty communicating. In nursing homes, racial/ethnic differences in self-reported pain and pain management have been documented. Few studies have examined racial/ethnic differences in nonverbal pain behaviors and pain management among residents with staff-assessed pain. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 30, 2020 Category: Palliative Care Authors: Reynolds Morrison, Bill Jesdale, Catherine Dube, Sarah Forrester, Anthony Nunes, Carol Bova, Kate L. Lapane Source Type: research

The #PalliativeCare Conversation on Twitter: An Analysis of Trends, Content, and Caregiver Perspectives
Palliative care is known to improve patients ’ quality of life, but oftentimes these conversations occur outside of the health-care setting. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 25, 2020 Category: Palliative Care Authors: Divya L. Padmanabhan, Varun Ayyaswami, Arpan V. Prabhu, Christian Sinclair, Marilyn R. Gugliucci Tags: Original Article Source Type: research

The #PalliativeCare conversation on Twitter: An analysis of trends, content and caregiver perspectives
Palliative care is known to improve patients ’ quality of life, but oftentimes these conversations occur outside of the healthcare setting. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 25, 2020 Category: Palliative Care Authors: Divya L. Padmanabhan, Varun Ayyaswami, Arpan V. Prabhu, Christian Sinclair, Marilyn R. Gugliucci Source Type: research

National Trends in Hospice Facility Deaths in the United States, 2003-2017
Hospice facilities are increasingly preferred as a location of death, but little is known about the characteristics of patients who die in these facilities in the United States. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 25, 2020 Category: Palliative Care Authors: Sarah H. Cross, Brystana G. Kaufman, Tammie E. Quest, Haider J. Warraich Tags: Brief Report Source Type: research

Identifying Goals of Care Conversations in the Electronic Health Record Using Natural Language Processing and Machine Learning
Goals-of-care discussions are an important quality metric in palliative care. However, goals-of-care discussions are often documented as free text in diverse locations. It is difficult to identify these discussions in the electronic health record (EHR) efficiently. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 24, 2020 Category: Palliative Care Authors: Robert Y. Lee, Lyndia C. Brumback, William B. Lober, James Sibley, Elizabeth L. Nielsen, Patsy D. Treece, Erin K. Kross, Elizabeth T. Loggers, James A. Fausto, Charlotta Lindvall, Ruth A. Engelberg, J. Randall Curtis Tags: Brief Methodological Report Source Type: research

Identifying Goals of Care Conversations in the Electronic Health Record, Using Natural Language Processing and Machine Learning
Goals-of-care discussions are an important quality metric in palliative care. However, goals-of-care discussions are often documented as free text in diverse locations. It is difficult to identify these discussions in the electronic health record (EHR) efficiently. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 24, 2020 Category: Palliative Care Authors: Robert Y. Lee, Lyndia C. Brumback, William B. Lober, James Sibley, Elizabeth L. Nielsen, Patsy D. Treece, Erin K. Kross, Elizabeth T. Loggers, James A. Fausto, Charlotta Lindvall, Ruth A. Engelberg, J. Randall Curtis Source Type: research

The Palliative Care – Promoting Assessment and Improvement of the Cancer Experience (PC-PAICE) Project: A Multi-Site International Quality Improvement Collaborative
Mentors at seven United States and Australian academic institutions partnered with seven leading Indian academic palliative care and cancer centers to undertake a program combining remote and in-person mentorship, didactic instruction, and project-based learning in quality improvement. From its inception in 2017 to 2020, the Promoting Assessment and Improvement of the Cancer Experience (PC-PAICE) Program conducted three cohorts for capacity building of 22 Indian palliative care and cancer programs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 24, 2020 Category: Palliative Care Authors: K.A. Lorenz, J. Mickelsen, N. Vallath, S. Bhatnagar, O. Spruyt, M. Rabow, M. Agar, S.M. Dy, K. Anderson, J. Deodhar, L. Digamurti, G. Palat, S. Rayala, M.M. Sunilkumar, V. Viswanath, J.J. Warrier, S. Gosh-Laskar, S.M. Harman, K.G. Giannitrapani, A. Satija Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 23, 2020 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 23, 2020 Category: Palliative Care Source Type: research

Should It Be Called "Suicide" or "Withdrawal of LVAD Support"?
Left ventricular assist devices (LVADs) have become the standard of care for patients with end-stage heart failure refractory to conventional therapy to improve their survival and quality of life.1 But when LVAD therapy no longer meets their treatment-related preferences, goals, and values, patients may request withdrawal of LVAD support. Especially when patients are not acutely ill and they are medically stable, this request raises ethical concerns among clinicians. Prior research has shown that some clinicians (13%) perceive turning off an LVAD is the same as physician-assisted suicide or euthanasia. (Source: Journal of ...
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Shunichi Nakagawa, Nir Uriel, Kenneth M. Prager Tags: Letter Source Type: research

Beyond Traditional Advance Care Planning: Tailored Preparedness for COVID-19
At the time of writing, there have been over 18.6 million patients across the world with the novel coronavirus (COVID-19)(1). COVID-19 has drastically altered how we care for patients, requiring barriers between providers and patients that undermine the depth of conversations and the ability to keep patients and families truly informed. The pandemic has introduced both logistical and psychosocial challenges put forth by resource shortages, visitor restrictions, and requirements for social distancing. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Joanna S. Cavalier, Jennifer M. Maguire, Arif H. Kamal Source Type: research

Should it be called “Suicide” or “Withdrawal of LVAD support”?
Left ventricular assist devices (LVADs) have become the standard of care for patients with end-stage heart failure refractory to conventional therapy, to improve their survival and quality of life.1 But when LVAD therapy no longer meets their treatment-related preferences, goals and values, patients may request withdrawal of LVAD support. Especially when patients are not acutely ill and they are medically stable, this request raises ethical concerns among clinicians. Prior research has shown some clinicians (13%) perceive turning off an LVAD is the same as physician assisted suicide or euthanasia. (Source: Journal of Pain ...
Source: Journal of Pain and Symptom Management - August 21, 2020 Category: Palliative Care Authors: Shunichi Nakagawa, Nir Uriel, Kenneth M. Prager Source Type: research