Development of a Bereaved Care Partner Survey to Capture the ALS Supportive Care Experience

1. Understand the modified Delphi process used by a multisite, interdisciplinary group to develop and test a novel bereaved carer survey tool.2. Consider how bereaved carer surveys can be used to assess the quality of care received and identify areas in need of improvement.

Source: Journal of Pain and Symptom Management - April 19, 2024 Category: Palliative Care Authors: Janette Tang, Cathy Lomen-Hoerth, Marinella D. Galea, Elizabeth Lindenberger, Kate Brizzi, Eve Cohen, Judith Long, Sarah Meister, Gregory Merrill, Steve Z. Pantilat, Kara E. Bischoff Source Type: research