PC-FACS November 2, 2018
Cancer-Induced Bone Pain (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 14, 2018 Category: Palliative Care Authors: Andie Bernard Source Type: research

‘Just as I expected’: A longitudinal cohort study of the impact of response expectancies on side effect experiences during radiotherapy for prostate cancer
Previous research has indicated pre-treatment response expectancies of side effects often predict subsequent toxicity severity. However, this has been largely based on female patients undergoing chemotherapy. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 14, 2018 Category: Palliative Care Authors: Elise J. Devlin, Hayley S. Whitford, Linley A. Denson, Andrew E. Potter Source Type: research

A brief measure for the assessment of competence in coping with death: The Coping with Death Scale short version
The coping with death competence is of great importance for palliative care professionals, who face daily exposure to death. It can keep them from suffering compassion fatigue and burnout, thus enhancing the quality of the care provided. Despite its relevance, there are only two measures of professionals ’ ability to cope with death. Specifically, the Coping with Death Scale (CDS) has repeatedly shown psychometric problems with some of its items. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 14, 2018 Category: Palliative Care Authors: Laura Galiana, Amparo Oliver, Gustavo De Simone, Enric Benito, Noem í Sansó Tags: Original Article Source Type: research

Prevalence and characteristics of patients being at risk of deteriorating and dying in primary care
Understanding the prevalence and characteristics of primary care outpatients being at risk of deteriorating and dying may allow general practitioners (GPs) to identify them, and initiate end-of-life discussions. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 14, 2018 Category: Palliative Care Authors: Jun Hamano, Ai Oishi, Yoshiyuki Kizawa Source Type: research

Destination Therapy: Standardizing The Role of Palliative Medicine & Delineating The Dt-Lvad Journey
Destination therapy (DT) patients face significant challenges as they transition from chronic LVAD support to comfort-oriented care . Integration of Palliative Medicine (PM) into the multidisciplinary team is important to facilitate advanced care planning and improve quality of life (QoL). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 14, 2018 Category: Palliative Care Authors: Jennifer L. Woodburn, Linda L. Staley, Sara E. Wordingham, Jenifer Spadafore, Eva Boldea, Samantha Williamson, Sharene Hollenbach, Heather M. Ross, D. Eric Steidley, Octavio E. Pajaro Source Type: research

Factors Predisposing Terminally Ill Cancer Patients ’ Preferences for Distinct Patterns/States of Life-Sustaining Treatments over Their Last Six Months
High-quality EOL care depends on thoroughly assessing terminally ill patients' preferences for end-of-life (EOL) care and tailoring care to individual needs. Studies on predictors of EOL-care preferences were primarily cross-sectional and assessed preferences for multiple life-sustaining treatments (LSTs), making clinical applications difficult. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 14, 2018 Category: Palliative Care Authors: Fur-Hsing Wen, Jen-Shi Chen, Wen-Chi Chou, Wen-Cheng Chang, Chia-Hsun Hsieh, Siew Tzuh Tang Tags: Original Article Source Type: research

Attitudes, Beliefs, and Practices of Pediatric Palliative Care Physicians Regarding the Use of Methadone in Children with Advanced Cancer
Methadone is a long-acting opioid known for its unique pharmacokinetic and pharmacodynamic properties. Most research on methadone in children is limited to its effect on the prolongation of the corrected QT (QTc) interval. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 14, 2018 Category: Palliative Care Authors: Kevin Madden, Diane Liu, Eduardo Bruera Source Type: research

Development and Pilot Testing of a Simulation to Study How Physicians Facilitate Surrogate Decision-Making Based on Critically Ill Patients ’ Values and Preferences
There are no evidence-based programs to train physicians to facilitate shared decision-making based on incapacitated intensive care unit (ICU) patients ’ values and preferences. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 5, 2018 Category: Palliative Care Authors: Leslie P. Scheunemann, Ramy Khalil, Padma S. Rajagopal, Robert M. Arnold Tags: Original Article Source Type: research

The use of “QUAD Shot” in Anal Canal Squamous Cell Carcinoma: A Case Study with Review of the Literature
Patients with locoregional anal carcinoma who don ’t qualify for standard definitive chemoradiation are candidates for a short course of palliative hypofractionated radiotherapy such as QUAD Shot. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 4, 2018 Category: Palliative Care Authors: Neil Chevli, Gary D. Lewis, Todd A. Swanson Source Type: research

Moderating effects of forgiveness on relationship between empathy and health-related quality of life in hemodialysis patients: a structural equation modeling approach
Health-related quality of life (QOL) is a recommended clinical tool to assess hemodialysis patients and a primary end point to observe the effectiveness of overall disease management. Empathy is associated with positive outcomes such as pain relief and reduced anxiety and distress. Numerous studies have tested the relationships among empathy, forgiveness and QOL; however, a mechanism of forgiveness has not been fully explored in hemodialysis patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 3, 2018 Category: Palliative Care Authors: Yansheng Ye, Dengyan Ma, Huaihong Yuan, Lin Chen, Guorong Wang, Jing Shi, Yan Yu, Yu Guo, Xiaolian Jiang Tags: Original Article Source Type: research

Palliative Care Use and Patterns of End-of-Life Care in Hospitalized Patients with Calciphylaxis
Calciphylaxis is a rare, debilitating condition characterized by extremely painful ischemic skin lesions and is associated with a one year mortality of 25-80% at the time of diagnosis.1 End stage renal disease (ESRD) patients with calciphylaxis have a worse prognosis than non-ESRD patients with the same condition.1 Additionally, nearly 50% of calciphylaxis patients suffer from limited mobility due to severe pain and more than 70% are hospitalized for severe skin ulcers.1,2 Furthermore, calciphylaxis does not have any approved treatments although agents such as sodium thiosulfate have been reported to ameliorate skin lesion...
Source: Journal of Pain and Symptom Management - November 3, 2018 Category: Palliative Care Authors: Kabir O. Olaniran, Shananssa G. Percy, Sophia Zhao, Chantal Blais, Vicki Jackson, Mihir M. Kamdar, Jeremy Goverman, Daniela Kroshinsky, Jennifer S. Temel, Sagar U. Nigwekar, Nwamaka D. Eneanya Source Type: research

Did a goals-of-care discussion happen? Differences in the occurrence of goals-of-care discussions as reported by patients, clinicians, and in the electronic health record
Goals-of-care discussions are associated with improved end-of-life care for patients and therefore may be used as a process measure in quality improvement, research, and reimbursement programs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 1, 2018 Category: Palliative Care Authors: Matthew E. Modes, Ruth A. Engelberg, Lois Downey, Elizabeth L. Nielsen, J. Randall Curtis, Erin K. Kross Tags: Original Article Source Type: research

Clinimetric Properties Of The Brief Fatigue Inventory Applied To Oncological Patients Hospitalized For Chemotherapy
The clinimetric properties of the Brief Fatigue Inventory (BFI) were not previously assessed in oncological patients hospitalized for chemotherapy. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 1, 2018 Category: Palliative Care Authors: Andr éia Ferreira Nunes, Cristiane Orlanda Bezerra Orlanda, Jaqueline dos Santos Custódio, Celena Freire Friedrich, Indiara Soares de Oliveira, Adriana Claudia Lunardi Tags: Brief Methodological Report Source Type: research

Provision of Palliative and Hospice Care to Children in the Community: A Population Study of Hospice Nurses
Approximately 500,000 children in the United States suffer from life-limiting illnesses each year, many of whom are hospice eligible each year. Few hospice agencies, however, offer formal pediatric programs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 1, 2018 Category: Palliative Care Authors: Erica C. Kaye, Melanie Gattas, Ashley Kiefer, Jason Reynolds, Kristina Zalud, Chen Li, Zhaohua Lu, Justin N. Baker Tags: Original Article Source Type: research

Palliative Care Clinician Overestimation of Survival in Advanced Cancer: Disparities and Association with End-of-Life Care
Clinicians frequently overestimate survival time in serious illness. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 1, 2018 Category: Palliative Care Authors: Robert Gramling, Elizabeth Gajary-Coots, Jenica Cimino, Kevin Fiscella, Ronald Epstein, Susan Ladwig, Wendy Anderson, Stewart C. Alexander, Paul K. Han, David Gramling, Sally A. Norton Tags: Original Article Source Type: research

Validity, Reliability and Diagnostic accuracy of the Respiratory Distress Observation Scale for assessment of dyspnea in adult palliative care patients
The prevalence and severity of dyspnea increases at the end of life. Many of these patients have difficulty in reporting their symptoms. Accurate surrogate measures are needed for appropriate assessment and treatment. The Respiratory Distress Observation Scale (RDOS) is proposed as a possible scale although more external validation is needed. We set out to validate the RDOS in the context of palliative care patients near the end of life. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - November 1, 2018 Category: Palliative Care Authors: Qingyuan Zhuang, Grace Meijuan Yang, Shirlyn Hui-Shan Neo, Yin Bun Cheung Tags: Brief Methodological Report Source Type: research

A Systematic Review in Support of the National Consensus Project Clinical Practice Guidelines for Quality Palliative Care, Fourth Edition
Palliative care continues to be a rapidly growing field aimed at improving quality of life for patients and their caregivers. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 30, 2018 Category: Palliative Care Authors: Sangeeta C. Ahluwalia, Christine Chen, Laura Raaen, Aneesa Motala, Anne M. Walling, Margaret Chamberlin, Claire O'Hanlon, Jody Larkin, Karl Lorenz, Olamigoke Akinniranye, Susanne Hempel Tags: Special Article Source Type: research

The effectiveness of music therapy for terminally ill patients :A meta-analysis and systematic review
The quality of death has increasingly raised concern because of the physical and psychological suffering of patients with advanced disease. Music therapy has been widely used in palliative care; however, its physical and mental effectiveness remains unclear. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 30, 2018 Category: Palliative Care Authors: Yinyan Gao, Yanping Wei, Wenjiao Yang, Lili Jiang, Xiuxia Li, Jie Ding, Guowu Ding Tags: Review Article Source Type: research

Respiratory failure, non-invasive ventilation and symptom burden: an observational study
We describe symptom burden in this population. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 30, 2018 Category: Palliative Care Authors: Tracy A. Smith, Jane M. Ingham, Christine R. Jenkins Tags: Brief Report Source Type: research

Design and Implementation of Patient Portal-based Advance Care Planning Tools
Electronic health record-based portal tools may help patients engage in advance care planning (ACP). We designed and implemented portal-based ACP tools to enable patients to create a Medical Durable Power of Attorney (MDPOA). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 25, 2018 Category: Palliative Care Authors: Hillary D. Lum, Adreanne Brungardt, Sarah R. Jordan, Phoutdavone Phimphasone-Brady, Lisa M. Schilling, Chen-Tan Lin, Jean S. Kutner Source Type: research

Ultrasound guided dorsal penile neurolysis for malignant priapism pain management
We present a complex case of melanoma-related malignant priapism in which a minimally invasive technique —ultrasound-guided dorsal penile nerves neurolysis—yielded good results. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 25, 2018 Category: Palliative Care Authors: Gabriel Carvajal Valdy, Andr és Rocha Romero Source Type: research

A Systematic Review and Gap Analysis of Advance Care Planning Intervention Components and Outcomes Among Cancer Patients Using the Transtheoretical Model of Health Behavior Change
Despite the benefits of advance care planning (ACP), cancer patients rarely engage in ACP. ACP is process that parallels health behavior change. This makes the Transtheoretical Model of Health Behavior Change (TTM) an important framework for understanding how to increase ACP among cancer patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 25, 2018 Category: Palliative Care Authors: Kristin Levoy, Deborah A. Salani, Harleah Buck Source Type: research

Author's Response
I ’m grateful for the interesting comments by an authoritative group of researchers from Australia. I’m trying to respond point by point. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 24, 2018 Category: Palliative Care Authors: Sebastiano Mercadante Source Type: research

Response to “Hyoscine butylbromide for the management of death rattle: sooner rather than later”
We have read with interest the paper by Mercadante et al [1] and congratulate the authors on completing this work in a group notoriously hard to study. While the outcomes of the study at face value support the regular use of anticholinergics to reduce the phenomena of noisy secretions, we believe the routine use of medications is not supported within the available evidence. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 24, 2018 Category: Palliative Care Authors: K. Clark, C. Sheehan, D.C. Currow Source Type: research

Pilot Qualitative Study of Informal Teachers in Interprofessional Collaboration and Practice
Non-physician members of the interprofessional palliative care team often participate in teaching physicians and others in the context of workplace learning due to the interprofessional collaborative nature of the specialty. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 24, 2018 Category: Palliative Care Authors: Amy M. Westcott, Daniel R. Wolpaw, Janet M. Riddle Source Type: research

The possible Preventive Role of Pregabalin in Post-mastectomy Pain Syndrome: A Double-Blinded Randomized Controlled Trial
Chronic post-mastectomy pain syndrome (PMPS) has a considerable negative impact on the quality of life of breast cancer patients. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 22, 2018 Category: Palliative Care Authors: Raafat M. Reyad, Azza F. Omran, Dina N. Abas, Mahmoud A. Kamel, Ehab H. Shaker, Jhon Tharwat, Ehab M. Reyad, Tarek Hashem Source Type: research

Coping with Incongruence: Mirror Therapy to Manage the Phantom Limb Phenomenon in Pediatric Amputee Patients
In pediatric patients with cancer-related amputations, the incidence of “phantom limb” pain is close to 90% (1). Although its physiopathology has not been fully explained, Mirror Therapy (MT), in conjunction with other treatments, has shown promising results in adults. In children, data is more limited and there are no controlled, prospective studies proving its eff icacy, nor is there a standard for when it should be initiated, or its frequency or duration of the sessions (2,3). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 19, 2018 Category: Palliative Care Authors: Marta Villa-Alc ázar, Juan Aboitiz, Isabel Martínez-Romera, Cristina Martínez-Naranjo, Blanca López-Ibor Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 17, 2018 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 17, 2018 Category: Palliative Care Source Type: research

Managing chronic pain in cancer survivors prescribed long-term opioid therapy: a national survey of ambulatory palliative care providers
Chronic pain, or pain lasting> 3 months, is common among cancer survivors, who are often prescribed long-term opioid therapy (LTOT). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 17, 2018 Category: Palliative Care Authors: Jessica S. Merlin, Kanan Patel, Nicole Thompson, Jennifer Kapo, Frank Keefe, Jane Liebschutz, Judith Paice, Tamara Somers, Joanna Starrels, Julie Childers, Yael Schenker, Christine S. Ritchie Source Type: research

Triggered Palliative Care for Late-stage Dementia: a Pilot Randomized Trial
Persons with late-stage dementia have limited access to palliative care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 17, 2018 Category: Palliative Care Authors: Laura C. Hanson, Christine E. Kistler, Kyle Lavin, Stacey L. Gabriel, Natalie C. Ernecoff, Feng-Chang Lin, Greg A. Sachs, Susan L. Mitchell Source Type: research

PC-FACS September 4, 2018
Chronic Neuropathic Pain (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 15, 2018 Category: Palliative Care Authors: Andie Bernard Source Type: research

Personalized goal for dyspnea and clinical response in advanced cancer patients
The aim of this study was to assess the Personalized Dyspnea Intensity Goal, and the achievement of Personalized Goal Response and Patient Global impression, after comprehensive symptom management. The secondary outcome was to assess factors related to personalized goal response. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 15, 2018 Category: Palliative Care Authors: Sebastiano Mercadante, Claudio Adile, Federica Aielli, Lanzetta Gaetano, Kyriaki Mistakidou, Marco Maltoni, Luiz Guilherme Soares, Stefano De Santis, Patrizia Ferrera, Marta Rosati, Romina Rossi, Alessandra Casuccio Source Type: research

Intractable Neck Pain in a Patient With Newly Diagnosed AML: An Underrecognized Cause of a Treatable Syndrome
Crowned dens syndrome (CDS) is a variant of pseudogout involving calcium pyrophosphate dihydrate (CPPD) deposition in the atlantoaxial junction. Imaging shows characteristic crownlike calcifications surrounding the dens1. Patients present with severe neck pain, rigidity, and high fever. Clinical presentations can be variable, including acute and chronic-relapsing types, and can mimic many other disease processes. Awareness of this rare, likely underrecognized, and treatable syndrome is crucial since palliative care providers care for patients at high risk for this disease. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 11, 2018 Category: Palliative Care Authors: Jessica A. Slostad, Ellen M. Wild, Claudia M. Anderson, Cory Ingram Source Type: research

Factors related to Adherence to Opioids in Black Patients with Cancer Pain
Pain remains a significant problem for individuals with cancer.1 The management of acute and chronic pain in cancer patients and survivors requires the use of opioid therapy for individuals who do not respond to conservative management (e.g., nonopioid and adjuvant analgesics).2,3 If pain is moderate to severe and persistent, cancer patients are prescribed a long-acting opioid formulation with an around-the-clock (ATC) dosing schedule. This strategy can reduce pill burden, simplify the administration schedule, and provide consistent pain relief. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 11, 2018 Category: Palliative Care Authors: Katherine A. Yeager, Bryan Williams, Jinbing Bai, Hannah L.F. Cooper, Tammie Quest, Salimah H. Meghani, Deborah W. Bruner Source Type: research

Pre-Ventricular Assist Device Palliative Care Consultation: A Qualitative Analysis
In 2013 the Centers for Medicare and Medicaid Services (CMS) issued a mandate requiring that all patients undergoing destination therapy ventricular assist device (DT VAD) implantation have access to a palliative care team prior to surgery. Subsequently, many VAD programs implemented a mandatory pre-implantation palliative care consultation for patients considering DT VAD. However, little is known about the quality of these consults. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 10, 2018 Category: Palliative Care Authors: Sarah Chuzi, Sarah Hale, Jason Arnold, Amy Zhou, Rebecca Harap, Kathleen L. Grady, Jonathan D. Rich, Clyde W. Yancy, Adeboye Ogunseitan, Eytan Szmuilowicz, Jane E. Wilcox Source Type: research

The impact of Nursing Homes staff education on end-of-life care in residents with advanced dementia: a quality improvement study
End-of-life care in nursing homes (NH) needs improvement. We carried out a study in 29 NHs in the Lombardy Region (Italy). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 10, 2018 Category: Palliative Care Authors: Paola Di Giulio, Silvia Finetti, Fabrizio Giunco, Ines Basso, Debora Rosa, Francesca Pettenati, Alessandro Bussotti, Daniele Villani, Simona Gentile, Lorenzo Boncinelli, Massimo Monti, Sandro Spinsanti, Massimo Piazza, Lorena Charrier, Franco Toscani Source Type: research

Changes in the Care Setting of First Consults to Palliative and Supportive Care over a 7-Year Period
Optimal benefits from Palliative Cancer Care (PC) are achieved when first consults (PC1) occur early, in the outpatient setting. Late PC1, like those in the intensive care unit (ICU), limit these benefits. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 10, 2018 Category: Palliative Care Authors: Bernard Prado, Ali Haider, Syed Naqvi, Roberto C. Pestana, Janet L. Williams, Seyedeh Dibaj, Diane Liu, Julio Allo, Vera De La Cruz, Eduardo Bruera Source Type: research

Latent Class Analysis of Specialized Palliative Care Needs in Adult Intensive Care Units from a Single Academic Medical Center
In the intensive care unit (ICU), 14% of patients meet criteria for specialized palliative care, but whether subgroups of patients differ in their palliative care needs is unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 10, 2018 Category: Palliative Care Authors: David Wang, Caleb Ing, Craig Blinderman, May Hua Source Type: research

Control and context are central for people with advanced illness experiencing breathlessness: A systematic review and thematic-synthesis
Breathlessness is common and distressing in advanced illness. It is a challenge to assess, with few effective treatment options. To evaluate new treatments, appropriate outcome measures which reflect the concerns of people experiencing breathlessness are needed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 3, 2018 Category: Palliative Care Authors: N. Lovell, S.N. Etkind, S. Bajwah, M. Maddocks, I.J. Higginson Tags: Review Article Source Type: research

Preferences for Help with a Sleep Problem Before Starting Cancer Treatment
Being diagnosed with cancer can be overwhelming and is often associated with significant disruptions. Before beginning cancer treatment, many patients experience poor sleep. Disrupted sleep has meaningful clinical implications beyond ‘just’ not feeling rested. Patients who sleep poorly prior may experience worse pain, fatigue, and depression during treatment (1). Further, sleep often gets worse as treatment progresses (2) and chronic sleep problems are associated with major negative health consequences (3, 4). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 3, 2018 Category: Palliative Care Authors: Eric S. Zhou, Karen Clark, Christopher J. Recklitis, Richard Obenchain, Matthew Loscalzo Tags: Letter Source Type: research

A Systematic Review of Training in Symptom Management in Palliative Care within Postgraduate Medical Curriculums
Symptom management is a priority area within palliative care core competencies for generalist providers. While several educational initiatives exist, a comprehensive evidence synthesis on the effectiveness of symptom management training on trainees ’ learning and patient-reported outcomes is lacking. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - October 1, 2018 Category: Palliative Care Authors: Pamela Turrillas, Maria Joao Teixeira, Matthew Maddocks Tags: Review Article Source Type: research

Prognostication Using SCORTEN Severity of Illness Score in Patients With Stevens Johnson Syndrome and Toxic Epidermal Necrolysis
Often in cases of severe injury or pathology, unclear prognosis and the lack of availability of concrete mortality measurements make goals-of-care (GOC) discussions with patients and their families difficult. Palliative care providers are sometimes involved in the care of patients with severe dermatological illnesses, such as Steven's Johnson syndrome (SJS) or toxic epidermal necrolysis (TEN), and knowledge of the prognostic tools used in these conditions is helpful. The incidence of SJS is estimated at 1 –6 cases/million people, and the incidence of TEN is 0.4–1.2 cases/million people; the mortality rates are ...
Source: Journal of Pain and Symptom Management - September 28, 2018 Category: Palliative Care Authors: Olivia M. Seecof, John Liantonio Tags: Letter Source Type: research

Comparability of the Australian national Cancer Symptom Trials (CST) group ’s study populations to national referrals to non-CST specialist palliative care services participating in the Palliative Care Outcomes Collaboration (PCOC)
Utilising the results of phase III studies in clinical practice depends on how representative study participants are of the clinical population to whom the results will be applied. The closer the characteristics between the sub-group who participate in a clinical trial and the whole population, the easier it is for clinicians to apply the results directly to the patient that he/she is treating. Trial participation is generally more happenstance than a systematic sampling of a population, and is limited by eligibility criteria that do not reflect the entire clinical population. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 28, 2018 Category: Palliative Care Authors: Hiromichi Matsuoka, Samuel Allingham, Belinda Fazekas, Linda Brown, Zac Vandersman, Katherine Clark, Meera R. Agar, David C. Currow Source Type: research

Concordance between Proxy Level of Care Preference and Advance Directives among Nursing Home Residents with Advanced Dementia: A Cluster Randomized Clinical Trial
Care consistent with goals is the desired outcome of advance care planning (ACP). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 28, 2018 Category: Palliative Care Authors: Simon M. Cohen, Angelo E. Volandes, Michele L. Shaffer, Laura C. Hanson, Daniel Habtemariam, Susan L. Mitchell Tags: Original Article Source Type: research

Prognostication using SCORTEN in SJS and TEN
Often in cases of severe injury or pathology, unclear prognosis and the lack of availability of concrete mortality measurements make goals of care (GOC) discussions with patients and their families difficult. Palliative care providers are sometimes involved in the care of patients with severe dermatological illnesses, such as Steven ’s Johnson Syndrome (SJS) or Toxic Epidermal Necrolysis (TEN), and knowledge of the prognostic tools used in these conditions is helpful. The incidence of SJS is estimated at 1-6 cases/million people and the incidence of TEN is 0.4-1.2 cases/million people; the mortality rates are 1-5% an...
Source: Journal of Pain and Symptom Management - September 28, 2018 Category: Palliative Care Authors: Olivia M. Seecof, John Liantonio Source Type: research

Review of Muriel Gillick: Old and Sick in America
I began following the work of Muriel Gillick in the 1990s, when I was a doctoral student in health care ethics. At a time when the ethics literature was focused on genetics and new technologies driving critical care in academic medical centers, Gillick was one of the few writing cogently about the ethical questions I found compelling: how best to care for elderly persons outside the hospital, especially when such persons can no longer make decisions for themselves. From frequent nursing-home-to-hospital transfers, to feeding tubes for dementia patients, to the possibilities and limitations of advance care planning, Gillick...
Source: Journal of Pain and Symptom Management - September 27, 2018 Category: Palliative Care Authors: Timothy W. Kirk Tags: Media Review Source Type: research

Family Caregivers' Subjective Caregiving Burden, Quality of Life, and Depressive Symptoms Are Associated With Terminally Ill Cancer Patients' Distinct Patterns of Conjoint Symptom Distress and Functional Impairment in Their Last Six  Months of Life
Family caregivers constitute a critical component of the end-of-life care system with considerable cost to themselves. However, the joint association of terminally ill cancer patients' symptom distress and functional impairment with caregivers' subjective caregiving burden, quality of life (QOL), and depressive symptoms remains unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 26, 2018 Category: Palliative Care Authors: Fur-Hsing Wen, Jen-Shi Chen, Wen-Chi Chou, Wen-Cheng Chang, Wen Chi Shen, Chia-Hsun Hsieh, Siew Tzuh Tang Tags: Original Article Source Type: research

Author's Response
The intriguing questions raised by Campbell deserve several comments: (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 26, 2018 Category: Palliative Care Authors: Sebastiano Mercadante Tags: Letter Source Type: research

Family caregivers ’ subjective caregiving burden, quality of life, and depressive symptoms are associated with terminally ill cancer patients’ distinct patterns of conjoint symptom distress and functional impairment in their last 6 months of life
Family caregivers constitute a critical component of the end-of-life (EOL) care system with considerable cost to themselves. However, the joint association of terminally ill cancer patients ’ symptom distress and functional impairment with caregivers’ subjective caregiving burden, quality of life (QOL), and depressive symptoms remains unknown. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - September 26, 2018 Category: Palliative Care Authors: Fur-Hsing Wen, Jen-Shi Chen, Wen-Chi Chou, Wen-Cheng Chang, Wen Chi Shen, Chia-Hsun Hsieh, Siew Tzuh Tang Source Type: research