Spina Bifida Research This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Family experiences of antenatal counselling of spina bifida: a systematic review
Conclusions Unlike other conditions where limited data on outcome exist or the spectrum is genuinely broad, the outcomes of children with spina bifida is well described. Poor aspects of antenatal counselling were described frequently by families, and further work is needed to capture the full spectrum of views on antenatal counselling, how it can be improved, and what training and resources healthcare professionals need to perform it better. (Source: Archives of Disease in Childhood - Fetal and Neonatal Edition)
Source: Archives of Disease in Childhood - Fetal and Neonatal Edition - December 15, 2023 Category: Perinatology & Neonatology Authors: Agrawal, S., Hobson, E. V., Hart, A. R. Tags: Original research Source Type: research

Cecostomy tubes improve bowel continence for pediatric patients with spina bifida: A retrospective analysis of outcomes from a single clinic
CONCLUSION: Results indicate cecostomy tubes are effective for improving bowel continence in this pediatric population. Future research is needed to conduct risk analyses and determine the clinical significance of these effects.PMID:38073339 | DOI:10.3233/PRM-220123 (Source: Journal of Pediatric Rehabilitation Medicine)
Source: Journal of Pediatric Rehabilitation Medicine - December 11, 2023 Category: Rehabilitation Authors: Asma A Taha Aaron M Eisen Hana Q Abdul Rahman Kelsey E Good Kurt A Freeman Jennifer D Kotzin Margaret H Wolf Najood G Azar Kelley R Davis J Christopher Austin Source Type: research

Patient Characteristics Associated with Sexual Interest and Activity Among Adults with Spina Bifida
We sought to identify factors associated with sexual interest and activity among adults with spina bifida and to describe the sexual profile of those who were sexually active. Sexual health of adults with spina bifida is often neglected and current knowledge on the topic is limited. (Source: Urology)
Source: Urology - December 7, 2023 Category: Urology & Nephrology Authors: Emily C. Hacker, Lillian Y. Lai, Nima Baradaran, I. Elaine Allen, Benjamin N. Breyer, Hillary L. Copp, Lindsay A. Hampson Source Type: research

Improving motor function in fetal surgery for open spina bifida
BJOG. 2023 Nov 30. doi: 10.1111/1471-0528.17730. Online ahead of print.NO ABSTRACTPMID:38037518 | DOI:10.1111/1471-0528.17730 (Source: BJOG : An International Journal of Obstetrics and Gynaecology)
Source: BJOG : An International Journal of Obstetrics and Gynaecology - December 1, 2023 Category: OBGYN Authors: Anna L David Source Type: research

Survival and causes of death in adults with spina bifida in Sweden: a population-based case-control study
CONCLUSION: Adults with spina bifida in Sweden have a lower survival rate compared with the general population, with the frequency of certain causes of death differing between the two groups. In order to reduce excess premature mortality, prevention and careful management of potentially fatal conditions are essential throughout a patient's lifespan.PMID:38010218 | DOI:10.2340/jrm.v55.18244 (Source: Journal of Rehabilitation Medicine)
Source: Journal of Rehabilitation Medicine - November 27, 2023 Category: Rehabilitation Authors: Melinda Rocchi Johan Jarl Annika Lundkvist Josenby Ann I Alriksson-Schmidt Source Type: research