‘A landmark step’: how pioneering foetal surgery is transforming lives
Guardian is given unique access to observe procedure that can radically improve outcomes for babies with spina bifidaEmily Ellis flicks through photos of her four-day-old baby, Austin, on her phone. “He is perfect,” she says with the certainty of any new parent. But the journey to his arrival has been more complicated than most. Austin has spina bifida and is one of a growing number of babies in the UK to have undergone a pioneering foetal surgery that is transforming outcomes for infants w ith the condition.Before his birth, surgeons at King ’s College hospital operated on Austin’s spinal defect while he was still...
Source: Guardian Unlimited Science - January 8, 2023 Category: Science Authors: Hannah Devlin Science correspondent Tags: Hospitals Science UK news NHS Source Type: news

Small victories: South Africa is struggling to improve kids ’ health decades after apartheid’s demise
KWAZULU-NATAL, SOUTH AFRICA— By her country’s standards at the time, there was nothing too unusual about how Nosipho Mshengu arrived in the world. She was born on the side of the road on 20 September 1993, as her mother tried to get from Mafakatini, a rural village in South Africa where there was then no health facility, to a Roman Catholic clinic an hour away. The bus she awaited was nowhere in sight when time ran out, and Mshengu made her entry then and there. This story was supported by the Pulitzer Center. A little more than 14 years later, Mshengu was pregnant herself. Her labor story...
Source: ScienceNOW - November 22, 2022 Category: Science Source Type: news

In a First, Doctors Treat a Fatal Genetic Disease Before Birth
A toddler is thriving after doctors in the U.S. and Canada used a novel technique to treat her before she was born for a rare genetic disease that caused the deaths of two of her sisters. Ayla Bashir, a 16-month-old from Ottawa, Ontario, is the first child treated as fetus for Pompe disease, an inherited and often fatal disorder in which the body fails to make some or all of a crucial protein. Today, she’s an active, happy girl who has met her developmental milestones, according to her father, Zahid Bashir and mother, Sobia Qureshi. “She’s just a regular little 1½-year-old who keeps us on our toes,...
Source: TIME: Health - November 10, 2022 Category: Consumer Health News Authors: JONEL ALECCIA/AP Tags: Uncategorized Disease healthscienceclimate wire Source Type: news

Exploring the influence of a community-based peer-led wheelchair skills training on satisfaction with participation in children and adolescents with cerebral palsy and spina bifida: a pilot study - Ouellet B, Best KL, Wilson D, Miller WC.
BACKGROUND: Peer-led approaches improve satisfaction with participation, wheelchair skills and wheelchair use self-efficacy in adults, but the evidence is limited in children. This pilot study aimed to explore the influence of community-based, peer-led, gr... (Source: SafetyLit)
Source: SafetyLit - October 18, 2022 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Stem Cell Treatment Helps Babies With Spina Bifida Stem Cell Treatment Helps Babies With Spina Bifida
"The most exciting thing was a baby came out, kicking her legs and wiggling her toes, which really exceeded expectations."WebMD Health News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - October 10, 2022 Category: Consumer Health News Tags: Pediatrics News Source Type: news

Stem cell patch surgery to mend spina bifida in the womb
Three babies have been born after receiving the landmark treatment in the US. (Source: BBC News | Health | UK Edition)
Source: BBC News | Health | UK Edition - October 6, 2022 Category: Consumer Health News Source Type: news

Racial Disparities for Pts With Spina Bifida or Cerebral Palsy Racial Disparities for Pts With Spina Bifida or Cerebral Palsy
Black and Hispanic people with spina bifida and cerebral palsy access preventive services less than their White counterparts.MDedge News (Source: Medscape Medical News Headlines)
Source: Medscape Medical News Headlines - October 4, 2022 Category: Consumer Health News Tags: Internal Medicine News Source Type: news

Prevent brain and spinal conditions in foetuses by adding folic acid to flour
The number of pregnancies affected by life-threatening issues such as spina bifida could fall by more than a fifth. (Source: NHS Networks)
Source: NHS Networks - September 2, 2022 Category: UK Health Source Type: news

It takes a village: building community with assistive technology - Locastro MM, Robinson J, Robinson E, Dosa NP.
In this Family Partnerships essay, we describe the road to world-class Paralympic sports taken by a patient at our regional spina bifida center. Jason's journey redefines differences in ability and provides an alternative to the medical prescription model ... (Source: SafetyLit)
Source: SafetyLit - August 2, 2022 Category: International Medicine & Public Health Tags: Age: Adolescents Source Type: news

Opioid Rx Dosage Higher for Adults With Cerebral Palsy, Spina Bifida
FRIDAY, July 22, 2022 -- Adults with cerebral palsy and spina bifida (CP/SB) obtain significantly higher prescription dosages of opioids than adults without CP/SB, according to a study published online July 7 in Heliyon. Mark D. Peterson, Ph.D.,... (Source: Drugs.com - Pharma News)
Source: Drugs.com - Pharma News - July 22, 2022 Category: Pharmaceuticals Source Type: news

In utero spina bifida surgery
(Source: MayoClinic.com Full Feed)
Source: MayoClinic.com Full Feed - June 24, 2022 Category: Consumer Health News Source Type: news

Mother-to-be, 23, claims she will 'deliver her son twice in three months' after operation
Jaiden Ashlea, 23, found out little Levi James had spina bifida - where part of the spinal cord is protruding from the back - at week 18 of her pregnancy in Jacksonville, Florida. (Source: the Mail online | Health)
Source: the Mail online | Health - May 18, 2022 Category: Consumer Health News Source Type: news

Jane Brody: Here's How Health Advice Changed Since I Joined The Times
Before I go, I want to highlight the breathtaking evolution in health advice that has occurred since I joined The Times in 1965. (Source: NYT Health)
Source: NYT Health - February 21, 2022 Category: Consumer Health News Authors: Jane E. Brody Tags: Medicine and Health Diet and Nutrition Gender Cancer Smoking and Tobacco Surgery and Surgeons Mental Health and Disorders Oils and Fats Depression (Mental) Transgender and Transsexuals Homosexuality and Bisexuality Spina Bifida Source Type: news

What Are Some Indications for a Vesicostomy?
Discussion A cutaneous vesicostomy is an incontinent diversion of the bladder to the external abdominal wall usually below the umbilicus that maintains a low-pressure urinary system. The urine drains into a collecting bag or hygiene product such as a diaper. It is usually used as a temporary diversion until bladder function resolves or another treatment can be carried out. However, it can also be used as a permanent diversion in some cases. A vesico-cutaneous fistula is similar but performed slightly differently. It is often intended to be a longer-term diversion procedure and is a continent diversion of the bladder. Some ...
Source: PediatricEducation.org - November 15, 2021 Category: Pediatrics Authors: Pediatric Education Tags: Uncategorized Source Type: news

Uganda: All Adolescent Girls to Get Drug for Spinal Cord Defect
[Monitor] The Ministry of Health has said all girls at menstruation age will be given folic acid to curb rising cases of debilitating spinal cord defect dubbed spina bifida and hydrocephalus. (Source: AllAfrica News: Health and Medicine)
Source: AllAfrica News: Health and Medicine - October 26, 2021 Category: African Health Source Type: news