So confused....no diagnosis...stop looking?

Looking for confirmation my 8 year old daughter doesn't have cf. Wondering what is going on. Has environmental allergies (as shown on skin tests 2x). Diagnosed with asthma 2 yrs ago due to cough...no wheeze ever. Last school year had bacterial pneumonia in Sept (x-ray at er) and bacterial pneumonia in May (2 night hosp stay). Possible pneumonia in mid June...treated but no x-ray. In past has seen GI for possible reflux and genetics b/c she didn't sweat. Sweating has slowly started and they think possible connective tissue disorder. Recurrent pneumonias have lead to numerous tests. She's been doing really well since increasing her advair....hardly any cough ever and much less wet/gunkiness in voice on daily basis. She's had CT of lungs...clear. Sweat chloride test...low and not even close to borderline. Tested for trachea-esophageal fistula...clear. Swallow study...saw some liquids slow to clear but weren't worried. Scope at ENT...saw secretions around vocal cords but otherwise looked good. GI and pulm did scopes together....endoscopy normal--no signs of reflux or food allergies/celiac, pulm saw a lot of thick, sticky mucus and scope kept getting stuck in mucus. Cilia structually good (couldn't test fuction at this hosp). Found some bacteria or something likely from nose. Did methacholine challenge and found no asthma but lowish oxygen at the appt. During all of this, she had no symptoms. No symptoms but full of mucus and low-ish oxygen. So, giving 3 week c...
Source: Cystic Fibrosis Newly Diagnosed Forum - Category: Respiratory Medicine Authors: Tags: Newly Diagnosed Source Type: forums