Anonymization of Health Data Offers Scant Protection of Identity

I have opined for more than a decade that it's not worth worrying too much about unauthorized access to your personal health and research data because"that horse has already left the barn" (see:On the Privacy of Health Information: The Horse Is Already Out of the Barn). The security of anonymized health data was discussed in a recent blog note in a Q and A with Hank Greely, a Stanford law professor who focuses on the ethics behind new technologies related to neuroscience and genetics (see:Genetic Testing: Who Owns Your Data?). This site is calledBeing Patient. Below is the excerpt from the article:Being Patient:Can we assume that...[personal health] data is anonymized, even if they ’re sharing it? Typically, 23andMe sends people emails after completing genetic testing, asking whether they can use the data for the “advancement of science.” Will the data be anonymized as long as people don’t tick “yes” when receiving these emails?Hank Greely: Yes and no. It will technically be anonymized. They say, and I believe them, that they won ’t share your name, social security number, Visa number, address or email address.The problem is, particularly with genetic information, de-identification is a myth in that with any sufficiently robust dataset, if somebody really cared, they could go back and re-identify you. The more data is out there in terms of genetic data, the easier that becomes. But, even if it ’s not...
Source: Lab Soft News - Category: Laboratory Medicine Authors: Tags: Clinical Lab Industry News Clinical Lab Testing Diagnostics Genomic Testing Healthcare Information Technology Lab Industry Trends Lab Regulation Medical Consumerism Medical Ethics Reference Laboratories Test Kits and Home Testing Source Type: blogs

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ACS NanoDOI: 10.1021/acsnano.9b05720
Source: ACS Nano - Category: Nanotechnology Authors: Source Type: research
Conclusions and significanceLimb volume measurements by 3DIS are accurate and reproducible, and this technique is feasible for use in patients ’ homes. We have developed practical suggestions for optimal outcomes with 3DIS. Duplicate measurements should be performed and repeat assessments should be done at approximately the same time of day to minimize bias. Duplicate measures that vary by more than 8% should prompt review of scanning te chnique with a repeat measurement. With proper training and attention to technique, 3DIS can be a valuable tool for healthcare workers who work with lymphedema patients.
Source: PLoS Neglected Tropical Diseases - Category: Tropical Medicine Authors: Source Type: research
CONCLUSIONS: The results of this 11-year follow-up study demonstrate that, in patients with spinal stenosis and degenerative spondylolisthesis, decompression and posterior arthroplasty maintain clinical improvement and radiological stability. PMID: 31585417 [PubMed - as supplied by publisher]
Source: Journal of Neurosurgery.Spine - Category: Neurosurgery Authors: Tags: J Neurosurg Spine Source Type: research
Publication date: Available online 1 October 2019Source: Multiple Sclerosis and Related DisordersAuthor(s): Xiaodong Song, Dawei Li, Zhandong Qiu, Shengyao Su, Yan Wu, Jingsi Wang, Zheng Liu, Huiqing DongAbstractBackgroundCervical spinal cord atrophy (CSCA), which partly reflects the axonal loss in the spinal cord, is increasingly recognized as a valuable predictor of disease outcome. However, inconsistent results have been reported regarding the correlation of CSCA and clinical disability in multiple sclerosis (MS). The aim of this meta-analysis was to synthesize the available data obtained from 3.0-Tesla (3T) MRI scanner...
Source: Multiple Sclerosis and Related Disorders - Category: Neurology Source Type: research
Conclusions: Different combinations of aspects facilitated and hindered whether or not participation changed. To support people with stroke in their endeavour to retain or recapture participation, social support is important to consider in relation to transportation, activities and places outside the home. PMID: 31564178 [PubMed - as supplied by publisher]
Source: Scandinavian Journal of Occupational Therapy - Category: Occupational Health Tags: Scand J Occup Ther Source Type: research
ConclusionThis is the first Egyptian study to show that infratentorial lesions, confluent brain lesions and T1 hypointense lesions are conventional MRI parameters that correlate with the degree of disability in Egyptian MS patients.
Source: Multiple Sclerosis and Related Disorders - Category: Neurology Source Type: research
ConclusionWe found no indication of a prognostic value of WML shrinking in early MS patients. WML shrinking seems to be related to waning of acute inflammation.
Source: Brain and Behavior - Category: Neurology Authors: Tags: ORIGINAL RESEARCH Source Type: research
DiscussionAll analyses in this study will be based on the previous published papers. Therefore, ethical approval and patient consent are not required. The findings of this study will provide important information on the value of dry needling for the management of tension-type headache, cervicogenic headache, and migraine.Trial registrationPROSPERO registration number:CRD42019124125.
Source: Chiropractic and Manual Therapies - Category: Complementary Medicine Source Type: research
Discussion of ImagingThe availability of large volume CBCT scanners, with their larger footprint, scanning circumference, and larger scanning size area, provide an imaging option for patients with mental and physical disabilities. In the past, a single large field of view (FOV) CBCT scan has been purported by CBCT manufacturers to be a one-stop imaging solution for all extraoral imaging. Dosimetry data and FDA selection criteria have since contraindicated the use of large volume FOV scanning to replace standard periapical, panoramic, and cephalometric imaging. This case report supports the alternative use of CBCT to acquir...
Source: Oral Surgery, Oral Medicine, Oral Pathology and Oral Radiology - Category: ENT & OMF Source Type: research
Conclusions: The Danish unadjusted version of the HAQ-DI showed acceptable internal construct validity. Application of the logit MCID classified an additional one in six patients as having achieved an MCID compared to the MCID calculated on the ordinal scale, which may have potential implications for the powering of future studies. PMID: 31538511 [PubMed - as supplied by publisher]
Source: Scandinavian Journal of Rheumatology - Category: Rheumatology Authors: Tags: Scand J Rheumatol Source Type: research
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