Determinants of distinct trajectories of fatigue in patients undergoing chemotherapy for a metastatic colorectal cancer: 6-month follow-up using Growth Mixture Modeling
: This longitudinal prospective and observational study was designed to identify fatigue trajectories during a 6-month period of chemotherapy in patients with metastatic colorectal cancer, and examine the psychosocial factors predicting these trajectories. Associations between fatigue and survival were also investigated. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 20, 2021 Category: Palliative Care Authors: Louise Baussard, C. Proust-Lima, V. Philipps, F. Portales, M. Ychou, T. Mazard, F. Cousson-G élie Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2021 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2021 Category: Palliative Care Source Type: research

Transitioning to Remote Recruitment and Intervention: A Tale of Two Palliative Care Research Studies Enrolling Underserved Populations during COVID-19
Context: During the COVID-19 pandemic, community-based research studies experienced prolonged shutdowns unless able to pivot to remote study procedures.Objectives: To describe the revision of two National Institutes of Health funded community-based palliative-focused clinical trials serving underserved populations to accommodate remote subject enrollment and examine its impact.Methods: Transitioning to remote processes required multiple protocol and procedural changes including: altering informed consent processes; reducing the number of surveys administered; adding internet access as an inclusion criterion. (Source: Journ...
Source: Journal of Pain and Symptom Management - June 19, 2021 Category: Palliative Care Authors: Abraham A. Brody, Kimberly A. Convery, Danielle M. Kline, Regina M. Fink, Stacy M. Fischer Source Type: research

Neuropathic cancer pain in patients treated with an EGFR-inhibitor
CONTEXT: Novel treatments of neuropathic pain (NP) are urgently needed. Based on repeated observation of rapid relief of neuropathic cancer pain (NCP) after single doses of intravenous epidermal growth factor receptor inhibitor (EGFR-I), we have successfully treated patients with and without cancer who suffer from severe, treatment-refractory NP with EGFR-Is. Pain research is complicated by endpoint subjectivity. Patients with advanced cancer are heterogeneous, with complex, fluctuating clinical pictures, hampering feasibility of standard drug-trial procedures. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2021 Category: Palliative Care Authors: Marte Gr ønlie Cameron, Christian Kersten Source Type: research

An Interprofessional Process for the Limitation of Life-Sustaining Treatments in France
The provision of potentially non-beneficial life-sustaining treatments (LSTs) remains a challenging problem. In 2005, legislation in France established an interprofessional process by which non-beneficial LSTs could be withheld or withdrawn, permitting exploration of the effects of such a legally-protected process and its implementation. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 19, 2021 Category: Palliative Care Authors: Jacob A. Blythe, Nancy Kentish-Barnes, Anne-Sophie Debue, Daniel Dohan, Elie Azoulay, Ken Covinsky, Thea Matthews, J. Randall Curtis, Elizabeth Dzeng Source Type: research

Does it Matter Who Decides? Outcomes of Surrogate Decision-Making for Community-Dwelling, Cognitively Impaired Older Adults Near the End of Life
Cognitively impaired older adults frequently need surrogate decision-making near the end-of-life. It is unknown whether differences in the surrogate's relationship to the decedent are associated with different end-of-life treatment choices. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 18, 2021 Category: Palliative Care Authors: Micah Y. Baum, Joseph J. Gallo, Marie T. Nolan, Kenneth M. Langa, Scott D. Halpern, Mario Macis, Lauren Hersch Nicholas Tags: Original Article Source Type: research

An interprofessional team-based intervention to address barriers to initiating palliative care in pediatric oncology: a multiple-method evaluation of feasibility, acceptability, and impact
Many children with advanced cancer are not referred to palliative care despite both professional recommendations to do so and bereaved parental preference for earlier support from sub-specialty palliative care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 17, 2021 Category: Palliative Care Authors: Jennifer K. Walter, Douglas L. Hill, Theodore E. Schall, Julia E. Szymczak, Shefali Parikh, Connie DiDomenico, Karen W. Carroll, Russell T. Nye, Chris Feudtner Tags: Original Article Source Type: research

Palliative Care Intervention Trials for Adults Living with Progressive Central Nervous System Diseases and Their Caregivers: A Systematic Review
Interest in implementing palliative care for adults living with progressive central nervous system diseases (PCNSD) and their caregivers is increasing. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 17, 2021 Category: Palliative Care Authors: Heather E. Leeper, I. Diane Cooper, Terri S. Armstrong Source Type: research

Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children with Severe Neurological Impairment During Decision-Making
Parents of children with severe neurologic impairment (SNI) often face high-stakes medical decisions when their child is hospitalized. These decisions involve technology/surgery, goals of care/advance care planning, or transitions of care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 17, 2021 Category: Palliative Care Authors: Jori F. Bogetz, Amy Trowbridge, Hannah Lewis, Kelly J. Shipman, Danielle Jonas, Julie Hauer, Abby R. Rosenberg Source Type: research

Applying human-centered design to refinement of the Jumpstart guide, a clinician- and patient-facing goals-of-care discussion priming tool
Human-centered design provides a framework to understand the needs of patients and clinicians who are the target of goals-of-care discussion priming tools. Few studies employ human-centered design to develop and refine their tools. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 17, 2021 Category: Palliative Care Authors: Nauzley C. Abedini, Susan E. Merel, Katherine G. Hicks, Janaki Torrence, Joanna Heywood, Ruth A. Engelberg, Erin K. Kross, J. Randall Curtis Tags: Brief Methodological Report Source Type: research

Palliative Care Practice During the COVID-19 Pandemic: A Descriptive Qualitative Study of Palliative Care Clinicians
COVID-19 created unprecedented demand for palliative care at a time when in-person communication was highly restricted, straining efforts to care for patients and families. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 17, 2021 Category: Palliative Care Authors: Joanna G. Rowe, Maryellen Potts, Ronan McGhie, Annie Dinh, Ilana Engel, Keisha England, Christian T. Sinclair Tags: Original Article Source Type: research

Implementing Palliative Care Training in the Caribbean: Development and Assessment of a Basic Palliative Care Training Course in Jamaica
The majority of people in need of palliative care (PC) in low- and middle-income countries lack access to it and suffer unnecessarily as a consequence. This unmet need is due, in part, to the lack of trained PC providers. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 16, 2021 Category: Palliative Care Authors: Bethany-Rose Daubman, Mark Stoltenberg, Dingle Spence, Eric L. Krakauer, Susan Farrell, Lara Traeger, Robert Thomas, Brittany Bromfield, Natalie Sharpe, P. Jason Toppin, Tomlin Paul, Anna Boonin Schachter, Alexandra E. Shields Tags: Original Article Source Type: research

Perceptions of Need for Palliative Care in Recently Hospitalized Patients with Systolic Heart Failure
Context: The symptom burden associated with heart failure (HF) remains high despite improvements in therapy and calls for the integration of palliative care into traditional HF care. Little is also known about how patients with HF perceive palliative care and patient-level characteristics associated with the need for palliative care, which could influence the utilization of palliative care in HF management.Objectives: To identify characteristics of HF patients associated with perceived need for palliative careMethods: We analyzed data from the Hopeful Heart Trial, which studied the efficacy of a collaborative care interven...
Source: Journal of Pain and Symptom Management - June 10, 2021 Category: Palliative Care Authors: Brett R. Curtis, Bruce L. Rollman, Bea Herbeck Belnap, Kwonho Jeong, Lan Yu, Matthew E. Harinstein, Dio Kavalieratios Tags: Brief Report Source Type: research

Recommendations for Preventing Medication Diversion and Misuse in Hospice Care: A Modified Delphi Study
Context: Recommendations are needed to help minimize the risks of medication diversion and misuse in the hospice setting.Objective: To identify recommendations that could help prevent medication diversion and misuse in hospice care.Methods: A modified Delphi method was utilized. An interdisciplinary panel of ten experts engaged in three phases of online and in-person voting regarding recommendations. Consensus for recommendations required a minimum of 80% endorsement by the panel experts. After two rounds of voting and several rounds of informal voting, 15 total recommendations were endorsed. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 10, 2021 Category: Palliative Care Authors: Orrin Ware, Mary Lynn McPherson, Joshua Barclay, Leslie Blackhall, Catherine P Emmett, Russell Hilliard, Yael Schenker, Joseph W Shega, Jack Guralnik, John G. Cagle Source Type: research

Managing bowel symptoms after sphincter-saving rectal cancer surgery: a scoping review
Rectal cancer is treated by surgical removal of the rectum and treatment may also include chemotherapy and/or radiotherapy. Rectal cancer surgery improved in the 1990s, reducing the risk of cancer recurrence (1). The operation of choice for low rectal cancers is an anterior resection and total mesorectal excision (TME), removal of the rectum and surrounding tissues (1). An anterior resection avoids the need for a permanent stoma by enabling defecation to occur via the anus (sphincter-saving). Treating rectal cancer is known to cause a number of subsequent issues, predominantly bowel symptoms in up to 80% of patients (2). (...
Source: Journal of Pain and Symptom Management - June 10, 2021 Category: Palliative Care Authors: Jennie Burch, Anna Swatton, Claire Taylor, Ana Wilson, Christine Norton Source Type: research

The association of family functioning with possible major depressive disorders and complicated grief among bereaved family members of patients with cancer: Results from the J-HOPE4 study, a nationwide cross-sectional follow-up survey in Japan.
Family functioning is a modifiable factor associated with major depressive disorder (MDD) and complicated grief (CG) among the bereaved families of patients with advanced cancer; however, the evidence regarding this association is limited. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 9, 2021 Category: Palliative Care Authors: Ryoko Hiratsuka, Maho Aoyama, Kento Masukawa, Yoichi Shimizu, Jun Hamano, Yukihiro Sakaguchi, Miwa Watanabe, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita Source Type: research

Efficacy of proportional sedation and deep sedation defined by sedation protocols: A multicenter, prospective, observational comparative study
To investigate the efficacy of two types of palliative sedation: proportional and deep sedation, defined by sedation protocols. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 9, 2021 Category: Palliative Care Authors: Kengo Imai, Tatsuya Morita, Naosuke Yokomichi, Takashi Kawaguchi, Hiroyuki Kohara, Takashi Yamaguchi, Ayako Kikuchi, Takuya Odagiri, Yuki Sumazaki Watanabe, Rena Kamura, Isseki Maeda, Natsuki Kawashima, Satoko Ito, Mika Baba, Yosuke Matsuda, Kiyofumi Oya, Source Type: research

Improved Physician Understanding of Patient End-Of-Life Preferences: A Quality Improvement Project
Code status (CS) orders lack a universal definition. We aimed to improve provider understanding of order options. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 9, 2021 Category: Palliative Care Authors: Kristin Stawiarski, Gini Jeyashanmugaraja, Kristin Edwards, Gloria Bindelglass, Gilead Lancaster Tags: Brief Quality Improvement Report Source Type: research

“She's not ready to give up yet!”: When a Family Member Overrides the Patient's Medical Decisions
Autonomy, which gives individuals the right to make informed decisions about their medical treatment, is a central principle in Western bioethics. However, we often encounter patients for whom a family member seems to dominate medical decision-making, to the extent that clinicians become concerned that the patient is subject to excessive pressure or even coercion. In this article we describe one such case and how we assess a decision-making process that involves family influence. This entails acknowledging that many individuals weigh their family member ’ preferences and/or well-being heavily in making medical decisi...
Source: Journal of Pain and Symptom Management - June 8, 2021 Category: Palliative Care Authors: Julie W. Childers, Robert Arnold Tags: Ethical Issues in Palliative Care Source Type: research

Implementation of a Palliative Oncology Tumor Board
The integration of palliative care into standard oncologic care has been shown to improve multiple outcomes in patients with advanced cancer. Ideal methods for integrating these disciplines is an ongoing area of discussion. One method of integration is a palliative oncology tumor board (POTB). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 8, 2021 Category: Palliative Care Authors: Caitlyn McNaughton, Elizabeth Horenkamp, Wendy Wilson, Roxanne Bolinger, Shanthi Sivendran Source Type: research

Acupuncture as an adjunctive treatment for pain in hospitalized children with sickle cell disease
Acute episodes of pain associated with sickle cell disease (SCD) account for over 100,000 hospitalizations and expenses of nearly 1 billion dollars annually in the United States. New treatment approaches are needed as the current opioid based therapy is often inadequate in controlling pain, resulting in prolonged inpatient stays and high rates of readmission. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 8, 2021 Category: Palliative Care Authors: Sarah Reece-Stremtan, Laila Mahmood, Stefanie Margulies, Brenda Martin, Radha Rohatgi, Risi Idiokitas, Ira Todd Cohen, Anqing Zhang, Lisa Thaniel, Steven J Hardy, Deepika S Darbari Source Type: research

Shared Medication PLanning In (SIMPLIfy) Home Hospice: An Educational Program to Enable Goal-Concordant Prescribing in Home Hospice
Simplifying medication regimens by tapering and/or withdrawing unnecessary drugs is important to optimize quality of life and safety for patients with serious illness. Few resources are available to educate clinicians, patients and family caregivers about this process. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - June 4, 2021 Category: Palliative Care Authors: Jennifer Tjia, Margaret F. Clayton, Erik Fromme, Mary Lynn McPherson, Susan DeSanto Madeya Tags: Education Exchange Source Type: research

Ethics and Society: Physician Assisted Suicide and White Ethnocentrism
Discourse around physician assisted suicide (PAS) has centered on individual choice including the ethics of individual rights and prerogatives of both patients and physicians. This discourse has been so highly charged that even terms to describe this activity, e.g. aid in dying, physician assisted dying, among others, has been a source of heated debate. We use the term assisted suicide, with dispassionate intent, to describe the medically supported and self-directed ending of one's life, as this term, from the Latin, sui (self) and cide (killing), is literal. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 30, 2021 Category: Palliative Care Authors: Dana Ribeiro Miller, Jeffrey T. Berger Source Type: research

Palliative care in Latin America: Are we making any progress? Assessing development over time using macro indicators
: Monitoring and reporting palliative care development serves to identify progress as well as remaining challenges for improvement. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 29, 2021 Category: Palliative Care Authors: Tania Pastrana, Liliana De Lima Source Type: research

“Still Caring for the Family”: Condolence Expression Training for Pediatric Residents
Insufficient communication from the medical team following a child's death may compound parental grief. Pediatric residents care for children who die, yet the landscape of condolence expression education within residency programs has not been studied. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 28, 2021 Category: Palliative Care Authors: Amy S. Porter, Meaghann S. Weaver, Jennifer M. Snaman, Chen Li, Zhaohua Lu, Justin N. Baker, Erica C. Kaye Tags: Original Article Source Type: research

End-of-life planning depends on socio-economic and racial background: Evidence from the US Health and Retirement Study (HRS)
Americans express a strong preference for participating in decisions regarding their medical care, yet they are often unable to participate in decision-making regarding their end-of-life care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 28, 2021 Category: Palliative Care Authors: Martina Orlovic, Haider Warraich, Douglas Wolf, Elias Mossialos Source Type: research

The possibility of conducting a clinical trial on palliative care: A survey of whether a clinical study on cancer dyspnea is acceptable to cancer patients and their relatives
Conducting randomized controlled trials (RCTs) on palliative care is difficult owing to barriers like fragility of the patients ’ health status and health care providers’ concerns for patients. However, quality RCTs are required for care improvement. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 28, 2021 Category: Palliative Care Authors: Kozue Suzuki, Tomoo Ikari, Ryo Matsunuma, Yoshinobu Matsuda, Yoshihisa Matsumoto, Satoru Miwa, Masanori Mori, Takashi Yamaguchi, Hiroaki Watanabe, Keiko Tanaka Tags: Brief Report Source Type: research

Spirituality in primary palliative care and beyond: A 20-year longitudinal qualitative study of interacting factors impacting physicians ’ spiritual care provision over time
Spiritual care (SC) is central to palliative care. However, a mismatch between patients ’ desire for SC and physicians’ SC provision remains. The shortage of specialty-trained palliative physicians, necessitates that all physicians provide primary palliative care, including SC. Although several quantitative studies explore physicians’ barriers to SC, few qualitative studies and n o longitudinal studies exist. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 26, 2021 Category: Palliative Care Authors: Gowri Anandarajah, Janet Roseman, Leela G. Mennillo, Brendan Kelley Source Type: research

Methadone Does Not Block NMDA Receptors
Methadone has been assumed to be an NMDA inhibitor with multiple reviews echoing the theme but is it or is it more similar to tramadol? Can the same be said for levorphanol?[1]. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 26, 2021 Category: Palliative Care Authors: Mellar P Davis Tags: Letter Source Type: research

The Most Common Medications Billed to the Medicare Hospice Benefit Among Hospice Beneficiaries in the U.S.
The use of medications that provide comfort and symptom relief to terminally ill patients is a core component of hospice care. However, national estimates of medication prescribing in hospice are limited because hospice medication claims were not previously reported in Medicare data.1 Changes in Medicare hospice payment starting in 2014 required hospices to list all medications in the hospice bill, providing the first opportunity to assess medication prescribing through the Medicare hospice benefit. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 26, 2021 Category: Palliative Care Authors: Lauren B. Gerlach, Victoria Powell, Lan Zhang, Julie P.W. Bynum, Donovan T. Maust Tags: Letter Source Type: research

Mirtazapine in cancer-associated anorexia and cachexia: A double-blind placebo-controlled randomized trial
Few pharmacological interventions are available for cancer-associated anorexia and cachexia. Mirtazapine has been suggested for use in cancer-associated anorexia and cachexia. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 26, 2021 Category: Palliative Care Authors: Catherine N. Hunter, Hesham H. Abdel-Aal, Wessam A. Elsherief, Dina E. Farag, Nermine M. Riad, Samy A. Alsirafy Tags: Original Article Source Type: research

PC-FACS: May 7, 2021
Background: The number of older individuals treated for opioid use disorder (OUD) has steadily increased from 2004 to 2015.1 Does advanced age influence OUD vulnerability? (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 22, 2021 Category: Palliative Care Tags: PC-FACS Source Type: research

Close Encounters of the First Kind: An interdisciplinary ethics of care approach mitigates moral injury and family division in the midst of COVID-19
In this compelling personal narrative describing a case from the front lines of the COVID-19 pandemic, a palliative care physician harnesses the creative powers and strengths of the interdisciplinary team to provide compassionate care to a critically ill patient and his family. The author describes the process of identifying a surrogate decision maker from among the patient's many adult children —several of whom were estranged from him and each other—and facilitating weighty decisions about his end-of-life care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 19, 2021 Category: Palliative Care Authors: Assistant Professor of Surgery and Medicine Ana Berlin Source Type: research

Editorial Board
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 18, 2021 Category: Palliative Care Source Type: research

Table of Contents
(Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 18, 2021 Category: Palliative Care Source Type: research

Attitudes toward and Perceptions of Educational Needs for End-of-Life Care among Health Professions Students: A Cross-Sectional Study in China
To provide effective end-of-life care education for health professions students, it is important to understand students ’ views of death in addition to their perceptions of educational needs and preferences. However, there is a lack of studies addressing interindividual variability in perceptions of end-of-life care educational needs among health professions students. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 18, 2021 Category: Palliative Care Authors: Lijuan Song, Tingting Cai, Fulei Wu, Jing Cui, Lingjun Zhou, Changrong Yuan Tags: Original Article Source Type: research

Two Factor Structures Possible for the FACIT-Sp in Patients with Heart Failure
Context: The Functional Assessment of Chronic Illness Therapy —Spiritual Well-Being Scale (FACIT-Sp) is a 12-item measure of spiritual well-being in chronic illness originally developed in patients with cancer. The overall scale, a 2-factor model (meaning/peace, faith), and a 3-factor model (meaning, peace, faith) have been proposed for the FACIT-Sp, and con sensus on the best factor structure has not been reached. In addition, the factor structure of the FACIT-Sp has not been considered in patients with heart failure. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 18, 2021 Category: Palliative Care Authors: Lubin R. Deng, Kevin S. Masters, Sarah J. Schmiege, Edward Hess, David B. Bekelman Tags: Brief Methodological Report Source Type: research

Development of a One-item Screening Question to Assess Spiritual Well-Being for Advanced Cancer Inpatients in Korea
Spiritual well-being (SWB) is significant for patients with life-limiting illnesses. Thus, shortened versions of questions would be helpful in approaching SWB. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 14, 2021 Category: Palliative Care Authors: Youngmin Park, Sang-Yeon Suh, Sun-Hyun Kim, Jeanno Park, Seok Joon Yoon, Yu Jung Kim, Beodeul Kang, Jung Hye Kwon, Kwonoh Park, David Hui, Hyeon Jeong Kim, Sanghee Lee, Hong-Yup Ahn Tags: Original article Source Type: research

Will to Live in Older Nursing Home Residents: A Cross-Sectional Study in Switzerland
The will to live (WTL) is an important indicator of subjective well-being. It may enable a deeper understanding of the well-being of nursing home residents. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 14, 2021 Category: Palliative Care Authors: Marc-Antoine Bornet, Eve Rubli Truchard, Mathieu Bernard, J érôme Pasquier, Gian Domenico Borasio, Ralf J. Jox Source Type: research

Ask About What Matters: An Intervention to Improve Accessible Advance Care Planning Documentation
Advance care planning (ACP) informs future medical decision-making, especially for patients with advanced age or serious illness. For clinicians to act on these preferences, or continue the ACP conversation as illness progresses, documentation of ACP discussions must be readily accessible within the electronic health record (EHR). (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 14, 2021 Category: Palliative Care Authors: Molly A. Kantor, Brandon S. Scott, Yumiko Abe-Jones, Katie E. Raffel, Robert Thombley, Michelle Mourad Tags: Original Article Source Type: research

Visualizing how to use parenteral opioids for terminal cancer dyspnea: A pilot, multicenter, prospective, observational study
How physicians use opioids for dyspnea in imminently dying cancer patients (terminal dyspnea) varies markedly, which could hamper quality care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 13, 2021 Category: Palliative Care Authors: Masanori Mori, Takashi Kawaguchi, Kengo Imai, Naosuke Yokomichi, Takashi Yamaguchi, Kozue Suzuki, Ryo Matsunuma, Hiroaki Watanabe, Isseki Maeda, Yoshihisa Matsumoto, Yoshinobu Matsuda, Tatsuya Morita, EASED Investigators Tags: Original Article Source Type: research

Palliative Care Use for Critically Ill Patients with Brain Metastases
: Critically ill patients with brain metastases (BM) face significant uncertainty regarding prognosis and survival and can benefit from Palliative care (PC). However, research regarding the role of PC in this population is lacking. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 13, 2021 Category: Palliative Care Authors: Jennifer H. Kang, Meghan Price, Tara Dalton, Luis Ramirez, Peter E. Fecci, Arif H. Kamal, Margaret O. Johnson, Katherine B. Peters, C. Rory Goodwin Source Type: research

The Supportive Care Needs of Primary Caregivers of Lung Transplant Candidates
: Caring for people with advanced illness has an impact on caregivers ’ physical, psychological, and emotional health. Patients being evaluated for lung transplantation or those on the transplant waitlist are required to have identified social support. However, little is known about the caregivers’ specific supportive care needs. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 13, 2021 Category: Palliative Care Authors: Patricia C. Pawlow, Nancy P. Blumenthal, Jason D. Christie, Lea Ann Matura, Subhash Aryal, Mary Ersek Source Type: research

Approaching the end of their lives under blue lights and sirens – scoping review
Emergency medical services (EMS) are frequently responding to calls involving patients in advanced stages of incurable diseases. Despite the competencies and potential of EMS in supporting patients and their families facing symptoms of advanced progressive illnesses, the role of EMS in providing palliative care remains unclear. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2021 Category: Palliative Care Authors: David Peran, Marek Uhlir, Martin Loucka, Jaroslav Pekara, Petr Kolouch Source Type: research

Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review
Persons from underrepresented racial and ethnic groups experience disparities in access to and quality of palliative and end-of-life care. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2021 Category: Palliative Care Authors: Tessa Jones, Elizabeth A Luth, Shih-Yin Lin, Abraham A. Brody Tags: Review Article Source Type: research

Pediatric Death by Neurologic Criteria: The Ever-Changing Landscape and the Expanding Role of Palliative Care Professionals
Pediatric palliative care providers are especially suited to support families and medical teams facing a potential diagnosis of brain death, or death by neurologic criteria (DNC), when a child suffers a devastating brain injury. To support pediatric palliative care providers ’ effectiveness in this role, this article elucidates the clinical determination of DNC and the evolution of the ethical and legal controversies surrounding DNC. Conceptual definitions of death used in the context of DNC have been and continue to be debated amongst academicians, and children's fam ilies often have their own concept of death. (Sou...
Source: Journal of Pain and Symptom Management - May 10, 2021 Category: Palliative Care Authors: Kimberly E. Sawyer, Stephanie A. Kraft, Aaron G. Wightman, Jonna D Clark Tags: Special Article Source Type: research

Prevalence, predictors and correlates of religious and spiritual struggles in palliative cancer patients
Religion and spirituality (r/s) are important resources in coping with cancer. However, there are aspects of r/s, such as religious and spiritual struggles, found to be associated with poorer outcomes. A new measure has been adapted from the Religious and Spiritual Struggles Scale (RSS) to assess r/s struggles: the RSS-14. This concise measure allows for the assessment of multiple types of r/s struggles for people from different religious backgrounds or none. Objectives. The aim of the present study was to examine the prevalence, predictors and correlates of r/s struggles as measured by the RSS-14 and its subdomains in a c...
Source: Journal of Pain and Symptom Management - May 10, 2021 Category: Palliative Care Authors: Annelieke Damen, Julie Exline, Kenneth Pargament, Yingwei Yao, Harvey Chochinov, Linda Emanuel, George Handzo, Diana J Wilkie, George Fitchett Source Type: research

Compassion inequities and opioid use disorder: A matched case-control analysis examining inpatient management of cancer-related pain for patients with opioid use disorder
The opioid epidemic spurred guidelines intended to reduce inappropriate prescribing. Although acute cancer-related pain was excluded from these recommendations, studies demonstrate reduced opioid prescribing for patients hospitalized with advanced cancer. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 10, 2021 Category: Palliative Care Authors: Sarah A. Singh, Rachel A. Moreland, Wei Fang, Parvez Shaikh, John Michael Perez, Ann M. Morris, Basem Dahshan, Rebecca F. Krc, Dilip Chandran, Monika Holbein Tags: Original Article Source Type: research

Implementation of a palliative hospital-centered spiritual and psychological telehealth system during COVID-19 pandemic.
The severity of the COVID-19 pandemic has resulted in limited provision of palliative care and hospital teams have had to rise to the challenge of how to deliver care safely to people with palliative needs. Telehealth interventions have been seen as a useful resource with potential to improve clinical effectiveness. (Source: Journal of Pain and Symptom Management)
Source: Journal of Pain and Symptom Management - May 3, 2021 Category: Palliative Care Authors: Alejandra Palma, Ver ónica Rojas, Fernando Ihl, Cristina Ávila, Francisca Plaza-Parrochia, Nivia Estuardo, Domingo Castillo Tags: Brief Report Source Type: research